#i think about this a lot because i've been having a lot of health issues Tumblr posts

[allsadnshit]

Do you have any tips or any meals for dealing with PMS? I know everyone is different but curious what you do.

The tough thing about PMS and also why I think it's so hard to get real help is cause your reproductive organs really really conduct a lot of the movement for your body and health so because it's all connected, you have to address it is a whole body issue from what I've experienced - which tends to be overwhelming if you don't have any experience with holistic medicine or traditional Chinese medicine perspectives in healing

For me, I've been taking an herbal tincture specifically for my endo and issues from Elix, they are a wild crafted herb modern Chinese medicine approach to traditional practices which is a little more accessible than trying to find an herbalist locally and it's helped a lot. They also are good about giving a LOT of information about how it works and understanding what to expect from the process since it's very very at its core different from western pharmaceuticals and the side effects and timeline you'd expect

The other thing that I need to work on myself but so believe makes a serious difference is eating and sleeping. Eating a nourishing breakfast like soup or congee is reaaaally important in the connection to your menstrual cycle symptoms and it's not about doing it only on your cycle but like all the time is what actually gives the pay off when pms actually rolls around! And sleeping a full night is not a replaceable thing in your health either - and for many years I never slept more than 6 hours because I had such an early shift and so much anxiety around it.

Lastly I'd say getting a proper natural dry brush for your body and like checking out some YouTube videos on how to brush for your lymphatic drainage and circulation along with regular ginger tea can do so much for your whole system and also genuinely relieves pain in a really helpful way for my pms even if it's not a cure all!

When it comes to pms I think the most important thing to do is to make those little lifestyles adjustments like making sure you work out and sleep and eat BEFORE you try more extreme routes cause there really is something to it!!!!!

[non-un-topo]

No one talks about this so here's a small reminder to keep your eyes on your own plate. If a skinny person is refusing food, it does not necessarily mean a) they have a restrictive eating disorder or b) they are calling you fat. Mind your business.

[spotaus]

Thinking about Orchid and her connection to my take on Gender (because this was meant to be about her and the Crew but it just devolved into a character analysis kinda??? More trauma-dumping maybe???) This is very much an oc/personal rant so feel free to ignore it 🫡

So, Orchid started off as a character I didn't really think much of (hear me out this is going to be relevant) because I wanted to add a 'girl' character but didn't know what to *do* with her, y'know? She was always going to be the strongest one there, she had the odds stacked in her favor with her parents. She was always going to be the gloomy side-character to match Reset's energy. But I think she's gone through every stage of Generic Woman I could possibly find.

At first she was angry and abrasive (think Fell!Sans) where every other word was a curse and she was likely to throw the first punch then laugh as she kicks her enemy while they're down. This was when Reset was a cartoonishly self-centered villain whose goal was simply to prove others wrong. Then Orchid became a sort of sisterly figure. This was short-lived, but she was the one comforting people who Reset would torment, but would ultimately follow his orders, because at this point he was actually a danger and sadistic. And then there was the phase where the story mellowed out and she became the token Goth Girl who, yes she was strong, but was heavy on the 'whatever' energy. Then there was her Era of deep self-loathing and anxiety about her worth that held her back and made her a much more timid and meek character who would only lash out on occasion.

Now, Orchid is the best of those iterations I've written yet. She's calm, level-headed, and a natural leader. Her father raised those traits into her. But she's very reactive, and can be silly, and when she's comfortable it's likely that air of importance transforms into something more comfortable and familiar. She laughs loudly and grins wide, she likes loud video-games but loves to read in the quiet. She's extremely disciplined, and normally no one can get through her tough exterior besides her best friend, Reset. She does what she does for her own enjoyment, sure, but she's thought of every angle and makes her choice to help Reset and control the others with her whole chest. She still worries she won't live up to her invisible expectations, and that and her loyalty are her two driving forces.

I know that Orchid is important to me because she's the longest-running female oc I've had. I have a rough relationship with womanhood/girlhood and I know looking back that Orchid recieved every ounce of my distaste for being a woman that I could shovel into her. That never made her less of a character, she was actually always one of my favorites, and rarely was she a 'punching bag oc'. I just... projected onto her a lot. And she's a good sign of how I've learned who I am. I've decided that my own femininity is something I could live without. I'd rather not associate myself with it, and I'd like to leave it in my past, focusing on a future where I'm not tied down with any gender roles or expectations. That won't happen, but I've come to terms with it myself. Orchid though? I figured out through her that I don't have to hate women characters. My own distaste for my circumstances doesn't mean I have to push it onto my characters (on God I've never expressed anything rude to actual people, that'd be rude as hell and uncalled for, but I have a bad habit of disliking fictional women in media). So, Orchid is a well-roubded character finally. She has motivations abd goals and a *lot* more depth than I ever expected her to. She's happy with being a woman, she's content. She's not treated differently for it in unfair ways by those she cares about, so she doesn't mind it. She likes to wear pretty outfits and lets Reset add bows to her ribbons. She doesn't let being a woman hold her back in the slightest.

So, yeah. Orchid is one of my babies. If I ever leave this Fandom behind for good, she's one that's coming with (Ichor, Orchid, and Pretender all have human designs I can use elsewhere lol-) but in the meantime I'll just rotate her around in my brain for a while longer.

If I'm right, she's been with me for nearly 5-6 years and I went through a *lot* with her as an outlet. So, she's kinda just like an old stuffed animal. A lil ripped, matted fur, maybe a stain or two, but there's a story there and that makes it important beyond belief.

[stillfruit]

i love not knowing if i'll ever be healthy again i love all of the time i've used to move my body become nothing i love spending my adulthood wasting away year after year for various reasons baby!

[mythicalcoolkid]

All of the things that would be "awkward" for me to do around extended family are really not because of me or anything about the thing itself, but entirely about how my parents stopped telling anyone major information about me after like fifth grade

Like I can't bring have disability aids with me NOT because health stuff is weird but because it's much weirder that I have in fact had significant health problems since I can remember and have been disabled since, generously, 17 (more accurately 11 or 12) and my parents didn't tell anyone. I can't officially come out NOT because people would be weird about it (they would but I don't care) but because that would necessitate admitting that I've been living socially as male for going on ten years now and my parents never said anything and had me just. Pretend I wasn't. Like it's so funny now that I've had so many huge life changes that I CAN'T talk about it because the inevitable follow-up is "wait. This has been going on HOW long...?"

[tardis--dreams]

I wish i could get buproprion without a prescription this shit is way too good to give up ㅠㅠ

[thedevotionaltour]

in terms of art alone im sorry. im a jrjr defender to my last breath you be fucking nice to him. i dont wanna hear shit❗️❗️❗️

[cocklessboy]

The biggest male privilege I have so far encountered is going to the doctor.

I lived as a woman for 35 years. I have a lifetime of chronic health issues including chronic pain, chronic fatigue, respiratory issues, and neurodivergence (autistic + ADHD). There's so much wrong with my body and brain that I have never dared to make a single list of it to show a doctor because I was so sure I would be sent directly to a psychologist specializing in hypochondria (sorry, "anxiety") without getting a single test done.

And I was right. Anytime I ever tried to bring up even one of my health issues, every doctor's initial reaction was, at best, to look at me with doubt. A raised eyebrow. A seemingly casual, offhand question about whether I'd ever been diagnosed with an anxiety disorder. Even female doctors!

