#vestibulardisorder

[pghwellnesspt]

Balance Makes Perfect!!!

https://pghwellnesscoach.com/2023/04/27/balance-makes-perfect-2/

#physicaltherapy #personaltraining #fitness #agingcommunity #health #balancemakesperfect #vestibulardisorders #stroke #cardiovascularhealth #medicalproblems #jointandbone #arthritis #mentalhealth #vitamins #doctor #PT #trainersbelike #author #writer #actor #pittsburghbased #bodybuilding #motivationalspeaker

[orthomedhospitalchennai]

specialist to help with vertigo, you should consider consulting with an Ear, Nose, and Throat (ENT) doctor or a neurologist.

Reach us @ +91 44 4222 9222, +91 99400 99992, +91 44 2811 3122 Visit@ http://orthomedhospital.com

orthomedhospital

VertigoAwareness

DizzySpells

BalanceIssues

VertigoSupport

InnerEarHealth

DizzyDays

VestibularDisorders

[nspinelliwrites]

Chronic Illness: a Conversation with Loved Ones

*I wrote this almost a year ago. Since then I have had an additional diagnosis on top of this one of a similar vain. Actually most are of a similar vain. “It’s all in my head” hah. Edited for updated information*

I have Meniere’s Disease. I suffer, I live and sometimes I just rest with Meniere’s Disease. But it’s there always and forever. For those that don’t know, and I know it’s most. Meniere’s Disease is a chronic, invisible, disease that has no cure. It brings vertigo, tinnitus, hearing loss, ear pain, and pressure into my life. Amongst many other symptoms. Most are hard to explain when I sometimes have trouble understanding them myself. I generally try to yell “This is Sparta!” at my day at least once. It helps with the constant battle that goes on without my control or say.

What You Need to Know: The Specifics

The Mayo clinic describes my life so much more simply than it feels. “Meniere’s disease is a disorder of the inner ear that can lead to dizzy spells (vertigo) and hearing loss. In most cases, Meniere’s disease affects only one ear.” But here’s the truth, this disease like many chronic illnesses affects each and every recipient differently.

Most days I can’t walk. A lot of the days I can’t walk on my own. I consider those pretty good days. My most visible symptom is vertigo. Not, just got off the roller coaster going to throw up my lunch dizzy. More like my life is never getting off the Tea Cups and they are going backward. But the world is what is actually spinning and it’s around me–and I can’t get it to stop.

Other parts of my symptoms include hearing loss and ear pain. Brain fog. You know this feeling when a word is just on the tip of your tongue, but you can’t quite grasp it. I can feel that way, all day, for anything and everything. If you ever had to explain the word “stairs”, while looking at them. You feel me. Or ear fullness/pressure. Going up in an airplane that wonderful pain in your ears that come with the pop. Just no pop, most of the time, and on the ground whenever it wants. Did I mention the tinnitus? The roaring in my ears? And that’s just the tip of the iceberg.

One day I might need hearing aids. One day I might not have any hearing in that ear at all. One day I need a cane and one day I don’t. One day I could need a walker.

It’s a Vestibular Disorder of the inner ear. There is fluid in my affected ear. For me, it’s my left ear for now. At the moment, it is only lateral. Meaning it only affects one ear. However, it can become, bi-lateral and affect both ears.

It’s a long term disease. Long term. Rest of my life long term. Guys, I am never getting better. I am never going to “feel better.” Whatever that even means anymore. I am never going to get over it. This isn’t the flu. I won’t just wake up one day and be better. Better is just not something that is me. And that is, okay. I am forever sick.

You should hug your local chronic illness sufferer. Even though at the end of the day, we do not want your pity. Maybe you should ask about the hug thing too, you know? Germs and all. I may not have the flu, but I can still catch it. We just want acceptance and understanding. You don’t have to get a PhD. on the topic, just believe us.

Just believe that when we say it’s a bad day. That even though I am walking with my cane today. I am fine, it just helps sometimes. That I understand my limitations. That I am not giving up on the things I wanted in life. I am choosing to live a life where I spend most days okay. At a functioning normal. Not stuck in bed because you thought it would be a good idea for me to go to that concert or take on another activity. I learned the hard way when I didn’t want to change. When I liked the life I already had. When I thought I was giving it all up, which wasn’t the case.

