#global medical point

[globalmedicalpoint]

[inkskinned]

you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.

(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)

but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.

(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)

there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.

(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)

you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.

(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)

you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.

in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.

but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.

they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.

it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.

[halorvic]

The danger is clear and present: COVID isn’t merely a respiratory illness; it’s a multi-dimensional threat impacting brain function, attacking almost all of the body’s organs, producing elevated risks of all kinds, and weakening our ability to fight off other diseases. Reinfections are thought to produce cumulative risks, and Long COVID is on the rise. Unfortunately, Long COVID is now being considered a long-term chronic illness — something many people will never fully recover from. Dr. Phillip Alvelda, a former program manager in DARPA’s Biological Technologies Office that pioneered the synthetic biology industry and the development of mRNA vaccine technology, is the founder of Medio Labs, a COVID diagnostic testing company. He has stepped forward as a strong critic of government COVID management, accusing health agencies of inadequacy and even deception. Alvelda is pushing for accountability and immediate action to tackle Long COVID and fend off future pandemics with stronger public health strategies. Contrary to public belief, he warns, COVID is not like the flu. New variants evolve much faster, making annual shots inadequate. He believes that if things continue as they are, with new COVID variants emerging and reinfections happening rapidly, the majority of Americans may eventually grapple with some form of Long COVID. Let’s repeat that: At the current rate of infection, most Americans may get Long COVID.

[...]

LP: A recent JAMA study found that US adults with Long COVID are more prone to depression and anxiety – and they’re struggling to afford treatment. Given the virus’s impact on the brain, I guess the link to mental health issues isn’t surprising. PA: There are all kinds of weird things going on that could be related to COVID’s cognitive effects. I’ll give you an example. We’ve noticed since the start of the pandemic that accidents are increasing. A report published by TRIP, a transportation research nonprofit, found that traffic fatalities in California increased by 22% from 2019 to 2022. They also found the likelihood of being killed in a traffic crash increased by 28% over that period. Other data, like studies from the National Highway Traffic Safety Administration, came to similar conclusions, reporting that traffic fatalities hit a 16-year high across the country in 2021. The TRIP report also looked at traffic fatalities on a national level and found that traffic fatalities increased by 19%. LP: What role might COVID play? PA: Research points to the various ways COVID attacks the brain. Some people who have been infected have suffered motor control damage, and that could be a factor in car crashes. News is beginning to emerge about other ways COVID impacts driving. For example, in Ireland, a driver’s COVID-related brain fog was linked to a crash that killed an elderly couple. Damage from COVID could be affecting people who are flying our planes, too. We’ve had pilots that had to quit because they couldn’t control the airplanes anymore. We know that medical events among U.S. military pilots were shown to have risen over 1,700% from 2019 to 2022, which the Pentagon attributes to the virus.

[...]

LP: You’ve criticized the track record of the CDC and the WHO – particularly their stubborn denial that COVID is airborne. PA: They knew the dangers of airborne transmission but refused to admit it for too long. They were warned repeatedly by scientists who studied aerosols. They instituted protections for themselves and for their kids against airborne transmission, but they didn’t tell the rest of us to do that.

[...]

LP: How would you grade Biden on how he’s handled the pandemic? PA: I’d give him an F. In some ways, he fails worse than Trump because more people have actually died from COVID on his watch than on Trump’s, though blame has to be shared with Republican governors and legislators who picked ideological fights opposing things like responsible masking, testing, vaccination, and ventilation improvements for partisan reasons. Biden’s administration has continued to promote the false idea that the vaccine is all that is needed, perpetuating the notion that the pandemic is over and you don’t need to do anything about it. Biden stopped the funding for surveillance and he stopped the funding for renewing vaccine advancement research. Trump allowed 400,000 people to die unnecessarily. The Biden administration policies have allowed more than 800,000 to 900,000 and counting.

[...]

LP: The situation with bird flu is certainly getting more concerning with the CDC confirming that a third person in the U.S. has tested positive after being exposed to infected cows. PA: Unfortunately, we’re repeating many of the same mistakes because we now know that the bird flu has made the jump to several species. The most important one now, of course, is the dairy cows. The dairy farmers have been refusing to let the government come in and inspect and test the cows. A team from Ohio State tested milk from a supermarket and found that 50% of the milk they tested was positive for bird flu viral particles.

[...]

PA: There’s a serious risk now in allowing the virus to freely evolve within the cow population. Each cow acts as a breeding ground for countless genetic mutations, potentially leading to strains capable of jumping to other species. If any of those countless genetic experiments within each cow prove successful in developing a strain transmissible to humans, we could face another pandemic – only this one could have a 58% death rate. Did you see the movie “Contagion?” It was remarkably accurate in its apocalyptic nature. And that virus only had a 20% death rate. If the bird flu makes the jump to human-to-human transition with even half of its current lethality, that would be disastrous.

[mycological-mariner]

My fingers are crossed that now I’ve applied for a local GP I can FINALLY a) sort out my hip and b) finish the referral for a social worker. It would make such a huge difference.

[virtue-boy]

Its kind of insane like genuinely insane how many people on here have no idea what life is like for average people in the third world / global majority and the Neo-colonialism that creates those conditions to support conditions in the North and how insanely cruel they can be as the absolute baseline and the type of killing and death that maintains the boundaries between the north and the south.

Like tell me you've never met an immigrant or refugee without telling me. Do you genuinely not know what happens to people who get deported, or work in the farms or meatpacking factories that feed the North?? The child deaths in the border crossings? The mines all over the globe? The people that die from lack of baseline vaccinations and sanitation and healthcare trademarked by western companies? The literal MILLIONS of third worlders killed in the wars across the globe defending US economic hegemony? The agent orange, the land mines, the carpet bombing, the drones? What the fuck is wrong with you?

[market-insider]

Clinical Trials : Holistic Exploration of the Current State and Future Outlook

The global clinical trials market size is expected to reach USD 123.5 billion by 2030, expanding at a CAGR of 6.49 from 2024 to 2030, according to a new report by Grand View Research, Inc. An increase in the volume and complexity of clinical trials has been witnessed lately, which plays an important role in the R&D of new drugs and products. The market witnessed a decline of 6% in 2020 owing to the COVID-19 pandemic. However, the market is projected to recover from 2021 onwards. In addition, clinical trials have become increasingly costly, adding to the overall cost of developing a drug.

Clinical Trials Market Report Highlights

The phase III clinical trials segment dominated the market with a 53.3% share in 2023. This can be attributed to the complexity of this phase

The interventional studies segment dominated the market in 2023. It is one of the most prominent methods used in clinical trials in the study design segment owing to the increasing demand for the intervention for clinical trials by researchers

North America held 50.3% of the market share in 2023. Favorable government initiatives and the presence of a large number of players in the U.S. that offer advanced services are responsible for market growth

Asia Pacific region is anticipated to grow at the fastest CAGR over the forecast period owing to the increasing patient pool and cost-efficient services.

