#Endometriosis Doctor Near Me

[sanjivinihospitals]

Trust Sanjivini Super Speciality Hospital for specialized care and treatment from endometriosis experts.

[bubbles081021]

Hey guys I was just wondering if anyone knew about anyone that is an extremely good obgyn or someone who's really good with reproductive issues for women in central Oklahoma and southern Idaho? The doctors that I've been seeing keep hinting at endometriosis but don't actually want to do anything about it and exercise aggravates whatever is going on so I know that the pelvic floor therapy one wants me to try isn't going to work (not like I can afford to go to physical therapy in this economy anyway). I just need someone that will genuinely listen to me and try to understand what's going on. I would prefer if it weren't a male doctor however, for reasons I'm sure many will understand. I just need some help that isn't them trying to put me on birth control to stop my period.

As of right now I'm getting nexplanon put in on February 22 but if it doesn't work I just need something to do and someone to go to because I'm tired of dealing with the pain. It's not muscular because if it was then why does it hurt during ovulation and my period always in the same spots.

If anyone has any ideas on someone good in those areas please comment or dm me and if you've been diagnosed with endometriosis can you give me some tips that you've found to manage symptoms? Thanks. 😔

[saileshjain]

Best Endometriosis Treatment Clinic In Kolkata - Dr. Vinita Khemani

Endometriosis causes intense pain during menstrual cycles. Dr. Vinita Khemani is one of the most trusted obstetricians and gynecologists who provides treatment for Endometriosis.

[russellsppttemplates]

I'm here for you (Lance Stroll)

When you finally let Lance help you, you quickly find out that doing things with his support makes them just that little bit better

Note: english is not my first language. I'm not a doctor, so there are probably some inaccurate informations here, but this is what I know both from reading and from experience. Everyone has different experiences and I wanted to be able to depict that in some way.

Thank you so much to everyone who likes and reblogs, your feedback is appreciated 🤍 and I'm taking requests so if you have any ideas or concepts you want to share, feel free to do so as I'll try to get to them the best I can!

my masterlist

Tw: mentions periods, blood, medical appointments, endometriosis, (in)fertility

Tag list: @myloverjk-blog

"How bad is it?", Lance asked you as you both laid down on the bed, "like a 7, but hopefully the meds will kick in soon", you mumbled, finding a comfortable position in your boyfriend's embrace. "Wake me up if you need anything, okay? I don't want you to be uncomfortable when I can help with something", he said, kissing the top of your head and cuddling you in.

Your period had been acting up again, and while you usually knew what to do and when, this time around all of the tricks you knew seemed lack the hability to soothe you, so to say you were feeling less than fine was an understatement.

Sleeping usually helped, but soon enough you ended up being woken up by a particular sharp pain on your lower belly and lower back, and despite his insistence, you tried your best to get up from the bed to grab something to relieve the pain without making too much noise, not wanting to wake Lance up. Your efforts seemed small, though, because as soon as you got up, It didn't take your boyfriend long before his hand palmed the area where you had been asleep on, "Y/N?", he called, "I just wanted to get something to ease the pain, go back to sleep, love", you whispered, seeing him get up instead.

"I'll get the machine, you just rest, okay?", he said in a both stern and soft way, making you lie back on the bed as he looked for the TENS machine. In one of your appointments, your doctor mentioned that if you had the possibility and the means, you could try the machine as it would help you deal with the pain, and so far it had helped you a great deal.

"Here, sweetheart", Lance helped you with your top and shorts, placing the small circles on either side of your tummy, "is that good?", he said as he regulated the level on the machine, "it's not doing much, if I'm honest", you whimpered, feeling bad because of how much effort your boyfriend was putting in hopes of making you feel better and how little it was working.

"Come here", he nudged you, cuddling you closer to him as his hands traced shapes on yout tummy, "does this hurt?", he asked, "no, you're okay", you mumbled, trying to distract yourself from the intense cramps, "thank you for being here", you kissed the skin near his clavicle, "I'll be here for you, always".

