#i sure as fuck have Some sort of sensory disorder it’s So fucking bad out here guys
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i either don’t have autism or i’ve just gotten good at copying people’s tone/speech patterns and recreating them to make them comfortable. also i either have autism or i just have some sort of sensory disorder which prevents me from eating 90% of foods and often manifests in arfid. it’s one or the other
#i have lately been leaning towards i don’t think i have autism#bc i don’t experience a lot of social symptoms#but also. maybe i’m just really good at masking i don’t know. i don’t know!#i also didn’t realize i ‘talk monotone’ until a friend pointed it out like a year ago#so who knowwwsss#i sure as fuck have Some sort of sensory disorder it’s So fucking bad out here guys#ted talks
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Do you have neurodivergency HCs for the NSR cast?
Not extensively. Only a few vague ones really. This is gonna be a more messy post with not a lot of organization, so sorry bout that.
I definitely headcanon Papa, Mama, Yinu, 1010, Mayday, and Dodo as some kind of autistic. Though that could go to a lot of the cast actually.
Papa, Eloni, and Dodo are (was in Papa's case) non-verbal. Dodo being fully non-verbal, with Papa and Eloni being selectively mute (Papa being even less verbal than Eloni).
Neon J and Mama have PTSD, Neon from war and Mama from the death of Papa (also a grief disorder, but I see his death being so traumatic that she has similar symptoms to PTSD, especially if she needs to go to a hospital).
I saw a headcanon, or analysis, of Eve once that said she either had Bipolar disorder or BPD (I think it was BPD) so I kinda see her as having that. Maybe autism and trauma as well. She might also have an Avoidant Personality Disorder. So either way I do think she has a personality disorder.
Tila has schizophrenia. Another headcanon I saw someone else had around the start of NSR coming out, which I really liked but just haven't explored more. (Though it is less common for a teenager to be diagnosed with schizophrenia, it is still something that happens. I don't think Tila is fully diagnosed yet, but that doesn't mean she doesn't have it).
Purl is definitely something. Autistic is definitely one of them, but I see them as also having some kind of anger issues or personality disorder, I think some of the Cluster B and C personality disorders fit Purl a lot (like the Antisocial and Dependent Personality Disorders).
Oh yeah, Eloni, Purl, Eve, Remi, and Sofa also have sever anxiety. Honestly the whole Sayu Crew has anxiety. (Just figured out that phobias are a type of anxiety disorder so next paragraph will be that).
Zimelu has claustrophobia (small spaces), Haym has acrophobia (heights), and Rin has a pretty strong fear of bugs (not sure if it is on the same level to say it has entomophobia, but it is really bad at times which only gets worse with Eloni's pinned bug collection). Oh yea, Purl has thalassophobia (fear of the sea, which they hate given they are a navy bot, but the war fucked them up with the sea).
For DJ... I don't know, he does have some sort of superiority complex, but I've seen people analyze them and talk about how selfless they actually are in wanting to make sure humanity is remembered (he was just going to be the avatar for Earth). So like, I don't really know. There is the fandom headcanon that he has Narcissism, which I do think about some times. And honestly I remember someone with Narcissism saying the difference between someone with Narcissism and not is that a Narcissist can't be content, they always need that new fix to make them happy because they literally can't be content with life (at least that is how I am remembering it, I really hope I'm not misremembering and thinking of a different mental disorder), and with that i can see DJ as having Narcissism with the way he also acts in game (though it could literally just be a big ego).
He probably also has autism/sensory issues and depression. Actually, speaking of depression, I can see Mama, Zuke, Neon, Purl and Eloni as having depression. Also Dew to an extent.
Rin also has a really terrible memory. Whether that is because of a mental problem or mechanical one is up for debate, but it really doesn't remember things and sometimes that is a huge stressor for it, especially in relationships. Maybe it's ADHD, specifically the Predominantly Inattentive Presentation one/version (is version the right word to use here? idk).
And speaking of ADHD, I think Mayday, West, Remi, and Haym definitely have some form of ADHD. I can also see Zuke, Sofa, Papa, and Maragold as having some ADHD as well.
Carna is a kleptomaniac, or is at least showing early signs of kleptomania. Thankfully fae hasn't stolen anything outside of the mansion right now because fae hasn't been out much, but 1010 and Neon would have to keep a close eye on faer to make sure they either stop faer or pay for whatever is stolen.
Going back a bit, I think Sofa has an eating disorder, so does Purl (which isn't as impactful as they are a robot, but in human AUs Purl still has an eating disorder which gets really bad in their teens).
Kliff might also have some narcissism going on. Maybe some autism as well. I feel like he has something else going on, but I can't think of anything at the moment.
Oh Neon also had/has an addiction problem or a substance use disorder (he had it and have been sober, but it is still something he struggles with daily). Purl also has a drug problem, and I can see Zuke, West, Mayday, and Eve also having mild substance abuse problems. They would not be seen as fully addicted by societal standards (except maybe Purl, they are an addict definitely).
Tatiana, hmmm... I think she has an attachment disorder, or like a fear of abandonment that she copes with by pushing people away. Maybe a bit of depression too.
Also, though it is less a mental disorder and more signs/symptoms of other disorders, I think Mama, Neon, and Tatiana all have anger issues. Whatever it stems from, i don't know, but they have them.
There's probably more, or these will change at some point. But that's what I have for now. Sorry again for it being messy.
#nsr#no straight roads#eritalks#noart#asks#i like how i said i was gonna be vague#and then give this long of an answer#i do it all the time#lol
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2022 reflections
usually always do a thing at the end of the year where i look back at the year and do my wrap up journal entry. thought i'd post it here <3 trigger warning for eating disorder discussion, no mention of weights or numbers or really much specific behaviors.
January 2022: Most of the things I remember from this month is top surgery recovery. The recovery was sort of sensory awful, but it brought So much joy with it and I also felt so joyful that I got to be with my boyfriend and he was there during the recovery process. I remember it being really horribly cold but not awful. Got really into jellyfish randomly and started hyperfixating on them after going to the aquarium. first time i started having the ceiling people hallucination!
February 2022: genuinely can't remember much of february. I think I was getting more and more invested in learning stuff about antipsychiatry. I think this is also when things started getting bad eating disorder wise again and I was also having a bunch of trauma flashbacks. i was really determined not to admit to myself that anything was wrong because i knew that if i started admitting one thing was wrong then everything was just going to fall apart and I didn't want to do that right then.
March 2022: I remember celebrating my birthday with friends and going to Nationals for ballroom dance! both of those things were super fun. Physically was feeling so fucking horrible all the time + was having mobility issues. Pretty sure I had a lot of pretty bad paranoid psychotic episodes during the month? can't quite remember. had like a spiritual experience while reading a book of trans poetry and decided I wanted to journal outside for like a month but then stopped lmao. got a little better mood wise because it started being sunnier out and i was going outside more! pretty sure this was when I joined a new antipsych org.
April 2022: Things were definitely spiraling pretty badly with my eating disorder but at this point I had stopped seeing my dieititan and it was reallly going downhill. Still desperately trying to hang on. I remember sleeping in and skipping a lot of classes and feeling physically horrible all the time. got doxxed by some neo nazis because I was counter-protesting their transphobic protest. I remember having some really good times with my college friends though!
May 2022: Finals season! I remember being so unwell but spending hours every day at the library and writing some really good papers and just being so stressed even though I passed my classes. Changed my hair from purple to green. Moved into a different dorm. Started a new job. Got really manic. Got forearm crutches to help with my mobility challenges! Started to recognize that my eating disorder was actually getting really bad again. The second half of May was kind of nice though.
June 2022: Both my jobs were stressful but not awful. Eating disorder was really, really bad, and I physically felt awful literally every day. It was getting out of control. My treatment team started suggesting residential treatment. I went to a drag show, got manic at pride and got way too drunk at pride while on a call with a treatment center lmfao. Had fun with my friends at pride though :). Probably the worst my eating disorder has ever been and just the whole month I remember feeling tired and hating myself and just so completely miserable in a way I've never felt before.
July 2022: Agreed to start the process of going to residential treatment. Spent the first three weeks just doing intake calls, getting on waiting lists, doing research, everything. Made a beautiful little stuffed animal bear with forearm crutches and decided I wanted to reopen my Etsy but then got institutionalized lmfao. July 22nd 2022, I was admitted to residential treatment for my eating disorder. The first couple weeks just felt like a daze. I loved my original millieu that was there from my week one. Four people discharged the week I was there, but everyone there was so welcoming. I didn't get to go outside for all the weeks I was there in July, and I ordered a lot of stuff on amazon like yarn and a paint by number set. I remember just feeling like none of this was real and was still convinced I would be out of there in four weeks. I still was really incapable of understanding a lot of the ways my eating disorder was a problem. Thinking back on it most of what I remember is slow summer days, playing a lot of Bananagrams with my favorite staff member, and being so overwhelmed and confused. Also remembering the upset about the door curtains. Had a lot of realizations about trauma and control and how my eating disorder worked. I started making everyone origami creations and also started journalling every day becauase I felt so scared about the psych record being the only record that matters.
August 2022: Was overall a really difficult month. Still instituionalized and had to deal with my university trying to kick me out and then making the decision to take the semester off. Started really feeling a lot of the violence of institutionalization. I started really, really becoming close friends with patients and we would spend so much time together cause every day that's all there was to do. August 2nd was the first day I said out loud that I valued recovery. I started having some motivation now and then, and got into a cycle where I could get on the highest level for a couple days and then would dramatically crash and burn. A new patient came who like irrationally annoyed me for a week lmfao because he was really Christian. I ran community meeting for the first time and loved it because I loved complaining. Started getting really close with one patient in particular and we were helping each other at meals and keeping each other accountable. Started struggling with SH in treatment so I got put on protocol. there was a really dramatic incident that happened in treatment because the staff were fucking incompetent and two of my best friends in treatment got kicked out. one of my tumblr mutuals came to the same treatment center and that was really lovely because i was like thank god another trans person to talk to antipsychiatry with and then now they've turned out to be like one of my best friends for life (and im seeing them next week actually!) One of my fav patients who I felt really protective of stepped down and I got to do her warrior leader name ceremony at her sending ceremony and we all cried.
September 2022: Probably one of the most difficult months of my year so far. Growing closer and closer to all my friends in treatment. This was the month I had a feeding tube in for 3 weeks. It was really, really difficult. Sensory wise it felt awful, emotion wise it made me really really depressed, and meant I couldn't go outside. It was just so so difficult. When I got it out I remember how proud and happy everyone was and the support of everyone really kept me going. Was the creation of the Pisces full moon!!! The feeding tube was really the turning point in my eating disorder recovery. It was the moment I realized that it was never going to stop, that these justifications were never going away, that there was never going to be the point where I was happy and that all these intrusive thoughts were really just the surface level manifestations of a way I coped with my trauma. Realized a lot of the ways I coped through avoidance. Realized that day by day that although I didn't choose to have a brain that told me to cope in these ways and suggested restriction a million times a day, I could actually choose to counter them. Was not fucking easy and I could not have gotten through it without everyone.
October 2022: Went to the emergency room and then got well enough I went out on passes! I went to the zoo, to the craft store, to the aquarium, to the mall, to the coffee shop. We had a lot of new admits who would come for one day and then elope. I started actually getting a lot a lot a lot better. Really putting in a lot of work and also really feeling so much energy and able to connect with my friends. Goblin club!!! Did my weight exposure and then stepped down to partial hospitalization on October 18th!!! I was so nervous but so happy to reunite with my friends who were in PHP. Started staying in the supportive living with my treatment bestie and really loved spending evenings with them, having a ravine experience, all of that.
November 2022: Complete emotional roller coaster. PHP was sort of the time to stop avoiding things. Became so close to the PHP patients as well and really did a lot of like, collective processing of instituionalization trauma together. Emotional highs and emotional lows but all together SO transformative. One of my treatment friends wrote us a song that made me cry. i cried so much and just. Felt so completely healed in ways I had never anticipated. Got nose piercings with my patient friends. We got another patient to tattoo us all matching recovery tattoos. We went to build a bear together and got really drunk together. I cried so much at my sending ceremony and we stayed up really late my last night just talking with these people I've grown to love so so much. On November 18th I was discharged from treatment. I felt so completely insane being back in the real world--I didn't know what to do or how to act. Started couch surfing with friends. Spending time in Ohio, and then off to Pittsburgh.
December 2022: Adjusting to being back in the real world. No longer going through each day measuring what would happen compared to the schedule of meals and bathroom breaks and outside breaks and group therapy. Still keeping up with my outpatient treatment. Doing embroidery again!! Spending time with my best friend from high school and watching a lot of reality tv with them. Having a few low mood moments and psychosis, but overall feeling fragile but good. Then going to Philly for Christmas and feeling the best I have in weeks. Spending Christmas with my extie and his family and just. Realizing how much better I'm doing. how much more at peace I am. How I'm motivated and excited and know that I am deserving of so much better. How at the beginning of this year I thought I was horrible and couldn't make friends and leaving this year with so much love and connection in my life. Knowing that I won a research grant and can do even more stuff next year.
Overall this year has been one of the most challenging years of my life in a new way. Not the worst year of my life by far, but one where I had to push myself and I had to do a lot of work. And just. 2022 is a year I'm going to remember forever I think. The people I've met this year--E, E, M, C, A, I, R, J, S. The friends who have been there for years and are still here. The memories of goblin club, outside breaks, PHP adventures, the snaps we'd write each other. Idk. I think that's what defined my 2022. Community. This year more than any other I have felt loved and understand what community looks like when you have to fight for it to exist every day, when you're surrounded by violence and power and coercion every day and you still manage to show each other that much love.
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So this is a personal one for me to ask and if you're not comfortable with it don't mind it; how would the tmnt boys (seperate) react when the reader confesses that they're autistic after the boys got curious when she had some peculiar, behavior or stims. The reader would be stressed, because she has a crush on the tmnt boy in question and she didn't want them to find her weird or just stop interacting with her. When she's met with confusion instead, because the boys never heard of it, cue this weird conversation where reader tells them to the best of her ability what it is and the boys just keep asking questions. Also some general headcannons with it maybe?
Okay so I'm actually really happy that you asked me this because I feel like ASD isn't portrayed a lot in any type of media. My ADD and ASD have a lot of overlap so I hope I can capture what you're asking of me!
Now let's get into it!
TMNT Headcanons
The boys reacting to an autistic reader
Leonardo
he wasn't really sure what was happening the first time you reacted
one minute you were standing next to him doing dishes and the next you were attempting to claw your skin off like an angry cat
Leo tried not to look annoyed as he watched you rub your hands against your shirt until your flesh started to turn red
you looked like you were crying but he knew you weren't
but your face was starting to turn purple and your cheeks were puffy from the effort of holding your breath
"Y/N? You need to breathe."
You shot a glare at him, scathing eyes meeting his now very concerned expression
your own softened and you clutched your arms to your chest, heaving oxygen into your lungs until your face became a normal shade again
"Are you okay?"
The words were stuck in your throat and you weren't sure if you should nod or shake your head
so you gave him a half-hearted shrug
he frowned back at you but turned to finish the dishes on his own
when he questioned you about it later he couldn't help but be curious
"Well actually it's uh- it's kinda a sensory type of thing? There are certain textures that I can't stand touching do I avoid them but if I come into contact by accident my brain just kinda explodes and I shut down."
"How exactly does that work though?"
"I don't really understand it much but like- you know that feeling you get when you think there's a bug on you and there's not but it really really feels like it?"
He nodded
"Yeah, it feels like that. And anytime I touch something that triggers that reaction it takes FOREVER to get the feeling off my skin. That's why I usually wear gloves when I do dishes. Guess I just forgot to grab 'em today."
He was sympathetic
and god, you were so embarrassed
lucky for you, Leo's not an asshole
"Well thank you for explaining it to me, you really freaked me out earlier. I'll talk to April and see if we can keep a pair or two at the lair just in case you forget again."
Consider your heart melted
you couldn't even find the words to thank him and holy shit was your face red
"Hey y/n?"
"Yeah Leo?"
"Why didn't you ever tell me- us that you were autistic?"
Did you rip the band aid off now or make something up? Which would ,technically speaking, be less catastrophic in the long run?
"I uh- I really like you and I really didn't want you or the other's to look at me differently..."
wow, you liked him? miss ma'am you have saved this boy a world of anxiety and damn does he thank you for it
"Thanks for telling me... and y/n? I really like you to."
