#thinking about this tweet i saw the other day
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Saw a post that I do agree with — about how moving your activism primarily offline and engaging with people in real life is so much more impactful than angrily riding your horse into another round of online discourse, especially now. But at the same time, I want people — especially disabled people, and otherwise involuntarily isolated-feeling people — to know that there is activism you can do online, or otherwise from your home, that's different from reblogging a snarky post, and more impactful too.
The example I'm always obligated to talk about is online accessibility, and especially, writing image descriptions — an act that both directly makes posts more accessible to blind and low-vision screen reader users, and raises awareness of image descriptions to promote accessibility indirectly but in the long-term. This is disability activism; it is making a previously inaccessible space accessible and implanting disability accommodations at the forefront of people's brains.
As a chronically ill autistic person, the barriers to getting involved IRL are hopefully surmountable in my personal case, but not easily or quickly surmountable. However, the barriers to me writing image descriptions are much lower — and in fact, as a disabled person myself, I'm passionate about the topic, and that makes it easier for me to focus on. I subscribe to the burnout-prevention advice to make a list of a very few issues, tailored to your strengths, that you pledge to put your whole ass into, with a less selective list of issues you can pledge to do a little bit about when you have the resources.
Image descriptions are my personal Whole Ass Into It issue. They are, quite simply, the action I am personally best-equipped to take to make the world a tiny bit less shit.
And it might not be that kind of issue for you! I desperately want people to be aware of the possibility, but it may not play to your strengths — or, it may fit better as an issue you can make occasional contributions to without focusing on. (What might occasional contributions look like? Maybe just describing your own posts, and getting in the habit of checking the notes for IDs when you're on Tumblr. Or maybe just choosing one type of image to always describe that feels manageable for you — screenshotted tweets, maybe.)
But maybe you're not the best at interpreting images, and it would better play to your strengths to write transcripts! Maybe typing is tiring for you, or social media is bad for your mental health, but leaving the house still has barriers, so you find an opportunity to phone bank for a particular issue! Maybe you volunteer with a voter registration help line, next election. Maybe you stay on Tumblr but you adopt a fundraiser, or join a charity zine. Maybe you need to garden very slowly and steadily, to take care of your body, but you can grow some native plants, and strike up conversations with your neighbors about it, if you get the chance.
At the end of the day, I think two things can be simultaneously true: getting involved offline can be contextually much more plausible than a lot of people realize, and it can still have barriers for people with certain disabilities or other circumstances, while people lacking those circumstances may not notice. Luckily, there's no one mold for what activism looks like. Analyze your strengths, treat your limitations with compassion, and get creative about how to help.
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hi!! i'm so in love with your work, thank you so much for putting out all of this for us 🌺 this might seem like a weird question, but if you had to choose five of your current work that you would want people to read the most, which do you think it would be?~ i think all of them are nice tbh, i'm just curious which of your works you like the most 🦋
you're so lovely, anon! this was one of the sweetest asks i've gotten aaah (ᗒᗨᗕ) my five recos (in no particular order)
svt checking in on an overworked!reader. just some soft hours all around, and i think the texts & headcanons balance each other out really well. :) i enjoyed the little 'see also's after each member heh!
svt detective x thief au. oh man, i'll never shut up about this... i loved getting to do something outside the usual! and the drabbles under the cut 。^‿^。 i still think of this one a lot LOL. u/purple-eustoma's mind has to be Studied for this request.
fake dating seungkwan. this one is formatted differently from a number of my smaus, mostly because i think i might expand on this as a fic so i'm holding back hehe,, but the format!!! so so so fun!!! i think this is where i started thinking i can get away with some experimenting. <3
chan x fansite!reader. this plot is so very dear to me,, fun fact: i didn't know which member to pair with the fansite!reader character, but then i saw this tweet about dino & his fansite (trans: 'he's like a boyfriend indulging his girlfriend') and i was SOLDDD.