We're not talking about super rare symptoms here either. Joint pain. Chronic joint pain since I was about 19 years old. Back pain. Trouble breathing. Allergy-like reactions to things that aren't typically allergens. Headaches. Brain fog. Severe insomnia. Sensitivity to cold and heat.

There's a lot more going on than that, but those were the things I thought I might be able to at least get some acknowledgement of. Some tests, at least. But 90% of the time I was told to go home, rest, take a few days off work, take some benzos (which they'd throw at me without hesitation), just chill out a bit, you'll be fine. Anxiety can cause all kinds of odd symptoms.

Anyone female-presenting reading this is surely nodding along. Yup, that's just how doctors are.

Except...

I started transitioning about 2.5 years ago. At this point I have a beard, male pattern baldness, a deep voice, and a flat chest. All of my doctors know that I'm trans because I still haven't managed to get all the paperwork legally changed, but when they look at me, even if they knew me as female at first, they see a man.

I knew men didn't face the same hurdles when it came to health care, but I had no idea it was this different.

The last time I saw my GP (a man, fairly young, 30s or so), I mentioned chronic pain, and he was concerned to see that it wasn't represented in my file. Previous doctors hadn't even bothered to write it down. He pushed his next appointment back to spend nearly an hour with me going through my entire body while I described every type of chronic pain I had, how long I'd had it, what causes I was aware of. He asked me if I had any theories as to why I had so much pain and looked at me with concerned expectation, hoping I might have a starting point for him. He immediately drew up referrals for pain specialists (a profession I didn't even know existed till that moment) and physical therapy. He said depending on how it goes, he may need to help me get on some degree of disability assistance from the government, since I obviously shouldn't be trying to work full-time under these circumstances.

Never a glimmer of doubt in his eye. Never did he so much as mention the word "anxiety".

There's also my psychiatrist. He diagnosed me with ADHD last year (meeting me as a man from the start, though he knew I was trans). He never doubted my symptoms or medical history. He also took my pain and sleep issues seriously from the start and has been trying to help me find medications to help both those things while I go through the long process of seeing other specialists. I've had bad reactions to almost everything I've tried, because that's what always happens. Sometimes it seems like I'm allergic to the whole world.

And then, just a few days ago, the most shocking thing happened. I'd been wondering for a while if I might have a mast cell condition like MCAS, having read a lot of informative posts by @thebibliosphere which sounded a little too relatable. Another friend suggested it might explain some of my problems, so I decided to mention it to the psychiatrist, fully prepared to laugh it off. Yeah, a friend thinks I might have it, I'm not convinced though.

His response? That's an interesting theory. It would be difficult to test for especially in this country, but that's no reason not to try treatments and see if they are helpful. He adjusted his medication recommendations immediately based on this suggestion. He's researching an elimination diet to diagnose my food sensitivities.

I casually mentioned MCAS, something routinely dismissed by doctors with female patients, and he instantly took the possibility seriously.

That's it. I've reached peak male privilege. There is nothing else that could happen that could be more insane than that.

I literally keep having to hold myself back from apologizing or hedging or trying to frame my theories as someone else's idea lest I be dismissed as a hypochondriac. I told the doctor I'd like to make a big list of every health issue I have, diagnosed and undiagnosed, every theory I've been given or come up with myself, and every medication I've tried and my reactions to it - something I've never done because I knew for a fact no doctor would take me seriously if they saw such a list all at once. He said it was a good idea and could be very helpful.

Female-presenting people are of course not going to be surprised by any of this, but in my experience, male-presenting people often are. When you've never had a doctor scoff at you, laugh at you, literally say "I won't consider that possibility until you've been cleared by a psychologist" for the most mundane of health problems, it might be hard to imagine just how demoralizing it is. How scary it becomes going to the doctor. How you can internalize the idea that you're just imagining things, making a big deal out of nothing.

Now that I'm visibly a man, all of my doctors are suddenly very concerned about the fact that I've been simply living like this for nearly four decades with no help. And I know how many women will have to go their whole lives never getting that help simply because of sexism in the medical field.

If you know a doctor, show them this story. Even if they are female. Even if they consider themselves leftists and feminists and allies. Ask them to really, truly, deep down, consider whether they really treat their male and female patients the same. Suggest that the next time they hear a valid complaint from a male patient, imagine they were a woman and consider whether you'd take it seriously. The next time they hear a frivolous-sounding complaint from a female patient, imagine they were a man and consider whether it would sound more credible.

It's hard to unlearn these biases. But it simply has to be done. I've lived both sides of this issue. And every doctor insists they treat their male and female patients the same. But some of the doctors astonished that I didn't get better care in the past are the same doctors who dismissed me before.

I'm glad I'm getting the care I need, even if it is several decades late. And I'm angry that it took so long. And I'm furious that most female-presenting people will never have this chance.

[scarletcomet]

can't do this (life)

[astonmartinii]

forever and a day | oscar piastri social media au

pairing: oscar piastri x fem long distance reader

nothing can separate them, except maybe 9,000 miles and a couple of oceans.

MASTERLIST | TIP JAR

oscarpiastri

liked by logansargeant, landonorris and 893,209 others

tagged: yourusername

oscarpiastri: finally back in the homeland and reunited with my girl

view all comments

user1: oscary/n nation we are so back

user2: australia always does us so well

yourusername: can you convince mclaren that they should keep paying for our dates

oscarpiastri: i think we were technically working

yourusername: were we? it never feels like work being with you

oscarpiastri: you didn't notice all of the people around us and filming us?

yourusername: i only have eyes for you osc, we know this

oscarpiastri: hehehhehehehee

yourusername: also i have to completely commit you to memory before you fuck off for another couple of months

oscarpiastri: you could always just come with me

yourusername: let me get my degree first, one of us has to be educated osc

oscarpiastri: i have my a-levels? lando doesn't even have gcses

landonorris: why am i catching a stray?

yourusername: because my boyf is smart

landonorris: i've got street smarts 😩

oscarpiastri: you've been catfished like five times already and nearly had your bank details stole?

landonorris: well ... i like to see the best in people?

user3: thank you mclaren for giving us the oscar and y/n content

user4: and the proof that love still exists

user5: terminally lonely girls block mclaren, oscar and y/n.- it's for your mental health

user6: or if you have commitment issues this is some good exposure therapy

logansargeant: oh who did you force to be your photographer this time?

yourusername: you never learnt reading comprehension in school?

logansargeant: i can read i just choose not to read the soppy shit you and oscar say to each other

oscarpiastri: leave us alone

yourusername: you have a problem with us no matter what 🤨

logansargeant: do NOT make me the bad guy for complaining about hearing your guys' sexy time

oscarpiastri: we spend A LOT of time away from each other

yourusername: and by the sounds of it, you could learn a lot

logansargeant: you know what WHATEVER

user7: they terrorise logan so much from opposite sides of the world, pray for him when she can travel with oscar

yourusername

liked by oscarpiastri, landonorris and 83,409 others

yourusername: i love any piece of you osc but the separation anxiety is kicking my ass

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user9: oscar gave y/n a plush of himself

user10: no cause he's literally such a black cat

yourusername: he blushes just like that as well

user11: oh really?