Awh fuck yeah, best possible execution of band aid-ripping-off ever
Donatello
Donnie wished he could act surprised when you finally told him
he really wanted to, it would've made you feel better for sure
but he sucked at lying and he didn't want to make you feel like he thought you were an idiot
because that was so far from the truth
after going through extensive research on Mikey's behalf when he suspected he had ADHD Donnie had stumbled across many different websites that discussed the symptoms and overlaps between both disorders
to make a long story short, Donnie knew that you had ASD and he was waiting for you to tell him
it would probably come off as rude if he brought it up in conversation right?
he didn't want to risk it
but that didn't stop him from keeping an eye on you and your behaviors
he was a man of science, of course he was going to analyze you
not in a weird way or anything, just as a curious sort of precaution
but the longer you were involved in the turtle's lives the more noticeable your stims and meltdowns got, Donnie did his best to cover for you without making you suspicious of him
eventually he'd come up with something that he hoped would come across as a friendly gesture and wouldn't set you off or scare you away
it was game night at the lair and you, as always, were perched on the arm of the sofa, a large grin plastered on your face
inside your head was exploding but you were masking it pretty well if you do say so yourself
but Donnie was, well... donnie was donnie
so when he noticed you starting to rock a little more visibly he removed his attention from commentating the game and grabbed a pair of headphones from the side table
you were beyond confused when he passed them to you but your face revealed everything
"They're noise cancelling, try them on."
holy shit it was like putting your head underwater, everything was muffled
not in the way normal headphones did, you quite literally couldn't hear anything at all, just a calm amount of nothing
you nearly started crying when you realized that Donnie had figured you out on his own
but you'd never been more relieved about anything in your life
Raphael
he wouldn't admit that he was mesmerized by your presence
you practically radiated calm
his complete opposite
it was his favorite thing about you, because despite your quiet disposition and calming aura you weren't afraid to call him out or rebut any of his insults
this was not something you expected him to appreciate nor was it something you thought would make you catch feelings
but damn if you didn't
he'd been sitting in on yours and Donnie's little experiment for an hour or so now, watching you both exchange quiet whispers and inside jokes that you always seemed to lag on
then you slipped up
not bad, nothing detrimental to the project, just the same mistake that you'd already made ten times over
you might as well have exploded
"Y'N, you just have to move thi-"
"I KNOW DONATELLO. I FUCKING KNOW AND I JUST CAN'T DO THIS BULLSHIT!"
you set everything down gently enough to avoid breaking it before turning and storming out of the lab, waving your hands like they were on fire
Raph and Donnie exchanged a look that sent the larger red turtle following after you
when you calmed yourself down enough to talk you kept your gaze locked on the wall, explaining that you couldn't make eye contact when you were upset
he might not be the smartest brother, but Raph's no dummy, he put those pieces together pretty quickly after you told him that one small detail
he wasn't upset that you didn't tell him and you'd personally never been more relieved
your heart nearly splattered into the stratosphere when you finally gace him your own explanation
"yeah, I like ya too."
you grinned so wide you were sure your face would split open and your entire body rocked side to side with excitement
he thought that was pretty adorable too
And he did stick around to offer a bit of support when you apologized to Donnie for screaming at him
Michaelangelo
to be frank it probably shouldn't have taken so long for Mikey to realize that you were autistic
the similarities between your own personality and his ADHD were so in sight it was near painful
it was his turn to make dinner that night and you'd made sure that you came over early to help him set up, you knew how side-tracked he'd get and you were the poster child for solid routine
what more perfect matchup existed?
trick question, there isn't one
you were on one side of the counter cutting vegetables and he was on the other throwing said vegetables into the mixing pot
the music was at an ungodly level of loud so your only means of communication were screaming over it
"MIKEY."
"WHA?"
"YOU GOT THE-"
"YEAH."
"AND THE-"
"UH HUH."
"COOL, HAVE YOU SEEN THE-"
"TONGS? NO, THE SKEWERS. YEAH, THEY'RE IN THE OTHER DRAWER."
"THANKS."
the two of you went about your previous tasks, thinking nothing of the conversation that had just taken place
at least until you'd begun washing your knife and cutting board
that's when Casey walked in, looking both perturbed and annoyed at the same time
"Alright, which one of you knows telepathy?"
Mikey exchanged a glance with you and you returned it with a raised eyebrow
"The hell you mean brah?"
he looked at the both of you like you were the ones that had grown four extra heads before speaking again
"You literally just had a conversation with like five words and somehow just knew what the other meant? What's up with that?"
you glanced at Mikey again
"Holy shit, did we?"
"I mean, not really. You used your hands."
now all three of you were confused but it quickly became two when Casey shook his head in defeat and left the room
"You know I think he's right."
he blinked first and your staring contest ended
"But you used your hands-"
"I got autism Mikey, one does not simply not use their hands as forms of speech."
"You're-"
"Yep."
was the silence laughing at you? could it do that? it was kinda rude
"Huh, that actually makes sense, that's not mean is it?"
you shook your head no
"You're just me but fast."
Mikey agreed with that, pestered you with a few more questions, and went back about working, as did you, you saw no reason to address it further
but your cheeks burned red
"Yo- Y/N that actually explains why everyone else thinks we're a thing."
you didn't know if you could choke on air or not but you did it anyways
"Are we?"
he gave you his signature grin
"If we are then Raph owes April a hundred bucks."
you returned his smile
"Oh this oughta be good."
I'd like to preface this by apologizing for my near three week absence. Life got crazy and my writer's block hopped on a train, went through a school zone, killed seven pedestrians, and committed tax fraud before tumbling off a cliff never to be seen again.
But on the bright side- I got my SAT scores back and started some scholarship applications. Super happy with that. School's out in a few weeks so I'll be able to write more (hopefully).
Anyways, I hope I got this one down okay. I may have hyper analyzed the request so I might be a little off. But I really enjoyed doing this one and I hope you like it!
-Mars 🌠
#tmnt bayverse#tmnt headcanons#tmnt x reader#askbox#ask response#writing requests#writing blog#writersblock#tmnt raphael#tmnt donatello#tmnt michelangelo#tmnt leonardo#tmnt 2014#tmnt 2016
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asmr i psychoanalyze my favorite war criminal, aka calling out norman the essay
basically all of my thoughts on norman on one callout post because i care him (both manga and anime are discussed)
LINK TO RAY PSYCHOANALYSIS: https://chaoticgaymess.tumblr.com/post/646749875570196480/ray-81194-the-long-explanation
this is going to be ungodly long so here’s a keep reading, essay below the cut
((tw for suicidal ideation and self harm, brief discussion of eating disorders))
Disclaimer: no shipping is included here this is just about norman also they’re kids who call each other siblings
Thoughts: So you may be thinking, Rowan, why do you yell about the colorless war criminal so often? Well the answer lies in your honor the court hates to see a girlboss winning. Norman is a girlboss :) Yes norman is a tiny twink who can't lift a milk jug. And he is a girlboss :) Obviously I don't condone, um, eugenics and all, but that's not the point the point is that he satisfies my need for more characters like Levi motherfucking Calder from Unwind because I’m apparently an edgy 13 year old. Also all of his problems are violently things I can fix and I keep him around as a pet project because someone needs to give him a hug and slap him on the face
I diagnose him with things:
-pisces man :pensive:
-is he albino? Not literally. Is his skin so pale he would catch fire if he went outside at noon? Yes.
-autism: Yes I’m aware that calling him autistic makes him, problematic rep by perpetuating the autism unfeeling savant stereotype whatever but have you considered i’m autistic and I’m projecting also he’s L with standards? Anyway traits of AuTism he has: hyper fixation, canonically breaks and fixes things over and over because like ofc he does, doesn’t understand Emotion, hyperaware of body language at the same time as it all somehow flying over his head, low empathy, sensory experiences™, min maxed in certain areas, and I don’t think he’s got social interaction quite right? There’s something off about it
-gifted kid (derogatory) This is self explanatory but basically him being the smartest and the best in a competitive environment caused most of his issues, such as the perfectionism, the need to succeed, the lack of self esteem and ridiculously high expectations on himself, giving himself no breaks or time to relax, the “i must be productive with every second of my day or i will die” deal, the “peaked at 11” thing, the way in which he goes through life like there’s going to be a fucking test on it
-Eldest Daughter™ lmao. Norman’s always had to be mature, he’s always had to be the best, he’s always had to do the things Ray got out of bc he’s a snitch and Emma got out of because Isabella likes her. Norman gets respect from Isabella only if he excels, and her bar for him is astronomical. He doesn’t have the Mommy Issues that Ray has, but it’s because for him Isabella basically just reflected his expectations on himself, whereas with Ray it was more personal.
-low empathy (part of the autism thing): this one needs more explanation, but it’s not a bad thing in and of itself. Cognitive empathy is a thing and he can use it, but he does not instinctively understand other people’s emotions, or even recognize them properly, especially when the person is not like himself. This is obvious in Emma. Man has no fucking clue what’s going on in her head or why she does what she does, but he can predict what she will do in any given situation very well. He could understand the suicide attempt from ray he predicted more because Ray’s an easier equation to solve, and someone who’s more similar to him. I know he gets it because, well, motherfucker’s just as self desctructive as him, just in a more dignified manner.
-he’s got some sort of chronic illness. This is also me projecting and a headcanon but he’s got something going on, even before lambda pumped him full of growth hormones or whatever which they maybe should have Not Done but oh well. (I assume this just didn’t happen in the anime, since he’s still so fucking short) But he's So weak. He passed out when it was too hot. He passed out when it was too cold. He can’t open a pickle jar. His skin is too pale and he’s skinny af. He’s much more prone to sickness and probably has asthma too? But in the case that he did actually have something going on, I don’t think grace field would see the need to treat it, if it didn’t impact the quality of his meat? Isabella’s probably just “you have chronic pain and you get migraines? Great, take some tylenol and do some calculus.” Can’t say that probably helped anything.
personality type: ISTJ
Basically, he’s the most boring personality type to exist, and personally as an enfp i do not respect him. But basically this means he’s a fucking nerd that gets his projects done for school the day they’re assigned, is probably the president of the Anime Student Council™, and could probably get away with premeditated murder (ok actual istjs this is a joke don’t skin me)
The only trait that norman doesn’t have on the istj thing is telling the truth. Yeah, he values the truth, but like, that doesn’t apply to him, clearly. Bitch is a notorious liar.
The only other personality type he has any similarity with is intj, which is the same except it’s more rare and a purple theme instead of a blue theme. Sadly, that’s not him though, because although he can care more about some kinds of philosophy overall this isn’t the case and ray already occupies this personality type tbh.
strengths and weaknesses: This one’s kind of obvious, but he is aside from the crazy insane intelligence good at planning. Extremely good at planning. He can predict any outcome and figure out how to prevent it, using all his resources. For example he’s physically weak and someone could literally just walk up and stab him, but it doesn’t impede his progress on his goals because he’s surrounded himself with strong, mentally inferior people who would die for him in a heartbeat. He never gets stuck in some “everything is shit and i can’t do anything” deal like Emma and Ray do, he always works through it and has confidence in his abilities (in as much as he will solve the problem or die™. Weaknesses other than his twink body include his Low Wisdom score. It’s funny how he’s often associated with an owl, the mans is 14. He thinks he knows what he’s doing. He doesn’t. Plus obviously his fundamental misunderstanding of so much of everything going on around him, the fact that he lies not just to the world but himself, his refusal to take care of himself and his incredible cowardice. His achilles heel is being forced to, actually confront his actions.
what he likes about himself: He does pride himself on his mental abilities, and his judgement, which in his opinion is the only correct opinion and the only correct way. In the past, he likes being seen as a leader, he likes being responsible for other people. He likes his ability to manipulate and lie, because he sees it as an asset, and I honestly think he enjoys being william minerva more than he enjoys being Norman. He prides himself on his unhealthy expectations and the fact that he is able to meet them. Honestly, he does think he’s better than everyone else, mentally, though it’s humbled by his self hatred. Cursed thought: If Norman had self esteem he would be light yagami.
what he doesn’t like about himself/insecurities: Oh god, nearly everything. His appearance, his status, his superiority, his physical inability, his own mess of a mind, also have I mentioned his appearance. He’s obsessed with self control. He wants everything he sees wrong with himself gone. And I understand why having control of everything is necessary and appealing, everything for him has always been rigid and planned out from moment one, he was even more regulated in lambda, and though he desperately wants to Not Be Food, he has no idea what to do with the chains now that he’s broken out of them. So he just wraps them around himself. Regulates to an unhealthy degree when he sleeps, what he eats, when he actually takes even minimal care of his own problems, what he looks like, how much of himself he lets show, the expressions on his face, the literal thoughts inside his own head he will shut down if they are not Correct. It’s literal self harm. Norman, please stop it.
motivations/goals in life/general philosophy: To be honest, I’m not sure he knows what he wants. He sure thinks he does, he could sure give you a memorized answer, but it means nothing. He wants to excel. He wants Emma to be happy. He wants to be perfect and for that to make everything perfect. But he doesn’t realize everything he’s working towards will do pretty much the opposite of that. He’s a crippling perfectionist, and pretty much everything he does is motivated by his fear of failing. He picks the certain path, he doesn’t wait for anyone else, he doesn’t care if it’s not nice. Emma foils that a most of the time because he cares about her, but it can only go so far, especially after he’s had so much time without her to develop a Complex. His philosophy is very contradictory, basically the tokyo ghoul “everything bad that happens to you stems from a lack of ability”. All of his problems are his fault. All the world’s problems are his to fix. If he can’t fix them, it’s his fault, it’s because he wasn’t strong enough, and not being perfect condemns someone forever, including himself.
how he’s perceived by others vs how he actually is: In most people there wouldn’t truly be much of a difference, but with Norman things are different, because, well, most of his personality in grace field is a put on, as well as the tough guy dictator thing he radiates after lambda. How he appears to someone is determined by the context of their meeting- the kids at grace field see him as a nerdy, weakish, pretty boring kid who is really caring and kind. The researchers at lambda see an obedient, beaten down and perfectionistic boy. The lambda kids see him as an infallible leader, ruthless and genius, a good man who knows what’s right. But in truth none of that is him. It’s a fucking chess game to him, putting on different faces, lying and pretending and treating everyone differently. In truth? He’s a fucking coward. He’s scared out of his mind and he’s tired and he can’t take pain, he’s obsessed with reaching some goal he deems is necessary that in the end is going to be his death because he doesn’t want to face the consequences of his actions. He’s taken on the role of someone evil, though deep down he’s not, he feels it’s easier to live that way because it strips him of his conscience.
interpersonal relationships: In general, Norman sees all relationships in a pretty dim light. He sees everyone as black and white, for the most part, and other people make no sense to him intuitively, he has to figure them out like a puzzle. He’s manipulative and not particularly kind, but he follows all societal expectations to a T, overly focused on his appearance and placing the person he’s interacting with into a Category™. So he can be truly kind, to people he feels deserve it, to people who he values and doesn’t see flaws in. He gets incredibly attached to people he loves, protective, though he often doesn’t take their own feelings on the matter into consideration, and he’s ruthless with anyone who he deems a bad person. With people he understands and relates to, though, things can be different. If he sees someone as like himself, he will drop all the social interaction police bullshit and cut to the chase of whatever he wants or needs from them, and he’s not very forgiving in any manner, if he thinks what someone did is actually bad.
Emma: Norman obviously cares a lot about Emma, and honestly views her as better than anyone else. He realizes her moral integrity and all of the things she has and he doesn’t, and admires it. Because of his black and white view, Emma is like an angel to him. She couldn’t do anything wrong if she tried. But he comes to treat her as something to be protected instead of respected, and although he realizes she wouldn’t like what he’s doing, he fundamentally cannot empathize with her and doesn’t try to understand her. Their personalities are very literally opposite. Norman really needs to fucking listen to her. And Emma needs to understand that Norman doesn’t have a single ounce of empathy and you really do need to spell it out for him. Emma can only convince him when she has logical reasons for her actions, which she, doesn’t often have. And Emma gave Norman too much slack, because she didn’t see past the surface, and Ray never wanted to warn her, even though he knew the dude was showing a bunch of red flags, because you know. It was kind of an unspoken deal between them. (on ray’s part)
Ray: His relationship with Ray is a lot more complicated than with Emma. He understands Ray, where he doesn’t understand Emma, and he can see right through anything Ray does. And this makes things really tense between them, because Ray doesn’t, take kindly to being psychoanalyzed. If someone perceives him he will deck them and Norman is just there silently perceiving him at all times when Emma doesn’t see it. They are both constantly in competition with each other, but they care about each other a lot, though it’s kind of in a derogatory way. They both recognize each other as fundamentally fucked up, and silently agree never to bring it up with Emma. They’re nice to each other when she’s around, but all pretenses disappear when she’s gone. Ray is always frustrated with Norman, because Norman’s never been intimidated by him, and though he tries his best not to be vulnerable around him, Norman can always see through it, whereas Ray can’t crack Norman’s fake fucking smile no matter what he does. Norman will always take Emma’s side, and doesn’t see Ray as a good person at all, but he still understands and can excuse him, he takes measures to be… worse than Ray, which is better in his mind, because it’s rational, and ‘not selfish’.
