#called MyChart

[bee-whistler]

Funny thing about executive dysfunction is that everyone treats you like you’re a flake and an airhead and unreliable and the one with the problem… until they’re really busy or distracted or start to getting old and forgetting things, and you’re there in the exact same situation they are looking at your calendar app and to do list and the conversation you made sure to have in a text or email so you could go back and look at it.

Same as you did when you were younger because you needed to. Entirely free from this weird state of denial that they’re in or loss of identity, all because they’re used to just remembering stuff or getting it without effort.

Who’s the liability now, Sylvia?

[bunnyb34r]

Oh fucking come on

The dr I was trying to make a mychart appt with no longer sees in office patients?? Ffs

Like cool cool cool the one dr I liked and didn't worry ab going to IS NO LONGER SEEING IN OFFICE PATIENTS??!

[lesenbyan]

man I've been getting my T via planned parenthood for two whole ass years and then they switched to MyChart wherein none of the prescriptions actually make it to my pharmacy to be filled and my messages for refills are ignored and last time filing a complaint got it through (5 days later) and this time I've filed two complaints and put in one renewal request and it's been almost a week. I'm so annoyed I've set hellmart's insurance bullshit to find me an in-network endocrinologist bc even if they do finally push it through, I'm not going back. Which upsets me bc I want to support PP, but if they can't even fucking support me then I'm not gonna keep giving them money

[grimmjowjaegerjaquez]

its my own fault for not checking sooner (bc i forget my mychart login like all the fucking time and get discouraged from checking just from that) but i finally found out why i didnt get my t refill last time i tried asking cvs :)

[avatar-aaang]

people are about to like me a whole lot less lmao

[dragonanon]

Clinics: Here’s a handy website and app you can use to make appointments, look at your scheduled appointments, and more. Please use it, it’s very helpful.

People: Okay

Also people: *Doesn’t use it* wHAT DO YOU MEAN MY APPOINTMENT WAS VIRTUAL?! IT’S NOT VIRTUAL!

Clinics:

[babyloniastreasure]

sometimes i like to play a fun game called ‘How long will it take my healthcare provider to see my Urgent Medical Message?’

So far, the answer is two weeks. :) as you can imagine, I’m fine

[3liza]

my attending left the hospital im at with my insurance so i met the new one yesterday and like the first thing she did was tell me some straight up wrong information which appeared to be either her receiving slightly wrong medical data after a game of doctor telephone or possibly just completely fucking up at reading a study herself.

i almost never am able to respond during appointments when a doctor does this to me because of course i cant track down the study while im on the zoom call, so in several cases now i have sent a mychart message and once an actual fax after the appointment, JUST to let a doctor know they told me some complete nonsense. and im always polite and professional about it, and im sure its annoying as hell and that they usually assume im wrong or crazy without actually checking their information, but the possibility that it will prevent the doctor repeating that misinformation to someone else makes me keep doing it, more or less compulsively.

me: my biggest acute medical problem is probably the chronic dehydration. i cant drink enough fluids to stay hydrated because of the gastroparesis, and if i try, the fluids come back up, causing GERD issues. sports drinks and pedialyte are very helpful, but expensive. homemade preparations require an amount of time and executive function investment i am having trouble keeping up with. what do you suggest

the doctor: theres new research that 50/50 apple juice and water is actually better at rehydrating people than pedialyte or sports drinks.

me: that doesnt sound right. apple juice has that much sodium in it?

the doctor: pedialyte actually has too much sodium in it and can cause additional dehydration :)

me: thats true for healthy patients b--(remembering im keeping it polite and upbeat because i cant antagonize someone who is about to refill my adderall) ok thats good to know thanks

sure enough, when i got home and repeated this to the discord and people actually started looking into it, the only study that came up about apple juice concluded that it was better at keeping medically normal children from getting dehydrated during gastroenteritis because apple juice tastey and kids will drink more of it voluntarily. apple juice has 7mg of sodium per 236mL. POTS patients can sometimes require up to 10 grams of sodium supplementation per day.

im unclear on why so many doctors assume the Healthy Test Subjects they have been reading so much about are going to turn up in their offices as patients for anything except yearly wellness exams. arent most of the people seeking medical attention for actual symptoms already suffering from various problems that by definition have fucked up their metabolic processes, nutritional requirements, how much sleep they need, how much exercise they tolerate, etc. this seems like less of a failure of medical education and more one of basic reasoning skills

[charyou-tree]

Desperately trying to get my health insurance to pay for the laser hair removal they explicitly say they cover as gender affirming care.