Just Listen the first time

We shouldn’t have to have a discussion more than once. Please understand, that I understand that you don’t see when my S.O. has to carry me up the stairs just so I can pee. Or that he has to bathe me from time to time. I know you don’t see me after the weekend we spent at New York Comic-Con. When I am stuck in bed. In the dark, under the covers, probably annoyed at the dog who wants to torture the cat or vice versa and now won’t go upstairs without me. And I am unable to walk or even turn over.

I don’t mean to have to cancel plans. To be unavailable when you need me. I would love to go on vacation with everyone when they wanted. To spend the weekend in some place with flashing lights and music. Where we drink until we forget where our room is. But I have to think about the next day and the day after. About being able to walk. You don’t and I understand that. So why is it so hard for you to understand that for me?

Why can’t we all understand that my life has changed differently than it has changed for you? That I dreamed of traveling the world and being Lara Croft, but I get to cry about how that is never going to happen. Not you. Could you imagine me having an attack in a foreign country? I can hah.

That only I know how I feel right now, that my illness can’t handle the stress of school or work or a three-hour party at Dave n Busters for my niece’s eighth birthday. Sometimes I did them anyway. Knowing I wouldn’t feel well after or during because it was for someone and I paid the price.

Dave n Busters I’m looking at you.

At the end of the day, I didn’t make these decisions lightly. It kept me up for nights on end. It still does when you ask for help with your homework and still make comments about how I should be a teacher when I can barely work anymore.

Did I think this would be my life at 28? No. I thought I would have a family already, my dream job and life. But things change and that is okay. I accept them, you have to too.

I Don’t Need Your Pity

I know I am young. I know the average age for my illness is much older. And trust me I know I am too young to be this sick. Yet here we are. I don’t want you to look at me with that sad look as if my life is over. It’s not, it’s just different and it is allowed to be. It’s doesn’t have to be everything I planned. Or everything you think it should be. It can be new and exciting. I can enjoy the little things and big things, as I see fit and am able.

Here’s My Pitch.

Do you have questions? Well, good ask them. Don’t be afraid too. I would love to answer them. I will tell you whatever it is you want to know. That I know.

Do you know exactly what my disease is? Most doctors don’t either, isn’t that fun?

Have I told you I can’t do the thing you want me to do? Don’t ask me again. You will notice, by the third or fourth time I repeat myself it won’t be as kind. Which I don’t mean to do. It’s just–guys, I’m tired. Always. No matter how much sleep I get, or what I do. I could relax in bed all day. I will be exhausted.

And all I want is to make this easier for both of us. I struggle with canceling plans or leaving early. Being unable to help when I used to be able too. Not going to places I want to go. It’s always a fight and it’s not exactly one I am winning here. So let’s work together.

[ruthypie100]

Either I’m a hypochondriac & clumsy where I constantly walk into doorways ... or I have this shit ... #verticalheterophoria 👀 #Repost @nickangula with @make_repost ・・・ Graphics and info from Primaryeyecare.net . . This is a bit more accurate. It has a fair amount of variation of causes. My specific case was being born with misaligned eyes (so slight it wasn't noticed by doctors). Then I sustained too many traumatic brain injuries and I sort of came unraveled, or broke like a falling tea cup. It takes all I've got to try to keep the pieces together, and even then I'm still cracked, and a cobbled together mess. It's all because my brain is trying to compensate for what doesn't work or work well, and it just makes everything worse. . . I know, being on my phone is the last thing I should be doing. I'm a stubborn idiot, and the Ambien didn't keep me asleep. putting it away now. #stubborn #bvd #bvdgirl #binocularvisiondysfunction #verticalheterophoria #vestibulardisorders #headtilt #vestibular #vestibulardisorder #neurologicaldisorder #tbi #traumaticbraininjury #brokemybrain #vertigo #vestibularmigraine #sickgirl #sickgirlsclub #fashionablybraindamaged #clumsy #walkintodoors #bruisedaf (at Clumsy) https://www.instagram.com/p/CMOxzfnhHrg/?igshid=14v7h9yjwc27e

[lambunshrunk]

