#oromotordysfunction

[emmahastwomoms]

It’s #FeedingTubeAwarenessWeek so here are some reasons Emma got her g-tube. At 2 years old, after a year of feeding and speech therapy her feeding was still not progressing and she was falling into the “failure to thrive” category with her weight. We found that she has an abnormal swallow pattern and her severe sensory processing disorder causes her to not want anything beyond liquid in her mouth. The g-tube has allowed us to give her the nutrients she needs and keep her weight steady ❤️⁣ ⁣ #emmaleimomi #gtube #gtubebaby #gtubeawareness #feedingdisorder #dysphagia #oromotordysfunction #hypotonia #nr2f1 #bbsoas #cvi #ona #onh #sensoryprocessingdisorder #autism #autismspectrumdisorder #raredisease #geneticmutation #shareyourrare #countdowntorarediseaseday #careaboutrare https://www.instagram.com/p/CLDD1F4sAE2/?igshid=1rnua2557g8ua

[emmahastwomoms]

We’ve been quiet about everything going on lately because it was a lot to take in and digest (pun intended). Head over to the blog to see what’s been going on with Emma and what our near future looks like emmahastwomoms.com ⁣ #emmaleimomi #beautiful #emmahastowmoms #linkinbio #newblogpost #newblog #tubieornottubie #tubietoddler #gtube #gtubebaby #gtubetoddler #gettingthemcalories #surgery #nr2f1 #boschboonstraschaafopticatrophysyndrome #sensoryprocessingdisorder #spd #asd #dysphagia #oromotordysfunction #specialneeds #specialneedsmom #specialneedstoddler #twomoms #twomomfamily #lgbtfamily #lgbtspecialneeds https://www.instagram.com/p/B447UmRFDBL/?igshid=ccowh8h6bpjp

[emmahastwomoms]

Rare Disease Day is this Sunday, February 28th!! Emma is one of less than 175 people with her genetic mutation and because of that there are so many unknowns and questions for her future. Spreading the word about her rare disease and all other rare diseases is so important for the future!! She will always by My Why. ⁣ ⁣ @nr2f1foundation @rarediseasedayofficial ⁣ ⁣ #emmaleimomi #mywhy #whyicareaboutrare #rarediseaseday #shareyourrare #careaboutrare #nr2f1 #nr2f1foundation #bbsoas #boschboonstraschaafopticatrophysyndrome #ona #opticnerveatrophy #onh #opticnervehypoplasia #cvi #corticalvisualimpairment #strabismus #hypotonia #developmentaldelay #spd #sensoryprocessingdisorder #asd #autism #oromotordysfunction #whitecane #visuallyimpaired #gtube #specialneeds https://www.instagram.com/p/CLsh-y0sY_b/?igshid=1fx07wqbcjgtl

[emmahastwomoms]

Emma was all smiles because she had her first button change and now we get to use all of our super cute tubie pads instead of having to tape it down daily! I’m excited because even the super sensitive tape and her skin aren’t friends and I also love trying to help the environment with reusable products!! We hope everyone stays safe in the craziness of life right now and wash them hands or stay away from this medically fragile kiddo!! #emmaleimomi #babysmiles #gtube #gtubelife #tubie #tubietoddler #tubiepad #tubiechange #tubiemom #tubielife #medicallyfragile #medicallyfragilekiddo #mygirl #geneticmutation #nr2f1 #bbsoas #onh #ona #cvi #asd #spd #hypotonia #oromotordysfunction #developmentdelay #developmentaldisability #invisibledisability https://www.instagram.com/p/B9sySk9lsgu/?igshid=y2ptts6j5tj2