#epileptic mom
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I know no one cares but I could really use help to save up money this man I live with her dad won’t know about so I can save up for a deposit and a moving truck so I can get out! Let’s just say I don’t feel he watches our three year old and I fear for my saftey at times if theirs a way in here to tip you can I do have a PayPal he doesn’t know about. So if you can help me please it would mean a chance at a normal life for us both!
#mental health#epileptic mom#mom help#help for moving#help for mothers#help me move#helpmeachievemydream#help me with this#I need help and money#i need money#to escape#life#safer life#help me please 🙏#helpmeandmydaughter
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The Wild Robot is amazing but please be careful if you’re photosensitive - the opening sequence had some very harsh flashing and strobing lights!
#ra#photosensitive#epilepsy#seizures#the wild robot#the wild robot 2024#the wild robot (2024)#I want my mom to see the movie but that opening sequence is ROUGH and I’m not even epileptic#it’s literally just the first few (Maybe 30) seconds of the movie. after the thunder sounds stop so does the flashing/strobing.#there’s a few other minor instances of lighting/glitch or eye strain effects but they’re minor especially compared to the harsh strobing#of the opening sequence
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death to all landlords ong
#and this goes out to the one that not only lied about putting in my work order to the ac company#letting me sit in 90+ degrees thinking someone was on the way to fix it when like… my mom is epileptic and heat does induce her seizures#and I pay these mother fuckers $1450.00 a MONTH#and when they finally put the work order in they didn’t even give them the right address…#so now it’s another day in Florida heat trying to keep myself my dog my two ferrets and my disabled mom from overheating#when I pay#nearly 20k a year to these losers
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My mom: sure you’re shy but you don’t have that much anxiety, you don’t need medication
Me: *has actual panic attacks*
Mom: Ok maybe you need medication but it isn’t extreme anxiety
Me: *literally develops psychogenic seizures, has both depression and PTSD, and obsessive thoughts common in OCD*
Mom: yeah but you’re not mentally ill cause it’s not like you’re crazy
#funny#funny post#funny stuff#haha funny#sad but true#mother#my mom <3#my mom#depresso#tw depressing thoughts#depressing life#sorry for being depressing#actually epileptic#actually mentally ill#anxiety#psychogenic non epileptic seizures#ptsd recovery#ptsd
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my mom has had epilepsy for 20 years I realized long ago god was not gonna do shit to help me or my mom or my family lol
#and then other events in my life as well. never considered religion#I was never brought up religious anyway. but it certainly did not help. not to sound like one of those atheist people when I say this#but like. god or prayer or religion did not save my mom in any one of her epileptic seizures that shit was science and modern medicine#but I identify as agnostic anyway and if he does exist then well. I'm gonna have some words w him#but like I said I've had multiple compounding events that like. it was incredibly clear no deity was on my side
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baby witnesses jesse having a breakthrough seizure and it fucking Terrifies her. she's doing her homework at the kitchen table when there's suddenly a horrible loud thump in the den and when she peeks in, she sees him convulsing on the floor. his eyes are painfully wide and open but unseeing—just like her mom's were when baby pushed open the bathroom door and found her body on the tiles. she does exactly what she did that day: she goes to the phone, dials the vet office's phone number (it used to be written down and taped next to the phone but baby has it memorized by now), and tells demi. this time, demi doesn't sound as scared and reassures baby that it's okay, she's leaving work right now but j will be okay. baby doesn't believe her and stays in the kitchen even after the sound of his limbs hitting the floor stops, too scared to go back in there and see his body. she feels awful and ashamed for not going to try to help j, but she's so terrified that she can't move. she's so afraid that she'll walk in there and he'll be dead. finally, demi comes home and stops to give baby a hug and a "it's okay, honey, u did so good" before hurrying into the den. baby hears demi's voice, then j's voice (alive), and is briefly overwhelmed by incredible relief before being crushed by shame. she stood here and did nothing all because she was scared. demi steps back into the kitchen and gently invites baby into the den, taking hold of her hand as baby looks up at her with the same dazed, distraught expression that she'd worn during the weeks after her mom's death. once baby sees him though—sitting on the floor and looking a little dazed himself, but ostensibly Alive—she immediately crumples and runs over to hug his neck, sobbing. "im sorry, j, im sorry for leaving u alone. i wanted to come help but i got scared and im sorry." he wraps his own arms around her shaky little body, holding on tight like they'll both fall apart without it. "dont be sorry, baby. u didnt leave me alone, u were right here. u got help. do u know how brave that is??" baby doesn't feel brave right now, crying into his hair and afraid to let go because letting go always equals death, and she doesn't believe him. she won't ever believe him, honestly. but hearing his voice and feeling his warmth and smelling his familiar scent of fresh-cut pine is all she needs in the moment. she needs to know that it won't happen again, not now that she has something special.