For More Details or Sample Copy please visit link @: Clinical Trials Market Report

The increasing need for developing new drugs for chronic diseases, such as cancer, respiratory disorders, diabetes, cardiovascular diseases, and others, is creating immense pressure on the healthcare industry. The COVID-19 pandemic and the increasing demand for developing a suitable treatment are driving the market. The high number of people affected by the disease further depicts an increasing need for therapeutics & vaccines. Currently, there are 288 therapeutics and 106 vaccines under development, out of which, nearly 7.0% of therapeutics are in Phase IV, 21.0% in Phase III, and 43.0% & 13.0% in Phase II & Phase I, respectively.

The pandemic has resulted in the global disruption of traditional onsite clinical trials. Hence, regulatory bodies worldwide have undertaken various initiatives for fast-tracking clinical trials for the development of innovative solutions. One such instance is Solidarity, an international clinical trial launched by the WHO to find effective treatment against COVID-19. Although the pandemic has forced many medical device & drug developers to revise the approach to such crises, integrating best practices within clinical trial procedures & adapting to virtual trials, which can support the continuous development of therapeutics.

ClinicalTrials #HealthcareResearch #MedicalInnovation #DrugDevelopment #PatientRecruitment #Biopharmaceuticals #ClinicalResearch #RegulatoryCompliance #DataManagement #PatientEngagement #PrecisionMedicine #TherapeuticTrials #CROs #ClinicalResearchOrganizations #GlobalHealth #ClinicalStudyDesign #PharmaceuticalIndustry #BiotechResearch #ClinicalEndpoints #HealthTechIntegration

[carefreefc]

watching football through a leftist intersectional feminist lens is so painful i could write a sub stack essay about this

[netscapenavigator-official]

Listen. I hope I’m wrong. I hope in 1-3 days you all can point at this post and be like “look at this idiot for being paranoid.” I do. But I feel like the writing’s on the wall. There are no paths forward without Pennsylvania, and that gap is too large.

I hope the non-voters are happy. Legitimately. I hope the Green Party is happy. For real. I hope this outcome brings them the joy they hoped it would. I hope they don’t come to regret the next 2-4 years. I hope they’re at peace.

I hope Europe isn’t forced to change their stance on Ukraine like many Prime Ministers have warned they would. I hope there are Palestinians left in Gaza to liberate after Trump “finishes the job” and gets his real estate property. I hope the number of queer folk killed, whether individually or systematically, in the coming years is minimal. I hope the number of women killed by inaccessibility to medical care is minimal. I hope the number of disabled people who face financial hard times is minimal. I hope we genuinely can cruise through these next 4 years. I hope I’m still around to try and fix this in 2-4 years.

I hope the message the non-voters and Green Party sent is actually received. I hope they didn’t send the message to Democrats that conservatism is the way to win and what we should be embracing.

I hope that nothing in Project 2025 is completed. I hope we win at least one branch to throw a stick in the gears of fascism. I hope Trump bombs his second term so poorly that 2026 wipes the GOP out of the House and Senate.

I hope there’s still a global superpower to fix in 4 years. I hope that the corruption we’ve allowed to thrive tonight doesn’t infect our neighbors across the Atlantic like they fear it will.

I still hope for a better future. But I don’t believe that future is going to happen this time. I’m going to try to go to bed.

[mesetacadre]

this might be a silly question, but. ive recently learned more about the devastating effects of sanctions on countries like cuba, dprk, or venezuela, and how much unnecessary suffering they cause among the population, especially when it comes to food or medicine shortages. but then bds also calls for sanctions against israel, and im wondering, is there any meaningful difference between that and the sanctions already imposed by the US on other countries? i feel a bit hypocritical when i argue against sanctions while at the same time supporting bds, i feel like they are very different situations with different outcomes but i lack the understanding to really grasp how they are different, if that makes any sense

Sanctions are the systematic blockade of all or certain sectors of trade under military or economic threat by the sanctioner (mostly just the USA in recent history) to any potential agents who might try to ignore the sanction. These sanctions typically include things like medical supplies, food if the country is dependent on imports (like most countries who get sanctioned), electricity, fuel, both light and heavy industry, agricultural products and machines, the global financial system, and other such key sectors. These sanctions, overwhelmingly, only serve to impoverish the country, create undue suffering and political strife. This political strife/instability is usually the main goal of sanctions, to destabilize the target government. However, this political instability more often than not does not result in a magical restoration of "democracy" or "human rights", it usually leads the country down a path of further isolationism and political violence that only worsens its general situation. It also makes it much easier for factions like ISIS to gain popularity and support, since people are desperate. Sanctions are inhumane measures which only makes a country suffer for no good reason. The sanctioners know this, they don't care, and I'd wager that suffering is often the actual point of these sanctions. What has the 60 year old blockade achieved in Cuba? It has only caused pointless poverty, and the stated goal of the sanctions, which is to ultimately remove the communist government, has failed, is failing, and Cuba is managing to make due with what they have.

BDS call for sanctions mostly in regards to military equipment and related products/services, for NATO to stop aiding the genocide, or the banning of Israel from international events such as the olympics. No Israeli will ever go hungry because they no longer get European-made ordinance or because they don't get to participate in Eurovision. This is what BDS says in their Sanctions and governments campaign (which is behind two menus, this is also not the main focus of BDS, by far):

The BDS movement calls for sanctions against Israel, similar to the sanctions that were imposed against apartheid South Africa. These sanctions could include a military embargo, an end to economic links and the cutting of diplomatic ties. In the meantime, the BDS movement is calling for states to take steps to meet their legal obligations not to be complicit in the commission of particular Israeli crimes and not to provide recognition, aid or assistance that help Israel maintain its regime of settler colonialism, apartheid.. This includes, for example, the obligation for states to immediately end to all trade that sustains illegal Israeli settlements in the Occupied Palestinian Territory and the suspension of free trade agreements and other bilateral agreements with Israel.

Notice the greater emphasis on military and diplomatic ties, and how economic/trade sanctions are only called for when it «sustains illegal Israeli settlements in the Occupied Palestinian Territory». Sure, this will (if it is ever adopted by Israel's significant trade partners) cause some suffering for the poor illegal settlers who had just moved into their shiny new apartment blocks built atop acres of land that sustained the surrounding Palestinian villages. The mere existence of these settlements cause more suffering than any sanction could ever cause.

Calling for these sanctions against Israel, which again, don't even come from comparable agents, are both less harmful towards the total population of Israel, and occur in a completely different context. I'm not going to pretend I care about the wellbeing of settlers whose houses didn't even exist 10 years ago. If these sanctions ever do occur in a significant enough scale (dubious), and those settlers don't want to find themselves in a food desert because Carrefour closed all their stores in the west bank, they shouldn't have moved into land stolen from a people facing genocide in the first place. We're also wagering hypothetical and non-global suffering against the now more than 100,000 dead Palestinians in Gaza in the past year, not even counting those who died ever since the first Nakba.