You were in and out of sleep for the whole night, seeing the light seep through the windows slowly as the cramps kept getting stronger again, keeping you up for most of the time.

"Hey you", Lance mumbled, "how are you feeling?", he asked, "I think they're a little bit softer now, or maybe I've become numb to them", you huffed, trying to find a better position when you felt the need to use the toilet, "I'll be back", you said, walking slowly to the bathroom.

The uncomfortable feeling in your underwear was justified by the amount of period blood that had been way heavier than usual this time around, taking you a while to clean up before going back to the bedroom and change your bottoms.

"Did any of it get in the bedding?", you asked Lance, seeing he was already up and looking for something, too, "no, I noticed when you got up and looked for any spots, but the bed is fine", he smiled sadly, "I was thinking we should call your doctor and tell her about this? I've seen really rough cycles you've had and none of them compare to this", Lance reasoned. You had been together for nearly four years and he never saw you in this much pain and discomfort, and adding the fact that you had a good pain threshold, it was concerning him even more.

"I'll send her a text to see if she thinks I need to go somewhere, or at least give me something, and maybe this will help the diagnosis", you mumbled, grabbing your phone and writing a small description of how you had been feeling.

The last set of exams you had got done were already because of some suspicions your doctor had because of how intense your cycles usually were and this may very well be another situation to help you get closer to understanding how your body was working.

"While we wait, I'm going to get us breakfast, okay? I know food is the last thing on your mind, but you'll need to eat", he nodded, kissing your forehead before going downstairs to prepare the food.

You were reading the text your doctor sent you back when Lance entered the room, a tray with tea and toast on it, "she texted me back", you began, "she says that these are all common symptoms and that there isn't much I can do, but that she can get me an appointment for tomorrow because this helps put things into perspective", you shrugged, setting your phone on your bedside table, "I'll go with you", Lance said, helping you sit up so you could eat, "I would usually say that I don't need it, that I can go on my own, but it's not like you would let me anyway, am I right?", you smiled, "but I will actually say that I'm thankful for that and that I love you very much. I'm very lucky to have you with me", you smiled honestly for the first time in a while, "I love you, too, sweetheart".

.

When the next morning rolled around, Lance drove you both to the appointment, his hand resting where your leg met your hip and rubbing circles. After checking in and grabbing your card so you could go to the lab and let them collect the samples they needed, you went back to the waiting area, Lance sitting in one of the sofas. "Was it okay?", he asked, "yes, the nurse just had to get a blood sample so the doctor can check if everything is fine with that, the scan os inside her office from what she told me", you replied. Just on time like the appointment was scheduled, your name was called and you both got up, Lance lacing his fingers in yours and squeezing it as you entered the office. Greeting you both, your doctor asked you to sit down, "Hello Y/N, Hi Lance, please take a seat", she said, "it seems your pain hasn't been getting any better", she added, letting you carry on.

"I've been managing it just fine like I told you in the last appointment, but this month it was unbearable, I don't think it ever got this bad. Especially around my lower back and lower tummy, definitely never felt like this", you explained.

"I'm just opening your lab results here on the computer", she said, "you remember the possibilities we talked about in our last appointment, and I think we have enough results here that would suggest one of them, which is endometriosis, so I'd like to do another scan to see if there is support to that hypothesis", she nodded to the table.

You set your bag on the chair you were sitting in, moving to lay on your back and lift your shirt up so she could place the gel on your skin, "it's cold, I'm sorry", she smiled apologetically as she grabbed the wand, looking at the screen and frowning. You had been her patient long enough to know her enough to gather that it wasn't good news. Question was: was it bad news because it supported the diagnosis or was it bad because you were back to square one with no idea about what symptoms to look for?

"Do you see these parts here? This is all endometrial tissue that's grown outside of your uterus, which is here", she pointed to the screen, "because you're about on the last day of your period, so your flow is smaller now", she checked and you nodded, "so this, like we spoke about, can be the cause of your symptoms, why you feel so much pain, why your cycles tend to be on the heavier side, also the tiredness, the nausea", the doctor added, now turning to Lance so he could also be involved in her explanation.