#syd squeaks#when u. when ur mom dies and then ur grandma dies and u realize that u are the common thread.#baby will get used to it but that postictal state where he's unconscious and still will always terrify her#jesse pinkman#baby ayuluk#demi ayuluk#epileptic jesse
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so my mom mentioned to my brother that i didnt have the best of times at pride the other day because like people were at least 2½hrs late so i was just kinda sat there alone for a long time.
and my brother has told me that next year, hell go to pride with me and hell get his best mate to go too, and is he trying to tell me something? are one of them, or both of them queer? or is it just aggressive allyship? i cannot tell.
#kai rambles#i appreciate the sentiment#because like the first 2 hours of waiting were Not Fun for me#because see i developed fainting attacks recently#they might be non-epileptic seizures we're not sure#but i was like its not gonna be a problem if i faint because we're having a picnic and watching the parade#and if the worst happens#itll be my friends around me to wait for me to wake up#so like you can imagine the terror i was feeling when i was there alone#like i have a card explaining everything that ill wear but i got that when i was staying at my moms 2 hours away#and it only has hers and my brothers numbers on it so not the most helpful and i dont have one for my friends#because like i need to have that conversation with them first#so i didnt even have the card with me#so if i fainted it would be strangers around whod probably be calling emergency services immediately when they dont need to#and i was so scared that it would happen that i moved from a bench to the floor because at least that way if i hit my head#less likely to have a second brain injury#i was texting my mom the whole time#and like i had a great time once my friends got there but most of the stalls were closed and wed basically missed everything#so not the best time#and i appreciate that my brother being like ''if they let you down again i'll- you know what? no matter what i'll go with you''#its very sweet of him
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Ablebodied people stop talking about MY condition in front of me
#I’m going to jump out of this car#Forever thinking about the time my mom told the doctor she FELT LIKE my last medicine was causing me seizures#Even though… I wasn’t on my medicine….. When I was having seizures………#ALSO that medicine is partially an anti epileptic so lol. Lmao. Shut the fuck up.#Barking
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[image description: a still from seinfeld of various characters holding up their hands defensively and saying, "not that there's anything wrong with that."
a meme of one stick figure firing a gun at another, who raises a shield that deflects the bullet to hit a third figure. they're labelled "you" (the shooter), "person you're mad at for, like, 'being lazy' or whatever" (person with the shield), and "ur disabled friend who now knows how u would think abt them if they weren't ur friend" (the person who gets shot." end description.]
