#covid fatigue

[maithancailin]

Lads for the love of all that is good if you have covid-esque symptoms stay at home,mask up if you need to!

I caught it a month ago at a concert and still fatigued with seemingly a permanent cough now.I know more people who have caught it in the last month than the height of the pandemic. People dgaf anymore seemingly.. 😕

[romythe]

The reason for the extreme fatigue associated with long covid has been discovered by Dutch scientists.

Turns out the mitochondria (energy centres) in the muscles are not working properly and muscle tissue wastes away.

I sincerely hope this will be a step towards something that can actually help people with long covid and definitely the stigma attached to it.

[spotlightstory]

"It seems likely that the brain-muscle axis is activated by respiratory infections via the CSF [cerebrospinal fluid]… and continues to signal long after the initial infection is cleared," the researchers write in their paper. "Long-COVID may therefore be caused by chronic cytokine signaling."

Researchers have just discovered a process in fruit flies which links inflammation with impaired motor function, providing researchers with a potential target for treating the persistent muscle fatigue that follows many infections. Of long COVID's numerous symptoms, an intolerance to exertion could be considered one of the more debilitating. "This is more than a lack of motivation to move because we don't feel well," says Washington University developmental biologist Aaron Johnson. "These processes reduce energy levels in skeletal muscle, decreasing the capacity to move and function normally."

Continue Reading.

[purrfurnax]

[spoonfulofhannah]

Fatigue feels like you have sandbags tied to your feet while trying to walk. It feels like you haven’t slept in weeks. It feels like gravity is pulling you down. It feels like cotton balls are in your head, clouding everything.

Fatigue is NOT the equivalent to being tired.

[corona-journal]

I kinda wish this was an optional thing....

But, virus don't care...

12 September 2023

[ricisidro]

Covid apathy and fatigue are real. Here's how to fight your Covid apathy and how to best protect yourself from Covid again as the virus is rising in many parts of the world.

#CovidApathy #CovidFatigue #stress

#trauma #PTSD #GetVaccinated

#GetBoosted

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A post shared by Jun Isidro (@rcisidro)

[myalgicencephalomyelitiscfstom]

Press release for this Canadian study [Metabolomic and immune alterations in long COVID patients with Chronic Fatigue Syndrome]:

“We do not actually believe that long COVID is a separate new disease,” explains rheumatologist and clinical immunologist Jan Willem Cohen Tervaert, professor of medicine, who is an expert in fatigue associated with rheumatic illnesses.

“Some symptoms — such as the loss of taste and chest pain — are very specific for COVID, but we see a common pathway with ME/CFS, which leads to the same fatigue, brain fog, post-exertional malaise, widespread pain and non-refreshing sleep,” he says.

[corona-journal]

Yes, it's still here, and a background constant in life....

Will it ever go away and definitely end?

I honestly doubt it.

28 August 2023

this moderna commercial just went "the pandemic may be over, but covid 19 isnt going anywhere. covid is still among the top 5 leading causes of death"... wow... its almost like the pandemic isnt over.

[drifting-bones]

they should invent walking that doesn't make you feel like you're going to keel over and die

[alexx-is-tired]

I know it might sound silly, but I'm so happy that I started learning how to knit recently.

I've been working on my first big project, a sweater, and it's given me something to be excited about each day. I look forward to getting out of bed so I can work on it, I've been taking more time offline and just listening to music while I knit and it feels almost therapeutic.

It helps distract me a little from the pain and fatigue I'm experiencing, and it's also given me something to feel proud of and accomplished in!

Maybe once it's finished I'll post a picture of it here :3

[corona-journal]

Early in the pandemic, I described this as being under siege.

A long, grinding siege.

Yes, we've developed vaccines and need to have boosters regularly.

Long Covid is still a side effect for some who become infected.

We are now, generally speaking, complacent about Covid. As it's no longer as lethal or virulent.

Add in 'covid fatigue' to the complacency, bake for 2 years, and that's human nature.

23 August 2023

“The most recent data from the Centers for Disease Control and Prevention (CDC) indicate that as of August 12, COVID hospitalizations had increased by 21.6%. In comparison, during the week ending on August 5, hospitalizations had increased by 14%. On July 8, there were 6,454 confirmed COVID hospitalizations in the United States, but since then those numbers have nearly doubled, now sitting at 12,613 hospitalizations nationwide.”

—

COVID Hospitalizations Now Up Nearly 22%

I know that we are all super over it. I know we all want to go back to our lives, and not think about masking indoors.

I feel it. I really do. And as much as I hate it, the reality is that Covid is still out there, still contagious, and it does not care if we are over it, or not.

