This type of headache requires quick medical attention because it is an emergency. Your chances of recovering are higher the sooner you seek care.
You may experience pressure inside your skull as a result of a head injury or another medical condition. The risky condition known as elevated intracranial pressure (ICP) can result in a headache. Additionally, pressure might worsen existing brain or spinal cord injuries.
haha, of course, my period starts while all my other symptoms are flaring up 🫠 here come the debilitating cramps all the way down to my knees on top of everything else
Across my forehead. Both eye sockets. Both cheekbones. Down into my upper jaw. My teeth. My lower jaw and teeth. Everything feels swollen and chewing hurts. Flossing and brushing my teeth for nighttime wind down hurt.
Super pumped to have to work the next two days.
Also the constant ringing in my ears is *chef’s kiss*
Can’t believe I lasted four years on this shunt. That’s my personal record. I have an MRI soon and several other tests before I find out the next steps but atleast now I have concrete proof that it’s broken, and an answer to my pain. My codman certas valve is supposed to remain at either a 1 or 2 setting. It was somehow on a 7-8 when it was checked today.
Good news: my headache is gone and I ate something.
Bad news: I'm miserable from the medicine that makes the headaches go away and I'm stuck in the stairwell because I am too weak to walk back up the steps to my room.
still can't get over me being like "my left nasal sinus and my left ear are fucked and feel like shit" and dr examinations/CT scan being like "they look fine. There's fluid in your brain on the left side though." Like shehwnkwjwjw??? I thought I had a deviated septum or some shit
This is a condition that I still suffer from to this day and have to be on meds for until I die. I've found that when my medication DOES work, I have a much better quality of life, because the IIH exacerbates all of my other chronic illnesses for some reason, including Ehlers Danlos Syndrome, general chronic pain, etc. It even caused me gastroparesis-like symptoms that went away after I went on the medication the first time. I was actually able to work an 8 hour job with proper treatment, but currently my meds need an adjustment and I am unfit to work again in the meantime. That's how big of a difference this condition makes for me! The only way to diagnose it for CERTAIN is with a spinal tap, of which I've had two. Because I also have Ehlers Danlos Syndrome, both of my spinal taps had complications resulting in cerebrospinal fluid leaks. I also requested bupivacaine instead of lidocaine since studies show it's more effective on EDS patients than lidocaine, which is notorious for not working on us.
The day I got diagnosed was actually one of the happiest days of my life because I had indisputable proof that something was wrong. The opening pressure in my skull was 37. THAT'S BAD. Around 20 is normal.
More recently I suspected my pressure was rising again and my doctor was in denial and wanted to take me off of my medication entirely because he thought I didn't need it anymore. So I opted for a spinal tap to prove him wrong. My opening pressure was 35. I was right again.
Now I have to wait until the end of the month for him to even consider increasing my medication because he decided to put me back on the old dose that isn't working well enough.
Because of this condition, there are times I can't even play video games with my friends because of severe motion sickness. We're warriors fr