#Chronic Anemia

[thebibliosphere]

Had my hematology appointment today:

Hematologist was very lovely, competent and thorough.

He took one look at the dose of iron I’m on right now and almost tripled it. So we’ll see how my stomach handles that 😬 (nobody come near me with any magnets /jk)

If it’s untenable he’s not against infusions, he’s just extremely hesitant because of my history of idiopathic anaphylaxis and even people without mast cell issues have anaphylactic reactions to iron infusions, so he’s being cautious and wants to see how far we can raise my levels via oral supplements provided it doesn’t completely wreck my GI tract.

If it does we’ll revisit and do what we can to manage it.

Current working theory about why I keep depleting so quickly is because of all the damage MCAS did to my insides when it was running untreated, so I’m not absorbing or holding onto anything and my body depleted what little stores I had trying to keep me alive, and then because of my ongoing nutritional issues because of MCAS, I’ve just never been able to bounce back and recover as my body continues trying to repair itself.

As for why my deficiencies are only being found when I go into crisis: that’s just doctors not knowing how to read blood results properly and relying on the “normal” markers too much.

Apparently he didn’t even need to look at my ferritin numbers to know I was deficient. He was able to tell at a glance from my iron panel based on the numbers, even though those numbers were “within normal range.”

(So to all the medical people who follow me, maybe keep that in mind if you have patients who keep testing “normal” but are symptomatic. Maybe send them to hematology if you can.)

He’s in agreement that either way this is likely a source of my worsening migraines. He’s unsurprised neurology didn’t have a clue and dismissed it. Apparently when you go under 50 things just don’t work so good.

So to my chronic migraine friends, get your ferritin levels checked and try to get them over 50 at a minimum.

We’re aiming to try and get mine up to 100 over the next year. Wish me luck.

I’m going to go back to resting. I’m tired. But hopefully not for much longer 🤞

[cpunkwitch]

It actually kinda really saddens me to see people only mention pots and never anemia and now I understand both why people tried to suggest we had pots on our shower post and how important our pots vs anemia info post is really going to be

No one actually understands or knows as much about anemia on here as they do pots so by comparison pots seems like the more important one to bring up (I know I'm not wording that correctly or the way I want to convey it but that's the best I got rn)

Anemia has just as many risks as pots esp with temperature, but I only ever see people bring up pots when it comes to heat and anemia when it comes to dizziness

From that alone it sounds like people really only have a simplified understanding of the basic symptoms of both if not just anemia

I'd really like to see anemia talked about more especially having a severe case myself

[gornwen]

Morning run. Morning sunshine.

I headed out this morning thinking I would just do my little 1.5 mile commute run, but the weather was a little too perfect and I've been trying to push myself to build that stamina back up, and that extra 10ish isn't that much... so I made a mid-run decision (about when I took this photo) to run for full 30 minutes. Definitely worth it, especially relearning that I can in fact run for a half hour straight. So much of running is mental, I know that. But it's so easy to get caught up in those thoughts.

I run to prove to myself that I can do hard things. And keep my hemoglobin above 12.

The Deets

2.14 miles

30:03 minutes

14:03 minutes per mile

Crazy splits: 15:03 for my first mile and 13:21 for the second. I guess I really did need that second mile to wake up

No doves

[sorchathered]

Happy Monday from me as I wait around for my first iron infusion treatment, hopefully this means I’m on the path to feeling normal after years of this mess.

[thattheater-kid]

me when I told my friend I can’t donate blood because I have a blood disorder that keeps me from donating (thalassemia, it’s not severe but I already don’t have what my body needs, even being on my period is tough) and this girl said to me “you’re lucky, I’m always getting asked to donate blood because I’m a universal donor.”

like HUH?? what kind of FUCKERY? who says that??

[snakeskinass]

God, you sneeze one time and everyone thinks you’re sick again

[medical-chan]

Every damn year I tell my mother not to put Christmas lights on the handrail and what does she go and do?

PUTS LIGHTS ON THE HANDRAIL!!! >:(((

What kind of bullshit is this- She KNOWS I have chronic anemia and that I rely on the handrail every time I get home from school but noooo- it’s festive and it’s only for a few weeks- apparently festive stuff is more important than me FALLING DOWN THE DAMN STAIRS bc I didn’t have anything to hold properly

[crazyfilterlady2024]

Unraveling the Signs of Genetic Anemia: Understanding the Symptoms

[divine-construct]

love it when i go to the museum and my blood pressure drops for no reason at all and i faint

[jeffreycharlestoronto]

OMG I stayed at this place It's a motel 6 outside Erie PA. I was Driving from my home in Toronto to New orleans for Mardi Gras. Well they are supposed to leave the light on for you and you can see they didn't. And they wouldn,t take my Canadian money. Plus they only had a room on the top floor and there was no elevator. Pure crap a lousy 8/10.

𝕹𝖎𝖌𝖍𝖙'𝖘 𝖛𝖊𝖎𝖑 𝖘𝖔𝖋𝖙𝖑𝖞 𝖋𝖆𝖑𝖑𝖘 𝕯𝖆𝖗𝖐𝖓𝖊𝖘𝖘 𝖙𝖆𝖐𝖊𝖘 𝖎𝖙𝖘 𝖍𝖔𝖑𝖉

[lemonduckisnowawake]

You know, it's a tragedy that there are no (or very little) Vampire x Christian stories out there, not for angst or theology or forbidden seductiveness or whatnot but for the sheer comedy of it all. I mean, the Christian would technically be immune to all of the vampire's shenanigans, like for example...

Vampire: Fool, I am the most powerful vampire in the West. Nothing but the force of an entire holy temple could even deign to scratch me Christian: Idiot, I AM a holy temple. 1 Corinthians 6:19, fear me and the Spirit inside that can burn you to ashes

[thebibliosphere]

Hey, so, guess who has hidden secret anemia that wasn’t detected by a basic iron panel? Again.

🫠

[chaoticautie]

*temperature drops slightly*

My eczema, seasonal depression, severe joint & muscle pain, sensory issues, chronic fatigue, anemia, insomnia, unchecked heart problems, aching bones, cold sensitivity, and unpredictable immune system:

[hannahcrazyhawk]

“The loneliest moment in someone’s life is when they are watching their whole world fall apart, and all they can do is stare blankly.”

— F. Scott Fitzgerald

[sojournertales]

Currently distressed by health issues.

Would appreciate prayers for peace and clear answers/info, if you happen to read this.

Especially peace.

God is still in control.

What else can I do but trust Him?

[salswisteria]

Sweetheart totally suffers from chronic pains and freelancer is absolutely chronically anemic.