After cleaning you up, you sat back in the chair next to Lance, feeling his hand land on your thigh as your doctor typed the results on the computer, "having said this, I'm recommending you a few specialists in this area, so you'll have specific, specialised and personalised care", she offered, "I know this can be a scary moment, but I also want you to see the side where you're finally aware of what is happening in your body and now look for the answers that target it".

"Was there anything that could've prevented this? Are we doing something wrong?", Lance asked, "no, this isn't something you can prevent. Usually, endometriosis is hereditary, and since Y/N mentioned her aunt had some issues getting pregnant and her mother also showed these symptoms, it is most likely that is is genetics", she enlightened, seeing you nod as you squeezed Lance's hand back.

After she went over a few more tricks for your pain management, you and Lance thanked her and walked out to the car, getting inside and fastening your seat belts. "Are you okay, darling?", Lance wondered, not being able to read your expression, which wasn't usual.

"It may sound weird, but I think I've been expecting this. Like, I knew what I had wasn't normal, and after talking to my mother and my aunt, it started to make sense. And then I read things on Google, which I know it's not the best thing, but I did it carefully", you began, "so I was expecting it, I guess. Me and Dr. Marlin have been discussing the possibility, so it wasn't a shock. She was very direct because that's how it has always been and I appreciate her for it", you noted.

"I have to admit she was a bit forward", Lance chuckled lightly, his hand grabbing yours, "but it makes sense now. I want you to know, though, that I'll be here for everything that I can, I want to support you as much as possible", he added.

"It's still something to process, and it's only for sure whenever I go to the next appointments, so I'll just take it in", you answered honestly, smiling at Lance before kissing him, "thank you for always being here".

When you arrived home, you felt your body get even more tired as you changed into comfortable clothes, sensing that as soon as your head hit anything resembling a pillow or a mattress you would fall asleep.

While you slept on the big sofa, Lance was on his phone looking up the best specialists in the area, typing the phone number and email as well as their name in his notes app so you could both discuss it later once you woke up. Even though Dr. Marlin explained a few things about what her suspicions were and you had also told him about them from previous appointments, Lance had to admit he wasn't well-versed in the topic beyond what you had told him, so he did what he thought was best and looked it up on the Internet. Mindful of the websites he was reading, he came across a few ones that seemed legit and that had a simple language and didn't sound too alarming and rather only just wanting to spread knowledge about the topic. They all mentioned your symptoms, gave a brief explanation of what it was and the implications did catch his eye, smoothing his finger over the screen as he locked his phone, hearing you stir in the middle of your sleep.

"Hey, bub", you said, approaching him and craddling his arm, "are you feeling better?", he asked, pressing his lips on the top of your head, seeing you nod.

"I was looking up specialists, and I have a few contacts here, I made a little list", he began, "and I know we should've done this together, but I couldn't help myself, and I was looking up a bit more information because I didn't know about it", he scrambled out, "I was not taught this, I don't think anyone is, but I looked it up, and- yeah, there are doctors for these kinds of things and they seem to know what helps and what to do".

He looked so nervous that you felt you were the one to calm him down and reassure him, "hey, one thing at a time, yes?", you urged, grabbing his hand in yours in an attempt of calming him, "thank you for looking them up, I'll see the list and the ones that fit the situation best", you said.

"Fortunately, we have the means to do this and seek help to make you feel better, for all the options we have", your boyfriend continued, "I sort of fell in the spiral of what it would mean and I want to be with you every step of the way".

"As much as I think this is too much, I can't help but be grateful that we can do it, so I'll let you have this one", you smirked, "and like you said, we'll take it one step at a time".

[sweaterkittensahoy]

thinking about the sports medicine doc I saw several months ago because I fucked up a tendon last year and went to get evaluated for a cortisone shot and/or PT.

Due to white-knuckling my way through severe endometriosis for several years before getting help, and then white-knuckling through two more years of active treatment because I wanted to be SURE I REALLY NEEDED to just take out everything (that I wasn't using in the first place, not wanting children), my relationship with pain is a fucking mess. Like, I could feel it HURT when my back tweaked, and that was obviously an issue. But also, I have no idea what amount of pain is average.