Dropping some Ehlers-Danlos Syndrome(s) knowledge...💞🦓💞 Thank you so much Sarah (@strongerthanpots) for helping me learn more about EDS while also spreading awareness at the same! 🙌💯 🥰 . #zebrastrong #dazzlefam #edscanada #ehlersdanlos #ehlersdanlossyndrome #edsawareness #hypermobility #fragilebutunbreakable #nocure🖤 #issueswithmytissues #edsfacts #neurodiversity #dysautonomia #orthostaticintolerance #POTS #MCAS #mastcellactivationsyndrome #vestibulardisorders #invisibleillness #chronicpain #chronicillness #spoonielife #spoonie #tinnitus #benzowithdrawal #myedsjourney #lambunshrunk #hamont #zebrainsheepsclothing 🦓 (at Hamilton, Ontario) https://www.instagram.com/p/CE244nCjczP/?igshid=1xnnwrlm5ie0s

[freedformwriter]

Solitude

First blog in a while! Today's is all about solitude: how we find it and how it finds us. And how I'm intentionally squandering it.

Red, green, red, green, red, green… My eyes dart back and forth between the lone palm tree and the looming shaft of the construction crane. The first is native to Portugal’s Algarve, coastal to its bendable core. My second fixed object is imported from Luxembourg to build another gleaming white holiday villa for foreigners. I count to fifty. I’ve already shaken my head side to side and up and…

[momentumspinephysiotherapy]

Vestibular Physiotherapy Edmonton | Momentum Physiotherapy Edmonton

Experience the expertise of Momentum Physiotherapy in Vestibular Physiotherapy Edmonton. Tailored treatment plans, cutting-edge techniques, and a commitment to your well-being. Call +1 (587) 409-4495 or visit https://bitly.ws/36xKE.

[tenkommotorsports]

View this post on Instagram

A post shared by Tenkom MotorSports (@tenkom_motorsports)

@national_dizzy_balance The Dynamic Visual Acuity test is useful in indicating the functional use of a peron's vestibulo-occular reflex, your ear-eye reflex. This vesibulo-occular reflex is an important reflex and one of the reasons why your world looks stable when you move. When a person has a vestibular deficit, often times this reflex is affected. With specialized exercises, however, this can improve. . . . . . #vestibulartherapy #vestibularsystem #vestibular #physicaltherapy #physicaltherapistassistant #dynamicvisualacuity #visiontest #bouncingvision #concussion #migraine #vestibularhypofunction #vestibulardisorder #tenkommotorsports (at NDBC Hearing Clinic) https://www.instagram.com/p/BsbdhLhhiKW/?utm_source=ig_tumblr_share&igshid=1nplet9cbmtcl

[domesticwintersoldier]

#cognitiveimpairment #shorttermmemoryissues #brainfog #vestibulardisorder #superiorcanaldehiscence #topamax #ptsdsucks #ptsd #migrainedisorder #vertigosucks #dizzy #stillfighting #domesticwintersoldier #fullmetalblunt #credittoartist #mybrainishangingupsidedown #motivation

[qofu]

☝️Trigger Warning - light bruising, it's nothing to worry about but I do mention child abuse. ☝️ 🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓 One weird not such a perk of Ehlers Danlos Syndrome, is we bruise easily, often not even aware of how we got that bruise. I do bash my lower legs a lot, but this one on my upper thigh 🤷 no idea. Even when Basil jumps on my lap, and cuddles me his paws can leave bruising, although when my fibro plays up it hurts like hell. I've got little roundish around 10p (quarter size) bruises from Basil. Sometimes it is literally because I'm a clumsy oaf, which is a mix of being dyspraxic, my EDS, and Menieres/vestibular disorders. I'm like a walking accident waiting to happen 😂. I have to laugh about it otherwise it would just bring me down further. Many of us when we were kids were often worried about, kids with bruises can mean quite a dark situation behind closed doors. Luckily my mum was never accused of anything, she only ever smacked me if I was a little shit and she never bruised or hurt me enough to make a mark or something. I bruise from insect bites too, even if I don't touch them/scratch. Our tissue is very fragile due to the collagen being faulty. Another reason stretch marks are very common. #EDSAwarenessMonth2018 #EhlersDanlosAwarenessMonth #MayForEDS #fragilebutunbreakable #hypermobileEhlersDanlosSyndrome #hEDS #Fibromyalgia #Bruising #Faultycollagen #Connectivetissuedisorder #clumsy #Vestibulardisorder #menieres #dyspraxia

