#psychotic aac user

[foxy-aac]

Text :

What a limitation of AAC you wish was "fixed"?

Wish AAC help with brain scramble, sometimes hard for use when can't put sentence right... is why prefer low tech and phrase buttons instead build sentence

DNI anti-endo/sysmeds, radqueer/transID, queerphobes, ableism, saneism, hostility

[thecouncil-aac]

Anything I'm missing?

[aetherial-boy]

people on discord be normal about people who type and talk ‘weird’ challenge (impossible edition)

[chrome-barkz-aac]

new and improved autism card to clip onto my aac! it’s mounted on craft foam and has a reminder for my morning and night routines! i’m gonna cover it in packing tape and be able to cross off what i’ve done for the day in dry erase marker!!!

i much prefer this version, i think it’ll be more sturdy too. i also like the psychosis / schizospec symbol bc that’s equally important to me as my autism .

no spoons for id right now i’ll try my best to get back to it asap 💚

EDIT:

image id: two photos of the front and back of a foam card with a hole punched in the top. the front has mackenzie from bluey on it and it reads "Hi! i have autism and i use this iPad to communicate. please be patient with me. thank you!" on the back is a box with a morning and night routine, another box that says My name is (redacted). in an emergency or with my permission call (phone numbers) and a final box that says i can hear and understand you - i just cant talk. end id.

[vixyz-aac-hoard]

Hallucination Set

In order..

1. Internal Audio Hallucination

2. External Audio Hallucination

3. Visual Hallucination

4. Taste/Gustatory Hallucination

5. Smell/Olfactory Hallucination

6. Tactile Hallucination

7. Somatic Hallucination

[thecouncil-aac]

<3

Council use AAC for psychosis symptoms (cognitive decline associated with disjointed/disorganized thoughts/speech, ect)

We are also autistic, but is not reason for use AAC, unlike many many in community

Some times feel... strange? Not the fault of other in community, just slight lonely? Because not share same experience :

New AAC user, not lifelong

Psychosis, not autism

Support needs unknown

Episodic instead 24/7

Appreciate positivity post <3

Know online aac community strongly dominated (is this right word?) by those who use for reason related autism, like us.

So, shout-out and much love to the aac users who use aac for reason unrelated to autism. Who maybe feel left out in many conversation about aac.

For those with other disabilities that affect speech. And for those who use for other reasons. Hope voices are heard in aac community.

[foxy-aac]

Foxy AAC case supposed come today, excited

Foxy mother brought Foxy her tablet for use for AAC - she not use it and give to Foxy

Foxy use phone for AAC with her during dinner, was happy not judge Foxy

Usually 50/50 whether Foxy mother accept Foxy disability or judge Foxy for it, was very happy was accept Foxy

Still need finish set up tablet, but happy

Hopes case do well, can bring-use easier

Foxy mother know Foxy psychotic, is why need speak help

Grateful she trying to accommodate, even if not always do right

Text :

DNI anti-endo/sysmeds, radqueer/transID, queerphobes, ableism, saneism, hostility

[thecouncil-aac]

If anyone is willing and able to spare a few dollars, we're fundraising to buy the lifetime membership for Coughdrop AAC (one-time purchase of 295 $USD)

We're currently an unemployed student whose disabilities make it difficult to earn much income -> currently, most of our funds go towards medication, appointments, and food

We plan to host a livestream "donathon" in which we'll draw a little doodle for every person who donates during the livestream, but we don't know exactly when that'll be...

Please don't feel pressured to donate if you're not in a place to safely do so! Times are tough, and there's nothing wrong with prioritizing your health and well-being <3

If you can though, our Ko-fi is

[chrome-barkz-aac]

alright this one is for my psychotic spec AAC users:

are yall ever able to perfectly coherently talk with mouth words to your hallucinations during a speech loss episode?

i’ll be barely able to put coherent sentences together when talking to other people but i’ll be able to have complex conversations with my hallucinations

for example

me in walmart: two word answers and requests

me on the way home to the hallucination of my boyfriend: yeah so mushrooms seem expensive but a pound of mushrooms is actually a lot of mushrooms so it’s cheaper than you think and therefore makes a great meat substitute

this isn’t all the time but it is definitely some of the time

[thecouncil-aac]

😔

Cognitive decline is fucking terrifying

And there's nothing we can really do about it

We're working on incorporating AAC into our life to compensate for the communication difficulties, but that doesn't help with our disjointed/disorganized thoughts and ability to think and reason and...