Isabella: She has always had ridiculously high expectations for Norman, and treats him kind of harshly compared to the others. Bitch has heat stroke and Isabella’s first question is a calculus problem instead of like, “are you ok”. She knows he doesn’t complain about anything ever and she doesn’t stop him from being Terrible to himself, because it makes her job easier. They want smart kids, not mentally adjusted kids. She does really care for all of them, but she basically overrides it, she gives them what they want, not what they need, lets them be exactly what they’re making themselves. Isabella is distant with Ray but gives him anything he wants, she’s close and super nice with Emma, but Norman is… it’s weird. Isabella is proud of him because he meets her astronomically high bar. But at the same time, Norman never really cared for her that much and has never pretended to. Once they discover The Thing, though, he has a revelation, and it doesn’t take him long to switch his entire perspective about her. He’s pretty much like. Oh. She’s like me. That explains it, time to treat her like I treat myself: fucking brutally. Passive aggressive as hell. The kind of energy the :) emoticon at the end of an email gives. He does like just go “yeah we should kill her” at one point, which. You know, ok. When he got shipped out it was hhhh really interesting because Isabella knew full well he knew he was walking to his death and Norman was like “are you Truly Happy?” and just went :) and she was like h u h and tried to get him to talk while they were walking there because she feels Bad about it and he just. Did not. He didn’t say a single word just kind of smiled menacingly at her and I think it was half a sort of rebellion and half because he viewed her as similar to himself and therefore felt no need to put up any front with her, no words were necessary for him to impart exactly how he felt about it
Lambda kids: His relationship with the lambda kids is weird and bittersweet. I think he really truly does care about them, they were in a similar situation to his and he wants them to get what they want. However it is not a healthy or beneficial relationship, they see him as a god and don’t realize that he’s killing himself to give them what they want, he’s basically adopted them when out of anyone norman’s the one that should least be in charge of kids. I think he’s honestly younger than them but I’m not sure if they even know. He acts like their fucking mom, and that’s from what he thinks mothers are like… like isabella?? Giving them what they want, not what they need, lying to them, showing a front, caring deeply for them but at the same time using them for his own ends. And it’s not helpful for him. He thinks he knows what they need, but what he’s doing is what they want. What they need is therapy,(and so does norman), and he doesn’t think there’s anything wrong with using them as weapons because they love him. It makes him feel good, to be seen as perfect, to have people who don’t know how weak he really is. But it’s only making him worse, and he’s enabling everything the lambda kids are doing wrong as well. They need like, Yuugo and Lucas. Some actual adults who are actually wise and have the ability and the knowledge to take care of them and understand their mental problems and maybe actually address them. And actually be nice to them. But um sadly.
what he’s doing wrong: It’s pretty obvious, but… Norman, you maybe *shouldn’t* commit genocide? You’re not helping emma, you’re not making anything better. You’re not helping the lambda kids, you’re enabling them. You’re not helping your friends from grace field, you’re ignoring what they want. You’re not helping the world, you’re eradicating an entire race from the face of the earth and murdering the poor for the crimes of the fucking 1%. You’re not being a martyr, you’re a selfish piece of shit liar you little coward, you just want an easy way out and you want to die on your bloody fucking hill instead of admitting you’re wrong. Grow up, cringe little man.
why he went wrong: I think most of the reason this happened was the way he was raised combined with the kind of person he is. Norman would have turned out fine, if there has been good adults in his life who actually cared about his well being. Instead he got people who just wanted to control him and make him what they needed, and family who largely didn’t realize there was anything wrong. Ray being an ass to him most of forever probably didn’t help but well, that’s just Ray. Even then, he would have managed alright if he escaped with the rest of the kids because he would never have been separated from the experiences that caused the rest of them to realize demons weren’t all evil. In lambda he didn’t have anyone supporting him or telling him when things went too far, so he fell into relying on himself alone, pushing himself further with absolutely no limits. All he saw was enemies and allies, and things got stratified. He never had a lucas or a yuugo or mujika when he would have needed it, instead he found children who wanted him to be in charge and a world that made it so he had to be. Everything was an echo chamber for his worst thoughts, so they just became more and more dominant.
what he needs: To put it simply, he needs Emma and Ray to cut to the chase and slap him across the face and make him take care of himself. He needs to be forced to see everything for what it really is- this edgy 14 year old committing atrocities to feel better about himself? He needs to be told that what he’s doing is irrational, because in reality, it is. There are better solutions that he’s ignoring, both to his own suffering and the demons, and the way he’s going now no one will truly be happy because of it, that there is no requirement that things be perfect and this bullshit doesn’t make him stronger. He needs someone responsible to take the fucking dagger out of his hands. He also needs someone to babysit him and make him go to bed at a reasonable time.
i describe his personality through songs on my spotify playlist for him:
-outrunning karma by alec benjamin: this one super applies because it calls him out for making shitty decisions, being manipulative and a liar, and having blood on his hands in a very calm and subdued manner, that he knows this is wrong and yet he chooses to keep running faster and faster towards destruction, that he means to escape it through death
-empty by boyinaband and jaiden: yes this is a song about anorexia yes it also applies to norman i’m not saying norman literally has an eating disorder (but honestly it wouldn’t be far out of character if he did) but metaphorically this applies to his method of ignoring his needs, both emotional and physical, in favor of seeming in control
-toxic thoughts by faith marie: this one speaks to his gifted kid trauma. Man’s got perfectionism running his entire soul. He’s terrified of failing, because he’s always been at the very top, he’ll beat himself up over any miniscule mistake and forces himself to keep at bad habits that keep him Productive, but he won’t ask for help no matter how much he’s suffering because that would be failing, he fights with his mind, this song basically tells him “yeah i feel you but you need to stop that”
-no time to die by billie eilish: ignore the romantic overtones but this is emma and norman, emma who trusted norman and was lied to, betrayed, for norman’s greater good, and norman who refuses to feel or hurt because of it, who refuses to apologize or see himself as wrong, pushes forward because he’s going to Pass Away
-achilles come down by gang of youths: hhhhh it's like. His vibe. Obviously you can disregard the lifestyle specific shit but it's. It's achilles come down you have to understand it’s like the same deal as friend, please just like french and longer
-friend, please by 21 pilots: i feel like i don't have to explain this one but it’s more to the manga (not the anime where he kind of figures out he done did wrong by himself instead of committing unforgivable sins and still going yeah this is valid before emma is like holy fuck). He is like sorry emma I cannot fix anything I’m going to die :) *coughs blood* and emma going like stop it stop it stop it fuck you see you fucked up and i forgive you just stop don’t walk away while he’s like “no<3”
why im a repressed little norman kinnie even tho he’s my exact opposite: I don’t generally kin ppl like norman, honestly he’s an infj I have no clue how it happened but I’m pretty sure it’s because of my intense desire to project onto a little man who cannot lift a milk jug and has chronic pain and decides you know what I AM tired of being nice i DO wanna go apeshit. Also he’s a twink. A little bastard. He’s a terrible person and I go mood every time he does anything. I said mood when he fell out of a tree. Don’t know what this says about me, I swear I wouldn’t commit no genocide. He’s like the inverse of Yoichi Saotome, and somehow i kin him too. Damn.
Miscellaneous headcanons:
-man’s SO attached to his william minerva cloak. He’s a wispy little bitch, you know he’s wearing that thing inside the house, he’s fucking cold. It also makes him Look Important he can retreat into it like an emo middle schooler with an oversized sweatshirt
-although you could probably get Mad street cred from having two whole brands you know he’s not gonna whip it out and show off his lambda thing he’s incredibly self conscious and his chest hasn’t seen the sun in years
-norman’s got MAD laundry skills to be able to wear like, all white all the time while constantly murdering people. I think he’s the only one who knows to do the laundry. And Ray is the only one who knows how to cook.
-but even then there’s gotta still be a few questionable stains on that thing, but if anyone asks he’s like “ketchup” “I’ve literally never seen you eat anything with that much color” “ketchup :)” *coughs blood*
-he’s probably thought “well i have not literally coughed blood yet today so I am not legally obligated to take care of myself”
-He probably adopted much of his current personality from taking on the persona of william minerva. I’m calling him out for being like me, he’s a blank motherfucker, he absorbs personality traits from characters he plays! He’s just not in theatre so it’s a bit more intense!
-the first time he sees barbara Eating Demon Meat he kinda stares and goes oh cool! not for me and violently exits the room. Like it's hilarious bc he thinks that's really gross on a moral level though he understands why she would do it
-Which is even funnier bc I’m not sure about the canon on this but there was That Chapter Cover that one time that kinda seemed to imply norman eating demon meat which i absolutely latched onto because I’m terrible. He was just politely eating it. With a knife and fork like why dude. As to a possible reason for him doing that I can come up with, of course barbara does it out of spite, but man we don’t know the properties, if it had some sort of painkilling aspect to it or it was like, caffeine, you know he would, but he would Definitely not talk about it
-I kinda disagree with what the anime did in episode eight? It was good I liked it and the imagery was fantastic but also have you considered Norman could not kill someone with his own hands if he tried, or even physically injure them? That’s what his minions are for shawty. That doesn’t make it any less bad, of course, but the manga captured it perfectly by the fact of he carries around a dagger and a scepter in the capitol battle, but he never even raises it out of more than intimidation. He walks through calmly like he’s not scared at all but he makes sure all the lambda kids do all the actual murder, he just stands there impartially, clearly The Mastermind, as the kids fucking murder the queen of the demons. And I think that’s more profound because he’s, a coward. And he doesn’t realize being the one who orders the strike makes you just as responsible as the one who sticks the knife in someone. The knife is just there to Compensate™ for the fact that he weighs like eighty pounds.
-he’s more of like lady macbeth (because he’s a girlboss) than macbeth himself. He has blood on his hands, but it’s the kind of blood that you can’t wash off. He never killed anyone himself, and he cannot admit he never would have been able to.
-the last thing is that there are definitely epic things about the anime, episode 8 was my favorite so far, goddamn that imagery and the bitch walking through the city while it burns down with the screaming asmr going on behind him my god. We stan. But like the downside of, letting Emma and Ray get to him before he commits first degree murder makes the whole thing lose a lot of his value. In the manga (oh my god look at me being a pretentious manga fan please) it fit more of his ideas- he never backed down, and he planned for Emma coming and trying to stop him. Of course he wanted Emma to stop him, he wanted it with all his fucking heart he was pleading for it to happen but the man wouldn’t give himself what he wanted if he was held at gunpoint. He knew she’d come and he made absolutely sure she wouldn’t be able to stop him. So when she came and he said “you’re too late”??? It kind of said it all, in the fact that he was disappointed that he got his way. He still thought he did the right thing, but deep down there where he shoved all his thoughts and feelings he desperately wanted to be saved from himself.
So yeah, those are my thoughts. Feel free to eviscerate me if these are not Correct he is just my favorite girlboss who I feel the need to yell at
#tpn#the promised neverland#yakusoku no neverland#tpn norman#norman tpn#essay post#god why do i do this to myself#dear god help me this is 5000 words#rowan's hyperfixation essays
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PLSPLSPLS i wanna hear abt your death note autistic hc's!!!!! :0
Sorry for the delay, there was some other stuff I had to do and then I had to gather my thoughts. I headcanon Mello, L, and Near as autistic. Here are some particular ideas I have about each (some headcanons but also some canon traits that give off autistic vibes to me)
L:
Always wears the same clothes for sensory reasons
He'd sort of like to wear nail polish but can't bc he chews on his nails a lot as a stim
He doesn't really have samefoods but has a restricted diet (canonically only eats sweet stuff), I feel like he'd really like bubble tea though?
Fucked Up Sleep Schedule™
He gets when other ppl are sarcastic, but isn't very good at being sarcastic himself- i.e. he'll do it sort of impulsively when he hadn't been trying to be snarky
The thing of playing with his food also has big autism vibes for me
He gets the idea of personal space as like. A concept. But he's not the best at remembering about it
Just... *Gestures at everything about him*
Near:
It's not that he doesn't *like* eye contact, but he doesn't have the drive to focus on meeting ppls eyes for literally no reason and normally just forgets that eye contact is a thing most ppl do
Not a fan of disorder/situations he doesn't know the rules to; is much more confident when he knows what to expect
Low sensory seeker. Especially doesn't like too many bright colors
Messes with his hair as a stim (canon)
The way he canonically plays with toys while simultaneously focusing on/talking about the case feels like such a Stereotypical Autism Thing
Other people often view him as childish, and he doesn't bother trying to make them think otherwise.
Really likes comfy clothes, they make him feel secure
Mello:
I know for a fact that beaded stuff can be really stimmy, so I feel like his necklace + bracelets could be used to stim with
He's bad with volume control. He sort of tries to play this as intentional, but honestly he just doesn't notice how loudly he talks when he's emotional
Chocolate is his samefood (he has excellent taste)
Very much a "pacing back and forth while talking" person
His emotions show on his face a *lot*
Not great at telling if ppl are being sarcastic but tends not to give them the benefit of the doubt
Out of these 3 I think he'd be the one in circumstances that caused him to mask the most? But I feel like Mello's form of masking is just "I can't mess up and be rude accidentally if I'm already being rude on purpose"
But also he very much does the thing of guessing what ppl say a lot and hoping he's right bc he hates having to ask them to repeat themselves
Disclaimer that I'm not technically sure if some of these are autistic traits per se but like. They're things I do so I'm assuming so
Also disclaimer that I've only watched the anime, haven't read much of the manga yet, so sorry if any of this isn't canon compliant
#I feel like as soon as I post this I'll think of smth else I forgot to say but oh well#anon ty for asking me this! ^w^#asks#death note#l lawliet#near#mello#actuallyautistic#au ideas/headcanons
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@melancholygirlfrien said:
I have a Child Development Associate so I am literally professionally certified to tell you that yes, taking children and babies to places so they can learn how to function and see that they're a part of a world bigger than they are, is important to their social, emotional, and language development. It helps everything from motor skills to social skills and cognition Just because you find babies' cries annoying doesn't mean parents are selfish just for wanting to take their children outside. Children shouldn't be raised indoors all day in a fucking bubble because that's how developmental issue happen. If a child is isolated they can develop serious issues.
Note that there are more appropriate places you could be taking them to, for starters. Places where people can avoid the noise more easily and where it might be less disruptive.
Like, you have options beyond “indoors 100% of the time” and the kinds of locations I mentioned in my first reply to you. Like, you can still take them to places like parks, malls, and other locations where it would be less of an issue.
No it's not fucking self centered for a parent to take their baby outside because they're just doing what they gotta do , not everyone can afford child care especially people of lower socioeconomic status. There are many single mothers who have no other option but to take their baby everywhere because that's what their situation calls for. The only fucking person being self-centered and not considering the struggles of other people is you.
Again, notice the kinds of places I mentioned in my post before going off on straw arguments. My complaints about others involve places like restaurants, the movies, and airplanes.
These are not only places where a child crying can ruin other people’s experience and be inescapable, they’re also places where many of the people there are not poor and had other options for what to do about their situation.
Like, I would think differently about someone who brought their baby to a clinic’s waiting room (for example) as opposed to a flight to Miami.
Black and white thinking is not going to help you understand what other people’s issues are.
No I wouldn't tell someone whos scared of my snake to go suck it, even though I would have every right to. Like I said I understand when people have phobias of certain animals. There might be people out there who have a phobia of dogs but does that mean people who take out their dogs are being selfish and don't care about people who have trauma/phobia associated with dogs?? Fuck no, those people are just being responsible dog owners and doing what every dog owner should which is take their dog out for a walk. Just bc some people might be annoyed by their dog doesn't mean they're being self-centered and bad people.
And yet there are places where they probably should not take their dog because it would be either inconsiderate or outright banned, and if they insisted on doing so then they probably are self-centered.
Like, if you want to take your babies out for a walk or something around the house that’s not nearly as bad as what I was actually complaining about.
your life isn't gonna be fucking ruined from hearing a baby cry in public. The most you'll be is annoyed and anxious for a few moments and then it will go away. Suck it up.
Did I ever say anyone’s life was going to be ruined? Why do you make everything some kind of exaggerated strawman?
Here are some exact quotes you already forgot about:
“It’s not the worst thing but it’s still kind of inconsiderate“
“No one said anything about stopping them or suspending their rights in any way, only that noise is annoying (and especially painful to autistic people with sensory issues).“
“Um… what do you think I do? Activate Karen Mode and go bother the parents about it? Nah, I just judge them silently. I am free to complain as much as I want on the internet though.“
So:
1- I am not treating it as a huge, life-ruining thing, just a sort of dick move. Like people who cut in line or something.
2- I do “suck it up” when it happens but am 100% allowed to complain about it online anyway.
Tbh I can't keep talking to you, I think people like you should be ushered into a dark warehouse and humanely put down.
Empathy-havers are so humane they advocate genocide against autistic people apparently, over a post about baby noises being kind of annoying. I’m not even surprised because you all keep doing this every single time without even thinking about how it sounds.
Maybe you should think about how the things that make children annoying (they're egotistical, they have a hard time empathizing with others because of their self-centered world view) are traits that you have yourself. The difference is that most children develop and grow out of that self-centered world view
If you actually read my post, the primary annoyance I pointed out was that they were Portable Sensory Hell. I made no comment about their ability to feel empathy and actually find low empathy people significantly less annoying than others so that’s clearly not it.
You're a child in my eyes tbh. Your mentality is childish. Say what you will but I would like to remind you again, at one point in your life, you were a baby, and you shit your pants, and someone had to clean up all that shit after. Or else you wouldn't be here.
You know, if you’re going to go around advocating genocide over a post about people not liking baby noises then I am 100% sure my literal child self was morally and intellectually superior to your current self already.
You know what would make me respect you more? If you owned up to the fact that you judging parents when their babies cry is a result of your low empathy and self-centered world view. I would respect you SO much more if you just said "Yo, straight up. I'm just a selfish person. I know babies can't help that they cry and it's not the parents fault but I straight up do not like that shit. I have low empathy as a person and therefore I can't really bring myself to care about babies, children, or the parents and their situation so I just judge parents because I want to. Because their kid is annoying the shit out of me. I don't care about the reasoning tbh I'm just kind of an asshole."
> Implying I care about whether or not you respect me.
Also, this isn’t even correct. At my current point in life I pretty much never have to interact with babies in any way, if I was completely selfish then it would not matter to me now whether or not people bring their crying babies into airplanes and the like. The issue just isn’t a very significant part of my life.
But the thing is that while I am low empathy that does not change the fact that I value other people’s well-being and know that crying babies make their lives worse even if just in a small, temporary way.
The kinds of parents I am complaining about don’t even think about that.
You know you're just incompassionate. So be a self-respecting sociopath and own up to that shit, please, I would respect a stone cold evill mf SO much better than a little weasel who tries to give excuses as to their own egocentric way of thinking.
I am a narcissist, not a sociopath. Of course, if cluster B disorders are just standard insults to you then you might think all low empathy conditions are the same.
Furthermore, you haven’t shown that you understand anything at all about what low empathy conditions are actually like.
Also I find it really telling that you would prefer unrepentant evil selfishness over someone who merely understands and sides with others who are negative about loud babies. Like, actual morality is not something you seem to be valuing here.
"iF I wErE iN tHaT sItUaTiOn I wOuLd jUsT sTaY hOme!" No you wouldn't you stupid bitch because parents have to go out to buy groceries, and run errands like every other adult.
Again, you seem to be treating all of “outside the house” as an interchangeable space with the exact same norms.
Like, do you realize how it might be different to bring your child out for necessary grocery shopping than to bring them to a restaurant or the movies? Do you really think I would treat those things as exactly the same?
