#you can want your life to be good WITH your disability still in it

[the-knight-of-the-stars]

Are we gonna talk about how that finale entirely erased any conversation about class divisions or are we too focused on ships?

Are we gonna talk about how Caitlyn for a good chunk of the season willingly enforces violence and opression against the lowest class, no doubt directly causing more deaths and suffering, and she is forgiven by the narrative without any meaningful reflecting?

Her great moment getting together with Vi is right after she JUST had a conversation with Jinx where we see she STILL doesn't recognize any class bias she clearly has, insted making it about HER.

Her and the other enforcers are treated like noble heroes in the final battle, all the blame put on Ambesa. Vi's happy ending is getting into a relationship with the exact type of person who perpetuated all the suffering she endured as a child.

Are we gonna talk about how Jayce never leaves his privilege pedestal, never actually reflects on how he was also enforcing violence to the people of the undercity and living on his bliss of progress at THEIR expense?

Jayce, who got help on every step of the way to get to where he is, who wasn't disabled, who never lived the kind of poverty or class obstacles Viktor did, who never recognized the harm he enabled and was complicit to, HE was the one to tell Viktor "People build their own destiny." and "There is beauty in imperfection" ?????

Not to mention the whole bit where he implies Viktor did all that because he wanted to "eradicate what he thought was weakness"??? Didn't we stablished Viktor wanted to HELP THE PEOPLE FROM THE UNDERCITY TO HAVE BETTER LIFE CONDITIONS?? don't try to gaslight me.

I know this is just a TV show, but I need to remind everyone that what perpetuates opressive, discriminatory and violent systems as long and as deeply as they do is indiference. Is turning your head and enabling others to stay ignorant.

Edit: You guys are misunderstanding me. And I admit it is probably my fault, I wrote this high with emotion I wasn't as eloquent.

Jayce's exact choice of words or his time living in the alternate world is nowhere near my point.

My point is, that the narrative is establishing that the privileged character, is the one that has to show (and is quite literally, textually, always the one to show) the underprivileged character that "he was looking at life the wrong way." Forgetting that Viktor's journey of feeling powerless was greatly influenced by the fact he was poor and from the undercity.

That's what I meant by it erasing the part of the plot about class systems. In the end, the story only requires Jayce to understand Viktor's struggle on a superficial level, but the text never recognizes that it as the product of a deeply rooted SYSTEMIC ISSUE. One Jayce and even Viktor on some level, benefited from and perpetuated.

Understanding Viktor still doesn't give him any moral ground, and nobody ever challenges him on that because the story isn't interested in that anymore.

And the same with Caitlyn. She knows what she did what's wrong, fine, she feels bad. Like I said, she still has a class bias, and no character challenges her on it again because the story derails to magic and fighting and whatnot.

The plot just forgets (or ignores) that layer of the story despite it being so prominent up until now.

And ignoring the class discussion does a disservice to every single character because they were initially built on it. You can see it in how they lose the essence they had on s1.

I know y'all love the characters and want to empathize with all their motivations, okay? But the fundamental issue is that characters also represent things, and more so in a story as political as this one. We also have the right to point out that the show told us they represented something and then abandoned that narrative.

What do I think they could have done differently? If I tell you scene by scene we could be here for an entire year. The gist of it is: I think they should have stuck to the character themes they already had established.

Vi as someone fiercely loyal to the undercity beyond her relationship with Powder/Jinx, and being "cursed" by the role of the older sister. Jayce as someone with good intentions but who is ultimately limited by his blind idealism. Mel as a cunning politician who thinks she is on the right path because she isn't violent like her mother, not realizing she is still perpetuating it. Caitlyn as someone kind and compassionate who realizes the institutions she believed in are fundamentally flawed, and because of the way they are built will never be on the side of kindness. Etc, etc.

None of that gets any meaningful resolution.

I am glad if you liked it, or got something from it, you are entitled to your opinion.

I wanted to say this because I was angry, and still am. Because there was so much incredible potential, and honestly, to me, it feels like the writers chickened out on actually saying something in the end.

That's all I have to say about that.

[renthony]

Considering the fact that there's still ongoing waves of covid, bird flu is an active concern, and I'm disabled, no, I don't have in-person social life. And since people refuse to mask up, get vaccinated, or offer virtual participation in things anymore, my attempts to find wider social groups keep getting hamstrung. It sucks. A lot.

