#POTS Syndrome

[alexx-is-tired]

I know it might sound silly, but I'm so happy that I started learning how to knit recently.

I've been working on my first big project, a sweater, and it's given me something to be excited about each day. I look forward to getting out of bed so I can work on it, I've been taking more time offline and just listening to music while I knit and it feels almost therapeutic.

It helps distract me a little from the pain and fatigue I'm experiencing, and it's also given me something to feel proud of and accomplished in!

Maybe once it's finished I'll post a picture of it here :3

[arandomao3user]

As an Ao3 author, I love giving headcanons that'd probably anger a certain side of the Batman fandom, but I personally don't care because it makes great angst and, again, I'm an Ao3 author and chronically ill!

First up! Dick Grayson, I like the idea of him having ADHD, of course, BUT... joint hypermobility syndrome.

(Joint Hypermobility Syndrome: Joint hypermobility syndrome is a connective tissue disorder. Thick bands of tissue (ligaments) hold your joints together and keep them from moving too much or too far out of range. In people with joint hypermobility syndrome, those ligaments are loose or weak. If you have joints that are more flexible than normal and it causes you pain, you may have joint hypermobility syndrome.)

Chronic pain fits him, don't ask, because as the eldest child with chronic pain and hypermobiltiy syndrome, trust, he has that look in his eye that he's been walking on swollen knees for the past twelve hours, had three mental breakdowns, and is still pushing through because SOMEBODY has to deal with this bull.

That's also the reason he wears freakin' spandex-- only, it's for compression! He wears compression items to help with swelling and pain TRUST, and let me have this because the math maths (it probably doesn't, but let me have this.)

He's got chronic fatigue, he's gotten used to popping dislocated joints back into place, Bruce was so confused how he dislocated and sprained so many bones so quickly when out as Robin. It's genetic, of course, Bruce finds. But he has money, and Dick powers through it all! Till he develops arthritis in his early thirties/ late twenties and actually hates everything because WHAT AND WHY--

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Next up! JASON TODD! I have no proof, evidence, and it doesn't have to make sense but I like giving him asthma sometimes for the angst potential of if he didn't have it, he wouldn't have died in the explosion.

He didn't die from said explosion, nor JUST the smoke inhalation, but because he had an asthma attack, on the ground, bones broken, unable to breath because his inhaler did NOT survive the blast, if he even had it on him.

And that's why he wears helmet with so, so many filters in it now...

Also, being a street kid who struggles to even get his medication that keeps him alive? Peak angst, being to poor to afford your medication because the American healthcare system is actually trashy garbage.

R.I.P. Jason Todd, you would've loved clean air--

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ANEMIC TIM DRAKE! But I up you, Tim Drake with Postural Orthostatic Tachycardia Syndrome (POTS)

(POTS: Postural orthostatic tachycardia syndrome (POTS) is a condition that causes your heart to beat faster than normal when you transition from sitting or lying down to standing up. It’s a type of orthostatic intolerance.)

Read ONE SINGLE FIC/ SERIES with this and I've loved it since because what do you mean he randomly falls asleep anywhere? No, forget your canon, he passed out and people think he just fell asleep... NOpe, he passed out, sorry random lady he was on a date with!

(The majority of people are AFAM but we aren't ready for my trans Tim headcanons yet either.)

(You’re at a higher risk of developing POTS after experiencing the following stressors:

Significant illnesses, such as viral illnesses like mononucleosis or serious infections.

Physical trauma, such as a head injury.)

Ngl, my dude gets a LOT of physical trauma (and mental--) also, losing a spleen? Surgery and at risk of viral illnesses? I'm sorry, but I need him to suffer more because I like when Tim Drake suffers horribly.

Now, despite having this condition, I am no expert, but also his caffiene/ energy drink addiction is from chronic fatigue, he shouldn't drink it, it's not healthy or good for him, but he stopped caring between the spleen loss and whatever the "Drake" run he did was because what even was that name?--

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Damian is autistic and I will DIE ON THAT HILL--

No, I won't explain and you can't make me.

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[meeb-motes]

anyone else get frustrated when doctors tell you to exercise and eat healthy so your disabilities will be better….Like I’m sorry doctor but I cannot exercise because of my disabilities what the fuck do you mean ??? Also can’t “eat healthy” bc I literally have ARFID so like your advice is not helpful ughh

( for reference we continuously have doctors tell us the way to help make our PoTS and PADs better is to exercise and eat healthy )

[lupusbaby]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[vtk13]

“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child

[certifiedgoofball]

i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)

[mybodychoseviolence]

“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

[jenacat8-blog]

Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.

[teacupbug]

My controversial opinion is that I think chronically ill people should be able to fight one doctor a year

[potsiepumpkin]

Useful information

[p0is0n-is-th3-cur3]

Having dreams crushed by disability is such a deeply traumatic experience, the realization that you’ll never be able to do the thing you want most in life because your body isn’t able to handle it. Waking up the day after you received the news and feeling that utter sense of heartbreak in your chest. Watching people go on and do those things while you sit on the sidelines, forced to watch bitterly. That feeling of being trapped, imprisoned by your inability to do what you love. The grief, the anger, the sadness. All because your body doesn’t allow you to.

[spoonfulofhannah]

I wish all chronically ill and disabled people a very “doctors listening to you” November

[spookietrex]

[stellaltumi]

stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

[the-forestry-system]

Remember that it is officially disability pride month now. it is just as important as lgbtq+ pride month. we exist. we are being hurt by the system as it is now. we will not be silenced or placated. disabled is not a bad word.