MOST parents, especially working-class, poor, or single parents, DON'T have that option, as I already stated. And you are showing a clear lack of regard for people who are in a tougher situation than you for judging parents when their babies annoy YOU. You are literally not putting yourself in their shoes at all bc you have no idea of even half the shit parents have to do in order to make ends meet and look after their babies.
Oh, I am well aware of how having babies will multiply your suffering, especially if you’re poor. It’s precisely why I’m never having any!
I understand it’s a huge pain and people with children are always going on and on about how their lives became significantly more miserable as a result of it.
I think you should honestly love that screaming toddler on the plane because in a few decades she might grow up to become the nurse who will take care of you when you're old and ill.
This argument just doesn’t work one way or another. If the baby is going to help me then I will be grateful once that actually happens, not based on a hypothetical so unlikely I might as well live my life not considering it.
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696.
If money was no object, would you change your wardrobe? >> If money were no object, absolutely, because I could then stop settling for clothing that doesn’t quite fit well or has bad textures just because they’re within my budget or because I can’t afford replacements. Also, maybe I could get stuff custom-made instead of dealing with whatever the stores deign to sell.
How do you/did you get to school? >> I took a bus for most years, but for junior and senior year I lived in a town with no school bus system so I walked.
Have you ever been in trouble for something you honestly didn't do? >> Yeah, a lot when I was young. I guess I make a great scapegoat.
Is the idea of having a secret admirer creepy or romantic? >> If an admirer doesn’t overstep my boundaries and doesn’t expect me to reciprocate whatever it is they’re feeling, then it’s fine, I don’t care. I’ll take any positive attention I can get.
What was the last song you sung out loud? >> I don’t remember.
Have you ever had to have a pet put down? >> No.
Were you excited to learn to drive, or scared? >> I never had this experience. I did drive Sparrow’s car around a school parking lot once, and that was pretty fun.
What was the last book you read? >> Recursion by Blake Crouch.
Did you enjoy it, or were you glad to be finished? >> I enjoyed it immensely.
Do you ever wonder what other people are thinking when they stare at you? >> Yes, because I’m quick to assume they’re thinking something negative but I’m aware enough to know that I might be wrong. But to be honest, I really don’t like being stared at for any reason, so I mostly just wish they’d stop.
Have you ever gone out of your way to get someone's attention? >> I don’t think so.
When was the last time you felt desperate? >> Earlier last week.
When was the last time you felt incredibly tired? >> This morning, before I had a galaxy-brain moment and put on a pair of sunglasses to mitigate the overwhelming amount of daylight streaming into the apartment and overloading my nervous system. Just because I know I’m sensory-defensive doesn’t mean I always remember to, like, defend my senses. lmao.
What candy cane flavor is your favorite? >> I don’t have a favourite.
What is one thing a guy can do, but a woman shouldn't? >> ---
In your opinion, who doesn't deserve to be famous? >> ---
Do you get angry when fast food restaurants mess up your order? >> I get upset, because it upsets me to have the Wrong food. But most of the time when I’m really upset about it it’s because I’d only noticed by the time we got home, or something, and I can’t do anything about it. If I notice while we’re still in or near the restaurant, then I don’t get nearly as upset because I can just... go fix it.
Have you ever had a ridiculous hair cut? >> I mean, probably.
What was your favorite elective class in high school? >> ---
Did you ever wish you could be homeschooled? >> No. Was it hard for you to get up this morning? >> Not really.
Have you ever had a dream so realistic you could've sworn it happened? >> Yeah.
When was the last time you colored with crayons or colored pencils? >> I don’t remember the last time I coloured in general (I usually colour with markers, anyway).
Can you remember the first survey you filled out? >> No way, lol.
Do you have any mental disorders? >> I could probably be diagnosed with a couple, but formal diagnosis really doesn’t interest me at this point. I have enough of an idea of what psychological criteria I fit that I can look up resources to help myself (and I have a direction to point SSI towards when it’s time to Prove My Disability To The Government), and that’s really all that matters right now.
Do you feel comfortable talking about these disorders, if you have them? >> *shrug* I mean, I guess you could say that.
Where did you go on your last field trip? >> ---
What do you do when someone pushes their views on you? >> No one does that, really. I mean, I don’t even know how they would, considering how unfazed by social pressure I usually am. Dogma just doesn’t stick to me.
Are you able to agree to disagree? Or do you have to have the last word? >> I’m perfectly willing to agree to disagree.
Do you think you make a good first impression? >> Not always.
Do other people's first impressions stick with you? >> It depends on what my first impression was. If it was like “oh my god this person really comes off like a bigot”, yeah, that’s going to stick until explicitly proven otherwise. If it was like “oh hmm this person seems to be in a bad mood” then like, whatever. Moods change. Sometimes you just catch people on a bad day and that doesn’t mean they hate you forever.
Are you friends who you thought they were when you first met? >> ---
How have you changed in the past year? >> I really don’t know how to track this.
How about in the past five years? >> This is a little easier to track, because five years ago I didn’t even live here. But I don’t really have the energy to like, lay it all out in words right now.
What do you do when you feel like giving up on something? >> Sometimes I just give up on it. Other times I take a break. Other times I have a meltdown. Other times I push through.
Have you ever had to give up on someone? >> Yeah.
Would you rather break up with someone, or them break up with you? >> ---
Is there a cover song you like better than the original version? >> There are quite a few songs like that for me.
Do you think it's okay to like a cover more than an original? >> Who the fuck is going to stop me...?
What band do you wish was still making music? >> Meh.
Do you still watch any cartoons? >> Sure, I watch cartoons.
Are you just too lazy to recycle? >> I guess, more or less. I also don’t really see the value in it anymore. Reducing and reusing seem to have more immediate effects that I can observe in my own life; recycling is just another industry with its own emissions problems at this point.
Think of the last person you talked to--do you love him/her? >> Sure.
Do you fit your zodiac sign? >> My natal chart seems to be an astute character sheet for me.
What is one of your weak points? >> I don’t know.
What is one of your strong points? >> Meh.
Are you calm in emergency situations? >> More often than not, yeah. Unless said emergency situation includes a lot of environmental stimuli, in which case that will frazzle me (although the situation itself might not).
When was the last time you cursed at someone? >> As in, with the intent of being mean, not just cursing in conversation? I really don’t remember.
Are you afraid of losing someone you love? >> I’m always afraid of losing Can Calah.
Who are you most attached to? >> ^
What do you depend on other people for? >> Most of my quality of life, seeing as I can’t live off this government income alone.
Are you good at reading other people's body language? >> I don’t know, maybe.
Do you like facial hair? How about chest hair? >> It’s fine.
If you have a favorite number, how did you choose it? >> I didn’t really choose it, it’s kind of just... I don’t know. It’s part of the fabric of my reality or something blah blah blah.
What goes through your mind when someone breaks up with you? >> I mean... wouldn’t that depend on the specific breakup...
What goes through your mind when someone asks you out? >> ^ (But also in general, I’m going to react defensively to being asked out because... I don’t date, and anyone asking me out either doesn’t know me well enough to even initiate that sort of intimacy or doesn’t care that I’m aromantic, which is not a good look either way.)
Do you match your shoes with your outfit? >> My shoes match with all my outfits.
Do you style your hair daily? >> No.
Who was the last person to compliment your appearance? What'd they say? >> I don’t remember. I think the only person that really compliments my appearance these days is Sparrow, anyway. Is there any movie you just can't stand to watch? >> Yeah.
What do you think of pornography? >> I mean, it serves a purpose.
What hair products do you use regularly? >> Shampoo. Also this tea tree oil stuff that I don’t know if it works or not but I don’t have a better idea.
Does it bother you when people use extremely bad grammar? >> No. Most of the time “bad” grammar isn’t an impedence to communication, so I don’t see what the big deal is. (Obviously if you’re writing for, say, an academic journal, there is a certain standard of writing one should be following. But people are always complaining about bad grammar on, like, tumblr, and who fucking cares? Ain’t nobody being graded on mastery of Strunk’s Elements of Style here.)
Do you have a hard time talking about sex with the opposite gender? >> Er, one’s gender isn’t what determines how comfortable I am talking about sex with them.
Do you feel more comfortable with a male or female doctor/nurse? >> There’s something to be said about the lack of compassion that male doctors often display towards people who are perceived as female, which I do take into account, but ultimately I figure it’s still about the individual doctor and not whatever configuration their chromosomes are in. I’ll take a competent, compassionate male doctor just like I’d take a competent, compassionate female doctor.
Have you ever had major surgery? >> No.
Could you go a month without speaking? >> I think it would be rather inconsiderate for me to go a month without speaking to Sparrow. I have had periods of selective mutism, of course, especially during depressions, but if it lasted long enough I would eventually have to make some attempt to work around it.
What goes through your mind when you see someone very obese? >> I mean, nothing specific.
How about when you see someone very thin? >> Once again, nothing specific.
Is there any food you don't like that a lot of others do? >> Yeah, milk chocolate.
Have you ever followed a trend? If so, what was it? >> When I was younger, certainly. You know, when I actually paid attention to trends. I have no idea what’s even trendy right now, except like... VSCO? Is that still a thing? Shit moves too fast these days, man.
Have you ever started a trend, even a small one? >> Not to my knowledge.
What was the last thing you bragged about? >> I don’t know.
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Why do you feel the need to exaggerate and lie about your illnesses? I don't doubt you're ill, but you just pick up every single disability going around. You're not blind or deaf, and certainly not paralysed. What's the point in lying?
Hi, are you my doctors? No? Then why do you feel the need to come here and do this every couple of months? I’m assuming you’re same person who’s been stalking me on here for the last year; if you are, I’m sorry for being an abusive shit to you, but I don’t know what you’re trying to achieve by constantly sending me anon asks yelling at me for being a fake.I’m so fucking tired of this; why do you think this is okay? What the hell do you want from me? I don’t know what to tell you, anon; either you’re doing this just to be an asshole, or you won’t fuck off until I hand you a diagnosis letter on a silver fucking platter.
Also, you do realise to get hearing aids (especially fully government subsidised ones), you don’t just get tested once, right? You do realise that getting an ophthalmology referral isn’t all sunshine and daisies, right? You do realise that spine issues are often degenerative, and also accompany EDS a lot, right?I have spent years trying to be as abled as I possibly can, and I am sick of it. It is exhausting. It is painful. I am done.
Or do you think I’m saying I’m profoundly deaf and totally blind? Because that’s not what I’m saying at all; deafness is a wide range of things, as is blindness.If it’ll sate your shitty attitude, I’ll explain my experiences medically with deafness and blindness, and you can ask another Australian d/Deaf / HoH and / or blind / VI person if I’m bullshitting or not.
It’s also helpful info for other d/Deaf / HoH and / or blind / VI and / or paralysed folx to have this information, so I’ll probably copy-paste it into its own post at some point.
Here’s how getting hearing aids under the Hearing Services Program, specifically the Community Service Obligation part of it (for folx under 26); you get your hearing tested, either through Australian Hearing or another audiologist (I went to the audiology clinic run by Melb Uni on Swanston St, on recommendation of my doctor after knowing I’m deaf for my whole life but just not having a diagnosis because “my child cannot be disabled in any way”, which is something a lot of d/Deaf / HoH and disabled folx experience). They a bunch of different tests; almost all of them are relating to pure tone (beeping noise), where you press a button when you hear the sound, often with various levels of static masking in your other(?) ear. Pretty sure it’s masking in the opposite ear; never figured that part out, even after four different tests in the last year. It sounds like it’s coming from all over.Some of the tests are about word recognition; I, personally, have about 70% in my left ear (with sound magnification), I think? It’s been a while since I got the number. I do pretty well, but they’re also single-syllable words that’re really clearly enunciated, so that definitely helps.Some of them are automatic, and you cannot fake these. These are mostly used for hearing aid tuning, in my experiences; example is when I went in a couple of weeks ago to get my new earmoulds and have them turned up, they did an automatic test to check exactly what needed to be turned up (my high ranges).So, after your initial test, if you’re not with Australian Hearing, they’ll transfer you to them; if you are, they’ll chat to you about what you want out of HAs, what kind of colours you’re after, etc.; I wanted Bluetooth, telecoil (for hearing loops), and nice colours. Sadly, I only got one of those things, and my audiologist is chasing down someone to ask if we can apply for new HAs already because we’re not meeting my goals for them—unfortunately, the colour thing isn’t gonna change though. I got white to make sure they’d be visible regardless of my hair colour, though I wanted this really nice light blue.Anyways, so they order the hearing aids, you come back a few weeks later, have another hearing test; this test determines the initial programming for your HAs, though they’ll be tuned here and there over the next few weeks depending on how well they’re working (or not) for you. This stage is the worst part of it, honestly.For me, I also had to go back and get my earpieces changed a few times because I don’t have the right kind of canals for soft tips, but I also don’t have the right kinds of canals for discrete moulds (plus, they’re uncomfy, imo), but it’ll heavily depend on your needs, the shape of your ears, etc.
I have visual acuity of 6/60 (20/200) + 1 I think; I can see, I just struggle to determine what the fuck I’m looking at unless it’s A) big, or B) I’m straining my eyes (bad for you!! don’t do this!!!). This is pretty common in blind / VI folx, as not every one of us can’t see anything; legal blindness and total blindness are different. I am legally blind (in Australia and the US, at least; not sure about other countries) and also have a near-vision classification of N18, which is moderate near vision impairment. I sometimes wear glasses to read, and it makes things a little clearer, but ultimately, it’s just more hassle than it’s worth to me, so I mostly just struggle and go without.With my distance vision, glasses stopped helping me a few years ago (I’ve been wearing them since I was ten), and I’ve been seeing optometrists a lot lately to keep an eye (ha) on it because it’s been getting worse, especially with floaters and little grey dots that occasionally pop into view; I’ve seen three in the last five or six months because of it. What optometrists can do is pretty limited overall, so at the most recent visit the optometrist just went “we can’t do anything, there’s no signs of retinal detachment or anything, you need someone with better tools”, so now I’ve been referred to the Royal Eye & Ear Hospital and am waiting to hear back from them.
Deafblindness also doesn’t follow the rules of legally blind.For someone to be Deafblind, it just means they’re VI and also Deaf; it’s dual sensory impairment, and how being deaf and VI intersect when it comes to interacting with the world around us. Not every Deafblind person is profoundly deaf and totally blind; it’s a huge misconception!So, no, needing glasses and being d/Deaf doesn’t make you Deafblind, but being visually impaired (”having decreased ability to see to a degree that causes problems not fixable by usual means, such as glasses”) and also d/Deaf does. It’s more of a cultural group than anything.Most commonly (afaik), Deafblind folx have Usher’s Syndrome, but not everyone does, and deafblindness can come from various things, both genetic and acquired; genetic stuff, of course, is luck of the draw. Having a connective tissue disorder did me no favours in keeping my sight—which was better than 20/20 when I was really little, by the way, so it’s interesting now thinking back about it. I’ve been losing my vision in “chunks” since I was about ten; not great, but it is what it is. I’m okay with it; I’m not afraid of it anymore, and that’s why I’m open about it now.
Now onto paralysis:Paralysis is a pretty broad term, and it doesn’t just mean “can’t move at all”, it can mean “can’t move well”, or “struggles with fine motor movement”, or plenty of other stuff; I have paralysis caused by spinal cord damage over the course of my life, as well as repeated herniated discs and spinal cysts, which has landed me in and out of hospital a lot in the last couple of years.For me, paralysis is I have hypertonia and struggle to move my legs, especially lifting them when I’m sitting or laying down; I had to talk to a neurosurgeon about this back in February and was told “if this gets worse you’re going to need spinal surgery” and proceeded to sweep that under the rug because let’s not deal with major surgery right now, thanks. I’m also now taking Lyrica to help manage the neuropathic pain I get from this; takes the edge off a little, so that’s nice.wrt my upper body, I have a lot of issues with trunk control and getting myself back up from leaning, especially to the back, as well as II also sometimes piss and shit myself because I often have moments of “wait, is this spine pain, or do I need to shit?” and just general struggles with holding it until I get to a bathroom (especially when I’m having to chase down security guards to get them to unlock the bathroom). Thankfully, it’s not an overly common occurrence, but it still sometimes is one.A lot of this is suspected to be caused by two bike accidents and someone (a kid) falling on me from two storeys up when I was nine, because I wasn’t the most self-aware child, but the rest is just chronic illness being a chronic illness and going “hey, remember me? I brought you more stuff!” (like the cyst).
Also, in case you want proof of anything:[ID: a pair of white hearing aids with red dragon stickers on them, connected to clear skeleton moulds, and sitting on a yellow cloth, inside a grey, vaguely egg-shaped box. Sitting on the bottom half of the box are two blue Post-It tabs reading “Go Fuck Yourself,” and “Anon”, respectively, in green marker.]
idk how you’d have me prove anything else, but this is a good starting point.
If you’d like to actually talk to me about this, I’m more than happy to, even if it’s from a throwaway blog, go ahead, I don’t mind, just please stop spreading harmful “gotcha” rhetoric; even if I was faking it, who’s the next “actually disabled” person whose disability supports get cut because of false accusations? Because it happens. People die from this sort of thing.
#answered#anonymous#anon hate tw#faking cw#gross cw#body fluids cw#ask to tag#don't reblog#//I'll make a lot of this into separate posts that can be#just not this one because good info should be shared without anon's scrutiny
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Okay let’s try this one more time.
Questions from this thingy that I saw a friendo do last year.
Introduction: Acey. That’s it that’s the introduction.
Diagnosis: I’m working on getting a Diagnosis but Autism and some form of attachment disorder.
