#chronic pain syndrome

[murruspins]

[asecretnerdcollection]

the first thing I lost to my disability was the ability to play my violin, it happened at the same time as my loss of writing but was so much more of a loss to me. it took me three years to mention my violin without crying.

6 years later having been barely able to hold my violin for more than 10 minutes without having a flare up and only doing so a handful of times over these years I still can't stop considering myself a violinist. I didn't choose to stop playing and if all of my disabilities disappeared tomorrow it would be the first thing I would try to do again.

This for me is the grief of disability, not just the loss of my body but that of my Identities as they have slowly peeled away as its got worse.

[chronicillnesshumor]

[cripcoin]

Diuturnic / Chronic Illness flags

Diuturnic is a suffix for chronic illness and long lasting conditions.

The flags above are as follows

Diuturnic -> coming from the latin words Durus (meaning harsh, severe etc) and Diuturna or Diuturnum (meaning long lasting), this term is not meant to be a replacement use for chronic but to encompass all chronic conditions.

DolorDiuturnic / DoloTurnic -> the orange flag, representing chronic pain, dolor is Latin for pain. This includes all forms of chronic pain.

LangourDiuturnic / LangoTurnic -> the blue flag, coming from the Latin word Langour (meaning faintness, weakness, infirmity, feebleness, exhaustion), this term is meant to encompass all forms of chronic fatigue.

It is not required to use the created names to use the flags, you can simply call them alternative flags for chronic illness, pain and fatigue.

Our previous chronic illness flags:

Pain - fatigue

We are accepting requests for sub terms/flags under Diuturnic !

Tagging:

@sanguinaryfreaks , @hewasanamericangirl , @the-church-of-strabismus

[chronicallyuniconic]

I feel guilty because to them it's "only" chronic pain & fatigue.

It's not life threatening, even though it can get there.

It's not really treatable, just sit-withable.

It's not something like cancer, that can be cut or irradiated out of you.

It's not like I have to do anything other than sleep & try to cope with the pain levels.

I feel guilty because my illness isn't seen as valid as others.

I feel guilty because funding is so minimal and research so sparse, i am only able to lay in bed.

I feel guilty because my illness isn't seen as worth caring about and by extension, me.

I feel guilty about their positive outlook when I used to have that too, but they're getting treatment unlike me.

I feel guilty for having bad and worse-than-bad days, when I used to fully function like my friends and family.

I feel guilty because nobody gives a damn about M.E

#does this make sense

[cpunkwitch]

Dear flat shoes;

I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch

[unfilteredrealities]

Hey Google, when will I get a freaking break from having new symptoms every fucking day? 😭

[disabledsysboxes]

Chronic pain - 1

Requested anonymously

[thanakite]

I really wonder how many symptoms of Fibromyalgia are misattributed because of the high number of people who get misdiagnosed

For example I was finally recently diagnosed with EDS and hypermobility but before that my diagnosis was Fibromyalgia (and Chronic Pain Syndrome which is essentially the same thing) and I know there are a bunch of others that this has happened to or they got another diagnosis later on but essentially the same thing happened to them as well

The issue is that I don't think doctors and researchers or whatever are going through and being like "Ah yes we thought this person had Fibromyalgia but it was something else so their symptoms skewed how we view Fibromyalgia since we thought they had Fibromyalgia"

And that's not even considering the fact that some people get misdiagnosed but NEVER end up with their actual diagnosis

And I DO think this is a problem with last consequences for people who suffer from chronic pain, as it ups your chances of getting misdiagnosed, which prevents you from getting the care and support you need

[whatthefibromyalgia]

Hello beautiful Tumbloves! I am working on building a village of fibromyalgia warriors and supporters. I was diagnosed on 12/11/2024 and during this two year battle and journey I have often felt isolated and alone. This leaves me longing for a community that can understand me so, I have decided to build my own. Not just here on Tumblr but other places as well. I have decided to create a discord server to allow anyone interested or needing a safe space to chat and share their stories to find the support they need. My goal is to build an all inclusive community who's only goal is to share empathy, compassion and understanding to all of us struggling on a daily basis to get through this with our sanity in tact.

If this sounds like something you would be interested in please stop by my server and introduce yourself. There will be a chat area that will always be open to those who need to stop in and just chat and vent and if support. I will build on to this server as I see how it grows.

I look forward to meeting you and being able to build an amazing village with all of you.

Mrs-Q

[alice-madness-decends]

PLEASE DO NOT READ IF YOU ARE FEELING UNHAPPY OR DEPRESSED.

Sometimes I feel absolutely terrified for my future.

I turned 31 in January.

I'm physically disabled.

I live with my parents, (whom have no problems with me living them), but I'm lonely.

I fear I'll always be alone in terms of partnership.

I've had one relationship and it lasted 9 years.

I was unhappy for reasons I'd rather not fully detail, so all I shall say is that I wasn't understood or treated in the nicest of ways.

At the moment, my future will consist of assisted living.

I have no partner to love and to love me.

I fear I shall always be thus way.

Lonely hospital trips and stays.

Surgeries and other procedures with no one to visit me.

How do I make a living if I'm unable to work.

Do I really only have carers and nurses as my friends in my future?.

I have a great relationship with my family but when my parents are no longer here I worry my Sister won't always bother with me even though we've never fought once.

Sorry if this has upset anyone, I just felt the need to get this out there. I shall probably delete a bit later.

[asecretnerdcollection]

ouch

[inkstainedfairy]

PT suggested nervous system disorder of some kind.

Not looking forward to pain management appt on Thursday…

I couldn’t walk on my own today and had to call out of work.

[murruspins]

TW !!!!!!!

I lost feeling in my tongue and the skin is literally peeling off. Does this happen to anyone else who looses feeling in their limbs or parts of their body 😭😭

[chronicallyuniconic]

Another demoralising doctors appointment later..

Is it always going to be this way? For people with chronic illnesses?

Imagine going to the dentist with toothache and the dentist just outright denies it, tells ya you don't have toothache and leaves it in your mouth.

That's how I feel every time I leave the doctors.

I've not even got the head space for the words right now. Just demoralised.

[cpunkwitch]

living with chronic pain, fatigue and cotards syndrome is a fucking trip man