user12: want to share with the class

yourusername: that's for my eyes only

oscarpiastri: i'm glad he got to you safely

yourusername: i just about tackled the postman 😔

oscarpiastri: poor graham, we should get him a better christmas gift this year

yourusername: yeah sorry graham but you sprayed the kitty with your cologne and i can't be held responsible for my feral behaviour

user13: they get their postman christmas gifts?

user14: they have the same postman?

user15: yes, y/n lives with his family

user16: really?

yourusername: they can't get rid of me

oscarpiastri: they also love her as much as i do (literally, i have to fight my sisters to spend time with y/n)

landonorris: so this is why we were waiting so long for you at the airport

oscarpiastri: well, yes. it's very important i get y/n a souvenir

landonorris: i could've slept for like an hour longer?

yourusername: just because you don't understand true romance lando 🤨

landonorris: i know romance!

yourusername: maccies in a hotel room is not romance

landonorris: you guys are just freaks about each other that's not my fault

user17: y/n hanging out with oscar's sisters is so precious

user18: if they aren't married soon i will no longer believe in love

user19: they're 23?

user20: tbf i forget that because they've been together since they were like 15

logansargeant

liked by yourusername, oscarpiastri and 351,904 others

tagged: oscarpiastri

logansargeant: oscar forced me to post this so y/n could 'remember how hot he is while he's away at war'

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user21: oh wow... thank you logan!

user22: this is not exactly what i was expecting when i opened instagram but alas i'm not complaining

yourusername: WOOF WOOF WOOF

oscarpiastri: 🤭🤭🤭

logansargeant: someone please remind me why i'm friends with you two

yourusername: because we're your only friends?

yourusername: wait sorry that was mean

yourusername: i just get protective

logansargeant: you're telling me 🤨

oscarpiastri: i'm swooning 🥰🩷

logansargeant: i give up

alexalbon: why am i a part of this oscar thirst trap? why are you posting a thirst trap of oscar?

yourusername: HE'S A GOOD FRIEND

alexalbon: i didn't consent to be part of your weird long distance lust

yourusername: oh girl ain't no one looking at you when oscar is there

alexalbon: you know what you're mean :( i want you to stay in australia

yourusername: i promise i'm a lot nicer when i'm with osc, the distance makes me cranky

alexalbon: i see, remind me to never take oscar out in a race

logansargeant: i think that's wise - i heard her yelling down the phone about carlos

yourusername: i had to block him to stop myself

user23: i am honestly so confused

user24: i think we just let them do it, we'll never understand

landonorris: do NOT ask me to do this @oscarpiastri

yourusername: booooooo you're such a debbie downer

oscarpiastri: he's just s fuckboy he doesn't understand

landonorris: i don't think i'll ever understand you two

yourusername

liked by logansargeant, oscarpiastri and 119,056 others

yourusername: one degree hotter xx

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user26: fucking finally now we can get y/n in the paddock every weekend

liked by oscarpiastri

user27: mclaren social media team seen celebrating just as much

oscarpiastri: and i didn't think it was possible for you to get any hotter

yourusername: maybe a piastri jersey?

oscarpiastri: and a ring?

yourusername: AHHHHHHHHHHHHHHHH

yourusername: you know i'll never say no to that

yourusername: do nOT propose through an instagram comment oscar - nicole

oscarpiastri: noted 😔

yourusername: but name the time and the place and i'll be there baby

user28: so we could defo get a y/noscar proposal this season

user29: i would be so insufferable it's unbelievable

user30: the way i just know it was killing oscar not being able to go

user31: did you guys see the kicked dog eyes in the paddock yesterday 😭😭😭

oscarpiastri: they had to force me on the plane

landonorris: no they legit were about to call mick or pato

user32: did y/n convince you to not run away to australia?

oscarpiastri: maybe ....

charles_leclerc: ummmmm who is this oscar? why hasn't your father been introduced?

yourusername: HI

oscarpiastri: y/n is the love of my life and you SHOULD be able to meet her next race weekend

yourusername: so have i also got another father-in-law?

charles_leclerc: you seem to terrorise the other drivers a lot so - yeah!

yourusername: at your service (unless it's you hitting oscar, then there's no MERCY)

charles_leclerc: okay you are kinda scary wtf

oscarpiastri

liked by alexalbon, yourusername and 1,203,677 others

tagged: yourusername

oscarpiastri: unbelievably proud of you and everything you've done darling. i'm so sorry i couldn't be there to celebrate with you, but i'll make it up to you before you know it xx

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user33: oh to be loved like this

user34: they make me feel lonely like the world apart i can only imagine how insane it'll be when they're back together 24/7

yourusername: i love you so so so much osc. you've done more than you could know by supporting me through my education. we have the rest of our lives to be together, so don't beat yourself about it now

oscarpiastri: but i'm so proud of you and just wanted to be there to celebrate you :(

yourusername: osc i can feel you pouting through the screen baby

landonorris: he really is and it's kinda annoyingly cute

yourusername: of course it's cute it's oscar 🙄

landonorris: right so i'll take back my congratulations then

yourusername: FINE BY ME

user35: obsessed with how y/n and lando already have this weird sibling bond

user36: it's the weird relationship that you kind of love between your gf and friend

user37: it's all cute until they actually fight

yourusername: if he makes any wrong step against oscar i'll crush that loser

landonorris: ahhaaha funny joke

yourusername: you're a 5'5 twig, i could snap you in half

user38: i need them to recreate the last photo when oscar wins his first race

user39: i think pinterest would explode

yourusername: no but no joke, i love you so much osc and i can't wait to start the new chapter of our life

oscarpiastri: i love you too xx

oscarpiastri: sorry to my sisters but they're losing their live in stylist because you're never ever leaving me ever again

oscarpiastri: that makes me sound like a possessive asshole but i just have attachment issues

yourusername: no these years since you started in f3 have been actual hell without you and i never want to leave your side again

yourusername: i just love watching you do what you love

oscarpiastri: i'll always love you more

user40: who's chopping onions wtf

user41: i'm invoicing them for my therapy

mclarenf1

liked by fredvesti, arthurleclerc and 1,256,046 others

tagged: yourusername

mclarenf1: don't tell oscar but we've got a surprise guest for him 🤫

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user45: take me out back and shoot me please and thank you

user46: so real of you

landonorris: is this why his phone is currently hidden in my drivers room?

mclarenf1: maybe ...

landonorris: if he fights me for it that's on you guys

mclarenf1: wait admin has just realised you definitely shouldn't be on your phone

landonorris: LOL

user47: mclaren you better not fuck this race for oscar because i need my big rom com ending kiss in parc ferme

user48: omg romance writers do i have a plot for you

user49: the way this would seem so unrealistic if i read it in a book but these fools really have been together for like eight years and are unbelievably in love

yourusername: heheheheh thanks for flying me out on such late notice xx

mclarenf1: no worries queen

yourusername: you guys better be on top form, you can't hide from me in the garage

mclarenf1: hahahaha 😅😅😅

user50: is y/n the reincarnation of nicole scherzinger? like a wag that goes fucking mental

user51: and wears team merch with pride

yourusername: nicole is a queen (thank you for one direction queen) but you guys do not want me on the microphone

user52: you and oscar karaoke? please?

