#neuropath

[thethcministry]

[neuroticboyfriend]

there's a lot of talk about joint pain in chronic illness communities which like fair, it hurts like a bitch. but shoutout to my fellow spoonies who are painfully incapacitated by things like muscle spasticity and nerve compression. just because people can't see red, swollen, dislocated, or malformed joints doesn't make your pain not real. and extra shoutout to spoonies who deal with all these types of pain, because i know how hard it makes things.

[doot-boi]

A poem I wrote in 20 minutes, near midnight, about my acquired disability

I Remember

I remember running The school athletics carnivals and cross country A solidly average time But sometimes enough for inter-school I remember jumping Clearing walls and fences Joking about my "parkour" skills It saved time on every journey I remember walking 15 minutes to school with tiny legs Quicker once I moved and grew tall But back then I walked everywhere I remember riding Pedalling along the bike track The river flowing along just off my side I could race that river some days I remember dancing Not a skillful or artistic display Just a response to the music An effort to externalise joy I remember fencing A dull strip of metal An effort to make the footwork natural I could've learned more if I stuck with it I remember climbing Trees and rocks were a joy to summit The inner-city climbing gym Even just the banister and railings I remember hiking Camping out in the bush Trekking through worn paths and red undergrowth Shame I didn't have great endurance I remember sliding Rolling Diving Skipping I remember all that used to be easy I remember all that I can't do now And all that I shouldn't I hate that I remember I will hold those memories as gingerly as I would hold my heart

[semiotomatics]

you know that feeling when you hit your funny bone? ive had that for the past week radiating all up and down my arm from my neck to my wrist. it sucks

[try-and-try-and-try-again]

Does melatonin (or any other sleep medication) not work on me or are any positive effects being overridden by chronic pain?

Every single night I am waking up in the early hours with my spine feeling like it’s on fire and my limbs feeling like they are also on fire/being stabbed/squeezed in a vice.

I don’t know how to carry on like this.

[wehavekookies]

Slept a proper night of sleep first time in several weeks, and i can't believe how drastically different the world feels rn T_T

[oddsocksandstuff]

This chronic pain flare could have been an email :/

[gay-jewish-bucky]

my only consistent bedtime routine 🤪

[writeitinsharpie]

love house md as a dumpster fire trash medical drama show but istg they needed one (1) single person with chronic pain on the writer's team

[lizziedoesvetpath]

Fun pathology things: spending the better part of 1.5 hours carefully sectioning and sampling an equine brain and spinal cord. I am going to get a diagnosis on this horse if it kills me (and it might)

[wetslug]

today was so frustrating this autopsy was delayed for THREE WEEKS and by the time i got in there his brain was one step away from goo...and that was the important organ in this case bc Hx of stroke

[dandelion-system]

Went to see the doctor for a refferal to the pain clinic today!

She kept on telling me how she’d just been on a short online course all about pain, and how chronic pain was like a fire alarm going off with no fire (false pain, essentially.) the pain clinic she wanted to refer me to was essentially just a group of people having mediocre therapy and not being diagnosed with anything or given any help.

So, anyway, I’m glad I took my mum with me because she said that at this point she’ll probably just go private. If the nhs won’t investigate why I’m in chronic pain and want to pat me on the head and turn me away, we can deal with it ourselves.

[closerundone]

Just got off the phone with my pain specialist - He thinks my current flares could be temporary and we're rejigging some of my meds for the next two months. If the pain continues after this time, I get to start the whole roundabout of tests and surgeries yet again 😬

[crps-chronicpain-ptsd]

Daily Truths .

“When asked my #pain level on a scale of 1 to 10 I ask, “My scale or yours?” On my scale I can be a 4 today but on a doctor’s—it’s probably closer to an 8… My body is in pain all the time, I have to endure it and it changes my perceptions.”

Chronic pain problems •

[tiredsn0w]

Genuinely curious, to anyone else with neuropathy out there, how do you feel about acupuncture now..?

[chicago-geniza]

Rolling up to the anarchist cookout on 1800 mg gabapentin so I can put weight on my left leg without astral projecting into the Pain Dimension like "how do you do, my fellow comrades, I am what the kids call 'stoned out of my gourd'"