#global medical point
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you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.
(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)
but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.
(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)
there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.
(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)
you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.
(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)
you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.
in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.
but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.
they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.
it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.
#spilled ink#warm up#can you tell what i'm mad about today specifically#i will say that there are a LOT of things that go into this. like a lot. this is ungendered and unspecific for a reason#it isn't just sexism. it's also racism. and ableism. and honestly classism.#and before a healthcare professional reads this as a personal attack: i understand ur burnt out#we are ALSO burnt out. your situation is also dire. this is not an attack on you.#this is a commentary on the incredible amounts of bigotry that lie at the heart of capitalism#where people have to pay money out of pocket to be told to fuck off.#your job is important. so is our humanity. and if you cannot accept that people are fucking mad as hell#at the industry - you are probably not listening .#anyway at some point im gonna write a piece about sexism specifically in medical shit#but i don't want terfs clowning in it bc they can't understand nuance#> it is true that ppl w/a uterus are more likely to experience medical malpractice & dismissal globally#> it is also true that trans people experience an equally fucked up and bad time in the medical field#> great news! the medical industrial complex is an equal opportunity life ruiner :)#(if you find it necessary to go into a debate about biology while discussing medical malpractice#i want to warn you that you're misunderstanding the issue. because guess what.#cis MEN might experience this. particularly black men. particularly disabled men.#so YES having a uterus can lead to more trouble for you. but this happens a LOT.#instead of fighting those ALSO experiencing your pain.... try working WITH them.#which btw. is like. actual feminism.)
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My fingers are crossed that now I’ve applied for a local GP I can FINALLY a) sort out my hip and b) finish the referral for a social worker. It would make such a huge difference.
#bad pain day so I’m trying to be Positive lol#pain turns me into a depressed bastard and a little bit mean so I’m very much not liking it#especially since my biggest fear is that I’m WELL past the point where physio could do anything besides make it worse#and the only other options are steroid injections or surgery#I don’t wanna do injections because of a lot of reasons but mainly because they don’t always work#but I REALLY don’t want surgery. not on my hip#fingers crossed it just feels worse than it is.#but even just having a support worker!!#someone who could help me with little tasks#remembering to pay bills to buy groceries and just give well. some support lol#on the gp application I said I didn’t have any mental health problems lol#they’ll turn you out and any complaint you make is just Depression or Anxiety#I may later down the road but nah.. it’s precarious#with my medical background I gotta be so careful about what I say#when there’s less than 70ppl globally with your condition it’s easy to get called a faker lol#bad pain day has made me freaked. plus I just CANNOT lose my job. I think that’s what tomorrow is gonna be about tbh#I’m already looking at other work just in case#god I CANNOT lose my job
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Its kind of insane like genuinely insane how many people on here have no idea what life is like for average people in the third world / global majority and the Neo-colonialism that creates those conditions to support conditions in the North and how insanely cruel they can be as the absolute baseline and the type of killing and death that maintains the boundaries between the north and the south.
Like tell me you've never met an immigrant or refugee without telling me. Do you genuinely not know what happens to people who get deported, or work in the farms or meatpacking factories that feed the North?? The child deaths in the border crossings? The mines all over the globe? The people that die from lack of baseline vaccinations and sanitation and healthcare trademarked by western companies? The literal MILLIONS of third worlders killed in the wars across the globe defending US economic hegemony? The agent orange, the land mines, the carpet bombing, the drones? What the fuck is wrong with you?
#mine#sorry bitchy posting#idk why I even read discourse on here anymore its mostly just beefing or more motivated by a specific shitty user or whatever.#idk but like we can accept that you can be poor and disabled and still have other privileges why is it not ok to point out the#overwhelmingly oppressive conditions the North holds the South in and the passport and supply chain and linguistic and exchange rate and#labor protections other such things that all citizens of the global North have closer access to than those of the South. What if it didn't#matter who was in charge of your country and no matter what liberatory things they wanted to do the IMF could still have you gutted and#economically force your country to cut your social programs and use national debt to put your entire population to work serving the#producing goods and raw materials that everyone in the global north consumes whether they have a choice or not.#It not like similar conditions don't exist in the north but its crazy to see people posting that imperial core privilege doesn't exist.#It fucking does.#and it grinds up the bodies of the south in million upon millions and it's fucking insane to act like its an imposition on you to even try#to care or understand. Borders are material and they fucking kill people. They fucking kill people#I literally know someone who almost died because of his non-residential status. His life was only saved because he happened to get diagnose#in a country that had a medical system that could treat him. He had to stay sick and dying and away from his family for 4 fucking years#because if he went home he would never be allowed back again. He was only able to stay because he had support from a vouching citizen frien#who could speak the language well. Then after he was cleared he was sent home and because he has a 'preexisting risk factor' he will never#be granted a work visa in the country again. If /when the illness relapses he is going to die without treatment.#It makes me fucking livid that people can discard the violence of borders so quickly. Borders fucking kill. And they kill in the millions.#The north runs of southern blood. That doesnt mean that northerners arent killed too. But its fucking crazy to act like no such axis exists#any american president would kill the same number of southerners without the destruction of the north-south extractive supply chain.#Im sorry about the spam lol. But this just pisses me off. HOW ARE YOU SO BLIND. How can you say these things and think youre a good person.#How can you say these things. How.
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Clinical Trials : Holistic Exploration of the Current State and Future Outlook
The global clinical trials market size is expected to reach USD 123.5 billion by 2030, expanding at a CAGR of 6.49 from 2024 to 2030, according to a new report by Grand View Research, Inc. An increase in the volume and complexity of clinical trials has been witnessed lately, which plays an important role in the R&D of new drugs and products. The market witnessed a decline of 6% in 2020 owing to the COVID-19 pandemic. However, the market is projected to recover from 2021 onwards. In addition, clinical trials have become increasingly costly, adding to the overall cost of developing a drug.