yourusername: we once did breaking free together but you'll have to bother logan for that video

user53: OSCAR PLEASE WIN AND DO DRUNK KARAOKE

oscarpiastri

liked by landonorris, yourusername and 1,556,308 others

tagged: yourusername

oscarpiastri: i told you she was my lucky charm. overjoyed to get my first win, it's a dream come true and to have the love of my life with me makes it even sweeter. y/n, i'll love you forever and a day x

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user54: CONGRATS OSCAR 🧡🧡🧡

user55: i'm having such a proud mum moment

user56: tears in my eyes

user57: not as much as y/n that girl was going THROUGH IT

user58: we need her mascara, cause that shit didn't budge

yourusername: I AM SO FUCKING PROUD OF YOU OSCAR

yourusername: I LOVE YOU SO MUCH

yourusername: AND THANK YOU FOR WAITING FOR ME TO BE AT A RACE TO WIN

oscarpiastri: i guess i just knew in my bones you were here and simply had to win

oscarpiastri: i just wanted to see you so bad that i drove the fastest to the finish line

yourusername: well tell them to hurry up and debrief so we can celebrate 👀

oscarpiastri: ON MY WAY

user59: maybe we will get that karaoke?

logansargeant: congrats bro! @landonorris i hope you brought some ear plugs, if not you might want to start drinking now

landonorris: SOMEONE GET ME A DRINK STAT

yourusername: i'll personally buy you a drink because i'm going to rock his world tonight

oscarpiastri: 😎😎😎

landonorris: and here i thought you were my little innocent teammate

yourusername: there's nothing little about him

landonorris: EWWWW GET THE FUCK OUT OF MY FACE

yourusername: all celebrations aside, i'm so proud and i'll love you forever and always x

oscarpiastri: it's always been you and it will always be you

yourusername: i love you

oscarpiastri: i love you too

fin.

note: WOOOOOOOOOO OSCAR!!! (i'm ignoring everything else to do with the race, oscar is my king)

[creekfiend]

I wanted to make a bonsai kitten recovery post that outlines some of the stuff that I've been doing. Because I don't think that you need to ✨see a therapist✨ to start dealing with a lot of this stuff and I get really frustrated when that is the answer that everyone is constantly giving. Firstly a disclaimer, because I know what website I am on: this is a guide for things that have worked for me! I am not everyone and if there are things on here that do not work for you or even that you think are stupid, that is fine, but please do not make it my problem. If you are reading it and you're like "that sounds like it would actually be detrimental to my specific mental health because of my specific issues" then please disregard it. Use your critical thinking skills and do what you think is right for you!

My second disclaimer is that I didn't make any of this up myself; most of these are collected from various places either in therapeutic guide books or various websites about emotional regulation etc. Some of it is stuff that I have extrapolated from those places based on experience with what works for me or does not work for me. A lot of the way that I treat myself when I need to get my body and brain into a place where I can think about stuff productively is actually directly from gentle parenting guides, because frankly cptsd recovery stuff is very often like parenting a toddler. And the toddler is you. ALL THAT SAID,

The first skill that I had to get good at, that many of the other skills depend on, is to learn how to understand when I am Reacting to something. If I am Reacting it is extremely likely that that's going to only escalate the situation and make it much worse. I HAVE to be able to tell if I am Reacting emotionally to something in a way that is coming from a place of fear and panic. This is important because it involves not being prescriptive about your emotions. You could be Reacting to something that you do not logically feel is at all justified in making you feel that way and that doesn't matter! You can't be doing math equations to try to come to the answer of how you SHOULD be feeling; you have to be observing your mind and body to see how you factually ARE feeling and then respond to THAT. This can be really hard to learn how to do especially if you were abused as a child. (If you cannot think of yourself as someone who is abused as a child perhaps it would help to think of yourself as someone who simply was not taught various emotional regulation skills for mysterious reasons that have nothing to do with your parents' inadequacies.) I need to be able to glance inward and see what the physiological reaction that I'm having is and identify whether or not I feel like this is the biggest emergency in the world that needs to be addressed right now immediately! That is a sure sign that Mr Fight and Mr Flight are in the building and it is bad to make declarative statements or important decisions when that is the case. So, I have to work on dismissing them first. That is literally the first step to any of this. One of my friends calls this "fire mittens," which is to say, if you are wearing mittens that are on fire and you try to touch stuff, the stuff will also become on fire. You have to put the fire out first before you can touch other things.

Once I have determined that I am indeed Reacting and in a physiological state of fear, I have a document in my notes app that is a "what to do when you are in fight or flight mode" guide and it has several helpful things that I will try to outline here.

Firstly, the really important thing for me for trying to get back into an emotional state where I'm capable of making decisions and being thoughtful is to feel safe and comfortable. So I actually have some stuff in my document that is straight up just like "go in the blankie nest. put on this specific music album. light this specific scented candle." etc. You might want to have a specific food or drink that is comforting to you or some other sort of stim toy that helps you regulate. If there's any calming medication or supplements for anxiety that you take as needed, now is also the time to do that. Physical sensory grounding is really important for this. This is probably especially true if, like me, you are neurodivergent, but I think it is also true for everyone because we are animals! And you can't just think about it, you have to actually do it. Which sounds obvious but is the thing that has often tripped me up in the past. Once you start getting into the habit of actually physically doing this it DOES become easier though.

One of my rules is that if I want to respond to something but I am in fight or flight mode, I don't get to respond to it for at least 24 hours. I'm only allowed to respond once I've gotten myself out of fear mode. If it is some kind of comment on Facebook that has set me off, often this means that 24 hours later I realize that I actually don't want to get into it to begin with, which is great. If it's something that is pretty serious and interpersonal with a friend, sometimes that means I have to communicate to them that I'm going to take a while to process it and then get back to them. IMPORTANT: You CANNOT do this passive aggressively or else it undermines the whole thing. You can't phrase it in a way that will make your friends think that you are guilt tripping them for "making" you feel a way. It is VERY tempting to do this when you are in the first stages of trying to form this habit and you simply need to resist the urge because it will render this step worthless. I know. It sucks.

If I am feeling fearful and insecure about friends or loved ones, I also usually try to spend some time thinking about the people that I love and care about. Because often this stuff manifest for me as insecurity that the people that I care about do not care about me, or that they think that I'm being annoying, or that they are secretly thinking mean things about me. It's obviously not good for me to constantly be imagining that the people in my life who I care about are actually avatars of my own insecurity who are here to tell me that I'm secretly fundamentally unlovable! But crucially also it's ALSO not fair to those people to imagine them as that. They are not that guy, they are their own complex human beings with their own lives and experiences and interiority. So sometimes I do thought exercises where I will imagine my friends or loved ones doing things in their everyday lives and I will think about them as people and I will think about the things that they like to do and the things that they say and the places that they go, and I will try to imagine them fondly in those circumstances. This helps to remind me that they are just people and that the scary puppet wearing their faces is not real. To this end I sometimes will have a document of screenshots of things that they have said to me that I can use to reality check myself. I personally find reality checks to be essential for a lot of this. Things can feel true when they are not true at all. Things can feel wrong when they are actually true. The point of most of these exercises is to gently remind myself that those feelings are normal for me to be having, but that I do not need to let them dictate my responses.

It is crucial throughout all of this that you are nice to yourself. You can't talk to yourself in a mean way while you're doing this, or you will not get to a point where you are feeling safe enough to react from a place of not-fear. You can't make yourself feel ashamed or defensive for your emotional reactions. This is the particular area where I find gentle parenting protocols helpful. You HAVE to be patient with yourself.