As of 2019:
Neurocognitive and Cognitive Disorder due to Seizures
Major Depressive Disorder
General Anxiety Disorder
Social Anxiety Disorder
Personality Change Due to Seizure Disorder ( later confirmed by a second psychiatrist to be Borderline Personality Disorder)
C-PTSD symptoms ( still waiting on final diagnosis but symptons have been confirmed and disorder is very likely.)
Autism more or less confirmed by multiple professionals but still waiting to be able to afford testing.
Symptoms:
Autism/ASD : Can’t read tone. Hard time with social interaction. Sensory issues. Adherence to routine. Stimming. Scripting. Childish behaviour. Meltdowns. Hyperfixation.
Attachment Issues: I tend to attach/get attached to people really fast. At the same time I push them away or tell myself I don’t matter to them. I also have a hard time getting attached to people. It’s either super quick or like pulling teeth. I want to be with people all the time. Codependence I guess is the word I’m looking for.
Social Anxiety: I’m...basically always scared when I’m talking to people? I’m scared I’ll say the wrong thing. I have my answers and messages rehearsed and proofread and sometimes vetted by someone else ( unless it’s sensitive info) and I still feel like something comes across in a negative way. ( like This is too cheerful, That’s too morbid, does that sound dismissive? If I say This I fuck up in this way but if I say THAT I fuck up in another) It couples with my autism since that...actually makes me say awkward/wrong shit all the time.
Has come down since starting Lexapro but still present.
Emotional Flashbacks: Feelings that were there while you were experiencing the traumatic event. Happen at random triggers. Incredibly strong. To the point that they don’t correspond to the stimuli and feel freshly felt. ( tied to C-PTSD)
Hyper-vigilance ( tied to C-PTSD)
Anxiety attacks
Panic Attacks
Don’t act as mature as other people my age/more at home with younger people.
Hypersensitive to any perceived rejection.
Brain fixates on bad memories and repeats them : C-PTSD
Constant fear of it happening again: C-PTSD
Black or White thinking: I’ll think someone’s sick of me or can’t stand me at stuff like being left on read while also deciding I love them and they’re the best person ever when they do something nice to me. Intense but have some modicum of self awareness. ( i know on some level people dont dislike or hate me, i still spiral though)
“Duckling Syndrome” ( is what i call it) : I’ll see someone be nice to me and all I can think of is how much I want them to adopt me, to take me home, to make me part of their family. It’s too strong to be anything but disordered. It hurts. ( possibly part of bpd)
Has in the past put self in bad situations to not be alone ( connected to bpd/attachment disorder)
Other Stuff I either need to mention to my shrink and/or hasn’t been tied down to any of my dx disorders:
I want things to be Just So. Like I want a certain kinda paper for certain kinds of mediums in art. I want my food in a certain order. I eat it in A Certain Order I get really uncomfortable otherwise.
I think I’ve depersonalized or dissociated at least five times..but..only when things get REALLY bad...like when I spiral. I still get those two confused even after reading the definitions but it’s like….I don’t feel anything? But I’m weirdly aware that I’m supposed to? Like I flipped a switch. Also mixed with this weird its not real feeling. I hasn’t happened in roughly a year tho so I dunno if it counts? Its been happening again this year. Still unsure if disordered or stress reaction.
I tend to struggle with depressive episodes from time to time. Like I’ll just lay on the bed and not wanna do anything. I have games to play, I have hobbies I could indulge in but I just..don’t want to. Don’t see the point.
Have thought that I’d be better off not existing. ( AKA suicidal ideation) Currently under control.
I’ve developed these like...weird paranoia spells? Like this one time a cop yelled at me ( to mess with me) and I was suddenly terrified of him following me and hurting me and my dad ( which yes can be attributed to the amount of police brutality you hear about, especially to people who don’t speak english fluently but like I saw it in my mind’s eye and it would not stop and the dude left and I was still seeing in my head him like following me home and hurting us) or like just recently some man asked about my dog and how much she was worth and this weird ass alarm went off in my head to get the hell away from him and what if he follows me home? What if he takes my dog? What if he follows me home AND takes my dog? They’re pretty sporadic ( though not as much as I want them to be) but they’re also really intense. Have stopped since I started Lexapro.
Physical Self Harm in the past to ground, to punish myself, in times of high emotion. All of the above. ( has stopped as of last year. Even intrusive thoughts about it are at a minimum.)
Obsession with being “good”: If I ever do something I think is a mistake I all but turn on myself. I beat myself up. I think of myself as a bad person ( there’s only Good and Bad for me..but only in regards to myself) I have to be nice. I have to be kind. I have to be good in a way that’s disordered. ( this compounds with my social anxiety and bpd to bind me into being a “good person” ( someone who never gets mad never talks back never does anything but niceness irregardless of the fact that..it’s impossible) I tend to think if I’m “bad” that people need to punish me, yell at me, or hurt me. That I need to Atone) ( could be part of CPTSD due to past abuse. Answer pending)
Intrusive thoughts: mostly about self harm but also about “learning my place” and...calling myself things I’d rather not say. I’ve so far at least managed to recognize they’re intrusive ( might be related to any of the disorders listed above but also with past abuse but unsure at the moment. Shrink thinks its tied to bpd. Could be tied to past abuse I haven’t discussed in therapy yet.)
Disordered Eating of sorts: due to my mother being paranoid about unhealthy food I’ve gone days where I can’t bring myself to eat something because I’m scared it’ll hurt me. There’s times where I’ve needed my friend to tell me to eat. There’s times where I feel like if I eat I have to exercise it off. It’s about control, it’s about fear, it’s….about everything but weight. Hella strong last year. More or less brought under control as of this year. But remain as intrusive thoughts and pop up as intrusive thoughts from time to time.
React badly to being alone, especially at home and not getting social interaction. Depression kicks up, sometimes depersonalization ( might have ties to childhood epilepsy -having to be on lock-down and kept indoors a lot due to my own risk of being hurt via seizure- but combines with bpd/attachment disorders)
Have Shown Signs/Moments of Age Regression ( more often than not with the emotional flashbacks but not always)
Literally all the symptoms act up at night/around bedtime. Mostly anxiety but some others that have now been associated with bpd. Causes sleeping problems ( I hesitate to call it insomnia because I do sleep but it can get as bad as 3 hours a night until i just conk out at the end of the week -or 2 weeks- out of sheer exhaustion. Has been present since I was a teenager.)
In The Past: Recklessness and disregard for personal safety and care.
Sometimes get this physical feeling like my brain is overloaded. Often with hypervigilance or spirals where my mind races.
Stigma:
“I’m autistic” “I’m so sorry”
“I’m autistic” “And you’re sure you wanna go for that major?”
“I’m autistic” “But not that kind of autistic right?”
“I mean if you need accommodations to take a test then are you really cut out to have that kinda job?”
I consider myself a very patient person.
“She doesn’t know any better. You know she’s special” ( I was standing right there)
“I guess you don’t love anyone huh?” ( I was uh..I was nine years old)
“You’re codependent as fuck” ( that one my abuser said to me...after...making me codependent on her..yeah)
“You talk like a robot. It’s like you don’t feel anything.” ( eeemotianl detachment due to CPTSD in my teenage years)
“You’re choosing not to grow up” ( when expressing fears of develomental problems/disordered behaviour that could cause lack of maturity. I was asking for help)
“You’re a lot”
“People with your disorder tend to be a problem for other people”
“You need therapy” “I am in therapy” “Then why are you still acting like this.”
“You’re just making excuses.”
“It’s like you like to cause trouble.” ( circa 2013)
“You just wanna hurt people that’s why you’re doing this.” ( circa...most of the 2000s)
Multiple people in my family constantly make it a point ( or have in the past like..for most of my life) to tell me no one’s wanna live with someone like me ( I’m forgetful and before I figured out some ways to help it and the depression was bad uber messy)
Multiple people in my family try to discourage me from trying things because “you know you have that...thing”
And I mean..the usual constant bombardment of Autism being something you have to Fix. Of it causing people you love pain, and them never being happy because of it, of it being a defect.
People around me use autistic as an insult.
General comments about how horrible living with my mentally ill family must be ( ignoring that I’m mentally ill as well) and how my parents probably wish we weren’t disordered ( ignoring that they are also disordered) and how basically there’s no way for us to be happy.
I think at one point someone actually said to me something along the lines of “I bet your parents wish you and your siblings were born differently”
“I’m so proud you can do this incredibly easy thing that I think is all you can really do and I’m gonna talk to you in the most condescending tone about it like who’s a good lil autistic person look at you, talkin and solving basic problems and everything.” ( obvs paraphrased but thats...usually the gist)
Define Your Disorders
Autism: a developmental disorder that affects communication and behavior.
Attachment Disorder: the condition in which individuals have difficulty forming lasting relationships ( it was the only one I can find that doesn’t talk about RAD as I don’t have the criteria for that. This one’s tricky cause I don’t have the proper diagnosis for it yet, for all I know it could be part of a bigger disorder)
BPD:a mental health disorder that impacts the way you think and feel about yourself and others, causing problems functioning in everyday life. It includes a pattern of unstable intense relationships, distorted self-image, extreme emotions and impulsiveness. Symptoms include emotional instability, feelings of worthlessness, insecurity, impulsivity, and impaired social relationships.
Major Depression Disorder: Depression is a mood disorder that causes a persistent feeling of sadness and loss of interest. Also called major depressive disorder or clinical depression, it affects how you feel, think and behave and can lead to a variety of emotional and physical problems. You may have trouble doing normal day-to-day activities, and sometimes you may feel as if life isn't worth living.
General Anxiety Disorder.: Excessive anxiety and worry (apprehensive expectation), occurring more days than not for at least 6 months, about a number of events or activities (such as work or school performance).
Amnesic Disorder Due To Epilepsy :Inability to remember events for a period of time.
Myth about your disorders and the truth
Autistic people are dangerous
Autistic people are unfeeling
Autistic people are uncaring
Autistic people are all nonverbal
Autistic people are all mentally challenged. ( I ??)
Autistic people ar a burden on their families/a parent who abuse or even kills their autistic child ( which happens so much it’s an acknowledged problem) deserves sympathy.
Autistic people are brainy and mostly male.
Autism is a spectrum disorder. People exhibit different traits and while some hyperfocus on things that help them academically some hyperfocus on things that don’t or that even make their grades suffer like other interest tend to. ( my hyperfocus was fanfiction and I failed like five classes because of it) I have a friend who’s autistic and likes to party and drink and hang out with people. I have another friend who’s autistic who likes to skate and science. I’m autistic and I like neither of those things. We’re all over the place in every way even when we do share some common traits
Literally we all have people and things we care about.
Literally all of us have affectionate moments. I’m fairly physically affectionate if I’m close to/feel safe with someone.
Nonverbal and autism aren’t always correlated. Further, some autistic people go nonverbal for a bit but can speak other times.
Autism looks different in girls/afab people because we’ve been socialized differently.
Parents who kill their autistic kids are just straight up horrible people and I resent having to be told to have sympathy for them while simultaneously wishing I had “autistic” written on my forehead so I could be angry without a guilt trip and also simultaneously hoping to god I never stop passing for neurotypical because apparently the moment you show too many traits no one cares if someone hurts you or worse.
The whole “autistic people are dangerous” thing is mostly people showing videos of meltdowns which only happen under high stress and is something people use to demonize us and make us seem like burdens...and is actually why the whole “sympathy for an abusive/murderer parent of a neuroatypical” thing is fucked ten ways from Sunday. We aren’t dangerous.
I don’t...have a lot for the attachment disorder since I’m still waiting to figure out what that one’s really about and I haven’t really….met anyone else who has anything like it or shares symptoms with me.
I think off the top of my head it’s when people think it’s “cute” that you’re super clingy or go the other way and say people with attachment issues are uncaring. The first one romanticizes a behaviour that you’re trying to work on fixing/curbing and that is honestly hell. The second one is...is just as untrue as saying an autistic person is inherently uncaring ( or any mentally ill person for that matter)
I’ve also seen people say that people with any kind of attachment disorder are broken and that I feel confident enough in saying that they’re not...and I’m not.
I’ve been told people with BPD can’t be aware of their own disorder and have been denied testing due to this.
I’ve seen people say people with BPD are a problem to others.
Anxiety: I’ve seen a lot of people who think it’s fake. And also that the only way you can have anxiety if you’re rocking back and forth gasping for breath.
There’s actually multiple ways to have anxiety attacks.
Tips for those who know/love someone with same disorders/symptoms
Well, starting off with, and keeping in mind that I’m not a proffesional or expert in...literally anything ever like ever ever....
A very dear friend of mine once said “it’s a whole lot easier to be supportive than it is not to be” Let people with disorders tell you what they need, and then respect it. Open communication and making them feel safe is key...to everything. Being informed is important but at the end of the day, different people will experience things differently and what they need is really down to them. Don’t assume that reading about their disorder means you know what they need better than them. Don’t talk about how their disorder affects you. Even if you have good intentions, you’re going to make them feel bad. If you’re a parent, don’t talk to others about your child’s disorder in front of them. And if they don’t like a therapist, listen to them as to why. Don’t assume it’s just because “they’re disordered” that’s lazy parenting.
Take triggers seriously, talk to them about what symptoms they need help with, and which they’d rather process or deal with on their own. Just..show that you have that initiative, that you’re there for them. Listen. Be patient. Establish boundaries gently but firmly. If someone with my attachment disorder is ringing you a lot and you need time to yourself, let them know. Explain. Don’t go radio silent. People with autism can be bad at reading you. Again explain, be patient, but don’t just....leave them there to guess what they did wrong. C-PTSD is traumagenic in nature so I’d add to taking triggers seriously, be ready for Tragic Backstory drop behind disclosing some triggers ( and understand how much they have to trust you to disclose that.) but also be ready for “I just don’t want this in my field of vision and I don’t feel comfortable talking about it just yet.” Don’t push for details. Don’t push period.
And also just....treat em like people you know. Disordered people are still people, let them exist outside their disorders and do the things that people in that relationship that you have with them. ( whatever relationship that is) do.
How your disorder/s affect your relationships
In the past -and before I was a bit more self aware- it’s made me uber clingy. I would call friends constantly, message them a lot. Think someone was my best friend or even closer than they really were because they were nice to me. It scared people off.
On the flip side I would also convince myself people didn’t like me or I was nothing to them the moment I caught myself having strong feelings. ( which as said before would happen mcquicklike)
As one can imagine this would put a lot of pressure on new friendships. Often it would sour them, sometimes it would make people dislike me. Sometimes it’d make them unconfortable. Which as my disorder also affects how I receive rejection...was..really bad.
On the flip side of the flip side I was also incredibly ride or die and it left me open to a lot of manipulation and abuse from friends. I couldn’t be mad at them if they hurt me. I couldn’t say no to anything they said. I needed them.
My anxiety also contributes to this as I would constantly go through a checklist of how many good interactions vs “bad” or awkward interactions I had with people before I let myself feel like I was safe to call people my friends. Or even say I did okay interacting.
I had a lot of nights while I was making friends in college where I just felt like I was nothing to anyone. Like I was messing up. Looking back, it was just standard new friend interactions.
The more people mean to me, the more I’d freak out-I didn’t want to lose them. So it made it hard to even enjoy the friendship milestones I did achieve.
I’m using past tense because it’s gotten a lot better as situations that were making this 10 times worse have alleviated somewhat but there’s still seeds of it and sometimes it flares up. I’m just aware enough I can sometimes if not stop it identify it as my disorder talking. I don’t keep lists anymore but sometimes the thought pops up.
Facts About Your Disorder You Wish People Knew
I wish people knew what scripting and autistic burnout was. And that adults can have autism. And that vaccines don’t cause autism so stupid ass people didn’t risk their kid getting sick because they’re scared of my neurology.
I wish the only thing when I search about
I wish people took triggers seriously.
I wish more people knew about attachment disorders period.
I wish people knew how hard it all is sometimes.
Favorite healthy coping techniques
Plushies, pillows. Physical grounding techniques that include physical stimming. I’m very tactile when it comes to my autism and stimming so grounding techniques were Good Textures are involved help double.
For attachment disorder spirals: Watching YT animators or vloggers. Like a lot. It recently chased off my sleeping problems.
Playing with my dog.
Walking outside.
Going to the beach.
Looking at buildings. ( I don’t..I don’t know why?? It’s like a visual stim I guess? Like buildings that stand out to me due to their shape or being different than I usually see)
Basically going outside. ( to look at buildings, to look at nature, to the dog park, out in the grass in front of my building just..Outside Good, Inside Bad)
Sending fun stuff to friends/doing things for them.
I tend to get a good happy chemical surge from helping people/doing nice things for people so that’s something I really like using to my advantage. I’m looking at volunteer options.
Also cartoons and Disney Channel shows I watch a lot of those.
Cooking. I can’t understand this one either but cooking and baking sometimes even gives me more energy.
Current biggest struggles with your disorder/s
Being at home tanks my mental health. I don’t drive. So I’m home a lot.
Seeing families be happy hurts sometimes. And that’s my main confort narrative.
Seeing my friends with their families hurts sometimes. All I can think of is how much I wish I was a part of that. So I have to...not spend time with my friends.
I’m afraid to live alone.
I can’t get anything done sometimes. My train of thought has been crashing to the point that I completely lose it and I miss goals and deadlines almost every month. I need to get assignments done, build a portfolio, at least keep shrink dates, its all a hurdle lately. Even before that it’s hard for me to get stuff done when I’m home on my own ( aka when I’m supposed to be doing things) because all my brain can think is “we’re alone we’re alone we’re alone. It’s too quiet. We need to talk to someone.” According to my shrink DBT will help with this. I can’t wait.
It’s hard to see a myself having a good future sometimes. Because of how many hangups I have and how late I am in addressing them ( I’m 28) and how much there is to do.