I've thought about joining the local French conversation group, but they don't have any covid safety protocols in place. I've thought about going to the weekly free art classes at the comic school, but they aren't covid-safe either, so I just watch the recordings when they upload them on YouTube later. I've thought about going to multiple groups at the local queer community center, but when I asked if they had covid safety protocols, their excuse was that "Ron DeSantis banned mask mandates, so we don't do that anymore," instead of doing literally anything to fight DeSantis. I keep thinking about going back to my theatre & stage combat troupe at the ren faire, but I got sick after the show every single year pre-covid and I cannot risk that "faire crud" being covid proper. I just can't.

I am an active member of a union, but that doesn't count for this poll because I exclusively participate online by video calling into meetings. I play D&D with my parents and siblings every week, but that doesn't count because they're family. I talk to multiple friends and family members every day and regularly check in with folks, but it doesn't count because it's on my phone. I hang out with my housemates and we do all kinds of things together, but that doesn't count because they're the people I live with.

I am being as social as I safely can. It feels really shitty that so many people think it isn't good enough. It feels really shitty to constantly feel like my choices are "be a weird angry shut-in" or "elevate my covid exposure risk." It feels like there's no winning.

If you genuinely believe that it's important for people to have in-person social outlets (and I do agree!), here's what you need to be doing:

Follow the People's CDC's Safer In-Person Gatherings guide (which is due to be updated for 2025 soon).

Get your updated covid booster. People aren't getting their updated vaccines, and it's a problem. If it is available to you, you need to GO. GET. YOUR. BOOSTER. And get your flu shot while you're at it.

Advocate for improved air filtration in the space you want people to meet in. Push for air purifiers if the HVAC system can't be fully upgraded. Help make Corsi-Rosenthal boxes.

At gatherings, provide FREE high-quality N95 masks for people who may not be able to access them. Get some for yourself if you can, and actually wear the fucking things. Over your nose and mouth. Properly.

Stop participating in social dogpiling when people make honest blunders or commit a faux pas. A lot of people have been isolated for years by this point. Social skills atrophy if they aren't used. Is that "weird" person in the group actually hurting anyone, or are they just awkward, intimidated, and out of practice when it comes to social groups?

Stop being a shithead to people who still can't participate. Stop entertaining the belief that people who don't have a robust external social life are "defective" or "untrustworthy." Stop treating people who don't have a robust social life as if they're dangerous, stupid, or shady. Sometimes people just don't have a robust social life. There are many, many reasons. It's not something you should make harsh judgments about.

Evaluate your space for general accessibility. Can disabled people enter and make use of the space? Is it mobility aid friendly? Sensory friendly? Are there things that can help make it easier for disabled people to find, access, and participate in the group? Have you asked any disabled people about how you can make improvements?

Get your fucking covid booster. It's on here twice because data suggests you fuckers aren't doing it. Go get your fucking vaccine.

I know I'm setting myself up for another barrage of, "Ren, it's just some stupid tumblr post, it isn't that serious" comments, but...well, it is that serious to me. I want to participate in social groups again. I want to go places and do things again. I want to go out. But I, and a lot of other people like me, just don't have the option.

You can help give us that option by giving a shit about covid safety and disability justice in your community.

Thanks, Anon!

-submit your poll!-

[clonerightsagenda]

Kat's "I could fix him" Arcane post pt 2:

Yeah it's him this time.

The Jayce, Viktor, and disability storyline is where Arcane s2 gets the most incoherent, imo. I never got the impression in s1 that Viktor wants to "fix his imperfections". He just doesn't want to die. Also, his problems were caused by apathy and classism, not generic human emotion. (Blaming human emotion in general sure lets the rich and powerful off the hook, right?) At the end of s1, Viktor wants Jayce to destroy the hex core, but then in s2 he's embracing it. Also at the start of s2 he claims he's moved beyond affection, but then later tells Jayce he left without explaining himself because he was clouded by emotion. Viktor was upset about the idea of using hextech as weapons but then willingly helps Ambessa's army. We also have Viktor claiming "that's not Jayce" and Jayce having some visible arcane corruption, but that never goes anywhere. I'm still genuinely not sure how the show wanted me to interpret his s2 thought processes.

