#congenital deformities

[creepygoth666]

Chronic pain sucks. The constant inflammation, the throbbing or the stiffness or the stabbing or burning or ripping or a mix of any of those feelings.. it just sucks. And having to rely on both Rx and OTC pain meds for management that barely do anything sucks, too.

Klippel-feil deformity comes with fused vertebrae, butterflied vertebrae, scoliosis, misaligned ribs, floating ribs nerve pain and pinched nerves and chronically tight muscles and tension headaches. Hyper joint mobility syndrome means at any given time, with or without movement, any normal act like reaching, standing, turning, laying down, walking, etc - causes my limbs, patellas, or ribs to partially dislocate which runs the risk of pinching or trapping muscle and nerves and veins, which causes tingling, weakness and numbness. PCOS causes the hormone fluctuations that contribute to weight gain and the inability to lose said weight. Endometriosis causes inflammation throughout your abdominal cavity, and sometimes higher. And adding menopause to the mix, with already out of control hormones, makes the inflammation and joint pain worse.

There is no day that I can remember that I have ever been without pain.

I'm on serious pain pills, too. Tramadol mixed with 800mg ibuprofen, or fioricet, or Valium. I do my absolute best never to take any of these together outside of the ibuprofen/tram mix, which was approved by my doctor. And I'm lucky to have one that will prescribe me these. Just not all at the same time, and never any refills, which means I have to ration and make them last.

None of it works, though. Heat and ice packs, epsom soaks, jetted tubs and deep tissue massages.. all of it. The meds and any of the other remedies only give a fraction of relief. But never completely.

I've had ringing in my ears from muscle tension and high blood pressure for as long as I can remember. The hack of putting your palms over your ears and drumming the the back of your neck at the base of the skull to get rid of it has never worked for me.

But if you actually look at me, outside of the slightly off gait (my left leg is nearly an inch shorter than the right) and the slightly off center angle of my neck (it is angled to the right, and my right shoulder is slightly raised so it looks like I'm constantly giving attitude), you'd never know I had any of this going on. I've lived with all of this since childhood, and I barely register some of the pain anymore (like the partial dislocations) unless it's pinching something. I gross everyone out by popping my arms back into their sockets without flinching or the crackle sounds of my knees or the pop sound my femur makes when it pops out of the socket, when I bounce my leg while sitting cross legged.

Chronic pain sucks, and so does the lack of understanding and empathy for silent disabilities and chronic pain sufferers.

All this to say I worked 11 hours yesterday and my body is still in extreme pain from it, 24 hours later, pain that exceeds my norms and had me crying on break and wishing Kevorkian back from the dead. And not because my job is physically demanding - I do medical billing, so it's a desk job - but sitting for long periods of time hurts. Even with ergonomic chairs and devices, and getting up and walking around or the plexus/chirp wheels, and the stretching straps.

Chronic pain sucks.

[softstuffs]

"Acne just means you don't shower" "Just get whitening strips!" "Yellow teeth are disgusting" "stretch marks are gross though :(" "invisalign" "*unasked for comments on weight and dieting advice*"

That's cool! But by the way, how do you treat people with actual deformities? Not just a mole or a crooked nose. How do you treat people with visible birth defects? Burn victims, cleft palettes, craniofacial deformities? People's whose deformities are clear and visible? People with visible reconstruction scars, People with visible medical implants?

"Ugly" people do not owe you change. They do not owe you pretty faces or bodies. Your comments and jabs at "gross" traits just says the quiet part out loud.

[weezord-leezords]

[giantkillerjack]

The cool thing about a horror movie that takes place in a mental hospital and, shockingly, actually turns out to be on the side of mentally ill people is that it avoids all the common disgusting pitfalls of mocking, demonizing, and infantilizing mentally ill people.

The downside is

AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHH!!!!!!!!!

[It's much scarier.]