And we're scared to find out how far it'll go, especially because we don't know what's causing our psychosis...

Man, how come no one's doing anything about the cognitive symptoms of schizophrenia... its all just: psychosis, psychosis, psychosis. I want to function thank you. Psychosis for me is not the worst part (probably because of my antipsychotics) but yeah I want the equivalent of adhd medication but for the cognitive symptoms of schizophrenia.

[cripplecharacters]

Mods

[large text: Mods]

Sasza

[Large Text: Sasza]

Hey! My name is Sasza and I use he/him pronouns. I am a disabled artist who loves to write and draw characters like me. I am autistic, (mildly) intellectually disabled and have several physical conditions including dyspraxia, severe hyperkyphosis, cranial nerve diseases (causing double vision, chronic pain and a facial difference among other things), and HSD. Sometimes I use a cane. I'm very passionate about accessibility and disability representation in all kinds of media - books, comics, video games, and any other kind of art that's out there.

Bert

[Large Text: Bert]

Hello! I'm Bert (previously Mason), and I use he/they pronouns. I am a writer who loves to write plays and fiction with characters like me and my friends. I am autistic and have ADHD, I have psychotic PTSD and a DID system. Physical health-wise I have migraines, fibromyalgia, and a lateral lisp. I love talking about representation and ways we can make a kinder and more inclusive space everywhere we go.

Sparrow

[large text: Sparrow]

Hi, I’m sparrow, they/he for me. I’m a disabled artist who makes a lot of disabled characters like myself and probably like a quarter of the world. I have autism and ADHD, among other brain things, as well as chronic pain in both my jaw and my knee and ankle. I also have POTS and some sort of sleep disorder. I am a sometimes cane user as well. I really enjoy research and thoughtful art that makes people feel seen. Aside from that, I am a huge fan of historical fiction and really enjoy fantasy as well.

Rot

[Large text: Rot]

My name is Rot, I use all pronouns including neo pronouns as well as any rot and insect themed nounself pronouns. I’m an artist who loves putting disability in my stories. I’m mostly undiagnosed due to medical neglect and have chronic fatigue, hypersomnia & chronic pain that ranges from mild to debilitating. My known disabilities are pots, ganglion cysts, nerve damage, autism (level unknown), asthma, GERD, anxiety and psychosis. I have a metal implant, use a cane and am mostly verbal and use aac infrequently. I have experience with temporary palsy, needing carers (family members who stepped up, not hired carers) and being in a wheelchair, though I currently don't have any of those.

Virus

[Large Text: Virus]

Hello! I go by Virus and I use She/Her but anyone can use any pronouns for me, have fun with it. I'm a writer—mostly fanfiction—who has been in fandom very long and used to be a classical musician. I have Hypermobile Ehler Danlos Syndrome along with it's fun co-morbidities (MCAS, POTS, Gastroparesis, Fibromyalgia, and Von Willebrandes). I also have Pan-Hypopituitarism which is the following: Adrenal Insufficiency, Hypothyroidism, Diabetes Insipidus, Precocious Puberty, Growth Hormone Deficiency, Hyperprolactinemia/galactorrhea, as well as High Estrogen and Testosterone issues. I have Pituitary Dwarfism/Proportional Dwarfism, Myoclonic Epilepsy, and a Speech Disorder. I used to have a Port-a-cath, Picc-Lines, and a feeding tube, amongst many other things. Phew, now that that's over. I love every art form with a favour towards music, writing and the fiber arts. I love seeing representation no matter how big or small especially in medias that rep is often glossed over!

