#non-epileptic seizure

[autobot2001]

Unexpected Turn of Events

Author: Autobot2001 Genre: Fanfiction Fandom: Transformers Rating: T Warning: None Pairing: Drift X Jamie (OC) Description: Jamie has a bad anxiety attack that triggers a non-epileptic seizure.

@whumpril alt 7; eyes rolled back

Crosshairs and Drift are used to seeing Jamie deal with anxiety, but it’s been a while since she had an anxiety attack. She lies on the bed, hyperventilating. Crosshairs is worried about why Jamie is having an anxiety attack. Brushing aside he thought about his lack of helping Jamie compared to Drift. He worries about Drift’s difficulty getting Jamie to calm down. They worry about seeing Jamie’s eyes roll back before closing. They have witnessed this multiple times. This is the first time they’re seeing Jamie have a non-epileptic seizure. Drift is careful to move Jamie into the recovery position once the seizure ends. Crosshairs sees Jamie is tired. The two assure her she’s ok and can sleep. They know her lack of communication is normal for a while. They await Jamie’s actions or words. Crosshairs and Drift know they shouldn’t make her do anything. After a few minutes, Jamie moves to lay her head on the pillow. Drift covers her with a blanket and kisses her. The two mechs watch her fall asleep. They worry about what was on her mind to cause an anxiety attack bad enough to trigger a non-epileptic seizure.

[alic3night]

So, the aftereffects of a seizure is wired.

In mid-Dec I had my first and so far only non-epileptic seizure (basically being conscious while having a seizure). I didn't know this before, but apparently, because a seizure is basically your brain freaking out and having uncontrolled electrical activity, sometimes after a seizure people experience a change in one or multiple of their 5 senses. For example, if before you liked the smell of lavender after you might find it overwhelming, and you might not even notice a change till you run into something that you know was different for you prior.

For me, it altered my sense of taste. My partner and i found this out a month after when i was making us drinks and couldn't taste the alcoholiness of the alcohol and ended up adding a shit ton (5ish shots of vodka), neither of us really measure we go by taste/sight when making mixed drinks so when you no longer are really able to taste how much alcohol is in something, you can see were this might be a bit of a problem when you're pouring while not fully paying attention. After that, I started messing around and experimenting, so far I've found out that hawian pizza now tastes good (I still hate it on principal), I like mushrooms either raw or with the water cooked out, and I really love black licorice.

Also, I'm no longer a fan of overly sugary things, like candy or soda. Which is so weird, especially having grown up with sweet tooth and coming from a family of people who like sweets it's just weird. Like, I got a raspberry filled doughnut the other day, and it just didn't taste as good as I remember it being. It just keeps leaving me feeling weird because I know I should like it, 5ish months ago i would have loved it, but now I don't, and im still not sure how to feel about it.

But yeah, my sense of taste being different is the only aftereffect of my seizure I've noticed. Also no clue if I'll ever have a seizure again and my Dr was just like "if it happened again we'll see if we can do something, but because it's only has happened once we can't really do anything 🤷‍♀️". So I'm hoping it was a one a done brain glitch that I never have to worry about again.

[arcticduckie]

Shoutout to people with Functional Neurological Disorder

Shoutout to people with functional tics

Shoutout to people who have dystonia

Shoutout to people with Psychogenic non-epileptic seizures

Shoutout to people with paralysis and or weakness

Shoutout to people with tremors

Shoutout to people who shut down/unresponsive episodes

Shoutout to people who have walking difficulties

Shoutout to people who have numbness

Shoutout to people who have speech problems

Shoutout to people with vision problems

Shoutout to people with hearing problems

Shoutout to people with memory loss

Shoutout to everyone with FND

[3liza]

a lot of people INCLUDING DOCTORS are completely unaware of this but it's not that uncommon for people to get so stressed out they will have a seizure, without being epileptic.