What not to say to a person with similar/same disorder/s
“You’re making it all up”
“You should just get over it, it happened so long ago”
“You’re bringing me down stop talking about this”
“Its all in your head”
“Every one feels that way really”
Anything dismissive.
Anything from the stigma answer.
Literally any kind of pity (granted thats more a me thing due to childhood epilepsy meaning i had to deal with a lot of that. But honestly I’ll stand by it bc I’m not sure anyone really ...likes pity. )
Ways in which your disorder/s affect your daily life
I deal with executive dysfunction which makes it hard to get anything done. I feel like I’m starting over constantly. I feel like my age doesn’t match my brain. All of this augments my depression. I have to take days off in the middle of the week to just do nothing or catch up to all the stuff I haven’t done. I miss deadlines or just barely make them. I’m also a budding workaholic which I used to do to avoid dwelling on all these feelings so having to take breaks isn’t….something I’m used to or really like. I at one point handled school, work, and 2 editing jobs. I used to do martial arts, I like running, I like swimming. I’m the kind of person that needs to be on the move and lately that’s hard because spoons and energy.
Also a lot of basic self care is hard to get done because of the dysfunction mentioned above.
Things that give you hope
The fact that I’m finally getting therapy.
I guess having people I can talk to about it.
My family isn’t as bad as it was back in 2014.
I guess I know that even if I feel like I’m at a dead end, I’ll figure something out. That’s what I do. I mean that’s life, you think things are never getting better or that something’s the end of the world but really time marches onwards and so do you and you figure it out. Things fall into place. I believe life has a funny way of working out. If anything because it kinda has to, it can’t stand still yknow. I have moments of clarity where I just kinda remember that ( its not my first rodeo.in regards to hard times or Things That Happen..its not even my hardest rodeo so..if I got through that..you kinda figure you can muddle through this and see what comes next yknow) I’m oddly hopeful for the first time in a long time so, it’s p cool.
Treatment types and personal choices
I spent most of my childhood, and teenage years...and early 20s dodging therapy and help due to it being controlled by my mother and having really bad experiences with it in the past.I do regret it sometimes but I comfort myself with the fact that it was what seemed like the best decision and i didn’t have the information I now have about keeping her out of things.
After finding better insurance and getting into university I found a way to get myself a psychiatrist and am working on finding talk therapy. For the most part I tended to patch myself up a lot by finding ways to quiet the thoughts I had ( saving text messages to remind myself people dont hate me. Talking myself down. Joining social activities. That sorta home brew stuff. I’ve been soloing a lot of shit I probably shouldn’t have been until recently but hey live and learn. Also I didn’t have insurance.) As of recently I’m on an antidepresant and hopefully going into DBT. That reminds me I have to call them.
Your support system
I’ve found some really nice friends like they’ve kinda just collectively adopted me and when your disorder stems from losing family that..that’s been incredibly helpful. All my close friends are long distance but they help me. My younger sister is also there although i try to limit how much she’s privy to as she just turned 18. My brother and I tend to spend limited time together due to him having his own stuff goin on but I’d also put him there. My parents sorta count as....one supportive unit? ( they try with the best of intentions but it uh..thats..thats really all I can say about them)
Reactions from those who learn about your disorder/s
I get told I can’t possibly have them because i “look too successful” or whatever ableist rethoric they got going. When I talk about C-PTSD symptons I get side eye for “trivializing” it as they don’t believe I can have it and think I’m exaggerating anxiety symptons. When I talk about Attachment Disorders…..I often don’t because people always say something along the lines of “people with that are often too damaged and you don’t fit the bill” which..ouch.
Mostly it goes from “you don’t look like a damaged and/or psychopath crazy person” to “oh...I guess you are one” with a bit of “okay thats fine” but still anger and impatience when I show symptoms.
I don’t talk about my disorders a lot.
Future hopes and dreams
I’d like to get my attachment disorder under control as it’s the main life wrecking thing I have. After that or along with that I’d like to live somewhere where I get the social interaction I kinda need.
I wanna be happy with whatever profession I have and just..my life in general.
I hope DBT helps. Whatever it is It’s my first time even trying it.
I have a couple of personal creative goals but I don’t wanna jinx them by disclosing them ( I did mention I had anxiety)
Interactions with other people with the same disorders
I follow some peeps with BPD and also folks on the spectrum on tumblr. I don’t really have a lot of analog interaction. ( again no driving + suburbia = being cooped up A Lot) My sister and I share some disordered traits so we talk about them often and that helps a lot.
Things you want to work on/improve
The whole black and white thinking and maybe getting things done on time. I’d like to get the spirals under control too.
Work/school experience with disorder/s
Shit’s hard.
Often I don’t get the help I need and have learned to overcompensate/regulate so I can still get things done. I pretty much need to work since i don’t believe I’d qualify for disability. I get in trouble a lot for spacing out ( dissociating) and forgetting things at work. Work friendships are also slow burn if not just nonexistent due to my autism and people..not really knowing what to make of it. I’ll probably have to quit working while I study since I can’t really split focus enough to do both lately. Further, a lot of my energy needs to go into school things staying afloat and that tends to mean I can’t do things that contribute to my mental health ( i.e spending time with friends, going out, sometimes even therapy, taking breaks) as I’ve found out that sends me way back in recovery.
Free space!
Here’s a picture of my cat. She’s a demon. What it said Free Space.
Family history of mental disorders?
Mother has Bipolar disorder and depression. Sister has bipolar disorder, anxiety, depression, and eating disorders, Brother has anxiety and shows signs of ADHD, Dad has what we suspect is ADHD and possibly some disorder traits from past trauma. Used to have anger issues.
I uh..I used to call us “The Madhouse” for most of my late teens and early 20s.
Media representation of disorder/s
Attachment disorders: characters who are stalkers and so desperate for love family and acceptance they’ll do anything, even hurt people to feel it. Also often don’t have depression and can do things like learn villain skills.
Autistic traits are often cherry picked and portrayed in an unfavorable light. I think I’ve seen some rare cases of actual representation though.
How do you feel about talking about your mental health?
I don’t...like it as much as talking about mental health in general. Most of my life is...me running away from trauma and trying to reclaim a life outside of it. It’s what I did with my epilepsy of course that one was easier because the seizures went away.
Talking about it feels like going back. I wanna just move on with it. But I’ve reluctantly come around to see that talking about it is a way to move on. And I mean its not like dodging it’s worked out that well for me so.
The true face of mental illness (Selfie if you’re comfortable with it)
Aww yiiss. Selfies.
#mental health#mental illness#mental health awareness#mental health awareness 2018#mental health awareness 2019#mha2018#well..2019 but thats what they said to tag it#depression cw#anxiety cw#self harm cw#suicidal feelings cw#ableism#abuse mention#fillicide mention#uuuh I think that covers it#here goes
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sometime last september i had a bad cold with an ear infection. a bunch of fluid built up in my ear and never went away. i saw a doctor who suggested it would just disappear on its own, but that it could take three or four months. i took some antibiotics then, which didn’t help. he didn’t seem to consider it a problem. after a couple of months i came back, same deal. he gave me some anti-inflammatory nasal spray and some ear drops, which didn’t help. then i found a new gp and described the problem to her. she stuck her ear thing in my ear, wagged it around, and then just turned around and never discussed it with me in any way.
incidentally, i was seeing that second doctor because i was convinced i was dying from lung cancer. my mother was suddenly diagnosed with stage four lung cancer when she was my age and given a couple of months to live. (she surprised everybody by living for three or four years, which in my estimation was a lot worse than if she had just died right away) i found a gp who specialized in lung disease and explained that i have consistently restricted breathing in one lung that does not fluctuate in any way, and has been going on for a long time. well, my chest x-rays came back clear and i don’t have any other symptoms, so she just put me on some asthma inhalers. i had bad asthma as a kid, and this unceasing one-sided shortness of breath doesn’t resemble that in any way, but my doctor didn’t seem to give a shit about figuring out what was wrong with me as long as the inhalers seemed to be managing the symptoms. i felt like a theme was emerging when i told her about my ear, and she seemed to just look for whatever specific thing she would consider a problem, and when she didn’t see it, she just changed the subject.
so, naturally, i found a new gp. i went because my scripts for my inhalers were running out, and i didn’t want go back to the other doctor to get them renewed. mercifully (i guess although i’m really not dying to keep seeing more and more doctors), my new doctor is sending me for fresh x-rays and referring me to a pulmonologist. i also told her about my ear, and she checked me out and saw all this fluid behind my eardrum. she said this is very common, and might be there “forever”. it could be because of my naturally humongous tonsils, which is a pretty disgusting thing to hear about myself for some reason, or it could be allergy inflammation that’s contributing to the blockage. so the main thing i have to do is stop trying to pop my ear, which i want to do every second of every minute that i’m conscious, because it’s clearly, painfully wearing down my jaw. also, now i get to add an allergy pill to the 23 (24 depending on what’s going on) pills i need to take every day to manage other stuff.
the “other stuff” is mostly one condition, which is that my system processes copper so poorly that the buildup of this psychoactive metal in my system makes me chronically depressed, anxious, fearful and angry. nutrient therapy is a lot better than being hooked on opiodes...i think? but the number of things i have to take to avoid that is exhausting, and means that i spend an hour or two a day feeling like i’m going to throw up while i digest everything, which isn’t exactly a mood booster.
anyway, my new gp has also referred me to an ENT, which appointment can’t happen soon enough because sometime around 3am yesterday, i developed a loud ringing in the affected ear that will not go away, and by all accounts, might never go away. this is not the first time this week that i was told one of my senses will be permanently impaired for no particularly good reason. a few years ago, i had to have surgery and localized chemotherapy to remove some pathological scar tissue growing across my corneas. it hasn’t come back (although it might), probably thanks in part to the chemo, but now i have a buildup of surgical scar tissue on one eye that is causing glare and spots, and according to my cornea specialist, that’s just the new normal. the few treatments options are considered high risk for little reward, i guess.
depression has a way of casting you as a problematic person in the public eye: someone who is oversensitive, looking for attention, being negative, and refusing to deal with their problems in a mature way (because according to people who don’t really have problems, all problems go away if you just adjust your bad attitude). now, i hate going to the doctor because my experience of autism makes me cry and panic like i’ve been raped if anyone touches me without my specific emotional invitation. also, it’s very hard for me to think of any experience i’ve ever had with a doctor where something was explained to me satisfyingly, or where i got treatment that really worked--as opposed to me just coming out the other end, terrorized and humiliated, sitting there in a puddle of my own various fear fluids thinking, “wait a minute, WHY THE FUCK did i let them do all that random shit to me??” to wit: a couple of years where i submitted myself to a doctor to have core samples regularly, painfully, frighteningly drilled out of my cervix because of some abnormal test results. whatever’s going on COULD be precancerous, i was told. well, what else “could” it be, i asked? they just shrugged, and one day they told me they weren’t seeing the abnormality anymore and they didn’t have to keep mutilating me. so...i could have just been sitting on the couch this whole time? why did i do this, when i don’t even have any particular faith in treatment anyway? but, i keep doing to the doctor(s), because i’ve had it drilled into my head that it’s the “responsible” thing to do, and it will prove to the world that i’m a “positive” person who tries to find “mature” solutions to my problems. that makes it extra frustrating when nothing comes of it, other than the damning confirmation that nothing about me is really working that well, and it’s not going to.
of course, on top of the fact that my problems are not really manageable in any substantial way, there’s the added psychological pressure that comes from people not seeing your problems as problems. exactly one half of my face is affected by rosacea, making it extra obvious that something is wrong with me. having tried everything else that is supposed to manage my symptoms--including two different treatments that are “magic bullets” for 99% of sufferers, both of which made me react so badly that i looked like i’d been attacked by wasps--i decided to take the plunge on my last option, an extremely expensive battery of painful and kind of scary laser treatments. i had the last one this month. i’m not seeing any difference at all, and in fact i’m not sure it didn’t make things worse. no insurance really covers treatment for rosacea because it’s considered a cosmetic problem, even though it results in broken blood vessels and progressive thickening of the skin that anybody would consider a medical problem if they saw it in action. i can already see what’s going on in the mirror, and trying not to notice is not an option.
i realize, as i’m sure many people will be quick to tell me, that i’m actually very lucky. i do not have any “real problems”. i’m performing the basic life problems of a human being just fine. but i have to say, just to stick up for myself, that there is something really special about just having a collection of unrelated problems that just amount to, like, a bunch of bullshit. i have friends who have had, or currently have, really major life challenges--horrifying circumstances or conditions with which they have had to wage a heroic battle. of course i don’t envy them, but at the risk of sounding really incredibly petty, at least they made some kind of sense. the dragon arrives at your door, and it’s cancer, or hiv, or a neurological disorder, or a flesh-and-bone-eating disease; you don your armor and fight the good fight, or prepare to die with dignity, or in the worst case scenario, you just regular-die, but everybody totally understands it as a tragedy. there’s some kind of logic to it all, even if it’s completely unfair and arbitrary in the outing. it���s different when you just have a bunch of bullshit, none of which anybody thinks is a problem individually, and there’s no reason for it. your eye is just kind of shitty and your skin is just kind of shitty and your lung is just kind of shitty and your ear is just kind of shitty and your ovaries are just kind of shitty and your mental health is just kind of shitty (for chronic physiological reasons). so therefore, looking at things is just kind of shitty and having people look at you is just kind of shitty and hearing things is just kind of shitty and really, just being awake and alive is just kind of shitty. and there’s no narrative here, it’s not you versus your virus or you versus your mutating cells or something. it’s just you versus the fact that you’re just, like, kind of a fucking lemon. if your body were a car, you’d get rid of it, and just take the bus from now on. or stop going anywhere altogether.
when i’m not fighting off a violent reaction to my mounting collection of bullshit problems, i’m usually trying to find some meaning to my life. it’s hard to do. i’m not brilliantly intelligent or talented in any way that would make my career into the point of my life. i’m also not going to start a family (which would be a huge challenge for me anyway because of problems with my reproductive system), so that’s out. because of my anhedonia, i can’t really live for pleasure either--a fact which is surely compacted by the way that all of my individual parts seem committed to making any and all sensory input at least sort-of annoying, if not infuriating and claustrophobia-inducing. when it’s just me and my depression, i often think, “god, i really wish i could just achieve something in this life, then all this agonizing would be worth it.” i usually wind up reaffirming that i’m just an ordinary person, i’m not even very good at my hobbies or very knowledgable about my passions, there’s no chance that doing something special with my time on earth is going to save me. but then, of course, there’s my shitty, shitty, shitty physical condition. the only thing i really ever accomplish is preventing myself from screaming.
i realize that many people might want to frame stopping yourself from screaming as an accomplishment in and of itself. when you’re really challenged in life, you have to remember your context. like, one guy might be climbing the corporate ladder, and he has to face the challenge of competition and seizing opportunities and stuff; but when you’re, say, me, not-screaming can be a legitimately equivalent effort that you should be proud of winning at. both my best shrink and my worst shrink have tried to warn me off of comparing myself to others--to noticing, constantly, that compared to pretty much everyone i know i’m really defective, and in fact i’m way behind my peers developmentally because i have to struggle so hard just to get through my fucking day without ruining anything or taking a break for pure suffering. part of the reason to avoid comparing yourself to others is what i was just getting at, that you want to have an authentic sense of your own suffering without using an irrelevant-to-you method of measurement. the other part of it is that you don’t want to delude yourself into thinking that you are the only person who suffers, or that your suffering is the most extreme. my first/worst shrink approached this in a pretty hilarious way: she suggested that maybe ALL of my friends have ALL the same problems as me, they just haven’t mentioned it. first of all, this just shows a real ignorance of how many great complainers i know. but secondly, it suggests a world in which my closest friends have stood by while scars grow over my eyeballs and half my face burns and swells and my ovaries constantly invite painful degrading examinations and threaten cancer and my lung never opens all the way and my ear rings deafeningly et at ad nauseam, and they just...don’t say anything to me. for some reason my dearest companions just don’t feel like offering me support or solidarity or advice from their supposed rich experience, or even venting their own frustrations to an ear they know for a fact is sympathetic, even if it doesn’t hear too well. it’s an extra bizarre idea that still makes me laugh, when i’m not screaming.
now i have to get ready for today’s doctor’s appointment, the fifth of what i think will turn out to be eight this month, not including psychiatric appointments. it’s not for my ear, but i’ll definitely be bringing that up again, because i think i need to add an anti-anxiety prescription to my armory of pills, because i don’t think i’m going to make it through this experience without altering my chemistry until i just don’t give a fuck about anything that happens to me. plus i need to find out if tinnitus is its own thing, or if it is definitely always a symptom of hearing loss (that is, a deteriorating ability to perceive sound, as opposed to an incredibly loud internal sound that you just naturally notice more than other external sounds that you are still technically capable of perceiving). a minute ago, my husband got up and started stalking around our tiny apartment suspiciously. i thought he must have seen a bug, but he’s looking for the source of a weird noise that must be coming from our large mac tower, a couple of feet away. i absolutely cannot hear it at all.
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Hey Pia, recently I started therapy but my therapist brushed aside me being emotionally abused & gaslit by my sibling by saying sibling fights are normal & we should focus on how I continue 'letting' it happen. I left the session rlly upset & it sent me into a spiral of self-loathing & doubt all over again/had I made everything up after all? I'm in a better place now but it would be lovely if you could tell me how to deal with such situations better, but no pressure!
Oh boy, bad therapists. Have I had some experience with them.
tl;dr: bad therapists suck, don’t give up, etc. etc.
THIS POST IS SO LONG I AM SO SORRY
Firstly, it is awesome you made the effort to go see a therapist. And please please don’t think all therapists (or even most therapists) will be like the one you saw.
Therapists are regular people, and unfortunately, sometimes regular people suck and a degree doesn’t change that.