🥁🥁🥁 and, of course— maybeee a cheat because it's a series atp lol but vernon dates rockstar!reader ??? if i will have any legacy at all, i hope it's that one. still wholly indebted to the anon who requested it in the first place, but this one makes me super soft because i'm a dolly first & foremost, and vernon has been so fun to explore in this verse. i'm a sucker for experimental formats [as i've mentioned], and so the format for part three (the 'vernhow' section) was a dream. can't wait to wrap this up in two. <3
thank you anon for letting me yap ab myself for a bit! i hope you're having a good day (ノ◕ヮ◕)ノ*:・゚✧
#── ᵎᵎ ✦ inbox#[ some quick runner-ups because tags are an entirely new post on its own when it comes 2 me .. ]#[ the format for film!student mingyu's headcanons <333 yummy ]#[ i'm super soft over the plot of reader!streamer x wonu as well ]#[ the headcanons of svt with 'nerd' partner are still some of my favoriteeeeee. i just dont like how the texts turned out so -- ]#[ -- overworked!reader clears in that regard LOL ]#[ if i could choose only one (1) out of all of my smaus so far ]#[ i think it'd be fake dating seungkwan :3 ]#[ thank u thank u for this!!!!!!!! i love Yapping so bad ]
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why isn't it OK to call a bi character, gay? like, you gotta be a little gay to be bi... I've even see that lesbian was added to not calling them gay... it doesn't make sense to me
#fandom stuff#ship discourse#i dont understand a lot of things#personally i dont see the issue#but also i dont get the whole hubbub over representaion#thinking about this tweet i saw the other day
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Post 5 new to fully unlocked demon instincts Nero unaware he's performing courting displays towards Dante and Vergil when they get back from the underworld send post
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#just saw that tweet abt pink days on the set of the barbie movie & i think it made me realize why it - the marketing etc - annoys me so#'margot robbie went around collecting fines and donated them to charity haha' okay. look.#that's just the perfect metaphor for how it worked for us - me - anyone who wants to align themselves with me - when we were girls#isn't it#because you grow up and you desperately want to fit in with the other girls but you don't & you don't know why#but you're surrounded by things and people telling you what a normal girl is like & little-to-none of it is things you find appealing or#interesting. makeup and fashion and skin care. gymnastics and romance. you're told that you are obligated to be pretty#but prettiness has never been part of your perception of yourself. femininity is an arcane concept#an exclusive club that will never grant you entrance#& the only comfort you can give yourself is deciding that it's dumb anyway. shallow. vain. who cares about looks and boys and all of that#idiots that's who#but this is Doing It Wrong too isn't it? because now everyone who has taught you that you will forever fail at femininity turns around#& tells you that's patriarchal oppression and YOU'RE the bad one by distancing yourself from something that always made you feel defective#'YOU may have never lived up to this impossible standard of perfection but some ppl do and actually it's fine to be like that!#hyperfeminine traditionally beautiful women are the most oppressed group of all & finally we will stand up for our rights!'#'girls can be pretty AND conpetent' but that's not what they're actually saying. isn't it.#because performing femininity correctly is the prerequisite. a threshold you can never cross and you know that. & that's fine#but somehow that's wrong too because you're not supposed to make peace w that are you. you're SUPPOSED to want to do it right#even if you don't and never have and never will#and once again everyone is yelling at you that this club isn't meant for you. if you criticize the barbie movie you're antifeminist#if you refuse to wear pink I'll make you pay a fine#hashtag girlpower#(well im not a girl. not a guy either. and not a secret third thing. just bad at femininity.#bad at being a person. and y'all don't need to tell me you don't want me in your club#I've always known that. i just wish you'd stop expecting me to beg for entrance.)
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song of the night!!
