#meds prevented me more
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rejecting my diagnosies and just vibe with "idk man i'm just built like that" >>>
#destigmatising my mental shit in my head genuinely helps#like#i despise being implied that i'll suffer or have suffered because of the mental shit i have#no i can grow to function and i do. i can NOT suffer and be a doomer about it because oooh scary ICD code#fuck off#it's just the way i am especially if it's not preventing me from functioning#meds prevented me more#ofc i'm not giving advice to anyone#to each their own#from the bone freezer
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Idk if there's enough people talking about what a gigantic energy drain Complex PTSD is. It's not just one single traumatic event, it's having lived in a traumatic situation for a long time. And in the case of child abuse, your entire formative life period. Everything is a trigger, anxiety is your default, and your brain keeps trying to keep you safe by yelling at you about everything you're doing "wrong", which will lead to pain. Your brain is a constant war zone, braced for attack, rarely relaxed, at least some part of you always hypervigilant. The stress it takes on your body is insane. It's why trauma is linked to autoimmune issues, heart disease, type 2 diabetes, and, according to one study, cancer.
Physical disability leaves you even more vulnerable and less able to live up to the impossible standards of control and "correct" behaviour your brain insists on, not to mention the free gift given to all patients of chronic illness that is medical gaslighting and patient-blaming, all of which simply compounds the trauma. Reduced physical and mental health obviously leads to systemic risk factors such as inability to pursue academic and professional qualifications, poverty and financial struggle, malnutrition, becoming unhoused or bad living conditions, exacerbated medical issues and further lack of medical resources, reliance on welfare and care networks, and becoming trapped in codependent, abusive or toxic relationships. The knock-on effects are endless.
This is all to say— if you're wondering why you can't seem to do more than the bare minimum every day when you haven't been diagnosed with a physical illness, or you're "not that disabled", or you think your symptoms are "just psychosomatic" (which means your brain is under so much intolerable stress that it's started taking a chair to the windows and destroying the furniture just to get you to NOTICE AND MAKE IT STOP): the answer is that your body is actually struggling under the kind of stress that kills trained soldiers and disables them for life. So stop trying to convince yourself that you're just not trying hard enough when what you really, desperately need to get your life on track is community, care, rest and ease.
#the medicalization of mental health is just capitalism trying to cover its ass#isolating physical and mental illness makes the entire medical complex an abject failure actually#''disease'' should refer to a state of being rather than its outcome imo#i've never heard of one that wasnt simply the visible symptom or ramification of the core problem or situation#like I'm grateful for the anti-depressants and bipolar meds and all but i just think a lot more problems would be solved#if someone gave me a place to live with peace and quiet and living assistance#i mean I'd still need the meds its not either/or#but I wouldn't need to be on ever increasing doses for the rest of forever#also if there was some kind of holistic understanding of health that bridged psychiatry with the fest of the medical complex#they could have taken one look at how badly I broke down at age twenty and worked to prevent my inflammatory disease being triggered#or at least not gaslit me about it for seven years until i nearly lost a colon#you just absolutely bloody cannot treat health as separate from socioeconomics and community support#this shouldn't be new or revolutionary#actually cptsd#complex ptsd#ableism#disability#healthism#child abuse#emotional abuse#domestic abuse#intimate partner violence#parental abuse#chronic illness#spoonie#knee of huss#mental illness#autoimmune disease#social justice#psychosomatic
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clocks changed and now it's bright out at 7pm
#:)#i would be entering such a supremely powerful phase of my life Right Now were it not for the Health Issues#which is weird anyway because i like. feel physically fine?? other than some mildly annoying side effects of my meds lmao#the big problem preventing me from doing stuff is that i could on very short notice be called back into hospital any time#so i'm stuck unable to make any kind of solid plans for some time yet#like. i WAS gonna have my review consultation on wednesday about medium term care (basically just a biopsy and kidney/bp monitoring)#but NO i had to have too much scaredgirl hormones in my cringefail bloodstream so now i have to see if things are gonna get more Involved#if hot girl 2024 gets cancelled when i'm actually in a place to enjoy it.........what a cruel world.............................