Ok that's all for now bc I ran out of steam but I will try to think of more to add on another day maybe. Godspeed everyone

[submalevolentgrace]

Hi! I'm very interested in attempting to write a disabled character (not for this blog, I assure, for an book I'm writing) in which the story doesn't fetishize/objectify her prosthetic limb. I'm in many writing circles and have been for a long while, but I've never seen this issue brought to light which I realise is a very important one. I have much to change in my thought process, and thank you for bringing this issue to attention.

I'm curious, and I apologise if this has been asked before, but what sort of design could you see for a functional prosthetic that doesn't go for a plainly aesthetic appearance, or is soully to please others? I do note that you said prosthetics are generally... not that helpful. So is there a way that it could be? Or do you think it would always generally be better to not use a prosthetic, as its mostly for aesthetic purposes, as you said?

I apologise if this ask is too outright or anything, and I don't mean to intrude. Thank you for your time and have a beautiful day!

okay, i want to answer this as in depth as possible, because whenever i talk about having a prosthesis, someone will always tag some variation of "#writing reference" and i do wonder what message they're taking away, and i want to get as much of my experience out as possible to maybe help shape how this is all portrayed in the future. and yeah… this is gonna be one of those rambly smg posts that the expand feature was invented for, so i'll start with the very abridged TL;DR:

if you're writing a character with an upper limb prosthesis; don't. arm amputees are unicorn level rare even compared to leg amputees, and i've never interacted with or even heard of an upper limb amputee that regularly uses a prosthesis, let alone relies on one. fiction has lied to you for the sake of cool aesthetics, don't repeat the cycle. more in depth writing advice including nuance and "but i waaaant to" will follow.

that said, grab your donning parachute and let's get started...

context for everyone involved: i am an upper limb amputee that rants a lot about how prostheses suck, i lost my right hand roughly five years ago at roughly the age of 30 after a very rough decline in health… it was pretty rough. this question is being asked in the context of a previous rant post of mine, and i checked that the ask is about an upper limb prosthesis in particular.

the situation regarding the usefulness of lower limb prostheses is totally different; i am definitely no expert, but by all accounts, prosthetic legs are incredibly useful for many people. getting a good leg can be absolutely life changing and more or less necessary for day to day life for some; mostly because infrastructure and society is just so fucking hostile to wheelchair users. being able to walk - at the cost of pressure sores and rashes and increased residual limb pain - is a preferable option to many people than being unable to fit through a doorway or in a bathroom stall or find out that the key to unlock the only elevator is in the admin office up three flights of stairs (true story).

but upper limb prostheses… see, the thing is, hands are incredibly complex organs that rely on a lot of immediate haptic feedback to work at all. hand dexterity is all about control, you need fine granular movements of the digits yes, but you also need the subtle sensations of pressure and proprioception in order to adjust your movements on the fly. i speak from experience, in the years leading up to the full loss of my hand, i was slowly losing function of it, usually swinging between numbness that made it clumsy at best, or screaming overstimulation from moving it at all resulting in unpredictable spasms… and let me tell you, a half working hand is infuriating to try and deal with. you can never know if you have a good grip on something or if it's slipping because of the wrong amount of pressure, and there's only so many smashed bottles of pickles on the floor before you give up using it all together… so amputation wasn't a great loss there, i had time to adapt.

a prosthetic hand of any kind has all of those issues and more. they're heavy and bulky, the cosmetic faux fingers or gripping claw have crude movement at best, and there's zero feedback (put a pin in this). 100% of the time you're using a prosthetic hand you have to keep your eyes on the grip and visually guesstimate whether or not the thing you're carrying is held tight enough but not too tight, that is if your "heavy duty" prosthesis can even support the weight without the servos disengaging or the wrist attachment socket just busting loose. i dropped a whippersnipper on my foot last week when my socket couldn't take the weight and i think that was the final straw in me desperately trying to prove to myself that there is a single task my prosthesis actually helps with.

this is usually where fully two handed people start talking about bleeding edge DARPA tech, and how we just need to invest more,research more, develop more. better tech, more tech, neural integration, more more more. okay i promise the writing advice is coming! for starters on tech, my experience is already with a mid-to-high end ottobock terminal device: i've got a myoelectric nerve-signal operated proportional control heavy duty greifer; about the only upgrade left for me to get would be a rotating wrist joint if i could coflex. it's not military, it's not "rockclimber that owns a prosthetic company", but it's quality tech. it still fucking sucks. secondly, that high level military tech exists primary for PR purposes so they can say they treat their discarded casualties well, "we can rebuild him, we have the technology" style. every war vet i've read about or heard from that's been gifted that high level tech also abandons it for the same reasons; it's imprecise, there's no feedback (or the haptic interface has to be fully recalibrated every time they put it on), but mostly they're more capable without one.

okay, the transhumanist ableds say (i should know, i used to be one), what if we did more ~research and development~ and got that neural feedback working? then we could have fireproof superhumanly strong robot arms to fix up everyone! here's where i take out that pin we put up before and i tell you that a class of prosthetic arms/hands already exists that has perfect proportional control, fine motor control, and physics perfect pressure feedback piped directly into the patients' existing sensory systems! they're called body-powered prostheses, and they were invented in like the 1600s. you strap a whole bunch of stuff to your arm and shoulders shoulders, and control the operation of the terminal device and elbow through cable tension by flexing your shoulders. they do take a considerable amount of training to operate - though hell i spent 18 months training to use my myo - but based on everything i've read, body-powered prostheses are the best option if you're an upper limb amputee and absolutely need a second hand for some reason.

but they don't look cool and futuristic, and according to my prosthetist, most people give up on using them too. we all give up on our prostheses, no matter the type. my rehab OT was impressed i lasted the 18 months of my training. towards the end, they even asked if the clinic director could drop in to one of my sessions to see my progress; he expressed genuine amazement at me casually using my bulky robot claw to use a brush and dustpan, and made an offhanded (hah) comment about what someone can achieve "if they stick it out to the end", implying it was somewhat of a rarity for me to have done so. several years on, and yesterday i wedged the dustpan between my ankles to sweep up into it, awkward but exponentially less effort than putting my dusty robot arm on. which, by the way, is a whole thing. look up some videos, they're all awful to don. i don't actually know the official technical name of what my clinic calls a "parachute" but it's a bitch to use! have you ever tried to pull back with your arm whilst also pushing it forwards at the same time, and simultaneously lean in to and away from an external force pulling on you? that's how you get a myo socket on.

bare with me, i promise writing advice is coming, and i promise it's more than the tl;dr. but. remember when i said a half working hand is infuriating to deal with? any prosthesis, from fancy myo tech to pirate-era body powered, will only ever be half as good as a working hand, and being juuuust within capability to do something but not quite able to is maddening! but you know what works way better than a half working hand? no hand at all. using whatever residual/vestigial limb you have - whatever "stump" you have, i hate that word - is pretty much always better than trying to use a prosthesis. i can use the inside of my elbow to grip and carry things, i can use the nub of my arm to apply pressure to hold things, open doors, use a computer mouse, turn on taps and lights, if i put a glove over it i can use it to prep for cooking. i have full proprioception and pressure feedback with skin contact, i don't think i've ever dropped and broken anything from my elbow, unlike countless things slipped from my greifer - which, by the way, absolutely will start clenching as tight as it can if i get even slightly too sweaty around the electrodes, which has both broken things i'm holding and also injured me, because surprise surprise but servo operated robot claws have pinch points on them right near the "emergency disengage" lever for some reason!

