#chronic pain syndrome

[murruspins]

[asecretnerdcollection]

ouch

[chronicillnesshumor]

[chronicallyuniconic]

I feel guilty because to them it's "only" chronic pain & fatigue.

It's not life threatening, even though it can get there.

It's not really treatable, just sit-withable.

It's not something like cancer, that can be cut or irradiated out of you.

It's not like I have to do anything other than sleep & try to cope with the pain levels.

I feel guilty because my illness isn't seen as valid as others.

I feel guilty because funding is so minimal and research so sparse, i am only able to lay in bed.

I feel guilty because my illness isn't seen as worth caring about and by extension, me.

I feel guilty about their positive outlook when I used to have that too, but they're getting treatment unlike me.

I feel guilty for having bad and worse-than-bad days, when I used to fully function like my friends and family.

I feel guilty because nobody gives a damn about M.E

#does this make sense

[cpunkwitch]

Dear flat shoes;

I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch I hate you I hate you I hate you I hate you I hate you ouch

[cripcoin]

Diuturnic / Chronic Illness flags

Diuturnic is a suffix for chronic illness and long lasting conditions.

The flags above are as follows

Diuturnic -> coming from the latin words Durus (meaning harsh, severe etc) and Diuturna or Diuturnum (meaning long lasting), this term is not meant to be a replacement use for chronic but to encompass all chronic conditions.

DolorDiuturnic / DoloTurnic -> the orange flag, representing chronic pain, dolor is Latin for pain. This includes all forms of chronic pain.

LangourDiuturnic / LangoTurnic -> the blue flag, coming from the Latin word Langour (meaning faintness, weakness, infirmity, feebleness, exhaustion), this term is meant to encompass all forms of chronic fatigue.

It is not required to use the created names to use the flags, you can simply call them alternative flags for chronic illness, pain and fatigue.

Our previous chronic illness flags:

Pain - fatigue

We are accepting requests for sub terms/flags under Diuturnic !

Tagging:

@sanguinaryfreaks , @hewasanamericangirl , @the-church-of-strabismus

[unfilteredrealities]

Hey Google please make this hip pain go away for fucks sake I can’t cope with it no more 😭

[disabledsysboxes]

Chronic pain - 1

Requested anonymously

[alice-madness-decends]

PLEASE DO NOT READ IF YOU ARE FEELING UNHAPPY OR DEPRESSED.

Sometimes I feel absolutely terrified for my future.

I turned 31 in January.

I'm physically disabled.

I live with my parents, (whom have no problems with me living them), but I'm lonely.

I fear I'll always be alone in terms of partnership.

I've had one relationship and it lasted 9 years.

I was unhappy for reasons I'd rather not fully detail, so all I shall say is that I wasn't understood or treated in the nicest of ways.

At the moment, my future will consist of assisted living.

I have no partner to love and to love me.

I fear I shall always be thus way.

Lonely hospital trips and stays.

Surgeries and other procedures with no one to visit me.

How do I make a living if I'm unable to work.

Do I really only have carers and nurses as my friends in my future?.

I have a great relationship with my family but when my parents are no longer here I worry my Sister won't always bother with me even though we've never fought once.

Sorry if this has upset anyone, I just felt the need to get this out there. I shall probably delete a bit later.

[inkstainedfairy]

PT suggested nervous system disorder of some kind.

Not looking forward to pain management appt on Thursday…

I couldn’t walk on my own today and had to call out of work.

[asecretnerdcollection]

the first thing I lost to my disability was the ability to play my violin, it happened at the same time as my loss of writing but was so much more of a loss to me. it took me three years to mention my violin without crying.

6 years later having been barely able to hold my violin for more than 10 minutes without having a flare up and only doing so a handful of times over these years I still can't stop considering myself a violinist. I didn't choose to stop playing and if all of my disabilities disappeared tomorrow it would be the first thing I would try to do again.

This for me is the grief of disability, not just the loss of my body but that of my Identities as they have slowly peeled away as its got worse.

[murruspins]

TW !!!!!!!

I lost feeling in my tongue and the skin is literally peeling off. Does this happen to anyone else who looses feeling in their limbs or parts of their body 😭😭

[chronicallyuniconic]

Another demoralising doctors appointment later..

Is it always going to be this way? For people with chronic illnesses?

Imagine going to the dentist with toothache and the dentist just outright denies it, tells ya you don't have toothache and leaves it in your mouth.

That's how I feel every time I leave the doctors.

I've not even got the head space for the words right now. Just demoralised.

[aetherrexic]

me: my brain fog doesn't affect me that much also me: *forgets how to spell next* nex, necst, nest

[cpunkwitch]

living with chronic pain, fatigue and cotards syndrome is a fucking trip man

[consider-your-potatoes-mashed]

Me: “my pain and fatigue and everything else is getting worse and doctors still don’t know what to do about it”

My mom: “ well the problem will fix itself and you’ll get better and then it won’t matter”

Me (internally yelling in my head): THATS NOT HOW CHRONIC ILLNESS/PAIN FUCKING WORKS MOM I HAVE TO USE A CANE (AND NOW CRUTCHES) TO GET AROUND OTHERWISE ID BE STUCK INSIDE