#idiopathichypersomnia

[fastdiet]

🥱 Do you struggle with excessive daytime sleepiness? Idiopathic hypersomnia may be the culprit. This neurological disorder causes individuals to feel constantly tired, regardless of how much sleep they get. While there is no known cure, managing idiopathic hypersomnia with diet can be an effective way to alleviate symptoms. 🥗 A healthy diet can help regulate sleep patterns and improve overall energy levels. Foods rich in protein, fiber, and complex carbohydrates can provide sustained energy throughout the day. Avoiding processed foods, caffeine, and alcohol can also improve sleep quality and reduce daytime fatigue. 🍎 Additionally, incorporating certain foods into your diet may have specific benefits for managing idiopathic hypersomnia. For example, foods high in magnesium, such as spinach and almonds, can help regulate sleep patterns. Foods rich in vitamin B12, such as salmon and eggs, can also improve energy levels. Consult with a healthcare professional before making any major dietary changes.1. Understanding Idiopathic Hypersomnia: Causes and SymptomsIdiopathic Hypersomnia is a sleep disorder that causes excessive daytime sleepiness. Its cause is unknown, but it's thought to be a result of a problem with the brain's ability to regulate sleep. Symptoms include difficulty waking up, feeling groggy, and difficulty concentrating. 💤 It's important to note that Idiopathic Hypersomnia is different from other sleep disorders, such as sleep apnea, which can also cause excessive daytime sleepiness. It's also different from narcolepsy, which causes sudden and uncontrollable sleep attacks. 💤 The exact cause of Idiopathic Hypersomnia is unknown, but it's thought to be related to a problem with the brain's ability to regulate sleep. Some possible causes include genetics, hormonal imbalances, and abnormalities in the brain's neurotransmitters. 💤 Symptoms of Idiopathic Hypersomnia include excessive daytime sleepiness, difficulty waking up, feeling groggy, and difficulty concentrating. Other symptoms may include headaches, memory problems, and irritability. 💤 Treatment for Idiopathic Hypersomnia typically involves medications that help promote wakefulness during the day. These medications may include stimulants, such as modafinil or armodafinil. Lifestyle changes, such as maintaining a regular sleep schedule and avoiding caffeine and alcohol, may also be helpful. 💤 In conclusion, Idiopathic Hypersomnia is a sleep disorder that causes excessive daytime sleepiness. Its cause is unknown, but it's thought to be related to a problem with the brain's ability to regulate sleep. Symptoms include difficulty waking up, feeling groggy, and difficulty concentrating. Treatment involves medications and lifestyle changes.2. The Role of Diet in Managing Idiopathic HypersomniaProper diet can help manage idiopathic hypersomnia symptoms. Eat a balanced diet with whole grains, fruits, and vegetables. Avoid caffeine, alcohol, and sugar, which can worsen symptoms. Consider a low-carbohydrate, high-protein diet to improve wakefulness. Supplements like magnesium, vitamin D, and iron may also help. Magnesium can improve sleep quality. Vitamin D deficiency is common in IH patients and can cause fatigue. Iron deficiency can cause restless leg syndrome and worsen symptoms. Consult a doctor or registered dietitian to create a personalized plan. Individual needs and sensitivities vary. Don't make drastic changes without medical guidance. Track symptoms and adjust accordingly. Remember that diet is only one aspect of managing IH. Other strategies like medication and lifestyle changes may also be necessary. Stay positive and stay committed to finding what works for you. 💪 3. Foods to Avoid for Better Sleep Quality with Idiopathic HypersomniaAvoid these foods for better sleep quality with idiopathic hypersomnia: Caffeine-containing beverages (coffee, tea, soda) Alcohol Spicy foods Fatty and fried foods Sugary foods and drinks Processed and fast foods These foods can disrupt sleep patterns and worsen symptoms of idiopathic hypersomnia. Instead, opt for: Whole grains Fruits and vegetables Lean proteins Nuts and seeds Herbal teas Water Keeping a food diary can help identify triggers and improve sleep quality. Consult a doctor or nutritionist for personalized advice. Remember, a healthy diet is just one aspect of managing idiopathic hypersomnia. Prioritize good sleep hygiene, regular exercise, and stress management for optimal results. 