alexx-is-tired

[alexx-is-tired]

I've desperately been trying to find some compression sleeves that also provide a little support for my hands but I can't find any. There are so many options for sleeves and gloves but not a combination of both.

I love knitting and drawing but I can't do it often because of the pain in my wrists/arms, it's so frustrating knowing they would help but not being able to find any.

If anyone has any recommendations for websites/brands who sell something like this I'd really appreciate it if you could comment/DM me!

[alexx-is-tired]

I'm finally getting over my flare-up from the other week, it's crazy how even though I still can't do a lot of things this feels amazing in comparison to how limited I was just a few days ago!

I even managed to take a short walk to play some Pokemon Go. Today was a good day :3

[alexx-is-tired]

All I did was eat breakfast... Why am I out of breath, sweating and my heart rate at 120bpm???

[alexx-is-tired]

The temperature has dropped drastically here in the past few days and my joints are absolutely not having it 🥲

[alexx-is-tired]

I'm so tired of being told I need to "make the effort" by family members.

I've tried explaining so many times that just getting out of bed and making sure I've eaten and showered IS me making an effort. I'm not trying to negotiate chores or ask for help with certain things because I'm lazy or trying to make life hard for other people.

I can't even do the things I enjoy most days, I haven't been able to game or draw in months because it takes so much mental energy that I just don't have.

My mum comes with me to all of my doctors appointments but it somehow still hasn't sunk in that I have a chronic illness and that means I can't do things in the same way I used to.

To make it even worse, whenever I complain about my pain or fatigue she suggests that I've caught covid... As if I'm not constantly feeling this way

[alexx-is-tired]

I don't know how/why but long covid has given me reccuring kidney stones and I have no idea what to do about it. (It might be caused by one of my other illnesses but I'm not entirely sure)

I drink at least 1.5L of water a day and only one small coffee.

I haven't heard anyone else talk about this but if anyone also experiences this and has advice I'd really appreciate it!

[alexx-is-tired]

you do not have to “contribute to society” to be valuable or protected from the things that hurt you.

[alexx-is-tired]

[alexx-is-tired]

The daily struggle

You wanna stand? No sorry that's gonna be way too tiring and cause your joints to ache and cramp

Sitting? That's not gonna work out either, your back is already sore just from getting out of bed

Lying down? Are you kidding? That's actually gonna be the most painful, but since you tried everything else you're gonna be so exhausted that you now have no other choice

Good luck! Hope your day is productive!

[alexx-is-tired]

One thing I'm exhausted of hearing is people thinking I'm not "trying" to get better when my disabilities disable me. I cannot push past my limitations because then I cannot function for any length of time after, but because I used to be able-bodied they assume I'm just not trying and it makes me so angry.

It's like people cannot fathom someone becoming disabled...

[alexx-is-tired]

About me :

name - Alexander (he/him)

age - 25

from - Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

♡♡♡

Hoping to find some advice and make some friends with other chronically ill folks! I have long covid, POTS and CFS.

I'm also AUDHD, FTM and gay 🏳️‍🌈

I like Animal Crossing, knitting/crochet, Pokemon Go, Minecraft, baking, drawing and language learning