benditliketoni
Life with Ehlers-Danlos Syndrome
1K posts
24 years old. snowboard instructor. This is my daily battle with EDS and all things Spoonie.
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benditliketoni · 3 years ago
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Woah, it’s been a while!?
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benditliketoni · 4 years ago
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Been so absent on here but being a momma is fully taking it outta me. I barely have time to pee let alone anything else!
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benditliketoni · 4 years ago
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benditliketoni · 4 years ago
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Anyone else be going about their life then suddenly thinking “I’m in too much pain for this shit” because same
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benditliketoni · 4 years ago
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Messing around with my new Anastasia Beverly Hills Amrezy pallete, lipstick and brow wiz.
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benditliketoni · 4 years ago
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I hope everyone had a good Christmas! I’m so sorry I haven’t been posting or reblogging.
I gave birth to my little girl on the 25th November at 23:38pm. I was induced at 37 weeks due to her not growing and she entered the world weighing only 5lbs 3oz. It was a pretty traumatic experience all in all as I ended up with a c section under general anaesthetic.
Having a newborn when you have EDS has been a definite learning curve! I’m exhausted in a way that I never knew, but she is so worth it.
She is 5 weeks old today and I’ve never been so in love.
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benditliketoni · 4 years ago
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Me: sorry my shoulders are so weak cause they’re constantly dislocated.
Normal person: ...there’s no way they could be dislocated all the time, you’d be screa-
Me: *shows my shoulders*
Normal person:
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benditliketoni · 4 years ago
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Me: does nothing
My body:
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benditliketoni · 4 years ago
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Everyone says how hard being in your third trimester is - only most people aren’t also chronically ill too.
Jesus Christ I am exhausted/ sore/ uncomfortable.
I feel like the bath is where i am spending more of my time recently!
7 weeks to go though
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benditliketoni · 4 years ago
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Happy Monday!
Sending you lots of spoons and love 💕
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benditliketoni · 4 years ago
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Just a reminder
Do not apologise for listening to your body.
You take that nap.
You cancel those plans if you don't feel well enough to go.
Self care is so important!
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benditliketoni · 4 years ago
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I don't know who needs to hear it but your body's "failure" is not a personal failure
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benditliketoni · 4 years ago
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Mad Max: Fury Road (2015) dir. George Miller
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benditliketoni · 4 years ago
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My shoulder today:
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benditliketoni · 4 years ago
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benditliketoni · 4 years ago
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benditliketoni · 4 years ago
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Second trimester got me feeling good though 👌🏻☺️
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