So, anyway, first time meeting this sports medicine guy. Sent that way by my primary care doc who has always been fantastic. But the sports medicine doc wasn't HER, so I was worried I wouldn't be taken seriously because it wasn't until I was 29 that doctors actually started listening to me about my pain.

Doctor comes in. Asks what's up. I explain how the injury happened and when it hurts. And then I took a deep breath and said the scariest thing, "The thing is, I can't actually tell you how bad it is because I have a really unclear idea of how much pain I have because I spent several years in near-constant to constant pain with severe endometriosis, so I disconnect from my pain a lot."

And this doctor goes, "Oh, okay. Good to know. I've worked with a lot of endo patients. Let me check a couple of things."

And one of the things he tried was to put his thumb right on the lower back tendon that was flared up in anger at the overall issue and PUSHED. And I made some sort of noise, and he went, "Okay, so that tendon is super angry at you. You definitely need PT to get things healed up. Do you want the cortisone shot today? If not, I'm going to tell you to ice it and take painkillers and just be careful, but that can be easier with the shot on board."

And a part of me went, "No, of course not! Why would I need that???" But what came out of my mouth was "Yes, I would like the shot."

And I was very fucking proud of myself because, my god, the RELIEF. Did it long-term fix the issue? No. That was what the PT was for. Did it PROVIDE relief? YES. Holy shit. The level of BETTER I felt was amazing.

I don't know if I have an overall point of this post except to remind you that your pain is valid. Your pain is worth lessening. Just because you've suffered with no help before doesn't mean you have to do it again. Get the cortisone shot. Get the fat ibie prescriptions (just refilled mine). Do the PT and don't push yourself to the point of pain just because the therapist is watching (still working on that one).

[afterthefuneral]

Update on Cradle to Grave

I've cranked out quite a few chapters in the past few days. Currently I'm working on the most fun chapter yet! The story will conclude soon...I think. I'm not good with how to end things and having way too much fun writing. I've gotten AMAZING feedback so far. Check it out here:

Cradle to Grave - Chapter 1 - AfterTheFuneral - Beetlejuice (Movies) [Archive of Our Own]

It's been an amazing distraction from my health. I've talked about that briefly here, and some people ask. A little update after the cut:

I have a 1 inch cyst near my left ovary. It's on the tissue connecting the ovary to my fallopian tube. The doctor's ruled out PCOS and endometriosis. We don't know what the cyst is made up yet, it could be fluid, it could be cancerous. I still have months of tests in front of me to determine if it should be removed. It's a great financial burden and I'm already struggling. It's also scary being at the cancer ward all the time. So there's that.

[crippled-peeper]

I can't remember exactly, but are any of your spinal issues around the lumbar-sacral area (specifically anywhere near L5-S1)? If so do you have any recommendations for supports or other aids that help with pain and general ability to move around somewhat comfortably?

Sorry if these kinds of questions are annoying but you're kind of the unofficial Spine Guy™ of disabled Tumblr and I don't know of anyone else to ask

Hey, so I do have issues around that area and I am so glad you asked me because nobody explained the concept of a 6th lumbar vertebrae to me and it turns out it’s something I actually have and you might have it too?

10% of people have a 6th lumbar vertebrae. So it is uncommon but not rare, kinda like endometriosis affects 10% of ppl with uteruses. Unless you’ve seen a doctor for that area specifically or had imaging done, it’s unlikely anyone would have told you about it.

For most people it is harmless. However, due to the nature of how L6 can underdevelop/fuse to other vertebrae, it does cause chronic pain and chronic mobility issues for certain folks

This article explains it really well.

The best thing you can do for a lumbar spine injury is light exercise to build your core strength.