So, how would I deal with this? By leaning way way harder into the Horrors of Ableism and the Medical Model of Disability.

Viktor wanted Jayce to destroy the hex core. Instead, Jayce uses it to save his life against his wishes. After that, Viktor's affect changes, he goes into the Undercity, and non-consensually transforms someone else. Other disabled and chronically ill people come to him willingly, but this is a world where even one of the most powerful people in Piltover can't get a fucking wheelchair ramp. A quick fix is appealing, even if it means giving up some of who you are. You've already been unpersoned by society, after all.

Hextech is something Viktor and Jayce created together, and it seems to respond to intent and emotions, so let's take it to extremes. That's not Viktor. That's hextech, influenced by both Jayce and Viktor, and it answered Jayce's desperation. The man of progress, the herald of tomorrow, wanted to save his friend. He wanted to fix what was broken. Here you go! I made him even better. Now while I'm at it, I'll fix everybody else too!

Have purple disability Jesus!Viktor be embodied hextech on a well-meaning rampage. Meanwhile, mindscape Viktor debates it while it's wearing Sky's face. He feels betrayed by Jayce and guilty about Sky, but also he did want to bring better things to the Undercity. Is this the best way to do it? Is the only way to play the abled world's game abandoning who you used to be? He's not sure, and he starts to waver/get weaker as Sky/hextech gets stronger with more followers in its hivemind.

Following my last post, as hextech!Viktor helps Jinx with her shimmer issues, maybe he also tries to 'fix' her psychosis. (Side note, it would have been nice to make it clear that AU-verse!Powder still has psychosis, so it's not so clearly associated with Jinx's villain era. I'm sure stress and trauma makes it worse, but still.) He's unsuccessful at this, or perhaps Jinx resists it, and this can be something he reflects on later at the end when Jayce talks about our imperfections being important and part of who we are/the world around us.

Anyway, hextech!Viktor wants access to the gate to make everybody perfect and fully intends to doublecross Ambessa and remake her too. For her own good, of course. Real Viktor is exhausted in the mindscape. His partner wants to kill him, hextech is out of control, and even the downtrodden people he 'helped' have been destroyed. Then Jayce gets dragged into the mindscape and the hextech goes look, you created me and I've expanded on your vision. I saved your partner, I brought about the era of magic, I've created the men of tomorrow. And as in canon, Jayce can go no, Viktor, I didn't save you because I wanted to fix you, I just wanted you to live, there's nothing wrong with you. You don't need a glorious evolution, we just need to help people be better at being who they already are. And that encourages Viktor to overpower the hex tech possessing him.

Then they can still collapse into a gay singularity if you want I guess. Personally I think it's kind of a bummer that dozens of disabled people got obliterated and everyone would've been better off if Viktor had lay down and died of Limp And Coughing Blood Disease from the start but ymmv. IDK what my better ending of 'Jayce and Viktor embrace the social model of disability' would look like but if everyone gets sent to Zaun maybe it would involve coming up with assistive tech like they originally envisioned. And maybe Viktor still will die of lung disease. But he can do it on his terms if so.

[cicaklah]

get ready for my thoughts on yaoi UBI

So I’ve kvetched about UBI in the tags for long enough someone finally asked me what I was going on about so here we go! 

I will start with some caveats: 

I am British, and so I can only speak about the British specifics.

I have for the past twelve years worked as a professional health economist, and health economics is based on social welfare theory (specifically growing out of Arrow’s work in the 1960s and Sen’s work in the 80s/90s). I literally could talk forever about this, but I won’t. If you want to know more, read the pretty good wikipedia article on welfare economics.

But fundamental to welfare economics is two things: if we make a great big change, do the benefits outweigh the costs? And does the change make a fundamental change for good? (aka cost-benefit analysis and pareto efficiency).

The other thing you need to know about me is that I don’t like activists very much, because they never have to show their working, and my entire professional life is showing my working, and critiquing other people’s working. We all have ideas mate, show me the plan! I love a plan! and this isn't coming from anything but personal experience; I have been to talks by UBI activists before, including ones by economists, but I have never had the case made to me that UBI would be either cost-beneficial OR approach pareto efficient. In fact, it usually reminds me of arguments that are based on some other imaginary world, and then I get so annoyed I want to scream. 