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literally so funny how internet leftists will be like "ummm actually using drugs is bad and evil and destroying society (I know bc the us govt and/or some random conspiracy theorist told me so 😌) and anyone who thinks we should end the stigma around drug use and try to make it safer for users is actually just trying to destroy America" but then they'll also turn right around and go "don't forget to take your meds!!! remember if you can't make your own dopamine store bought is fine ❤️. end the stigma around needing lifelong medication!!!"
like girl are you somehow laboring under the delusion that like xanax is safer and more effective at treating mental illness than LSD or ketamine or even like MDMA bc boy do I have some news for you
#this is us focused bc thats where i live and where i have encountered drug culture#i am sure similar or even the same dynamics exist elsewhere but since i dont know the nuances ill let them speak for themselves#like imagine thinking doctors are more trustworthy than ur average street dealer 😐 could NOT be me#dealers i know would never just prescribe incredibly dangerous drugs at dangerous doses on such a mass scale#that sanctions actually have to be placed on them which prevent them from PRESCRIBING MEDS TO PEOPLE#i just dont have the us medical system boot lodged inside my throat i guess#bitches will be like 'im really concerned about your weed intake' and not say a damn word abt my Klonopin which is FAR more dangerous#benzo withdrawals are no fucking joke. you can die if you do it wrong. the 'withdrawals' people report w weed are literally just like.#irritability and nausea. which in every person ive ever met was not actually withdrawals but just a result if them being stressed#bc they were no longer using weed to relax lmfao. ¯\_(ツ)_/¯ whatever tho yall just keep on trustin Mr. Richard Nixon#anyway if ur depressed pop a molly. i have never felt happiness like molly happiness
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I've had anxiety pretty much all my life and having my fears/concerns brushed off is not a new thing for me and sometimes it's justified, but it is uniquely annoying in this case because I keep being right, repeatedly, throughout the pandemic, and people are still acting like I'm just being my panicky self and it's not as big a deal as I'm making it.
#for months my mom kept getting on my case about masking in the common areas of her complex#'everyone here is elderly they don't go out! why are you still wearing a mask here?'#and then suddenly what do you know two of her neighbors have covid and I was right#everyone: why are you still isolating and masking so much the pandemic is over!#me: it is not fucking over and it's gonna get worse again because of this#a couple months later: oh god there's a new variant that resists vaccines we couldn't possibly have predicted or prevented this#ironically I got covid somewhere highly improbable back in 2022 and it promptly made my anxiety like 5x worse so now I'm even more annoying#I also just kinda. got worse at spelling and keeping track of information#it's deeply frustrating but at least I never lost taste/smell and meds have helped with the anxiety so eh#still this could have been avoided if people would just take the goddamn thing seriously#and I'm gonna be salty about it for the rest of my life
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my psychiatrist was trying to explain that a lot of my depression and anxiety probably stems from my trying to force myself into a (neurotypical/allistic) mold that i wasn't made for and that it's nothing to be ashamed of and she listed elon musk and bill gates as my fellow autists and that made me cry harder
#mia.txt#i wasnt like crying bc i was diagnosed with ASD it was more just crying cause i cry all the time now and it was a cathartic session#oh i forgot to mention it but god i cant even describe the weird feeling of being told im actually autistic (UNPROMPTED)#after like. wondering for so many years but being too scared to bring it up to any psychiatrist#so i was just like well maybe i am or maybe i just have adhd. thats ok im not too worried about it :)#and then i was just like talking about my sensory issues being exacerbated by my meds#and then she started asking me more questions abt my sensory issues and social problems and then she pointed out that i#had been rocking back and forth the entire time. which i genuinely dont even notice anymore like i was like oh shit i sure am doing that#and she basically went through the whole questionnaire and was like has no one really ever brought up the possibility that you were#on the spectrum. because you definitely are#and i was like 🤷🏻♀️ idk! im not sure#but it was probably pretty damning that the one other time i had gotten tested he literally gave up bc the questions were too vague#oh but anyway like no that doesnt help actually 😔#i really don't think its shame-based like i KNOW im Different(TM) thats not shocking to me#but i do expend an insane amount of mental and emotional energy trying to be Normal and pretend i am not autistic#the masking that is causing me so much stress is the very thing that prevented me from being diagnosed earlier lmfaooo
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Bashing my head against my laptop fr
#maybe speaking#i misread the time my midterm paper was due so now to prevent it from being even more late i am frantically writing four mini essays#i hate this so much#the worse part is needing to use sources and cite them instead of just saying shit#i can and will vomit but that might just be me needing to eat lunch#but anyways doesnt help im on my next to last adhd med for this#and all my brain is spinning is the video game ive been hyperfocused on the past week or so
