Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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were you sent by someone who wanted me dead? did you sleep with a gun underneath our bed? were you writing a book? were you a sleeper-cell spy? in fifty years will all this be declassified? and you'll confess why you did it… and i'll say good riddance ’cause it wasn't sexy once it wasn't forbidden…. I WOULD’VE DIED FOR YOUR SINS INSTEAD I JUST DIED INSIDE!!!!!!!!! AND YOU DESERVE PRISON BUT YOU WON’T GET TIME!!!!!!!!!!!!!!! YOU’LL SLIDE INTO INBOXES AND SLIP THROUGH THE BARS YOU CRASHED MY PARTY IN YOUR RENTAL CAR!!!!!!!!!!!!!!!!!!!! YOU SAID NORMAL GIRLS WERE BORING BUT YOU WERE GONE BY THE MORNING!!!!!!!!!!!! YOU KICKED OUT THE STAGE LIGHTS BUT YOU’RE STILL PERFORMING!!!!!!!!!!!!!!!!!!!…………. and in the plain sight you hid……. and you are what you did…… and i’ll forget you but i’ll never forgive…. the smallest man who ever lived.
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"Penelope should have chosen Debling!"
My sister in Christ. . .he literally dumped her???
Like just before Colin Bridgerton was on his knees after outrunning her carriage to profess how he can't stop thinking about her in his love me, choose me, I'm yours speech, Debling did the Regency equivalent of calling her a floozy who would undoubtedly cheat on him when he abandoned her for several years to chase his passions (because she would never be one of said passions since she asked outright if he could ever come to care for her and he went 'hmmmm seems unlikely! good thing you have solitary hobbies to occupy you instead!') when he has been given 0 evidence of such other than realizing she liked to look out the window because she had a crush on the boy across the street. I was ready to challenge that man to a duel for Pen's honor
His feelings for her were middling at best, I mean Christ on a Pogostick, after he asked her mum for permission to propose he isn't even happy when he opens the door and Pen is there? She's looking like a snack- nay, a whole ass MEAL, and he can't even smile? He just nods at her and dips the fuck out? You don't think it would kill Penelope to know that both her sisters have husbands who absolutely adore them and she's out here with an absent dude who likely won't even write to her?
Portia's 'Love is make believe!' speech is so transparently full of shit when you realize that we've got Dankworth who is so obsessed with Prudence that he makes heart eyes at her every waking moment and considers her his little bonbon and Albion who loves Phillipa so much that he was waiting for her to consent to sex (not realizing she didn't know what it was) for two entire years because he would never pressure her and so he was content with finishing in his pants when he kissed her to make sure she was comfortable. And you want Penelope to settle for a life of loneliness? When Colin is so besotted with her that he dreams of her and breaks every societal expectation in the book as a notorious People Pleaser to run after her and cannot even wait for the morning after being intimate with her to introduce her as his wife to his family in the middle of the night? You want her to turn down Mr "When you realize you want to spend the rest of your life with somebody, you want the rest of your life to start as soon as possible" Bridgerton? For LORD PENGUIN?
Be so serious right now
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