#like you are in HEALTHCARE. CARE ABOUT MY HEALTH

[creepyscritches]

I'm not going to kick the beehive and respond on the large post, but honestly it is disheartening to see people comment in the ACA post's tags with "everyone but xyz group" sentiments :/

It's easy to want worse for people who you feel wronged you, and I am not immune to that either! But when talking about something meant for everyone, like affordable healthcare, you HAVE to mean everyone. This is for people you love, hate, or feel nothing towards. This system works best when everyone can access it. There should be NO disqualifier to healthcare w/ dignity, period! If you voted one way, if you didn't vote at all, if you disparage the ACA or not, I don't care when it comes to YOUR ACCESS TO HEALTHCARE.

You will often find unifying footholds when it comes to wanting basic care for people around you, even those who don't give that respect to you. I frequently say I have had to learn how to professionally eat shit bc there is nothing you can say to me that makes me change my mind about your right to a life of health, support, and dignity as a foundational belief. And I have heard some SHIT! Honestly, it is more radical to continue to help as you can than cut people out.

How do you reach people? Put down the ego reflex for a moment and look for where they have been failed. Listen without judgment and often there is a thread of "Oh, we actually have a solution to that" you can offer to people. I cannot control if they change their minds or if they take up the offer to look through benefits, but I can make the process of changing their minds or accepting help non-judgmental with me.

You should not want anyone to be without access to medical care, I don't care the reason. The ACA is literally for everyone, even those you hate.

[kaijusmart]

God the nurse that drew my blood today was such a fucking asshole. I asked her to use an alcohol pad before doing it cause its not standard in the uk for some terrifying reason and she acted like it was the worst inconvenience of her life. And then she like went to find my vein and huffed and was like well NOW i cant touch it again to find it what am i supposed to do. Like girl you are a fucking adult rub your fingers with the pad or WEAR A PAIR OF FUCKING GLOVES MAYBE. And then she stabbed me really hard im pretty sure on purpose. Like jesus christ sorry i dont want sepsis from one bacteria getting in my bloodstream cause youre too much of a baby to get a fucking alcohol pad

[ineed-to-sleep]

*me immediately after going through a terrifying and traumatic experience* haha yeah I guess it was rough but I'm fine now like I'm totally chill. It was kinda funny actually if you think about it

[rowenabean]

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[dragons-and-yellow-roses]

Had an ADHD assessment a few years ago and the fuckwit that assessed me said, as a direct quote, "You're too smart to have ADHD." Like that's not any type of paraphrasing, that stupid fucking statement is burned in my brain forever and has been since I heard it.

I talked to my psychiatrist about getting a referral to a different psychologist for assessment, and she agreed and sent it in.

Today I got a call that said they don't agree that I need reassessment, and I'm welcome to pursue it elsewhere, but they won't provide reassessment. Which is just.

I don't even know where to start with that one. I just needed to get it out. I'm so tired.

[yeahlikethebird]

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[perfektblau]

If 🔪 all those politicians, ceos, and those who perpetuate the nightmare American healthcare system that only exists to prey and profit off from human lives would stop it, I'd do it even if it means cutting down half of my lifespan or going to purgatory. If it means people won't have to suffer anymore, I would.

[raplinesmoon]

a brief note:

i’m not usually very eloquent with my words, so if this is rough and i say something wrong or offensive, please forgive me, it’s been hard to piece together the right words. if there’s spelling errors, this is not proofread, and I’m sorry.