Rock

[Large Text: Rock]

Hi! I am Rock; any pronouns are okay. I am a writer, mainly of sci-fi and fantasy, and I love adding all sorts of disabled characters. I am hard of hearing (mild-moderate bilateral hearing loss) and have profound auditory processing disorder. I have scoliosis, POTS, and lower-body muscle weakness so I am a full-time mobility aid user. I am also intersex; I have several hormone deficiencies among other conditions as a result of my intersex variation. I am excited to join the mod team!

Aaron

[Large Text: Aaron]

Hey, I'm Aaron, he/him. I'm a writer of fantasy, science fiction, dystopia, utopia, and historical, and I like writing incorporating casts of disabled characters into all of them and reworking magic, technology, and science to accommodate them. I have a TBI, a lot wrong with my speech, cognitive issues, slight developmental disability, myofascial pain syndrome, medium support needs autistic but fully verbal, OCD, multiple types of anxiety, PTSD, depression, severe ADHD, dyslexia, dysgraphia, articulatory initiation anomia, medically significant migraines, a chronic headache, chronic pain, and chronic fatigue. I'm also visibly disabled (one of those people who looks autistic) and transmasc. And I can't wait to see what amazing things you guys come u with.

Zohar

[Large Text: Zohar]

Hello everyone! I'm a new mod, and you can call me Zohar. I'm a writer of fantasy and sci-fi for the most part, and definitely prioritize disability, LGBT, and Indigenous representation in my work. I am Blind with a form of Albinism/strabismus/ptosis, along with some hearing loss. I am intersex/transgender with mixed gonadal dysgenesis (XO/XY Turner Syndrome) that goes hand in hand with GHD/pituitary dwarfism and affects my skeletal and hormonal health. I also have POTS and complex DID caused by RAMCOA and am comfortable answering asks about that. He or She pronouns is fine with me. I can't wait to help out here!

Icarus

[Large Text: Icarus]

Hello all! My name is Icarus (He/Him). I'm a new mod here and a writer of original work (Primarily contemporary short fiction and cosmic horror) with some fanfiction on the side. I have been diagnosed with ADHD, autism, PTSD, Tourette's Syndrome along with several other mental and physical health conditions. I also had epilepsy, asthma, and a heart condition as a child but have since grown out of them. I am currently seeking a diagnosis for something causing a few different symptoms including chronic pain, mobility issues, sensitivity in my joints/bones, progressive vision loss (Currently to the point where I have very little to no peripheral vision), and dizziness/fainting episodes. I am a full time cane user at the advice of my physio. I am also a gay trans man and in full-time university studies.

Jess

[Large text: Jess]

Hey y'all! I'm Jess, and I use she/her. I'm 35, and I work full time behind the scenes in the grocery industry (in an office, designing shelf layouts!). I enjoy writing and reading slice-of-life stories mostly. I especially like exploring how certain magical elements can be parallels for disability. I also do art, including some 3D illusion chalk art. As for my disabilities: I have multiple sclerosis, and a few issues that have come from that, including severe permanent damage from optic neuritis. I was briefly 100% blind in my left eye, but a small amount of vision returned. The residual vision causes some hard-to-describe double vision, so I wear a completely opaque occlusive contact lens on my bad eye to help me see more clearly. I also had a period of time when I suffered from paroxysmal kinesigenic dyskinesia, a rare movement disorder. I also have a body-focused repetitive behavior disorder (dermatillomania) and visible scars from that. I'm looking forward to being helpful!

[foxy-aac]

Foxy psychiatry appointment 1 hour

Foxy... mixed emotions

Fox tired

So so tired

New medicine make sleep harder, plus chronic insomnia?