Clinical Trials Market Report Highlights
The phase III clinical trials segment dominated the market with a 53.3% share in 2023. This can be attributed to the complexity of this phase
The interventional studies segment dominated the market in 2023. It is one of the most prominent methods used in clinical trials in the study design segment owing to the increasing demand for the intervention for clinical trials by researchers
North America held 50.3% of the market share in 2023. Favorable government initiatives and the presence of a large number of players in the U.S. that offer advanced services are responsible for market growth
Asia Pacific region is anticipated to grow at the fastest CAGR over the forecast period owing to the increasing patient pool and cost-efficient services.
For More Details or Sample Copy please visit link @: Clinical Trials Market Report
The increasing need for developing new drugs for chronic diseases, such as cancer, respiratory disorders, diabetes, cardiovascular diseases, and others, is creating immense pressure on the healthcare industry. The COVID-19 pandemic and the increasing demand for developing a suitable treatment are driving the market. The high number of people affected by the disease further depicts an increasing need for therapeutics & vaccines. Currently, there are 288 therapeutics and 106 vaccines under development, out of which, nearly 7.0% of therapeutics are in Phase IV, 21.0% in Phase III, and 43.0% & 13.0% in Phase II & Phase I, respectively.
The pandemic has resulted in the global disruption of traditional onsite clinical trials. Hence, regulatory bodies worldwide have undertaken various initiatives for fast-tracking clinical trials for the development of innovative solutions. One such instance is Solidarity, an international clinical trial launched by the WHO to find effective treatment against COVID-19. Although the pandemic has forced many medical device & drug developers to revise the approach to such crises, integrating best practices within clinical trial procedures & adapting to virtual trials, which can support the continuous development of therapeutics.
ClinicalTrials #HealthcareResearch #MedicalInnovation #DrugDevelopment #PatientRecruitment #Biopharmaceuticals #ClinicalResearch #RegulatoryCompliance #DataManagement #PatientEngagement #PrecisionMedicine #TherapeuticTrials #CROs #ClinicalResearchOrganizations #GlobalHealth #ClinicalStudyDesign #PharmaceuticalIndustry #BiotechResearch #ClinicalEndpoints #HealthTechIntegration
#Clinical Trials#Healthcare Research#Medical Innovation#Drug Development#Patient Recruitment#Biopharmaceuticals#Clinical Research#Regulatory Compliance#Data Management#Patient Engagement#Precision Medicine#Therapeutic Trials#CROs#Clinical Research Organizations#Global Health#Clinical Study Design#Pharmaceutical Industry#Biotech Research#Clinical End-points#HealthTech Integration
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watching football through a leftist intersectional feminist lens is so painful i could write a sub stack essay about this
#at our point in society where u have to consume everything the eyes of intersectional feminism you lose so much joy in experiences#through the eyes **#in football you have to deal with the toxic male fan majority who do not care if you live or die#then you have the corrupt politics of fifa#then the individual footballer politics (& more specifically the ones heightened when global events occur)#i can’t even get into the violent abusers and rapists we have to watch enjoy their careers and get paid millions every month#despite the fact they are being investigating by police forces across the globe!#what else#oh maybe the lack of funding and support and even acknowledgment of the women’s game#or the absolute disgusting lack of funding in their medical departments and sciences#how about the violence male fans participate in?#even as far as murdering opposition fans…#female fans acting vile towards wags of course of course#very outright and open homophobia towards literally every sexuality see nobody is safe there …#and the racism which is so indescribable#and it’s everywhere#and this is all welcomed by the mega wealthy owners#because they don’t care about anyone#sometimes it’s very hard to enjoy ‘the beautiful game’#okay i think i’m done now
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Listen. I hope I’m wrong. I hope in 1-3 days you all can point at this post and be like “look at this idiot for being paranoid.” I do. But I feel like the writing’s on the wall. There are no paths forward without Pennsylvania, and that gap is too large.
I hope the non-voters are happy. Legitimately. I hope the Green Party is happy. For real. I hope this outcome brings them the joy they hoped it would. I hope they don’t come to regret the next 2-4 years. I hope they’re at peace.
I hope Europe isn’t forced to change their stance on Ukraine like many Prime Ministers have warned they would. I hope there are Palestinians left in Gaza to liberate after Trump “finishes the job” and gets his real estate property. I hope the number of queer folk killed, whether individually or systematically, in the coming years is minimal. I hope the number of women killed by inaccessibility to medical care is minimal. I hope the number of disabled people who face financial hard times is minimal. I hope we genuinely can cruise through these next 4 years. I hope I’m still around to try and fix this in 2-4 years.
I hope the message the non-voters and Green Party sent is actually received. I hope they didn’t send the message to Democrats that conservatism is the way to win and what we should be embracing.
I hope that nothing in Project 2025 is completed. I hope we win at least one branch to throw a stick in the gears of fascism. I hope Trump bombs his second term so poorly that 2026 wipes the GOP out of the House and Senate.
I hope there’s still a global superpower to fix in 4 years. I hope that the corruption we’ve allowed to thrive tonight doesn’t infect our neighbors across the Atlantic like they fear it will.
I still hope for a better future. But I don’t believe that future is going to happen this time. I’m going to try to go to bed.