Go to HRT consultation, ask the doctor about a referral to a place that does laser, don't get a formal referral, just a piece of paper with a list of clinics and contact info.

Contact the closest clinic, ask about billing insurance. They say they can't do that, I have to call my health insurance company to find out who's in network.

Call the health insurance company, ask for a list of providers for laser hair removal, they put me on hold, transfer me to some other department. The other department's automated system helpfully announces that they're open 8am-5pm Monday-Friday. Once it tries to connect me to a person, it goes straight to voicemail. its 12:30pm on a Wednesday.

Call the health insurance company back, talk to a different representative, demand answers, turns out they don't have any better search tools than on their public facing website. You can't actually search for services, just specialties. The person on the phone advises me to just look up a list of random dermatologists and keep calling them to ask what they actually do until I find one that does laser. Most dermatologists don't do hair removal.

Try to message original doctor who did the HRT consult on mychart, asking for a referral again. Still waiting to hear back.

You should not be allowed to run a business with so much of a perverse incentive as health insurance. The more people they help the less money they make. Ticks, leeches and parasites, feeding off disease and death.

[consolecadet]

I'm reading my MyChart notes from all the shit that happened on Friday and have discovered that my local hospital has, because I'm trans, something called an "organ inventory" which is just a list of what sex organs I have and whether they are surgically constructed. Not sure how I feel about that.

[vaporwavedoggie]

Ahahahah I should probably explain why I'm not on here as much atm, along with most of my other social media.

It's gonna be long but I know I have some folks on here worried about me so I'll put everything under the cut.

Alright buckle up, this will get long.

To shorten things, my chronic pain is significantly getting worse very quickly, along with heart issues.

Not to mention my shit mental health.

But here's the long story:

There's something up with my heart. I don't know exactly what the diagnosis will be, I have a few more tests including a fun little holter monitor placement or whatever it's called.

It's where I wear this monitor over my heart for a few days and press a button whenever I start having flareups. My flareups consist of my blood pressure suddenly dropping very low (I think the lowest it was clocked was somewhere in the 80s/60s range if I remember correctly), headaches, bad chest pain, limb weakness/numbness, sudden exhaustion/passing out, etc.

They did an echo on my heart but the results didn't tell me much other than I have a dialated left atrium. No idea what that means, don't know if it's even related to the shit going on with me. I won't find out until the other tests are done and looked over.

I'm going as far as to try and give up cigarettes for the time being for this. My doc gave me a ton of nicotine patches, so I'm really hoping those will help with the urges. I'm going to be going from smoking about half a pack or so a day to patches that are 7mg of nic, so uhhh yeah.

Another reason why I'm distancing myself from online spaces more other than my personal discord servers is because stressful stuff, discourse, all that makes my flareups much much worse. I'm doing it not to be a bitch, but for my own health. So for a bit I'll probably only post art I occasionally draw n what not.

Now on to the other issues. My lower back keeps me in damn near constant chronic pain. They did an xray on it, and my MyChart (fun little doctor app) said this about their findings:

"Vertebral body heights and alignment are well-maintained. No fracture or subluxation. Pedicles are intact. Mild loss of disc height at L5-S1."

I'm not entirely sure if that's anything important, again, I go to my pcp about it in the beginning of October since there's a few more issues they'd like to test me for before coming to a diagnosis and treating me.

As for my back pain though, it's to the point where it's nearly disabling me physically.