#I saw a really interesting twitter thread the other day (well. it was like 3 tweets) talking about how brat elevated charli out of pop's#''middle class'' and thereby sort of... unrecognizably twisted the meaning/impact of brat#I think their words were ''if everything is brat then nothing is brat''#which I thought was such a good encapsulation of how memery elevated brat out of charli's relatively niche position in pop culture and#then consumed the culture itself#(TO BE CLEAR this would not have worked if brat wasn't such a fantastic album. but it is!!!)#and this song in particular — which was originally about being jealous of a more successful artist — is now about the struggles of success#idk it was really interesting and I'm deeply curious to see where charli's career goes next#as someone who previously only really knew her big hits and was unaware of the niche nyc it girl vibe of her and her ilk#like to WHOM is “I'm so julia” a meaningful sentence outside of a very niche subculture!!!! it's INTERESTING#it was cool to read someone's take on it who was more familiar with charli and her niche and such#it's such a fun album#and I'm working through the remixes now!!
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another day another "applying the concept 'disposability' to 'someone withdraws from a personal relationship, & that wasn't signed off on by the other'" kill me
#literal acknowledged interpersonal abuse Needing to be ''mediated'' (implicit premise of preserving that relationship >>>)#and if the victim doesn't participate they're treating their abusive partner / abusive relationship as ''disposable''#like in what meaningful way. getting away from an abuser is ''disposing'' of them like imprisonment / killing From A State?#dropping an abusive relationship is ''disposing'' of it? like uh yeah i sure hope it is#this is always Vaguely Applied to ''ppl don't want to HANDLE CONFLICTS or DO THE WORK'' & then connected to political actions#like well someone's just a bad person In The World / All Things if they stopped being my friend and i don't know why#like of course that Can Be good faith. it's a personal business#but if someone ghosts you and you truly don't know why Yeah maybe there's something going on but like okay let them go#if they want to do that for reasons you don't think are Compelling or they just aren't interested / putting in that Effort then like#what Friendship is really being lost here. but then tweet about it with no context & a zillion ppl like SO TRUE kys randos#[fart reverb Conflict Is Not Abuse] standard abuse apologetics which are easy & a zillion ppl go SO TRUE b/c It's Abuse Culture#someone HAS to Answer My Texts / Calls / In Person Confrontations As A Bold Clearsighted Political Actor are you kidding#someone really doesn't. even if you Really are like ''and i'm not even consciously malicious'' what a high bar#one gazillion abusive parents will tell you And My Estranged Child Won't Even Tell Me Why / Doesn't Have Any Good Reasons / Won't Talk....#what am i supposed to doooo i'm at a losssss And Really I'm The Victim#''i want to break up'' / ''okay i don't :) let's talk through Your Feelings :) [waffle around until insisting on Same Access To Person]''#someone can rescind interpersonal access to themself For Any / No Reason. on a dime no explanation necessary. for god's sake#and friendship is not actually some magically pure & Neutral relationship either. same things#anyway just unfollowed some rando for their thread spinning off a vague qrt ''ppl are so AFRAID OF CONFRONTATION they unfriend u''#going on & on abt how You Need To Put In The Work & Effort & You're Just Probably A Bad Person Otherwise & Disposability like#the disposability is my three points wastebasket toss. death via the state =/= someone won't talk to you. can we be at all serious#every day i reach out further like aplatonic people [some emblem gesture] lovelessness [same] help me#thinking of a Good Tweet i saw abt framing everything re: interactions with others around Consideration first & foremost#wildly enough the way you treat people doesn't need to have Fundamental Assumptions re: like ah Friendship / Community / Love / Family &ccc#how do you treat a stranger. how do you treat someone who you don't personally like &/or vice versa. how do you treat ppl you don't Meet.#it's all so vague it could mean Anything but a) often hints towards [abuse victims are framed as Bad Political Actors]#& b) then that's what people read into & respond to for sure lol#as ever ''oh everyone's just little bitches who can't handle any discomfort. yes; this was prompted by my being discomfited''#wait yeah lol i did not Confront this stranger to try to Posit this to them in twttr's character limit; just unfollowed. disposability smh
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nosy anon again making a return because i think what my brain did was read that i helped find some kind of writing and then did not fully process what the writing was?? but upon rereading i am very intrigued if you ever get the urge to share i will be all eyes/ears/senses required to enjoy things!!