but i am exponentially more capable without it on than with it. no, i'm not fully independent, i rely on housemates and loved ones to help me out with some tasks that simply just need two handed dexterity, but none of those tasks are things a prosthesis makes me able to do anyway. i used to imagine my prosthesis would be like a bra; a bit awkward and uncomfortable, but i'd wear it throughout the day because it's helpful and take it off in the evening to decompress. in reality it's actually exactly like a bra: an absolute bitch to put on one handed, unbearably uncomfortable because it never sits right, ugly af unless you're a millionaire, and absolutely useless except for the fact that i get gawked at and judged by strangers if i leave the house without it on.

and if you really want to discover how far "no hand is better than a half working hand" goes, brace yourself, and look up the patient's stories (not medical system stories) of people that have had hand transplants. the first man to receive one hated it, he was promised a return to normal function, and what he got was a nightmare worse than being one handed; he wanted it removed again but the doctors refused because it would undermine their grand achievement of the first hand transplant. the doctors and society wanted him to be fixed, they wanted him to be normal, they wanted him to be abled. they failed. they made him less able to do things, denied his autonomy, and left him with someone else's hand slowly rotting on him, prioritising the idea of "scientific progress" and "two hands good" over the physical health, mental health, and ability to function of this man.

he's not alone; every story from the patients' perspective about hand transplants that i've read goes this way, including a woman who was born quad limb different and was promised hands would improve her life, pressured into a double hand transplant, only to find herself after the surgery essentially experiencing disability for the first time ever, because she had lived her whole life getting by just fine with her 'underdeveloped' limbs, but half working hands are worse than useless. you can try to find these stories yourself, but i'm not going looking for sources on any of these cases, because if you look back through enough of my posts you'll get a glimpse of the horrors and abuses that i too was put through by doctors who prioritised trying to "fix" me at any cost, rather than providing me the best quality of life, and in turn traumatised me and left me more broken than any loss of limb on its own could. dear goddess, i promise the writing advice is coming.

so. why do upper limb prostheses exist at all? if they're so terrible and useless, what is their function? i want to borrow something someone else left in the tags of a previous rant here, from someone who i believe works in prosthetics and/or rehab, cleaned up and anonymised at their request:

"upper limb functions are wildly more complex than: 1) bear weight static, and 2) bear weight moving. but every single upper limb amputee i know has a fancy expensive prosthetic just gathering dust in the closet because there is literally nothing it can do like a few years of adjustment and if needed non-dominant hand retraining can't do. the existence of forquarter prosthetics to begin with is just kind of silly and useless and entirely to make OTHER people feel comfortable, especially considering they universally are UNcomfortable for the amputee. i hate the notion that as soon as you get the amputation the prosthetic is The Thing That Will Fix You And Make You Feel Normal again because it universally isn't! but every forequarter person i know had like this ideal of Being Fixed By Magic Prosthetic that they were then obviously wildly disappointed by and had to do yet another grieving process with, versus if the dominant narrative were just one of: yeah. it'll take time, there is no magic fix."

and i think that really nails down what the actual purpose of upper limb prostheses is: they're not for the user, they're for the sake of other people. and not just their comfort when looking at our bodies, although based on the pressure for both amputees and people born limb different to get functionless cosmetic plastic hands, there is a lot of that. but it's not just that.

i fully believe that the reason prosthetic hands exists is to comfort the fears of the two handed. "don't worry", they say, "we can fix you again. you don't have to fear becoming Disabled, you don't have to worry about adapting or your life changing. we can make you Normal™ again."

you would not believe the number of people that have approached me to shower me with pity, to tell me how horrific my life is, how they can't imagine it. people have told me, apropos of nothing, that they'd kill themselves if they lost a hand. indirectly, that my life isn't worth living. unless, of course, i happen to be wearing my cool as fuck looking robot prosthesis! then they tell me how wonderful it is, how lucky i am, how glad they are that we have the technology to fix me. that's what a prosthetic hand says, what all the happy fishing photos on limbs4life posters at the rehab clinic say: don't worry, we can fix you. that's what the bleeding edge DARPA flexi-whatever fully articulated neuro-feedback hands say: don't worry if you get IED'd while hunting civilians for us to drone bomb, if you get hurt, we will fix you, we will fix the fuck out of you, we will motherfucking adam jensen you into a cool as fuck cyborg that your son will idolise; come on boys, don't you wanna enlist just for the chance at being as cool as this? join the bomb squad for a ticket to the upgrade lottery.

and so we arrive at fiction. as much as his dialogue options protest, adam jensen loves his robot arms, they punch through walls, turn into fucking swords! they make him the most special man in the world. what would he do without them? learn to cope? grieve? practice acceptance? take up poetry? just, be disabled? there's no power fantasy for ableds in that.

in fact, can you think of a single fictional character that's an upper limb amputee that's, well, just an amputee? they all have robot arms. not realistic prostheses, not medical devices; robot arms. sleek or bulky, top of the line or broken down self built, steampunk or nanomachines or magitech automail; they're never without them. never just an amputee. never born limb different either! there's always that element of tragedy to overcome, always suffering and misery porn, always focus on the pain and the helplessness without the absolutely vital robot arm that makes them Normal and Whole. the closest amputee example i can think of is furiosa from mad max, who iirc fucking punches max in the face with her residual limb like a motherfucking badass! i can barely lean on mine wrong and she punches a guy! but she still apparently needs a dieselpunk robot hand to drive a truck, something you can do one handed so easily most drivers don't even notice they're doing it! please don't, by the way

and so many disabled fans love to point to robot armed characters as disability representation; the winter soldier, luke skywalker, edward elric, misty knight, that genderswapped furry girl from ratchet and clank, jet cowboybebop, finn the human, and yes, adam jensen…. these are all characters that someone disabled i know has told me they love because they "represent disabled bodies"…. and i know nobody wants to hear this, because i've been screamed at for saying it before, but… they do not. they are not disabled, functionally or within fiction. they are either perfectly able bodied Normal people with chrome paint on an arm, or tortured misery porn we are supposed to pity and feel lucky we're not them. sometimes both!

also you ever notice how it's basically always arms? lower limb amputations are orders of magnitude more common than upper, my prosthetist said i was probably only the 4th or 5th upper limb she'd worked with in her career, with literally hundreds of lower limb fits. but fiction doesn't seem to reflect that, huh? or any other part of the reality of disability. it's always cool as fuck robot arms, never cool as fuck wheelchairs or crutches or dialysis machines or colostomy bags. a fair few "i was blind but now i can see with Robot Eyes and also infrared and xray" around, which again, plays into that "we can fix you and make you cooler" propaganda.

by the way, up above when i was describing body powered arms, if you wondered to yourself why i went with a myoelectric one instead when i clearly believe body powered is better… yeah. i am not immune to propaganda! i too wanted to be cool as fuck. i spent years with deteriorating function in my hand for reasons that are still unknown, was misdiagnosed and medically neglected to the point that removing my hand seemed to be the only option left to offer some relief, and even that was a clusterfuck that left me worse than ever… of course i wanted to believe in the power and prestige of a cool robot arm that fiction promised me.