😴💪🧘‍♀️4. Nutrients and Supplements that Can Help Manage Idiopathic HypersomniaThere are several : Magnesium: Helps regulate sleep and relax muscles. Take 200-400mg before bed. Vitamin B12: Helps with energy levels. Take 500-1000mcg daily. Iron: Helps with fatigue. Take 18mg daily. Melatonin: Helps regulate sleep. Take 1-5mg before bed. Ginkgo Biloba: Helps with cognitive function. Take 120-240mg daily. It's important to talk to your doctor before taking any supplements, especially if you're on medication. Other lifestyle changes that can help manage idiopathic hypersomnia include: Establishing a regular sleep schedule Creating a relaxing bedtime routine Avoiding caffeine and alcohol before bed Exercising regularly Reducing stress Remember, managing idiopathic hypersomnia is a journey. It may take time to find what works best for you. Don't give up! 💪5. Meal Planning Tips for Idiopathic Hypersomnia PatientsProper meal planning can help manage symptoms of idiopathic hypersomnia. Here are some tips: Include complex carbs, protein, and healthy fats in every meal. Avoid processed foods and sugary drinks. Drink plenty of water throughout the day. Limit caffeine intake, especially in the afternoon. Consider a low-carb or ketogenic diet to improve energy levels. Meal prep can also be helpful: Cook meals in advance and freeze them for later use. Use a slow cooker to make meals while you sleep. Pack healthy snacks to avoid impulse eating. Keep a food diary to track how different foods affect your symptoms. Consult with a registered dietitian for personalized advice. Don't forget the importance of breakfast: Eat a balanced breakfast within an hour of waking up. Include protein, whole grains, and fruit or vegetables. Avoid high-sugar cereals and pastries. Consider meal replacement shakes for convenience. Try a breakfast meal prep to save time in the morning. Remember to listen to your body: Pay attention to how different foods affect your energy levels. Don't skip meals or restrict calories too much. Be mindful of portion sizes. Consider supplements like B vitamins or iron if deficient. Consult with a healthcare provider before making any major dietary changes. With proper meal planning, idiopathic hypersomnia patients can improve their energy levels and manage their symptoms. 🍎🥦🥑6. Lifestyle Changes to Combine with a Hypersomnia-Friendly Diet Exercise regularly: Exercise can improve sleep quality and reduce daytime sleepiness. Try low-impact activities like yoga or walking. Establish a sleep routine: Go to bed and wake up at the same time every day, even on weekends. Avoid caffeine and alcohol: Both can disrupt sleep patterns and worsen symptoms of hypersomnia. Reduce stress: Stress can exacerbate symptoms of hypersomnia. Try relaxation techniques like meditation or deep breathing. Get natural sunlight: Exposure to natural light can help regulate sleep-wake cycles and improve mood. Limit screen time: Blue light from electronic devices can interfere with sleep. Avoid screens for at least an hour before bed. 7. Consulting with a Nutritionist for Optimal Idiopathic Hypersomnia ManagementConsulting with a nutritionist can help manage idiopathic hypersomnia. 🍎 A nutritionist can create a personalized diet plan to improve energy levels. 🥦 Eating a balanced diet with whole foods can reduce inflammation and promote better sleep. 🥑 Nutrient deficiencies can worsen symptoms, but a nutritionist can identify and address them. 🍓 Avoiding processed foods, sugar, and caffeine can improve sleep quality. 🍌 A nutritionist can recommend supplements, like magnesium and melatonin, to aid sleep. 🥕 Maintaining a healthy weight can reduce symptoms, and a nutritionist can help achieve this. 🍇 A nutritionist can also address any food sensitivities or allergies that may worsen symptoms. 🥬 Overall, consulting with a nutritionist can improve sleep and quality of life for those with idiopathic hypersomnia. In conclusion, managing idiopathic hypersomnia with diet can be a helpful approach. Incorporating nutrient-dense foods, such as fruits and vegetables, can provide sustained energy throughout the day. Avoiding processed foods and sugary snacks can prevent blood sugar crashes and fatigue. It's important to consult with a healthcare professional before making any significant dietary changes. Additionally, lifestyle modifications, such as regular exercise and sleep hygiene, can also improve symptoms. With the right combination of diet and lifestyle changes, those with idiopathic hypersomnia can experience improved energy levels and quality of life. 😴🍎🥦 https://fastdiet.net/managing-idiopathic-hypersomnia-with-diet/?_unique_id=649754907c06a