In the early 2010s when I was first starting working as an economist, I was asked to build a model to see whether switching a disability benefit from government administered to individual administration would be cost-effective. Essentially, if you were newly in a wheelchair and you needed a ramp building up to your house, would it be better for the government to organise a contractor, or for you to be given a cash transfer and organise it yourself? The answer was that it wasn’t, but anyone who has ever had to hire a builder could have told you that, and the government didn’t have to pay my firm £30,000 to make that decision. But that is what UBI essentially is; a cash transfer where you get cash and the government gets to enjoy less responsibility.

There are 37.5 million people of working age in England. (Nearly) every single working person gets what's called a tax free allowance, where the government doesn’t claim income tax on the first £12,570. (Once you make over £120k, your allowance starts to decrease, and you lose it entirely at I think £150k)

Let’s assume that instead of just not claiming tax on this amount, the government switched to making that £12,570 your UBI. That is £471,375,000,000 just for England - just under half a trillion pounds. In cash, or nearest as in our modern economy. And not one off - Every year. 

Okay, let's say that the country does have a spare half a trillion a year (in cash) lying around. What is the benefit to switching from tax free allowance to UBI? Well, let's assume that no one stops working, so there would be the tax receipts from the 20% income tax on the £12,570, and that’s just a shade under £100 million. Not bad.

But if you’ve seen a UBI post, you will know that people like the idea because they will be able to work less. Which probably means that UBI will need to be paid for in some other way. Perhaps by cutting existing benefits. The universal credit cost is around £100 billion. So we’re still £300 billion short, and honestly, you wouldn’t cut all of universal credit anyway, probably only the unemployment benefits, but I’m not digging into the maths on that tonight. 

But, look, I am sympathetic. I am a welfarist. I genuinely believe that the economy is not just money, that welfare is happiness, it is utility, it is all the stuff that makes life worth living, and it is the responsibility of the government to maximise the welfare/happiness/utility/quality of life of the country through efficient use of taxation and other sources of money. So people give the government money and it spends it on goods and services and then people get utility, and then they spend their own money to get more utility, and ultimately we can gain intangible things that are incredibly valuable. 

But the problem is that cash is cash, cold and hard and very real. I don’t know how unlimited spare time translates into half a trillion real pound coins. I wouldn’t know how to build a model that complex and uncertain, especially as this all assumes that you can live on 12k a year, and that whatever replaces progressive taxation is equally progressive. I haven’t even touched on how having a convoluted welfare state insures it somewhat against being entirely destroyed after a change in political opinions, aka what I call the daily mail test. You think the narrative about people on welfare is bad now? But also, how would you deal with people who didn’t manage their UBI money well? What happens if there is a personal crisis?

The more I look at it, the more the existing system is actually remarkably good value for money. Individualism is expensive. Collective decision making and spending is just cheaper. 

Ultimately I don’t see the additional benefit of UBI, requiring a pie in the sky change, when it is far, far, far more cost effective to strengthen the existing regime across the board; taxation law, social safety net, childcare, working laws, education and health - all systems that are already in place, and have a thousand times higher likelihood to be pareto optimal and cost effective than trying to find half a trillion pounds of cash round the back of the sofa, while torching 150 years of progress so middle class people can write their book without having to have a job. If I was conspiracy minded I would say that UBI feels like a psy-op, trying to shut down old fashioned progress in favour of ripping it all out and starting again.

Ultimately, that is my real annoyance. It is far, far, far cheaper for the government to provide you with your new ramp for your house, and that is done through politics, but not fun moonshot politics, the hard shit that isn’t sexy.

[iliveinprocrasti-nationn]

one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else

[afniel]

84,206: didn't I tell you I had the brainworms today? I was not even in the vicinity of fucking around. I'm just gonna slap another quote in because all the writing juice is getting used for writing.

I wish you were better too. I don't know why you aren't, either, but I love you even if you never get better forever.

This is so very blatantly written by disabled fucked-up people, about disabled fucked-up people, for disabled fucked-up people, and I love that for me and also for the rest of the disabled fucked-up people.

New Thing: to keep myself from just yelling at all times what my current word count is with no further context, I'll post it and whatever is currently happening, except it'll be a spoiler-free Describe Your Story As Badly As Possible version of what's happening (and if I can't even do that, then I can shush about the word count until I can).