Like BDS points out, these types of grassroots and targeted boycotts/sanctions worked in South Africa, and the white South Africans didn't even suffer that much. Wager these short-lived and targeted sanctions against these other half-century long sanctions sustained by the US' strongarm policy that have prevented basically anything from getting into Cuba or the DPRK.

While those two things are both called sanctions, they have radically different objectives, methods, range, timescale, and character. I can't reiterate this enough, the North Korean collective farmer and the Israeli settler in the west bank have nothing in common when it comes to their position. Only one of them is complicit in genocide through their own actions, only one of them has any degree of blame, and only one of their governments is actually doing anything that warrants any kind of international action. And again, the BDS strategy focuses much more on military sanctions. Let's also be practical for a second, and acknowledge that the US is never going to withdraw their support for Israel, and especially will never sanction Israel. Israel is simply never going to face the same kind of sanctions that Venezuela or Cuba are facing, nor with the same severity, nor with the same restrictions on products essential for life.

[pinene]

at this point, the US is transparently not investing in its global competitiveness, in its citizens' intellect. nor is it investing in the general welfare of its citizens, whether that's housing, medication, food etc. like-- isn't so much a COUNTRY as it is a money laundering scheme where the idea of "freedom" makes millions of citizens happy to have to go in debt to the upper class to buy things from the upper class to remain middle class ¿ it's like some crazy sealed ecosystem where eventually it must reach either an equilibrium or go completely sideways and um. it's not looking like the former

[five-thousand-loaves-of-bread]

own 2 cents about cure autism

autism cure research, generally not coming from point of, those with it wanting to improve life this way. but more so—people around them believe it what they want it what they need it improve life, and, uncured autism seen as … difficult for people around them, expensive for government to provide services, take up resources in medical places, etc.

majority autistic people *in actually autistic community, who understand this topic, & can talk about their opinion* don’t want whole cure

there not-small-group of autistic people who cannot reliably tell you what they think about this, or in way that easily understood (can’t communicate, can’t understand, etc). they need be remembered in this conversation (& arguably centered… bc they gonna be more affected. see below)

having said that. there exist autistic people of all types who would want cure for own autism. out of those have seen myself, majority of them [high support needs / nonverbal or level 2/3 or diagnosed severe or significant symptoms of some sort] whose life extremely different from peers because of it (& like majority of their problem not caused by “society” & won’t disappear if society & capitalism not exist anymore). it how they feel about their own autism, n feel counterproductive in “educating” them about their own (clearly personal and upset) feeling about what they want do with own disorder, especially since they not funding cure research or whatever. but—

autism, developmental disability that start in childhood, famous for be the “be treated as can understand and make own decisions” and “have autonomy respected” and “not ever forced coerced do anything” and “not force abusive therapy to make them appear ‘normal’ ” disorder. (sarcasm) — don’t really believe we as society are at place where we would actually respect “only for people who want it. won’t force it on people who not want it”.

aka. if cure is post-natal, AKA happen after birth… they will directly or indirectly force cure on autistic people

force post-natal autism cure will disproportionately impact those who… higher support needs, diagnosed level 2/3, diagnosed moderate severe, diagnosed low functioning, diagnosed comorbid intellectual disability or global developmental delay, diagnosed comorbid genetic developmental disability, nonverbal… diagnosed children, in conservatorship, ward of state, in prison, generally not fully legally allowed have final say in decision making… visibly autistic, have/said to have severe behavioral issues, BIPOC especially Black people… (incomplete list)

which. not to say autistic people who not any of these won’t be affected at all. because will. but as a whole, people on that list as a collective group, will be more impacted, more coerced, more forced, even won’t be given choice, to take cure (maybe won’t even be told was given cure), over people not on that list as a whole.

am going emphasize that autism is developmental disorder that start in childhood & children get diagnosed with it & children legally not final say in make decision & children very easily talked into agreeing without full informed decision & those diagnosed as children more likely be [higher support needs / nonverbal / more significant symptoms] (EDIT: at time of diagnosis) because those most noticeable earliest + global developmental delay then catch up later on happens (to vastly simply it to a fault, quoting someone, “no shit they high support needs, they children.”)

can also see welfare slowly not covering uncured autistic people, insurance decrease / deny / make harder coverage for autism related services other than cure, schools & esp special education less support for autism, etc. general official resources for autism decreasing (which. not much to begin with even pre-cure), which again impact all autistic people but especially list above… oh and poor people. can also see stuck in limbo of “will not get support & welfare if uncured autistic, but no money to cure” because this shit will be expensive

when this much at stake (aka if there no resource for keep be autistic, n resources locked away only able get after cure), when big percentage of autistic people cannot reliably show informed consent in some way (cannot reliably communicate, cannot reliably show they understand, or literally not allowed have decision capacity legally, etc)… if an autistic person say yes they agree. actual willing yes? not coerced? not misled? not forced into it?

autism & autistic people (& by extension, care people they depend on) don’t have enough support to begin with. in this current reality without cure lol. can we focus on that too pour as much money in that too — let’s not talk autism’s inherent quality of life until you give all autistic people as much care as they need & for it be freely n easily available

don’t really think current science have enough tech & resource cure autism like this. autism is complex disorder with complex sources & hard to say if current what called “autism” based on behaviors & internal reported symptom not actually group of different disorders.

if cure pre-natal (e.g genetic identification & abortion. anti choice unkindly DNI) - see: down syndrome

however: finding genetic cause =/= cure. find genetic cause can easily lead to find cure research. but should be clear that they not equal to eachother, not automatic mean eachother.

um. missing many things probably

TL;DR. don’t think right now society at place where… have widespread enough, nuanced enough, critical enough, & enough awareness/acceptance/understanding of ALL autism (and disability as a whole).

enough support for autistic people for autism-related needs & general needs (financial, food, etc).

world where autistic people who can make own decisions about self actual able make own decision about self, & world where autistic people who genuinely can’t (for now or ever) actually protected from harm

and honestly don’t think we have enough scientific and medical advancement/knowledge/ability

etc

to actually make sure this won’t go haywire

.

idk if anyone can follow this

autism issue is disability justice is cross-movement justice. autism issue depends on liberation of so many groups of people (like welfare reform, prison reform) 👍

follow up

[whumpinggrounds]

Writing Deaf Characters

I am making this a series now so pls drop requests if there is something you’re curious about!

Disclaimer: This is all based on personal experience and research, all of which relate to the American Deaf experience. It’s not perfect, nor is it representative of a global experience of d/Deafness. If you plan to write a d/Deaf or hard of hearing character, please do your own research! This is intended to give people a few ideas about where to start.

Vocab

Deaf = Refers to the cultural experience of being deaf and immersed in Deaf communities.

deaf = Inability to hear some or all sound.

Profoundly deaf = Inability to hear almost all or all sound.

d/Deafblind = Inability to hear some or all sound and as well as having some level (usually high) of visual impairment. 

Hard of hearing or HOH = A person whose inability to hear may not rise to the level of deafness or profound deafness, or simply may not identify with the term.