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I’m no fallout lore expert but
That’s not how ghouls work in the games right. I don’t remember that being a thing
just finished ep 4
#I haven’t fully played through a fallout game since like 2015#but isn’t becoming feral just caused randomly#you can’t prevent it if it starts but it’s not 100% going to happen and you don’t take meds to stop it#unless there’s some random side character or some shit I don’t know about#if it is just made up for the show whatever I mean they’ve been 50x more respectful to the games than jimmy rings#resident lore expert brother only got to show me the first 2 eps and our schedule isn’t going to line up for like a week#so he just told me to watch the rest alone
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the fatigue really is just so hard and idk if it'll ever get better but i just have to push blindly through it and try and hope
#i'm so fucking exhausted#the exposures are so hard. the response prevention is so hard. and it's all made harder by having just no goddamn energy#school is draining work is draining everything is draining#on top of therapy twice a week and doctors and med experiments#and so many people can do so much more than me and i'm so jealous#what's it like to not be tired..........even sometimes........#txt#lacevent
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tell me how i took my night sleepy time medicine and i'm somehow more awake while yesterday i took an adderall and it made me so fucking sleepy
#.bdo#i don't react to drugs the same way other ppl do for some reason#like weed makes me more normal bc it keeps me from being overstimulated so easily#and helps with my anxiety and adhd a bit#i have really angry meltdowns and it prevents them from happening too#i don't get ''high'' from my pain meds like other people do#so when they run out the only time i'm ''craving'' them is when i'm in a lot of pain#like right now my knees and hips are killing me bc of all the energy i exerted over the past 2 days#i have a very high alcohol tolerance too and always have since i first started drinking at 17#i never blacked out while drinking when i was a teenager and could chug it straight from the bottle#i can't stand the taste now i have to have a chaser or ill puke#i can drink a whole fifth to myself and still be awake (depending on how fast or slow i'm drinking)(I have not done that in a long time)#(and won't be doing it ever again)#and i was doing that while i weighed between 100-120 lbs
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Can i PLEASE stop having asthma attacks. Im not even sick anymore
#im gonna have to go back to daily preventative breathing treatments. all of my meds for that expired in 2020 lmao#and i dont have anyone here to prescribe me more#its so. exhausting#@ my lungs i just want to breathe. asking u to do ur job isnt asking too much.#bel speaks
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realized i never kept journaling being on t oops so uuuuh
3 years, 3 months, and 3 days on t
• finally starting to get a little facial hair coming in which is honestly a miracle cause genetics says i shouldn't get any until i'm in my 30s
• my voice has fully dropped at this point and boy did it get deep
• the acne chilled out a good while ago
• still not going bald get fucked literally all my paternal cousins except one
• oh yeah i got top surgery last september so that's p cool too
#ghost.txt#thnk god tumblr saves what tags you use on blogs because i definitely didn't remember what i used on here#i'm in a much better place overall btw#broke up with said ex and moved out shortly after that last post#he was cheating on me with my ex who was also my roommate and said ex's gf was ALSO living with us#the bf now ex from my last post purposely drove 4 more ppl out of that house after i left#and it's been confirmed i was mostly preventing the worst of his behavior by just mot putting up with it lmao#and he got way way worse after i left#but anyways goods things happened after i left obviously#i have two ferrets now and the whole top surgery thing#oh also a legal name change#i'm going to chicago this summer and i'm thinking about maybe moving there in the next few years#i'm on meds for my adhd#oh big bonus i also finally don't qualify for the criteria of major depressive disorder or w/e it's call now#im Officially Mentally Stable#do still have a generalized anxiety disorder but that's p much completely managed too
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taking medication is so so so exhausting because it’s a constant balancing act of are the side effects worth the effects
and sometimes the answer is no, but then you gotta find a different medication and who knows how long that takes and at some point it just becomes easier to manage symptoms on your own except when it doesn’t work
and other times the answer is no but you don’t really have a choice but to stay on the medication
but when the answer Is yes then you have to remember to take the medication and that Also sucks in a different way
most of the time I end up feeling like I’d rather just go back to dealing with problems even as they’re actively ruining my life because at least those are predictable
#meds#I Was going to say and don’t come with physical side effects and then my body prompty reminded me that I’m in pain#and of all the medication I’ve tried I actually don’t have one to take for pain relief#(outside of the slowly dwindling supply of you just had surgery meds)#and that while the wheelchair prevents More pain it doesn’t always lower it Enough#whatever I guess#I hate taking medication#I’m having a shit time of it today can you tell
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I ate one entire plate of pasta today.
As i have yesterday.