I’ve always maintained that writing and this blog is a safe space for me, a place to escape from the real world when I need it. but right now, what’s going on in the world isn’t something I can escape from. it’s robbed me of my sleep and my sanity. and honestly, writing and kpop just don’t even seem like valid enough escapes anymore, even though I feel immensely privileged to have these escapes in the first place. I feel numb. but it’s not even about me or this blog or any wips I have.

if you have five minutes to scroll through my blog, or any other kpop blog on Tumblr, I urge you to take another five minutes out of your day and learn about what’s going on in Gaza right now. do your own research, and uplift voices that aren’t being heard.

the beauty of being here is being able to connect with so many people far away, across the country or even across the world. if we can use our energy to celebrate our groups and our faves, we can also do the reverse.

life as we know it is being uprooted for so many people, the least we can do is be cognizant of that, to give some of our energy to mourn their losses and grieve alongside them. even better yet, we can hope alongside them that this reality doesn’t have to endure, that more innocent lives will not be lost.

if you get nothing else from this, I’ll leave you with this — if you’ve also been like me, feeling completely scared and horrified by what’s been unfolding, i see you. i feel your pain, and if you’re grieving, i feel your loss. i ask you to remember those on the other side of this who have a right to be even more scared and even more horrified, and who deserve your attention. the world is a complex and hard to understand place, but at the same time, it’s not. it’s brutal and violent. Please remember, that far beyond and political or religious debates, foreign economic and social policy, etc, when oppressors and bullies square off, and when people are power hungry, innocent lives are always in the middle of it. and that should be something that none of us are willing to be okay with.

if you want to stop reading here, that’s totally okay, otherwise check the tags to listen to me ramble on

[lesbiansanemi]

I maybe potentially (most likely) have covid but my job is being so fucking cagey about if I’m going to be on the receiving end of disciplinary action for not coming in because of it. I have multiple symptoms of it and was in close contact for an extended period of time with two people who have tested positive for it. I went to get an official test from an urgent care place (because I was told I need proof for my job), and was told it would be up to 48 hours until I get results and until then I needed to self isolate and then obviously continue if the test is positive. They wrote me a note saying to excuse me from my job which I emailed to them. But they keep emailing me like “well the cdc says isolation is no longer necessary so…. If you don’t have a fever you’re supposed to come in” and now I’m so paranoid that I’m going to get write ups for not coming in despite having a literal doctor’s note telling me not to because all covid protections have been so thoroughly axed and it’s treated like any “normal” illness (though this shouldn’t be okay for ANY illness, not just covid) and if you don’t have sick time (which most places don’t supply at all, or if they do, it’s a dismal amount) you have to come in or experience the consequences and I’m just 🙃🙃🙃 so anxious about it and also I fucking hate this country for putting MILLIONS of people in this position where they have to choose between not going work but risking being fired and losing their livelihoods which leads to SO many risks if you have no safety net (and most people don’t) OR going in because you just don’t have a choice but you’re miserable and actively spreading highly infectious diseases to multiple other people. I truly don’t understand how there are people who look at this system and act like it’s fine

[dragongeek1]

well friends I have officially joined the Chronic Pain Club, it’s not great to be here, there’s a chance it’s only temporary but my gut says ‘hmm many doubts’ and I won’t really know for a couple of weeks anyway until my doctors appointment. So. Been navigating that for four days and well we’re navigating at least

[legally-killable-sparrow]

This guy sitting here saying ooh I’ll finish my coffee in ten min and then go take a shower well it’s been fifteen minutes bitch and my Lyft is coming in thirty with or without you.

Don’t fuckin sigh like this is stressful for you when I remind you that you need to start getting ready to go five minutes ago bitch I’m the one goin to the doctor to see if there’s something severely wrong with my goddam internal organs, you’re just here for support stop making me stressed because you’re eternally late and even more inifinitely uncaring that this messes shit up for other people

[heartslobbf]

girls who only know how to rage bolus....

[falesten-iw]

What makes you react to what's happening in Gaza? and What makes you care about human lives? Is it empathy, ideology, culture, religion, knowledge, or something else that compels you to feel and act?

What would push your government to stop saying, "Israel has the right to defend itself"? What would make columnists stop focusing on self defense and what the demonstrators or students are doing "wrong" and instead use their platform to pressure their government to do what's "right" to stop this ongoing genocide? When did you start caring, and when will you start acting?