Here are some simple exercises you can do with a yoga ball , foam mat, and 20 minutes . It’s always better to see a physical therapist who can guide you through these but physical therapy is very expensive in my country so I understand if that’s a barrier

[fandom-space-princess]

24-hours post hysterectomy thoughts:

- my doctors said that everything went really smoothly, and my discharge nurse said that for what I had done to me I was doing amazingly well. I got released to go home about an hour and a half after waking up. Guys I did it! I got a good grade in surgery!

- today I can both eat and walk better than expected. Anaesthesia didn't make me nearly as nauseated as I was afraid it would. The incisions hurt, but not nearly as bad as cramps did. Laughing hurts. Coughing hurts. Both are tolerable though.

- it still hasn't sunk in yet that I'm really done having periods forever. FOREVER. The mind boggles. (I mean, technically I'll still have the hormonal component - I kept my ovaries. But the debilitating pain and the horrible cramps and bleeding through every pair of pants I own? Bitch byeeeeeee!)

- one of my friends congratulated me on being "no-longer-girl" which. I already wasn't. Gender does not live in an organ, especially one I no longer have. But I find that I'm inclined to feel charitably about it. She's a little confused, but she got the spirit.

- I can kind of feel where they removed the endometriosis from (the places that always hurt on the inside of my pelvic wall and near my ovaries now hurt in an interesting new way). It's freaky, but sort of a good freaky?

- I woke up in the middle of the night so dehydrated that my eyelids were stuck shut. I had to massage my eyes to get them open 😭 hydrate or diedrate has never felt like more pertinent advice. My goal today is to drink about a gallon of tea.

- what do you MEAN I never have to have a panic attack at the thought of being pregnant ever again. What do you MEAN I'm free from that hell for the rest of my life. That no matter what happens to me or what kind of bullshit politics are happening around me, I can never ever be forced into this thing that I've always feared. I still can't wrap my mind around it. It feels like such a gift.

- all the cleaning I did and little treats I bought myself and fussy adjustments to my diet and habits I made in the lead up to this all feel 100% justified right now.

[wild-moss-art]

hi moss! I hope you are having a good day!! I was wondering if you were willing to share how you convinced a doctor to yeet the uterus :O are you scared about having a major surgery? (I am, as always, having The Thoughts.)

<3 I hope you're having a good day too! It is a long story and kind of personal but I'm happy to share bc I know that it's really difficult to find info on, and if anyone has questions you can feel free to dm or send an ask. Gonna put the story under the cut.

First of all, I live in america and this will all sound very american lol.

In the interest of not burying the lede, my working theory is that I have endometriosis or adenomyosis; these are notoriously difficult to diagnose. Endometriosis is only diagnosable through a laparoscopic surgery and adenomyosis is literally only diagnosable through getting a hysterectomy and having the tissue biopsied. If you don't want a hysterectomy, you can't get an official diagnosis.

Now to the backstory. I think my medical history and experience advocating for myself medically had the most impact on being approved for this procedure.

I have been on hormonal birth control since I was about 13 or 14 practically as soon as I hit puberty I had debilitating periods. I was missing a lot of school and obviously this didn't look good for my parents, so I was put on the pill, and later when I was older I switched to IUDs. The birth control basically put a bandaid on the problem, and the IUD eliminated my period altogether.

Near the beginning of this year, I started to have a lot of pelvic pain that I initially thought was a UTI. I went to the doctor who kept telling me I didn't have the bacteria for a UTI, and basically sent me home with some antibiotics anyway, which didn't help. They did not test for any other problems. I ended up switching doctors due to insurance purposes, but was also put off by the care I'd received.

When I went to the next doctor, they were actually willing to run tests. This doctor and every other doctor I've seen since initially insisted I must have an STD. A panel was run, and I was fully clean for STDs. I was referred to a urogynecology specialist, as my main symptoms at this point were pain(which they do not care about- didnt even put it in my file) and difficulty urinating(this symptom I believe is the only reason I was able to get a referral to a specialist).

While I was waiting for my urogynecology appointment(they were pretty booked out), the pain got worse, like a lot worse. I was also having more and more hormonal symptoms like heavy acne. I was able to move my appointment up but ended up going to the ER. At the ER, I posted about my experience which I can link if you'd like but I'll include the relevant info. The doctor hadn't looked at my age on the file and initially DENIED testing because I was "too young". He came back later and approved it, because he actually looked at my fucking file. From this point on I've been livid and ready to fistfight every doctor Ive seen.