Deaf of deaf = A Deaf child born to Deaf parents.

CODA = Child Of Deaf Adults. This refers to hearing children, not d/Deaf children.

Manualism = Refers to the belief that d/Deaf children should be taught only sign language and should not be taught or expected to learn to speak.

Oralism = Refers to the belief that d/Deaf children should be taught only to speak and should be discouraged from learning or using sign language.

Bilingual-bicultural or bi-bi education = A school of thought that combines oral and manual education for d/Deaf children.

Mainstreaming = The belief that d/Deaf children should be educated in the same schools and classrooms as hearing students. (More widely refers to the belief that disabled students in general should be educated in the same schools and classrooms as nondisabled students.)

Deaf gain = The Deaf community’s answer to the term “hearing loss.” Rather than losing hearing, a person is said to be gaining Deafness.

Cochlear implant/CI = A medical device implanted into the inner ear which (debatably) produces sensation that is (somewhat) analogous to hearing.

American Sign Language or ASL = An American system of communication consisting of hand shapes, hand movements, body language, facial expressions, and occasionally, vocalizations.

Signed Exact English or SEE = A manner of communicating that directly translates English words into signed equivalents.

Home sign(s) = Signed communication that is specific to the signer’s home or community, which may not exist or be recognized in the wider world.

Identity First Language or IFL = A system in which someone is described first by an identifier that they choose and feel strongly connected to. Examples include describing someone as an Autistic woman, a disabled individual, or a Deaf man.

Key Elements of Deaf History

Can’t emphasize this enough - this is a VERY abbreviated list! It is also not in order. Sorry. That being said:

For a long time in America, Deaf children were not educated, nor was it considered possible to educate them. When this did change, American deaf children were educated in institutions, where they lived full-time. These children were often taken from their families young, and some never regained contact with their families. Some died and were buried at these institutions, all without their families’ knowledge.

In the early 20th century, oralism became popular among American deaf schools. This mode of teaching required lip reading and speech, no matter how difficult this was for students, and punished those who used or attempted to use sign language. Pure oralism is now widely considered inappropriate, outdated, and offensive.

Hopefully you’ve gleaned this from the above points, but d/Deaf schooling, education, and the hearing world’s involvement are a very sensitive subject. Proceed with caution. It’s unlikely your d/Deaf character would have a neutral relationship with schooling.

Helen Keller is probably the most famous deafblind person in America. In her time, she was also known for being a socio-political activist, a socialist, and a vaudeville actress. There are dozens of other famous d/Deaf people who are a quick Google search away. Give your Deaf character Deaf heroes, please.

The Americans with Disabilities Act, or ADA, was passed in 1991, and represented a landmark victory for disabled activists in America. Among its provisions were closed captioning for Deaf individuals, ASL interpreters for public services, and the right for d/Deaf children to attend accessible, accommodating public schools. The ADA is a HUGE deal. It’s also not perfect.

In 1961, cochlear implants were invented. I was going to write more about cochlear implants here, but it’s too long. New section.

Cochlear Implants

Massively massively massively controversial in the Deaf community. Always have been, potentially always will be. For people who strongly identify with Deafness and the Deaf community, CIs are an attack on their identity, their personhood, and their community’s right to exist. 

Do not allow people to “hear.” The input that a person receives from CI can, with physical therapy, training, and time, be understood and processed in a similar way to sound. This does not mean it would be recognizable to a hearing person as sound. It is often described by people who have them as being metallic, buzzy, or robotic. YouTube is a great resource for sound references.

In order for a cochlear implant to be effective, a personal will have to participate in years of training and therapy to correct process, understand, and interpret the feedback given by the CI. This is not negotiable. Even if your character just lost their hearing in an accident last week, a CI will not allow them to instantaneously regain that hearing. Nothing that currently exists in the real world will do that.

CIs, to be most effective, are almost always implanted when the recipient is very young. This decision is often made by hearing parents. This, again, is massively controversial, as Deaf activists argue that it violates the child’s bodily autonomy and is inherently anti-Deaf.

A cochlear implant, once placed, irreparably destroys any residual hearing that the recipient may have had. This is because it penetrates the inner ear in order to function. This residual hearing cannot be regained, even if the cochlear implant is not used.

Deaf people do choose to get cochlear implants of their own accord. Many d/Deaf people are very happy with their cochlear implants! It is still a highly charged choice in light of the political history surrounding d/Deafness and hearing.

Notes About American Sign Language

ASL is not a signed version of English. It is a distinct language, with its own vocabulary, slang, and grammar. Just a sentence would not be constructed the same way in Russian, Spanish, or Tagalog, a sentence in ASL would not be a direct translation of its English equivalent.

Deaf people have historically lower rates of literacy. This is not due to a lack of intelligence; it is because ASL and English are two different languages. ASL has no written equivalent. In order to be able to read or write, d/Deaf children must learn an entirely different language. This means that it is not realistic to always be able to communicate with d/Deaf people through writing.

As ASL is a visual language, many signs started out as very literal gestures. This means that many older signs are continuously being phased out as they or their roots are recognized as stereotypical or offensive. Please be careful in researching signs. I recommend Handspeak or Signing Savvy for accurate, relatively up-to-date information.

Many online “teachers” do not have credentials to teach ASL, and especially due to the prevalence of “baby sign,” home signs, invented signs, or false information spreads unchecked. If you see multiple different signs advertised for the same English word, please be diligent in checking your sources.

Not every English word has a distinct signed equivalent, and not every sign has an English equivalent.

SEE is almost never used by Deaf people. It’s rarely used and is generally thought of as a “lesser” version of both English and ASL.

ASL is a complete, complex, nuanced language. A character would not switch into SEE for a technical conversation or really any reason. Complex ideas, technical terms, and even poetry can all be expressed in American Sign Language.

Just like in English, there are some signs that are only considered appropriate for certain people to use. For example, the sign for “Black” when referring to a Black person has a modified version that is only used by Black signers. This does not mean it is a slur or the equivalent of a slur. It is a sign reserved for Black signers referring to other Black people.

Things to Consider/Avoid/Be Aware Of

I hesitate to tell anyone to avoid anything, because I don’t think I have that authority. That being said:

The Deaf community has a complicated history and relationship with cochlear implants and the concept of being “cured.” What message are you sending when you write a story in which a d/Deaf character is “cured” of their d/Deafness?

Generally speaking, d/Deaf people do not identify with the “disabled” label. Each person has their own preferences, and those preferences should always be respected. Your character(s) may choose differently than their real life community, but you should put thought into why that is.

Generally speaking, d/Deaf people use IFL. This means that a majority of d/Deaf people in America would describe themselves as d/Deaf people, rather than people with deafness, people with hearing loss, people that are hard of hearing, etc.

Okay I lied I’m going to tell you what to do here: Do not use words like mute, deaf-mute, or dumb when describing d/Deaf people. Hearing impaired is also not ideal but is considered outdated, rather than outright offensive.

