#cooking in a wheelchair
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disabled joy is so important !!!!!!!
#zooming around my house in my wheelchair having sm fun while dinner cooks !!!#disabled#disability#chronic pain#chronic fatigue#0
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I'm thinking of starting a Substack for posting my silly little hobby essays on food and disability advocacy. Would anyone be interested at all?
#for clarity it is NOT paywalled#ill probably post like#cooking tips and techniques#and science communication#kinda explaining the impact that different disabilities actually have on a person#cuz you can say youre autistic; but how many people really know what that means?#very few unless they have direct experience themselves#you can be in a visible wheelchair cane etc mobility aid#but most people dont really get how that changes the little things in life#and the way all disabilities affect how you interact with others#i think itd be nice to bridge some gaps in that way. most people ive met are very nice#about mobility aids and whatnot#but theyre uneducated and will trip overthemselves trying to help sometimes#when really its counterproductive and they could do another possibly easier thing instead
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When it comes to hygiene tasks and self care with disability and chronic illness, its pretty much a constant case of: don't let perfect be the enemy of the good.
Basically: it's better to do something, than to do nothing at all.
TLDR: Just because you can't do something "properly" doesn't mean you shouldn't do it at all. Do it half-way. Do it shitty. Do it barely. Do it on a technicality. But do what you can. Just try, because doing something will help you.
If you don't have the energy to scrub your body with a sponge, just rub soap over your skin with your hands.
If you don't have the energy to wash your whole body with soap, just hit the places where sweat accumulates, or where you're smelliest.
If you don't have the energy to wash with soap AT ALL, just sitting in water is better than nothing. It will wash away dirt and oils.
If you can't bathe or shower at all, a warm wash cloth is your new best friend. If that's too much, then try bath wipes. They're a bit bigger than regular wet wipes, and a bit more heavy duty. They're designed to help keep bed ridden patients clean in hospitals.
If you don't have the energy to dry yourself after a bath or a shower, just put on a bathrobe and get into bed. If you don't have the energy to get dressed afterwards, just don't. It can wait until you can.
If you don't have energy to brush your teeth for two minutes, honestly, just a cursory scrub is better than not doing anything.
If you can't brush your teeth twice a day, brush in the evenings. It will help take away the build up of food from the day.
If you don't have the energy to brush AT ALL, honestly, just take a cloth and wipe the plaque off your teeth. Rinse with mouth wash after if you'd like. Something is always better than nothing.
If you can't floss twice a day. Try once. If that's too much, try a few times a week. If that's too much, try setting aside a day once a week as a goal. If you can't keep a schedule, do it when you're able to. Hell, I keep some floss next to my bed so that if I forget and don't have the energy to go get it, I can just reach over.
If you can't iron your clothes, don't bother. Wrinkles are fine. Wear jumpers over wrinkly t-shirts. No one will know, and honestly, most people won't even care. If it's really wrinkly and it's A Big Deal And It Needs To Be Ironed, here's my life hack. Step 1: take a spray bottle, and spritz the item of clothing (while you're wearing it is easiest) until it's lightly damp. Step 2: use a hair-dryer on the clothes until they're dry. It gets rid of creases like nobody's business, it's easier than lugging out the iron and ironing board, and you get to have nice toasty warm clothes afterwards.
If you can't fold your clothes, try just hanging them up. It's less commitment. It's quicker to do. Granted, you need to have the space in order to do this, but it is also good at helping you downsize, and lets you visualise exactly what you have.
If you can't put your clothes away, invest in a couple of laundry baskets, and then just keep your clean clothes in the baskets. You can then separate washed clothes into underwear, pants, and shirts baskets. You can just leave them like that. I'm giving you permission to never fold your laundry again if you can't. Just leave it unfolded. Who's going to care? Something is better than nothing. If you can, try to put those baskets into your closet so that you can keep the clutter out of sight, and give yourself a more restful environment.
If you can't separate your clothing out into different categories and wash them "properly" (whites, warm tones, cool tones, darks, delicates / switching between hot & cold washes / paying attention to laundry instructions on the label) then just don't worry about it. If you cold wash your clothes, colours won't bleed. Maybe gradually over the course of dozens of washes there'll be some changes in hue, but it's really not as high stakes as the One Red Sock In The Whites Turns Them Pink trope makes it out to be.
I've pretty much come to the point in my life where if a piece of clothing can't survive the washer and dryer, then it's just not meant to be. I colour separate my clothes, and if I have the energy/remember I'll take my bras and jumpers out of the washing machine to drip dry. But otherwise, I leave it to the universe.
