#that one of MCA

[mcforwhatiam]

Beastie Boys in Snoozer magazine, 2004.

📸 Yuri Manabe

Posted by beastie freak freak on Instagram

[thebibliosphere]

Still not over the head of cardiology, who said she wouldn't formally diagnose me with dysautonomia because she didn't want me to think of myself as disabled.

As if good vibes and a can-do attitude can stabalize autonomic dysfunction.

[operationslipperypuppet]

Informing non-Americans about the horrors that are standardized tests has been so funny today. Truly junior year of American high schools is such a horrible time. FHJY will not be about a mythical style villain, it’ll be about the horrors of being 17 and being forced to make decisions about the rest of your life

[mellosakicc]

666 set

this is my 666th post. so here's a cc pack full of blasphemy to celebrate because i am very kitsch.

i swear, the 6 items was not intended.

incl. 2 shirts, 1 turtleneck, 1 bralette, 1 pair of jeans, and 1 pair of tights. it is a special occasion so i tried to tie them all together and to give them a lot of swatches where i could. individual item previews below cut. info for all:

base game compatible

m&f - teen thru elder (yeah, all unisex!)

enabled for random

custom cas thumbnail

download (simfileshare) | download (patreon - free)

coffin bralette

m&f but just did an f preview, coffin shaped and decorate with pentagrams tied into the ribbons around the bottom.

relaxed fit print jeans

6 different designs with 4 color variants for each incl. white, black, light, and darker blue, in total 24 swatches. some were preexisting items some are original arrangements!

wicked clothes tees

from the aforementioned clothing brand. mainly the satanic or silly little metal designs.

deadly turtleneck

based off of an image from painkiller clothing which i believe is an artisan business of handmade goods. the original item was the "deadly harness" but i loved how the turtleneck underneath looked with the harness so i combined it.

satanic temple tees

the most religious my page will get. hail!

tighter than tight tights

every time i make some, the name will get worse to balance to stupid amount of love they get. /pos

7 swatches with fishnets, 3 with regular old semi-transparent black tights. again some pre-existing designs and some original.

[kirby-the-gorb]

we are about an hour into rare disease day in my timezone! (it's always the last day of february, whether that's the 28th or the 29th.) the true prevalence of mast cell disorders is unknown, as they are often misdiagnosed or ignored. and mast cell activation syndrome, the most prevalent kind of mast cell disorder, only had diagnostic criteria laid out for the first time in 2010. so whether or not it's truly rare is really up in the air!

(personally I suspect it is just aggressively underdiagnosed but I'm not a research scientist or diagnostician right now. and even if it is rare, it's gonna be a lot less so than it was 5 years ago as certain respiratory infections are known to trigger it into visibility. that's what happened to me when I got mono at the end of 2015, further compounded when I got covid in 2022.)

all chronically ill people face a lot of hurdles when it comes to seeking diagnosis, accommodation, and treatment (all of which can be severely complicated by any intersecting marginalities), but rare diseases present a special challenge.

for example, I have an immune disorder. my immune system does not like being alive, my mast cells are way too jumpy and throw a tantrum over every little thing. you'd think an immunologist would be the one to treat me, right?

I've had 6 immunology referrals rejected in the past 9 months alone. multiple major immunology clinics in my major city tied to a major research university outright refuse to see patients with "mcas" written anywhere in their chart.

after 8 years of being debilitatingly ill, and suspecting it was immune mediated for 6, and getting it confirmed beyond a shadow of a doubt by the bone marrow biopsy last month, I will have my second ever appointment with an immunologist. another 2 1/2 months from now. the first immunologist lied to me about the reliability of the one available blood test, when I first came up with the hypothesis by myself 6 years ago, and forced me to abandon my (correct!!! now proven!!!) hypothesis for 3 entire years while we wandered around lost and got nowhere other than even more thorough process of elimination.

okay, well if my immune system is attacking me, maybe it's technically autoimmune? that's the rheumatologists instead of the immunologists, what do they have to say? dick all my dude, I don't have rheumatoid arthritis so they just shrug at me and go "idk, fibro? I don't know why you're here" and send me home with nothing. (I literally had a rheumatologist say to me, verbatim, "I don't know why you're here." buddy it's your job to read the chart and decide if I get seen or not, you tell me. at least he had a snazzy outfit.)

being chronically ill can be a terrible struggle no matter what, but a disease that is perceived as rare, accurate or not, adds a whole new layer of bullshit. (and of course there are much much rarer diseases out there, with even more hoops and dead ends and struggles and all-new layers of bullshit that even I don't have to deal with!)

anyway I'm having a shit time and using this awareness day as an excuse to productively bitch about it 👍

[adrockmyforeverdork]

[empty-dream]

It's okay, even if I have to XX everyone other than you I'll come to save you soon ↳ Dead and Seek - Jin ft. IA

[shes-got-a-gold-tooth]

y'all think that they ever explored each other's bodies

[tj-crochets]

Hey y'all! The merry-go-round of doctors* I am on seems to be cycling back around towards an allergist again, and I have a question for y'all because idk how to word this for doctors: How do you word "if it walks like and allergy and quacks like an allergy it's an allergy" to an allergist? Less flippantly, I have allergy symptoms that multiple doctors have said allergies should not be able to cause. Mainly, my first allergy symptom is high blood pressure**, which if left untreated will progress to migraines, stomach issues, and eventually a bad blood pressure crash***. I have been told allergies do not raise blood pressure, but mine is caused by specific foods most of the time and taking a benadryl stops the reaction, so I have no idea what else it could be? But my main food allergy is acetic acid/vinegar, which I have also had multiple doctors tell me it is not possible to be allergic to

*the "you have a problem but not one I can fix try this kind of specialist instead" mobile **130s/80s, not super high, but high for me ***80s/40s

[bitchfitch]

anyways tip for my fellow POTS havers and anyone else who has trouble getting their bodies to absorb enough water:

Salt pills. They're the same basic stuff as electrolyte powder but dont require you to chug an entire bottle of water before they start working (like obviously you still need water with them, you just get the volume of electrolyte Before the waters gone instead of over the course of drinking it.) and I've had a much easier time with taking them before bed/not waking up turbo dehydrated, because they seem to have a longer effective period.

like super turbo not recommended for anyone with high sodium but I've been using them for a few weeks and it's been a night and day difference in the severity of my symptoms, mostly bc they've been a Fraction of the price. a 10ct box of liquid IV is 16$, a 1.60$ per dose, while the salt pills are 22$ for a 100 pill bottle, 44¢ a dose.

[ebonyheartnet]

Me: Did I take my meds this morning?

Me:

Me: Can’t risk a double dose, so we’ll find out.

-time for nightly dose-

Me: *braces forearms on thighs*

Thighs & forearms: *looks like someone beat me, the dermatographia is so bad*

Me: Ah, I did not.

[mcforwhatiam]

Photos from Rockin'on magazine, Sept '98 and Nov '98 issues

Not sure of photographers

(Scans via Pop Catastrophe on Instagram)

[thebibliosphere]

Huh. I think I can eat Walkers gluten-free shortbread again.

[soupy-sez]

Beastie Boys Much Music Rap City 1992 Interview [X]

[mellosakicc]

pop rock tees

for @sakumafangs.

base game compatible

m&f - teen thru elder

enabled for random

custom cas thumbnail

download (simfileshare) | download (patreon - free)

[kirby-the-gorb]