Caveat: Not a therapist. Just a person who has seen a lot of therapists. YMMV.
I have seen a lot of therapists in my lifetime. And a lot of bad therapists. I won’t give you the exact number, but it’s well over 10. It’s actually pretty normal to sometimes meet therapists that are just a poor match. Even if the therapist had good reasons to think you were participating in a difficult situation, there’s a lot of ways to bring that up that aren’t straight up invalidating, and they should have tried to hear you, rather than put their opinions forward over yours.
Therapy should be a collaboration. Not just you listening to them. Not just them listening to you. They might disagree with you, they have to be able to do so tactfully and respectfully, and role model to you how to do this in a way that is respectful. And you have the right to disagree with them.
And I’m gonna be honest with you. Sometimes therapists will say things you’re not ready to hear, that hurt and make you doubt yourself. When I first heard: ‘Pia, do you think maybe you want to be sick?’ I about lost my shit internally, and went home and felt suicidal for two weeks. I didn’t think they were right, but I was terrified they were right, and I didn’t think I could tell them about it because how dare they ask me that question in the first place! What the hell?
But I went back and was like: okay, so after this session, and what you said, this is what happened. And I felt totally unsupported and certainly didn’t feel like I could tell you about this, because what, are you gonna tell me I want to be suicidal too? Here are all the ways I think I don’t want to be sick. I’m still deeply scared that deep down I might want to be, but I think you have to realise that what you’ve said is really hurtful to all the parts of me that fight every day - through lifestyle, coming here, eating well, reading self help books etc. - to not be sick. And I need you to acknowledge that.
And they did. And they apologised. Do I think maybe they wanted me to have a reaction? Yes. Do I think maybe they had no idea it would make me suicidal? I think also yes. They never would’ve done it otherwise. The aim isn’t to make your clients want to kill themselves. At all. Ever.
But anyway, the point is (...ignore how long I took to get here), part of therapy is actually telling the therapist when they’ve fucked up and seeing how receptive they are to that. That’s your responsibility as the client, and that’s something you take on when you hire them. Whether or not you feel you can do that is another thing. It’s totally okay to write down how you feel in a letter, and hand it to them, or email it to them. You can say ‘read this and I’m going to go wait in the waiting room and you can come get me after.’ I have written down a ton of things I wasn’t ready to say.
But it’s an important step in actually - weirdly - learning how to stand up for yourself in a working relationship that goes both ways.
Now, about therapy in general. They work for you. You hire them for your health. So if it’s really not working out, then you also have the right to fire them and find someone else.
Sometimes it can be worth explaining why you’re considering firing them in an email, so they know where they went wrong, but to also give them a chance to reconsider how they’re approaching you, i.e.: ‘I feel like you invalidated my experiences and my feelings, and therefore reduced all of my difficulties and issues around this to something you could sweep aside before telling me things about my own experiences, without ever really hearing me. That’s not fair, it’s inaccurate and it’s not helpful to me. I accept that I might have things to learn about my own behaviour here, but not through you invalidating my upset and hurt, and not through you minimising my real feelings. Because of what you did, these were the consequences (and tell them that you became more self-loathing and so on, that’s not how they’re supposed to leave you feeling after a session!) As a result, I’m not sure / don’t think this is a good fit / will look for another therapist / would be open to suggestions from you as to how to proceed.’ Etc.
That’s a mature way of handling it. (And honestly, even if the therapist doesn’t like getting the email, it is good for them to know why people are leaving early. So they know you’re not just a ‘non-compliant patient’ or whatever the fuck (which you’re not), but someone who has been genuinely distressed by a session that they directly contributed to - like you paid money for that shit! That’s crappy.)
But another mature way, if they really just seem gross, is to fire them and find someone else. You can take a break first, for sure. I always have taken a short break and sort of thought about what I really want too. Like, what do I want? These days it’s ‘to be more functional and to enjoy life more.’
It’s worth calling around and actually screening therapists if you can (depending on how the system works where you are). Screening therapists can be asking things like: what therapy modalities do you prefer? How do you deal with situations where someone is being verbally abused by their sibling? Do you take this seriously? etc. You can definitely pre-screen. I’ve always done this in emails which look like this:
“Dear (whoever they are)
I’m (such and such) from (place) and have been diagnosed with (disorders) due to (one sentence history). I am seeking therapy to help me with (specific things like - learning how to be less anxious, or learning how to be more functional in my life).
Are you taking new clients?
If you are, could you please let me know the following to see if we might be a good fit?
(Here I ask about modality - CBT is contraindicated in my case so it rules out a lot of therapists automatically, and then I ask about their experience in extensive child abuse trauma and history, as well as medical and chronic illness, and pain and fatigue issues. Here is also where I ask if they offer a sliding scale to people with a low income and no insurance.)
Thanks so much for your time.
(Pia.)”
If they can’t take the time to answer a simple email, either with a call or by replying, then I don’t want to see them anyway, imho. I’m looking to hire them, not the other way around, they can at least communicate some actual credentials to me that mean more than a damn BA degree. But in Australia, therapists will often reply to emails like this. I’m not sure how that is in other places in the world.
Now as to the actual meaty part of like, you going home and feeling fucking awful afterwards. Here’s some stuff you may want to keep in mind in the future:
1. They work for you. And their job is not to make you feel like you are the worst ever. That is no therapist’s job on the planet. Challenging you is not making you decompensate and become non-functional. They fucked up. Sometimes therapy will be challenging and sometimes it will hurt and if you are prone to feeling self-doubt it is going to make you self-doubt. But there is a line between ‘this is stuff that would come up anyway’ and ‘this is something you directly made happen by invalidating my feelings.’ When that happens, it is not a sign that you are the worst ever (you are not even the worst), it is a sign that they made a mistake in their job, like any person who has a job can do.
Unfortunately when therapists make mistakes, they’re making mistakes with people’s psyches, instead of fucking up the icing on a cake, or the level on a brick wall.
But yeah, they are not some authority on high to tell you What is What about Your Life.
The only expert on your life is you. And you invite them into that space to treat you with respect in the process. Invalidating your feelings is not respect. (And I say that even as someone who has disproportionate reactions to things.)
2. Idk what your support situation is like, but it may be worth reaching out to people (or animals) who can make you smile or feel a bit better or get you outside of your head for a bit.
3. Sensory stimulation to also get you outside of your head for a bit. A warm/hot shower or bath. Running your hand over interesting textures like velvet or a nubby couch. Sipping a hot drink that you took the time to make for yourself.
4. Reflecting on what’s actually happening internally like. ‘I feel like they think i’m X and X’ or ‘they must think that I’m just X’ or whatever it is. And then write that down somewhere - both for yourself, and if you decide to share it with them later, so you have clarity on what’s occurring. Sometimes just naming what you’re going through can give you enough knowledge to be like ‘right, I’m afraid that a relative stranger thinks I’m terrible because they know almost nothing about my history and they made an assumption about me.’ - If you take a step back from that, it can help to remember they are a relative stranger who knows almost nothing about you.
*
It’s hard here because I’m not in that session and I don’t know why the therapist said what they said (though trust me, I do believe you that they fucked up - some of them suuuuck), and I know that you go to therapy to be challenged, because if your therapist is just ‘hey fam everything you’re doing and thinking is fine go home you’re just great’ - you’re gonna go home and nothing is going to change. But I think you and I both know that there’s ways of challenging people which don’t suuuuuuck, and that if you have a good trusting bond with your therapist, you can also tell them when they fuck up, and they will actually make steps to repair that with you, so you can be stronger going into the future.
That’s actually one of the best parts of a therapeutic bond, imho, especially as someone coming from an emotionally abusive background - learning how to repair mistakes and realising that you can both do that collaboratively together, and see things get stronger. (Since, in situations of abuse, ruptures can mean no opportunities for genuine forgiveness or growth ever).
But you can’t do it with all therapists. Because some therapists are just shitty at their jobs. Like a bad baker. Or like the dude that makes pizzas but you know he just doesn’t care about pizzas really. Or the doctor who fat-shames instead of doing their fucking job.
I don’t know if I said anything that helped. All I have is some sense of solidarity because I have done the whole bad therapists thing too. My life was helped a lot by realising I was hiring them, and that they work for me. Before that, I always felt like they were some kind of godly authority figure that could see into my inner mind in a way I couldn’t and blah blah blah could Judge Me Like A God (thanks childhood, for featuring an abusive figure who was a cop that fucked up my relationship with authority figures forever). It was really hard for me to understand that no, they’re just like every other damn person you’re gonna hire to work for you: they can be fired if they’re not good at their job or if their vision is totally different to yours.
You’d fire an interior decorator who wanted to fit out your house in something you hated. You definitely have to fire a therapist who wants to fit out your brain in something that makes you hate yourself.
#asks and answers#personal#hoooooly shit this post is looooong#pia on therapy#also i've seen some great therapists now#GREAT#and some of them have made me really distressed and upset#but i could tell them (a month later)#and they were really good about it#so like#yes#i am glad to hear you're in a better place now!#*passes you chocolate and tea*#Anonymous
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I ended up on SSDI because it was the best of bad options and I check a TON of privilege boxes including the huge white one. I am completely unconvinced that this is going to get more than maybe a TINY few of you a job that both pays the bills and lets you be you to an extent that doesn’t almost kill you. (I’m really happy that one of my ex-bosses got back into IT, because she was cool as a person/boss while working together and a combo platter of really toxic management-above-her-pay-grade folks and “you’re never REALLY off plus you’re managem
For sure do not believe them if they’re using Woke Speech and I’d be really skeptical about becoming more than work-cordial with anybody you work with, even same-level people and for SURE anybody who’s even sort of a boss.
(Tl; dr why under the cut. VERY LONG FOLKS.)
(Protips, young ‘uns: do not combine a traumatic brain injury with undiagnosed bipolar II and probable autism or at least a sensory disorder that’s pretty close to it. I did this back in the 90s when nobody knew shit about TBIs, so according to my bff I refused help at the scene and then showed up at her current place at 2 AM. She MADE me go to ER, and I have basically no independent memory of ANY of that. I started getting stress-linked tremors, proceeded to tell all lab partners that they’d need to be the one holding the glassware because I had shaky hands and some study groups that involuntary noises were also a possibility, and was mostly “SCORE, I can medically drop this one class with a horrible-according-to-other-people-too prof that I’m failing because the stress it’s causing is giving me tremors just THINKING about itand it won’t fuck with my transcript”. In other words, THEN-me wasn’t terribly concerned about that shit and I went right back into STEM major classes.)
Got through college mostly okay (including getting some kind of a B for the medically dropped class with a GOOD prof), bounced through a bunch of jobs, did the “3 shrinks/10 years” standard thing for a bipolar II diagnosis (I’d mostly been PRESENTING depressed which made sense for my family history and we didn’t know one of my aunts was too then), and started spinning the roulette wheel because I was apparently REALLY manic. Started with 4 days on lithium which fucked me UP mood-wise and we think it killed some speech cells I needed. Basically anything else that works for SOME bipolar people has been either “your prior history means this is unlikely to work and unsafe to try” (as in, apparently the stress-induced tremors were starting to be medication-induced as well) or otherwise wasn’t worth it side effect-wise. So I’m on divalproex which sort of works but a) I can’t fake neurotypicality on it and b) I can’t pull a full-time job without tremor issues on it either even WITH a shitload of clonazepam in the cocktail.
I was privileged enough to have had those jobs add up to long enough to even be eligible FOR SSDI, and even more so by being one of the 30% who qualify for SSDI their first try (70% at least have to appeal, 40% of the people INITIALLY applying eventually qualify.)
At that point, I STILL had to wait 24 months/2 years for Medicare, so for a bit it was actually a good thing I had polycystic kidney disease, because this was pre-ACA/Obamacare and that meant I could qualify for my state’s “we’re gonna rip you off and not cover MUCH but you do technically have insurance” crap.
I kept trying for quite a while there (there’s a couple kinds of “if you want to try to work you can with stipulations and keep your check/Medicare” that applied to my situation), and I kept having either “can’t fake an arbitrary standard of normal” or tremor-induced absentee-ism or both. It turns out that when all your best skills are back-office and your body treats a full-time job as “time to fuck you over AGAIN”, it is virtually impossible to find a job because everybody wants 40/40+.
I do seasonal taxes now, and I told my current crew “this is as neurotypical as I get” in my hiring interview. They didn’t care, but I get paid $11/hour for a job that EVERYBODY (my shrink assures me that his “fairly neurotypical the rest of the year” family members are included in that) is diagnosable for something in the DSM by mid-March, DEFINITELY requires a lot of customer service skills beyond the geekery, and is otherwise a hard slot to fill considering it’s not even living wage here.
I live and work in a heavily working poor mostly Latinx neighborhood. Being on SSDI amounts to “I infodumped and code-switched for MYSELF successfully, don’t expect me to believe 6 impossible things before caffeine and I will do my best to get you paid smoothly by doing that for you” credibility, and also gets me some “it’s not the same and it’s nowhere near the same level of intensity because I LOOK like the Karen meme but the system’s not super fond of me either” rapport.
I lucked out because I racked up about 5 years of time doing the same thing for a different employer.. The universe decided to be nice by making my immediate superior realize almost immediately “I’m going to need to BE this lady’s reasonable accommodations or she isn’t going to last a month” because they tossed me in at the deep end.
She had my back through all the seasons we worked together, including being “Excuse ME? Do you want her medical issues? No? Then STFU because she’s doing the best she can” and my first season her and OUR boss were “you are the first first-year we’ve ever had it make it through a season and the first one we’ve actually liked enough as a person to do this, let’s go have ‘we survived the season’ lunch”. She went above and beyond, and we’re sort of a weird kind of family-ish thing to each other now.)
So yeah, basically I’m very privileged both in where I started and in the people who helped/are helping me on the way, but that privilege basically got me to “seasonal job that’s sort of a win all around”, NOT actually being able to “job that allows me to support myself AND pretty much be my authentic self, disability issues and all”. I’d love to be able to tell y’all that you can do the same, but my own lived experience makes me pretty dubious.
I said recovering from illness to explain the 7 year depression gap in my CV and they were just like ok u healthy now? cool. and moved on. It's that easy
#tl;dr#employers SAY eeoc but few MEAN it#also i'm a texan so we are right-to-work#they can tell you almost anything for why they're letting you go#same for why they didn't hire you\#the system is deliberately broken
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I present to you - Tony gives Peter his first weighted blanket
The only reason Tony noticed was because Tony knew what he was looking at.
The fidgeting. The hyperfixation on certain tasks. The sudden and seemingly random bouts of disassociation, where Peter seemed a million miles away from the situation, and then flinched wildly at the slightest touches or quietest of sounds.
Tony Stark knew ADHD and a sensory processing disorder when he saw it. He looked in the mirror every fucking morning, after all.
(read more, mobile users)
It made sense, once he thought about it. What had the kid said, at the very start- ‘it’s like everything is dialled up to eleven’. Yeah. Superhuman senses would do that to a kid. And Tony thought he’d had it bad. At least he’d had his whole life to learn how to deal with it. Peter had just woken up one day with… all of that.
Hell, medication probably wouldn’t even work on him. His enhancements just ate up most drugs and spat them back out immediately after, so it wasn’t like Tony could just hand him some Adderral and be on his way. And that was about as far as Tony went when it came to treating himself- for the rest of it, he just dealt with the sudden and overwhelming bouts of sensory overload by curling up in a dark corner and drinking until everything numbed out again- not exactly something he’d ever recommend to Peter. Ever ever ever.
So he was kinda stumped.
He kept an eye out as best he could- took the kid out of situations where he knew that sort of thing might get triggered, gave the suit an emergency Cleansheet mode that pretty much cancelled out everything other than basic functions and manual control. He did his best not to get pissed off when Peter would not stop fucking tapping at the desk, because God only knew he did it enough himself, and generally just attempted to guide the kid through methods of controlling it without actually admitting he faced the same problem himself.
Because it wasn’t exactly something he wanted to go around telling everyone, was it? I’m Tony Stark, biggest genius around, and that actually sucks a lot more than you’d think because for some reason it makes my brain hate me.
“Peter, Peter- slow down. You’re jumping again,” Tony told him, not looking up from the circuits his hands were fiddling with as Peter spun around on the chair beside him and talked a mile a minute about what appeared to be 4 completely different subjects at once. Tony could keep up, yeah- but it was more about trying to let Peter become aware of it so he didn’t do it around those who weren’t quite as quick as he was.
Peter paused for a good long moment, and then said “Huh?”
“Jumping, Peter,” Tony glanced up, wry smile on his face, “A to B, not A to Z, remember?”
The kid stared for another second, and then it seemed to click, because he blushed. “Oh, yeah. Sorry.”
“No worries,” Tony said, turning back around. I do it to Pep all the time, he didn’t add on.
“Peter?” Tony said slowly, watching the kid from across the room as he curled in on himself, suit half hanging off his shoulders in the big open-plan space of the living room, “Peter, are you good, buddy?”
He knew there was nothing he could have done to stop the situation from unfolding- they’d needed spiderman to pick out the perps as they’d blended in through the massive carnival that had been running through New York, and Tony had had to prioritise. And Peter was already good enough at compartmentalising his shit that he’d been able to effectively pick out the guys and save the day.
He wasn’t so good with the after-effects of said compartmentalising.
“JARVIS, put the lights down, sound off, you know the drill,” Tony said quietly, removing his shoes and the jacket he knew probably smelt like all kinds of stuff to Peter’s sensitive nose. “Peter, I’m going to ask you one question, then I’m going to leave the room. Do you want me to put some quiet music on, or is that going to make things worse?”