[findinglifessilversun]

🎆📑 New Books Added! 📑🎆 TWELVE new books have been added to the #InvisibleCosmicZebra collection! That makes a total of THIRTY different conditions! . Conditions covered: #allergies, #CeliacDisease, #ChronicFatigueSyndrome, #cancer, #CrohnsDisease, #concussion, #diabetes, #dysautonomia, #EhlersDanlosSyndrome (#EDS), #endometriosis, #fibromyalgia, #gastroparesis, #HashimotosDisease, #HeartDisease, #InflammatoryBowelDisease (#IBD), #lupus, #LymeDisease, #MastCellActivationSyndrome (#MCAS, #MCAD), #migraines, #MitochondrialDisease, #MultipleSclerosis (#MS), #PostConcussionSyndrome, #PosturalOrthostaticTachycardiaSyndrome (#POTS), #PTSD, #RheumatoidArthritis (#RA), #SeizureDisorder, #SjogrensSyndrome, #ThyroidDisease, #UlcerativeColitis (#UC), and #VestibularDisorder . Go to kitanie.com (or invisibleillnessbooks.com, they're the same site) to get your books! If you get 2 or more, you'll also get a free coloring book. 😊 . Before you order, be sure to ask me for my coupon code so you can get 5% off! (Comment below and I'll message you, or message me for it!) ... #InvisibleBFF #ICZ #MedicalZebra #zebra #InvisibleIllness #ChronicIllness #ChronicConditions

[paprikajewellery]

Repost from @life_with_invisible_illness using @RepostRegramApp - This is so true.. social media can make everything look so different but what self care is to one person may be different to some one else.. it’s remembering to take the time to self care that is important! Whatever that self care may be for you.. don’t try and glam it up for social media.. just do you!! 🖤🖤 . . . #365BalanceProject #VestibularDisorders #VestibularMigraine #Menieres #Fibro #Aniexty #Depression #Diabetes #MS #ME #EDS #Crohns #Colitis #invisibleillnesses #chronicillness #Fatigue #HearingLoss #Tinnitus #SleepParalysis #SelfCare #LookAfterYou #JustDoYou #DoItYourOwnWay #TakeTime #Positivity #RaiseAwareness — view on Instagram http://bit.ly/2RD2Az0

[gutsandgratitude-blog]

2017 Training begins...starts with the most important day = rest day. It's been over 3 years since I've been able to train for anything, let alone simply run or ride my bike. Menieres Disease and Vestibular Migraines has kicked my butt for to long and this year I'm fighting everyday to take my life back - to defy the odds, to prove doctors wrong. I will find strength from God! #gutsandgratitude #trainingpartner #runningpartner #overcome #menieresdisease #believe #trilife #triathlontraining #cycling #gspoftheday #puppynap #puppyoftheday #chronicillness #refusetosink #livelife #vestibular #blessed #godsstrength #invisibleillness #menieresediseaseawareness #balance #vestibulardisorders #tinnitus #vertigo #dizzy #neverwillkeepmedown

[potatopie3]

The Haunt then the Jump

The Haunt then the Jump

Day 446—It Haunts me. But this haunting makes me want to run. The run and jump out the window to get away haunt.  But it is over. The damage or whatever is done. #Thursdaythoughts.   I am referring to my surgery. The before and the after. I am referring to the #AcousticNeuroma that took my right ear’s ability to hear. I am referring to my #vestibulardisorder that manifests itself daily. I am…

[momentumspinephysiotherapy]

Vestibular Physiotherapy Edmonton | Momentum Physiotherapy Edmonton

For expert Vestibular Physiotherapy Edmonton, contact Momentum Physiotherapy at +1 (587) 409-4495. Visit our website https://bitly.ws/36xKE to learn more about our services.

[domesticwintersoldier]

So the new love of my life is up and running Saturday. As much as my 34 year old pride hates it this #rollerwalker is my new favorite #mobilityaid My cane is a quick standby that has helped lower my rate of falls, but it’s not good for those ‘oh shit the rooms moving I need to sit right now or else’ moments.