#Henoch-Schönlein purpura

[transpiled]

I desperately want to connect with more people who were affected with hsp (henoch-schönlein purpura) as children, especially those who have become afflicted with other (physical) disabilities and autoimmune diseases later on in life. despite my wording, I do mean to include people who were diagnosed with hsp later in life, its just a very small minority of an already small group

[haridiva]

Memahami Henoch-Schönlein Purpura: Panduan untuk Orang Tua

Henoch-Schönlein Purpura (HSP) adalah kondisi yang menyebabkan pembuluh darah kecil menjadi bengkak dan teriritasi, yang dikenal sebagai vaskulitis. Ini biasanya mempengaruhi pembuluh darah di kulit, sendi, usus, dan ginjal. Gejala yang paling umum dari HSP adalah ruam ungu, yang terlihat seperti memar, biasanya terjadi pada kaki bagian bawah dan bokong, dan juga bisa muncul di lengan, wajah, dan…

[drpedi07]

Henoch Schnolein Purpura (HSP) – Diagnostic criteria Calculator

Henoch-Schonlein Purpura Overview

[tinaleighx]

The Chronicles Of Being The “Sick Girl”

Hi, I’m Crystina or known by many as Tina. I’m a 25 year old woman, born May 14th 1998 and this Is my experience and story throughout my journey with Kidney Failure and my Mental Health. This is an open letter to any and all, from a casual reader to those with the same struggles as I. Further not, here we go.

In the early months of 2016, I was approaching the milestone of finally being an “Adult”, My 18th birthday. I was so excited. This is a big thing in someone's life but for me, It may have possibly been the worst events of my life. Although my birthday was fairly normal. I woke up and went through the day as anyone would. Looking back at it now, seeing myself. I was very pale but I thought nothing of it. Maybe I just needed more sun. As the months went on I started feeling more and more Ill, I had experienced an episode of a very rare disease called Henoch-Schönlein purpura or better known as HSP/Spring fever. I had unbearable leg pain to the point I couldn’t move out of bed. I thought nothing of this, my last episode was so many years ago when I was just a little kid. We were told nothing would come from this but this episode had attacked my Kidneys leading me to Kidney Failure. Which in a sick and twisted way is pretty funny. Imagine being diagnosed with a super rare disease, becoming one of the few to experience any kidney issues to then become one of the rarest to end up developing Kidney Failure. It’s not that funny but, my “luck” doesn’t work in my favor. After this my health would quickly decline. On the 4th of July of 2016 I remember my dad was grilling hamburgers, the smell. God the smell made me feel so sick. I remember this put me off hamburgers for years to come. But even then I never thought twice about my health or how I felt. I carried on feeling sick and always sleeping. I remember sleeping so much that I’m sure I slept for 23 out of 24 hours a day. I don’t remember much of those days. I wish I knew. I lost many friends due to this. I was never around. As the months went on and things got worse I remember once looking up my symptoms on Google. We’re always told to take google results with a grain of salt so I didn’t believe it when all things lead to Kidney failure. What once healthy young woman believes that she suddenly develops an illness like this? I didn’t then but I wish I did. I still continued to go on and push through all the things I felt. Getting more and more sick as the days went by. I remember watching the 2016 election from my parents bedroom floor. I couldn’t even sit up for longer than 60 seconds. I had tried many things rather than face the truth. I remember trying out gluten free freezer meals. “Maybe I’m allergic to gluten” I thought to myself and It helped, for one night and then I was back at square one. In mid November my Mom had forced me to finally go to the hospital. I went and It was the most overwhelming experience of my life. I remember having my blood taken for testing and I remember immediately being rushed to the back of the ER. I was having questions thrown at me faster than my brain could understand. I never had an answer for them and I felt extremely anxious. It felt like a scene from a movie except there was no one there to yell “CUT!”. They needed a urine sample but I could no longer use the restroom, thinking about it now I don’t even remember using the restroom a lot leading up to this moment. This is when It all starts to become a blur to me. I remember being anxious, I remember my parents reactions, I remember my doctor saying if I had waited any longer to come in I would have been dead. From there that night was a blur. I do remember being told I needed dialysis treatment immediately. Was rushed to have surgery for a port access. It’s all just overwhelming to think about now. If I hadn’t been so stubborn and caught up in the idea that I was invincible maybe things could’ve been different or maybe I’d still be here typing this. But from here the time at the hospital is all a blur. I still try to put it together to this day. 

After my time at the hospital I started Dialysis at a nearby client for the next 4 years of my life. I know what you’re thinking. “4 years? Some get twice as much!” and while I understand that it does not outweigh my own experiences and emotions. I was the youngest person at this client, I had seen many come and go in what I hoped was them getting the call but, with the age everyone was I can only imagine It was much worse. I had heard about people passing away, even someone I sat next to for a few weeks. She was the sweetest woman I have ever met. Unfortunately she didn’t make it. I was so scared. Kidney disease and failure can take you away so suddenly. Everyday I was scared it would take me too. I was so envious of those my age, able to do things. I was jealous at points. I didn’t deserve to be in such a position as this. Even to this day I feel so far behind those at my age. It takes a lot from you. You feel hopeless, you’re playing a game with death. You either get the call or die waiting. I was lucky to have the doctors I had. He pushed for me to get on the list. If I had any other doctor who knows where I’d be now. As the years went on I had many ports go bad and clot resulting in me needing many new ones. I had surgeries done for fistulas but they never lasted due to my weak veins. They never lasted and I have all the scars as a reminder that my body was and always will work against me. 