Please, ADHD and ADHD meds, please let me eat more 🥲
#food#eating#it's the meds preventing me from eating#and with and without meds i'll just forget#I WANT to eat more#i make food I like#but even when i'm starving#i take two bites and can't get any more down#i have to force every bite#it fucking sucks#but no meds is also not an option
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the mentally ill anguish of not wanting to keep hurting people and being a judgmental asshole but also not wanting to turn into a robot and slowly destroy my health with meds
#mentally ill#meds#meds are important for a lot of things but I just really don't like the way it makes me feel#but then I feel like an asshole if people tell me to take meds so im not abusive#I wanted to prove I can do it myself#and I probably can once I get more land and good crops from good soil#magnesium deficiency is a huge cause for anxiety#hangry#I really just need vitamins and protein and minerals#but there's not a lot of that in modern food#I want to just hang in there until I reach that place#but how many more times am I gonna fuck up before then?#every time I have an issue it just becomes a bigger threat on my mind that I cannot improve myself and I really do just need to shut up and#medicate myself until I cant think anymore#although I have been improving#tbh today's problems were caused by lack of sleep and food#I really have been getting better at preventing issues but not really#im getting better at hiding discomfort#but I should work more on calming down in the moment#first world problems#boohoo me and my miserable little mind#I feel so ungrateful but I also know that's not what I mean#I am lucky to have a family that didn't split#it was still painful to see how little they got along#but the stability is definitely a privilege#im an entitled piece of shit#no but im still kinda sad
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I think what frustrates a lot of us (physically disabled) is people with lupus, cancer, organ transplants, etc, talking about how their meds (chemo, immunosuppresents, biologics) prevent them from dying within hours or days. And then other people (often able bodied ADHDers) will come in and say that their ADHD medication is *exactly* the same because of thar car crash statistic. A decreased chance of crashing a car is different from going septic or dying of organ inflammation within an incredibly short timespan and comparing the two feels like belittling the severity of illnesses like the ones i mentioned above. I know it's not the intention, but it does often feel that way.
So I think the anger starts when (for example) someone with lupus will post, "Yay, I won't die within 3 days because of my meds!" and an able bodied ND will come in and compare this persons very imminant death to a decreased chance of dying in a car crash (which may never have happened anyway tbh)
And I'm not trying to downplay how important psychiatric meds or ADHD meds are!!! It's just that they're different and different situations. Like, audio description and subtitles are both needed, but not for the same purpose, (usually) not for the same people, and blind and d/Deaf people are both disabled (i know identifying as disabled because of being d/Deaf is more nuanced) but they're separate issues.
And I think we (the physically disabled community) often feel pushed aside by able bodied neurodivergent people and it leads people (on both sides) to feel really frustrated. It's really a problem that ableds NDs will come onto phys disabled posts and derail it completely and make it about their neurodivergence which, i understand is a neurodivergant thing to do, but it's still very frustrating. I know from personal experience that I feel really left out of neurodivergent spaces because I'm not autistic nor do I have ADHD, I'm a TBI survivor (+ other physical disabilities.)
I'm really not trying to start drama or be rude or attack you!!! I want to explain how we (the physically disabled community) feel as well. But i agree, there should be more nuance in discussions. Also, i can delete this if you don't want my input, i really just want to make it clear that a lot of us on the physically disabled side aren't trying to downplay the importance of meds for psychiatric illness or ADHD, just that this is the culmination of a lot of pent-up frustration from being talked over and ignored.
gotta love when gatekeeping passes the common sense threshold and you get people arguing, with zero nuance, whether "meds that make you not want to die 24/7" are actually life saving or just life-improving-to-the-point-you-don't-want-to-die, and whether "aid that helps you keep moving" is a mobility aid or a disability aid (??).
because those things have completely different definitions, in the medical system we all love, don't we, fellow disabled people? don't we all love doctors? they're always right and don't introduce nonsense terms to define a group out of needing help. certainly no part of the medical system (specially in the US! and the UK!) has ever tried to minimize anyone's needs, specially for medication.
#i really hope i dont come off as rude#i know a lot of phys disabled people feel really strongly about the issue and tbh i dont think its good to “rank” meds in terms of#how important they are BUT i think its important to acknowledge that some meds are genuinely preventing death and not preserving q.o.l#i take 5 different q.o.l meds and without them i would be dependent on a feeding tube in a dark silent room every day of my life#and im so grateful for them! but im even more grateful for the meds that stopped me dying last year#i think thats just an experience thing tho. being on the brink of death changed my view of meds and im glad not everyone can relate#but it hurts when people talk over ppl who have had those experiences (its happened to me) and compare them to MAYBE dying#but like i said i agree there should be more nuance and i hope i sound nuanced because im trying to be
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