Is it when you have Palestinian friends?

When Palestinian children begged for food, safety, and water?

When over 45000 Palestinians had been killed & 98000 injured ?

When left-wing political parties around the world started criticizing Israel?

When Palestinian and Israeli human rights organizations sounded the alarm for years?

When protesters took to the streets every week? Do you still hear their voices?

When human rights organizations like Amnesty International or Human Rights Watch documented the atrocities? Was 60 years of human rights violations not enough?

When journalism associations worldwide recorded an unprecedented number of journalists killed in such a short period?

When UN agencies like the World Food Program or UNRWA reported on the humanitarian disaster and worsening famine?

When aid organizations like Doctors Without Borders or the Red Cross warned of the total collapse of healthcare?

When child rights organizations like Save the Children or UNICEF constantly reported on children’s acute physical and mental health crises?

When Jewish groups like Jewish Voice for Peace declared, "Not in my name"?

When the International Criminal Court in The Hague found strong evidence of crimes against humanity and began prosecuting high-ranking officials? Are you waiting for the court to tell you act?

When your children were upset after hearing what was happening in Gaza? Did that stir your parental instincts?

When the EU's foreign policy chief, Josep Borrell, repeatedly urged Israel to stop the killings?

When your favorite artist spoke out—did that make you reflect?

When students protested at universities around the world? Does the passion of young people give you hope?

When the Pope made a statement about the situation?

When military experts reported how many bombs Israel had dropped on Gaza?

When 2.5 million people were displaced under bombardment, with nowhere to escape in Gaza—a place already called the world’s largest open-air prison even before October 7?

When your employer gave you permission to speak out?

Are you waiting for Joe Biden to say the red line has been crossed and stop sending weapons?

Or are you waiting for Donald Trump to say the magic words: "Enough is enough"?

Or for Benjamin Netanyahu to say "Oh sorry that was a mistake"?

Or are you waiting for God Almighty to come down and say, "Enough is enough"?

Or for the most extreme elements in the Israeli government to say, "Now we can stop bombing"—but will there be any Palestinians left in Gaza by then?

Or will you stop waiting and act now, driven by empathy, knowledge, and solidarity with people who are being oppressed right in fornt or your eyes?

I’ve lost over 200 family members, friends, and neighbors in this genocide. I have 24 of my family’s members and 2 orphaned children, trapped in a makeshift tent and struggling to survive in this freezing winter in Gaza. Is that not enough to move you to act? Tell me then when ?—when will your humanity compel you to step in? Please, act now and donate!

Vetted and shared by @90-ghost: Link.

Verified and shared by @el-shab-hussein: Link

Listed as number 282 in "The Vetted Gaza Evacuation Fundraiser Spreadsheet" compiled by @el-shab-hussein and @nabulsi : Link

Listed on the Butterfly Effect Project, number 957: Link

Additionally, Al Jazeera News has documented apart of my family's case: Link

If, for some reason, you couldn't donate via GoFundMe, you can donate via PayPal instead.

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[bloomburnburial]

we just truly can't have productive conversations about depression and chronic pain until we recognize the latter's role in causing the former. and obviously the relationship there is significantly more complex than that, but the basic sentiment holds true. i'm always torn between phrasing my experiences in a way that forces doctors to acknowledge this connection, and knowing that in certain cases, admitting to the ongoing presence of any depression or depression-adjacent emotions surrounding my physical health could potentially lead to massive delays in adequate treatment as i embark on the tedious process of proving the absence of any 'mental health issues' in order to have the physical ones taken seriously. like, come on. you know that's not how this works, right?

[so-i-did-this-thing]

TRANS OHIOANS - START STOCKPILING YOUR HRT AND PLAN HOW YOU WILL BE ABLE TO CONTINUE YOUR TRANSITION CARE

Ohio has taken a page out of Florida’s book and is proposing to effectively ban adult transition care via the requirements of numerous specialists - a psychiatrist, endocrinologist, and a bioethicist.

