#you can want your life to be good WITH your disability still in it
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ultimately i think that if you are trying to glean information about a person's real life personality or priorities or morals based on their taste in fiction then.... you are wasting your energy. like i don't even mean this in a shipping discourse kind of way, i'm also talking about like. those posts like "you like enemies to lovers because you want someone to see you at your worst and still love you" and "you like girl-next-door romance because you crave being known and loved by someone who's seen every part of you" or "you like BDSM porn because you want someone else to take control of your life."
these posts are frequently made in jest but. they drive me insane. i am aware this is a no fun allowed kind of take and i am Not trying to ruin anyone's fun, i just..... good God. can we stop applying pop psychology and freudian analysis and other such bullshit to our reading habits. please. please god. please.....
and on the other hand. if there are people already poised to take this in bad faith..... yes, of Course i'm the type of person to make this post, since i write largely horror-rape-torture-murder bullshit. and i actually would Love for people to assume i'm dangerous due to the horror-rape-torture-murder bullshit, since in actuality i am trapped in the body of a fat physically disabled soccer mom, and it sounds nice to be scary.
but like. being completely, totally, 100% sincere here. like i am not being a bitch, i am trying to impart genuine advice. IF you're spending a lot of time stressing out about what fiction does or doesn't say about you, your peers, your family, or (maybe especially) the people you dislike....
....your energy is being sucked into a black hole. Find Another Thing To Stress Over. Thank You
#everything is cosmically meaningless in the end but this is meaningless in our day and time like right here right now. you feel me.#i dunno what to tag this.#violence m#rape m#i GUESS.#a week off tumblr and i came back and looked in the notes of a post and went#wow. i didn't think about this shit at all when i was offline. you guys need to stop caring. this is nothing.#and suddenly all stupid discourse was solved forever. the heavens open up and angels sing.
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84,206: didn't I tell you I had the brainworms today? I was not even in the vicinity of fucking around. I'm just gonna slap another quote in because all the writing juice is getting used for writing.
I wish you were better too. I don't know why you aren't, either, but I love you even if you never get better forever.
This is so very blatantly written by disabled fucked-up people, about disabled fucked-up people, for disabled fucked-up people, and I love that for me and also for the rest of the disabled fucked-up people.
New Thing: to keep myself from just yelling at all times what my current word count is with no further context, I'll post it and whatever is currently happening, except it'll be a spoiler-free Describe Your Story As Badly As Possible version of what's happening (and if I can't even do that, then I can shush about the word count until I can).
So, without further ado...
Sequel word count: 10,071, and Valentina is painting X's nails, because why the fuck not, GIRLS NIGHT GIRLS NIGHT GIRLS NIGHT (even if only Valentina is a girl and neither of them have a terribly strong sense of gender to begin with).
#Nevi Writes#I'd say 'I'd cry if I read that in a story' but I cried a lil writing it so yeah lol.#I'm going to represent the FUCK out of chronic illnesses and nobody can stop me#and like is that kind of dialogue wish fulfillment? abso-fucking-lutely!#it's a wish that I don't think most disabled people are even aware they're allowed to entertain#you're supposed to want to Get Better#but what if you don't? what if you CAN'T?#do you still have to want something that's literally not possible? fuck no#you can want for it to be okay even if you never get better#you can want your life to be good WITH your disability still in it#I don't think I've really seen that represented in fiction much at all and why not honestly#it's probably out there. I'm not actually much of a reader tbh. so I'm probably just not seeing it#but I can't imagine it's that common either.#like even outside of fiction it's still pretty radical to consider disability acceptance as a Thing#I've had abled people get SHITTY with me for not pursuing every pants on head stupid 'cure' they tell me about#and like. why. mind your damn business. I'm not obligated to follow strangers' orders about my health.#I have things that There Is No Cure and I'm done wasting energy and money chasing one.#I'm a whole-ass person worthy of everything in life even if I'm mostly bedbound today#even if I was bedbound every day forever#that's still okay. that's morally neutral. that's just how brains and bodies can be sometimes#anyway that's about what's going on lol#the plot is not in a hurry (it's picking up steam slowly) but the disability rep is COOKING currently#hello fellow disabled fucked-up people do you want to read a story that's about funny little robot guys#but actually it's about disabled fucked-up people?#because if you do then boy have I got some exciting news for you!