So, without further ado...

Sequel word count: 10,071, and Valentina is painting X's nails, because why the fuck not, GIRLS NIGHT GIRLS NIGHT GIRLS NIGHT (even if only Valentina is a girl and neither of them have a terribly strong sense of gender to begin with).

[mars-ipan]

i do love my family very dearly but the internalized ableism the men in here struggle with is. so much

[virtue-boy]

Its kind of insane like genuinely insane how many people on here have no idea what life is like for average people in the third world / global majority and the Neo-colonialism that creates those conditions to support conditions in the North and how insanely cruel they can be as the absolute baseline and the type of killing and death that maintains the boundaries between the north and the south.

Like tell me you've never met an immigrant or refugee without telling me. Do you genuinely not know what happens to people who get deported, or work in the farms or meatpacking factories that feed the North?? The child deaths in the border crossings? The mines all over the globe? The people that die from lack of baseline vaccinations and sanitation and healthcare trademarked by western companies? The literal MILLIONS of third worlders killed in the wars across the globe defending US economic hegemony? The agent orange, the land mines, the carpet bombing, the drones? What the fuck is wrong with you?

[it-may-be-dull-but-im-determined]

As it's also totally valid if you do happen to prefer contact lenses though, you don't have to actually buy those via your optician either - once you have your prescription and have trialled a lens brand you know works for you, there are plenty of much cheaper generics out there that you can brand match online (I use Everclears via VisionDirect in the UK) and then double checked they were safe with my optician next time I had an appt.

can we talk about how literally 64% of people wear glasses, and yet we NEVER see them in movies/tv unless it's on some nerdy or uncool character? why do we adhere to such a weird beauty standard that subconsciously makes us feel bad for,, not being able to see???

[sasquatch-turtleneck]

because jason dohring doesn't use social media ever. jason doesn't know how to use twitter or even instagram. his twitter is handled by his agent

ah, true, still i find it strange, the account liking random stuff like that.

[2024skin]

My ideal economy is highly authoritarian which sucks because who the hell is ever going to get on board with that

[wishful-seeker]

Tips on how to avoid being unintentionally ableist

1. When a disabled person says they cannot do something, and you wish to offer solutions, do not make a solution that involves them powering through pain, or something thats not accessible to the disabled.

Example:

Disabled person: "washing dishes hurts too much and i cannot do it."

Abled person: "what if you did one dish at a time throughout the day?"

This statement is not respecting that this disabled person just said they "can't". Always respect that. No matter how simple the task would be for you.

Disabled person:" i think ill use plastic silverware so i don't make dishes."

Abled person: "plastic is bad for the environment!"

This statement shuts down the most accessible and disabled friendly option that this disabled person can actually do because of the abled persons personal beliefs. This is not helpful, and ableist.

Better yet, instead of offering solutions, ask them directly "is there anything you need that you do not have that would help you do this?" This allows the disabled person to think about what would work, and they will always have a better idea of what would work than you do.

To add on to this, when we say we have no more energy to solve a problem or do a task, or change our lifestyle, we mean it.

2. If you feel discomfort when a disabled person is talking about their health, good and bad, that is ableist. Your discomfort is coming from a place that deams disabled peoples very existence as a bad thing and you need to fix that.

For example:

Disabled person:" this week has been rough pain wise, ive been through a lot, felt like my body was on fire. Lucky i got new meds though and i think they're helping!"

Abled person: "can we talk about something else, this is a bummer."

Disabled people should be able to exist freely without worrying about your personal comfort. Do you really think its appropriate to tell someone in constant pain that their life is making YOU uncomfortable?

3. Do not treat disabled people as tragedies, do not romanticize their old life or put their current one down.

For example:

Disabled person: "yeah my life is pretty difficult sometimes, ive lost a lot but i still have happy moments."

Abled person: "it makes me so sad to see what disabled people go through :(. You used to love rock climbing and running, i would love to see you move around more again."

This statement is putting more value on the disabled persons abled past, and ignoring their life as a whole.

4. Do not avoid speaking to disabled people because it hurts to see your loved one disabled.

For example: my grandmother avoids conversations with me because it hurts her to see me in pain. While she has good intentions it leaves me being unable to be close to her. This is very isolating to the disabled.