Since most trans people get their HRT from nurse practioners via the informed consent model, this will create undue burden on both trans people and the medical system -- the bottlenecks will effectively ban transition care for adults. This is what has happened in Florida, and Ohio's rules look much more draconian and surveiliance-heavy. All trans healthcare will be reported to the state.

These new rules have not taken effect yet. Trans Ohioans should plan for the worst now.

The rules are open to public comment through 5pm Friday, Jan 19, 2024. The full copy of the rules and how to comment are below:

https://mha.ohio.gov/about-us/rules-and-regulations/rules/draft-rules/gender-transition-care

As a Floridian who saw the writing on the wall and fled his state (my clinic hasn't been allowed to fill HRT prescriptions since May 2023 now) -- do not delay on making preparations. If this is approved, the rules will likely catch everyone by surprise. Start talking with your providers now and plan out your options assuming the ban will take place.

Informed folks to follow on Twitter:

Alejandra

Erin

[thebibliosphere]

Whenever I talk about the medical neglect and ableism I've encountered as a victim of the healthcare system, there's always some cockwaffle who feels entitled to come into my inbox and make the argument of "not all doctors" while talking about how "people like them" (because it's always someone in a field of medicine who does this) are doing their best and it's really hard because so many people fake being ill to get on welfare (Yikes), but like, yeah, obviously #not all doctors, because if all doctors were negligent, bullying scum bags, I'd be dead.

But here's the thing: while I truly believe that the majority of doctors are doing their best in a system stacked against them and their patients, their presence does not negate the mass harm caused by the bad ones. And there are far more bad ones than you realize.

Fuck, John Oliver literally did a segment on this last week:

Yes, the truly bad, malicious doctors are in the minority. Most are just horrifically burned out and fighting a losing battle against a system, killing both them and their patients through a lack of funding and resources and profound overwork.

But the malicious ones do exist, and they will go out of their way to harm patients who don't kowtow to them.

I almost lost my life because when I was in my early twenties, I told a doctor I didn't think she was listening to me, and I disagreed with her assessment of my mental health (she was not a mental health doctor, and I was there for heart palpitations and chronic pain). She retaliated by putting "non-compliant" in my file.

There was also a fun little "doesn't show respect" note too that lives rent-free in my head because I know I wasn't rude. I was polite. I just didn't agree with her, and my refusal to accept her off-handed comment that "you probably have bipolar or BPD" (again, I was there for heart palpitations and chronic pain) meant I was "refusing care."

I wasn't. I just refused to be slapped with a mood/personality disorder when I was there because I kept fucking fainting when I stood up.

(Spoiler alert: it was dysautonomia)

That "non-compliant" marker followed me around for years. It followed me across an ocean and effectively ensured that any doctor I saw was going to treat me like absolute dogshit because no one wants to help Difficult Patients. It wasn't until I was so undeniably ill, literally on the brink of death, that anyone helped me.

I'm alive because of a good doctor. And all the good ones that came after him because of him.

So, I know they exist. You don't have to tell me that.

But I really fucking need you to acknowledge the bad ones and that you're part of a system with a long, long history of abusing minorities and vulnerable people. I need you to acknowledge that because it's the only way we're going to survive this godforsaken nightmare and make things better.

So yeah, #notalldoctors, but if you feel the need to say that because someone talking about being literally left to die by the medical system hurts your feelings, I'm going to have to ask you to take a step back and ask yourself if you're going into medicine for the right reasons.

Namely: do you want to help people, even the "difficult" ones?

Even the ones who might disagree with you?

Even if they're on welfare?

Even if they'll never get "better" in a way that means "cured"?

Just a thought. But hey, what do I know. I'm just someone who experienced hemolytic anemia because doctors kept telling me I was anxious and needed to exercise more 🤷‍♀️.