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one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else
#i have to sleep a lot. i’m at the point where functioning requires 8 hours of sleep if not more#I should probably be getting 10+ but i’m a student and i work so 8 is the minimum. but then also getting ready for bed is a whole process s#the whole thing can take 10-12 hours depending how much im sleeping. just to make sure i can do anything#that is time in my day i cannot use for anything else. it’s not ‘oh but i can push through it’ because i can’t without spending the next da#lightheaded and nauseous and vaguely dizzy and with such intense brain fog I can’t think with my fatigue so bad i genuinely don’t know how#get myself to work a lot of days. my abled peers don’t have to deal with this at all. they have unlimited study time if they want to#and yeah it is a choice i’m making that’s true i could just not do. except i would lose my job and fail out of college because i would not#be able to get to classes or do my homework or think. but being told ‘but you are making choices about your life’ when i have lost so much#of what i used to be able to do because i am spiralling down and continuing to get worse is so.#literally last year i would wake up at 6:30 and then go to school till 3 and then go to my internship until 10 and get home at 11 and be in#bed anywhere from midnight to two in the morning and then wake up the next day and do it all again. i graduated with a 3.9 gpa and made it#into my top college while dealing with my cancer symptoms and then the two surgeries about it#but now i lose half my day to just making sure i can get out of bed. i can’t go anywhere because my body is physically too exhausted#any extra time goes into doing homework or occasionally time to myself#not decimating my health by doing minimum body care responsibilities isn’t freeing. occasionally i have a good day which is freeing but tha#usually goes into just. other things outside class or work or eating. I don’t go do something for myself or go do something fun on good day#because I still can’t. good days just mean i don’t want to lie down on the pavement when i’m going somewhere#I just. I don’t magically have control over my life because i try to get enough sleep. i lose half my day to doing that and ultimately it’s#just a bodily function that would have to happen anyway#this is a vent post im just having a really hard time right now because it feels like im in exponential decline. it was nowhere near this#bad last semester. my grades are tanking and i have no free time because anything outside of sleep is either work or school#vent tw#yall can rb this just ignore my tags completely#disability#chronically ill#i keep trying to explain to people how pots works because that’s all logical but there’s no way to explain what it’s doing to my body or ho#i feel all the time. the last time i felt this bad was when i had a bad flu or immediately after surgeries because i don’t react well to#anesthesia and always come out of them feeling like shit. and now i just feel like this all the time and it’s only getting worse#I can’t even stay up late anymore because my body feels like it isn’t counting the sleep even if I get 8 hours#I can deal if I have a free day the day after but that just leaves Friday and Saturday nights and I usually still have to do homework
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i do love my family very dearly but the internalized ableism the men in here struggle with is. so much
#marzi speaks#it’s worse with my brother but he’s doing more to actively work on improving that#my dad however has very subtle internalized ableism that i don’t think he recognizes is there#which is. fun#like earlier. either last night or this morning i don’t remember#i was talking to him about how while ideologically i have nothing against accepting needing help and things like that#in practice it’s very challenging to adjust to being disabled even temporarily. and that if i do end up with a diagnosis that’s gonna be#a lot to handle. both mentally and just with the lifestyle changes i’ll have to make#and he makes a bit of a face and goes ‘i wouldn’t quite call you disabled. i’d just say ‘ill’’#and i just sort of look at him. and i blink. and i go ‘i am physically Un-Able to do things i am normally able to do’#‘i can’t walk long distances at all. i can’t sit in chairs for too long without causing pain’#‘i’ve spent the last 24 hours staring longingly at my computer because i want to draw but am currently Not Able To’#he didn’t argue with me but i can tell he was still unnerved by the idea of picturing his daughter as disabled#also like . illness and disability are not mutually exclusive? several disabilities are or involve chronic illness#i shouldn’t be surprised though. i mentioned considering starting lexapro#and he went on his ‘you’re an adult and it’s your choice in the end but i wouldn’t recommend it’ spiel#(he’s anti-psychiatry bc he doesn’t like the idea of breaking the brain down into smth so purely physical)#(and also doesn’t like the idea of someone being dependent on pills their whole life)#(which i’m giving him some slack on rn bc he is a just-got-clean recovering opoid addict. so)#(btw before any of you say SHIT abt my dad he took his pills legally prescribed for chronic pain and did not abuse them)#(and even if he DID that would give nobody a right to make a moral judgement on him. ok cool)#i then reminded him that my mom takes anti-anxiety meds and they really really helped her#and he just goes ‘true.’ and moves on#king u got some shit to unpack#it’s fine if u didn’t want to start antidepressants when it was recommended to you meds aren’t for everyone#but like come on now. u don’t gotta be so fundamentally against it when literally ur own wife who you adore takes psych meds#anywho my mom handled me making the disability comment much better. she was basically just like ‘ur fear is totally understandable’#‘u have a good support system we’ll help you through it’#which. thanks mom 👍 that was very kind of her to say
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Its kind of insane like genuinely insane how many people on here have no idea what life is like for average people in the third world / global majority and the Neo-colonialism that creates those conditions to support conditions in the North and how insanely cruel they can be as the absolute baseline and the type of killing and death that maintains the boundaries between the north and the south.
Like tell me you've never met an immigrant or refugee without telling me. Do you genuinely not know what happens to people who get deported, or work in the farms or meatpacking factories that feed the North?? The child deaths in the border crossings? The mines all over the globe? The people that die from lack of baseline vaccinations and sanitation and healthcare trademarked by western companies? The literal MILLIONS of third worlders killed in the wars across the globe defending US economic hegemony? The agent orange, the land mines, the carpet bombing, the drones? What the fuck is wrong with you?