I was at the ER for like 10 hours and got a CT scan, which showed all the inflammation in my uterus and little in my bladder, which was when I began to realize that the bladder issue was just a symptom and not the problem. The original doctor was off duty toward the end of my visit, and the new doctor came in for briefing when she mentioned they needed to run an STD panel. I told her I'd had one about a week ago that was fully negative. She said "I need to go talk to my supervisor."

Ultimately, I was released from the ER with a prescription for extra strength ibuprofen and a referral to a gynecologist. They said my IUD was stabbing me internally, and needed to come out. They did not take it out at the ER.

At this point, it was time for my urogynecology appointment. At the appointment, I told them about my ER visit and asked if they could take my IUD out. They said they didn't really do that there, but after I showed them my CT scan results, they did it anyway. I felt a lot better, immediately. They were helpful and awesome, but said that they mostly treat bladder problems, which was clearly not what I had.

I didnt feel fully better though, because hormonal birth control keeps endometriosis and adenomyosis symptoms and pain at bay. The pain has gotten gradually worse, but it's not longer quite as sharp and stabbing. I've been doing a lot of research about these conditions thanks to a helpful tumblr mutual, and I believe I have adenomysis. I'm not sure whether I have endometriosis.

I followed up on the gynecology referral from the er; I am really happy with this clinic so far. They are the ones that offered the hysterectomy. In my initial appointment, I mentioned that I was not on birth control and wanted to be sterilized. They asked if I wanted birth control in the meantime. I said no(I believe this helped).

(as an aside. Another reason I believe I was offered what I was is that I am married. When I listed my partner as an emergency contact, they specifically mentioned that I did not take his last name. I believe this says something about our relationship to doctors. I know often they will ask for the husband's permission in this scenario; however, they did not even bring him up beyond the last name thing.)

When I met with the doctor for a tubal ligation consult, we talked a bit about the procedure and what other symptoms I was having. I also got an ultrasound that showed inflammation in my uterus(as well as a medium sized cyst on my ovary. lmao). He said the tubal ligation would not help my other symptoms. When I mentioned my CT scan, he actually left to go look at it, returned and immediately asked if I wanted kids. When I said no, he told me he could give me a hysterectomy.

We went over some details; just a hysterectomy is a pretty non invasive procedure and doesn't even require an incision. He mentioned that it may or may not fix the whole problem(it would fix adenomyosis which only affects the uterus, not endometriosis which affects other organs) but that it's pretty complicated to remove the ovaries because it's a more invasive procedure and basically I'd have to be on hormones to simulate menopause for a really long time(I'm only 27). So that is an option, but it's better to just see if the hysterectomy fixes my problems.

The surgery is in 10 days from now and I have my intake consult on tuesday. I plan to update cause again, I know not a lot of people talk about these experiences and it would have really helped me to have known more going in. I really cant wait, I've basically been bedridden, cant exercise, can't stand for long periods of time, not much at all. I'm lucky my livelihood is sitting on my couch drawing.

Finally, I believe that it is possible that they wanted to sterilize me due to my mental health history. I am in ongoing treatment for my mental health, and have particular diagnoses that I do not disclose publicly. You can message me if you'd like to know this information.

[sanjivinihospitals]

Consult the best endometriosis specialists at Sanjivini Super Speciality Hospital for comprehensive gynecological care.

[be-ready-when-i-say-go]

It's a personal gab. Medical talk.

I was potentially diagnosed with endometriosis. I'd been screened previously and they noticed fibroids and cysts. Cool, cool, nothing major--right? Until the pain doesn't stop, until the cramps double me over, until pain meds don't work. Until I have to call out from work.

So I go back for more opinions. I'd already tried birth control pills but hated the side effects. I asked my doctor if there was anything else I could--exercise, diet, supplements. I'd do it. Doc tells me well there's really only birth control.