I GET TO DO WIP WEDNESDAYYYYYY!!! the writing exists mostly in the form of a tag (fantastic! 'verse) and also a thirty-two page doc of snippets and planning, so the sense you will be using most is imagination:
don't think i have ever actually formally written out anything about fantastic! 'verse but! the tl;dr of it is that it's a semi-college au: joel is still a hockey player for the lv phantoms, but morgan is a college student-athlete. it's incredibly relevant to the plot that joel falls in love with morgan in the check-out line of a wegman's, lies a little bit, and ends up going back to get his degree.
most of it is just good fun about college kids growing up, but i think there's a lot of parallels between making your way through a development system where traditional "success" isn't always guaranteed (ahl -> nhl, completion of higher education -> pursuit of a career) because that development system isn't always designed for you to "succeed" or have opportunities. heavy quotation marks around success because part of that struggle is learning what you want in life and how you define success. are your dreams achievable? are they still the same dreams you always used to have? it's infinite branching universes of would you still love me if i was a worm (ahl player forever) (a college dropout) (a college graduate) (older) (realizing the fallibility of your body) (uncertain of the future) (human).
silly little snippet:
#do i LOVE this snippet no we're still workshopping but i felt like y'all needed context for why it's fantastic! 'verse#and i can't link ash's tweet because. priv nor can i link kay or jos' replies so this is me saying Just Trust Me the tweet is this scene#anon the gift keeps on giving. i get to gab i get to be nosy the world is ideal i am here for it#does it count as wip wednesday if the w in question has been ip for four (?) years?#liv in the replies#HI THIS WAS SUPPOSED TO GO OUT WHEN I FIRST GOT IT BUT I MISSED WEDNESDAY SO I HAD TO WAIT A WHOLE WEEK TO HIT IT AGAIN#BECAUSE I GOT EXCITED ABOUT DOING THE DAYS OF THE WEEK wip wednesday#you know the one oh i LOVE this part audio? that's me any time somebody asks me questions i am SO inclined to share.#one time somebody made a comparison about the blog and walking through a garden and it made me weepy i can't even lie#ALSO I SAW YOUR OTHER ASK i am in the trenches about whether i want to post it or not i did also go look and see her morgan posting in 2019#and maybe she is the same girlfriend?? maybe they broke up and got back together?? maybe she just cleaned up her vsco??? SO confused#(the debate is for all the reasons you mentioned lol it's just me deciding how Public you have to be before i think i want to paper doll yo#into my narratives? in a public forum because i would absolutely dm/gc/etc where there's no chance she could see or be involved#(as if she is on tumblr) but also figuring out how much i let into the sandbox. To Me things like the edm polycule or including wags can be#interesting within the narratives and sometimes i just pretend they don't exist! right now i am intrigued by the fact of whether or not#i invented a girlfriend (???) for morgan but she really doesn't fit into my narratives in a fun/interesting way besides that#and i don't want to spread misinfo if i DID invent this other girlfriend. rip morgan's imaginary (??) gf although i KNOW there was one#with the artsy vsco claw marks on his back. i promise!!! maybe it was just her!!!#fantastic! 'verse#i have better snippets i promise this au is funny it also features like. all of the 2019-2020 flyers because that's when i started writing#AND probably ten of those 32 pages are plans for a sequel/companion about isaac ratcliffe my beloved 😭#don't think too hard about who is actually playing on the flyers or draft orders without people. EYE know who is still on the team#but i did not do the math shenanigans to figure out who replaced people like morgan or scooty loots. vibes only no PP units
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hanwenzhou thought of the day: zhou zishu is some kind of fantastical creature along the lines of a siren, where he can appear to people as what they want to see. it’s a very handy quality for a spy, especially when he has such good control over how he appears that he can do it voluntarily and he can adjust the degree to which it changes him. (is he mostly him but a little altered to appeal to who he needs to get information from, or is he completely unrecognizable because he needs to sneak past a guard who is hoping to get through his shift without trouble?)