#rambles#politics#american politics#elections#election#election 2024#us elections#presidential election#general election#2024 election#2024 presidential election#democracy#green party
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this might be a silly question, but. ive recently learned more about the devastating effects of sanctions on countries like cuba, dprk, or venezuela, and how much unnecessary suffering they cause among the population, especially when it comes to food or medicine shortages. but then bds also calls for sanctions against israel, and im wondering, is there any meaningful difference between that and the sanctions already imposed by the US on other countries? i feel a bit hypocritical when i argue against sanctions while at the same time supporting bds, i feel like they are very different situations with different outcomes but i lack the understanding to really grasp how they are different, if that makes any sense
Sanctions are the systematic blockade of all or certain sectors of trade under military or economic threat by the sanctioner (mostly just the USA in recent history) to any potential agents who might try to ignore the sanction. These sanctions typically include things like medical supplies, food if the country is dependent on imports (like most countries who get sanctioned), electricity, fuel, both light and heavy industry, agricultural products and machines, the global financial system, and other such key sectors. These sanctions, overwhelmingly, only serve to impoverish the country, create undue suffering and political strife. This political strife/instability is usually the main goal of sanctions, to destabilize the target government. However, this political instability more often than not does not result in a magical restoration of "democracy" or "human rights", it usually leads the country down a path of further isolationism and political violence that only worsens its general situation. It also makes it much easier for factions like ISIS to gain popularity and support, since people are desperate. Sanctions are inhumane measures which only makes a country suffer for no good reason. The sanctioners know this, they don't care, and I'd wager that suffering is often the actual point of these sanctions. What has the 60 year old blockade achieved in Cuba? It has only caused pointless poverty, and the stated goal of the sanctions, which is to ultimately remove the communist government, has failed, is failing, and Cuba is managing to make due with what they have.
BDS call for sanctions mostly in regards to military equipment and related products/services, for NATO to stop aiding the genocide, or the banning of Israel from international events such as the olympics. No Israeli will ever go hungry because they no longer get European-made ordinance or because they don't get to participate in Eurovision. This is what BDS says in their Sanctions and governments campaign (which is behind two menus, this is also not the main focus of BDS, by far):
The BDS movement calls for sanctions against Israel, similar to the sanctions that were imposed against apartheid South Africa. These sanctions could include a military embargo, an end to economic links and the cutting of diplomatic ties. In the meantime, the BDS movement is calling for states to take steps to meet their legal obligations not to be complicit in the commission of particular Israeli crimes and not to provide recognition, aid or assistance that help Israel maintain its regime of settler colonialism, apartheid.. This includes, for example, the obligation for states to immediately end to all trade that sustains illegal Israeli settlements in the Occupied Palestinian Territory and the suspension of free trade agreements and other bilateral agreements with Israel.
Notice the greater emphasis on military and diplomatic ties, and how economic/trade sanctions are only called for when it «sustains illegal Israeli settlements in the Occupied Palestinian Territory». Sure, this will (if it is ever adopted by Israel's significant trade partners) cause some suffering for the poor illegal settlers who had just moved into their shiny new apartment blocks built atop acres of land that sustained the surrounding Palestinian villages. The mere existence of these settlements cause more suffering than any sanction could ever cause.
Calling for these sanctions against Israel, which again, don't even come from comparable agents, are both less harmful towards the total population of Israel, and occur in a completely different context. I'm not going to pretend I care about the wellbeing of settlers whose houses didn't even exist 10 years ago. If these sanctions ever do occur in a significant enough scale (dubious), and those settlers don't want to find themselves in a food desert because Carrefour closed all their stores in the west bank, they shouldn't have moved into land stolen from a people facing genocide in the first place. We're also wagering hypothetical and non-global suffering against the now more than 100,000 dead Palestinians in Gaza in the past year, not even counting those who died ever since the first Nakba.
Like BDS points out, these types of grassroots and targeted boycotts/sanctions worked in South Africa, and the white South Africans didn't even suffer that much. Wager these short-lived and targeted sanctions against these other half-century long sanctions sustained by the US' strongarm policy that have prevented basically anything from getting into Cuba or the DPRK.
While those two things are both called sanctions, they have radically different objectives, methods, range, timescale, and character. I can't reiterate this enough, the North Korean collective farmer and the Israeli settler in the west bank have nothing in common when it comes to their position. Only one of them is complicit in genocide through their own actions, only one of them has any degree of blame, and only one of their governments is actually doing anything that warrants any kind of international action. And again, the BDS strategy focuses much more on military sanctions. Let's also be practical for a second, and acknowledge that the US is never going to withdraw their support for Israel, and especially will never sanction Israel. Israel is simply never going to face the same kind of sanctions that Venezuela or Cuba are facing, nor with the same severity, nor with the same restrictions on products essential for life.
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at this point, the US is transparently not investing in its global competitiveness, in its citizens' intellect. nor is it investing in the general welfare of its citizens, whether that's housing, medication, food etc. like-- isn't so much a COUNTRY as it is a money laundering scheme where the idea of "freedom" makes millions of citizens happy to have to go in debt to the upper class to buy things from the upper class to remain middle class ¿ it's like some crazy sealed ecosystem where eventually it must reach either an equilibrium or go completely sideways and um. it's not looking like the former
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own 2 cents about cure autism
autism cure research, generally not coming from point of, those with it wanting to improve life this way. but more so—people around them believe it what they want it what they need it improve life, and, uncured autism seen as … difficult for people around them, expensive for government to provide services, take up resources in medical places, etc.