If you can't separate out your recycling, then don't. If you have a large amount of rubbish you need to get rid of but the idea of separating it out properly is stopping you from doing so, then just don't worry about it. I know it's not ideal, but if you have garbage in your room/house and you need to get rid of it, please just get rid of it. Don't let the problem get bigger and harder to deal with. Don't let "doing something properly" get in the way of keeping your living spaces clean. Please. Give yourself understanding.
If you can't wash your dishes, get paper plates. Obviously, it's not ideal, but it is better that you eat food than skipping meals. It is better that you have a clean kitchen, rather than having dishes piling up and making it harder to look after yourself.
If you can't prepare meals for yourself keep making the tasks easier and easier. If you can't do recipes, then simplify. Use pasta sauce from the jar instead of making it. Eat canned soup. Buy food you can just stick in the oven. If you eat fish fingers and microwave veggies every night, it's better than not eating anything at all. It's better than having to fork out money on take-out. If you need ready-made meals, then get them. If you're literally just eating a raw cauliflower for dinner; 1) I see you, 2) me too, sis, 3) something is better than nothing.
These are the basic things you need to do every day to function as a person. They are your activities of daily living. Brushing your teeth. Bathing or showering. Using the bathroom. Getting dressed. Eating. Drinking. Sleeping. Keeping your environment clean. You don't need to do these things perfectly, but they need to happen in order for you to have a decent quality of life.
And it breaks my heart, because I know that so many disabled people can't do these things every day. I'm not saying this to guilt or judge, I'm saying that these are basic needs; you deserve these things. These things bring dignity. If a disabled person is unable to do these things, it diminishes their quality of life. It robs them of dignity.
If you need help to do these things, Its okay to ask for help. It's okay to need help. But if you can't get that help and you have to do these things by yourself -- or you just plain want to be independent and do it without help-- then don't hold yourself to standards you can't meet.
Don't let perfect be the enemy of the good. Doing something is always better than doing nothing. Even if it's not perfect. Even if it's not done well. Do what you can.
#lord knows that im still trying to pull myself out of the muck and into independence and dignity#i had to set a rule for myself that i need to wear clean clothes every day. and that i need to wear pyjamas to bed#that one's been hard. sometimes I dont have the energy to do it and i just stay in the same clothes for two days at a time#or i go to sleep in what i was wearing. but when i do follow that rule my quality of life is drastically better#not feeling dirty or gross goes a long way to making you feel more like a person#i also made a rule that im not allowing myself to look frumpy outside anymore. that means clothes that look nice#no more trackies and pj pants and all that stuff. i basically lived in perpetual pyjamas for four years and im over it#i still dress comfortably but the important thing is that i dress. i look put together. i wear things that make me happy#(and i didnt need to buy anything to do so. i just needed to start taking better care of myself)#and i stopped letting perfect be the enemy of the good. i started doing things shitty rather than not doing it at all#and the more i keep pushing with my ADLs the better i feel#what helps is now i dont have to contend with stairs and that has made a dramatic change to what im able to accomplish#ive also finally built up enough strength in my body that im able to go to the shops by myself. so i can buy things to make easy meals#and mum doesnt mind if i just put some things in the oven or air fryer for us for dinner.#i still cant really cook. i felt bad about that for the longest time. i didnt even try bc i knew what id make would be disappointing#or it wouldnt be up to the standards of what everyone else was making. i was so sick of feeling like a let down all the time.#now i just make what i can and my mum doesnt complain bc shes in the same boat.#and yeah. having help would be nice. it would mean id be able to do more than what i can do by myself.#and its great to see how far ive come. but im not a burden. and when i have the accommodations i need i can do a lot more#i do something rather than nothing and my life has dramatically changed since then. ive just gotten better and better.#chronic illness#disability#chronic pain#spoonie#one things for certain and thats that im never going to let myself rely on anyone else ever again.#i never want to be on the other side of that ever again. I don't want to be anyone's burden. i dont want that hanging over me#i do things by myself or i dont do them at all. and god fucking willing i'll never go back to needing as much help as i used to#i really didnt realise just how much of an obstacle living with stairs was in my life. it was the biggest barrier against everything#stairs stopped me from being independent. if i couldnt traverse them i just didnt go anywhere. my world shrank so much#and not having the proper wheelchair shrinks my world even more. im stronger than i used to be but im still severely limited in where i go
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izuku and spinner's conversation was peak actually so well handled.