#mine#sorry bitchy posting#idk why I even read discourse on here anymore its mostly just beefing or more motivated by a specific shitty user or whatever.#idk but like we can accept that you can be poor and disabled and still have other privileges why is it not ok to point out the#overwhelmingly oppressive conditions the North holds the South in and the passport and supply chain and linguistic and exchange rate and#labor protections other such things that all citizens of the global North have closer access to than those of the South. What if it didn't#matter who was in charge of your country and no matter what liberatory things they wanted to do the IMF could still have you gutted and#economically force your country to cut your social programs and use national debt to put your entire population to work serving the#producing goods and raw materials that everyone in the global north consumes whether they have a choice or not.#It not like similar conditions don't exist in the north but its crazy to see people posting that imperial core privilege doesn't exist.#It fucking does.#and it grinds up the bodies of the south in million upon millions and it's fucking insane to act like its an imposition on you to even try#to care or understand. Borders are material and they fucking kill people. They fucking kill people#I literally know someone who almost died because of his non-residential status. His life was only saved because he happened to get diagnose#in a country that had a medical system that could treat him. He had to stay sick and dying and away from his family for 4 fucking years#because if he went home he would never be allowed back again. He was only able to stay because he had support from a vouching citizen frien#who could speak the language well. Then after he was cleared he was sent home and because he has a 'preexisting risk factor' he will never#be granted a work visa in the country again. If /when the illness relapses he is going to die without treatment.#It makes me fucking livid that people can discard the violence of borders so quickly. Borders fucking kill. And they kill in the millions.#The north runs of southern blood. That doesnt mean that northerners arent killed too. But its fucking crazy to act like no such axis exists#any american president would kill the same number of southerners without the destruction of the north-south extractive supply chain.#Im sorry about the spam lol. But this just pisses me off. HOW ARE YOU SO BLIND. How can you say these things and think youre a good person.#How can you say these things. How.
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As it's also totally valid if you do happen to prefer contact lenses though, you don't have to actually buy those via your optician either - once you have your prescription and have trialled a lens brand you know works for you, there are plenty of much cheaper generics out there that you can brand match online (I use Everclears via VisionDirect in the UK) and then double checked they were safe with my optician next time I had an appt.
can we talk about how literally 64% of people wear glasses, and yet we NEVER see them in movies/tv unless it's on some nerdy or uncool character? why do we adhere to such a weird beauty standard that subconsciously makes us feel bad for,, not being able to see???
#here's a thought... maybe we can not frame disability aids as being purely about vanity and profit?#i fucking loathe wearing glasses as they're a sensory nightmare#best day of my life was when i finally got allowed my GP contact lenses aged ELEVEN#GP lenses actively stop your myopia worsening and also are shitty from a profit basis#now I'm officially Old & also fucking adore that i can wear cheapie disposable dailies instead because SO COMFORTABLE and no more cleaning#the one rest day a week i have to wear glasses is actively painful and gives me migraines (it's not a prescription thing it's just sensory)#there are things you can and can't do in glasses and hard/GP lenses and soft lenses and everyone is capable of making their own choices#it's not some moral failing or capitalist conspiracy if you find that contacts make your life SO much easier#i aint doing yoga in glasses they literally fall off my fucking face in downward dog#aaaand frankly there's no good option for swimming unless you want to wear goggles all the time &/or replace your dailies when you get out#prescription sunglasses have never worked for me so lenses are the only way i can wear sunglasses as well#being able to shove a bit of plastic into my eye given my prescription has been one of the great privileges of my life#i think education about the risks of soft dailies needs to be stepped WAY up though#people are always surprised when i change lenses after getting water anywhere near my eyes#i spend a lot of time explaining how having the equivalent of a petri dish on your eyeball needs constant risk management#still absolutely fucking love them#the only glasses i can still bear to wear for any length of time are a weirdo pair of designer ones i got in 2004 with floating hinges#they are supremely indestructible
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because jason dohring doesn't use social media ever. jason doesn't know how to use twitter or even instagram. his twitter is handled by his agent
ah, true, still i find it strange, the account liking random stuff like that.
#like JD can be as inactive as he wants to be#i won't force him to be super active on social media but like#his twitter randomly likes concerning stuff i feel#and if it was his agent liking that post. maybe they should learn to be a bit better at handling the accounts they have access to#incase they like something very very very weird#because based on what i know about conservatives. they are all massive freaks#it all starts with being anti-whatever the current most unconventional thing is#whether it's poc or lgbtq+ people or disabled people#then they will start talking about how it's to save the kids but then they don't give a single shit about kids in actual danger#because the kids in Gaza? the kids in Congo? kids living in poverty? they don't care about them#but if it makes them look like heroes. they will pretend to care for an unborn child that won't have a good life if their would-be parents#were forced to have a kid. like you aren't gonna have a good life if your parents don't want kids. i can guarantee you that#but conservatives don't care. they just like knowing they're still privileged#soooo i might recheck JD's likes in a few days and if there's weird stuff#like pro-life bs or “trans women aren't real women” or “end wokeness. white people aren't represented anymore”#then i know the agent is a weird conservative fuckface#and if the agent likes weird stuff on Jason's account. it could look like Jason is a weird fuck who for example supports fascism#and if i was Jason. I wouldn't like people thinking that I'm some fascist because of something my agent liked#but that's just me
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My ideal economy is highly authoritarian which sucks because who the hell is ever going to get on board with that
#my posts#people hate being told what to do especially by strangers but the problem is if we let people do whatever we want then people act evil#but i want a government to calculate exactly how many jobs are needed in Every sector in order for everybody's needs to be provided equally#and then to create quotas and incentived and early track education programs to ensure that these jobs are filled#and in theory because theres so many people and people are so productive that if we just had a neat enough system#then disabled people and children wouldnt Have to work to get their needs met#but they would have a very easy to navigate system for finding remote & temp jobs when they wanted to work#because in my ideal society everyone has their needs met so everyone only works to generate fun spending money#for like tourism and arts and research projects and eccentric coin collections or whatever#i think if someone told you that you would never have to pay for rent or veggies again but u had to work to pay for movie tickets#you'd still want to work a little right? youd want to work a job that Matters so you could clock out and go bowling#basically my ideal society is one where productivity is motivated out of desire for fun rather than a need to survive#and sure not every job is FUN but some people are good at farming and some people are good at accounting and some people are good at making#coffee and all of these things are useful so if you didnt have to worry about working to survive wouldnt you Eventually get bored#and want to fill your time up with Something that contributes to society?#maybe no you wouldnt. but what if you grew up in a community that taught you that 'work' is all about giving back to your community?#that to 'work' is to invest in a society that provides all your basic needs and never leaves you hungry or homeless or without healthcare#and the reward for working is not only that you get to come home to a house that you will never* be evicted from#but All the money you make gets to go towards Whatever you want. it doesnt Have to go towards maintaining the life you already have#all that you earn can be put towards upgrading and expanding your life. instead of rent or mortgage bills#your money can save for a ~fancier~ house or a bidet. or something idk. can you see it?#the biggest problem is wtf is a bureaucracy that is 'easy to navigate' ROFL have you fucking Ever heard of that??#how tf do i invent a government system that understands how all sectors of society work together and can easily & clearly#explain that dynamic and track All of the necessary jobs + resources + people that go into a society#like imagine if a government was there to help make your life better And it actually did that?? doesnt exist. how do i invent something#that does not fucking exist?? im not an inventor im a prenursing student ;-;
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Tips on how to avoid being unintentionally ableist
1. When a disabled person says they cannot do something, and you wish to offer solutions, do not make a solution that involves them powering through pain, or something thats not accessible to the disabled.