[rosesandthorns44]

I wonder if my skin picking and hair pulling is effected by my sleep disorder?

Like, am I picking and pulling to stay awake sometimes?

[alottadentata]

A meme for the rest of us. #cripplepunk #idiopathichypersomnia #cfs #fibromyalgia #insomnia #chronicillness https://www.instagram.com/p/Byi9q2VlK08/?igshid=pfdk7c3e59qi

[sleepyavon-blog-blog]

Being #awake is #overrated #yes #narcolepsy #worldnarcolepsyday2021 #suddenlysleepysaturday2021 #knownarcolepsy #sleepin2021 #wheniwakeup Narcolepsy: Not Alone Grab my hand - #narcolepsy is a lot more common most people don’t know they have it. #narcolepsyfriends #narcolepsyawareness #narcolepsy #narcolepsynotalone #raredisease #rarediseaseweek m#rarediseaseday #rarelivesmatter #rarediseaseday2021 #cataplexy #hypocretin #idiopathichypersomnia#kleinlevinsyndrome #straightouttahypocretin #wackassdreams #goodatnaps #knownarcolepsy Project Sleep is a bright light in our lives because It’s founder - Julie does what I always dreamed of since onset. Project Sleep stands up and out for all sleep disorders, like sleep apnea. Thank you... for doing sleep justice #teamnapcave https://www.instagram.com/p/CNrIxZRDZwM/?igshid=ecnxxvfvkw4i

[katherineitacy]

I recently signed up to be a #RareDisease advocate (since I’m apparently collecting rare diseases like I used to collect baseball cards), and today, I’d like to ask my friends, family, and followers to help me out.   All I ask is that you to like these pictures, maybe also share them with your own friends/followers. That’s it!   Next week, I’ll be joining other RARE legislative advocates in meetings with our local members of Congress (Congressman Langevin, Senator Whitehouse, and Senator Reed) to discuss important issues for the #RareDiseaseCommunity   As some of you know, a few years ago, I was diagnosed with idiopathic hypersomnia (IH), which means I’m essentially narcoleptic without falling into REM sleep (probably because I also have #REMBehaviorDisorder ). That means I sleep around 10-11 hours a day on average (some days, 20-22 hours — a real problem for a #type1diabetic ). The sleep is almost always accompanied by night terrors, intense night sweats, and very little restful REM.   In addition to making it impossible for me to work anywhere, it also makes it near-impossible for me to make plans and count on keeping them.   I’m on a stimulant to try and keep me awake during the day, but it’s not powerful enough. When my doctor tried to add an additional stimulant to the regimen, my insurance refused to pay for it, claiming there has yet to be enough studies done to prove the effectiveness of that drug on IH patients.   Rare Disease Legislative Advocates (RDLA) is an important organization that tries to draw attention to these types of issues, and I’m proud to have joined as a first time advocate this year. I hope you’ll like and share this post so that others can learn more about this essential work. As you can imagine, it’s hard to get funding and congressional support for issues that are mostly unknown by the general public. Please help me get the word out, and please consider supporting #RDLA and the #HypersomniaFoundation. Thank you!   #RAREacrossAmerica2021 #RAREacrossAmerica #RareDisease #advocacy #hypersomnia #idiopathichypersomnia #BeyondSleepy #AlwaysExhausted @repjimlangevin @senwhitehouse (at Warwick, Rhode Island) https://www.instagram.com/p/CLmNUxBns4O/?igshid=1duercgqfyzce