But new medicine finally start help psychosis symptoms

Mostly

Not sure how/what tell psychiatrist

List everything, course

But not sure what plan be best

Foxy just want sleep well and not be scared fake reality

Text :

DNI anti-endo/sysmeds, radqueer/transID, queerphobes, ableism, saneism, hostility

[thecouncil-aac]

Hello, welcome to The Council's AAC-oriented sideblog! We're a plural system (main blog is @thecouncilofidiots) who uses plural they/it pronouns and are 21+

We are semi-verbal due to language/speaking skill regression caused by a (currently unknown) psychotic disorder. We have disjointed/disorganized speech/thoughts, as well as speech loss episodes. We are autistic, which influences our speech capabilities, but isn't significantly impactful. However, we do have selective mutism due to chronic anxiety (managed by anti-anxiety medication), and non-vox alters

We're working on learning/using AAC to help us communicate

AAC means augmentative and alternative communication, and is any method of communication that doesn't rely on spoken word

When we are experiencing disorganized/disjointed thoughts/speech due to psychosis, our typing often reflects it (for example "Council feel cold, think need get more blanket"). It's not a typing quirk, or something that we can translate, so please be patient with us

Important note : due to our conditions/disorders, we cannot add our own image IDs to our posts. However, we will happily reblog/add image IDs if others are willing make them; it is not apathy for accessibility, but rather, a case of incompatible disabilities

Feel free to join our AAC Community

Or the Discord server!

Meet the Support Team!

Trying save for Coughdrop Lifetime Membership

((BYI, we are explicitly 100% safe for systems of any/all origin, level of functionality/disorder, ect - plurality is an umbrella term and spectrum <3))

Explicitly Endo-Safe Emoji Blogs -> x

Vox Coining Post -> x

Symbol Collections :

Open Symbols -> x

AACIL -> x

Global Symbols -> x

Irasutoya -> x

[crippy-tangerine]

Account Introduction!!

♡

-> This part above the cut is a TLDR for users who can’t do longer reading. More information is below the cut 🩶.

♡

TLDR: This is a side blog for @tangerine-segments. We are an autistic dissociative system. Queer + transsexual creature-thing. He/him, it/its, they/them pronouns. Physically disabled + insane. We yap a lot. All mentally ill people welcome here (provided you do not take pride in any harm you do- harm reduction & recovery where possible is good 👍). No DNI, but proudly bigoted/discriminatory blogs will get blocked 🙂‍↕️. Oke that’s the end of the TLDR!

♡

-> Below the cut here is the extra & more detailed intro… Heayyyyy….. ���️.

Omg heayyyy…. Hello! We are Grove. We are the dissociative system behind this account 🤭. Nice to have you here 🫰.

-> Our main blog is @tangerine-segments, which is our system account. It’s also where we have a longer list of our sub-blogs. Most of us will post on this blog at some point, but it’s unlikely we will specify who wrote what.

-> We are autistic + have comorbid neurodevelopmental disabilities. We have a lot of mental illness diagnoses + several diagnosed physical disabilities. Psychotic, dissociative, generally Strange. Brain-body does not work well!

-> Bodily an adult (+ most of us are around body-age). So minors & minor-bodied entities please bear that in mind! However. This is not a NSFW blog, so it is fine for minors + minor-bodied systems to interact. We do swear in posts sometimes though, and often forget to tag warnings for that. If that is an issue please block us or whatever you need to do 🙂‍↕️ /genuine.

-> Queer freak entity!! We exist in a transsexual body & our host(s) are transsexual men 😗. We all identify with slightly different queer identities- but overall we consider ourselves transsexual, aroace-spec + gay/mlm. Queer is the word we use most because it covers everything nicely 🙂‍↕️. Uninterested in “discourse” about queerness; identity-policing is not something we will do.

-> Not prosocial (as in we don’t have prosocial emotions like empathy)- but we still do our best to act kindly & behave compassionately. However we often lack the patience/ability to have a back-and-forth conversation. So we will not look at private messages or respond very much in comments. That does not mean we dislike you personally!! We just can’t manage much human interaction because autism + ASPD + the rest hahah. Fellow ASPD-ers are welcome here of course, as are all other personality-disordered & behaviour-disordered folks.

