#HEdS
Explore tagged Tumblr posts
Text

#spoonie#spoonie stuff#chronic pain#chronic illness#chronically ill#chronic illness meme#spoonie meme#heds meme#ibs#ehlers danlos life#ehler danlos syndrome#ehlers danlos#hypermobile ehlers danlos#hypermobile eds#hypermobile joints#heds tag#chronically sick#chronic pain meme#hypermobile problems#chronic pain memes#spoonie tag#spoonie life#hEDS#ehlers danlos zebra#ehlers danlos syndrome#ehlers danlos problems
891 notes
·
View notes
Text
IT IS NOT “QUEER WRATH MONTH”
IT IS DISABILITY PRIDE MONTH.
YOU WILL NOT GLOSS OVER THAT FACT.
FOR FUCKS SAKE LET US HAVE ONE THING.
#Sorry for getting angy I saw a post about it earlier#And as a disabled person who is also queer#LET US HAVE OUR FUCKING PRIDE MONTH FOR THE LOVE OF GODDDD#Yes being openly queer is important#Yes you are allowed to be angry#You can still do that#But do not overshadow disability pride month#disability rights#actually disabled#disability pride month#disability advocacy#disabled queer#heds#chronic pain#hypermobility#disability#hypermobile ehlers danlos#hypermobility spectrum disorder#hypermobile eds#hypermobile spectrum disorder#disabled#chronic disability#disability awareness#disability pride#disabilities#disabled community#disabilties
70 notes
·
View notes
Text
anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me
#My orthostatic tolerance is currently zero#POTS#postural orthostatic tachycardia syndrome#me/cfs#fibromyalgia#chronic illness#disability#migraine#gastroparesis#chronic pain#chronic fatigue#chronic fatigue syndrome#myalgic encephalomyelitis#spoonie#mast cell activation syndrome#MCAS#dysautonomia#chronic migraine#joint pain#hEDS#ehlers danlos syndrome#hypermobility#hypermobile ehlers danlos#interstitial cystitis
48K notes
·
View notes
Text
You know what's not fun? Having imposter syndrome but when it comes to how much pain am I actually in? Am I being dramatic? Am I weak? What am I doing wrong? Why can't I just get on with it?
10 notes
·
View notes
Text
this meme is so niche
#HEDS#wheelchair#rollator#crutches#walker#mobility aids#cripplepunk#actually disabled#ambulatory wheelchair user#the kitten brothers
100K notes
·
View notes
Text
sometimes when chronically ill/disabled/neurodivergent people say “I can’t do this thing” they really mean “I can technically do this thing I guess, but not without pretty significant repercussions” and I really need more fully-abled people to understand the validity of that
#almost forgot about internalized ableism for a second there#rants & reflections#chronic illness community#disability community#disabled community#chronic illness rant#undiagnosed chronic illness#autistic thoughts#audhd problems#adhd things#untreated adhd#pots#potsie#endometriosis#dysautonomia#heds#probably heds#probably eds#hypermobile eds#ehlers danlos syndrome#ehlers danlos#hypermobile spectrum disorder#physical disability#invisible disability#neurological disability#undiagnosed disability#chronic pain#chronic fatigue#adhd autistic#cptsd things
2K notes
·
View notes
Text
Being disabled is literally like. Oh the weather is Hot so that means I'll die immediately if I go outside. Oh the weather stopped being Hot? Great, bad news, my bones and my muscles have all simultaneously collapsed in on themselves. The treatment i have for (some of) the pain? Yeah idk dude it like stopped working for no reason and the only other thing I have is PT which takes forever to give me any benefits. How am I surviving? Thats a question for the gods dude idfk.
69 notes
·
View notes
Text
#hypermobile eds#ehlers danlos syndrome#more tags for the people#physical disability#actually disabled#heds#hypermobile ehlers danlos#hypermobility#ehlers danlos problems#disability
3K notes
·
View notes
Text

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the wrist. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]
Happy EDS awareness month.
17K notes
·
View notes
Text
Living with chronic pain.
#Was feeling some shit tonight about my disabilities so have some art about it#aceofdragons#vent#vent art#chronic pain#heds#actually disabled#disability#disabled
7K notes
·
View notes
Text
Being chronically ill is like having a curse where every 4 hours you get a random status effect, and most of which are debuffs.
Also you only have 1 action per day and long rests heal 2 hp. You're cooked.
#chronic fatigue#disability#chronically ill#chronic pain#cfs/me#cfs#mobility aid#wheelchair#heds#no spoons#spoonie
3K notes
·
View notes
Text
Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind
#my body is ouchie#chronic illness#disability#fibromyalgia#me/cfs#migraine#postural orthostatic tachycardia syndrome#chronic fatigue#chronic pain#gastroparesis#pots#hEDS#ehlers danlos syndrome#hypermobile ehlers danlos#hypermobility#the horrors persist but so do I#the horrors#interstitial cystitis#I no longer desire internal organs#or bones#oof ouch my bones#dysautonomia
12K notes
·
View notes
Text
daily reminder that if you do not provide the same amount of care, respect and support to people with gi issues, to people who have to use the toilet a lot due to their disablility, to people who are incontinent, to people who vomit a lot, to people who have ibs, to people with chronic nausea, to people with bladder or bowel control issues, to people who use diapers, to people who cannot control their bodily functions, to people who drool, to people who smell bad due to an aspect of their disability, and to people who have any "gross" aspect to their disability that you do to those who have more "conventional" disabilities then you are not an ally.
#heds#hypermobile eds#spoonie#chronically ill#actually chronically ill#cripple punk#crip punk#spoon theory#chronic illness#hypermobile ehlers danlos#disabled#actually disabled#michael scribbles
2K notes
·
View notes
Text
It’s May, which means it’s Ehlers Danlos Syndrome Awareness Month!
Since it’s massively underdiagnosed, I figured this would be a great occasion to share some of my favorite infographics about this condition. (And for any of you who have been wondering why my personal posts here are basically all about medical mishaps and weird injuries: it’s because of hEDS and comorbidities.)
To any of my fellow zebras out there, we will make it through this!







#hypermobile ehlers danlos#hEDS#ehlers danlos syndrome#Ehlers Danlos syndrome awareness month#disability
1K notes
·
View notes
Text
Black History Month Isn't Over Just Yet, Help Me Get a Wheelchair!!!
I am a Black Chronically ill/Disabled Lesbian. I have been a mobility aid user for over a decade, and with my most recent illness flare and health set back, I desperately need a wheelchair. I have put off getting a wheelchair for years but my health is to a point where I need a wheelchair to function outside the house or I cant leave my house at all. Being stuck inside my house has done a toll on my mentally, and has prevented me from having consistent meaningful employment.
I have been saving for a wheelchair but I am nowhere close enough to buy the wheelchair I need, new adaptive tech, and the 2 ramps I need for my home. I am hoping to cr*wdfund for just the price of the chair not the ramps or adaptive tech. I need 1,120 to cover the cost of the chair.
CA: $sleepyhen
VN: wildwotko
DM: for PayPl
If you can help I would deeply appreciate it! Getting this chair would mean that I can leave my home safely, regain meaningful employment and see some of my aging elders again!
#black history#black history month#womens history month#chronic illness#chronic pain#heds#pots#black lesbian#idk how to tag stuff anymore#please dont give me unsolicited advice on my health please#i just wanna be able to leave my house as I cant right now and that is making life 100x harder than it needs to be
1K notes
·
View notes