#disabledmum

[mamafaithful]

Update on my monstrosity. It is finished. *cackles maniacally as light strikes across the sky* Can't wait. Weighing in at 4 pieces of A3 paper celotaped haphazardly together, way way tooooo many cut coloured not quite squares, 46 clues and bright orange string so we do not loose them (we most likely still will) is the kids ultimate crossword treasure hunt. Can I get the kids to make one? Asking for a friendly. #treasurehunting #treasurehunt #fun #excited #mybackhurts #thingstodowithkids #thingsforkids #handmade #disabledmomswithkids #disabilitydontmeancant #disabilitydoesntstopmum #disabledmum #kids #gardenfun #crafting #hopeitdoesntrain https://www.instagram.com/p/CRFUcpPpNfH/?utm_medium=tumblr

[alishawhittam]

I really do mean it has been years 🤗 so pleased with myself #me #meawareness #myalgicencephalomyelitis #myalgicencephalomyelitissucks #myalgicencephalomyelitisawarenes #disability #disabled #wheelchair #disabilityawareness #chronicillness #chronicpain #disabledlife #chronicallyill #disabledandproud #nevergiveup #disabledblogger #disabilities #disabledbodiesmatter #disabledmum https://www.instagram.com/p/CU3FMxrMbwB/?utm_medium=tumblr

[mummyanddisableds-blog]

ABOUT ME

So this is my first post, so a bit about me I am a mum to a beautiful 2 year old, it's the most amazing feeling in the world however one of the hardest. I am disabled, I have up and down days, days I can make it outside, days I am stuck in bed, days where I make it out of bed but only to the sofa! Its so hard trying to explain to a 2 year old that mummy cant do the things that daddy does with him ect. His daddy (my husband) is also my carer and is amazing although he has his moments! I was told to start a blog about how I cope, what I do, struggles etc to try and help myself deal with it and to try and help others if I can.

Thank you for reading 😘

[mummyanddisableds-blog]

So this is most mornings, trying to get out of bed is a daily struggle even on 'good days' but the fact we keep trying shows how strong we are. I'm very lucky my husband is my carer and helps but I'm even luckier my little one is so caring and tries to help, they will take my hand to try and help me stand up, or move my legs for me when I cant, they will pass me my Walker and on times where I fall they bring me a blanket and lay with me until my husband gets to me. You can look at life 2 ways and its sure as hell easier to always focus on the negatives but when you have amazing people in your life whether friends or family that will help it makes it easier

trying to start my day when i’m in a flare…

[canada-2-england]

Do I feel old? 👵🏻 Yes. But I feel so much safer. I’ve been provided aids around my home to help assist me with what most adults my age have no problems with.

Standing to wash the dishes or make the girls food, cleaning the counters, getting in and out of bed without pain or assistance from the radiator or wall so you don’t fall. Help getting in and out of the front door and steadying yourself, needing help getting in and out of the shower and finally needing a fall button at the ready in case I were to fall again and not have my mobile on me to call for help. It’s the girls I worry about, they’re home alone with me for the majority of the day and if something were to happen to me I’d never forgive myself for not being able to call for someone to look after the girls. I could be on the floor all day and not care as long as the girls were looked after.

I’ll admit these changes to my mobility are terrifying, knowing at 25 I need more assistance than I ever thought possible especially being so young. But my life is changing due to the pain and I need to learn to change with it, keep fighting but not fight against it, because it will only prolong the pain. I need to take it all in stride and grow a little differently than most adults, be safer for my girls. Let me know do you use any aids around the house? I’m still waiting to get my hands on a walker to use in the house on my really bad days and out of the house every time I go out because I can no longer support myself walking without a support and crutches and canes don’t help with my upper back and bad shoulder. Big changes coming and I need to start to embrace this new life and learn all I can from it.

[pinkfeathergurl]

Motherhood: All love begins and ends there.”

All moms, but especially moms with disabilities, face the biggest challenge of being responsible for rearing good, kind, ethical, and responsible children. These moms see their disability as a mother’s superpower. They are inbuild to handle all the stress without needing much assistance. These moms are on their own level of motherhood.

Good parenting begins with you: https://bit.ly/3FXHuna

[kimlouiseworldofme]

Mum says- Teenagers

I am a single disabled mum, who suffered domestic violence.

I finally opened my eyes through pain & saw sense.

it’s been a rough time over the years

but through tantrums, laughter & many tears,

My children have nearly survived this hormonal time.

Teenage years, a constant round of scream, shout and whine.

  My qualifications on this subject are the highest you can get, I have survived 4, oh and I am in the process of wilting (be it in the privacy of my room) under the strain of my last 2 oh so angelic Teenagers.