I've had it for many years. Idk exactly when it all started, but I really started noticing it around the time I was 19-20. I have a theory it's because one of my first jobs that I worked for about a year was at a warehouse. It was very physical labor.

I'd be lifting heavy boxes constantly to the point where when I got home I couldn't bend down from the pain. I'd just have to flop down on my bed and pass out. And this went on about 4 days a week for a year.

At first, it started off as a small patch on my lower back, at the base of my spine, not being able to be touched. The gentlest poke would feel like stabbing pain. And it only got worse over the years, with the area spreading.

Now it's to the point where I can't stand for long, and when I sit or lay down I have to shift my position every 10-20 minutes or it flares up. And I dread going to sleep for a number of reasons. Not just because of the night terrors I have damn near every night due to my CPTSD, but because I wake up in excruciating pain most of the time due to not being able to shift my body in my sleep.

Worst part is, when I sleep, I'm dead to the world. If the night terrors aren't too horrible that night, I'm like a rock. No one can move me. Lord knows my husband has tried. And I'll sleep for about 12-20+ hours at a time at this point.

Funny thing is? No matter how much sleep I get, even if I get the base recommended amount without under or over sleeping, I'm ALWAYS exhausted.

My doc has sent a referral for me to get a sleep study but they have yet to reach out to me. I suspect this may also contribute to my heart issues but idk for sure.

So yeah. It's not enough that I deal with shitty mental health issues on a constant, but also chronic physical health issues as well.

Worst part is my family is borderline poverty. Despite everything I'm STILL trying to get a job because my family needs the money, along with others in the house, including my oldest son and teenage son.

Yet for whatever reason, everyone claims they're hiring, yet won't hire any of us. For me, I understand. I always struggled to keep a job due to various issues. But my sons have a completely clean slate, and my roomie has a great resume with plenty of long history, yet no one will hire anyone. Not even McDonald's.

People act like it's all us. We try everything we can, from dressing up in our nicest clothes for the interview, following up with the job, being friendly, giving the interviewer our skills. Worst part is they act like they're fucking impressed, then turn around and claim they've decided to go with someone more qualified for the position, or they're not hiring anymore.

Yes, I know I'll hurt myself if I try working a job and pushing myself beyond my limits every day, but it's taking too damn long for disability to do shit. Disability is very hard to get in Texas for whatever reason and God it's stupid. It usually takes a minimum of 2-3 years for most, and we don't have that time.

The price of rent, groceries, and everything else keeps skyrocketing, yet my roomies won't get a raise on their disability, my husband won't get a raise on his job other than just a few cents once a year.

We're living by the skin of our teeth. Paycheck to paycheck. Most of our food comes from various food banks in the area we make multiple trips to a week.

Then when it comes to my mental health issues, I'm handling it the best that I possibly can.

My CPTSD has been flaring up. Then there's the other shit going on with my head I won't get into.

I'm nearly constantly haunted by trauma and I'm so fucking tired of it. I have to keep myself busy or it creeps into my mind. And I have somnophobia because every time I sleep I'm almost guaranteed to have a night terror. No, prasosin won't help.

Anyways that's a small portion of the shit im going through and why I probably won't be online much until I get shit sorted out.

Is it weird to be the happiest you've ever been in your life, yet also the most miserable??

[gardenianoire]

