#chronic pain syndrome

[murruspins]

[asecretnerdcollection]

the first thing I lost to my disability was the ability to play my violin, it happened at the same time as my loss of writing but was so much more of a loss to me. it took me three years to mention my violin without crying.

6 years later having been barely able to hold my violin for more than 10 minutes without having a flare up and only doing so a handful of times over these years I still can't stop considering myself a violinist. I didn't choose to stop playing and if all of my disabilities disappeared tomorrow it would be the first thing I would try to do again.

This for me is the grief of disability, not just the loss of my body but that of my Identities as they have slowly peeled away as its got worse.

[cripcoin]

Diuturnic / Chronic Illness flags

Diuturnic is a suffix for chronic illness and long lasting conditions.

The flags above are as follows

Diuturnic -> coming from the latin words Durus (meaning harsh, severe etc) and Diuturna or Diuturnum (meaning long lasting), this term is not meant to be a replacement use for chronic but to encompass all chronic conditions.

DolorDiuturnic / DoloTurnic -> the orange flag, representing chronic pain, dolor is Latin for pain. This includes all forms of chronic pain.

LangourDiuturnic / LangoTurnic -> the blue flag, coming from the Latin word Langour (meaning faintness, weakness, infirmity, feebleness, exhaustion), this term is meant to encompass all forms of chronic fatigue.

It is not required to use the created names to use the flags, you can simply call them alternative flags for chronic illness, pain and fatigue.

Our previous chronic illness flags:

Pain - fatigue

We are accepting requests for sub terms/flags under Diuturnic !

Tagging:

@sanguinaryfreaks , @hewasanamericangirl , @the-church-of-strabismus

[cpunkwitch]

Dear flat shoes;

I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch

[unfilteredrealities]

Hey Google, when will I get a freaking break from having new symptoms every fucking day? 😭

[disabledsysboxes]

Chronic pain - 1

Requested anonymously

[chronicallyuniconic]

Another demoralising doctors appointment later..

Is it always going to be this way? For people with chronic illnesses?

Imagine going to the dentist with toothache and the dentist just outright denies it, tells ya you don't have toothache and leaves it in your mouth.

That's how I feel every time I leave the doctors.

I've not even got the head space for the words right now. Just demoralised.

[whatthefibromyalgia]

Hello beautiful Tumbloves! I am working on building a village of fibromyalgia warriors and supporters. I was diagnosed on 12/11/2024 and during this two year battle and journey I have often felt isolated and alone. This leaves me longing for a community that can understand me so, I have decided to build my own. Not just here on Tumblr but other places as well. I have decided to create a discord server to allow anyone interested or needing a safe space to chat and share their stories to find the support they need. My goal is to build an all inclusive community who's only goal is to share empathy, compassion and understanding to all of us struggling on a daily basis to get through this with our sanity in tact.

If this sounds like something you would be interested in please stop by my server and introduce yourself. There will be a chat area that will always be open to those who need to stop in and just chat and vent and if support. I will build on to this server as I see how it grows.

I look forward to meeting you and being able to build an amazing village with all of you.

Mrs-Q

[asecretnerdcollection]

ouch

[inkstainedfairy]

PT suggested nervous system disorder of some kind.

Not looking forward to pain management appt on Thursday…

I couldn’t walk on my own today and had to call out of work.

[murruspins]

TW !!!!!!!

I lost feeling in my tongue and the skin is literally peeling off. Does this happen to anyone else who looses feeling in their limbs or parts of their body 😭😭

[cpunkwitch]

My pain is already starting to bother me and there's like 12 minutes before the show starts

After the opening set I'm finding away in the dressing room to take meds n shit before my set

Being a disabled drag artist is kinda scary ;-;

[unfilteredrealities]

Hey Google please make this hip pain go away for fucks sake I can’t cope with it no more 😭

[chronicallyuniconic]

Chronic Pain/Fatigue & Cleaning

I generally clean in small, bite-sized amounts, spread across several days which makes it more manageable and allows me to stay on top of mess

Today however, I accidentally dropped some stuff, requiring me to use Henry Hoover, as it wasn't something a brush would clear up

The hoover/vacuum is like a final level boss fight when you have chronic pain and fatigue (for me)

It is SO HEAVY, even just pulling it around, not lifting with my arms. The back and forth across carpet feels like I'm scything grass, I'm using all of my weight to push forward and pull back the hoover head. Tilting my head down makes me feel dizzy, that feeling you might get on a rough boat trip.

Pain creeps in, crawling up my shins and wrapping around my shoulders

After I finished hoovering that small patch, I am sweating through my back, I can feel the beads slowly rolling down my neck & I can barely catch my breath. I feel irritated by the sweat, uncomfortable, unsteady on my feet, so I go back to my safe spot

I sit down, immediately my left arm and hand is tingling and burning, like when you've been lifting weights in repetition and the jelly-feeling comes on. Then it begins in my right arm & hand. There was still tingling in both hands 20-30 minutes later

I remember the before-times when I would dedicate my Sundays to cleaning, I could do it all in one day, preparing myself and home for the week ahead. That would mean dusting, polishing, hoovering, mopping, clearing dishes and so on

I can't do it like before. It makes me feel so useless & weak, another reminder that my body doesn't work like that anymore, that I'm not the same. It's frustrating to see the accumulation of "what I'd like to clean" and then realise the little amount I am actually able to and it makes me feel dirty. I can't remember when I was last able to clean my dishes

Oh to go back to before so I can just "be" without consequence

[whatthefibromyalgia]

I have talked about this so much over the last two years. Like you mean to tell me, I survived life with an untreated Schizophrenic with multiple personalities who hated me and beat me. A SA step father, 10 years with an abusive husband, the loss of a child.. all while screaming just let me end this shit. And then I find the man of my dreams we have a beautiful son and family and grandchildren and my body decided if life couldn't force my hand and make me un-alive myself then its just gonna do the job for me???

That is absolutely so fucked up bullshit!

Mrs-Q

there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.

[asecretnerdcollection]

I think one of the reasons it's so hard for so many people to grasp how bad my chronic illness and disabilities are is cause I don't have good mobility aids, and a major symptom of mine is nausea so I simply can't leave the house to see them when I'm bad