Example:
Disabled person: "washing dishes hurts too much and i cannot do it."
Abled person: "what if you did one dish at a time throughout the day?"
This statement is not respecting that this disabled person just said they "can't". Always respect that. No matter how simple the task would be for you.
Disabled person:" i think ill use plastic silverware so i don't make dishes."
Abled person: "plastic is bad for the environment!"
This statement shuts down the most accessible and disabled friendly option that this disabled person can actually do because of the abled persons personal beliefs. This is not helpful, and ableist.
Better yet, instead of offering solutions, ask them directly "is there anything you need that you do not have that would help you do this?" This allows the disabled person to think about what would work, and they will always have a better idea of what would work than you do.
To add on to this, when we say we have no more energy to solve a problem or do a task, or change our lifestyle, we mean it.
2. If you feel discomfort when a disabled person is talking about their health, good and bad, that is ableist. Your discomfort is coming from a place that deams disabled peoples very existence as a bad thing and you need to fix that.
For example:
Disabled person:" this week has been rough pain wise, ive been through a lot, felt like my body was on fire. Lucky i got new meds though and i think they're helping!"
Abled person: "can we talk about something else, this is a bummer."
Disabled people should be able to exist freely without worrying about your personal comfort. Do you really think its appropriate to tell someone in constant pain that their life is making YOU uncomfortable?
3. Do not treat disabled people as tragedies, do not romanticize their old life or put their current one down.
For example:
Disabled person: "yeah my life is pretty difficult sometimes, ive lost a lot but i still have happy moments."
Abled person: "it makes me so sad to see what disabled people go through :(. You used to love rock climbing and running, i would love to see you move around more again."
This statement is putting more value on the disabled persons abled past, and ignoring their life as a whole.
4. Do not avoid speaking to disabled people because it hurts to see your loved one disabled.
For example: my grandmother avoids conversations with me because it hurts her to see me in pain. While she has good intentions it leaves me being unable to be close to her. This is very isolating to the disabled.
5. Do not stop inviting your disabled friend/loved one out even if they are never well enough to attend. Unless we specifically ask you to stop asking if we can go out, good chances are we want to know you still care because again, disability is very isolating.
6. When a disabled person says certain things in their health have gotten better or worse, do not challenge this because you don't see a difference.
For example:
Disabled person: "yeah things are getting a little better"
Abled person sees disabled person using their wheelchair like usual: "i thought you said you were getting better?"
Better and worse are usually small changes only the disabled experience, its not like abled people healing from a broken arm. Better to a disabled person could mean they can stand for 10 more minutes.
7. Do not expect disabled people to ever be abled again, and again, do not put more value on an abled life.
For example:
Disabled person:"I have been using a wheelchair for 2 years."
Abled person: "oh you're young, im sure you'll be walking around in no time!"
This statement invalidates and ignores the disabled persons current life by hoping they get a more abled bodied life. Its fine to hope disabled people get better, but you don't get to decide what better looks like.
Hope this helps, stay punk.
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Kindly take a break from scrolling to read this, it's important.
Take your time to grieve and come to terms with the election results, but once you've done that, it's time to get to work. We have two months. And a lot to do in that time. We have to prepare, to be ready.
Be careful about what you post or say online. Anything potentially incriminating should be avoided. Threatening language, even if clearly a joke, can be used against you.
Know someone who's trans? Someone who's had an abortion? Someone who's LGBTQIA+? Someone who's an immigrant? Someone who attends protests? Someone who's disabled? Someone who might in any way be at risk due to laws being put into place? No you don't.
Move away from social media platforms and browsers that require you to use your real identity or input a large amount of personal information. Now's a good time to find alternate means of communicating online. Tails, Element, Tor, Mastodon, Firefox, and Lemmy are all decent options.
Find a community. Someone you can talk to, either online or in real life, that you'll have reliable contact with. We need to try and create a network, but one that's as anonymous as possible.
