#tilt table test

[pleastrop]

i travelled for more than 2 hours, on an empty stomach and being really hot outside, to have my tilt table test, when i got to the hospital they told me they couldn't do it because i had to make three appointments instead of only one cause the test is long, they didn't tell me beforehand and it was THEM who gave me the appointment. im going to scream.

[youplush]

Things that happened to me during my tilt table test:

Chest pain

Severe nausea

Went temporarily blind

Went temporarily deaf

Legs and arms went numb

Severe weakness (couldn’t hold my head up)

Extreme sweating

Exhaustion

Super lightheaded

Brain fog (couldn’t think straight, was confused)

Headache

Shortness of breath

Probably more idk. I still feel weak and confused tbh

But I wanted to share my experience

[thatpinkkwitch]

i have my tilt table test today!! very nervous, very excited to finally get this diagnosis down on paper since my entire medical team is in agreement on what i’m obviously dealing with!!

[make-me-your-animal]

Waiting for my tilt table test wish me luck besties

[microwavedautism]

I have a question for anyone who has done a tilt table test, or at least knows about it. I have one scheduled for next month, and on the letter I got about it, it says I will get a thing put in my hand.

Problem is I am horribly afraid of needles, to the point that I will shake and cry just getting a blood test done with the baby needle.

Is there a possibility of me skipping that part? or is it THAT important?

If it is, any suggestions on how to deal with it? :(

[theglassdragoncollective]

Succeeded our tilt table test! (Fainted)

[nindurmeleth]

Went in for a tilt table test, and came out traumatized.

They chose to abort the test against my will so l'm left with an inconclusive test, a possible blood clot, and a huge POTS flare.

It is so hard to advocate for myself as a physically disabled, autistic, trans person because medical professionals don't respect me as a human being or a valid source of information about my own body and experiences.

[writersarea]

totally passed out today during a tilt table test

jesus christ 0/10 but i’ve got some answers at least

[affectionatepanda]

I have my tilt table test this week and I’m not exactly looking forward to it but I am looking forward to the answers it could give me sooooo… onwards? Here we go I guess

[buyingaradspaceship]

I had a tilt table test earlier and it fucking suckeddd

[crooked-smile-girl]

Here we go now

Hours before

His “worry”

His “concern”

Not for me of course

But the fact that I’ll have the car.

Tilt table test

So the doctors no longer have to guess

What the fuck is wrong with me.

[longhaulerbear]

CBF parameters were similar between the two groups. POTS patients demonstrated significantly longer latency in delayed match to sample response time and greater errors in attention switching task.

Impaired short‐term memory and alertness may underlie the symptom of brain fog in POTS patients, despite normal CBF.

Interestingly, brain fog has been reported to occur even in the supine position and may not be limited to upright posture.

Here, we hypothesized that POTS individuals have impaired CBF regulation as well as cognition to explain the symptom of brain fog when seated.

This study demonstrated objective evidence of neurocognitive deficits in POTS individuals but similar increment in CBF velocity parameters in response to visual stimuli in the PCA of both groups. Others have demonstrated a correlation between increment in CBF in the middle cerebral artery (MCA) during cognitive challenge (functional hyperemia) and the ability of POTS patients to recall numbers. The deficit in functional hyperemia became much more pronounced when the cognitive challenge was performed concurrently with orthostatic challenge, suggesting impairment of both neurovascular coupling and autoregulation. 7 Autoregulation tends to deteriorate in patients with POTS during orthostatic challenge, as oscillations in peripheral blood pressure become more marked. 7 , 10 We found normal CBF velocity response in the PCA to visual stimuli in POTS patients while remaining seated. However, it remains unknown whether CBF changes would differ if measured in other vessels such as the MCA or with more complicated visual search paradigms.

To date, formal neurocognitive assessments in POTS patients remain limited with variable findings of deficits in memory, attention, and executive function using different neuropsychological testing tools. We found deficits in short‐term memory and alertness in our POTS cohort. In contrast, others have shown impaired selective attention and cognitive processing but unaffected memory in POTS patients using different neuropsychological tests. 13 This may be owing to the heterogenous nature of the condition and the many factors such as sleep disturbances, chronic fatigue, and medication use that may influence different facets of the cognitive status. These objective measures of cognitive dysfunction may in part explain the brain fog described by POTS patients even when recumbent, although the mechanisms remain unclear.

[joellesolo]

Good news! The tilt table test is only just over two hundred dollars! Which, don’t get me wrong, is still absurd, but we can make it in payments and it won’t cost SEVERAL THOUSAND DOLLARS. So, I have that to look forward to!

(Oh, but, the echo test was twice as much as the stress test, so I obviously had to cancel that as well.)

After thirteen years of blacking out when I stand up, I finally got a referral to a cardiologist (because my previous doctor, who I'd been seeing since age eight, just flat out wouldn't test me for POTS). The cardiologist was like, sure, let's get this going, and scheduled an echo test, stress test, and the all important tilt table test for these next few weeks.

Well, I get a call from the hospital today, asking me what my payment plan for the stress test is going to be. And I'm like, uh, I have insurance? How much is it out of pocket?

And they respond casually, oh, it's over twelve hundred dollars (I temporarily blacked out at the actual number but it started with a thousand two hundred) and I'm like... that's AFTER insurance?! Are you fucking kidding me??

So, I had to cancel the stress test. Doesn't matter how 'good' the payment plan is, I don't have that kind of fucking money to spend on one. single. fucking. test.

Hopefully the tilt table test is covered more, because that's the most important thing.

And before you come at me, YES I KNOW POTS IS INCURABLE. I'm well aware. But it'd be nice to fucking KNOW what is wrong with me... besides, well, everything else.

[butts-bouncing-on-the-beltway]

Desperately trying to be hysterical all night again in advance of my doctor's appt in the morning because honestly I'm barely holding onto sanity as it is lmao

The amount of pre-appt research I do never stops turning up horrifying new pieces of information like this one:

Like my guy I can barely manage to stomach the ½ teaspoon of electrolytes I put in my water every day and you want me to eat SIX GODDAMN TIMES THAT MUCH??????

I would rather fling myself into a dying star I'm so fucking serious

[mosswolf]

going to go back to the GP tomorrow for the first time since i got roundly mocked, bullied and dismissed over my varying chronic issues a few years ago. it's a different GP practice in a different area and we've had mixed results with them for other things but fingers crossed they're at least like,,, not horrible to me. like it's one hundred percent the result of medical malpractice that i live like this, in pain and fainting all the time and constantly tired and dizzy and nauseous this is not normal!!!! so at the very least i hope they're not absolute freaks to me cmon guys be normal this once pleaseeeee

[canyourlawnmowerdothis]

im so happy for you and your stupid fucking diagnosis im serious