alright so my aunt died and now my dad is sad because that was his last living sibling so he against all odds is the oldest living person in his bloodline my sister told me about it and without thinking about it I simply said I'm sorry for your lost she told me to call my dad because he's depressed but I've been debating cutting my parents out of my life for 9 years now and in January I just stopped talking to them and I don't think I'll do that again. as previously stated I don't have any affection for this aunt she like my dad's first wife and always treated me and my sister (my dad's second wife's children) like the social rejects of the family when I was 17 or so I admitted to myself I didn't love any of these people let alone like them. at best I sympathize with some of them because they've been through some shit but they always managed to try to build themselves up by tearing me or my sister down so I'm not callous except I told my cousin I hate her and she deserved the hell she created for herself but I was 17. and right about that. the rest I just stopped talking to them a few of them follow me on ig but my page is public some of them are blocked tho. my aunt's death isn't a celebration or a relief I'm just indifferent it's like hearing a coworker's partner's relative died but the relative like yeah that was a human person but ultimately it was old age/50 year smoking habit it's not tragic unexpected sudden but I think about calling my dad and then I think about the 3 stints in the mental hospital I did for trying to kill myself because he and my mother fucked me up in ways were even to this day I think about killing my at least once a week (down from multiple times a day so progress I guess <3) why should I comfort them also my sister does my dad's mychart and his doctor tod him something is erong with his heart valve or something and depression from losing a family member forced into retirement (he had two strokes) depression from a child refusing to speak to you not changing your diet/exercise after a stroke means he hasn't got a lot of time left but then I remember when he punched me in the face so hard it swelled up my lip an a social worker told me I'll be graduating and going off to college soon so suck it up I guess (paraphrase but so many of them do not care at all) so why the goddamn hell should I care but I still sleep with the teddy bear he gave me 25 years ago and suppose I always will what will his death mean to me will I be indifferent will I go to work like nothing happened it'll destory my sister who desperately wants a relationship with them both but calls me confessing that she knows deep that won't happen I trauma dumped about being worried that social services won't care about the possible criminally neglected children in my class during professional development and ended up telling the whole spiel about my deal with physical and emotional abuse and the indifferent from almost every adult in my life if no one cared that I had my life threatened and was beaten no one but me is going to care that one of the girls seems to be scared of her father (never happy to see him, doesn't go to him unless walked over to him, hides from him sometimes...) did my teachers care and they knew no one else would do anything does anyone care should I kill myself now I bet it would hurt him the most if I did it now I won't but I know it would hurt if I did and it might be the last chance I get but it would hurt my sister in a way she doesn't deserve and who would be there to say no you're not crazy I was there when he pushed you into the painting and broke the glass and you fell down the stairs I didn't know falls down the stairs could be deadly at the time I told myself it was normal I told myself it was normal when our mom said committing suicide is selfish when you told her you wanted die I think you were 12 and I had to help you untie the phone cord you wrapped around your neck I don't allow myself to think about it often and I'll never bring it up it feels like I'm not supposed to

[aropride]

IM GOING TO DO IT THIS TIME I FINALLY CALLED AND THEIR AUTOMATED SYSTEM THING WAS LIKE "if u have an urgent question pls hold ^_^ if u want to schedule an appt call back later or send a message on mychart ^_^" but i CANT SEND A MESSAGE ON MY CHART BC I DONT HAVE A PROVIDER HENCE WHY IM CALLING AND NOT SENDING A MYCHART MESSAGE!!!!!!!!! IM REALLY GONNA DO IT THIS TIME

[kangamommynow]

Holding it together

It's been a frustrating morning.

I worked up the energy to call the solar company once again. I repeated that our bank is insisting that they lift their lien so the bank can have primary position for our HELOC. It took a while for them to get me all verified. Then they said that as of Dec 1, they no longer do that. They insist that their lien is against the solar equipment, not the house, so it shouldn't be an issue.

I have been going back and forth between these two companies for months now and it is on my very last fucking nerve. If the two of them would fucking talk to each other instead of having me waste my time trying to be the intermediary, this would have been resolved ages ago.

When the solar company sent their email information, even though they have the correct email for me, it goes to my old email. So I have them send it to Chris. He can get it, but it's the same internet company (TDS) and they can't quite manage things, so he can't forward it to me. All he can do is send screenshots. It's precisely the same information I sent to the bank and they already rejected. I'm at my wit's end.

2. Then I tried to resolve the issue with getting into my old email. The account is active, I can log in to TDS, but get an error with the email. So I start a chat to fix this. I clear cookies, clear my browser history, set a new password, try a different browser, everything they ask me to do and I still get an error message. They sent the issue to their management team and washed their hands of me. At some point hopefully they will get back to me.