[illnessfaker]

re: your tags LITERALLY i don't understand it, people with acquired disabilities will complain about people with "visible disabilities" getting treated better and it's like

- i KNOW they mean congenital disabilities that often cause visible differences

- so often i wonder, did people not have disabled kids in their school. at all

- it all makes me feel like they don't see congenitally disabled people as the same thing as them

- i also don't think they even know we're on the internet

this has sat in my inbox for a while bc i have a lot of thoughts on the subject but i partially agree.

i think they forget congenital physical disabilities exist to the extent that they probably aren't thinking of congenital physical disabilities when they're thinking of visible physical disabilities. they're probably also thinking of other physically disabled people whose disabilities were usually also acquired, such as disabled seniors who need mobility aids or disabled adults who acquired their disability through significant enough injury that it is apparent to others in some way.

but i think the reason for this is because congenital physical disabilities that tend to cause visible differences are so thoroughly invisibilized in society - i mean, so are physically disabled people in general and the two groups of people i mentioned above, but being someone born with those types of congenital physical disability usually means being invisibilized and stripped from autonomy and agency from the get-go through various sociocultural systems.

they don't think about congenitally disabled people because even if you take into account the fact that society generally teaches the abled to not think about disabled people in general, disabled people who don't have anything like Down's syndrome, cerebral palsy, congenital structural differences, and certain genetic disorders (particularly in the case of accompanying intellectual disability) are taught to see those disabled people as repulsive and inhuman unless that's something they recognize and go about actively unlearning.

but overall i don't think it's about "forgetting" so much as they, whether they realize it or not, don't want to see people with congenital physical disabilities that have "obvious" tells as being anything like them on a fundamental level because that mentality isn't limited to abled/able-bodied people.

btw this isn't really a commentary on my part on who "has it worse" overall because that really depends on what specific groups of people you're talking about and that's a complicated subject. but certain groups of disabled people are able to weaponize ableism against other groups of disabled people in a way that is punching down and mistreatment of people with visible congenital physical disabilities (especially if they're also intellectually disabled) is one of those incidences.

[seerauber-entartete]

Ok, I’m just trying to read a how-to on converting a cable knit sweater into a cardigan, why must it be interrupted every three lines of text with an ad?

Also, I feel the image chosen for this ad is not a good representation of “beautiful genetics photos.”

[drpushpvardhanmandlecha]

Pediatric Orthopedic Doctor in Indore | Dr. Pushpvardhan Mandlecha

Meet Dr. Pushpvardhan Mandlecha, expert in pediatric orthopedics in Indore. Book your consultation today for compassionate care and specialized treatment.

[expertorthopedicssolutions]

Dr. Nishant Soni provides specialized treatment for Congenital Hand Deformities in Delhi, ensuring comprehensive care and optimal outcomes for patients. His expertise and dedication in addressing congenital hand conditions ensure that patients receive the best possible treatment tailored to their specific needs.

[allkindsofadvocacy]

Find Me Friday: Zander & Nick!

Logo that says Reece’s Rainbow Special Needs Adoption Support in blue, below a blue & yellow paint stroke rainbow graphic with a yellow Ukrainian trident symbol on the right half. In this series, each Friday I’m able, I want to share a different child or group of children who are available for adoption and listed through the adoption advocacy website Reece’s Rainbow. Please note, names used on…

[tetsunabouquet]