It’s a tough time, genuinely, for those of us that really want to think back to the days of those awful demons ‘hormones’, I never saw one but I have heard so much about them and I didn’t escape their evil little clutches either. Hormones have caused so much trouble over the years. They creep about and take over your body literally overnight. One day you are playing with dolls and cars and climbing trees the next its “Mummmm I’ve got a spot” “Does my bum look big” or the dreaded word SEX. For girls, it’s the stage of bragging “Well of course I’ve started my monthly” as they stuff tissues, socks, and pillows (slight exaggeration) down their bras, and boys as ever more discreet, measuring themselves with rulers and telling their mates how their arm aches (oh dear boys), “she’s fit, wouldn’t mind a bit of that “and stuffing socks down their trousers.

Of all the teen issues, I have noticed with my eldest being now 30 and my youngest being 15yrs. old is that these hormones have changed they have become more, excuse the term “ballsy”, not only do they give the whole mess with head and heart, spotty, with attitude problems that have always been there, granted suppressed in many generations. Now teenagers granted maybe not all, but many seem to believe strongly that there is nothing us silly adults can say will ever make sense, and actually we are just at times a purse or wallet provided for them exclusively. There are places to blame and it cannot lie at one door, age-old one:  It’s the parents. Schools have no control. I blame society. It’s all those celebrities. Aliens came and invaded the youth and sucked their brains out.

Ok, the last one was a little far-fetched unless you believe in conspiracy theories, and well that’s another story altogether. Of those statements, apart from the aliens (I hope), there’s some truth in them, but the biggest blame is the environment, the expectations placed on these young people’s heads from a tender age not necessarily just by parents but schools, society, to succeed, because you don’t want to be a shelf stacker or road sweeper, or, oh my heaven help us you might even end up in McDonald’s. It’s wrong the world needs shelf stackers more than CEO’s because an empty supermarket is no good to anyone, and a road sweeper, bless you guys I don’t even want to think of the state of the roads I just picture Victorian Britain and my stomach turns. While I think of it McDonald’s has an amazing staff training programme with benefits like you would not believe. If those guys and girls didn’t work there or any other of your takeaways there would be a lot of people not happy, correct.

Now I guess what I am trying to say is there is a place, a niche for everyone from the girl on the till to the guy posting leaflets, to the manager of a top store, to the head of a high school. If we all aimed for that one job many thousands would be disappointed, so to the parents of a stroppy, sweaty, swearing, moaning, and groaning teen tell them- this life is a race with only one competitor yourself, you only have yourself to race with, to make proud. Your family are onlookers make them proud but it’s not their race.

I have told each one of my children the same thing, and as time has gone on its got harder, schools drum into them “you won't get into a good college if your grades don't improve”, WHY? because it’s about performance tables., Education departments keep changing the curriculum and budgets, which in turn stresses the teaching staff out. The problem there is all these changes are dictated ultimately by the big wigs up in London who really have no idea how it affects everyday children, in everyday schools, plus now they must stay in further education for another 2yrs or approved government apprenticeship. The attitudes have changed, society really needs to buck up and the government simmer down. Ok so you may want your child to be the next rock star, head teacher, pilot and so forth, I don’t, I want mine to be happy and do what they want to do in life, as long as they always try their very best …  Kim Louise

[paprikajewellery]

How's your relationship with your child/ren? Maybe you feel you've got it nailed. You might feel differently on different days of the week. You might feel like your doing the best you can or feeling guilty that you’re not around enough. If the life you want for your family seems a long way off or you'd like some reassurance you're doing okay, then head over to my blog after reading this for 5 secrets to building a strong relationship with your teenagers (they can be adapted for all ages)! I feel like I just promised the world here and that you’re wondering who the hell I am. I can’t make guarantees to solve all your problems because we're all unique, but I can share what I know, works! As a nanny and a Primary School Teacher, I worked with kids with over20 years. Now I’m disabled and my boys are my 13 and 15 year olds are carers. We've been through tough times but we're a happy, positive family because we work as a team. I want to help others have positive experiences, even on tough days. So I'm sharing 5 secrets to building a team as a family with teenage/Young Carers. Find the good things in your day to build connections through positive thoughts and language. There can be positives from living as a child of a disabled parent. My boys have learnt empathy and how to care and we have more time together to talk about the boys days, whenever they need it. But it can be really tough, so building a positive structure for your family ‘team’ allows you to be honest and develop trust and loyalty. Celebrating even small wins creates a loop of positivity. What sorts of things do you celebrate as a family? . . . #strengthoftears #familylifematters #positivefamily #buildstrongfoundations #buildingfamily #familyrelationships #positivelanguage #disabledmum #disabledbloggers #bloggerlife #disabledlife #myhonestmotherhood #innerstrength #toughdays #positivethinkingworks #supportingeachother #womeninspiringwomen #smallwins #positivemindset #livethelifeyoulove #positivelanguage #positivethoughtsandandvibes #positivethinker #mentalhealthcarers #solutionfocused #youngcarers #childcarer #youngcarer #mentalhealthblogger #mentalhealthtips — view on Instagram https://ift.tt/2EeeNkL

[robyncleoadventures-blog]

Me and my mummy

[alishawhittam]

We have managed to get to the family room 🥳 #myalgicencephalomyelitisawarenes #disability #disabled #disabilityawareness #chronicillness #motivation #disabledlife #chronicallyill #disabledandproud #disabledmum https://www.instagram.com/p/CNKrxQZs1bu/?igshid=ziv4wfmavpd2

[mummyanddisableds-blog]

How do you feel........