3. THEN I decided to tackle the next issue - finding Julian a therapist. I got him a few phone numbers and info, but as he is an adult I can't call or make an appointment for him. I tried to log on to our insurance company MyChart, but I can't get logged in. Errors. Can't find me. I can't find any passwords saved on any device, I can't figure out what account name it should be. I prompted it to send me a reminder, but nothing comes through. I tried setting up a new one and that errored out as well.

All of this requires me to overcome intense anxiety and make phone calls, communicate about shit I know nothing about, try to figure out bureaucracy I don't have any control over and it has pretty much wiped out any shreds of good humor and energy I had by now and it's not even noon.

[plague-parade]

oh my god i hate my surgeons office so much holy shit, i need to run the timeline on this

beginning of may: my symptoms get noticeably worse, my back pain starts to get to pre-surgery levels

may 10th: i begin trying to make an appointment with my surgeon, each time i call i was either told i’d get a call back to schedule or the call dropped/got hung up on. i call every day.

may 17th: i finally get through to someone, first appointment i can get is for nearly a month out on june 12th. i continue to deteriorate while i wait for the appointment.

june 12th finally rolls around: i see my surgeon, he orders two MRIs. we make an appointment at the place i’ve gotten all of my other MRIs at for the 16th.

june 14th: imaging center calls, neither of my MRIs have been approved, postpone the scan to june 27th.

june 25th: imaging center calls again, the MRIs still havent been approved. i’m told for the first time that neither my doctor nor this imaging center do authorizations, and i need to go to an imaging center that does do authorizations. my surgeon’s assistant calls and tell me the imaging center they usually send people to, i make an appointment for july 3rd.

july 1st: i wake up to a message that one of my MRIs still hasnt been approved by insurance. the person at the imaging center says that it should be authorized soon, i reschedule the scan yet again to july 9th.

july 3rd: i get the official denial for my lumbar MRI. insurance wants six weeks of PT and an x ray before they’ll approve it. i have continued to deteriorate and am mostly bed bound at this point. i’m told to ask my surgeon to do a peer-to-peer to appeal their decision. i send a mychart message to my surgeon knowing he wont see it until the following monday because its a holiday weekend.

july 8th: surgeon’s assistant calls, she was able to get the MRI approved. i schedule the scan for the 10th.

july 10th: MRI goes smoothly, the images are sent to my surgeon.

july 11th: (thursday night) MRI report comes in, its not good. since i was told the report was sent to my surgeon, i wait until the next monday to give him time to look at it.

july 15th: i call, wait on hold for thirty minutes, then am told that his scheduler isnt there and that they’ll call me later to make an appointment. they dont call.

july 16th: i call again, the first appointment i can get is august 7th. i ask if my surgeon can look over the results and call or message me, the scheduler tells me thats typically done during an appointment but she’ll see what she can do.

this appointment is TWO MONTHS after the first one, and three months after my symptoms suddenly and drastically got worse. i hate it here so much. and its just to look at my results!!! if i need more treatment or surgery its gonna take even fucking longer.

[t4t4t]

tagged by @thatdykepunkslut

Last song: Silver Thread Golden Needle AG Cook

Favorite Color: #FF9A8A or #F97272 or #00B1A0

Currently watching: I'm wondering if I can get Collie to watch IWTV with me or if she'd rather rewatch DW from 2005 and catch up to current date finally.

Currently reading: Whipping Girl, still

Sweet/Savory/Spicy: I like the combo of sweet and spicy a lot but if I had to choose I'd say spicy.

Relationship status: just Collie atm. I'm wondering if Violet or Heather wanna hang out again :--/ they seemed to like me so much when they saw me in person but neither text me much.

Last thing googled: ohsu mychart / William Dodson adhd / what's it called to speak before knowing the full truth / prevarication / days until / adhd medication vitamin c / anarchist Marxism / ismail haniyeh China / fredy perlman marxist leninist / kamala age / biden age / January 1 zodiac / parectatosoma moramanga / Zoe baker / agamben

tagging @genderyomi @feralratbitesu @predatortranny