The best lip readers are judged to be able to catch 30% of the words people say. How realistic is it to have a character that relies 100% on lipreading? What do you gain when you write a character that lipreads, and what do you lose?

Yes, Deaf people can drive. I don’t know why so many people wonder about this. It’s okay if you didn’t know, but please don’t come into my ask box about it.

Assistive Devices/Aids

Cochlear implants ^ see above

Interpreters. Will have gone to school for years, might have specific training for certain environments or technical terms, etc. For instance, an interpreter that works with Deaf people that have mental illnesses would be fully fluent in ASL as well as having requisite mental health training in order to interpret for them. Interpreters could be a whole other post actually, but I won’t tackle that now.

Closed captions. Self-explanatory.

Alarm clocks, fire alarms, and doorbells that use light instead of sound. This is sometimes a typical flashing light, but particularly fire alarms in predominantly d/Deaf spaces can be overwhelmingly bright. Bright like you’ve never seen before. Bright enough to wake someone from a dead sleep.

Some assistive devices also use sensation - alarms that actually shake bedframes exist and are the best choice for some people!

Service dogs - can alert people to sounds like the above - fire alarms, doorbells, knocking, etc.

Hearing aids. Generally not controversial in the way that CIs are. Only effective if people have residual hearing. Do not really expand the range of sounds people can hear, just amplify sounds in that range. Very, very expensive.

Microphones. If a d/Deaf or HOH person is in a crowd/lecture setting, the speaker will want to use a microphone. If this is a frequent occurrence, the microphone may be linked to a small personal speaker or earbud used by the d/Deaf or HOH person.

TTY: Much less frequent now that everyone can text and email, but stands for Text Telephone Device and was/is a way to send written communication over a telephone line. The message is sent, the phone rings, and a robot voice reads the message. Obviously, this is not effective for d/Deaf people communicating with other d/Deaf people, but it was often used to communicate with hearing people/hearing establishments, as when setting up appointments.

Media About/Including Deafness

No media is perfect and unproblematic, but here are somethings I have seen that I can verify do at least a pretty good job -

CODA is a movie that features Deaf actors, ASL, and a story about growing up, family, and independence vs. interdependence. 

The Sound of Metal is a movie that features ASL and a story about identity, recovery, and hearing loss/Deaf gain.

A Quiet Place is a movie features ASL and Deaf actors, although Deafness itself is not necessarily integral to the story.

BUG: Deaf Identity and Internal Revolution by Christopher Heuer is a collection of essays by a Deaf man that discuss a wide range of topics. This book is not always up to modern standards of political correctness.

Train Go Sorry by Leah Hager Cohen is a memoir by the granddaughter of a Deaf man, which discusses the intersections of the hearing and Deaf worlds.

Far From the Tree by Andrew Solomon is a research book about the effect of horizontal identity on parent/child relationships and features a chapter on d/Deafness. This is a good look at how d/Deafness can impact familial relationships. Some aspects of the book are outdated, and it was written by a hearing author, albeit one who extensively interviewed Deaf and hearing parents of Deaf children.

If you made it this far, congratulations! Thank you so much for taking the time to read through my lil/not so lil primer :) If you have any questions, comments, concerns, or feedback, please feel free to hit me up! If you have any requests for a diagnosis or a disability you’d like me to write about next, I’d love to hear it. Happy writing!

[unadulteratedsoulsweets]

A DC X DP IDEA #22

Back in my day.

Imagine dis…

Alfred is a whole mystery to the Batfam that whenever he pulls out his shotgun we are in awe at this kickass badass British butler, on the other hand, we are always in the shadows of his past endeavors. We all knew he was a S.A.S. Armed Services, fighting in 15 different operations between ages 18 and 20. A skilled medical and front liner soldier who was decorated. He later joined MI5, as well as the secret forces of the Queen and later being knighted by Her Majesty.

He is silent as he comes by, he can out Batman the Batman despite Bruce learning from the greatest assassin of all time. He is calm, too calm for any situation to the point your subconscious asks if he had seen something wilder, more insane to consider an alien attack, a mutant crocodile attack every Tuesday is considered somewhat tame, or even the rise of global or universal threats that Alfred seemed to brush it off.

So, who is he?

…

Alfred Pennyworth had always been a mysterious figure. He had dedicated his life to serving the Wayne family and their caped crusader alter-egos as Bruce Wayne's loyal butler and the revered keeper of Wayne Manor. But Alfred had held a secret for decades, one that would finally come to light most unexpectedly.

Alfred was a teenager called Danny Fenton long before he donned the perfect suit and tie. He lived in the small town of Amity Park, which was riddled with secrets of its own. Danny was not your typical adolescent; he had a strange encounter with a ghostly gateway that had bestowed upon him unusual and otherworldly skills. He had protected Amity Park from vengeful ghosts and spectral threats thanks to his power to shift into a phantom hero known as Danny Phantom.

Danny had just recently been crowned as the crowned prince of the Infinite Realm a week after he had defeated the tyrant Pariah Dark who had attempted to rip off a space in the fabric of in-between just to suck in his little quaint town. It was determined by both the ancient and the Observants that it was better for him to finish his mortal life before he dawns on the crown, as he was still growing, he was still considered a baby ghost younger than Young Blood as his death was still recent.

But slowly the thoughts that he had kept behind his head are coming back to him. Jazz his beloved sister as well as the one who had raised her despite being a child herself who had no idea of raising a child, may analyze her all she wants but she could never sympathize nor connect with his inner thoughts of being one of the halfas. He died, he never really had the time to process it because he had to face the Lunch Lady just a few days after the accident. 

His friends, now looking at them closely, have seen that they both have some sort of guilt in their eyes. They both have seen him die amid the electrician, he can’t help but feel some sort of longing at the cemetery the north of Amity Park, he is too alive to have a grave yet too dead to be alive.

He thought he was getting there, changing the views of the people. To show the world that his kind is sentient but the people kept whispering. Shadows cast long by the looming specters sent chills down their spines. Every eerie wail or flicker of a ghostly presence filled them with dread. Their eyes widened in terror as the ethereal figures materialized before them. A hushed silence fell over the town when ghostly battles raged in the skies. Parents warned their children to stay indoors when the ghost alarms rang. Fearful whispers of the "Ghost Boy" circulated, both a hero and a phantom menace. 

The ghostly encounters left scars of fear etched in the minds of Amity Park's residents.

In the end, he was forced to leave his home dimension, why? It’s because the GIW have become more vicious more brutal at their hunting, With the sacrifice of both his friends and family they have shoved him into the portal, never to be seen again.

…

All bloodied and still injured he had landed in a period in the early 1900. He thought that he may have accidentally traveled back in time but when he saw too many conflicting events that he had learned during his high school days that didn’t happen during this time led him to believe that he had traveled a different dimension. Small ripples in the water created a tsunami of change in what he previously known as the past, when he was still in the streets gathering information, he had noticed that he landed in the middle of London during the early 1900s. Good enough that child labor laws are still not a thing so he can work with practically anyone without questions asked. The bad news is that his supposed great-grandfather's version in this dimension had already died, according to his family tree history during his science project in 4th grade his great-grandfather went to London to earn a few bucks before traveling back to America where he would meet his supposed great grandmother and have children. Since he died before he even went back to America the Nightgale-Fenton line died with him.