majority autistic people *in actually autistic community, who understand this topic, & can talk about their opinion* don’t want whole cure
there not-small-group of autistic people who cannot reliably tell you what they think about this, or in way that easily understood (can’t communicate, can’t understand, etc). they need be remembered in this conversation (& arguably centered… bc they gonna be more affected. see below)
having said that. there exist autistic people of all types who would want cure for own autism. out of those have seen myself, majority of them [high support needs / nonverbal or level 2/3 or diagnosed severe or significant symptoms of some sort] whose life extremely different from peers because of it (& like majority of their problem not caused by “society” & won’t disappear if society & capitalism not exist anymore). it how they feel about their own autism, n feel counterproductive in “educating” them about their own (clearly personal and upset) feeling about what they want do with own disorder, especially since they not funding cure research or whatever. but—
autism, developmental disability that start in childhood, famous for be the “be treated as can understand and make own decisions” and “have autonomy respected” and “not ever forced coerced do anything” and “not force abusive therapy to make them appear ‘normal’ ” disorder. (sarcasm) — don’t really believe we as society are at place where we would actually respect “only for people who want it. won’t force it on people who not want it”.
aka. if cure is post-natal, AKA happen after birth… they will directly or indirectly force cure on autistic people
force post-natal autism cure will disproportionately impact those who… higher support needs, diagnosed level 2/3, diagnosed moderate severe, diagnosed low functioning, diagnosed comorbid intellectual disability or global developmental delay, diagnosed comorbid genetic developmental disability, nonverbal… diagnosed children, in conservatorship, ward of state, in prison, generally not fully legally allowed have final say in decision making… visibly autistic, have/said to have severe behavioral issues, BIPOC especially Black people… (incomplete list)
which. not to say autistic people who not any of these won’t be affected at all. because will. but as a whole, people on that list as a collective group, will be more impacted, more coerced, more forced, even won’t be given choice, to take cure (maybe won’t even be told was given cure), over people not on that list as a whole.
am going emphasize that autism is developmental disorder that start in childhood & children get diagnosed with it & children legally not final say in make decision & children very easily talked into agreeing without full informed decision & those diagnosed as children more likely be [higher support needs / nonverbal / more significant symptoms] (EDIT: at time of diagnosis) because those most noticeable earliest + global developmental delay then catch up later on happens (to vastly simply it to a fault, quoting someone, “no shit they high support needs, they children.”)
can also see welfare slowly not covering uncured autistic people, insurance decrease / deny / make harder coverage for autism related services other than cure, schools & esp special education less support for autism, etc. general official resources for autism decreasing (which. not much to begin with even pre-cure), which again impact all autistic people but especially list above… oh and poor people. can also see stuck in limbo of “will not get support & welfare if uncured autistic, but no money to cure” because this shit will be expensive
when this much at stake (aka if there no resource for keep be autistic, n resources locked away only able get after cure), when big percentage of autistic people cannot reliably show informed consent in some way (cannot reliably communicate, cannot reliably show they understand, or literally not allowed have decision capacity legally, etc)… if an autistic person say yes they agree. actual willing yes? not coerced? not misled? not forced into it?
autism & autistic people (& by extension, care people they depend on) don’t have enough support to begin with. in this current reality without cure lol. can we focus on that too pour as much money in that too — let’s not talk autism’s inherent quality of life until you give all autistic people as much care as they need & for it be freely n easily available
don’t really think current science have enough tech & resource cure autism like this. autism is complex disorder with complex sources & hard to say if current what called “autism” based on behaviors & internal reported symptom not actually group of different disorders.
if cure pre-natal (e.g genetic identification & abortion. anti choice unkindly DNI) - see: down syndrome
however: finding genetic cause =/= cure. find genetic cause can easily lead to find cure research. but should be clear that they not equal to eachother, not automatic mean eachother.
um. missing many things probably
TL;DR. don’t think right now society at place where… have widespread enough, nuanced enough, critical enough, & enough awareness/acceptance/understanding of ALL autism (and disability as a whole).
enough support for autistic people for autism-related needs & general needs (financial, food, etc).
world where autistic people who can make own decisions about self actual able make own decision about self, & world where autistic people who genuinely can’t (for now or ever) actually protected from harm
and honestly don’t think we have enough scientific and medical advancement/knowledge/ability
etc
to actually make sure this won’t go haywire
.
idk if anyone can follow this
autism issue is disability justice is cross-movement justice. autism issue depends on liberation of so many groups of people (like welfare reform, prison reform) 👍
follow up
#absolute NOT plain language god idk how do that#complex language#actually autistic#actuallyautistic#autism#autistic#loaf screm#long post#autism cure conversation
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¡¿ Christmas in Gaza ?!
All the occasions are passing by, everyone in the planet is celebrating the new year but in Gaza time stopped on October 7th, where the devastating war began!
We give our child martyrs as gifts to heaven, as a sacrifice against global injustice, one day we will reach freedom, we wish you a beautiful Christmas but do not forget the children of Gaza in your prayers 🙏🏼🫂🌲🍉
Our Christmas is under bombings and deadly cold, our Christmas is one more day of suffering 😓
The Palestinian Central Bureau of Statistics said that the Israeli forces kill 4 children every hour in the Gaza Strip, while UNICEF said that more than 600,000 children in gaza are suffering from hunger, fear and cold. The Israeli aggression on the Gaza Strip last October, there are 17,850 children, constituting 44% of the total number of martyrs. He pointed out that more than 45,000 Palestinian children in the Gaza Strip are currently living without their parents or one of them.