it makes it easy once zzs leaves tianchuang. no one really wants to look at a beggar at all, they practically make him invisible, leaving zzs free to do what he wants. except then he starts getting entangled in the jianghu machinations (they want to see a wandering hero) and involved with chengling (he wants to see a father figure) and followed by wen kexing (who knows exactly what he wants to see, zzs certainly pretends he doesn’t), and by the time han ying shows up in ep8, zzs is back to tailoring his appearance to whoever he’s performing for. because the thing is, he’s always performing. it’s instinct to him.
wen kexing sees his face clearly, but zzs can barely help it: of course his eyes look bigger and softer when he needs wkx to go along with what he’s asking, of course he looks taller and stronger when chengling is looking to him for guidance, of course he seems visibly sick when yby is examining him.
and i just think. what if there’s a moment. post-canon, everyone lives, etc etc, where hy and wkx are looking at him and zzs nearly breaks down because he can’t be what both of them want at the same time, he can’t be hy’s zhuangzhu and wkx’s a-xu at once, and the idea of of just being himself is genuinely terrifying for him. when was the last time he did it? does he even know how anymore? and wkx and hy are also having a Time because they didn’t realize that zzs compulsively, automatically tries to shift to match what they want from him, and they all know that they love each other truly but. that there’s always been this level of performance from zzs is painful.
#i saw an old tweet about how zzs no longer knows who he is after 20 years of being other people#and i had a meltdown#enjoy#hwz thought of the day#hanwenzhou#this is tyk vibes i think with zzs's identity crisis#but like. i don't think it's UNTRUE in shl#i think the difference is somewhat that in shl he's reclaiming an identity he abandoned#whereas in tyk he's discovering an identity he never actually let himself be before
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I know that at this point the release of the third novel is practically around the corner (and I know I'm also very late to talk about this) so there's really no need to post about it. But I haven't seen anyone commenting on this on Tumblr before, which is kind of surprising, I'm not going to lie. (And I checked the tags and I used the search bar, I didn't find a soul who posted this before. Either that, or they posted it and I didn't see it (words/tag filters working maybe))
Anyway.
SO,for those who are excited for the new book and didn't already know this (either because you don't use Twitter, haven't seen this here on Tumblr before or are behind on the news) a new extended preview for Bendy: Fade to Black was released a while ago!
The first preview had already been shared here back in June, and it only had the first chapter of the book + the first page of the second chapter. This extended preview has the prologue of the book, chapter 1 and more extra pages for chapter 2 (I don't think it's the entire chapter,tho)
(Also, the book has 33 chapters in total. Nice)
Again,I know it's too late to be able to talk about this at this point (I got busy in September and was prevented from talking about it before), especially since this book is coming out like. This week lol. There's not much point to talk about this now. But repeating myself, I didn't see anyone commenting about this here on Tumblr. I checked the tags and used the search bar, and nope, nobody. Which is surprising considering the other official (I think?) things people decided to share here. And hey, maybe there really is someone out there who doesn't know that this preview hasn't been released (because I'm sure at this point some of you reading this will have already seen this preview before I posted it here) so consider this post as a helping hand/a reminder perhaps.
And just so this isn't just *a* post sharing the preview, here's a reminder for everyone to remember to tag your spoilers if you're going to talk about the new book! And for those who won't be able to read this book anytime soon (Me), remember to mute/block tags and words so as not to be spoiled! I have to definitely do that after posting this.