Luckily a barren couple took pity on him and took him in, since Danny can’t no longer bear his original last name, he embraced the new name from this nice couple who had taken him in. Danny may have felt guilty at the prospect or even the idea of replacing his family but he can’t help but think of it as a new beginning of his life. No one to hunt down his ghostly half, No GIW, and No fruit loop trying to turn him into his heir.

Alfred Pennyworth

During this time he did a lot of odd jobs, cleaning the inside of a chimney, mining, selling newspapers… etc. Sure, it was hard work and he can’t help but look at the children far younger than him taking in jobs far more dangerous just so they can shave something to eat. He can’t help but feel too blessed when he was back in his timeline. Warn food to eat under a sturdy roof to keep out the elements as well as education. Things that were too mundane, too common, that he now feels like a luxury. 

Over time he developed an accent as well as new mannerisms and vocabulary. 

So, when war broke out on the horizon his core ached at the notion of protection thus signed up in the military. 

Sure, he became the most feared soldier in the fields due to his using some of his ghostly abilities subtly. His enemies who stand in front of him call him The Vengeful Orphan, due to his avenging every soldier who seems to die at the hands of their enemies. 

Between the ages of 18 and 20, he served in the S.A.S. Armed Services, engaging in 15 different actions. A decorated medical specialist and front-line soldier. He then joined MI5, as well as the Queen's secret forces, and was knighted by Her Majesty.

…

As time passes by the ages, slowly but surely. He had already outlived his adoptive parents and friends of his. He still held the authority of being the officially crowned prince of the Infinite Realms. He had already explored the world experiencing the culture and history of this world.

At this time, he had already recovered enough ectoplasm to turn back to his ghostly prime and create a portal to the Infinite Realms. But something in him nagged, his core kept trying to tell him something when he was about to take a step inside the portal, but he didn’t seem to know why. His years as Phantom and Alfred Pennyworth taught him to listen to his guts, and it saved him multiple times, without looking back he stayed in this dimension until his mortal life perished.

It seemed that he didn’t have to find it for too long as he was approached by none other than Thomas Wayne with the preposition to be Wayne’s butler.

So, when little Bruce Wayne was born he couldn’t help but feel a little fond of the tyke. He reminded Bruce of himself when he was just a simple young boy before everything. When the fated, night came he tried to shield Bruce from everything, to have him resemble a somewhat normal life. 

That night he tucked in a teary-eyed Bruce into bed who had just witnessed his parent’s murder. He faced the ghosts of both Martha and Thomas who had been with the young master since the incident a few hours ago and tearfully promised the two ghostly couple that he would take care of Bruce. Both couples seemed to be in shock at their butler who had seen them but felt relief that their boy was in safe hands.

…

When his ward Bruce Wayne turned into a crime-fighting vigilante, he can’t help but softly snort at his outfit. Sure, he admits he had a worse outfit when he started as Phantom when he was just a young lad but he is willing to take anything other than a furry suit that fights crime at night. He has no right to criticize either since his alter ego is just him with an inverted color without a mask yet people seem to make no connection between him and Phantom, in his defense he is a young teen whereas Bruce is in his 20s. He just raised an eyebrow at his outfit and Bruce immediately changed the design to be a bit more sophisticated than just a Halloween costume of a bat.

…

So when Bruce starts to bring in orphans he can’t help but smile fondly as the manor is slowly filled with such joy from each child that seems to find a home in the large manor. He can't help but reminisce if this could have been his life if Vlad had learned to forgive Jack or if his parents and Amity Park just accepted him if the GIW didn’t exist. He thought one day when he was drinking tea with Jason, Jason who died and came back different, never broken. His grandchild who experienced his death in a slow yet painful way died and came back later. He knew there was something different with his grave but he chalked it up in being his ghostly sense sensing the ectoplasm around Gotham. He just wished he checked the grave even though it holds so much sentimental value to the dead. 

Don’t get him wrong the moment Jason came back to enact his revenge on B he was already aware something was in Gotham he just didn’t know at the time that it was Jason. He is more than happy to kill the Joker as he had taken mortal lives when he was serving the army but Bruce might notice and he still held fear at the idea of Dan.

After the entire revelation between his son and grandchild, he just welcomed back Jason into the manor as if nothing was wrong with the boy and prepared his favorite dish and snacks in the library whenever he visited.

…

Now it had been a long way since he entered this dimension, now the long table at the manor is filled with guests and children alike. His grandchildren are full of life despite what had life thrown at them. Dick was the first one to arrive and started, Barbara followed, Jason who took off the wheel, Tim with his brilliant mind with his worrying caffeine intake, Stephanie who fought with his father, Cassandra who started just to atone for the sin of killing her father yet became loyal and caring young lady and Damian who started to learn what humanity is like. Sure others had been emotionally adopted but all of them all have places in the manor.

…

His grandchildren as well as his pseudo son kept throwing him curious glances every time, He managed to seemingly appear behind them to notify them of dinner. He can also feel the envy of walking silently from the assassin-trained children. He can feel Bruce’s stare whenever he raises an eyebrow at some classified cases that are supposedly secured. He can hear their whispers as they exclaim to one another that he supposedly knew everything, of course, he knew everything the manor became his new haunt after a few years.

…

He already raised an eyebrow at the simultaneous alarm from every vigilante at the dinner table but imagine his surprise when he joined in looking over the Bat computer as Oracle barked out orders and instructions, as a familiar opponent showed itself.

A green glowing monster is wreaking havoc throughout Gotham it came from Central City and marched its way here to Gotham which became even more powerful due to the ectoplasm in the air. There is already notable damage from both cities as the rest of the heroes seem to work together to evacuate and stop the creature. The JLD attacks seem to have some effect but it was useless due to its minions that kept them occupied. Oracle is so focused on the situation and doesn’t notify their pseudo grandfather to disappear from behind her.

…

The entire JL is starting to feel hopeless as the green creature seems to raze Gotham as if the stone road is made out of water. Every magician and heavy hitter have been called but no one was able to put damage to the creature.

When all hopes seemed lost, they all heard a loud bang from a shotgun.

Alfred Pennyworth is standing on top of a rubble of concrete and metal, the butler of Batman, the pseudo father, and grandfather of the entire bat clan, also known as Agent A. Carrying his signature shotgun and a thermos that seems to strap to his hip like a belt. 

He kept firing round after round from his trusty old shotgun and pausing for a second to reload. He glanced at the heroes around and seemed to raise an eyebrow at the absolute massacre that he had just done to the creature’s minions.