Yesterday, I went on a trip I had planned ages ago. The town I went to had a mall that was similar to the one where I bought a pair of awesome plateau shoes when I was 18. 7 years later after I got them, and I am walking them to their literal death. You know why? Like I mentioned before, I was born with congenital claw toes, anyone who suffers from this or a similar condition will tell you this: Shoes are our worst enemies. I'll never forget that one time when I was 15 and I bought a cute pair of plateau shoes from the Primark. The first time I tried to walk on them to go to a store at the edge of my town, I ended up bleeding so heavily from the back of my ankles, it literally soaked through the shoes and my mom had to throw them away afterwards. Because out feet is build a bit different, and only shoes like converse and sneakers are generally build for comfort, these are the only types of shoes someone like me can generally wear. In the summer I also have flip-flops, but that's where my choices end. And as a fashionable woman who's somewhat insecure about being short, not being able to wear shoe-types like heels can get me a bit gloomy whenever I wear an outfit that would have been better suited with different shoewear other then my eternal sneakers. The store I went to when I was 18, seemed to be some kind of outlet for trendy shoes and the plateau shoes I bought there have been the only plateau shoes my feet never had issues with! I've been craving more of those kind of gems for a couple of years now. So when I noticed they had a similar mall, I noted the adress down in the hope I could find a similar shoestore too. I did. Again, I found these babies that haven't gotten me a single blister yet despite me having changed into the shoes and having spent the remainer of the trip wearing them. Do you know how UNHEARD of, that is with feet like mine?! On top of that, these are actual Barbie ankle boots that were released because of the Barbie movie! They had a couple of different models, and these were the only ones made from a soft fabric so I wanted to give them a try. Match made in heaven. I've already made a sprint on these babies too! I'm so fucking happy, I am almost crying. Say whatever you want about the Barbie movie and wether it handles feminism correctly or wrong, but god damn am I grateful for this movie for giving me a pair of pretty boots feet even feet like mine could wear. I swear, whoever designed these boots is someone I wanna hug.

[fleshmaid]

Had to drop my cat off for surgery this morning. I feel bad for having to leave her.

[she-is-ovarit]

Advantages to being female ("AFAB").

Biological differences in being female are often discussed negatively in order to indicate our disadvantages and where and how we are exploited within patriarchal societies.

On Ovarit, there was a thread in which users shared some biological differences to being female that illuminated our strengths. While of course biological differences in males vs. females is directly rooted in reproductive evolutionary strategy (whether someone develops down a reproductive pathway geared towards an overall reproductive system that supports gestating life and creating larger ova vs. not) I thought I would share some examples of advantages not directly connected to childbirth and childbearing. This is not an exhaustive list.

We are more flexible than male people.

We have better stamina and endurance in some extreme long-distance sports in comparison to male people (such as in ultra-marathons).

Some animals (especially other mammals such as wolves, horses, cats, etc.) are instinctively threatened by males, even if they have never been harmed by them. This is not the case with women.

We have better immune systems and survive viruses better than male people.

We survive famines and epidemics overall better than male people.

We survive variations in temperature overall better than male people.

We have better sense of smell than men.

Our chromosomes provide us with extra protection against certain genetic diseases like hemophilia, and we have more genetic diversity.

We have better balance due to our center of gravity being lower, in our pelvis's, while males have their center of gravity in their torsos. This makes us naturally better at sports like rock-climbing, gymnastics, certain martial arts, etc.

"The male fetus is at greater risk of death or damage from almost all the obstetric catastrophes that can happen before birth.2 Perinatal brain damage,3 cerebral palsy,4 congenital deformities of the genitalia and limbs, premature birth, and stillbirth are commoner in boys,5 and by the time a boy is born he is on average developmentally some weeks behind his sister: “A newborn girl is the physiological equivalent of a 4 to 6 week old boy.”

Women and girls have better color perception than males.

Multiple orgasms.

We're biologically better suited to being astronauts and living in space (note: and this was discovered 15 years ago yet this work was never published)

Some articles (debatable on credibility) suggest that we are better able to withstand complete sensory deprivation for several hours in comparison to men, who were able to withstand complete sensory deprivation for minutes.

For unknown reasons, we do not experience the same percentage of macular degeneration that men do in space.

We have a different adrenaline response. Our hormone systems work differently and so we do not lose as much decision making ability and fine motor control as men do in a crisis, making us better snipers and pilots thanks to our reaction time.

We have better life expectancy overall.

[homunculus-argument]

Come to think of it, I really like doing worldbuilding in common misconceptions caused by survivor/sample bias. I got too gleefully into infodumping about worlds I made up, so I'm going to be merciful and throw a cut-off right here:

(damn, you're still reading? Well, that's on you. Here we go.)