I'm not above Western medicine. I just wanted to exhaust all other options.

I go to a different doctors--who's seen me a total of twice after last week. He listens to how bad the pain's been for me since August 2019, hears how I've tried pills and don't like them, that I've lost weight, changed my diet (and am still working to change) and goes, hmm, I don't think it's just something like bad periods.

He tells me that he has a strong suspicion for endometriosis, lays out a potential treatment plan that weights out my dislike for the pills (which leaves me with the only option as an IUD), and potential surgery if it doesn't work. But he does tell me--none of this is curative. It's all meant to help mitigate my symptoms. There's a high chance that if I do go for surgery, I'll have to go again in a few years.

This fine because what he doesn't do is dismiss any of my desires to still try alternative paths of medicine.

I go in for another ultrasound today--just to re-establish that the cysts (which he now suggests is endometrioma) is still there. All to find that there's a potential lesion of endometrial tissue growing adjacent to my left ovary, near the fallopian tube. It's not official, just the tech's initial observation. The doctor still has to review everything.

And I only feel grief. Grief that the path I thought was on is going to look vastly different. I might do surgery first, then an IUD. I may be able to do an IUD first and then save surgery for last. I feel grief for the 23 year old who knew something was wrong but didn't say anything. I feel grief for the 26 year old who left every OBGYN appointment disappointed and angry. I feel grief for my 27 year old self who still thinks that it could all be fixed in a snap.

I have chronic conditions (eczema, asthama, food and season allergies). I'm not new to chronic conditions. Endometriosis is long stand, chronic.

There must be a limit on the number of ailments a person can have all at the same time and I hope with this I've hit it.

I'm exhausted, and frustrated, but also relieved to know it wasn't all in my head. But goddamn, I need to unsubscribe from the strongest soldier package in 2024. Pls and thank you.

[nospoonsbutknives]

Since I’m still not supposed to work, clean, or do anything but resting (well and walking gently) after my diagnostic laparoscopy, I am being driven nuts with boredom. So I started speculating about what condition I might have if I don’t have endometriosis, and since they didn’t remove anything I’m thinking pathology will come back negative (although something happened, there was scarring). One of the few possibilities left is fibromyalgia, and I have convinced myself this is what I have😂

We’ve ruled out structural issues (according to two neurosurgeons I have a beautiful spine), my brain looks clear, I’ve had MRIs up and down the spine and hips, I’ve had an EMG, I went to the Mayo Clinic, I’ve had different blood tests done … I think rheumatology is the only thing we haven’t pursued. So many doctor and hospital visits😭

And when we first started searching I wouldn’t have guessed fibro or endo. I had what felt like an explosion of pain near my tailbone which then radiated down my left leg. We thought something with my spine for sure. It never went away, and overtime it’s changed … a flare for me feels like having the flu all over with pain and inflammation. I get muscle spasms and twitches, pain in other areas (although the low back and left leg still have the higher pain score), brain fog, chronic fatigue, headaches … and I can’t walk unassisted, I use either a cane or I’m in a wheelchair. And every test comes back fine😂

I’m writing this all down because I don’t do a good job of tracking my symptoms. I undersell how much everything hurts or impacts me … I just want to be able to hike again, to prepare yummy food, go places with my kids, be able to think clearly … but here we are, three years into this chronic pain journey, still pursuing a diagnosis 🤷🏻‍♀️

If you read this far, excuse my word salad😂 I don’t want to bum people I know out, and I do try not to speculate or fixate on possible conditions. Just kind of spilled out today.