Start scrubbing your trail as much as possible. Get rid of old accounts that can still be traced to you but are no longer used, delete personal data off the internet. There are websites out there that will freely remove your data from the internet, but be careful about which one you use, make sure it's safe and legitimate first.
Change any usernames that you can that contain any personal information. Names, birthdays, anything.
Plan B has a four year shelf life. Stock up, but don't take more than you you'll need. We don't want a COVID repeat where everyone buys an excessive amount of things and leaves none for everybody else.
There are doctors that will sterilize you, if that's the way you want to go.
Stop using online period trackers right now. Delete all data from it if possible first, then delete the app itself. If you must, write it down, but in a subtle manner and on something you keep at home. Don't label it, just put the dates. If you're really worried, discard older records and only keep the most recent few, and label the dates as other random events, like "go to mall" or "chicken salad for dinner this night"
Get your vaccines now.
Save money.
Archive. We have to start collecting records, media, data, books, and articles now. On racism, on fascism, on homophobia, on gender, on self-reliance, on survival, on safe travels routes, on equality, on justice, on anything that may be useful and/or censored soon. We can't let them erase it.
Collect those online resources. Bookmark them, copy files into your storage, Screenshot pages. Create a decentralized library where everyone is working to be part of a whole, storing what they can individually and sharing it between one another. Again, be careful about doing this.
Second-hand bookstores are your best friend. Books are usually very cheap in them, and they often have a decent stock. See what you can find.
When buying ANYTHING I have mentioned above, or anything else that maybe put you in danger, try to use cash to reduce your spending trail.
Check your car information online, many newer models can be remotely tracked.
Turn your phone completely off if you may be at risk due to your location and current activities. Turning off your GPS also helps.
Take note of where you are. Who are your friends? Who's a safe person? Where can you go besides your own home that you know you'll be safe? Establish these connections now.
Who around you is not safe? Who and where do you need to avoid? Do you need to move? If you cannot afford moving but need to, there are fundraisers that can help you. If even that is not an option, at least try to make sure your home is secure. Have someone who can help you. Have a fallback safe place.
And finally, I want anyone with resources to put them in the replies. Flood it with useful links, information, tips, anything. We're in this together. Do not panic. Organize.
#us politics#punk#protest#lgbtq#lgbt#lgbtqia#women rights#women's rights#online archival effort#censorship#internet censorship#internet#shtf#anonymity#safety#important#serious#presidential election#2024 presidential election#do not let them erase us#fight back#human rights#we fight
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Becaise I'm tired of seeing this happen to other bloggers & also frequently myself:
If someone talks about being unable to do something without assistance due to a disability, and how that influences their life, how that dependency on others is scary and can be exploited etc. And your only response is "I experience this except I end up doing the thing by myself because no one helps me". and then they tell you "hey, you deserve to get support for this when you need it. but this is actually not the same as my experience because if i do not get help i absolutely can not get it done by myself. Like I'm fully unable to do this." And your response is to get mad / accuse them of trying to be "divisive" / telling them they're dismissing your struggles / blaming them for your feelings about this response essentially / calling them ableist for literally just pointing out the fact that there is a difference between these situations / etc, then you are the problem.
Just for a minute try to imagine what it's like. That you can not do something without assistance. Let's say you absolutely can not drive a car even if your life depended on it. You completely rely on being driven around. You can not do anything that requites a car without another person being physically there the entire time and holding the steering wheel. And tons of people see you talk about that and join in with "yeah I also can't drive in theory, but I still do it because I have to because my life depends on it". That does not feel good. That is a constant reminder that hey! Other people can totally do this even though its hard! If your support vanishes you can not do this thing your life depends on no matter how hard you try! The voices of people who actually experience the same thing as you get drowned out in the flood of these "I totally get it"s from people who do in fact, not totally get it. Because In reality, one of you is sitting behind a wheel and the other isnt and Never Will.
Acknowledging differences is not the enemy. We are not arguing about emotions here. We are literally begging people to see that two physical realities are different. And no matter how often we say that you still deserve support and that we acknowledge that things are hard and exhausting for you and sometimes even dangerous, that isnt enough for you? Every time I try to get one of these people to see reason I tell them: I know this is hard for you. I know this is exhausting for you. I acknowledge your reality. But that's not what they want to hear. So, what more do you want? For me to lay down and say "yeah actually we experience totally the same things" and then watch as the healthcare system out to save every penny tries to dismantle my support system because well, if I try really hard I'll probably get it done myself?
#actually autistic#autistic adult#autistic community#medium support needs#actually disabled#disabled community#inspired by recent events but this feeling had been building up for months at this point
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Ma'am/Sir/Other
So much of your blog is "Yaya another thing in my body broke (kill me)"
I'm not judging at all, cause I'm also dealing with that somewhat but,
In the most polite manner possible;
How the fuck do you manage to function without killing everyone around you in a bodily pain induced rage.
Body hurts too much.
But in all seriousness, therapy and a whole lot of radical acceptance.
I don't approve or like what’s happening to me, but realistically, there is no way to avoid it, so I either have to accept it and make changes to my life or reject it and increase my suffering.
It might take me a while to process this change and there might be a few screaming breakdowns in the interim (”it's not fair, it's not fair, it's not fair!”) but after a long time of doing this type of therapy, I’ve gotten good at holding my own hand and holding myself through the despair.