Therefore, I can -even if I have serious health problems due to poor diet (vomiting of blood and stomach ulcers) I try to support the children and the Gazan people 🍉
My family is an example of the suffering we are going through in genocide, it destroys my heart every day to see my relatives dying of hunger and cold 😓
Here you can support my family 👇🏻🍉
#stop the genocide#gaza#free gaza#gaza genocide#gaza strip#gazaunderattack#israel is committing genocide#palestinian genocide#free palestine#from the river to the sea palestine will be free
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Following some unhinged debates in the intersex tags and someone is dismissing some intersex people's claims/experiences saying "lmao what kind of fucking country did you grow up in where teens get given hormones by force like shut up that's a TERF narrative lmao 'they're transing the kids' lmao that doesn't happen". I just really need people to not be USbrained. I know in the US the boogeyman of hormones forced on kids is a transphobic talking point and transactivism fights to show how that really doesn't actually happen but also. There is a rest of the world, especially the global south, where intersex people or other people with deviations in sexual characteristics do in fact often get given HRT upon puberty, sometimes ages as early as 8/9. And it's not always or even often coercive in the literally physically violent sense, but it very often is not INFORMED consent, because a lot of children don't KNOW they are intersex, and sometimes parents with poor literacy and education barely understand the situation themselves. "You're just a little girl/boy but you have an illness and you need to take these pills or these shots otherwise you'll have problems like grow breast tissue/grow a beard when you shouldn't" is a very common experience for intersex teens in countries without well-regulated medical systems that have strict guidelines around intersex issues.
Please stop being "lmao that doesn't happen, because it doesn't happen in California which is in fact the universe."
#intersex#queer politics#actually intersex#70% of intersex people are also trans it's driving me insane that people keep creating entirely artificial friction between#trans and intersex politics like mate the interests are entirely aligned what are you DOING
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hey you might've been asked this before sorry if so, but have you read or do you have any thoughts on A short history of Trans Misogyny?
I have read it! I have a few thoughts.
I think it's a strong and important work that compiles historical archives into sharp analyses of how "trans misogyny" (using Jules Gill-Peterson's spacing) is not a recent phenomenon but a globalized structure with centuries of history. I also think it's flawed, for reasons I'll get into after a quick summary for those who haven't had the chance to read it yet.
JGP divides the book into three main chapters, the first on the notion of "trans panic". There, she traces how variants of this anxiety with the trans-feminized subject have presented—to deadly effect, for the subject—in such different settings as early colonial India, the colonization of the Americas, the racialized interactions between US soldiers stationed in the Philippines and the local trans women living there, and of course the contemporary United States itself. In every case she analyzes this "panic" as the reaction of the capitalist colonial enterprise to the conceptual threat that the trans-feminized subject poses; we are a destabilizing entity, a gender glitch that undermines the rigid guarantees of the patriarchal order maintaining capitalism. Punishment follows.
The second chapter is my favourite, and considers the relationship between transfeminine life and sex work. I posted a concluding excerpt but the thrust of the chapter is this: that the relegation of so many trans women and trans-feminized people to sex work, while accompanied by the derogation and degradation that is associated with sex work, is not itself the mere result of that degradation inflicted upon the subject. In other words, it is not out of pure helplessness and abjection that so many trans-feminized people are involved in sex work. Rather, sex work is a deliberate and calculated choice made by many trans-feminized people in increasingly service-based economies that present limited, often peripheralized, feminized, and/or reproductive, options for paid labour. Paired with a pretty bit of critical confabulation about the histories of Black trans-feminized people travelling the US in the 19th century, I think this made for great reading.
In her third chapter, JGP narrativizes the 20th century relationship between the "gay" and "trans" movements in north america—scare quoted precisely because the two went hand-in-hand for much of their history. She emphasizes this connection, not merely an embedding of one community within another but the tangled mutualism of experiences and subjectivities that co-constituted one another, though not without tension. Then came the liberal capture of the gay rights movement around the 70s, which brought about the famous clashes between the radicalisms of Silvia Rivera and Marsha P Johnson (neither of whom, JGP notes, ever described themselves as trans women) and the institutions of gay liberalism that desired subsumption into the folds of capital. This is a "remember your history" type of chapter, and well-put.
I think JGP is correct to insist, in her introduction, on the globalizing-in-a-destructive-sense effects of the colonial export of trans womanhood. It is, after all, an identity conceived only mid-century to make sense of the medicalized trans subject; and "gender identity" itself (as JGP describes in Histories of the Transgender Child) is a psychomedical concept conceived to rein in the epistemic instability of trans existence. This is critical to keep in mind! But I also think JGP makes a few mistakes, and one of them has to do with this point.
In her first chapter, under the discussion of trans misogyny in colonial India, JGP of course uses the example of the hijra. Unfortunately, she commits two fundamental errors in her use: she mythologizes, however ambiguously, the "ascetic" lives of hijra prior to the arrival of British colonialism; and she says "it's important to say that hijras were not then—and are not today—transgender". In the first place, the reference to the "ascetism" of hijra life prior to the violence of colonialism is evocative of "third-gender" idealizations of primeval gender subjectivities. To put the problem simply: it's well and good to describe the "ritual" roles of gendered subjects people might try to construe contemporarily as "trans women", the priestesses and oracles and divinities of yore. But it is best not to do so too loftily. Being assigned to a particular form of ritualistic reproductive labour because of one's failure to be a man and inability to perform the primary reproductive labour of womanhood-proper is the very marker of the trans-feminized subject. "Ascetism" here obviates the reality that it wasn't all peachy before (I recommend reading Romancing the Transgender Native on this one). Meanwhile, in the after, it is just wrong that hijra are universally not transgender. Many organize specifically under the banners of transfeminism. It's a shame that JGP insists on keeping the trans-feminized life of hijra so firmly demarcated from what she herself acknowledges is globalized transness.