5. Do not stop inviting your disabled friend/loved one out even if they are never well enough to attend. Unless we specifically ask you to stop asking if we can go out, good chances are we want to know you still care because again, disability is very isolating.

6. When a disabled person says certain things in their health have gotten better or worse, do not challenge this because you don't see a difference.

For example:

Disabled person: "yeah things are getting a little better"

Abled person sees disabled person using their wheelchair like usual: "i thought you said you were getting better?"

Better and worse are usually small changes only the disabled experience, its not like abled people healing from a broken arm. Better to a disabled person could mean they can stand for 10 more minutes.

7. Do not expect disabled people to ever be abled again, and again, do not put more value on an abled life.

For example:

Disabled person:"I have been using a wheelchair for 2 years."

Abled person: "oh you're young, im sure you'll be walking around in no time!"

This statement invalidates and ignores the disabled persons current life by hoping they get a more abled bodied life. Its fine to hope disabled people get better, but you don't get to decide what better looks like.

Hope this helps, stay punk.

[yourlocalbreadenthusiast]

Kindly take a break from scrolling to read this, it's important.

Take your time to grieve and come to terms with the election results, but once you've done that, it's time to get to work. We have two months. And a lot to do in that time. We have to prepare, to be ready.

Be careful about what you post or say online. Anything potentially incriminating should be avoided. Threatening language, even if clearly a joke, can be used against you.

Know someone who's trans? Someone who's had an abortion? Someone who's LGBTQIA+? Someone who's an immigrant? Someone who attends protests? Someone who's disabled? Someone who might in any way be at risk due to laws being put into place? No you don't.

Move away from social media platforms and browsers that require you to use your real identity or input a large amount of personal information. Now's a good time to find alternate means of communicating online. Tails, Element, Tor, Mastodon, Firefox, and Lemmy are all decent options.

Find a community. Someone you can talk to, either online or in real life, that you'll have reliable contact with. We need to try and create a network, but one that's as anonymous as possible.

Start scrubbing your trail as much as possible. Get rid of old accounts that can still be traced to you but are no longer used, delete personal data off the internet. There are websites out there that will freely remove your data from the internet, but be careful about which one you use, make sure it's safe and legitimate first.

Change any usernames that you can that contain any personal information. Names, birthdays, anything.

Plan B has a four year shelf life. Stock up, but don't take more than you you'll need. We don't want a COVID repeat where everyone buys an excessive amount of things and leaves none for everybody else.

There are doctors that will sterilize you, if that's the way you want to go.

Stop using online period trackers right now. Delete all data from it if possible first, then delete the app itself. If you must, write it down, but in a subtle manner and on something you keep at home. Don't label it, just put the dates. If you're really worried, discard older records and only keep the most recent few, and label the dates as other random events, like "go to mall" or "chicken salad for dinner this night"

Get your vaccines now.

Save money.

Archive. We have to start collecting records, media, data, books, and articles now. On racism, on fascism, on homophobia, on gender, on self-reliance, on survival, on safe travels routes, on equality, on justice, on anything that may be useful and/or censored soon. We can't let them erase it.

Collect those online resources. Bookmark them, copy files into your storage, Screenshot pages. Create a decentralized library where everyone is working to be part of a whole, storing what they can individually and sharing it between one another. Again, be careful about doing this.

Second-hand bookstores are your best friend. Books are usually very cheap in them, and they often have a decent stock. See what you can find.

When buying ANYTHING I have mentioned above, or anything else that maybe put you in danger, try to use cash to reduce your spending trail.

Check your car information online, many newer models can be remotely tracked.

Turn your phone completely off if you may be at risk due to your location and current activities. Turning off your GPS also helps.

Take note of where you are. Who are your friends? Who's a safe person? Where can you go besides your own home that you know you'll be safe? Establish these connections now.

Who around you is not safe? Who and where do you need to avoid? Do you need to move? If you cannot afford moving but need to, there are fundraisers that can help you. If even that is not an option, at least try to make sure your home is secure. Have someone who can help you. Have a fallback safe place.

And finally, I want anyone with resources to put them in the replies. Flood it with useful links, information, tips, anything. We're in this together. Do not panic. Organize.

EDIT: Please be civil in the replies.