It’s a bit like being my own gentle parent. Like “hey bud, I know this sucks and you’re feeling a lot of big emotions right now. And I’m not asking you to stop feeling them, but I do need you to eat and drink before you get sick, okay? Okay, you’ve had some water, do you want to try for a shower? No? Okay, let’s go back to bed for a bit. We’ll try later... Cry it out if you need to. I’ve got you.”
Probably sounds bonkers to some people but it's the only reason I’m still alive.
My support network is wonderful and they do so much to keep me going, but it wasn't until I allowed myself to feel my emotions and self soothe through them that things got better.
I can’t change what has been done to me. I can’t change the dynamic nature of my disabilities or the fact that parts of my body will continue to break down. But I can accept myself and say, this is the way things are: react accordingly for our continued survival.
Radical acceptance isn’t about approval or giving up. It's a stress tolerance skill that lets you look at some of the worst parts of your life and go “fuck this sucks. Okay, how do I make this suck less?” and then following through on it.
It's a skill that takes a long time to build. But it's well worth investing in.
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You know... I had an experience about two months ago that I didn't talk about publicly, but I've been turning it over and over in my mind lately and I guess I'm finally able to put my unease into words.
So there's a podcast I'd been enjoying and right after I got caught up, they announced that they were planning on doing a live show. It's gonna be near me and on the day before my birthday and I thought -- hey, it's fate.
But... as many of you know, I'm disabled. For me, getting to a show like that has a lot of steps. One of those steps involved emailing the podcasters to ask about accessibility for the venue.
The response I got back was very quick and very brief. Essentially, it told me to contact the venue because they had no idea if it was accessible or not.
It was a bucket of cold water, and I had a hard time articulating at the time quite why it was so disheartening, but... I think I get it a little more now.
This is a podcast that has loudly spoken about inclusivity and diversity and all that jazz, but... I mean, it's easy to say that, isn't it? But just talking the talk without walking the walk isn't enough. That's like saying "sure, we will happily welcome you in our house -- if you can figure out how to unlock the door."
And friends, my lock-picking set is pretty good by this point. I've been scouting out locations for decades. I've had to research every goddamn classroom, field trip, and assigned bookstore that I've ever had in an academic setting. I've had to research every movie theater, theme park, and menu for every outing with friends or dates. I spend a long time painstakingly charting out accessible public transportation and potential places to sit down every time I leave the house.
Because when I was in college, my professors never made sure their lesson plans were accessible. (And I often had to argue with them to get the subpar accommodations I got.) Because my friends don't always know to get movie tickets for the accessible rows. Because my dates sometimes leave me on fucking read when I ask if we can go to a restaurant that doesn't keep its restrooms down a flight of stairs.
I had one professor who ever did research to see if I could do all the coursework she had planned, and who came up with alternate plans when she realized that I could not. Only one. It was a medical history and ethics class, and my professor sounded bewildered as she realized how difficult it is to plan your life when you're disabled.
This woman was straight-up one of the most thoughtful, philosophical, and ethical professors I've ever had, one who was incredibly devoted to diversity and inclusion -- and she'd never thought about it before, that the hospital archives she wanted us to visit were up a flight of stairs. That the medical museum full of disabled bodies she wanted us to visit only had a code-locked back entrance and an old freight elevator for their disabled guests who were still breathing.
And that's the crux of it, isn't it? It's easy to theoretically accept the existence of people who aren't like you. It's a lot harder to actively create a space in which they can exist by your side.
Because here's what I did before I contacted the podcasters. I googled the venue. I researched the neighborhood and contacted a friend who lives in the area to help me figure out if there were any accessible public transportation routes near there. (There aren't.) I planned for over an hour to figure out how close I could get before I had to shell out for an uber for the last leg of the trip.
Then I read through the venue's website. I looked through their main pages, through their FAQs to see if there was any mention of accessibility. No dice. I download their packet for clients and find out that, while the base building is accessible, the way that chairs/tables are set up for individual functions can make it inaccessible. So it's really up to who's hosting the show there.
So then and only then I contacted the podcasters. I asked if the floor plan was accessible. I asked if all the seats were accessible, or only some, and whether it was open seating or not. Would I need to show up early to get an accessible seat, or maybe make a reservation?
And... well, I got the one-sentence reply back that I described above. And that... god, it was really disheartening. I realized that they never even asked if their venues were accessible when they were booking the shows. I realized that they were unwilling to put in the work to learn the answers to questions that disabled attendees might have. I realized that they didn't care to find out if the building was accessible.
They didn't know and they didn't care. That, I think, is what took the wind out of my sails when they emailed me back. It's what made me decide that... yeah, I didn't really want to go through the trouble of finding an accessible route to the venue. I didn't want to have to pay an arm and a leg to hire a car to take me the last part of the journey. I didn't want to make myself frantic trying to figure out if I could do all that and still make the last train home.
If they didn't care, I guess I didn't either.
If they'd apologized and said that the only venue they could get was inaccessible, I actually would have understood. I know that small shows don't always get their pick of venues. I get it. I even would have understood if they'd been like "oh dang, I actually don't know -- but I'll find out."
But to be told that they didn't know and didn't intend to find out... oof. That one stung.
Because.... this is the thing. This is the thing. I may be good at it by now, but I'm so tired of picking locks. I'm tired of doing all the legwork because no one ever thinks to help me. I'm tired of feeling like an afterthought at best, or at worst utterly unwelcome.