But yeah, that's all, have a good night everybody! (or day, whatever time you are reading this)
#bendy and the ink machine#batim#bendy and the dark revival#batdr#bendy: fade to black#bendy ftb#but yeah it's interesting#the cover of the DCTL graphic novel was shared here#that tweet from theMeatly talking about fangames was shared here#and his other tweet talking about the canonicity (??) of the books was shared just last week#coincidentally I saw someone talking about it 2 or 3 days ago while I was writing this#but the new preview of the new book#which is practically Bendy's Next “Big” Thing for this year#no one decided to comment here#That's why I was surprised#one would think that; considering one information given on one of the prologue pages; some people would like to debate about the new previe#I guess I was wrong.#But yeah;“Kismet Production” huh;I can't wait to see what kind of misadventures will happen in this place#Excited for the book#A shame that my copy will take a while to arrive :..)#bendy: fade to black spoilers#bendy spoilers#just putting these here as a precaution#crookedsmile open his mouth
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Okay first of all i remember a couple years ago when a twitter thread was going around about artists that made really fucked up paintings and were huge horror iconography and everyone was sharing their favorite horror artists like goya and when i was scrolling through replies someone linked (?) to a thread where someone painted these detailed pieces but there was always at least one person looking directly at the viewer. like the concept was so fucking scary to me that i forgot to bookmark/like the tweet and i lost that thread forever and i really want to know who the artist was
#yelling into the abyss like HELLO! HELLO PLEASE! HELP ME PLEASE !#i wish i could draw or show a rendition of the one i'm thinking of#it's like yellows and orangey reds as the background/central colors#it's three(?) people in a conversation set around a table maybe. they're close together. the painting is stylized (they all are#on various levels) and the two others have their eyes sort of closed and they're talking close with each other#the one man has a top hat on maybe. he's got the classic black and white suit on. and he's staring straight forward at the viewer#it's so WEIRD and eerie#like on first glance the pieces didn't affect me that much#but there was so many tweets in that thread it was just art piece after piece#of feeling stared at . i think there was one with just faces and everyone was looking at you#it was so. anyway!#i'm so mad at myself for not saving that thread and with the nature of twitter in general#it's probably gone forever. i searched literally the day after i saw the thread for it and couldn't find it#very sad about this#it would be really funny though if i imagined this whole thing. like that's not real at all and it's just a figment of my imagination#but it is real i know it is. because the thread had so many notes. i just didn't SAVE IT HRHRHGJNGCNJ
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yet more strangely vivid dreams i had the other day (yesterday and the day before), this time it's a twofer
#i'll start off with dream 1#as per usual i can only conjure up the most vivid aspects of them#the most prominent element of this dream was some andrew tate-esque 'alpha male' influencer making a dumb tweet (par for the course)#the tweet in question was a qrt of a person making instant ramen that had a lot of ingredient packets (the more packets the better imo)#and the qrt was some transphobic slop along the lines of 'if you're a man and eat shit like this you might as well get a sex change'#however the comment section in OP's post wasn't going the way he wanted it to and tons of trans people were making memes and jokes out of it#the qrts of OP's post were hilarious#one of the most popular ones was of a transfem making a post of how she ate a lot of ramen as a kid and it made her trans#by the end of the day ramen was considered the unofficial 'trans' dish#funnily enough i ate a shitton of top ramen (among other brands) as a kid and look where i'm at now! i'm genderfluid and nonbinary...#and now for dream 2!#in this dream i was at my old high school (the one i attended before switching to online school) but the exterior was way different#it was a reddish-brown brick exterior similiar to the k-8 i went to before going to that high school (but not entirely the same)#my hair was super long; it was about rear length#i was also more androgynous looking#the outfit i wore was all black with my favorite docs; weirdly enough i wasn't wearing a spiked choker this time#you know i couldn't forget my eyeliner though!#i was meandering through the hallways since the ten-minute bell before first period rung#i saw a short girl with dark brunette hair in a low ponytail who had the cutest bat wing tattoo on her upper back#i complimented her tattoo but i don't think she heard me#as everyone went to class i was still wondering where the hell to go#i finally made it to the office (which had a see-through door) to pick up my schedule#that's all i could remember before that dream ended#what's cookin' in hell's kitchen?#adventures within my amygdala
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Kind of makes me sick that they skipped any new Styles this past week just so they could do a stream this upcoming week to announce more Stage collab Styles. All this as a way to skip White Day.
I'm looking forward to a new Bert Style, but that's all. And really, we could have had Bert for White Day. So there's that bullshit.