As he paused to take another reload, he paused at movement and looked at the space in front of him and waited. The creature appeared roaring out in fury but seemed to pause the moment it laid eyes on Alfred. The creature seems to shake with uncertainty and fear. Every vigilante and hero present could see its eyes growing wide from shock and fear as well the cold sweat as Alfred raised an eyebrow at the creature as he slowly walked towards the creature with annoyance with every step.

Some heroes who had enhanced hearing could hear Alfred muttering about, back in his day blob ghosts were these cute and harmless things but now some up-start wannabe newly formed one seems to think he is all hot shot. 

He proceeds to scold the creature as if he had just caught one of his grandchildren sneaking their hands on the cookie jar and proceeds to take out the thermos and effectively catch the creature. As if the one responsible for the mess never existed in the first place.

Now the bat clan has rules when they are in the manor or the presence of Alfred and one of those rules is that there will be no swearing when he is around, but there is one word that seems to resound from each hero's mind.

What the fuck just happened?!?!

…

Now as you know I started to post less, now it is both from writer’s block and class being in the way.

PS: If someone out there wanted to continue or make a fic about this you are free to do so, don’t forget to tag me though.

[ghelgheli]

hey you might've been asked this before sorry if so, but have you read or do you have any thoughts on A short history of Trans Misogyny?

I have read it! I have a few thoughts.

I think it's a strong and important work that compiles historical archives into sharp analyses of how "trans misogyny" (using Jules Gill-Peterson's spacing) is not a recent phenomenon but a globalized structure with centuries of history. I also think it's flawed, for reasons I'll get into after a quick summary for those who haven't had the chance to read it yet.

JGP divides the book into three main chapters, the first on the notion of "trans panic". There, she traces how variants of this anxiety with the trans-feminized subject have presented—to deadly effect, for the subject—in such different settings as early colonial India, the colonization of the Americas, the racialized interactions between US soldiers stationed in the Philippines and the local trans women living there, and of course the contemporary United States itself. In every case she analyzes this "panic" as the reaction of the capitalist colonial enterprise to the conceptual threat that the trans-feminized subject poses; we are a destabilizing entity, a gender glitch that undermines the rigid guarantees of the patriarchal order maintaining capitalism. Punishment follows.

The second chapter is my favourite, and considers the relationship between transfeminine life and sex work. I posted a concluding excerpt but the thrust of the chapter is this: that the relegation of so many trans women and trans-feminized people to sex work, while accompanied by the derogation and degradation that is associated with sex work, is not itself the mere result of that degradation inflicted upon the subject. In other words, it is not out of pure helplessness and abjection that so many trans-feminized people are involved in sex work. Rather, sex work is a deliberate and calculated choice made by many trans-feminized people in increasingly service-based economies that present limited, often peripheralized, feminized, and/or reproductive, options for paid labour. Paired with a pretty bit of critical confabulation about the histories of Black trans-feminized people travelling the US in the 19th century, I think this made for great reading.

In her third chapter, JGP narrativizes the 20th century relationship between the "gay" and "trans" movements in north america—scare quoted precisely because the two went hand-in-hand for much of their history. She emphasizes this connection, not merely an embedding of one community within another but the tangled mutualism of experiences and subjectivities that co-constituted one another, though not without tension. Then came the liberal capture of the gay rights movement around the 70s, which brought about the famous clashes between the radicalisms of Silvia Rivera and Marsha P Johnson (neither of whom, JGP notes, ever described themselves as trans women) and the institutions of gay liberalism that desired subsumption into the folds of capital. This is a "remember your history" type of chapter, and well-put.

I think JGP is correct to insist, in her introduction, on the globalizing-in-a-destructive-sense effects of the colonial export of trans womanhood. It is, after all, an identity conceived only mid-century to make sense of the medicalized trans subject; and "gender identity" itself (as JGP describes in Histories of the Transgender Child) is a psychomedical concept conceived to rein in the epistemic instability of trans existence. This is critical to keep in mind! But I also think JGP makes a few mistakes, and one of them has to do with this point.

In her first chapter, under the discussion of trans misogyny in colonial India, JGP of course uses the example of the hijra. Unfortunately, she commits two fundamental errors in her use: she mythologizes, however ambiguously, the "ascetic" lives of hijra prior to the arrival of British colonialism; and she says "it's important to say that hijras were not then—and are not today—transgender". In the first place, the reference to the "ascetism" of hijra life prior to the violence of colonialism is evocative of "third-gender" idealizations of primeval gender subjectivities. To put the problem simply: it's well and good to describe the "ritual" roles of gendered subjects people might try to construe contemporarily as "trans women", the priestesses and oracles and divinities of yore. But it is best not to do so too loftily. Being assigned to a particular form of ritualistic reproductive labour because of one's failure to be a man and inability to perform the primary reproductive labour of womanhood-proper is the very marker of the trans-feminized subject. "Ascetism" here obviates the reality that it wasn't all peachy before (I recommend reading Romancing the Transgender Native on this one). Meanwhile, in the after, it is just wrong that hijra are universally not transgender. Many organize specifically under the banners of transfeminism. It's a shame that JGP insists on keeping the trans-feminized life of hijra so firmly demarcated from what she herself acknowledges is globalized transness.

My second big complaint with the book is JGP's slip into a trap I have complained about many times: the equivocation of transfemininity with femininity (do you see why I'm not fond of being described as "transfem"?). She diagnoses the root of transmisogyny as a reaction to the femininity of trans women and other trans-feminized subjects. In this respect she explicitly subscribes to a form of mujerísima, and of the trans-feminized subject as "the most feminine" and (equivalent, as far as she's concerned) "the most woman". Moreover, she locates transfeminist liberation in a singular embrace of mujerísima as descriptive of trans-feminized subjectivity. As I've discussed previously, I think this is a misdiagnosis. Feminization is, of course, something that is done to people; it is certainly the case that the trans-feminized subject is in this way feminized for perceived gender-failure. This subject may simultaneously embrace feminized ways of being for all sorts of reasons. In both cases I think the feminization follows from, rather than precedes, the trans misogyny and trans-feminization, and there is a fair bit of masculinization as de-gendering at play too, to say nothing of the deliberate embrace of masculinity by "trans-feminized" subjects. Masculinity and femininity are already technologies of gender normalization—they are applied against gender deviation and adapted to by the gender deviant. The deviation happens first, in the failure to adhere to the expectations of gender assignment, and I don't think these expectations can be summarized by either masculinity or femininity alone. I think JGP is effectively describing the experience of many trans-feminized people, but I do not think what she presents can be the universalized locus of trans liberation she seems to want it to be.

Now for a pettier complaint that I've made before, but one that I think surfaces JGP's academic context. In her introduction she says:

In truth, everyone is implicated in and shaped by trans misogyny. There is no one who is purely affected by it to the point of living in a state of total victimization, just as there is no one who lives entirely exempt from its machinations. There is no perfect language to be discovered, or invented, to solve the problem of trans misogyny by labeling its proper perpetrator and victim.

Agreed that "there is no perfect language to be discovered"! But JGP is clearly critical of TMA/TME language here. Strange, then, that less than ten pages later she says this:

this book adds the phrase trans-feminized to describe what happens to groups subjected to trans misogyny though they did not, or still do not, wish to be known as transgender women.

