#i know a lot of phys disabled people feel really strongly about the issue and tbh i dont think its good to “rank” meds in terms of
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I think what frustrates a lot of us (physically disabled) is people with lupus, cancer, organ transplants, etc, talking about how their meds (chemo, immunosuppresents, biologics) prevent them from dying within hours or days. And then other people (often able bodied ADHDers) will come in and say that their ADHD medication is *exactly* the same because of thar car crash statistic. A decreased chance of crashing a car is different from going septic or dying of organ inflammation within an incredibly short timespan and comparing the two feels like belittling the severity of illnesses like the ones i mentioned above. I know it's not the intention, but it does often feel that way.
So I think the anger starts when (for example) someone with lupus will post, "Yay, I won't die within 3 days because of my meds!" and an able bodied ND will come in and compare this persons very imminant death to a decreased chance of dying in a car crash (which may never have happened anyway tbh)
And I'm not trying to downplay how important psychiatric meds or ADHD meds are!!! It's just that they're different and different situations. Like, audio description and subtitles are both needed, but not for the same purpose, (usually) not for the same people, and blind and d/Deaf people are both disabled (i know identifying as disabled because of being d/Deaf is more nuanced) but they're separate issues.
And I think we (the physically disabled community) often feel pushed aside by able bodied neurodivergent people and it leads people (on both sides) to feel really frustrated. It's really a problem that ableds NDs will come onto phys disabled posts and derail it completely and make it about their neurodivergence which, i understand is a neurodivergant thing to do, but it's still very frustrating. I know from personal experience that I feel really left out of neurodivergent spaces because I'm not autistic nor do I have ADHD, I'm a TBI survivor (+ other physical disabilities.)
I'm really not trying to start drama or be rude or attack you!!! I want to explain how we (the physically disabled community) feel as well. But i agree, there should be more nuance in discussions. Also, i can delete this if you don't want my input, i really just want to make it clear that a lot of us on the physically disabled side aren't trying to downplay the importance of meds for psychiatric illness or ADHD, just that this is the culmination of a lot of pent-up frustration from being talked over and ignored.
gotta love when gatekeeping passes the common sense threshold and you get people arguing, with zero nuance, whether "meds that make you not want to die 24/7" are actually life saving or just life-improving-to-the-point-you-don't-want-to-die, and whether "aid that helps you keep moving" is a mobility aid or a disability aid (??).
because those things have completely different definitions, in the medical system we all love, don't we, fellow disabled people? don't we all love doctors? they're always right and don't introduce nonsense terms to define a group out of needing help. certainly no part of the medical system (specially in the US! and the UK!) has ever tried to minimize anyone's needs, specially for medication.
#i really hope i dont come off as rude#i know a lot of phys disabled people feel really strongly about the issue and tbh i dont think its good to “rank” meds in terms of#how important they are BUT i think its important to acknowledge that some meds are genuinely preventing death and not preserving q.o.l#i take 5 different q.o.l meds and without them i would be dependent on a feeding tube in a dark silent room every day of my life#and im so grateful for them! but im even more grateful for the meds that stopped me dying last year#i think thats just an experience thing tho. being on the brink of death changed my view of meds and im glad not everyone can relate#but it hurts when people talk over ppl who have had those experiences (its happened to me) and compare them to MAYBE dying#but like i said i agree there should be more nuance and i hope i sound nuanced because im trying to be
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