In The Book I Am Not Writing, the fisher folk have very strict concepts of ritual purity, being strict about seemingly arbitrary rules of cleanliness, and they simply don't do extramarital relationships. They are, however, polygamous both ways, so consulting the other spouses about introducing another wife or husband into the marriage is always an option. They also seem to have absurdly large flocks of children. Being both an unusual ethnicity who are commonly considered pretty, and also essentially completely off-limits for casual sex, they are often fetishised, and there's a myth that fisher men are so insanely good in bed that their wives simply cannot resist the temptation of their four sexy husbands even if they're otherwise absolutely done getting pregnant all the time.

The truth is a lot more complicated than that. First of all, in the multiple-spouse marriages, all children are raised between all parents and many clans consider it inappropriate to inquire which kids are biologically whose, so if one or two of the partners has fertility issues, nobody from the outside would know. And the seemingly arbitrary purity rules aren't all that random either - many of them actually ensure a higher standard of hygiene than what other cultures around them have. This, and restrictions about marrying within one's own clan to avoid inbreeding, ensure healthier children. They aren't fucking and getting pregnant more than any other peoples, they have more children because of lower infant mortality.

The Travellers are also "outsiders" living in diaspora, who are - as their name implies - itinerant and never stay in one place for long. Not by choice, though many of them will say they'd rather live this way than to ever settle down, but because almost all towns and cities have discriminatory laws explicitly prohibiting Travellers in particular from staying in the city for too long, or limiting how many of them can be allowed within the city walls at the same time. They don't call themselves Travellers, but refuse to tell outsiders what their own language's name is for their own people, out of fear that the name would be appropriated and turned into a slur. Secrecy is the only privacy that they are allowed to have.

An unusually large number of Travellers also have unusual physical traits, dysmorphic structural features, and congenital disabilities. This is used as xenophobic cannon fodder by citizens of the Empire, treated as proof that the Travellers are so morally crooked that it even deforms their bodies. This, of course, is bullshit. In truth, Travellers do not have any more disabled or deformed babies than anyone else - what they do have is a strong culture of NEVER abandoning one of their own. No matter what. So while people of the Empire associate health and beauty with moral goodness, and consider having "imperfect" babies shameful, Travellers simply don't practice the common peoples' common habit of abandoning or discreetly 'disposing' of children who aren't likely to survive into adulthood, or who will need support their entire lives. "What can be done to one of us, they will do to all of us" is how they live, so nobody gets left behind.

On the opposite end of society there are the Baronesses, the Empire's all-female army of trained magic-wielders. A military class, whose inherent magical powers do not even manifest in every child or even every generation, but when it does, it's always on girls. Daughters are trained for combat, they are the ones to carry on the family name. Since a woman does not need to be married in order to be sure that all her children are hers, sons are not particularly valued even as political tokens for arranged marriages. It is considered common knowledge that there's something in "wielder blood" that makes the male carriers of it weak just as it makes the female ones strong, and that is considered the reason why the male members of wielder families tend to be so dysfunctional, emotionally frail, rampant with substance abuse and more likely to die in the womb or in early infancy.

It is politely never questioned how downright convenient it is that it just happens to be the less wanted sex who are far, far more likely to simply perish away for no apparent reason, especially when it comes to the most harsh, highest-ranking, and most competitive wielder families.

Far across the great ocean, on the opposite corner of the map of the world that the Empire knows of, are the Northlands. Almost mythical mystical lands, that are the source of the various types of thick white pelts and some other exotic goods, commonly supposed to be populated by completely wild, savage people. Northmen are all lumped together, as most people of the Empire would find it hard to believe that the Northmen have even one civilised culture, not to speak of consisting of several cultures and creeds with their own languages and customs. The only few Northmen that the Empire has seen have been foreign sailors in port towns, or perhaps someone's unit of rare exotic bodyguards, undoubtedly a weird flex.

Northmen are considered feral, and the "civilised" ones a strange exception to a supposed rule. It is said that they are exclusively carnivores, eating only meat like tigers and drinking only alcohol. That they are nocturnal, with eyes like cats and wolves that gleam in the dark, and that sunlight hurts them. The sun never rises in their lands, so naturally the people are as pale as cave olms, just like the pelts of their animals are all white. And just like cats and wolves, their infants are all born with blind blue eyes, which either stay blue or turn yellow once they grow.