[sleepyamerican]

Amazing, the most amazingly kind, smart, talented, caring, inspiring and strongest are destined to battle invisible illness. I’ve never met anyone short of stellar winthin the disability community whom was any less. ! life Are people with ? Yes and the rule the world. https://kukuwesteu4.blob.core.windows.net/production-kuku-attachment-images/b8f92b31b959314111ce2d9129ae83623c71530efe36b7d7d902d2fa8a86fcb3/super_spoonie_girl_anthem.mp4

[rjmilewski]

(via 10 things that seem normal when you're chronically ill that definitely are not)

[lovesilentfury]

Regrann from @project_sleep - All the sleep. We want it alllll! 💗😴🙌🏽 Happy Thursday, friends! Almost the weekend. #sleeprules #makepeacewithsleep #projectsleep #narcolepsy #idiopathichypersomnia #beyondsleepy #sleepapnea #restlesslegsyndrome #kls #spoonie #chroniclife #insomnia (at Park Hill, Denver)

[noeasywords]

I don't think people realize how badly I #struggle every single day, some days are better and some days I struggle so much- I can't recall what happened the next day. So #imagine the worst hangover you have ever had and add about 24+ hours without #sleep! That's what it's like for me everyday and it's only gotten worse.- I have idiopathic hypersomnia. This isn't something I tell people for sympathy or as an excuse. And when I have to tell friends I have to leave from a party or hanging out because I'm tired. They don't understand. Often when I do explain this to people, co-workers and sometimes friends- they are supportive and understanding, Or I get the opposite, some of them claim they understand because they "feel that way" sometimes and claim they might have it. Which is insulting! As if to patronize me and others whom suffer from this. This #disorder is extremely #uncommon, more rare than #narcolepsy and there is less of an understanding of it too. So here #support me and the #study of #Hypersomnia during the #awareness week. #september 5-11 #idiopathichypersomnia

[wakingupsleepy-blog]

#invisibleillness awareness week is coming up. Please support this campaign @pugwithpersistentpain #seepaincampaign. Lets create #socialchange and make the invisible more visible. As a person living with #idiopathichypersomnia and having worked with people with #chronicpain #chronicfatigue , I understand how isolating and marginalising the stigma of living with a health condition that others cannot see, can be. My #invisiblefight is not for others to understand what life is like with an invisible condition but for people to recognise that it exists; that our experiences are real.

[iflyastarship]

When you have a sleep condition that causes you to be tired 24/7 and then you sleep through your sleep doctor appointment 😩😩😩 #idiopathichypersomnia 💦💦💦

[sleepyamerican]

#sleeptamericanbadass is track 1 “oh narcolepsy it’s more than silly nap games. It’s like the devil wanting a 3 some every night. As you fight for every sense of your might of your life.”

Tomorrow is World Narcolepsy Day. My very first album drops tomorrow midnight September 22nd iTunes, Spotify. This is track 1. Please vote, share, do our Independent musician thing and make music more inclusive. I have #narcolepsy with #Cataplexy it’s more common than you think. As a rising voice is a Narcolepsy Advocate I’m feeling obligation to continue raising awareness about a disorder that affects every aspect of my life every single day. #Worldnarcolepsyday2021

Pacing is key. Self forgiveness and understanding my body could end up a grumpy fleshy boneless-like mess at any emotional or fighting sleepiness at any moment is tough. And I yearn for a more educated and empathetic world for all. @project_sleep World Narcolepsy Day is September 22nd which shares itself with two special people in my support system, my Dad David Nesmith and my Mother in Love Janie Harrison. So September 22nd is so meaningful to me. Would you celebrate with us? And wish my dad and Mom in law a most happy Birthday?#narcolepsyfriends #narcolepsyawareness #narcolepsy #narcolepsynotalone #raredisease #rarediseaseweek #rarediseaseday #rarelivesmatter #rarediseaseday2021 #cataplexy #hypocretin #idiopathichypersomnia #kleinlevinsyndrome #straightouttahypocretin #wackassdreams #goodatnaps #knownarcolepsy

I want to make the music on iTunes more diverse my challenges with being a person with severe Narcolepsy with Cataplexy are.

