alexx-is-tired

[alexx-is-tired]

I slipped up and had a few days where I didn't hydrate enough and now I'm getting intense kidney pain

Please don't let me have kidney stones again I'm begging you!!

[alexx-is-tired]

Update on my jumper/sweater since a few people asked to see progress pics :3

It's definitely going to take me a long time to finish it but I like that it gives me something to do each day.

Also, I absolutely love the way this yarn works up, it's so pretty!!!

[alexx-is-tired]

I know it might sound silly, but I'm so happy that I started learning how to knit recently.

I've been working on my first big project, a sweater, and it's given me something to be excited about each day. I look forward to getting out of bed so I can work on it, I've been taking more time offline and just listening to music while I knit and it feels almost therapeutic.

It helps distract me a little from the pain and fatigue I'm experiencing, and it's also given me something to feel proud of and accomplished in!

Maybe once it's finished I'll post a picture of it here :3

[alexx-is-tired]

I'm going to the Christmas market with my bf today!

I'm nervous about being out of the house for such a long time but he truly is my biggest supporter and I know if I tell him I need to take a break that he'll be okay with it.

I'm tempted to try ice skating but we'll have to see how my joints (specifically my ankles) are feeling once I'm there ahah

[alexx-is-tired]

Recently I've been managing a short 15min walk each day with some light stretching each morning and night!

I know to some people this might not seem like a big accomplishment, but considering I've been sedentary for months now this is a huge achievement for me.

I am experiencing a few extra aches and pains but it hasn't affected my fatigue levels so far, I am still very fatigued but it's not making it any worse which is something I'd worried about

[alexx-is-tired]

I wanna start doing very basic yoga in an attempt to build up my muscles again, I lie down for the majority of the day and I hadn't noticed how much my muscles had deteriorated until I tried picking up the 5kg weight that I used to use for exercising and found it really hard to lift.

I'm scared of losing even more muscle but I'm also worried that pushing myself could mean I cause a flare up and have to spend even more time in bed.

If anyone has found a way of being able to do light exercise with pots and/or cfs and has any advice I'd really appreciate it!

[alexx-is-tired]

I find it so frustrating that even on the rare nights that I get close to eight hours of sleep it makes little to no difference in how fatigued I feel.

I managed to sleep pretty well last night but I woke up with a throbbing headache and my body feels like it's been beaten up or hit by a bus.

I'm probably gonna have to lay here for at least an hour before I manage to drag myself out of bed and attempt to do anything productive with my day

[alexx-is-tired]

I've desperately been trying to find some compression sleeves that also provide a little support for my hands but I can't find any. There are so many options for sleeves and gloves but not a combination of both.

I love knitting and drawing but I can't do it often because of the pain in my wrists/arms, it's so frustrating knowing they would help but not being able to find any.

If anyone has any recommendations for websites/brands who sell something like this I'd really appreciate it if you could comment/DM me!

[alexx-is-tired]

I'm finally getting over my flare-up from the other week, it's crazy how even though I still can't do a lot of things this feels amazing in comparison to how limited I was just a few days ago!

I even managed to take a short walk to play some Pokemon Go. Today was a good day :3

[alexx-is-tired]

All I did was eat breakfast... Why am I out of breath, sweating and my heart rate at 120bpm???

[alexx-is-tired]

The temperature has dropped drastically here in the past few days and my joints are absolutely not having it 🥲

[alexx-is-tired]

I'm so tired of being told I need to "make the effort" by family members.

I've tried explaining so many times that just getting out of bed and making sure I've eaten and showered IS me making an effort. I'm not trying to negotiate chores or ask for help with certain things because I'm lazy or trying to make life hard for other people.

I can't even do the things I enjoy most days, I haven't been able to game or draw in months because it takes so much mental energy that I just don't have.

My mum comes with me to all of my doctors appointments but it somehow still hasn't sunk in that I have a chronic illness and that means I can't do things in the same way I used to.

To make it even worse, whenever I complain about my pain or fatigue she suggests that I've caught covid... As if I'm not constantly feeling this way

[alexx-is-tired]

I don't know how/why but long covid has given me reccuring kidney stones and I have no idea what to do about it. (It might be caused by one of my other illnesses but I'm not entirely sure)

I drink at least 1.5L of water a day and only one small coffee.

I haven't heard anyone else talk about this but if anyone also experiences this and has advice I'd really appreciate it!

[alexx-is-tired]

you do not have to “contribute to society” to be valuable or protected from the things that hurt you.

[alexx-is-tired]

[alexx-is-tired]

The daily struggle

You wanna stand? No sorry that's gonna be way too tiring and cause your joints to ache and cramp

Sitting? That's not gonna work out either, your back is already sore just from getting out of bed

Lying down? Are you kidding? That's actually gonna be the most painful, but since you tried everything else you're gonna be so exhausted that you now have no other choice

Good luck! Hope your day is productive!

[alexx-is-tired]

One thing I'm exhausted of hearing is people thinking I'm not "trying" to get better when my disabilities disable me. I cannot push past my limitations because then I cannot function for any length of time after, but because I used to be able-bodied they assume I'm just not trying and it makes me so angry.

It's like people cannot fathom someone becoming disabled...