#HEdS

[heyimdisabled]

When I got my foldable cane a few weeks ago, it was the best Christmas present I’ve gotten in my life. It washed Christmas yet, but it was for me.

It fits in my backpack so I can take it with me to school without having to carry it when I don’t need it at the moment.

I cried of joy when no one was around because I was so happy

AUTISTIC JOY!!!

A lot of the disability stuff on here can be kinda bleak so I wanted to share the pure JOY I am experiencing today. I got my first pair of noise canceling over the ear headphones in years and they’re not only comfortable but work phenomenally!!!

Anyone with their own instances of disabled joy autistic or otherwise they’d like to share please feel free to flood me with them!

[sincerely-sofie]

Hey guys. You'll never guess who just got diagnosed with a chronic health condition.

[pinkdovess]

this meme is so niche

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

[p0is0n-is-th3-cur3]

Having dreams crushed by disability is such a deeply traumatic experience, the realization that you’ll never be able to do the thing you want most in life because your body isn’t able to handle it. Waking up the day after you received the news and feeling that utter sense of heartbreak in your chest. Watching people go on and do those things while you sit on the sidelines, forced to watch bitterly. That feeling of being trapped, imprisoned by your inability to do what you love. The grief, the anger, the sadness. All because your body doesn’t allow you to.

[im-traumatised]

Living with chronic pain.

[stellaltumi]

stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

[sillyfroggremlin]

people with chronic pain and chronic fatigue will be like why does it hurt and why am I so tired

[overqualifieddog]

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the wrist. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]

Happy EDS awareness month.

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[a-sassy-bench]

breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence

and existence is everywhere all the time no matter what even if you wish it wasn't

.

[love-me-love-my-weirdness]

I think the reason why people want to know what's "wrong" with disabled people is because they want to reassure themselves.

They want you to say you were in a horrific accident or that you have a well known and treatable disease because they think they can stop it happening to them.

They think their health is a given because they aren't a dangerous driver/ an alcoholic/a drug user/obese/an unhealthy eater etc. Obviously this isn't true but it's easier for them to think of it like that.

Until one day they meet someone who did nothing. They're not really asking "what's wrong with you". They're asking "what went wrong" because they think they can avoid it.

So when they meet someone who made all the right choices, who was healthy, who was safe and one day woke up sick and never got better, it scares them because some part of them realises that it could happen to them.

They can exercise and eat a balanced diet and be as careful as possible and it doesn't do a thing and they can't do a thing about it. That terrifies able bodied people.

People like to look for something or someone to blame and they hate it when there's nothing there.

[chronic-counter-user000]

dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.

listen to kids. we tell you what we need, it's not that hard.

[chronicallydragons]

Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind

[squishranger]

by the way...

PSA!

please do your best to not express disgust when a hypermobile person... exists. like, i'll bend my fingers weird, and the people around me will writhe and gag in disgust. referring to it as "body horror" is the worst part. it's not body horror. my body isn't horror. my body is a part of me.

yeah, it's a little freaky when you're not used to it, but please do your damnedest to keep it to yourself. it's incredibly humiliating to be on the receiving end of that sort of thing. it makes me feel like a monster or something less than human. be kind to those that aren't like you. that's the lesson at the end of the day, for all things.

thank you for your time 🙏

[enbycrip]

It me