My second big complaint with the book is JGP's slip into a trap I have complained about many times: the equivocation of transfemininity with femininity (do you see why I'm not fond of being described as "transfem"?). She diagnoses the root of transmisogyny as a reaction to the femininity of trans women and other trans-feminized subjects. In this respect she explicitly subscribes to a form of mujerísima, and of the trans-feminized subject as "the most feminine" and (equivalent, as far as she's concerned) "the most woman". Moreover, she locates transfeminist liberation in a singular embrace of mujerísima as descriptive of trans-feminized subjectivity. As I've discussed previously, I think this is a misdiagnosis. Feminization is, of course, something that is done to people; it is certainly the case that the trans-feminized subject is in this way feminized for perceived gender-failure. This subject may simultaneously embrace feminized ways of being for all sorts of reasons. In both cases I think the feminization follows from, rather than precedes, the trans misogyny and trans-feminization, and there is a fair bit of masculinization as de-gendering at play too, to say nothing of the deliberate embrace of masculinity by "trans-feminized" subjects. Masculinity and femininity are already technologies of gender normalization—they are applied against gender deviation and adapted to by the gender deviant. The deviation happens first, in the failure to adhere to the expectations of gender assignment, and I don't think these expectations can be summarized by either masculinity or femininity alone. I think JGP is effectively describing the experience of many trans-feminized people, but I do not think what she presents can be the universalized locus of trans liberation she seems to want it to be.
Now for a pettier complaint that I've made before, but one that I think surfaces JGP's academic context. In her introduction she says:
In truth, everyone is implicated in and shaped by trans misogyny. There is no one who is purely affected by it to the point of living in a state of total victimization, just as there is no one who lives entirely exempt from its machinations. There is no perfect language to be discovered, or invented, to solve the problem of trans misogyny by labeling its proper perpetrator and victim.
Agreed that "there is no perfect language to be discovered"! But JGP is clearly critical of TMA/TME language here. Strange, then, that less than ten pages later she says this:
this book adds the phrase trans-feminized to describe what happens to groups subjected to trans misogyny though they did not, or still do not, wish to be known as transgender women.
So JGP believes it is coherent to talk about "groups subjected to trans misogyny", which she thinks consists of the union of trans women and what she called "trans-feminized" groups. If this is to be coherent, there must be groups not subjected to trans misogny. So we've come around to transmisogyny-subjected and not transmisogyny-subjected. Look: you cannot effectively theorize about transmisogyny without recognizing that its logic paints a particular target, and you will need to come up with a concise way of making this distinction. But JGP dismissing TMA/TME with skepticism about "perfect language" and immediately coining new language (basically TMS/not TMS) to solve the problem she un-solved by rejecting TMA/TME... it smells of a sloppy attempt to make a rhetorical point rather than theoretical rigour. It's frustrating.
I have other minor gripes, like her artificial separation of "trans women" from "nonbinary people" (cf. countless posts on here lamenting the narrow forms of existence granted TMA people if we want recognition as-such!) or her suggestion that "a politics of overcoming the gender binary" is mutually exclusive from rather than necessarily involved with struggles around "prison abolition, police violence, and sex work". Little things that give me the sense of theoretical tunnel-vision. But I don't think all this compromises the book's strengths as a work of broad historical analysis. I would simply not take every one of its claims as authoritative. Definitely give it a read if you have the chance, especially for the second and third chapters.
#ask answer#jules gill-peterson#(i haven't been asked this before ty for asking <3 🐐)#note that this was mostly off the cuff except what i had taken pictures of bc i left the book in toronto for my mom to read
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Writing Deaf Characters
I am making this a series now so pls drop requests if there is something you’re curious about!
Disclaimer: This is all based on personal experience and research, all of which relate to the American Deaf experience. It’s not perfect, nor is it representative of a global experience of d/Deafness. If you plan to write a d/Deaf or hard of hearing character, please do your own research! This is intended to give people a few ideas about where to start.
Vocab
Deaf = Refers to the cultural experience of being deaf and immersed in Deaf communities.
deaf = Inability to hear some or all sound.
Profoundly deaf = Inability to hear almost all or all sound.
d/Deafblind = Inability to hear some or all sound and as well as having some level (usually high) of visual impairment.
Hard of hearing or HOH = A person whose inability to hear may not rise to the level of deafness or profound deafness, or simply may not identify with the term.
Deaf of deaf = A Deaf child born to Deaf parents.
CODA = Child Of Deaf Adults. This refers to hearing children, not d/Deaf children.
Manualism = Refers to the belief that d/Deaf children should be taught only sign language and should not be taught or expected to learn to speak.
Oralism = Refers to the belief that d/Deaf children should be taught only to speak and should be discouraged from learning or using sign language.
Bilingual-bicultural or bi-bi education = A school of thought that combines oral and manual education for d/Deaf children.
Mainstreaming = The belief that d/Deaf children should be educated in the same schools and classrooms as hearing students. (More widely refers to the belief that disabled students in general should be educated in the same schools and classrooms as nondisabled students.)
Deaf gain = The Deaf community’s answer to the term “hearing loss.” Rather than losing hearing, a person is said to be gaining Deafness.
Cochlear implant/CI = A medical device implanted into the inner ear which (debatably) produces sensation that is (somewhat) analogous to hearing.
American Sign Language or ASL = An American system of communication consisting of hand shapes, hand movements, body language, facial expressions, and occasionally, vocalizations.
Signed Exact English or SEE = A manner of communicating that directly translates English words into signed equivalents.
Home sign(s) = Signed communication that is specific to the signer’s home or community, which may not exist or be recognized in the wider world.
Identity First Language or IFL = A system in which someone is described first by an identifier that they choose and feel strongly connected to. Examples include describing someone as an Autistic woman, a disabled individual, or a Deaf man.
Key Elements of Deaf History
Can’t emphasize this enough - this is a VERY abbreviated list! It is also not in order. Sorry. That being said:
For a long time in America, Deaf children were not educated, nor was it considered possible to educate them. When this did change, American deaf children were educated in institutions, where they lived full-time. These children were often taken from their families young, and some never regained contact with their families. Some died and were buried at these institutions, all without their families’ knowledge.