#they could have been done with the stage stuff this week#they are not fooling anyone#anyone who cares i should say!#i saw a tweet from 2021 i think talking about the only white day banner they did#and it sounds like dudes were horrible about it? so that's probably part of why they won't bring it back#which is ridiculous because they didn't even openly call it white day on the banner#but they're very loud and proud about valentine's#and other games are unafraid to use the term white day#even megido has a white day banner#and last cloudia had the sense to celebrate valentines with a female character and an all male arc#so what is saga's issue??? even imsaga ec had a small banner#like come the fuck on#maybe i'll actually be in chat this time so i can harass them over white day lmao
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man i'm so smart
#''huh why is this random account showing up on my twitter for you page what's the deal''#*20 seconds to 5 days later* ''.....oh wait''#first hiraga now han byeol. i'm a genius#at least with hiraga's acct it was a voice tweet so i figured it out immediately#for han byeol twitter said a friend of mine followed him so i didn't really think about it til i saw some not-tsb fanart just now#this is about vtubers don't worry about it#rpr was even posting tweets with 2 other guys for like a week!!! i'm so dumb!! i know they're friends whyyy#did it take me so long to figure it out??????#.....anyway i need to get back to work
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know someone who enjoys horror stories? share this one! it's true!
hahahahahahahahahaha aarrggghhhhhhhhhh 3,000,000 deaths due to COVID-19 last year. Globally. Three million. Case rates higher than 90% of the rest of the pandemic. The reason people are still worried about COVID is because it has a way of quietly fucking up your body. And the risk is cumulative.
I'm going to say that again: the risk is cumulative.
It's not just that a lot of people get bad long-term effects from it. One in seven or so? Enough that it's kind of the Russian Roulette of diseases. It's also that the more times you get it, the higher that risk becomes. Like if each time you survived Russian Roulette, the empty chamber was removed from the gun entirely. The worst part is that, psychologically, we have the absolute opposite reaction. If we survive something with no ill effects, we assume it's pretty safe. It is really, really hard to override that sense of, "Ok, well, I got it and now I probably have a lot of immunity and also it wasn't that bad." It is not a respiratory disease. Airborne, yes. Respiratory disease, no: not a cold, not a flu, not RSV.
Like measles (or maybe chickenpox?), it starts with respiratory symptoms. And then it moves to other parts of your body. It seems to target the lungs, the digestive system, the heart, and the brain the most.
It also hits the immune system really hard - a lot of people are suddenly more susceptible to completely unrelated viruses. People get brain fog, migraines, forget things they used to know.
(I really, really hate that it can cross the blood-brain barrier. NOTHING SHOULD EVER CROSS THE BLOOD-BRAIN BARRIER IT IS THERE FOR A REASON.) Anecdotal examples of this shit are horrifying. I've seen people talk about coworkers who've had COVID five or more times, and now their work... just often doesn't make sense? They send emails that say things like, "Sorry, I didn't mean Los Angeles, I meant Los Angeles."
Or they insist they've never heard of some project that they were actually in charge of a year or two before.
Or their work is just kind of falling apart, and they don't seem to be aware of it.
People talk about how they don't want to get the person in trouble, so their team just works around it. Or they describe neighbors and relatives who had COVID repeatedly, were nearly hospitalized, talked about how incredibly sick they felt at the time... and now swear they've only had it once and it wasn't bad, they barely even noticed it.
(As someone who lived with severe dissociation for most of my life, this is a genuinely terrifying idea to me. I've already spent my whole life being like, "but what if I told them that already? but what if I did do that? what if that did happen to me and I just don't remember?") One of its known effects in the brain is to increase impulsivity and risk-taking, which is real fucking convenient honestly. What a fantastic fucking mutation. So happy for it on that one. Yes, please make it seem less important to wear a mask and get vaccinated. I'm not screaming internally at all now.
I saw a tweet from someone last year whose family hadn't had COVID yet, who were still masking in public, including school.
She said that her son was no kind of an athlete. Solidly bottom middle of the pack in gym.
And suddenly, this year, he was absolutely blowing past all the other kids who had to run the mile. He wasn't running any faster. His times weren't fantastic or anything. It's just that the rest of the kids were worse than him now. For some reason. I think about that a lot. (Like my incredibly active six-year-old getting a cold, and suddenly developing post-viral asthma that looked like pneumonia.