interaction i have with shocking regularity is when someone’s complaining abt someone they know and theyre like “ughh they’re 21 and dont have a job and refuse to learn to drive” and then they remember who they’re talking to (me. 21 cant work cant drive) and go like
#same for 'theyre just doing sh activity for attention' and 'theyre so clingy they cant be alone'#and 'they still live withtheir parents'#among other things#image descriptions pls#im 34 ( im 34????????????) and just now considering learning to drive#and tbh its MOstly bc the way the economy is and how our optics ( my and my nestmates are al trans in miami)#and disabled and approaching autistic burn out#bc of how our optics are ive accepted the posibility ill wind up needing to live somewhere in a pinch#and when i tell you that it is actively dangerous to live at my moms when i tell you that htis is the most ive had to cling to shit by the#skin of my teeth i am someome who has been fighting for 3 decades with various ammount of success but the main one being im alive#so when i tell you i cant be here#..and thats why im learning to drive#but anywyas love to hear 'you complain so much about your parents and dont do anything to get out' coupled with#'but have your tried therapy?' ( im...im IN therapy)#coupled with 'why dont you drive ? You need to learn to drive everything would be fixed if you learned to drive'#....im epileptic i have cptsd i dissasociate driving isnt ..risk free for me#but sure#depression cw#in the tags#frank discussion of what chronic depression and sh is like#talk of relapse#ask to tag#love to hear 'if they were really trying theyd be out' about other victims#'theyre alwasy depressed theyre such a downer'#thats another one#love knowing i have to mask to get accepted#also anything about 'they can't handle a normal workload'
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So I guess the post I made about my daughter going to get her assessment in pre-K early pre-K night I had did not go as I expected it we met after they compiled their data from their meeting with Penny, and she is now being switched and being put on an IEP, she won’t be in the same classroom that she wants was and I am Feeling like a failure as a mother and I know that the things that she needs work on are things that we continually work on at home and see progress on and she is a very shy kid. They did note that and so the teacher that has her now even mentioned starting her over she just now in the middle of the school year has started to open up in that classroom, and I just feel like moving to a new classroom. She will be even further behind, but I have faith that things will go well, even though my car’s transmission just went out along with his windshield wipers I know that’s a weird combination and I’m struggling to afford things, but  i’m hoping that just staying positive will be enough to get us through this because she is a very smart child, and a very independent child for only being three years old. She has such an old soul and is so full of laughter and positivity. I don’t know where I’m going with us, but I just needed to vent so thank you for listening.
#life update#my daughter#mental health#depressed#positive mental attitude#iep#pre k#early pre k#learning disability#learning disability at age 3#confused#epileptic mom#mom help#mom advice
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Switches can cause Spanish
Seizures cause switches
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Me establishing dominance on the fly in my house by my whipping my head and arms around at rapid speeds to try and get it to stay away from me
(It's not working)
#that son of a bitch has been here for FOUR fucking days why can't it just DIE already omfg#did this once in front of my mom and bc im epileptic I scared her so I had to go “just trying to scare the fly away!” and she went “oh ok”#back on my yappin again#meme#relatable#(?)#low quality memes
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Honestly, i think about this everytime i see christmas decorations or anything else with fast flashing lights
I'm not epileptic, but between the Cyberpunk2077 and Avatar 2 stuff, is anyone else getting the feeling that studios are getting a bit more...lax with making sure their shit doesn't cause seizures in photosensitive people?
#like /I/ get headaches from that shit and im not even epileptic#i hate to say it i think its one of those things people dont think about until theyre forced to confront it#my dad wasnt lighy sensitive but when i was a kid my mom told me to be careful aroune him anyways and it ingrained itself in my mind
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Crazy to constantly have your dreams crushed (or attempted to be) by everyone around you due to something you can’t control
#sad but true#school#high school#university#dream#inspiration#life goals#future#disability#disabled#disabilties#psychogenic non epileptic seizures#actually epileptic#epileptic problems#non epileptic seizures#epilepsy#originally wrote this post about my family saying I couldn’t go to a major university with both epilepsy and psychogenic seizures#all but my mom anyway#love you mom
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also also jake hears a coworker offhandedly mention their epileptic wife years and years and years after jesse disappears and has to excuse himself to cry over his brother for the first time in a long long while
#syd squeaks#the things that remind him of jesse are random and its hard to know what'll trigger a memory or what'll trigger an emotional reaction#but he never forgets his parents talking about jesse having epilepsy and the dog tag that his mom got for him#he never forgets the paralyzing fear he felt the first time he ever saw jesse seize and how he thought his brother was dying#its embedded in him. etched into him.#epileptic jesse
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St4 premiere day was wild because i woke up to news billy appeared so obviously had to rush to watch that but i was interrupted when my mother had a seizure so… mixed bag emotions that morning lmfao
#no need to worry about my mother she is epileptic these things happen#I can joke about this because well it’s my mom not yours so#also she’s fine lmfao
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