One of those questions where you never fully know how to answer, do you answer truthfully and say exactly how you feel- all your aches and pains, how anxious you feel, how low and depressed you feel, how tired you are etc if you were honest you would probably still be telling them how you feel once they are asleep so the phrase "I'm fine" tends to be the one to use. You have certain people you can talk to about how you truly feel but you always get a sense from people whether they are asking cause they truly care or whether they are just saying it to be polite!

Your always told honesty is the best policy however when your honest does it actually help, I find the more honest I am with how I feel the more pressure I feel to be 'FINE' like if you tell someone your feeling anxious about something they make you feel worse by saying you were ok about it last week or everyone goes through it, it makes you feel worse about how you feel. Or cancelling plans cause you are to unwell to go and get told you were fine yesterday so why you not today or you done it last weekend so why cant you do it today......

What's your favourite phrase to use?

[mummyanddisableds-blog]

Birthday party planning

Grrr well this is a new one on me trying to plan little ones birthday and having to ask at a childrens party area if its disabled friendly, to be told they only have a couple of parking spaces outside and although inside is all on one level they have no disabled toilets! How in this day in age is this still happening? Surely they should think about the basics when setting up a business that should cater for all needs??

That's a no for there then!

[canada-2-england]

These two little trouble makers came with me to such a big and special appointment! I got the all clear from my surgeon!! 🌈🎉

I can book our flight this week to go to Canada in August and pick the girls up on my own again. He said I’ll probably never be pain free and there’s a chance I’ll need surgery later on down the line but considering where I’m at 6 weeks post-op to where I was pre-op and with the work he did he’s positive it should stay as it is for a daily long time.

He lit up when he saw me carrying Willow into the room with me, when I left I shook his hand and thanked him for giving me my life back, for giving my twins their mother back💕 he looked like he was holding back tears just before we left, seeing how broken down I was even on the day of surgery to now, and seeing not only his patient that he helped but the children he’d helped by helping their mother.

He is the best doctor I’ve ever had and to have him as my surgeon was an absolute honour. I can’t thank him enough for what he’s given me back. I won’t ever be as I was before, I am disabled and I will probably always struggle with severe chronic back pain and problems but it won’t ever be as horrific as it was.

Also can I just say these two did amazing holding our hands through the hospital!? Seriously I’m so proud of my little girlies😍😁

[canada-2-england]

Booking our flight back home tomorrow!! I can’t wait to see everyone☺️🇨🇦 The girls are going to be so happy seeing everyone again!

Any tips for taking twin toddlers or toddlers (with a disabled parent)optional)) on a 7+ hour flight help is much appreciated from how to deal with transportation for the twins to what you did to keep them calm and entertained during the flight!

[canada-2-england]

Having an extra few minutes in your day to shower and put on your face while the twins are napping is huge for me. It’s my little bit of self care during the day. 💁🏻

Even though I don’t usually go anywhere besides appointments for myself and the girls or just outback to play, for me it makes a big difference not sitting in my jimjams or having yogurt all over my hair and top because someone (who shall go unnamed) threw a fit and sent yogurt flying into mummy’s hair…

It’s nice to feel a little pretty, feel like I had a moment to myself through all the chaos and twinsanity and to take a moment to take my mind off of the pain.

I am definitely not a put together mum, far from it in fact. From the time I was 4 weeks pregnant I was a hot mess and 2 years later I’m still trying to find out how to not be that hot mess. But being a full time stay at home mother to twin toddlers… I really don’t think anything other than hot mess will describe me until they start school. 🙈

And that’s okay, I put my girls first but while still trying to take that one moment in the day for me.

(at Manchester, United Kingdom)

[mummyanddisableds-blog]

You dont look ill!

Wow, trying to explain to them how you feel to be told you'll be ok, you just need to get on with it, you dont have time to be ill. They act as if it's a choice believe me I would love it to be a choice so I can do more things, get dressed unaided, have a nice peaceful bath not having to have help in the shower, not falling over and having your little one bring you a blanket as hubby was upstairs and came rushing down, not having visits to hospital, having tests, procedures ect.

I'm sure if they lived a day in my shoes they would understand but for now I have to put up with small minded people who dont want to accept this is my life!