This, too, is a mishmash of myth and half-truth. Northfolk who venture this far south are more likely to eat meat than any fruit or vegetable they are offered, since they are more familiar with what goat or chicken taste like than any fruit of this strange climate. Northland alcohols are generally bitter ales and dry wines, and the sweet liquors and strong wines of Southlands are a treasured luxury for the ones who are familiar with them, and a very fast way to get shitfaced if one isn't. They aren't nocturnal at home, but having no other protection from the relentless sun, they do prefer to move at dusk to avoid getting sunburn. And The Long Night only lasts a few weeks or months, but that's difficult to explain to people whose common language doesn't have words for "snow" or "winter."

There are no Nothfolk with yellow eyes, but blue eyes are very common, and to Southland people to whom both eye colours are unnatural and associated exclusively with beasts and carnivores, they rarely notice that they've never seen a yellow-eyed one. And being born with blue eyes like wolf pups and kittens isn't a myth, that really is a thing that happens to white people.

[verrixstudios]

Quick question about the characters u posted!!

Is Finch's wing an injury, or wasnit like that at birth? (Curious bc I have an oc with a congenital wing deformity and I like knowing if I have the same/similar ideas to other people JEJCNEHSJF)

I am bustling with excitement that people are asking me about them

Anyway anyway I was reading book number jade mountain and I remembered a certain Skywing’s injury from a Sandwings tail. I looked up art of the grump and strangely everything I saw with him had just a simple scratch scar and I was really curious cause I’d imagine Sandwing barbs would do something unique at least. I took inspo from the drago viper bite description, except if you toned it down a bajillion times. If one of those barbs could be used to slice instead of just stab, it made me wonder what it would do to a wing membrane since it’s so thin and the poison could eat away and stop it from being able to heal back easily. (Not to mention a Sandwing strategist would obviously go for a skywing’s wings.) Thus my idea for Finch became a thing. He’s become rather great at climbing to make up for the inability to fly.

[cartoonscientist]

i won’t deny that the modern world has tons of miraculous medication and accessibility aids and stuff, but also like, if people imply you’re less of a person because “you’d die instantly in medieval/caveman times”, I just want you to know that isn’t necessarily true. if schizophrenia, autism, asthma, etc. were such death sentences, they wouldn’t be nearly as common in the human population as they are now.

if you’re schizophrenic, maybe you would have been a mad cave hermit or a fortune teller, or an eccentric rich person known for responding to their own statements in different voices and sleeping under a pile of cats. if you have severe gastrointestinal illness, maybe you would have found a specific pool in the forest that you like to drink from to neutralize the acidity in your stomach, or maybe you’d be a local character who only eats barley soaked in milk. if you have congenital bone deformities in your knee and pelvis, maybe you would have had a beautiful walking stick. if you suffer from debilitating chronic fatigue, maybe you would have been a poet who writes from their bed about their fantastical dreams.

[nightmaretour]

Happy disability pride month to disabled people who even other disabled people can't seem to be normal about in particular.

Happy disability pride month to people with paralytic disorders, people with moderate to severe brain damage and people with IDs.

Happy disability pride month to people with facial and limb differences, people with congenital deformities and people with extensive scarring.

Happy disability pride month to people who experience incontinence, people who drool, people with colostomy bags, people with feeding tubes and people with ventilation machines.

Happy disability pride month to people who struggle to or cannot bathe or keep their home clean, people who are fat either because of their disability or not, people who rely on takeout and pre-packaged meals, people who can't exercise, people who smoke, drink or take drugs and people who aren't "doing everything they can" when it comes to managing their disability.

Happy disability pride month to schizospec people, people who experience psychosis, people with stigmatised personality disorders and other widely misunderstood, misrepresented or unknown mental health disorders.

You're all amazing and I'm proud of you even if you're struggling to be proud of yourself. You deserve to be represented, heard and treated with respect. You deserve to be included in discussions about disability just as much as everyone else.