these people can experience any of the symptoms of seizure but will get a negative result on the standard epilepsy tests. this is the epilepsy foundation website and is not a bullshit website, this is actual epilepsy experts and advocates saying "you can have seizures from being too sad, too traumatized, or too stressed". unfortunately a lot of doctors will hear a patient report this, test them for epilepsy, and when the tests are negative, stop the diagnostic process there because they just don't know what else it could be or how to help their patient. bad doctors will make a mental note than the patient is hysterical* and/or malingering. terrible doctors will start diagnosing them with personality disorders that will prevent the patient from receiving adequate care later on (histrionic personality disorder, borderline, bipolar, etc). well, it can just be stress and trauma.

but it's pretty simple, sometimes even non-epileptic brains can overload and boil over and trigger cataplexy, muscle spasms, absence episodes, hallucinations, and all the rest of the seizure behaviors. one of the papers I read on Psychogenic Non-epileptic Seizure (lmao PNES) mentioned that diagnosis alone was sufficient to significantly reduce or completely cure a lot of cases, presumably because if you know what's happening to you in a psychogenic illness and why, a huge burden of fear and stress is lifted from the disease process. unfortunately the combination of all these factors (tests negative for epilepsy, caused by psychological stress, resolves when diagnosed) produces an impression of the patient "faking it". this is true of most psychogenic illness because our culture doesn't consider the processes of the brain to be "real", but again, I have to emphasize, this is the official epilepsy foundation website and they have no reason to blow smoke up anyone's ass about this

* they're technically correct, hysteria as a classical diagnosis before it got turned into "she's making it up" documented a lot of these same symptoms, including the "hysterical arch" posture of a patient experiencing a full body spasm seen sometimes in stress seizures

[ossiethegreat]

Now Im curious! Why do you give Delta a service dog? /gen

I know little about the man but any headcanons and canon facts are welcome!

that was partially answered here but I’ll elaborate more!!

I headcanon he has a habit of pushing himself too far in his job to the point it takes a toll on his body, and it can sometimes result in him fainting from exhaustion or having non epileptic seizures. I made him a service dog that would help him limit his productivity to avoid stressing his body too much. Zorox can also serve as an emotional support dog and a playmate for Beta :3

I’m sure he objected to getting a service dog because he truly believed he didn’t need one, but Color and Epic weren’t around all the time, so he needed something to help remind him to take a break.

Anyway thank you for asking!!!!!

[positivelyqueer]

hi people with seizures both epileptic and non epileptic. I hope you are having a good day with manageable symptoms.

[furiousgoldfish]

I am so mad, I had a seizure on Friday, and I was thinking it wasn't that bad of one, I could still somewhat walk and whatever, but then the whole weekend I was tied to bed, I was starving because I couldn't get up for long enough to make even a simple meal, eventually I made pancakes after being hungry for hours and hours.

Today I was feeling a bit better! My brain has started to clear up and think rationally and I thought, okay, time to get some chores done and clean and make the space presentable for other people who are returning from their weekend, and I almost passed out twice just trying to do the damn dishes. There wasn't even that many dishes!!!! Because I wasn't cooking or eating almost anything!! So I have to go and lie down several times, just to do the dishes, which I did while hyperventilating, only to collapse on the floor afterwards and get ANOTHER SEIZURE like are you serious right now. I was literally out of capacity for two whole days because of one single seizure and now another one just when this was about to be over? How am I supposed to live like this???? I am weeks behind on things I was supposed to do, I am having so many things pile up because I cannot get up, and it's beyond urgent that I become functional FOR AT LEAST A WHILE and now I have to go and have multiple stupid seizures.

And for what? All the things that would cause a seizure happened so many years ago, but I still have to have seizures now, and stupid nightmares every night that it never ended, I am so sick of this!!! I got so mad I interrupted the seizure and now I'm just functioning on rage and also not standing because I do think I will fall down and collapse again, this isn't fair!!! Life is literally not supposed to be this hard! A person is not supposed to give up everything, even moving around and eating just because of the seizures and whatnot. I need to be able to live at least occasionally a little!! I am mad at everything, this literally is not fair and I am going to complain, this sucks, what even am I supposed to do. I just want a functional body, at least part time, like come on. It's ridiculous that I am on the edge of survival from just one weekend.

