#intracranial pressure

[arachnopho8itch]

Mental workouts to swell the muscle that is my brain (intracranial pressure) ((ICP)) (((what did Joseph Bruce mean by this?)))

[problem-project]

So I found out today that the black spot in my vision is officially permanent and that if my medicine doesn't start working again at a higher dose, then I will need a stent/shunt placed in my head. Brain surgery scares me so much, but it's impossible to function every day if I don't somehow get my head pressure managed 😞 send me positive vibes and well wishes pls, it sounds like I might need it 🖤

[laika-of-the-stars]

i enjoy going through the IIH tags when im feeling down in regards to my health- so i wanted to ask something to other people with this condition. even when medicated, are the pressure headaches a constant? even after medical intervention?

mine are always there, except for the initial few minutes to an hour post spinal tap. and im really upset about it right now. makes me feel like im faking or im never going to get better, or that one day ill need a shunt (very possible) and brain surgery scares me so much. im tired of having the constant pounding headache whenever i dare to lay down, or even just do anything at this point.

i just would like to hear from other people, maybe get some advice on some like. home remedies for lack of a better word that i can do alongside my medication and the occasional medical intervention.

p.s: i did get a neat trick from one of the nurses during my last hospital stay. put an ice pack/cold pack on the back of your head, and a heat pack on the front. for me it helps greatly, even if it isnt a perma fix, so i thought id share it to maybe help others.

[thisbibliomaniac]

Guys the migraine sleep mask is on sale 🙌 I've had one for a few years, and it really helps

[theglowstickchronicles]

My face hurts. Like I got punched or something.

Across my forehead. Both eye sockets. Both cheekbones. Down into my upper jaw. My teeth. My lower jaw and teeth. Everything feels swollen and chewing hurts. Flossing and brushing my teeth for nighttime wind down hurt.

Super pumped to have to work the next two days.

Also the constant ringing in my ears is *chef’s kiss*

[ihaveneverbeenasleep]

Can’t believe I lasted four years on this shunt. That’s my personal record. I have an MRI soon and several other tests before I find out the next steps but atleast now I have concrete proof that it’s broken, and an answer to my pain. My codman certas valve is supposed to remain at either a 1 or 2 setting. It was somehow on a 7-8 when it was checked today.

[phosphenemoth]

Good news: my headache is gone and I ate something.

Bad news: I'm miserable from the medicine that makes the headaches go away and I'm stuck in the stairwell because I am too weak to walk back up the steps to my room.

[egginfroggin]

Sometimes I'm like "aw yeah I'm gonna do this thing" but then just. The Fog

[arctic-hands]

FUCK having pneumonia SUCKS

[dykethang]

they should make a guy who remembers to take their Stop Brain From Exploding Inside Skull meds next time i think

[dippyface]

still can't get over me being like "my left nasal sinus and my left ear are fucked and feel like shit" and dr examinations/CT scan being like "they look fine. There's fluid in your brain on the left side though." Like shehwnkwjwjw??? I thought I had a deviated septum or some shit

[unhonestlymirror]

ADHD is when instead of preparing for the upcoming surgery exam, you watch the mechanism of action of Adderall on YT

[problem-project]

haha, of course, my period starts while all my other symptoms are flaring up 🫠 here come the debilitating cramps all the way down to my knees on top of everything else

[franciskirkland-deleted]

france hetalia shapely backside like if you agree

[numberonepartyboy]

man. i should get insane about ninjago again

[pinkplasticprincess]

IT'S IDIOPATHIC INTRACRANIAL HYPERTENSION AWARENESS MONTH

This is a condition that I still suffer from to this day and have to be on meds for until I die. I've found that when my medication DOES work, I have a much better quality of life, because the IIH exacerbates all of my other chronic illnesses for some reason, including Ehlers Danlos Syndrome, general chronic pain, etc. It even caused me gastroparesis-like symptoms that went away after I went on the medication the first time. I was actually able to work an 8 hour job with proper treatment, but currently my meds need an adjustment and I am unfit to work again in the meantime. That's how big of a difference this condition makes for me! The only way to diagnose it for CERTAIN is with a spinal tap, of which I've had two. Because I also have Ehlers Danlos Syndrome, both of my spinal taps had complications resulting in cerebrospinal fluid leaks. I also requested bupivacaine instead of lidocaine since studies show it's more effective on EDS patients than lidocaine, which is notorious for not working on us.

The day I got diagnosed was actually one of the happiest days of my life because I had indisputable proof that something was wrong. The opening pressure in my skull was 37. THAT'S BAD. Around 20 is normal.

More recently I suspected my pressure was rising again and my doctor was in denial and wanted to take me off of my medication entirely because he thought I didn't need it anymore. So I opted for a spinal tap to prove him wrong. My opening pressure was 35. I was right again.

Now I have to wait until the end of the month for him to even consider increasing my medication because he decided to put me back on the old dose that isn't working well enough.

Because of this condition, there are times I can't even play video games with my friends because of severe motion sickness. We're warriors fr