#edslife

[mandana-the-service-pup]

The precut kinesiology tape is definitely the way to go.

It’s been a while since I’ve used k-tape for hyperextended joint pain but I’m pleasantly surprised by how much it helps. It’s like a hug for my sore joints.

[forever-spoonless]

Some days I find myself grieving, though no one has recently passed. Because the mourning that I am feeling is for the life that I lived in the past.

It's hard to imagine a body that's abled. That's not plagued with this endless pain. To think where I'd be if I wasn't disabled... I can't it'll drive me insane

What could I have done to deserve this? All these illnesses that I've acquired. They say to fight my way through the sickness. But, God, I'm so fucking tired.

[nonacute]

there’s no pain quite like someone using my pain as a weapon against me. actually…maybe the pain is the worst but people suck

[eds-pots]

When you go to a new school and realize none of your new friends know about your multiple conditions but also you don't want to traumatize them by telling them about it before you traumatize them more when your faint from POTS or have a migraine that looks like a seizure/stroke

[benditliketoni]

I hope everyone had a good Christmas! I’m so sorry I haven’t been posting or reblogging.

I gave birth to my little girl on the 25th November at 23:38pm. I was induced at 37 weeks due to her not growing and she entered the world weighing only 5lbs 3oz. It was a pretty traumatic experience all in all as I ended up with a c section under general anaesthetic.

Having a newborn when you have EDS has been a definite learning curve! I’m exhausted in a way that I never knew, but she is so worth it.

She is 5 weeks old today and I’ve never been so in love.

[wildwillowwitch]

Passed a neighbor friend on my walk today and stopped to chat for a bit. We talked about our weekend plans and I briefly mentioned that I had slept in this morning because I took a muscle relaxer the night before. Her response: “Oh, I would NEVER take a muscle relaxer. I would hate that.” I quickly retorted “well, if you lived in chronic pain then maybe you would.” (And for context, this woman knows I have EDS and we have had multiple conversations about it)

I’m sorry, folks, but this is what ableism looks like. I like “natural medicine” as much as the next person but it is your ABLE BODY that allows you to choose herbal remedies over prescription medicine.

[lostnfinding]

my mom just bought me four packs of gatorade and i- 🥺

i have now 24 bottles of gatorade and i dont think ive ever been so happy

this sounds weird but pots is a bitch and gatorade actually helps me

[lawrencegordonsfoot]

Anyone else have perfectly valid reasons to use a wheelchair but not use one because you don't feel disabled enough?

[pmda1234]

When your stomach moans and you tell it to shut up!

It's not getting anything!

I'm in CONTROL!!!

[mandana-the-service-pup]

Hyperextended my left ankle and knee yesterday, so I’ve got to recover from that now. Can’t overcompensate for it too much or my back will start hurting again.

Looks like we’re staying home today 🥲

[forever-spoonless]

[bendybitchesanonymous]

Is this pain radiating from my intestines or reproductive organs: a mystery novel

[nonacute]

living with a chronic illness is really depressing sometimes. you can do everything right and still hurt. you can make all of your appointments and still be struggling. you can do nothing and feel completely exhausted and defeated. le’sigh..

[witching-hourglass]

I was diagnosed a few months ago and I’m still getting used to being “certifiably” disabled and needed to romanticize my own life for a hot sec... so have this moodboard.

[rachel-rebellio]

man, all my bones be cracking tonight 😫 i just wanna get comfy so i can sleep... why is that too much to ask???

[wildwillowwitch]

Found a new KT tape system that seems to really help with wrist pain and instability. 😱🥳👏🏼