My Debut album #Disinvincible as an independent artist is to educated society that Persons with Disabilities and Chroinic Illness are some of the most phenomenally good hearted,strong, smart, unbelievable grit, empathy, and love. We are not second class weak nothings. We are even stronger and empathic towards everyone. We are DisInvincible. We are Superheroes!

TuneCore helped my dream and musical goal possible. My father and I have always loves playing and writing music. World Narcolepsy Day is September 22nd which shares itself with two special people in my support system, my Dad David Nesmith and my Mother in Love Janie Harrison. So September 22nd is so meaningful to me. Would you celebrate with us? And wish my dad and Mom in law a most happy Birthday? 🎊 I want to make the music on iTunes more diverse re my challenges with being a person with severe Narcolepsy with Cataplexy.

[makefriendswithchaos]

Some days i wake up with no hope or physical capability of getting out of bed without the need for #dexamphatetamine. I would wake up and if dex was not in arms reach i would fall back asleep within seconds. Other days I feel like a normal person and ready to take on the world until that is I start to do something like make breakfast, and feel my #spoons rapidly disappearing and a need to return to bed. #sleep gives me no relief i am exhausted all the time. I feel sedated. I crave sleep and yet sleep does nothing for me. My spoons are nit infinite. I have to strategise everyday like i was strategising for a war, so that only the most impirtant things get done. I take so much #dexamphatetamine that I am guaranteed a #heartcondition later in life. I do not wish #idiopathichypersomnia on anyone. I hate #wakingupsleepy and #livinglifeinbed. This is my #chronicillness it is an #invisibleillness and i have to learn to deal with it somehow because its not going away anytime soon.

[idiopathichypersomnia-blog]

Please place your vote to help raise funds for Idiopathic Hypersomnia research! Only 14~ hours left to vote so you've got to be quick :-D

[sailsoncourse]

Hi all! September 8-14 is Idiopathic Hypersomnia (IH) Awareness Week. IH is a rare neurological disorder that affects the parts of the brain that regulate sleep and wakefulness. IH causes, in short, excessive sleepiness and is something I have suffered from since my teens. Before my diagnosis, friends and family thought I was lazy or depressed because this disorder isn’t well known and it took falling asleep at the wheel one too many times before I was pushed to get answers. Even though I now have a diagnosis, it is still heavily misunderstood by most, including my friends, so it’s important to spread awareness of IH. I think the majority of you have seen me in the ‘Cranky’ stage of sleepiness when I’m deprived of my daytime nap and without medication… If you’d like to learn more, including the other symptoms of IH, check out this website (http://www.sleephealthfoundation.org.au/fact-sheets-a-z/351-idiopathic-hypersomnia.html) and also look at the resources at the bottom of that page. Now back to your usual schedule of selfies and food pictures. #idiopathichypersomnia #IH #idiopathichypersomnolence #sleepdisorder #health #awareness #personalpost #pleasestoptellingmeyourealwaystiredtoo #itsnotthesamething #andifyouare #seeasleepspecialist

[wakingupsleepy-blog]

Physically unable to get out of bed before IH takes over. Woke up at 7am 830 930 now, 1130am. Dex detox longweekend. #drugholiday #detox #idiopathichypersomniac #idiopathichypersomnilence #invisibleillness #chroniccondition #spoonie #spoontheory #idiopathichypersomnia #nodex #selfie #sleepyhead