If you truly want to be inclusive, you need to stop telling people that you're happy to have them -- if they can manage to unlock the door. You need to fucking open it yourself and welcome them in.
What brought all this back to me now, you may be asking? Well... I guess it's just what I was thinking to myself as I was tidying up my phone.
Today I'm deleting podcasts.
#I guess it did save me a lot of money#I'll still probably go up to nyc to visit with friends for my bday but I won't go all the way out to brooklyn for the show#and I probably won't need to get the hotel room#and I DEFINITELY won't be supporting their patreon like I was planning lmao#I'll buy myself a new tarot deck for my birthday instead#cw:#disability#ableism
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Traitor C.L.16
Pairing : Singer!reader (female) x Charles Leclerc
Summary : Broken promisses, broken trust, broken heart
Warning : angst, again with the terrible english, Charles being a bitch. Happy begginning, not so happy ending.
NO HATE TOWARDS ALEX ! THIS IS JUST FICTION !
Face claim : sabrina carpenter
Masterlist
smaud
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Tagged : charlesleclerc
ynusername pretty boy ❤️
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username the song ????!!!!
username IKR ??? like? miss gurl, give us details ??!!
ynusername that's for me to know, and for you to ...
scuderiaferrari our favorite couple
ynusername can i be a certified F1 driver too
scuderiaferrari no.
ynusername i've always like McLaren better
mclaren it means a lot to us, but we won't let you drive
ynusername now that's just rude
charlesleclerc pretty girl ❤️ liked by creator
liked by charlesleclerc, landonorris and 12'657'990 others
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ynusername 🏎️🌶️🍒
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username love love love
charlesleclerc mon cœur
ynusername my love
scuderiaferrari red looks devine on you
ynusername you know what would look even better on me ? an F1 car
scuderiaferrari still a no
landonorris i think you’d look better in papaya
mclaren agreed
charlesleclerc no.
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ynusername ❤️🤭
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username new song
username i'm praying for an album
ynusername 🤭🤭
charlesleclerc 😘❤️ liked by the creator
alexandrasaintmleux you're so pretty 🩷
ynusername omg tysm you're so pretty 🩷
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ynusername 🧚♀️
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username no charles in the tags
username yeah weird right
alexandrasaintmleux beautiful, as always 🩷 liked by creator
username charles didn't comment ?
username for real? like, what is going on ?
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ynusername 🥀
comments have been disabled
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f1updates Charles Leclerc seeing in Monaco with mistery girl. It doesn't seem to be Y/N. What is going on? Trouble in paradise ?
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username what the actual heck?
username well that explains y/n's post
username they broke up ? who knew ?
username WAIT ISN'T THAT GIRL ALEXANDRA ? liked by ynusername
username the one that commented on some of y/n's post ? username she liked the comment. must be her indeed username so much for beeing a girl's girl liked by ynusername
ynusername story's
francisca.cgomes girl? what happened ynusername i can't even explain it kika
a month later
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ynusername emails i can't send is out now on all platforms ❤️
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username served omg ???!!!
username ikr ?? miss girl ate and left no crumbs
username CHARLES MARC HERVE PERCEVAL LECLERC WE NEED EXPLAINATIONS AND THEY BETTER BE GOOD ONES
username he's been reaaally quite username as he should username "how you ran to her the second that we called it quits" charles you lost all my respect
username "all i ever wanted was to be enough" ???? charles you better sleep with both of your eyes open.
username wait because The grudge is just so real
username did you listen to Vicious??? "Said that it was me for life, now you kinda acted like i died". I'll find you Charles. username y'all are sleeping on L'amour de ma vie. I felt the "it isnt asking fo alot for an apology" username she exposed alex with we're not alike ynusername tbh all of the songs ate, if i do say so myslef, babes ❤️
landonorris great album ! proud of you 🧡
ynusername thank you lando 🧡
scuderiaferrari we'll be listening to it in the paddock
mclaren no we'll be listening to it. She's ours now ynusername now now children, don't fight over me
carlossainz you did an incredible job hermosa, as always
ynusername gracias cariño 🤭
THE END (for now)
let me know if i should make a part 2 xx
max's ending
#f1#f1 imagine#formula 1#charles leclerc#charles leclerc imagine#formula 1 x reader#f1 x reader#formula 1 imagine#f1 fanfic#formula 1 x you#charles leclerc smau#formula 1 social media#charles leclerc x reader#charles leclerc x you#cl16#cl16 x you#cl16 x reader#cl16 x y/n#charles leclerc angst
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Wonder how far I can prod libs into finishing their full thought bubble behind all this "harm reduction" "genocide is a single issue" "you don't care about marginalized people in the US" "dyou want fascism WITH genocide???" screeching.
Okay, class, say it with me: "I don't want to live in a third world country like the ones we keep destroying."
Because you know. The countries your war criminal leaders keep bombing and starving and destabilising and leeching dry? We don't have trans or gay rights or women's rights or disability benefits or environmental or labour protections. No one would want to live in our countries obviously. You'd kill yourselves before you had to live like we do. Sure, we're only like this because you keep us trapped in poverty and violence and we still have full, happy lives worth living despite it but that's because we're used to it! We don't know any better! Not like you! You know what you deserve and you shouldn't have to lose anything as a consequence of your own political choices! Your government is supposed to happen to other people! Not you! So like, yeah, it's bad that the poors are being massacred wholesale or whatever, but like. That doesn't mean you gotta die with them, y'know? And by "death" you don't mean actual genocide like what's happening over here but "death" as in "having to live like we do".