I don’t agree with the minimizing “it’s just the flu” or “it’s just a cold” rhetoric. I suspect that’s coming from people who are tired, and really WANT Covid to be “just like _____” instead of what it is. But even if the rhetoric were true, I don’t want to get a cold, and I don’t want to get the flu. I don’t like feeling shitty. So I will continue to be cautious. I will continue to mask indoors, not because I’m modeling anything, not because I am afraid, but because I want to minimize my exposure risk to all airborne illnesses, even the ones that aren’t as unpredictable as Covid (and the Long Covid cases, which we still do not fully understand.)

Please be safe, take care of yourselves, and stay healthy.

[unveilandresist]

by January 10th 1 in 3 people will have had this wave of covid. covid causes long term damage with each infection and wears down your immunity. you do not want this. there is no cure for long covid or me/cfs and there is a significant chance (last I checked I think it was 1/5 infections) of getting long covid that increases with each infection. please protect yourself and your loved ones by wearing a mask. variants have become more transmissible so a n95 or kn95 is the minimum protection to keep yourself reasonably safe(r) from getting covid.

it is important to understand often viruses do not simply clear up and go away. like chicken pox and shingles or what we now think of as polio that is actually post polio syndrome. polio symptoms were mild and 75% of cases are asymptomatic. we do not yet see the full scope of what this virus will do over our lifetimes. as someone who had my entire life derailed by me/cfs after having mono, (almost 10 years ago! it hasn't gotten better!) we have to take pathogens more seriously if we care about ourselves and our communities.

I'm willing and open to talk with people who want to understand better what covid does to our bodies and how we can best practice community care and also harm reduction if we're stuck in unsafe situations at home or work (certain mouthwashes and nasal sprays can help).

if you're watching what's happening in Palestine and live in the US, the government doesn't care about your life either. They lied about palestine and they lied about covid too. It is not just a cold.

[fernthefanciful]

Please please please I am BEGGING y'all

When you visit someone who is chronically ill or disabled and their house is not as clean or tidy as you'd like: just don't say anything

We *know* okay.

Trust me, we know

We'd love to see it differently too. But the truth is we *can't*. And you know this, you do!

So please. Just shut up. Don't pile on more guilt and feelings of inadequacy. We have enough of our own

[normal-with-adhd-is-a-joke]

People are very critical about long COVID/ME/CFS patients not being on diets and it's probably the most fucking annoying ableist thing we have to deal with on a regular basis that people think is totally fine or even helpful.

Preparing homemade food takes a ton of energy. Preparing homemade food to fit a diet takes even more energy and is expensive. Carnivore is one of the most common recommendations and, aside from dieticians practically screaming about how dangerous it is due to the complete lack of vitamins, meat is expensive. Even high protein, low carb diets that aren't as strict still require you to spend quite a bit on protein. Diets like anti-inflammatory, mediterranean, low fodmap, and others that restrict certain types of food are often prohibitively complicated, and many times advice is conflicted on whether things are ok to eat and in what amount. The vast majority of restrictive diets don't come with easy-to-prepare meals unless you have a ton of money to drop on expensive meal kits.

And most importantly, for some of us food is all we have left. Being closed inside for 90% of your life is incredibly boring in a way that's hard to describe. I spend 8-10 hours a day in the same place doing the same things because they're all I can do. Eating something interesting is pretty much the only way I get to add enrichment to my life. Diet is not a cure for us, it only provides mild symptom relief if any. It's just not worth giving up the small sliver of joy that is an "unhealthy" meal when it's not going to actually result in us regaining the ability to do other things that bring us joy.

❌If you give dieting advice on this post I will block you. You're annoying and you're missing the point.❌

[calcium-supplement]

What's a mobility aid (or aids) you wish more people knew about?

for me, ive been really loving my rollator! it's a kind of walker. it helps steady me more than a cane would, helps carry things for me, and most of all helps me sit more frequently to save energy throughout the day!

this is my current one, drive nitro tall, cuz my hand height is really high and this was one of the tallest i could find (41 inch max height), and it folds sideways and stays standing and can roll around like that, which helps for navigating tight spaces and storage without having to lean it on something!

i first used a rollator that was bought used cheap from a thrift store, ive seen a lot at thrift stores! even thought it was too short for me and the brakes didnt work, it still made a HUGE difference for me, i wasnt expecting it! I highly reccomend checking there and other used storefronts online to find mobility aids for cheap and start trying some out, even if its a bit jank!

i wanna hear more random stuff about mobility aids! please feel free to share anything from anecdotes to technical details to random bits you wish others knew more about, either to use themself or to know about mobility aid users!

another random one i didnt know about is forearm crutches! i havent used them myself, but i know some people who do, and they seem like a great alternative to canes that dont strain the wrist and hand as much and let you lean on them in a different way, can use one or two!