In the early 20th century, oralism became popular among American deaf schools. This mode of teaching required lip reading and speech, no matter how difficult this was for students, and punished those who used or attempted to use sign language. Pure oralism is now widely considered inappropriate, outdated, and offensive.
Hopefully you’ve gleaned this from the above points, but d/Deaf schooling, education, and the hearing world’s involvement are a very sensitive subject. Proceed with caution. It’s unlikely your d/Deaf character would have a neutral relationship with schooling.
Helen Keller is probably the most famous deafblind person in America. In her time, she was also known for being a socio-political activist, a socialist, and a vaudeville actress. There are dozens of other famous d/Deaf people who are a quick Google search away. Give your Deaf character Deaf heroes, please.
The Americans with Disabilities Act, or ADA, was passed in 1991, and represented a landmark victory for disabled activists in America. Among its provisions were closed captioning for Deaf individuals, ASL interpreters for public services, and the right for d/Deaf children to attend accessible, accommodating public schools. The ADA is a HUGE deal. It’s also not perfect.
In 1961, cochlear implants were invented. I was going to write more about cochlear implants here, but it’s too long. New section.
Cochlear Implants
Massively massively massively controversial in the Deaf community. Always have been, potentially always will be. For people who strongly identify with Deafness and the Deaf community, CIs are an attack on their identity, their personhood, and their community’s right to exist.
Do not allow people to “hear.” The input that a person receives from CI can, with physical therapy, training, and time, be understood and processed in a similar way to sound. This does not mean it would be recognizable to a hearing person as sound. It is often described by people who have them as being metallic, buzzy, or robotic. YouTube is a great resource for sound references.
In order for a cochlear implant to be effective, a personal will have to participate in years of training and therapy to correct process, understand, and interpret the feedback given by the CI. This is not negotiable. Even if your character just lost their hearing in an accident last week, a CI will not allow them to instantaneously regain that hearing. Nothing that currently exists in the real world will do that.
CIs, to be most effective, are almost always implanted when the recipient is very young. This decision is often made by hearing parents. This, again, is massively controversial, as Deaf activists argue that it violates the child’s bodily autonomy and is inherently anti-Deaf.
A cochlear implant, once placed, irreparably destroys any residual hearing that the recipient may have had. This is because it penetrates the inner ear in order to function. This residual hearing cannot be regained, even if the cochlear implant is not used.
Deaf people do choose to get cochlear implants of their own accord. Many d/Deaf people are very happy with their cochlear implants! It is still a highly charged choice in light of the political history surrounding d/Deafness and hearing.
Notes About American Sign Language
ASL is not a signed version of English. It is a distinct language, with its own vocabulary, slang, and grammar. Just a sentence would not be constructed the same way in Russian, Spanish, or Tagalog, a sentence in ASL would not be a direct translation of its English equivalent.
Deaf people have historically lower rates of literacy. This is not due to a lack of intelligence; it is because ASL and English are two different languages. ASL has no written equivalent. In order to be able to read or write, d/Deaf children must learn an entirely different language. This means that it is not realistic to always be able to communicate with d/Deaf people through writing.
As ASL is a visual language, many signs started out as very literal gestures. This means that many older signs are continuously being phased out as they or their roots are recognized as stereotypical or offensive. Please be careful in researching signs. I recommend Handspeak or Signing Savvy for accurate, relatively up-to-date information.
Many online “teachers” do not have credentials to teach ASL, and especially due to the prevalence of “baby sign,” home signs, invented signs, or false information spreads unchecked. If you see multiple different signs advertised for the same English word, please be diligent in checking your sources.
Not every English word has a distinct signed equivalent, and not every sign has an English equivalent.
SEE is almost never used by Deaf people. It’s rarely used and is generally thought of as a “lesser” version of both English and ASL.
ASL is a complete, complex, nuanced language. A character would not switch into SEE for a technical conversation or really any reason. Complex ideas, technical terms, and even poetry can all be expressed in American Sign Language.
Just like in English, there are some signs that are only considered appropriate for certain people to use. For example, the sign for “Black” when referring to a Black person has a modified version that is only used by Black signers. This does not mean it is a slur or the equivalent of a slur. It is a sign reserved for Black signers referring to other Black people.
Things to Consider/Avoid/Be Aware Of
I hesitate to tell anyone to avoid anything, because I don’t think I have that authority. That being said:
The Deaf community has a complicated history and relationship with cochlear implants and the concept of being “cured.” What message are you sending when you write a story in which a d/Deaf character is “cured” of their d/Deafness?
Generally speaking, d/Deaf people do not identify with the “disabled” label. Each person has their own preferences, and those preferences should always be respected. Your character(s) may choose differently than their real life community, but you should put thought into why that is.
Generally speaking, d/Deaf people use IFL. This means that a majority of d/Deaf people in America would describe themselves as d/Deaf people, rather than people with deafness, people with hearing loss, people that are hard of hearing, etc.
Okay I lied I’m going to tell you what to do here: Do not use words like mute, deaf-mute, or dumb when describing d/Deaf people. Hearing impaired is also not ideal but is considered outdated, rather than outright offensive.
The best lip readers are judged to be able to catch 30% of the words people say. How realistic is it to have a character that relies 100% on lipreading? What do you gain when you write a character that lipreads, and what do you lose?
Yes, Deaf people can drive. I don’t know why so many people wonder about this. It’s okay if you didn’t know, but please don’t come into my ask box about it.
Assistive Devices/Aids
Cochlear implants ^ see above
Interpreters. Will have gone to school for years, might have specific training for certain environments or technical terms, etc. For instance, an interpreter that works with Deaf people that have mental illnesses would be fully fluent in ASL as well as having requisite mental health training in order to interpret for them. Interpreters could be a whole other post actually, but I won’t tackle that now.
