#HEdS

[sunnywalnut]

Me when my disability disables me:

[purely-angelix]

YES BUT ITS WORSE BECAUSE YOUVE OVERWORKED YOURSELF WHILE NOT NOTICING AND NOW YOUR WHOLE BODY IS IN A FLARE AND YOURE SCREWED

Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind

[bunnyboyzyon]

[bbyblue62]

[pinkdovess]

this meme is so niche

[cursed-collective]

Hey guys just dropping in to say HEDs/HSD is NOT as rare as tiktok/other social media platforms would have you believe and it is possible to be hypermobile and NOT experience full dislocations. Hypermobility is (as many things are) a spectrum, no matter where you fall on the spectrum your symptoms, pain etc are valid <3

HEDs is also not! The only type of EDS and I believe that should be more widely acknowledged!

With that said if you suspect you are hypermobile or have another type of EDS you should ABSOLUTELY see your doctor about it and discuss your options, do your research and refuse to be dismissed as they are so inclined to do. The road may be hard but the journey is worth it in the end.

[the-cryptid-next-door]

Oh wheelchair, I yearn for thee. I should not have left you at home.

This is a prime example of "just because you can walk today doesn't mean you should"

I ding-dang April Fooled myself. Wokka wokka.

[overqualifieddog]

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the wrist. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]

Happy EDS awareness month.

[sillyfroggremlin]

people with chronic pain and chronic fatigue will be like why does it hurt and why am I so tired

[800-dick-pics]

Black History Month Isn't Over Just Yet, Help Me Get a Wheelchair!!!

I am a Black Chronically ill/Disabled Lesbian. I have been a mobility aid user for over a decade, and with my most recent illness flare and health set back, I desperately need a wheelchair. I have put off getting a wheelchair for years but my health is to a point where I need a wheelchair to function outside the house or I cant leave my house at all. Being stuck inside my house has done a toll on my mentally, and has prevented me from having consistent meaningful employment.

I have been saving for a wheelchair but I am nowhere close enough to buy the wheelchair I need, new adaptive tech, and the 2 ramps I need for my home. I am hoping to cr*wdfund for just the price of the chair not the ramps or adaptive tech. I need 1,120 to cover the cost of the chair.

CA: $sleepyhen

VN: wildwotko

DM: for PayPl

If you can help I would deeply appreciate it! Getting this chair would mean that I can leave my home safely, regain meaningful employment and see some of my aging elders again!

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

[faggotry-enjoyer]

so fucked up that "most comfortable position" and "least painful position" are Not the same.

[im-traumatised]

Living with chronic pain.

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[havensvik]

Ok mini rant, I keep seeing videos on tiktok talking about "signs and symptoms of EDS" or "things I did before I realized I had EDS" and then just listing symptoms of hypermobile type, there is 13 types... just cause hEDS is the most common type doesn't mean the other types dont exist. please if you wanna talk about signs of hEDS please specify that its hEDS you're talking about rather then just ehlers danlos in general.

This might sound like I'm just being a hater and I really don't want it to come across that way, it's more of an annoyance in that it spreads misinformation that all types of EDS have the same symptoms or as I've seen some people think, that there's only one type of EDS.

Im just a bit pissed off by it atm cause it seems the only type of EDS I really hear people talk about is hEDS, and I get why cause it's the most common type, but as someone with both hEDS and cEDS (thank you parents for both having a different type of EDS) it can get a bit tiring to never hear people talk about other types.