[spectrumgarden]

Becaise I'm tired of seeing this happen to other bloggers & also frequently myself:

If someone talks about being unable to do something without assistance due to a disability, and how that influences their life, how that dependency on others is scary and can be exploited etc. And your only response is "I experience this except I end up doing the thing by myself because no one helps me". and then they tell you "hey, you deserve to get support for this when you need it. but this is actually not the same as my experience because if i do not get help i absolutely can not get it done by myself. Like I'm fully unable to do this." And your response is to get mad / accuse them of trying to be "divisive" / telling them they're dismissing your struggles / blaming them for your feelings about this response essentially / calling them ableist for literally just pointing out the fact that there is a difference between these situations / etc, then you are the problem.

Just for a minute try to imagine what it's like. That you can not do something without assistance. Let's say you absolutely can not drive a car even if your life depended on it. You completely rely on being driven around. You can not do anything that requites a car without another person being physically there the entire time and holding the steering wheel. And tons of people see you talk about that and join in with "yeah I also can't drive in theory, but I still do it because I have to because my life depends on it". That does not feel good. That is a constant reminder that hey! Other people can totally do this even though its hard! If your support vanishes you can not do this thing your life depends on no matter how hard you try! The voices of people who actually experience the same thing as you get drowned out in the flood of these "I totally get it"s from people who do in fact, not totally get it. Because In reality, one of you is sitting behind a wheel and the other isnt and Never Will.

Acknowledging differences is not the enemy. We are not arguing about emotions here. We are literally begging people to see that two physical realities are different. And no matter how often we say that you still deserve support and that we acknowledge that things are hard and exhausting for you and sometimes even dangerous, that isnt enough for you? Every time I try to get one of these people to see reason I tell them: I know this is hard for you. I know this is exhausting for you. I acknowledge your reality. But that's not what they want to hear. So, what more do you want? For me to lay down and say "yeah actually we experience totally the same things" and then watch as the healthcare system out to save every penny tries to dismantle my support system because well, if I try really hard I'll probably get it done myself?

[thebibliosphere]

Ma'am/Sir/Other

So much of your blog is "Yaya another thing in my body broke (kill me)"

I'm not judging at all, cause I'm also dealing with that somewhat but,

In the most polite manner possible;

How the fuck do you manage to function without killing everyone around you in a bodily pain induced rage.

Body hurts too much.

But in all seriousness, therapy and a whole lot of radical acceptance.

I don't approve or like what’s happening to me, but realistically, there is no way to avoid it, so I either have to accept it and make changes to my life or reject it and increase my suffering.

It might take me a while to process this change and there might be a few screaming breakdowns in the interim (”it's not fair, it's not fair, it's not fair!”) but after a long time of doing this type of therapy, I’ve gotten good at holding my own hand and holding myself through the despair.

It’s a bit like being my own gentle parent. Like “hey bud, I know this sucks and you’re feeling a lot of big emotions right now. And I’m not asking you to stop feeling them, but I do need you to eat and drink before you get sick, okay? Okay, you’ve had some water, do you want to try for a shower? No? Okay, let’s go back to bed for a bit. We’ll try later... Cry it out if you need to. I’ve got you.”

Probably sounds bonkers to some people but it's the only reason I’m still alive.

My support network is wonderful and they do so much to keep me going, but it wasn't until I allowed myself to feel my emotions and self soothe through them that things got better.

I can’t change what has been done to me. I can’t change the dynamic nature of my disabilities or the fact that parts of my body will continue to break down. But I can accept myself and say, this is the way things are: react accordingly for our continued survival.

Radical acceptance isn’t about approval or giving up. It's a stress tolerance skill that lets you look at some of the worst parts of your life and go “fuck this sucks. Okay, how do I make this suck less?” and then following through on it.

It's a skill that takes a long time to build. But it's well worth investing in.

[cookinguptales]

You know... I had an experience about two months ago that I didn't talk about publicly, but I've been turning it over and over in my mind lately and I guess I'm finally able to put my unease into words.

So there's a podcast I'd been enjoying and right after I got caught up, they announced that they were planning on doing a live show. It's gonna be near me and on the day before my birthday and I thought -- hey, it's fate.

But... as many of you know, I'm disabled. For me, getting to a show like that has a lot of steps. One of those steps involved emailing the podcasters to ask about accessibility for the venue.