The trolley problem metaphor is so goddamn attractive to you because you see yourself outside the tracks, objectively assessing the situation and making the "tough" "moral" choice for the collective good. It's imperialist horseshit. You don't have a democracy and it's not a trolley. What you have is an imperial death machine running on an apartheid system that decides who gets fed to it and who gets fed by it. That's your "two tracks"— the colonized and the colonizer, the core and the periphery, the white and the coloured. "Harm reduction"? Have you counted how many fucking millions in and around the world your death machine eats to keep how many of you "safe"? But our losses are a foregone conclusion, a matter of course, a regrettable necessity. The only variable is yours.
Every political choice in 200 years of your settler colony has been "genocide AND". "Genocide AND women's rights". "Genocide AND workers rights". "Genocide AND fascism". "Genocide AND democracy". The difference is that for the first time in your history you're now watching it livestreamed to the entire world in real time 24/7, exactly as your colony is about to capsize under the weight of its own bloodlust. A sea change from when your parents threw parties watching bombs dropping on Baghdad and then spent twenty years watching movies about sad it made the soldiers.
How do you count the victims when we are numbers and you are people? You scream about trans rights in the US while Palestinian trans children don't have the right to reach puberty. OSHA for you but Congolese children have to die in mines. Reproductive rights for the US while Sudanese women are raped in millions. Yes, but it's always been "genocide AND" no matter what, right? Do we want to sabotage the party that has never fucking cared about us and don't now even with half their own country screaming at them on the off-chance they might possibly maybe one day do?? Why are we acting so mad like it's YOUR fault that you're fighting for your quality of life over our corpses?? Do we want YOU to lose your rights over it??
Yes, actually. We do. We want you to have a taste of the reality that generations on generations of your illegal illegitimate white supremacist occupation has inflicted on us just so your worthless hide can sit there and call our genocides a single fucking issue. And let's be real: that's what you're so fucking afraid of.
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been starting to realize that ive been doing Real Bad for a Real Long time and it's a bit scary. ive upped my antidepressants which should help in a couple weeks (and them starting to wear off is probably what caused the depressive spiral, tbh). and honestly just knowing what's going on and being able to take active steps to fix it instead of feeling like ive just suddenly lost my ability to be a whole human person is helpful.
but god it's so scary that i was like that for months and didn't really notice. i mean, obviously i knew things were bad, but i was really attributing it to a personal inability to keep up with the expectations around me and not realizing i was mostly struggling so much because my mental health had tanked. i managed to scrape my way out of this one without crazy longterm damage, beyond worrying some teachers, missing the early application deadlines for a couple schools, and overall reinforcing the idea that i am unwell and not to be trusted with my parents, but it's very demoralizing to know that even though i work very hard when i'm able to there will probably always be periods in my life when my depression impedes me from amount of work expected of a normal human being.
i mean, i'm still in high school, and i couldn't keep up with just coming to school every day and keeping up with classwork. i'm not saying this makes me a terrible person, contributing to society isn't what gives someone worth, but i know i'm capable of more without this setback and it's frustrating.
just, i don't know what i'm going to do once i live on my own. having people around me who can look at me and say 'hey man you are clearly going through some shit take it easy' is the only way i can snap out of episodes like these thus far. ive been looking forward to college and feeling like my life and time is going towards a meaningful purpose for so long and i am going to be so, so upset if i fuck it up.
it just hurts having high expectations put on me, i guess. i don't want go on a litany of gifted kid woes or whatever but i am very intellectually intelligent and adults have looked at that and assumed i must succeed and if i'm not i'm not trying hard enough. it's great when i do achieve something big and i get to fulfill those expectations but i just don't know if i can, in the long term.
i struggle with such basic parts of being a functional adult. and i know my parents and teachers do just want me to be happy and don't care if i don't end up where they thought i would, but it just always feels like there's this better version of me out there if i could just stop missing school and stop procrastinating and really apply myself. but when i DO apply myself i quickly burn out and enter another destructive spiral.
there's not really a point to this, i guess. just that i want to succeed and i don't want to fuck it all up for myself because my brain tells me it doesn't matter for a few months. it does, when i'm not depressed i do care, so so so much, and i hate having to fight myself for what i want.
#txt#i know there's like a lot of internalized abelism here#i mean idk that im disabled per se but#its easy for me to look at someone else and say that just living is all that is required and ability to work doesn't give you worth#but i can't really apply it to myself#kinda for commie reasons. i believe strongly in the power of my ideals i guess. that everyone should want to help other people.#that a good life is spent fighting for others rights. that that's a virtue. but i mean.#that's kind of contradictory cos like who is fighting for my life and happiness? why does other ppls wellbeing matter but not mine?#and i guess i need to learn to see life as more collaborative. each to his own ability yk?#like every person should help others as much as they can. but if they can't at all? it's okay.#even if they can't do as much as others think they would bc of their mental health. also okay.#it is just hard to actually believe that when so few ppl actually believe their life should be dedicated towards smth useful to society#that their personal wealth and comfort while still valuable is not more valuable than others. t that they should care abt those worth off#guess there is value to the idea that you should get to do what you want with your life too. suppose that is the primary issue w communism#i mean every job is valuable to society nvm. anyway I'm sort of off the rails here uhm#depression sux im sick of it i want to be an environmental engineer and i don't want this to hold me back.
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