[maidofmetal]

so fucking brutally exhausted of all the discourse in the cri/pp/le and m/ad punk tags i understand there are different experiences and challenges to each specific type of disability i understand the need to specific space especially when discussing structural and systemic ableism and with dealing with doctors and symptoms and life in general these experiences are and can be so so different and that’s important to consider but it’s sooooo goddamn fucking isolating trying to go through either tag and just seeing ableism hurled at eachother. i am currently more housebound than i have been in a while due to a broken wrist a broken wheelchair i currently cant use my prosthetic because of alignment issues that is causing my hip bursitis to worsen, my periods have gotten so much worse lately (did you know endometriosis can be asymptomatic. and i would not refer to my past periods as asymptomatic because they were always horrible but holy shit compared to what i have going on now 🫡) i have anywhere from mild to severe chronic pain and fucking severe and UNTREATABLE lifelong mental illness. i am in constant distress all the fucking time right now because of both my body, my brain, my past traumas, my current situation the years of untreatable mental health weighing on me and looking towards my future and feeling so fucking hopeless about it. getting out is really difficult for me right now. i’m hoping to be able to get to community meetings at some point in the near distant future but i’m exhausted of trying to find comfort in either of those tags only to be met with the worst fucking takes i have ever seen. i understand that people see both of these disabilities and separate. i understand how able bodied NDs (looking at you adhd and autism onlys) can communitcate their struggles in ways that can be ableist, uniformed and invalidating towards physically disabled people (honestly even toward severely mentally ill people y’all need to work on that 😒😒) but you also have to respect the people who see our physical and mental disabilities and inherently intertwined. and trying to separate them or take away the context in which we became disabled is so fucking hurtful and harmful. sometimes scrolling through the tags i feel like y’all want me to rip my body from my brain because it doesn’t easily fit into ur physical vs mental disabilities. but bodies don’t fucking work like that and i’m just left feeling more and more isolated from both mentally ill and disabled community. fucking hell when i learned about cripple and mad punk i was so excited because i have always been loud and unapologetically disabled but i have become so disappointed in trying to find community amongst u. i feel like i can’t be my whole disabled self in either community. i can’t rip apart my body anymore than it’s been ripped apart. fucking punks my ass.

(if u try starting slur discourse i will kill you 🔪)

[fractallogic]

So at my last doctor’s appointment, the doc was like “please have a period at some point soon. Please have two periods a year for your bone health”

And I’m really not into that, because a) my periods have been getting more and more painful and crampy and the latest one I was IN BED FOR TWO FUCKING DAYS because I was so miserable and hurting and sick, and b) whatever hormonal shifts happen when I’m getting a period make me at best very depressed, and at worst actively suicidal, so like idk, I feel like that also has to do with my bone health at some point

And furthermore, like with the cholesterol bullshit, you don’t actually seem to understand that there are many other ways I accidentally promote my bone health through other activities, like as a side effect of weightlifting, yoga, and even taking mg dumb little pokewalks, or as a side effect from taking 500 mg of calcium and 500 mg of magnesium every single night to help me sleep better (and let’s not forget the calcium present even in small amounts in ice cream, cheese, and almond milk)

So given that this doctor seems stubborn, and very inclined to talk down to me, AND I’d like to say “fuck you I have a research degree too”, I’ve also spent maybe an hour poking around the internet for well-informed popular articles and scientific articles about bone density and continuous oral contraceptive use, and. Well. Guess the fuck what

Continuous oral contraceptive use only affects bone mineralization in adolescents

When it’s tested in adults, it doesn’t seem to have an effect. The differences in bone density levels are evidently minuscule. (And I’m 32, where I’m basically at the point where my bones are at peak density (approx. age 28-35)—no longer mineralizing and improving, and not yet decreasing in density.)

Every gynecological website (important, because she’s a GP, not a GYN) I’ve found has said “no, you do not actually have to have a period for any kind of health reason when taking birth control continuously”, which matches what two gynecologists in two very different practicing conditions have told me. (It’s because it virtually stops the endometrium from growing, which is why it also helps people with endometriosis.)

AND FURTHERMORE, we actually don’t know anything about how dense (or not) my bones are. I’ve never broken a bone. The amount of calcium in my bloodstream in the labs is within the normal range (which, what does that mean? No fucking idea).

So anyway, all this to say that no, I won’t be having any periods in the near future unless there are more fuckups with my prescription. You don’t have enough information—and haven’t requested more information—for me to trust you.

Also I think I need to find a new doctor so that I can actually trust them