Jerkily, Peter shook his head. Tony didn’t say anything- just grabbed his shoes off the floor and turned away. It was difficult and he didn’t want to, but he knew that staying there would be like a nightmare for Peter, who could hear his heartbeat and his breathing and the creaks his bones made when he flexed.
So he shut the door of the workshop and left Peter to come back to himself.
He knew Peter hadn’t been sleeping well, because neither had Tony.
It came with the territory, he guessed. And Peter was far, far too much like Tony for his own good anyway.
When the sensations and the nightmares and the sheer frustration at having almost every thought he tried to take hold of slip through his fingers became too much to handle, Tony brought out the bottle of whiskey he kept under the bed and put half of it in his stomach. It made his brain quieter, if only for a few hours.
Peter didn’t have that option. Tony hoped to god he didn’t, anyway.
He watched the boy move through rooms like a ghost, rubbing his eyes tiredly and jerking at every movement. The things he and Tony had been carefully working on were slipping- he’d gone back to jumping almost incomprehensibly through every conversation. and could not seem to concentrate on anything that wasn’t active fieldwork. It seemed the lack of sleep made everything worse, and in all honesty, it was driving Tony nuts.
“Peter?” He asked, clicking his fingers once in Peter’s face and giving him something to focus on, “Peter, just come with me for a second. I wanna show you something.”
He’d fished it out of storage weeks ago, but never quite found the courage to hand it over. Something he’d used as a teenager before discovering alcohol, and something he would probably still be using now if it weren’t for the fact that it wasn’t so much the ADHD or SPD keeping him up now as it was the horrifying depictions of world apocalypse.
Yeah. Anyway.
Peter stared at the blanket in Tony’s hands blankly for a few seconds, before looking up. The question was evident in his eyes.
“It’s a weighted blanket,” Tony huffed, trying to sound exasperated, because it was better than sounding vulnerable, “it helps with… sensory stuff. I used to use it when everything got loud in my head. It’s great to help you sleep. I think you need it.”
Peter was still looking at it, and it was obvious he’d zoned out again, so Tony poked him on the shoulder. “Blanket, Parker. For when you’re sleeping. To help with the sensory overload or whatever the fuck this is,” he waved a hand, “I don’t know, it looks similar to my own… my own thing, so I thought it might help.”
He shoved the thing into Peter’s arms and turned away, feeling mortified. God, the first person Tony had admitted any of that to, and it was a fucking fifteen year old boy.
Peter called him. He didn’t reply.
There was a thing and it was a Really Cool Thing and suddenly three days had gone by with Tony doing nothing but focus on the Really Cool Thing and that was fine by him, meant that there were no awkward conversations between him and Peter, so there was really noting to complain about.
“I didn’t even know you had those sort of problems,” Peter said suddenly at the table, and his eyes were brighter and he didn’t look like a zombie any more, so Tony guessed the weighted blanket had worked at least a little bit. “I just thought you were…”
Peter trailed off, and Tony didn’t say anything. He knew exactly what Peter was thinking- it was what everyone else did.
“Thank you. Thank you for… helping me. I see now, what you were- it was nice of you. And I know it’s probably a really private thing for you, so- yeah. Thanks.”
Tony looked up, then. Peter was wringing his hands and looking at the ground, but the words seemed sincere. There was no judgement there, no venom. Just… gratefulness.
He frowned. “Did it work?”
Peter nodded. “Weirdly, yes.”
Tony smiled, just for a moment, and then turned back around. “Good. Keep it. Don’t try anything else- if you do want to, talk to me first, alright? You promise, Peter?”
He had to make sure the kid wouldn’t go down the same roads as him. Tony would try literally every other form of help he could get his hands on before that happened. He’d breathalyse the kid every damn morning if he had to.He wasn’t going to go there.
Peter nodded a little. “Yeah. Yeah- promise.”
Tony paused, and then nodded. Promises meant a lot to Parker. It was enough for now. “Okay, glad we got that sorted. Now at least I can tell you to quit your fucking tapping in my lab- it ruins the rhythm of my tapping, and my tapping is more important here.”
“Why is your tapping-”
“My shop. My ADHD-fuelled workshop of design and creation. My rules.” Tony waved him off, turning back around to the boot of his suit. “Now scram- I’m trying to focus.”
“See, now I understand why that’s such a big deal for you-”
Tony chucked a pencil at him. Peter caught it, but he did end up wandering off in the end, so Tony counted it as a win.
He couldn’t help but smile a little into his circuitry. The kid would be alright. He had a mentor who was old hat at this shit, anyway. What could possibly go wrong?
Hm. On second thoughts- best not get into that.
#I love ADHD Tony with all my entire fucking being okay & it has been brought to my attention that Peter could have it Also and so. yes#peter & tony#peter parker#tony stark#itsallavengers writes#Anonymous
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do you know what dissociating is? its a severe and super dangerous disorder that is destructive and scary. its not "zoning out" or some shit.
(ok so I assume this is bcos of that offhanded bathroom door joke post from probably at least a year ago? putting this under a read more because it’s like embarrassingly long winded for a response to a random rude anon, “””faking””” is a HUGE sore spot for me sry guys)
ok so unless you’re a mutual sending this anon (which would be.. really shitty), I’m basically on the level of a stranger you overheard on the street, and you’re making these REALLY personal assumptions about me based on irritation that is… 100% what you’re bringing to the table. like I’d be really surprised if we’d ever even spoken.
since you asked I do understand it, though my experiences w it aren’t as severe as a lot of people’s & I only get it in discrete episodes, but I have had it bad enough that I had to go to hospital cos I properly genuinely broke from reality and had seriously disorganised thought (including not being able to remember more than a few seconds back or understand what was happening to me or what was real)
obv that was only one time (about a week or two long?), but it’s a long term problem for me. the experiences I’ve had have ranged in severity all the way down from that to pretty mild, and I would say that a lot of those more mild-moderate experiences have (at least as far as I can tell frm my vantage point in myself) the same sorts of mechanisms and effects as the really bad ones, tho varyingly less intense and easier to come out of. I don’t know for sure but I think there is a case to be made for (what seems to be the popular view - so i’m not sure where you’re getting your info? you seem very sure of yourself though!) that it’s a complicated continuum not a discrete experience. if you buy into that model the range of severity it covers is enormous, and I do think the severe crisis experiences are not functionally the same “thing” as those really mild ones, but like there’s a lot of ground between those
honestly though I also get annoyed by people using it exclusively to mean mild stuff when it’s been a real problem in my life, as though that’s the same, but I think it’s really harmful to go off on people about that because I think that for every one person using the term “incorrectly” there are at least a few people afraid to take their symptoms seriously cos they’ve internalised this paralysing fear that they’re “faking” (which is definitely something I’ve dealt with in a very intense way, for the record - am still dealing with tbh!)
for the record w my post I was thinking about those more severe experiences (as well as mildER but still solidly disruptive episodes resulting frm (I think) sensory overload) where it’s pretty hard to process even very straightforward info. thru having these experiences I’ve come to find confusing messaging like that super funny because I’ve (had to) come to appreciate the absurdity of how I process things when I’m in that state
so like I get where the irritation is coming from but fuck this ask. please have a think about how you relate to others (why do you assume they don’t have legitimate experience/knowledge and you do?) and don’t send people shit like this based on nothing? / based on them having the temerity 2 make jokes about their life experiences rather thn just like dutifully suffering i guess??
#also like nitpicky but I think I'm allowed since anon is acting like they know & being a dick about it - ''dissociating'' isn't a disorder#dissociation is a symptom / state that can result frm a bunch of different disorders/drugs/etc#long post#hey do you support the death penalty?#for the record the original post is a picture of bathroom doors w text on them instead of signs#''bla bla bla'' all over the door fr the women's room and one single ''bla'' for the men's - hah ha ha women talk a lot ha ha#& my comment was abt how incomprehensible it would be if u came on that while you were dissociated like it would be an impenetrable barrier#90% sure that's what this is about#also w the bit where I'm talking about people using it ''incorrectly' i gotta say i'm at the stage in my life (adulthood lol) where i'#don't think it's helpful or good to lose my shit at people who are earnestly ''wrong'' regarding their own experiences like#everyone's just figuring it out geez#people aren't annoying faking at WORST they're incorrect they don't need to be told off just given info or left alone
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Okay so weird question, but how exactly did you get diagnosed with POTS? I was diagnosed with hypermobility syndrome and partial arrhythmia a while ago, and it's only just recently that I've had a doc wonder if I have POTS. He didn't really tell me anything about POTS, and now I'm really lost! Do you think it's unlikely that I could get to be 21 and not be diagnosed?
Strap in, friend, because the story of how I got diagnosed is long and unpleasant.
So to start off, here’s a basic explanation of Postural Orthostatic Tachycardia Syndrome. It’s a syndrome, which means that it is a description of a collection of symptoms rather than an underlying cause. Frankly, doctors aren’t super sure why any of this happens, what exactly causes it, or even if it’s genetic or what. (But my mom, sister, and grandmother all show signs of mild POTS, so uh. It’s probably genetic.) The long and short of it, though, is that your blood vessels are supposed to automatically tighten or release in order to control blood flow. When you stand up, they tighten to counteract gravity and make sure blood stays where it should be. When you have POTS, your blood vessels don’t do what they’re supposed to do. Your autonomic nervous system stops controlling this tightening and loosening process, which means your blood flow is not being adequately controlled. (Also, there seems to be some research showing that #1, we tend to have more elastic blood vessels, which means they just expand when they fill up more – bad because that means your body can’t use blood pressure to regulate blood flow, either, and #2, we may not always have enough blood in our bodies to fill our blood vessels, so again, shitty blood pressure.) ANYWAY, what all this means in practice is that assorted parts of your body aren’t getting enough blood, or they’re getting too much blood. Blood does all sorts of important things for your organs, especially oxygenating them, so this really means that POTS is an “anything that can go wrong will go wrong” situation. Anything in your body that uses blood can go haywire at any time. And sorry to say, that’s everything.
Now, POTS is highly variable. Again, it’s a loose collection of symptoms, and those symptoms are different for literally every patient. POTS is actually super common in teenage girls, but it tends to be very mild and some teens (mostly boys, mind) completely grow out of it, so people often don’t even notice they have it. People only just started researching it and it’s still not talked about much, which, well, is probably due to sexism. I learned the hard way that teenage girls are not generally listened to when they complain about nebulous symptoms, especially if those symptoms have literally anything to do with hormones and menstruation. (Which POTS does. It’s…I think ¾ of all people who have it are biologically female, and onset usually accompanies periods of hormone fluctuation such as start of menstruation, childbirth, or start of menopause. Most sufferers get it in their teens when they start getting their period.) Like… It’s hard to really put this in a gender neutral way because I promise you, the reason doctors are shitty about POTS is tied to both the biological and societal effects of being female. That’s an aside though.
Anyway, tl;dr, it’s different for everyone and doctors think you’re nuts. When I was diagnosed, in the informational packet literally said “THIS IS NOT ALL IN YOUR HEAD” because so many patients have been repeatedly told that. For me, I was actually uh. I don’t want to say lucky? But in some ways I guess, yeah, lucky. I have a really bad case of POTS with some really severe symptoms. I have a lot of digestion problems, extreme exhaustion problems, dizziness, faintness, anxiety/depression, pooling/tingling/coldness in extremities, and here’s the biggie – blindness. When I stand up, I often just straight-up go blind. (Or if I’m just sitting there doing fucking nothing if I’m on an airplane.) It was really bad especially when I was a teenager. It used to be like literally every fucking time I stood up. (We later found out it was because all the blood was draining out of my head bc gravity. Turns out your brain likes blood! This is also why it hurts so much.) Now, doctors ignored most of what I told them about exhaustion, trouble keeping down food, aches and pains, etc. I was repeatedly told “oh, well, that’s just part of being a teenage girl”. Like honestly, try telling someone that you have exhaustion, pain, and nausea relating to a period and see how seriously you get taken. Jesus.
BUT UH THEY COULD NOT IGNORE THE BLINDNESS. Like I don’t care how teenage girl-y you are, it is not normal to go blind on the regular! My doctors could not figure out what the hell was happening. And I do mean doctors. I got POTS when I was around 10, along with my period. I was diagnosed when I was almost 18. In the meantime, I was passed around between dozens of doctors and honestly? I was a guinea pig. They didn’t know what was wrong with me so I was subjected to constant barrage of tests and treatments that made me a hell of a lot sicker. I was going to like 3 different doctors a week, sometimes every day. There are very few medical tests I have not had at least once. Some of the treatments they tried, I later learned, carried a strong risk of addiction, permanent neurological damage, and death. I was a drugged-out mess trying to drag myself through 15 flavors of physical therapy every day. Like uh. In short, my teenage years weren’t…good…
I finally got referred to like my sixth neurologist, and the guy was like “okay, you have been passed around between neurologists, cardiologists, ENTs, sleep disorder specialists, etc. for YEARS and we don’t know what’s wrong, so it makes no sense to keep ‘treating’ you – so I’m gonna take some readings and send them (and you) to a research hospital”. And that’s what he did! He took me off all of my medications (leading to the kind of DTs that honestly possibly could have killed me; I researched a few of the medications later and let’s just say you’re not supposed to go off them cold turkey) and did some tests. He found out some stuff like my blood pressure moves around a lot when I stand up. And sometimes my blood pressure was as low as 60/40. (Yo, that’s almost dead. The nurse took the reading three times with two different machines bc she was freaking out, lmao.) So he referred me to Mayo Clinic.
Now, what I did not know before this was that Mayo was actually the clinic that had discovered (and still researched) POTS! They saw a lot of girls like me. They took some blood, did a few tests, and when I had my appointment with them, they knew in under a half hour that I had POTS. I…cried. A lot. haha. It was so bizarre how many things in my life were actually an indicator of POTS. They were like “do you often sit all folded up?” and I basically exclusively do – and often got in trouble for it in school – and they were like “yeah, that’s POTS, you unconsciously try to keep all your limbs tucked in to reduce how far your blood needs to go”. Which is, I guess, why I tend to lose sensation in my legs and/or have my feet turn purple when I sit in normal chairs. lol. “Do you ever get dizzy or black out when you stretch or yawn?” oh yeah. “Do you get really sick when you take hot showers?” almost died once or twice, check! “Do you get weak when you lift things above your head?” you betcha. “Do you have a lot of problems with heat and sunlight?” OH YES I DO. Living in Florida was hell. I’d be vomiting and unable to stand up after like 30 minutes outside in the summer. I still vomit and get migraines if I look at a sunset, when the sun is strongest. Sensory sensitivity, especially photosensitivity, is a thing with POTS.
The actual diagnosis of POTS is kind of difficult. They usually have to do a ton of tests to rule everything else out first. Then they’ll usually try a tilt-table test (they tilt ya and measure your heart rate to see if your heartbeat skyrockets to help battle your blood doing weird shit) or a sweat test (which I am told is supposed to be painless but was one of the most painful experiences of my life so maybe it was a POTS thing) or look at your pee and see if you’re hella dehydrated. If you have POTS, you’re pretty much always hella dehydrated. (Gross but important: a symptom I never mentioned bc I didn’t know how abnormal it was – it burned like HELL when I peed. Turns out I was grossly, dangerously dehydrated. My urine was so concentrated that it was literally burning my urethra. idk how this slipped by so many doctors, but drink some dang water!) So it’s really a combination of tests for diagnosis, and they have to know to look for it in the first place! More and more doctors know about POTS now, but when I was first diagnosed almost a decade ago (this February! :’) when I went to college none of the school doctors knew about it. My family doctor didn’t know. None of my specialists knew about it. They wouldn’t give me student vaccinations bc they didn’t know how they’d interact with my brain. lol. It’s better now, though! I recently got a new doctor when I left my school’s health system, and she knew what POTS was! I was so happy, haha. Once I had a doctor literally google it right in front of me, so it was uh. A welcome change.
All this is to say that getting POTS diagnosed can be hell!! And I could definitely buy that you’re 21 and haven’t yet been diagnosed, especially if you’re female. My recommendation is this: the main treatment for POTS is diet and exercise, and that can’t hurt even if you don’t have POTS. I shit you not. There’s no cure or anything, but you are supposed to drink A LOT of water (I drink over a gallon a day, and that’s on days I’m not dealing with the sun) and eat a LOT of salt (”as much as you can stand” was their exact wording) and wear compression clothing (spanx and compression socks help me) and try to keep your body as toned as possible. It’s really easy to get out of shape when you have POTS (god knows I did), but they recommend trying to keep your blood moving. (THOUGH, CAVEAT!! I put on a lot of weight since I got diagnosed, and I have to admit. It’s gotten my blood pressure to a healthier level. So idrk what to make of that.)
I’m not gonna tell you to start eating massive amounts of salt when I don’t know your body, but drinking water can’t hurt you. So if you suspect that you may have POTS, start drinking water. This is not a replacement for a treatment plan, but it can’t hurt you! It can only help! So while you’re working with your doctor, just drink a lot of water and see if it helps you feel better. It is like night and fucking day with me.
Finally, POTS has a high comorbidity rate with other issues. In other words, if you have a severe case of POTS, you probably don’t only have POTS. A common illness to have with POTS is EDS, or Ehlers-Danlos Syndrome. It’s a type of hypermobility, which may be why your doctor is concerned. (I don’t have EDS, probably, but I do have some pain/movement issues that they’ve never been able to pin down, so there’s probably…something. idk.)
Here’s my advice. Work with your doctor to try and figure things out. Drink water. Make sure you have a good doctor whom you trust. Even after I got diagnosed, I regularly got medical professionals who believed this shit was all in my head. And try not to worry. Like I said, for most people who have it, POTS is extremely mild. If you change your lifestyle, you might not see many symptoms at all, and if you do, well. Work with that trusted doctor. Hit me up. I know a lot of ways to get a lot of salt in your body. lol
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