he's so
#mha 427#also bakugo 'ALL THESE GIRLS SHOULD BE EXPELLED' katsuki and chillass todorki made an apperance#chisaki standing infront of eri's grandfather getting cooked lmao#3 more chapters#ALSO DEKU JUST ASKED SPINNER TO NOT WRITE A BOOK BUT RATHER A COMIC ABT SHIGARAKI????#WATCH ME MAKE THAT MY WHOLE PERSONALITY UNTIL THE CH IS OFFICIALLY RELEASED#AM in a wheelchair :(((((
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Christians seeing a disabled person: lol skill issue ✝️🙏
#I've gotten to the point of just running over people with my walker/wheelchair#if they try to walk in front of me to preach#like bih Im trying to stay in motion if you stop me I'll stop ur brain with my mind#it wasn't today I just remembered it happened cause I forgot my walker in my car#I usually use it while cooking#ex christian#religious trauma
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Bonus chapter sketches for SL chapter 8
#danganronpa#sdr2#v3#miu iruma#kokichi ouma#izuru kamukura#cooking#katsudon#improvised wheelchair#sketch dump#starting line
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Celebrating being able to be in the kitchen by cooking and baking all these apples and pears
#and my partner made me a little spice box thats accessible so i dont have to stand to get them#wheelchair cooking 🔥🔥
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@badheart — continued from here ;;
Naturally, the Light Yagami reference doesn’t fail to slip her notice; in fact, Vivian would soon let out a soft snort upon seeing her devour a potato chip in such a highly exaggerated manner while shaking her head, as if saying ‘You are so silly’. “Now, you’re making me wanna re-watch Death Note again,” she then finally comments, amused beyond belief. When Fang mentions liking anything coconut flavored, however, her brows would shoot upwards in newfound interest.
“Oh... you don’t say? To tell you the truth, I only have manly bath products, so I don’t know what coconut shampoo smells like,” Vivian goes on to admit. Of course, by that, she means her personal bath products included manlyᵀᴹ Moisturizing Shampoo, manlyᵀᴹ Hair and Scalp Conditioner, Invigorating Seaweed Shampoo, Minnesota Wood Body Wash, and BANDED Masculine Body Wash: Blood Orange; therefore, Vivian made the mental note of entering a Bath & Bodyworks shop as soon as she came back to Vancouver again, if only to better understand why her friend liked coconut shampoo so much. Still, at Fang’s next words, she’s quick to sweat-drop.
“Is that even a girls night out activity? Though, upon further reflection... I’m pretty sure if we ate only snacks for dinner, that would be deemed pretty ‘yeet hay’,” Vivian ponders aloud. Granted, she was no stranger to resorting to unhealthy dietary choices when home alone, to the point where there were admittedly times she only had salted seaweed for dinner, but still, she’s pretty sure they both deserved better than a ‘snack dinner’.
“Besides, if I’m not eating alone, I’d rather make you dinner myself... but as for why I asked, I guess I was just curious. What, is it suddenly a crime for me to wanna get to know my friends a little bit better?” Sure enough, Vivian then proceeds to squint at her rather judgmentally.
#badheart#║▌ ⧼ ⸢ ʚɞ ⸣︳m̲o̲d̲e̲r̲n̲. ⧽ ― ENTER THE MANLY HEROINE OF JUSTICE.#⸾ ❖︎ ⸾ ( SOCIALIZING / o2: vivian and fang ) ⤹ •• 𝕥𝕙𝕣𝕖𝕒𝕕𝕤.#⸾ ❖︎ ⸾ ( QUEUED ) ⤹ •• 𝕗𝕠𝕣 𝕥𝕙𝕖 𝕝𝕚𝕓𝕣𝕒𝕣𝕪.#[ IF FANG WAS THAT CONCERNED ABOUT HER WEIGHT ]#[ i feel like vivian would look into ways for her to still stay skinny while on a wheelchair ]#[ but she herself actually knows how to cook basic meals ]#[ so she wouldn't mind making them something to eat if fang happens to invite her to her apartment ]#[ vivian though is currently staying at a hotel so she doesn't have a kitchen she could really use ]#[ meaning hotel staff would usually bring her lunch and dinner ]#[ BUT IF VIVIAN SEES HOW MESSY FANG'S APARTMENT WAS she'd be like 'damn you really live like this??' ]
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i'm begging my uni to stop making every fucking student social activity something where you have to walk around a bunch if you are a slow walker who cannot help it they literally want you dead
#i try to walk as fast as i humanly can. which i shouldn't bc it hurts and makes me dizzy. and i'm still slower than everyone else#last week we divided into groups and had to walk to checkpoints around the city to do tasks#i had a friend in my group who knows abt my issues and they walked slower with me which was nice. everyone else walked like 10 20 meters#ahead and it was fucking embarrassing bc for every checkpoint they had to wait for me#and i felt bad my friend couldn't talk to anyone else in the group bc they were zooming way ahead of us and i'm the one who couldn't keep up#and like. they didn't know my body's fucked. but these are people i do not know well at all and maybe i don't wanna disclose my medical#history to everyone i interact with#and like this event wasn't mandatory. i could've skipped it#but it's every fucking time#most nights we end up going to a bar and to these people “walking distance” is like a half an hour. and they walk fast#i can never keep up#i don't reallu enjoy bars either and i don't drink but you just kinda