So JGP believes it is coherent to talk about "groups subjected to trans misogyny", which she thinks consists of the union of trans women and what she called "trans-feminized" groups. If this is to be coherent, there must be groups not subjected to trans misogny. So we've come around to transmisogyny-subjected and not transmisogyny-subjected. Look: you cannot effectively theorize about transmisogyny without recognizing that its logic paints a particular target, and you will need to come up with a concise way of making this distinction. But JGP dismissing TMA/TME with skepticism about "perfect language" and immediately coining new language (basically TMS/not TMS) to solve the problem she un-solved by rejecting TMA/TME... it smells of a sloppy attempt to make a rhetorical point rather than theoretical rigour. It's frustrating.

I have other minor gripes, like her artificial separation of "trans women" from "nonbinary people" (cf. countless posts on here lamenting the narrow forms of existence granted TMA people if we want recognition as-such!) or her suggestion that "a politics of overcoming the gender binary" is mutually exclusive from rather than necessarily involved with struggles around "prison abolition, police violence, and sex work". Little things that give me the sense of theoretical tunnel-vision. But I don't think all this compromises the book's strengths as a work of broad historical analysis. I would simply not take every one of its claims as authoritative. Definitely give it a read if you have the chance, especially for the second and third chapters.

[jmdbjk]

Mental gymnastics...

I am flipping out. That's all. Just my brain doing cartwheels and whatever those things are called where you flip between those high bars and let go for a breathless second and then grab onto reality again. Or this...

Too much Olympics these past few weeks I guess... anyway.

WARNING: POSSIBLE SPOILER ALERT! I may or may not mention scenes in detail and their outcomes during these long rambling messy posts beginning with the next sentence.

Before I get into it... kudos to the staff for keeping up with these two and for suffering many extremely anxious moments as Jimin and Jungkook drove themselves through NYC, as Jungkook and then both Jimin and Jungkook rode the motorcycle through traffic, and the few heart stopping moments when JK flipped his kayak over and then they took off down the river alone before staff caught up with them. Not to mention probably looking up the nearest ER/urgent care facility in case Jimin got too dehydrated from his bout with the stomach bug.

Seriously though, their lives and global headlines had to flash before their eyes when JK disappeared underwater under that kayak... so big applause for the staff/production crew for not shitting THEIR pants thirteen times too.

So here are some of my thoughts. I'll begin with the first episode...

Episode 1:

In the opening scene, I'm assuming this is Antoya Korean BBQ restaurant. They were talking about JK's sore throat and that he had to visit a medical facility. Jimin kept on about it. It seemed like JK's "stop babying me" attitude bubbled up a little bit. Let them be them. As you can see, JK adjusted Jimin's beanie so he could see his eyes. They were fine.

Pause and reflect: they didn't know what to expect with this idea of a travel show. The moment above happened on Thursday evening, July 13. Both of them were working. Jimin was still working on his concepts, photos, MV and whatnot, planning to finish everything for Muse in the coming months. Jungkook had a full schedule for promoting Seven which was dropping the next day. He had to get up early for Good Morning America concert in the park.

I'm stating all this for point of reference. Nothing is static. JK was in work mode: he had a performance the next day and also not feeling well himself. Jimin had been on a plane for 14 hours. Just keep these things in mind before jumping to conclusions.

In the next scene (the next day) back at the hotel after JK's done with his performance and when he's packing to go on this trip he's all in and ready to go. Hurry up Jimin!

Jimin asked him how the live performance went. As we know, the GMA live performance was mostly rained out. Before the storm came through, they quickly pre-recorded the performances before it would have been time for the live broadcast and then shut it down. Jungkook had to be driven quickly to the studio to be interviewed to fill the leftover time in the program that more of his live performance would have taken up.

Hearing Jungkook say "this isn't my first rodeo" was never going to be on any bingo card in my lifetime.

I don't know what he was scribbling on that iPad but it looked geometric. He was focused. Maybe it was something for the next week's performance, maybe it was a sketch for music show staging, trying to recreate that flower archway they saw at Antoya the night before? maybe he was doodling in Canva... we don't know.

Me either, Jimin... (this was the first of all the hilarious gems that begin to shower down on us).

They are both known to be perfectionists when it comes to their work. And we know they've also both performed when feeling less than 100% on that stage. Jungkook realized there were circumstances beyond his control and he took it in stride.

FYI, in New York City, they stayed at the Loews Regency on E. 61st Street in Manhattan. It is between Madison Ave. and Park Avenue and not far from Central Park. Swanky. The suite looks like the 2-bedroom "Park Avenue Suite" and runs $2100 a night... gasp. Yes, its the same suite where JK did his live after his rained upon GMA appearance. During this live he mentioned being poked with needles, IV's and shots in the butt as well as teasing us with what would become Are You Sure:

No, I don't think Jimin stayed in this suite with JK. Jimin's room had a smaller bathroom and a shower curtain instead of a glass shower door. Staff with camera woke him up.

To be that beautiful when rolling out of bed... anyway, I digress...

It truly was unplanned and spontaneous as if they were doing this with the idea of "let's try it and see if it can be viable." Even Jimin wasn't sure if any of this could be aired.

Once they got in the Jeep they started to find their groove. Being alone, just them, was what they needed. They could focus on what was ahead of them. The driving moments were some of the best for me.

We eventually learn that Jimin wasn't feeling well and I'm certain this is what Jungkook was telling Yoongi during that episode of Suchwita, along with the elbowing in the nose.

Seems like Jimin's stomach trouble started when they were at the first restaurant, the burger place. The bathroom visits continued at the brewery and into the evening at the campsite.

Jimin had some sort of stomach bug that kept him on the toilet a lot and he ran a little bit of a temp. I am sad that he wasn't feeling 100% when they were on the yacht the next day but he still seemed to enjoy it enough to find the humor in his situation. He was a real trooper.

It sure didn't stop him from eating. My man was very brave in that regard. Me... no way I'd be stuffing my face with a big greasy burger when at any moment I might need to make a run for the toilet.

They get back on the road and these are the moments that I wait for:

After arguing in satoori about who is the worst driver between them, they start shopping at Dick's.

And get recognized...

After shopping excursion at Dick's, they finally head to High Nine Brewery...

Jimin's first sample wasn't to his taste (again). His taste buds were probably a little off since he had the stomach thing going on... but JK's eyebrows say that his sample was pretty good.

They finally settle on a hard seltzer and a pale ale and relax for a little bit. Jungkook is still wondering what would make good subject matter to film. They are truly making it up as they go...

Jimin proceeds to explain and an interaction happens and I am not sure what to think about it:

I am going to end this post here because they are now on their way to the kayaks and that segment deserves its own post and I have too many screen shots of it to fit in this post.

[These are all my own opinions about what I am seeing and hearing them say and from what I am observing from the video. It's ok if your opinion is different from mine.]