but fiction promises fantastical lies. and so.

we get to the writing advice portion of the novella that is this post. you asked for advice on how to write a disabled character with an upper limb prosthesis. you've read the tl;dr, you've read everything above i assume, you know i don't want you to do it. the obvious twist is that it's been writing advice all along, me trying to share my perspective on what it's like being an amp with a robot arm and how shitty it is, implying how almost any fully realised and realistic character that's missing an upper limb would give up on a prosthesis at all. you can already tell that every value judgement in me says "don't give her a prosthesis, no matter how functional or cool you make it. don't try to make the tech better to justify it, just let her be one armed, one handed. just let her be disabled, but not helpless. let her show off her elbow or underarm carry strength. let her love interest appreciate how soft and squishy her residual limb is in a moment of tenderness. let her natural disabled body be respected and valued."

but that's a personal value judgement from me, and you are the author of your own work. i know it's trite to say, but you are! even the act of deferring to someone with lived experience in the hope of doing a better job at representation is a value judgement, a good choice in my opinion, but one you needn't necessarily take. maybe you do want to write a character that has a cool as fuck unrealistic robot arm as a power fantasy, or a comfort blanket… i did.

i've been slowly writing my own probably terrible scifi epic for over a decade now, and when my arm was giving me hell back then, i'd take great comfort in this fantasy of my protagonist with her chunky robot arm, the terrible traumatic suffering of her loss, overcoming, the power and ability her advanced prosthesis gives her over others, that she alone has access to, because others are not willing to make the sacrifices required. inspiration porn. awful stuff to me now, but empowering to me then. as i grew and gained direct experience, i slowly reimagined her, rewrote her, ship of theseus'd her into an entirely new character; a reflection of me now, bitter at the whole thing, spiteful that her natural flesh arm evokes fear and distrust, but unwilling to suffer the pain and frustration of her unnatural prosthesis just to make others comfortable and respect her as "whole", however artificial that whole is. and as with the ship of theseus being two ships, once i realised the transformation, i re-added the old protagonist back in whole cloth as a separate character; proud of her robot arm and its power, but in new context, as a foil and antagonist, an in-universe military prosthesis propaganda figure to reflect how i now feel characters like her exist to us, the readers.

i'm not just sharing that as egotistical self promotion, but to highlight that, even if i sit here begging you all up and down not to write characters with robot arms for how bad and unrealistic they are; there's still something genuine and true that their inclusion can say. the great thing about the story that you're writing is that only you can write it, as they say. but i whole heartedly believe that to write to your best, you have to be aware of what you're writing and why. as tempting as it is to feel these characters form naturally in us and therefore we're averse to changing traits about them that feel organic and self evident; as authors we have omnipotent control over the text, every trait and detail is a reflection on us, so we'd sure as hell better understand why we're choosing to write a character with this trait. because anything you write without being aware of intent will take on its own meaning in the space between.

and on that note, if i don't say this, i'm leaving it to be inferred: i definitely don't want to appear to come down on the side of saying "you cannot write an amputee unless you are one", because we are rarer than single young bisexual unicorns! and it would be a tragedy if anyone read through all this and then turned away in fear, deciding to never write an amputee character (with or without robot arm) because they feel they can't do it justice… believe me, no matter what anyone says, some hack writer somewhere is going to keep writing adam jensens and winter soldiers. don't let them be the only voices in fiction! just try to do your best.

so my ultimate advice on the topic of writing a character with a prosthetic limb is to ask yourself one question in two different frameworks, and meditate on what you feel the answer is:

why does she have a prosthesis?

from a doylelist perspective as the kids say, as an author with omnipotent control, why are you choosing to write about this topic? why are you choosing to give this trait to this character? what does it say about how you view ability and disability, what makes a person normal, and what our society values? will you let her be in her natural body? or will you give her a prosthesis, force her to wear it by authorial fiat, or author her a meaningful reason to choose to? if yes, be sure you know; why did you give her a prosthesis?

and from a wastonian perspective, diegetically, inside the story, why does she choose to wear a prosthesis? what does it say about her inner character, and how she interacts with the world? how does she feel about doing it, is she prideful and loves the attention she gets, or does she resent whatever necessitates its use? how do people in this world view ability and disability, what does this society value? and above all, whatever the answer to these questions, whether or not she uses a prosthesis or is badass without one, how does she deal with the eternal freezing cold that every amputee ever feels constantly in their residual limb and why does nobody make a heat pack that fits over a nub without drafty gaps???

i can't outright tell you how to write a good upper limb amputee, but if you at least know why you're writing one and for what purpose, you're on track to write the best character that you can. that's the best advice i can give… other than, like, this whole rambly mess.

and, as a reward for reading this far, please have a very blurry cryptid photo of my cat doing his old man sit:

[ask-spiderpool]

Hey mod, are you okay? It’s been a while since you posted (no judgement!) and I just wanted to see if something was wrong. Love you and I hope you stay strong🫶🏼

Bless you anon! I appreciate you checking in! I don't post a lot of personal updates here, but I have been going through the wringer lately... hough.

Lately I've been battling with anxiety, you know, same as everyone. It's kind of made things that I used to enjoy kind of stressful for me. Everything becomes stressful for me. Even not having things to stress about makes me stressed. I'm at my most Peter Parkeriest, in the worst sort of a way.

I thought it was a brain thing – that it was all in my head. I have a new, stressful job, and a stressful living situation, and some family issues I'm dealing with. It'll pass. So I kind of tried to power through, until my body shut down on me last year. And as it turns out, when I got checked out by the doc, it's not just a brain thing. I have a tumor (her name is Lamar, and she's benign, buuut...) she's producing 5x the normal amount of stress hormone in my body. The doctors think it's insane. I think it's hilarious. I feel like it's some kind of joke.

I've been battling this ridiculous chronic stress for years, thinking it was all in my head, but actually, biologically, I'm an overflowing reservoir of stress, and it's something that can be measured in my bloodstream. And it's been going on for years!

So, lately I've been devoting a lot of time to forcing myself to relax. Doctors orders. I can't get stressed about things. Every day I have to effectively diffuse a bomb. And the bomb is me. I'm so pumped up with involuntary stress, and I have to devote my time to keeping it at a manageable level. And so there are a lot of backflips I have to do to keep myself human right now, and not turn into a bomb.

See... posting to the blog doesn't exactly calm me down. It makes me anxious, most of the time. So I've been telling myself it's okay. Only post when you feel good. You have enough things to worry about, and the blog can't be one another thing to worry about. It can only be for fun. If it doesn't feel like fun, don't do it.

I need to do a million little calming activities to function. The blog used to calm me. But it doesn't, anymore. I still love it, and I still have so many scripts I'm excited to do, but... I just have to be patient with myself, right now. I can't bug my head over something that can wait. It can wait. Right now isn't the time. My health is the most important thing. I can't get that back, if I lose it.

Right now I'm about keeping my head above water. Keeping calm. Doing meditative things, that aren't necessarily productive... (trust me, I am SO upset about not being productive. I miss it a lot) but they force me to take it slow and force me to not worry. I'm learning the banjo (she calms me), and I spend a lot more time in nature, having staring contests with ducks and pigeons, and befriending beetles and bugs.