have to endure to socialize. some days i can't handle it tho#this week there's another checkpoint type activity. i know i shouldn't. i know i'm gonna slow everyone down#but i got specifically asked and invited to be a part of a team. i can't remember the last time that happened#also we're doing a group costume and mine includes platform heels on the streets of a very old city i am so cooked#my friend is nice tho. they know the basic lore and check up on me a bunch which always catches me off guard 😭#i'm used to pushing through and also used to people not really taking my shit into consideration so i don't know how to respond sometimes#2 people in the group know the issues and i just sent the gc a “sorry in advance i can't walk very fast” so like what else is there to do#only accessibility info we're ever given is if it's wheelchair accessible. and that's good. like you should do that. but it kinda ends there#like how much walking is there. where are the stops. are there places to sit.#i love having to either push through or be excluded disabilities are awesome#been in soooo much pain lately and have to take breaks walking uphill. functional body#i live in an area where everything. literally everything. is uphill one way or another. so as you can imagine it's going great#also “you have to endure to socialize” as if i don't end up hovering around my friend like a lost puppy with separation anxiety anyway#the group costume is winx club. btw
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it's just interesting that the space she wants clear stays clear while the space i NEED clear always manages to be piled high with her shit
#remy says#I CAN'T JUST GET OUT OF MY WHEELCHAIR TO MOVE SHIT EVERY TIME#STOP DUMPING SHIT ALL OVER THE HOUSE#SHE'S TALKING ABOUT ADDING A RAMP BUT SHE CAN'T EVEN STOP HERSELF FROM ABANDONING HER SHIT IN MY WAY EVERY SINGLE DAY#i came back & the paths i'd cleared & rugs i'd move had not only been put back. but put back in a way that makes it even HARDER#fuck my life i hate living with a hoarder#the only table that wasn't completely unusable she managed to make unusable over the weekend#there is no bench space no dining table no coffee table free of her shit. that was MY ONLY TABLE#how the fuck am i supposed to eat & cook if there is nowhere for me to do thaf#i miss home so badly
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cinephile 2 cinephile communication
#finally home. talked to the one neighbor ive met again bc she likes my wheelchair (was on foot the first time)#and i dont have any dinner bc id have to cook it and thats not. happening#and the bobas mid sad well. for the best bc im never going back into that building again
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Fatigue and Dinner
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can someone who actually knows how to grocery shop and cook actual meals please just come possess me, thanks
#fr tho bc i never had the opportunity to learn bc the kitchen at home#is not accessible for my wheelchair for like Actual Proper Cooking purposes#and it sucks very much because I want to learn for practical purposes obviously#but also cooking is super cool and i want to be able to make stuff
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Ram using modern day mobility aids.
#ram#rezero#re:zero#re zero#she uses a wheelchair on her bad chronic pain/fatigue days. she uses crutches when its not too bad. she uses a cane around the mansion#shes disabled and she cant do much but shes still loved so much and that makes me so happy. she cant clean she cant cook#but she can do what she does best. shes good company (#shes just like me fr
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Me: *starts working in an assisted living place*
Resident: *thinks I'm a new resident because I have a cane*
#ope#disabled#i wish#i hate hurting myself trying to cook and trying to clean and trying to walk#gimme one of these wheelchairs and a accessible place to live and id thrive
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While we're on the subject of very lovely people god bless my flatmate because he has had to deal with all of my bullshit, including but not limited to "severe brain fog means i need help with basic tasks" "i am sick and cannot get to the shops" "i am in agony and the person on 111 is telling me to go to a&e" "my wheelchair is broken down (x2)" as well as the fact that my immediate response to any sort of overwhelming emotion is to cry and sometimes dissociate.
#i ordered a take out because I was really not in a fit state to cook and the problem with where i live is that i don't actually know what#my fucking address there are about 3 and none of them really work so i put in the wrong one apparently so the driver didn't come#and i had to get him to call them because i really wasn't able to do so myself (yay brain fog#seriously it took me about 10 minutes to work out how to put my shoes on earlier#normally i just go and collect it but my wheelchair and i can't walk that fucking far#i feel a bit annoying and useless sometimes i know logically I'm actually doing most things by myself#but i still need more help with relatively basic things than other people
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