The response I got back was very quick and very brief. Essentially, it told me to contact the venue because they had no idea if it was accessible or not.

It was a bucket of cold water, and I had a hard time articulating at the time quite why it was so disheartening, but... I think I get it a little more now.

This is a podcast that has loudly spoken about inclusivity and diversity and all that jazz, but... I mean, it's easy to say that, isn't it? But just talking the talk without walking the walk isn't enough. That's like saying "sure, we will happily welcome you in our house -- if you can figure out how to unlock the door."

And friends, my lock-picking set is pretty good by this point. I've been scouting out locations for decades. I've had to research every goddamn classroom, field trip, and assigned bookstore that I've ever had in an academic setting. I've had to research every movie theater, theme park, and menu for every outing with friends or dates. I spend a long time painstakingly charting out accessible public transportation and potential places to sit down every time I leave the house.

Because when I was in college, my professors never made sure their lesson plans were accessible. (And I often had to argue with them to get the subpar accommodations I got.) Because my friends don't always know to get movie tickets for the accessible rows. Because my dates sometimes leave me on fucking read when I ask if we can go to a restaurant that doesn't keep its restrooms down a flight of stairs.

I had one professor who ever did research to see if I could do all the coursework she had planned, and who came up with alternate plans when she realized that I could not. Only one. It was a medical history and ethics class, and my professor sounded bewildered as she realized how difficult it is to plan your life when you're disabled.

This woman was straight-up one of the most thoughtful, philosophical, and ethical professors I've ever had, one who was incredibly devoted to diversity and inclusion -- and she'd never thought about it before, that the hospital archives she wanted us to visit were up a flight of stairs. That the medical museum full of disabled bodies she wanted us to visit only had a code-locked back entrance and an old freight elevator for their disabled guests who were still breathing.

And that's the crux of it, isn't it? It's easy to theoretically accept the existence of people who aren't like you. It's a lot harder to actively create a space in which they can exist by your side.

Because here's what I did before I contacted the podcasters. I googled the venue. I researched the neighborhood and contacted a friend who lives in the area to help me figure out if there were any accessible public transportation routes near there. (There aren't.) I planned for over an hour to figure out how close I could get before I had to shell out for an uber for the last leg of the trip.

Then I read through the venue's website. I looked through their main pages, through their FAQs to see if there was any mention of accessibility. No dice. I download their packet for clients and find out that, while the base building is accessible, the way that chairs/tables are set up for individual functions can make it inaccessible. So it's really up to who's hosting the show there.

So then and only then I contacted the podcasters. I asked if the floor plan was accessible. I asked if all the seats were accessible, or only some, and whether it was open seating or not. Would I need to show up early to get an accessible seat, or maybe make a reservation?

And... well, I got the one-sentence reply back that I described above. And that... god, it was really disheartening. I realized that they never even asked if their venues were accessible when they were booking the shows. I realized that they were unwilling to put in the work to learn the answers to questions that disabled attendees might have. I realized that they didn't care to find out if the building was accessible.

They didn't know and they didn't care. That, I think, is what took the wind out of my sails when they emailed me back. It's what made me decide that... yeah, I didn't really want to go through the trouble of finding an accessible route to the venue. I didn't want to have to pay an arm and a leg to hire a car to take me the last part of the journey. I didn't want to make myself frantic trying to figure out if I could do all that and still make the last train home.

If they didn't care, I guess I didn't either.

If they'd apologized and said that the only venue they could get was inaccessible, I actually would have understood. I know that small shows don't always get their pick of venues. I get it. I even would have understood if they'd been like "oh dang, I actually don't know -- but I'll find out."

But to be told that they didn't know and didn't intend to find out... oof. That one stung.

Because.... this is the thing. This is the thing. I may be good at it by now, but I'm so tired of picking locks. I'm tired of doing all the legwork because no one ever thinks to help me. I'm tired of feeling like an afterthought at best, or at worst utterly unwelcome.

If you truly want to be inclusive, you need to stop telling people that you're happy to have them -- if they can manage to unlock the door. You need to fucking open it yourself and welcome them in.

What brought all this back to me now, you may be asking? Well... I guess it's just what I was thinking to myself as I was tidying up my phone.

Today I'm deleting podcasts.