[raposar]

more epilepsy memes bc I just might go insane

[neuroticboyfriend]

guess i learned the hard way that repressing my plurality for literal years can end up causing PNES. so here's your warning not to repress dissociative disorders. or plurality in general since I'm not saying this can't happen to non-dissociative systems.

[finnslay]

"They aren't seizures" what if I punched you? What then?

[minaespen]

apparently i'm supposed to mask how i really feel even tho i dont express it at all

how dare i answer "how are you doing" with "not the best"

[griddleharkbrainrot]

Life would be so much easier if my body didn't hate me

[traffrogers]

hope this helps

inspired by this post on writing amputees

and this post by @sunnycycle and @snazzzyazzzy

[skeleticcs]

Seizure types

When someone says the word seizure we typically think of someone shaking on the floor unconscious, but there’s actually a lot more to seizures! They’re different for everyone but here are my most common types and how they look on me and (kind of) how to help during certain types of seizures

Absence seizure: An absence seizure is a lapse in consciousness that can last anywhere from 30 seconds to 5 minutes. I’m completely unaware of my surroundings and unable to respond, but I’ll just look like I’m staring off into space. There’s not much you can do to help besides stay with me and make sure nothing bad happens while I’m ‘gone’.

Atonic seizure: An atonic or drop seizure is a brief loss of muscle tone that looks exactly like it sounds, I just drop. Mostly it’s head drops but sometimes my whole body will give out. These usually only last a couple seconds so no need to help much, but be aware that atonic seizures can often be warning signs of a larger seizure.

Partial seizure: During a partial seizure I’m really out of it and unaware of my surroundings. I may still be able to respond to you or walk around but I’m not myself in these moments. The main thing you’d need to do to help is try to keep me in one place and away from anything dangerous. Do not let me wander off as I’m not really conscious and don’t know what I’m doing, which could end with me getting hurt.

Grand mal seizure: These are the types of seizures most people will think about when they hear the word. Grand mal or tonic-clonic seizures are the violent ones that involve convulsions, shaking, muscle stiffness, etc. follow basic seizure first aid for this type of seizure.

[kesterite]

informational comic abt my main disability, PNES! I've found that little to no one I talk to knows abt non epileptic seizures, so I brought together some information that I would've really liked to see before I was diagnosed.

IMPORTANT EDITS: - conversion disorder is now known as functional neurological disorder and my comparison was oversimplification. FND is very real, and has its own unique struggles. PNES is closely linked to it in awareness and communities. - not all PNES episodes are caused by emotional stress. we still don’t know exactly why that is for each person. - the cause is HEAVILY debated. I just chose the prevailing theory at the time of writing the comic that seems to make the most sense.

[magnetothemagnificent]

So, a few years ago I started developing random, uncontrollable muscle jerks and spasms, and they've been getting increasingly more frequently. Usually they're small and unnoticeable, like a sudden jerk in the knee or hand, but sometimes they're more severe and disruptive, like the one time I had a muscle jerk in my arm while cracking eggs for breakfast and accidentally slammed the egg into my thigh and made a huge mess.

Anyway, last year I went to a neurologist (only because my uro-gynecologist referred me, to this day she's been the only doctor to take me seriously), and he gave me an MRI and an EEG. As part of the EEG, he triggered a photosensitive seizure. It was horribly painful and uncomfortable, and my mom, who was in the room with me for the support, saw it too. But afterwards, he said he didn't pick up any abnormal electric activities on the machine, and so I didn't have a seizure and he dismissed me and told me all my problems were psychological, and refused to run more tests.

So the other day I mentioned this to my uncle, who is a neurologist who actually has a neurological disorder, and he was like "oh yeah you did have a seizure, not all seizures are epileptic." Like? Nobody told me this?? I've been having seizures this whole time and no doctor ever told me that there's such a thing as non-epileptic seizures???

I obvious don't have a diagnosis yet but god I've been told I was crazy by so many doctors and to hear that I'm actually not y'know imagining my very real physical symptoms......