I'm a very positive person, and I know I'll make it through, and I love myself for all the effort I'm making to keep myself from breaking. Because I know if I didn't force myself to calm down, I could snap like an elastic band. I – I don't want to break, like I did last year. I need to be good to myself. And relaxing is an effort. It takes a lot for me. And certain calming routines work for a little while, and then stop working, and I need to make the effort all over again to find something new. It's kind of insane how much time I need to calm back down again. I remember, once upon a time, it being baseline.

Luckily there's a surgical solution, so hopefully I'll be normal again soon, and there won't be any more bees buzzing in my brain!

I hope you'll all be patient with me! And hopefully I'll make it out alive and stronger than ever, soon.

[nothorses]

hi sorry to bother u about this, i searched around transmasc subreddits for an answer to this and while i saw a few people joking about getting dry cramps, nobody seems to know what this is. and i vaguely remember seeing a post by you mentioning "mystery cramps" in a post also about vaginal atrophy, but I didnt pay attention to the post much at the time bc at that point i wasnt experiencing atrophy or mystery cramps.

but now I'm a bit over a year on T, (my periods stopped only about 4 months ago though, because i was on a much lower dose than most for a lot longer time than most. that ~4 months ago time frame lines up with upping my dose from 0.2 to 0.3ml. i'm on 0.4ml tho now as of about 3 weeks ago) and suddenly i'm getting "mystery cramps" sometimes, it seems to happen especially the night before my T-shot day, (but i cant say that with certainty—i know i'm having them right now and my shot day is tomorrow morning, and i think thats been the case, but i dont know for sure) and they feel exactly like period cramps. to the point where i feel super paranoid that maybe i've been injecting improperly and the testosterone isnt absorbing right and my period is actually coming back. (something i often have nightmares about)

i searched your blog again for that post and did find it, (the one about estradiol cream treating it) but the wording of it is a little unclear and i wanted to just clarify that this is the same thing youre talking about? or if what im experiencing is different than the "mystery cramps" you meant and i should see a doctor

I am for sure not a doctor, and I think you should see one either way!

My personal understanding of the "mystery cramps" is that it's a part of "vaginal atrophy" that some, but not all trans folks who go on T experience, and it usually doesn't start until a couple of years on T ( which is also, to my knowledge, based on more standard doses as opposed to "low-dose" T).

Mine started about two years in, and was happening occasionally at first- always at night, and often the day before my T shot- then progressed to several nights a week over time. Nowadays I tend to experience cramping almost every time I so much as miss one dose of estradiol. Ibuprofen and Midol are the only OTC pain relievers that seem to do the trick, and the cramping will keep me up through the entire night untreated. It also tends to come in fairly predictable waves (spaced maybe 15-30 minutes apart) and right before I started estradiol, I remember getting some light spotting as well.

iirc, I talked to my PCP when it was just starting up, and their response was along the lines of "that's weird, let's keep an eye on it". I moved and didn't have a PCP for a while, so when the spotting started, I went to a walk-in urgent care clinic and talked to them. They gave me a referral for an ultrasound, and encouraged me to go to a "women's health" clinic that had long history of specializing in trans care as well. When I talked to the folks at that clinic, they encouraged me to go through with the ultrasound (I didn't), and prescribed estradiol cream because I asked them to and they didn't see a reason not to try it.

If you think it's possible this is what's going on with you, I would really encourage you to talk to a doctor, specifically bring up research around this issue and estradiol cream as a treatment option, and ask them if there's a reason not to try it just to see if it does anything for you. If nothing else, estradiol cream also treats vaginal dryness, tightness, and inflammation (other symptoms of "vaginal atrophy"), so it might be worth a shot for those reasons anyway!

And don't do what I did; if they want you to do an ultrasound or whatever else, go with it, and rule out other possibilities. Listen to medical advice from medical professionals who know your medical history and who you trust are listening to you & know what they're talking about.

[sizzlingsandwichperfection-blog]

Hi. I've started writing a semi-weekly TB Newsletter, if you're interested in that kind of thing. Here's the second letter--about public-private partnerships, leprosy, and my forthcoming big announcement about expanding access to tuberculosis care. You'll hear more about that on Thursday. Anyway, here's the newsletter. You can sign up here.

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In advance of the Big Announcement this Thursday, I made a vlogbrothers video today on how we end TB–with the comprehensive care plan often known as S-T-P, which is short for “Search, Treat, and Prevent.” But one thing I didn’t discuss in that video is the downstream benefits of comprehensive TB care.

Once you’ve hired community health workers to screen for TB, it becomes much easier to screen for other illnesses like diabetes, high blood pressure, and non-TB lung issues (especially lung cancer). TB is notoriously a disease of vicious cycles–a disease of malnutrition that makes malnutrition worse, a disease of poverty that makes poverty worse, and so on–but addressing TB can be a story of virtuous cycles: TB survivors become TB advocates, as I’ve seen with my friend Henry in Sierra Leone. More effective TB treatment leads to less stigmatization of the disease, as communities come to see the disease as curable and survivable rather than terrifying and deadly. And better access to TB care leads to a stronger overall healthcare system, because more community health workers are better connected to more primary healthcare clinics, which allows communities to better address all kinds of health problems.

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Mycobacterium tuberculosis is not the only bacteria of its family that causes a lot of human suffering; there is a closely related species called mycobacterium leprae that causes the disease known as Hansen's Disease, or more commonly leprosy. There are still around 200,000 cases of leprosy diagnosed each year around the world, and while the disease is curable, it also remains–especially if not caught and treated early–a significant driver of suffering and disability in our world. 

There are many connections between TB and leprosy: Not only are the bacteria that cause these illnesses very similar, but patients have often expressed similarities in experience. TB patients who were encouraged or forced to live in sanitariums often compared themselves to lepers. One disheartening parallel between the diseases is that in both cases, those living with these illnesses are often abandoned by their families and must make new social connections within the new community of “leper” or “consumptive.” Also, both Hansen’s Disease and TB continue to exist largely because of systemic failures rather than due to a lack of knowledge or technology.

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I really recommend Dr. Salmaan Keshavjee’s TED talk about how we ended TB in the U.S., and how we can end it using the same strategy around the world.

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Last link from me today: I’ve been thinking a lot about the complex intersection between public and private investment (for reasons that will be clear on Thursday!) and I keep coming back to one infographic in an excellent paper (https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0256883) about the public money that was poured into the creation of the GeneXpert Machine, which can quickly and accurately test for TB. The GeneXpert machine has created a lot of profit for Danaher’s shareholders, and it has also created some societal benefit, but it could create a lot more societal benefit if it created less profit for Danaher’s shareholders. This tension seems to me one of the defining features of 21st century life. Anyway, here is the infographic:

That’s the money–over $250,000,000 of it–that came from taxpayers (mostly in the U.S. and Europe) to fund the creation of the GeneXpert Machine. And yet, this tech largely funded by the public is controlled entirely by private enterprise. I’m troubled by that model of value allocation, even if I still believe that private money and private enterprise have important roles to play in fueling innovation. But taking a quarter billion dollars of public money and then claiming total ownership over a technology, and using that ownership to deny the technology to the world’s poorest people, seems like a deeply flawed system of resource distribution to me.

I’ll see you on Thursday. I’m nervous and excited.

DFTBA,

John