He went back to school the day before yesterday, after being home for a month and using preventative inhalers for almost week.
He told me that it was GREAT - except that he couldn't run as much at recess, because he immediately got really tired. Like how I went outside with him to do some yard work and felt like my body couldn't figure out how to increase breathing and heart rate.
I wasn't physically out of breath, but I felt like I was out of breath. That COVID feeling people describe, of "I'm not getting enough air." Except that I didn't have that problem when I had COVID.) Some people don't observe any long (or medium) term side effects after they have it.
But researchers have found viral reservoirs of COVID-19 in everyone they've studied who had it.
It just seems to hang out, dormant, for... well, longer than we've had an opportunity to observe it, so far.
(I definitely watched that literal horror movie. I think that's an entire genre. The alien dormant under ice in the Arctic.)
(oh hey I don't like that either!!!!!!!!!) All of which is to explain why we should still care about avoiding it, and how it manages to still cause excess deaths. Measuring excess deaths has been a standard tool in public health for a long time.
We know how many people usually die from all different causes, every year. So we can tell if, for example, deaths from heart disease have gone way up in the past three years, and look for reasons. Those are excess deaths: deaths that, four years ago, would not have happened. During the pandemic, excess death rates have been a really important tool. For all sorts of reasons. Like, sometimes people die from COVID without ever getting tested, and the official cause is listed as something else because nobody knows they had COVID. But also, people are dying from cardiovascular illness much younger now.
People are having strokes and heart attacks younger, and more often, than they did before the pandemic started. COVID causes a lot of problems. And some of those problems kill people. And some of them make it easier for other things to kill us. Lung damage from COVID leading to lungs collapsing, or to pneumonia, or to a pulmonary embolism, for example. The Economist built a machine-learning model with a 95% confidence interval that gauges excess death statistics around the world, to tell them what the true toll of the ongoing COVID pandemic has been so far.
Total excess deaths globally in 2023: Three million.
3,000,000.
Official COVID-19 deaths globally so far: Seven million. 7,000,000. Total excess deaths during COVID so far: Thirty-five point two million. 35,200,000.
Five times as many.
That's bad. I don't like that at all. I'm glad last year was less than a tenth of that. I'm not particularly confident about that continuing, though, because last year we started a period of really high COVID transmission. Case rates higher than 90% of the rest of the pandemic. Here's their data, and charts you can play with, and links to detailed information on how they did all of this:
Here's a non-paywalled link to it:
https://archive.vn/2024.01.26-012536/https://www.economist.com/graphic-detail/coronavirus-excess-deaths-estimates
Oh: here's a link to where you can buy comfy, effective N95 masks in all sizes:
Those ones are about a buck each after shipping - about $30 for a box of 30. They also have sample packs for a dollar, so you can try a couple of different sizes and styles.
You can wear an N95 mask for about 40 total hours before the effectiveness really drops, so that's like a dollar for a week of wear.
They're also family-owned and have cat-shaped masks and I really love them. These ones are cuter and in a much wider range of colors, prints, and styles, but they're also more expensive; they range from $1.80 to $3 for a mask. ($18-$30 for a box of ten.)
#covid isn't over#covid 19#disability rights#disability advocacy#wear a mask#covid conscious#covid cautious#mask up#wall of words#public health#health care
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is it too late to say that i genuinely feel bad for dream
#like his song was a joke and idc that peopled clowned on it so hard bc it sucked#but people were so cruel about his physical appearance + a lot of the jokes abt/towards him morphed into like geuine vitrilol and hatred#i think he cheated in minecraft? maybe?? but other than that. all hes done is release bad music and have average looks#i see so much genuinely mean stuff about him and directed towards him and its like#maybe we should call it a day#i saw people tweeting a vid of him crying making fun of him for it like bro#hes still a human he still has feelings and emotions 😭😭#poor dude#i literally know nothing abt him tho so if hes done smthn worse that fake a speedrun or whatever i dont know#even then tho i am very much a. u shouldnt make fun of someone’s appearance even if they’re evil believer
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