(PART 2 COMING SOON)

[miraridoctor]

Henoch-Schönlein Purpura (HSP), also known as IgA vasculitis, is an inflammatory condition that affects the small blood vessels in the skin, joints, intestines, and sometimes the kidneys. It is a type of systemic disease, vasculitis, and autoimmune d... #Mirari #MirariDoctor #MirariColdPlasma #ColdPlasma

[gooddoctorvn]

Henoch-Schönlein Purpura - ThS. BS. Đỗ Đăng Trí Bộ môn Nhi, ĐHYD TP.HCM Khoa Thận – Nội Tiết, BV Nhi Đồng 1

[yonicfemcel]

that said the only community "we" have is on youtube. like ill fimd 100s of posts with interesting detailed info i can tell cant be fake. but then they're nowhere else to be heard or seen. same with when i had henoch schönlein purpura, only information were youtube comments. i imagine all rare diseases share this

[nephorology]

Nephrotic Syndrome Treatment

The two basic types of the glomerular disease include nephritic and nephrotic, but with some diseases, the two types can overlap.

Nephritic disease ("glomerulonephritis") is defined by the presence of blood (Hematuria) and protein (Proteinuria) in the urine and the presence of hypertension clinically. There may or may not be significant impairment of kidney function. Sometimes, a person suffering from glomerulonephritis may not exhibit any symptoms, and their condition may go unnoticed until blood and protein are discovered during a routine urinalysis.

Hematuria and impaired kidney function are common in people with the more severe nephritic disease. Urine testing may also reveal high protein levels, as well as edema (swelling in the lower legs) or high blood pressure.

Examples of conditions that may cause glomerulonephritis include:

Immunoglobulin A (IgA) nephropathy

Systemic Lupus Erythematosis (SLE)

Vasculitis

Certain bacterial and viral infections (post infectious glomerulonephritis)

Mixed cryoglobulinemia

Alport syndrome

IgA vasculitis (Henoch-Schönlein purpura)

C3 glomerulopathy

Nephrotic syndrome — People with nephrotic syndrome have protein in the urine (proteinuria) but, often, little to no blood in the urine (hematuria). Kidney function may worsen if nephrotic syndrome progresses with time.

Examples of conditions that may cause nephrotic syndrome include:

Focal segmental glomerulosclerosis

Membranous nephropathy (including lupus)

Diabetic nephropathy

Post infectious glomerulonephritis (later stage)

IgA nephropathy

Primary amyloidosis or the related disorder light chain deposition disease

[mcatmemoranda]

[beetlecakes]

Y'all, Henoch-Schönlein purpura got me and my skin f u c k e d up rn

[rainforrestsbg]

Henoch-Schönlein purpura (HSP)

[pediadoc7-blog]

Henoch Schnolein Purpura (HSP) – Diagnostic criteria Calculator

Henoch-Schönlein purpura (HSP) is a common childhood systemic vasculitis with clinical characteristics of cutaneous palpable purpura, arthralgia/arthritis, bowel angina, and hematuria/proteinuria. HSP is identified mainly based on the above presentations. Diagnose Henoch Schnolein Purpura (HSP) Check our Medical Calculator https://www.pediatriconcall.com/calculators/henoch-schnolein-purpura-hsp

[korrektheiten]

Immer mehr wissenschaftliche Berichte über schwere Erkrankungen INFOLGE einer COVID-19 Impfung / Gentherapie

ScienceFiles: Es gibt etwas Neues an der Front der schweren Erkrankungen, die von COVID-19 Impfung / Gentherapie verursacht werden: Henoch-Schönlein Purpura! “Conclusion: The clinical presentation and pathologic findings in this case strongly suggest that the Pfizer SARS-CoV-2 vaccine can trigger a clinical syndrome compatible with Henoch-Schönlein purpura. The recurrence of the rash following the second dose […] http://dlvr.it/SH73R8

[rishikrheumatology]

Vasculitis Treatment Specialist Karimnagar

Vasculitis is inflammation of the blood vessels. It happens when the body's immune system attacks the blood vessel by mistake. It is rare disease. Vasculitis can affect arteries, veins and capillaries. Arteries are vessels that carry blood from the heart to the body' organs. Veins carry blood back to the heart. Capillaries are smallest blood vessels that connect the small arteries and veins. Vasculitis are 3 types- based on size of vessel inflamed, which varies in symptoms, severity and duration

Large vessel vasculitis- Takayasu arteritis, gaint cell arteritis

Medium vessel vasculitis – Kawasaki disease, PAN (Polyarteritis Nodosa)

Small vessel vasculitis- Wegners (GPA), churgstrauss, HSP etc.

Most types of vasculitis are rare, and the causes are generally unknown. Vasculitis affects persons of both sexes and all ages. Vasculitis can be mild or severe, or even leads to death. Patients can have one episode of vasculitis or repeated episodes over years. A few forms of vasculitis affect certain age groups only. Example Kawasaki disease occurs only in children. IgA Vasculitis (Henoch-Schönlein) is much more common in children than adults. giant cell arteritis occurs only in adults over 50 years old. Vasculitis leads to poor blood flow to organs, such as the lungs, nerves, kidney and skin. Thus, vasculitis has a wide range of signs and symptoms, such as:

Shortness of breath and cough, blood in sputum

Tingling,numbness or weakness in a hand or foot

Red spots on the skin (“purpura”), lumps (“nodules”) or ulcers

On the other hand, vasculitis of the kidneys may produce no symptoms at first but is still a serious problem.

[miraridoctor]

As a parent, one of the most challenging experiences is watching your child struggle with an illness. If your little one has been diagnosed with Henoch-Schönlein Purpura (HSP), a childhood inflammatory disease affecting the blood vessels, you're like... #Mirari #MirariDoctor #MirariColdPlasma #ColdPlasma

[pathologising]

Thots on henoch schönlein purpura? That bitch took me out of soooo many school lessons to go to hospital appointments omg

very interesting! I'm glad ur okay and hope ur doing well now n_n