Closed captions. Self-explanatory.
Alarm clocks, fire alarms, and doorbells that use light instead of sound. This is sometimes a typical flashing light, but particularly fire alarms in predominantly d/Deaf spaces can be overwhelmingly bright. Bright like you’ve never seen before. Bright enough to wake someone from a dead sleep.
Some assistive devices also use sensation - alarms that actually shake bedframes exist and are the best choice for some people!
Service dogs - can alert people to sounds like the above - fire alarms, doorbells, knocking, etc.
Hearing aids. Generally not controversial in the way that CIs are. Only effective if people have residual hearing. Do not really expand the range of sounds people can hear, just amplify sounds in that range. Very, very expensive.
Microphones. If a d/Deaf or HOH person is in a crowd/lecture setting, the speaker will want to use a microphone. If this is a frequent occurrence, the microphone may be linked to a small personal speaker or earbud used by the d/Deaf or HOH person.
TTY: Much less frequent now that everyone can text and email, but stands for Text Telephone Device and was/is a way to send written communication over a telephone line. The message is sent, the phone rings, and a robot voice reads the message. Obviously, this is not effective for d/Deaf people communicating with other d/Deaf people, but it was often used to communicate with hearing people/hearing establishments, as when setting up appointments.
Media About/Including Deafness
No media is perfect and unproblematic, but here are somethings I have seen that I can verify do at least a pretty good job -
CODA is a movie that features Deaf actors, ASL, and a story about growing up, family, and independence vs. interdependence.
The Sound of Metal is a movie that features ASL and a story about identity, recovery, and hearing loss/Deaf gain.
A Quiet Place is a movie features ASL and Deaf actors, although Deafness itself is not necessarily integral to the story.
BUG: Deaf Identity and Internal Revolution by Christopher Heuer is a collection of essays by a Deaf man that discuss a wide range of topics. This book is not always up to modern standards of political correctness.
Train Go Sorry by Leah Hager Cohen is a memoir by the granddaughter of a Deaf man, which discusses the intersections of the hearing and Deaf worlds.
Far From the Tree by Andrew Solomon is a research book about the effect of horizontal identity on parent/child relationships and features a chapter on d/Deafness. This is a good look at how d/Deafness can impact familial relationships. Some aspects of the book are outdated, and it was written by a hearing author, albeit one who extensively interviewed Deaf and hearing parents of Deaf children.
If you made it this far, congratulations! Thank you so much for taking the time to read through my lil/not so lil primer :) If you have any questions, comments, concerns, or feedback, please feel free to hit me up! If you have any requests for a diagnosis or a disability you’d like me to write about next, I’d love to hear it. Happy writing!
#writing disabled characters#writing disability#writing advice#longpost#deafness#deaf characters#writing deaf characters#disability writing guide#hard of hearing#hard of hearing characters
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Fuck Trump, here’s all the civil rights orgs I know:
(Most have education pages and/or socials to follow and boost if u can’t donate right now)
LGBTQ+
Trevor Project—queer crisis hotline/counseling (NOTE THAT THEY CALL POLICE IN CERTAIN SITUATIONS)
List of Crisis Hotlines/etc compiled by Inclusive Therapists .com which DON’T CALL POLICE
Point of Pride—helps trans folks having trouble accessing gender affirming healthcare
Trans Lifeline—community support/resources/financial aid for trans folks
REPRODUCTIVE RIGHTS
National Network of Abortion Funds—financial assistance/transport/childcare for people in ban states seeking abortions.
Brigid Alliance—same
Sister Song—reproductive justice for WOC
Indigenous Women Rising—helps Indigenous families access abortions/menstrual hygiene/midwifery/etc
Afiya Center—reproductive justice/HIV care for Black womxn in Texas
Abortion access orgs for Americans in the
Midwest
South
Appalachia (they also offer free emergency contraception/support services/etc)
RACIAL JUSTICE
NYU Law Center on Race Inequality—self-education resources on racism & antiblackness/how to contact elected officials/how to protest safely.
List of orgs protecting Black Americans, compiled by NYU (incl NAACP, Audre Lorde Project, BLM, Black Voters Matter, etc)
National Immigration Law Center—fighting for asylum seeking/DACA; helping immigrants access healthcare/worker’s rights/etc
American Civil Liberties Union—working on many intersectional initiatives
Southern Poverty Law Center—same
GLOBAL AID (While we Americans wait for shoes to start dropping, let’s not forget others in need, and that Trump’s atrocious foreign policies will affect everyone!)
World Central Kitchen—hunger relief
Action Against Hunger—same
War Child—supports and educates children in conflict zones, like Yemen and DRC
Medecins Sans Frontieres— medical aid
Islamic Relief USA—emergency aid
PALESTINIAN AID
Palestine Children’s Relief Fund— medical aid for kids
Anera— emergency relief & long-term development resources for Palestine, Lebanon, Jordan
United Nations Relief and Works Agency—aid for Palestinian refugees in Lebanon/Syria/West Bank/Gaza/Jordan
Palestine Red Crescent Society—medical aid
SUDANESE AID
List of humanitarian orgs working in Sudan, compiled by 500 Words Magazine
CONGOLESE AID
Panzi Foundation—supports assault survivors & their families
Eastern Congo Initiative—supports ands funds local/community-based Congolese efforts
Please reblog, & add any legitimate humanitarian organizations you know of! I love all of you!!
#donations#resources#election 2024#lgbtq#reproductive rights#reproductive justice#racial justice#blacklivesmatter#trans pride#queer pride#all eyes on palestine#all eyes on sudan#all eyes on congo#free yemen#social justice#dm me//add in your own reblog any other relevant tags
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