#i hate being disabled

[69constellationsinatrenchcoat]

Fun fact: the word 'chronic' means it's lifelong! and the phrase 'chronic illness' means I'm stuck with it until it takes me out, or I take me out. So, to the woman bothering me at a close family friend's funeral today about 'whether it goes away' can shut the hell up. Chronic means I'm stuck with it. Telling me I can think my way out of it when I have things physically wrong with my body will not do anything. No, it's not going away, and praying and trying to force me out of my wheelchair won't do jack-shit (except make me want to break your nose). Trust me, I have tried almost everything under the sun by now.

Besides, I've come to the conclusion if god/s exist, they decided I'm better used as a disability advocate than wasting their precious time on fixing the fact I'm in crippling pain constantly :DDD

[catwouthats]

I know even after I spell it out, yall won’t understand. But whatever. This is what it’s like for me to be disabled:

Not socializing to save energy

Not letting yourself fall in love to save energy

Not crying to save energy

Not having a social life

Not having a love life

Not having the ability to cry

Saving up energy for times when you have to face doctors

Saving up energy for times when you have to speak up for yourself

Saving up energy for emotional conversations

Never getting a diagnosis

Never getting listened to

Never getting to put your plans to actions

And when I get emotional about it, it’s on me.

I could have saved the energy I used for yelling for five minutes to go on a 5 day trip apparently.

Sure. That makes sense.

I have to keep repressing my emotions if they are draining me that much, even though I literally am getting more emotional and mentally unstable as my brain literally changes and even though I’m literally human and shouldn’t have to in the first place

But sure! That makes sense!

There is a difference between helping a disabled person get better and pushing them past their limits constantly to the point where you are abusing them.

Learn the difference.

Grow up.

Stop.

[chronicpain-itsastruggle]

love sitting in front of Costco for 30 minutes waiting for a motor cart bc im disabled and cant shop at all without one. Love how much they care abt their disabled customers with their SIX CARTS FOR THE ENTIRE WAREHOUSE /negative

[cherry-pop-elf]

Typical Friday Night

So yeah. I’ve been prescribed Zepbound to help me lose weight. Due to being on multiple medications, my fibro, and binge eating disorder, it made it extremely difficult to lose weight.

It’s a good send, but my fibro makes its so painful to take. I will scream and cry every time. But I have no choice.

Being alive is hard. So how I cope is pretending that George Weasley would give me my shots and help me with my meds. Because sometimes you gotta be a little insane to be alive

[ruger35mm]

if you think that “every other disabled person gets a job and worth [sic] through their diseases” you are incredibly stupid and a terrible feminist. many, many disabled people are homeless or kill themselves because they cannot support themselves. many disabled women are financially tethered to abusive men because they cannot support themselves. your politics are nothing but an expression of cruelty and will never result in anything beneficial for anyone

Person I made fun of has ME/CFS- most of the time sufferers do not eat a clean diet, workout daily, and have high screen times. But rather than work to rewind the problems, they’ll self diagnose an actual disability. But these people don’t WANT to be better- they enjoy e begging online and ordering Skip the Dishes twice a day.

I actually have severe ME/CFS and I work everyday. Don’t drink coffee, don’t eat endless junk, take ADHD stimulants to stimulate synthetic energy. Why are all the people in the comments claiming ME/CFS - you find that out from being tired from everyday activities - not laying around in bed all day and being surprised and distraught your body isn’t as strong.

Are you actively fighting against your government systems or are you just complaining online & using these people as fodder for your online fights?

Again, you won’t catch me taking free handouts from the government to buy my complacency!! :P

[258punkweight]

i rly want a puppy but ik i wouldn't be able to take care of one :<

[science-my-ass-ed-its-magic]

I WANT TO WORK!!!! I WANT TO GO TO SCHOOL FULL TIME!!!! I WANT HOBBIES!!!! I WANT TO CONTRIBUTE TO SOCIETY!!!!!

[dragonmistressivy]

I am scared. Saw that trump has won and that he will have both the house and senate. Good bye any hope of a future for me. I didn’t have much of a future thanks to my bio mom and everything else in my life but now won’t have even the slightest possibility of having even a decent future. Especially since i sm both disabled and trans do i will be on the chopping block. I hope i die peacefully before it gets too bad. I just have yet another reason on top of a insanely long list of reasons to kill myself that just keeps growing. I am killing myself as soon as i can do it peacefully.

[pallas-cat]

finally found a cleaning service specialized in lower income/more vulnerable ppl im going to cry

[render-bomb]

Does anyone else with a chronic illness get frustrated with their to do list? Like old me could do all of it within an hour or so, no problem, and still be able to do more. But new me needs to take breaks in between each small task, sometimes having to break those small tasks into even smaller tasks. Cleaning the bedroom is now, strip the bed, break, put new sheets on, break (sometimes with a break between putting sheet on and duvet cover on), dust, break, vacuum. So instead of the task being one item, it's now 3-4 items. Plus I still have the other items on my list to do

[sundry-whovengerslocked]

extremely specific whump fic

where a mentally ill/traumatized character with a hoarder mindset and an irrational fear of losing things - has to relocate in a hurry with hardly any of their possessions.

they have to run away for their safety or worse are whisked away into another dimension with no hope of going back home.

(this is worse than if a fire or natural disaster happens because at least then you know it's destroyed - this way they have to live with the fact that their beloved things could be sitting on the side of the road in the rain, or rotting in the garbage, or belonging to someone new who doesn't understand its meaning.)

the character then has to mourn the loss of journals and pictures and trinkets picked up from travels and childhood toys. and eventually learn to move on from this irrational pain.

has to hear "they're just things" and, bitterly swallowing the pain, accept it.

[chronicpain-itsastruggle]

You know what’s humiliating? Waiting for 20 minutes in the freezing cold in front of Costco on a monday night at 7pm because there are no motor carts

I quite literally cannot walk and shop in this giant store. WHY ARE THERE ABT 4 MOTOR CARTS FOR THE BIGGEST STORE IN MILES

[cherry-pop-elf]

Life Update: Medical Plans For July

Ight so. 👏 Here’s what’s up.

I’m seeing a new pain doctor on July 2nd. See if we can get some kind of medication to help reduce my pain

Then on July 12th I’ll be speaking to the High Risk Cancer Unit about what steps to take.

Due to having a family heavy with breast cancer, I qualify for a total mastectomy. Aka, top surgery

The issue then will be “tf do I do about college?” Because obviously the sooner the better. But given I need to roll myself around campus, that posed heavy complications.

A idea is that my dad speaks with his superiors to force him to work on campus so he can roll me class to class

Another would be to just to speak with my college admistrators about getting assistance. Given it’ll be temporary, compared to long term

We can only plan once we get a surgical date. So everything’s in the air, until we speak to someone.

Also with what kind there is as all. My my mother had size over triple ddd’s due from her hormones. Given from HER breast cancer. That was a shit show to drain.

((There is also the fact my grandfather had breast cancer, hence another layer to my high risk. Just one problem. He HID his breast cancer from everyone. So we have no idea how his went))

So me healing different from her is clear. ((Fibro not even included alone)) As mine are only 34-36 C cups. A massive difference. So maybe my draining tubes will be different. Needed for a shorter time, as it’ll be much smaller to work with

Who knows

That’s Belladonna’s Medical Plans for July ✌️

[s-ccaam-era-crepe]

anyone else up collapsing on the floor?

[bibliocharlie]

if this flare doesn’t kill me, i might just do it myself

[lovethisfatcryptid]

I've had a migraine for hours I suppose I should lay down