-> We use AAC for all communication (our phone or basic signs). We need mobility aids to get about- and use a wheelchair to get around mostly. So we are visibly disabled + talk about that on here! Medium-high, complex support needs. So please be patient with us 😌.

-> We struggle organising thoughts/words/feelings. We will probably mess up words or phrases even though we edit things multiple times before posting. If we say anything that you cannot understand, or we say something insensitive, please tell us directly!! We will explain and/or correct it. We want this blog to be accessible + safe for marginalised folks. But we will likely mess up sometimes. So if we reblog something that’s gross, or do an image description wrong, or forget an accessibility thing, or say something uneducated- please say!! Please work on assumption that we did not realise and did not intend harm. We welcome constructive feedback + help understanding things 💖 /serious.

-> We have a lot of difficulty processing new information, learning new topics, and have memory problems. Which means we don’t really feel able enough to speak on things we don’t have personal experiences with. So we will do our best just to share information from the folks who know more than us. If we misunderstand something please be patient, we just have a brain that doesn’t work in an abled way 😵‍💫.

-> No DNI- but we will block any blog that promotes bigotry/discrimination and has no intent to change that. We simply do not have the energy or ability to engage.

-> Okay that’s probably all for now! We have had this in drafts for months and keep forgetting about it. Posting as it is so there’s at least something pinned… Hope you enjoy our silly thoughts if you wish to stay a while 🥳. Bye!!

[aaazzie]

hey guys quick question. at what point do physically abled people think ableism isn’t okay?

i have FND (which causes me to have PNES), fibromyalgia, psychotic depression, and I’m an ambulatory wheelchair and cane user. I’m also autistic and have ADHD. people will belittle me for using my wheelchair because i don’t have anything wrong with my legs when you look at them. people will say, “oh, you *can* talk, why won’t you?” when I’m in a seizure or when I’m physically unable to talk. people outside of my immediate family, and sometimes even them, are never understanding when i express the accommodations I need to properly learn and grow and thrive. I’ve been told by so many doctors that it’s just my subconscious’ way of getting attention.

my brother is fully disabled. he has a mutation on his FOXG1 gene that causes him to be completely unable to care for himself— he can’t walk, can’t talk, he’s tube-fed, he has an AAC, the whole deal. he has nurses, PCAs, constant one-on-one support, everything that he needs to help him. I’ve never, in my entire life, seen someone be rude or ableist towards him, which is awesome, don’t get me wrong!

I’m just very confused as to why people are ableist towards me, when they choose to be respectful to him. i literally cannot wrap my head around why they’re nice to my brother and not me.

sorry for the long rant post. td;lr if you’re respectful to one disabled person be respectful to all disabled people

[five-thousand-loaves-of-bread]

oh also, once a interaction with a psychiatrist:

me: so i’ve been diagnosed with bipolar type TWO, never had mania with psychotic break features, actually never was psychotic at all(*), also i haven’t had hypo/mania in literal years

psychiatrist: okay so i’m going to prescribe you a very strong antipsychotic med

me: what the. fuck

*which i later realize is not entirely true because realize actually low grade psychotic esp delusions entire life almost like developmental but for all intent and purposes what i said was not far off

i mean this is also the practice (idk if same psychiatrist but all of people there are fucking incompetent anyway i saw 3 psychiatrists from there) that… fucking fired me as a client because the psychiatrist who worked w me for 1 years can’t wrap her big brain around why i nonverbal and how it’s not anxiety and how i go around day communicate if i don’t speak??? essentially fired me for being a nonverbal AAC user 🤷 also because my neuropsych person ghosted me never gave me the results for half a year (now a year and counting) and when she asked for me to sign release form so she can reach out to neuropsych person i told her no everyone in my life have been trying for MONTHS left email text voice mail (voice mail fucking full) all with no response so lady you won’t be any different and she couldn’t wrap her head around why tf i said no and also why tf i am not comfortable releasing info to her anyway after she reacted bad to nonverbal AAC so she also fired me essentially as retaliation guised as “clearly we not compatible”

like where did you all go to med school where did you all get your liscence how tf are you hired