#brixtonzackery

[allycrush]

Things have been crazy lately health wise, and the last two days weren’t an exception. There was some miscommunication between CHOC radiology and the clinic for brixton’s MRI clearance, which lead us to having to wait close to 3 hours in the emergency room to get him cleared for the next morning, (otherwise, it would have been cancelled, and we couldn’t do that since I’m having surgery next week), so fingers crossed that we didn’t catch something there! Yesterday morning, brix was put under anesthesia and had an MRI on his brain and brain stem to compare with his last abnormal MRI, and see what exactly is going on. Brix wasn’t happy about it, but handled it like a champ, and we are so proud of him ❤️🐻 #toughasbrix #choc #chocchildrens #mri #neurology #radiology #mybaby #soproud #brixtonzackery (at CHOC Children's) https://www.instagram.com/p/B8AbfQPjPEo/?igshid=4jyq8e2p58md

[allycrush]

Life has been crazy. It’s definitely different healing from this surgery, since my pain has significantly gotten better, but now also dealing with other ailments that I’m not used to. Every time I feel pain, I immediately get scared that my 9+ pain is coming back or that the hernia mesh has failed. I’ve been letting that fear really take hold of my emotions and I’ve just recently noticed it. I’m now trying my best to break out of this fear and enjoy this new life. @brett_fackcancer took us on an amazing vacation in San Diego this past weekend (expect lots of pictures) and for the first time, I was able to keep up and actually have fun! So, I’m sorry if I’ve been MIA lately, but I’m going to try my best to get back into the swing of things 💛 #happiness #fear #fearless #twloha #chronicillness #chronicpain #pelvicpain #hernia #herniarepair #invisibleillness #fightlikeagirl #sickgirlsclub #spoonie #spooniemom #myloves #fiance #brixtonzackery (at Fullerton, California) https://www.instagram.com/p/B1xK0EID3V-/?igshid=qhmlyj77dowh

[allycrush]

This man meant more to me than words can explain. I’ve been avoiding social media because I knew I would have to post about losing one of the most influential people in my life. I remember when he found out I was pregnant, and with him being old school, I was nervous for his reaction; he told me he would always be here for me whenever I needed anything and would support me no matter what. The first picture was taken last Christmas Eve after he saw Brixton’s ultrasound pictures. The second picture was when my papa came home from the hospital and Brix had just gotten out of the NICU, so they got to meet for the first time. The final picture was last weekend and the last time we would see him. I’m so thankful that Brixton was able to spend time with him before he left us. I love you so much papa ❤️ #alwaysandforever #papa #reynoza #restinpeace #love #brixtonzackery (at Peoria, Arizona)

[allycrush]

Happy birthday to my best friend 🎈 I’m so thankful I get to spend yet another year of your life with you. Thank you for being such an amazing dad to brix and fiancé to me ❤️ #happybirthday #birthdayboy #weloveyou #newmanboys #brixtonzackery #thankful https://www.instagram.com/p/B4v0vjBDEwq/?igshid=ourgbj9ie0jy

[allycrush]

I wasn’t going to post this, because my latest ER experience has really effected my mental health and outlook on the medical community, but I just recurved an email from the hospital asking to fill out a survey. Where to begin... well, my next surgery couldn’t be scheduled until February 6th, so my surgeon told me that if my abdominal pain was bad and I still couldn’t eat, to go to the emergency room and have them page him; simple enough, right? So wrong. I’ve had a lot of negative experiences, but this Doctor made me feel less of a person. After giving me IV meds that I did not ask for, he let me know that all of my pain is in my head. Diagnosed bilateral inguinal hernias, Ehlers Danlos, endometriosis, and recent surgery? Not real. Any meds I’m on are causing me to believe I’m in pain, even though I’m not. During this conversation, I’m in tears, attempting to stand up for myself, and Brett standing up for me, but the Doctor continued to talk down to me... and to top it all off, he refused to page my surgeon. It’s amazing to me that so many people, especially women, aren’t believed. It makes me sick. I thought after being diagnosed, I wouldn’t have to explain myself anymore but I really don’t even know how to explain the mental state I’ve been left in after this. Just because an illness is invisible on the outside, doesn’t mean they aren’t real. #invisibleillness #chronicillness #chronicpain #womenshealth #believewomen #pelvicpain #abdominalpain #endo #endometriosis #eds #ehlerdanlos #sickgirlsclub #hospitalglam #fightlikeagirl Also, shout out to Brett for always having my back and keeping Brix happy with this hospital adventure ❤️ #myboys #brixtonzackery (at Fountain Valley Regional Hospital) https://www.instagram.com/p/B3-u26sDbra/?igshid=huqe9f6m9bc

[allycrush]

It’s late (or early) and I’m laying in bed thinking about everything. I just feel so incredibly blessed the have my Newman boys ❤️ After knowing each other for years, Brett and I had our first date on Halloween two years ago; this year, we got to experience our first pumpkin patch as a family (I can’t wait to share all of the pictures later!) and now get to go trick or treating tonight! 🎃🍬👻🦇🕸I’m one lucky girl ❤️ #myworld #loveofmylife #lightofmylife #newmanboys #nighttime #thoughts #throwback #oldtown #sandiego #rayban #tattoo #tattooedparents #boymom #mommasboy #littleguy #7months #family #brixtonzackery (at Old Town San Diego State Historic Park)

[allycrush]

It’s taken some time, but I finally feel like I’m starting to heal 🦓🥄 Today was my first real outing since surgery, and it was so worth it! I don’t know what I did to get so lucky; Brix and I are so happy to have her home 🥰 #healing #recovery #eds #ehlersdanlos #ehlersdanlosgrrrls #inguinalhernia #endo #pfd #chronicillness #chronicpain #invisibleillness #spoonie #spooniemom #myloves #bestfriends #bridesmaid #auntiedani #brixtonzackery #lucky #blessed (at Dripp - Fullerton) https://www.instagram.com/p/B0SWvjdDfJt/?igshid=1nyke95w7yo41

[allycrush]

This picture is a pretty accurate depiction of how I’ve been feeling. Even though I’ve had some amazing experiences lately with my favorite dudes, I’ve been feeling too down to post. Since my last Endo surgery a couple months ago, I’ve been in significantly more pain, to the point that it’s been difficult to even get through some days. I was so hoping that this surgery would help, and was devastated when it did the opposite. However, I was referred to a general surgeon who took on my case, was actually interested in my story, and decided to take on my case. After reviewing my surgery reports, he thinks my peritoneal defects might actually be incredibly small inguinal hernias. Apparently, the smallest the hernia, the more pain in caused, the peritoneal walls can get more and more damaged with each surgery (I’m up to 4), AND happens frequently with EDS patients! I have been to every gynecologic specialist in the Southern California, so how this has never been looked into, I have no idea. But a cancellation was made, and I got the spot... so I get this next surgery on Tuesday!! I’m hopeful, but that terrifies me even more. Prayers, love, light, and/or good vibes are greatly appreciated!! ❤️💉🦓 #letsdothis #inguinalhernia #eds #ehlersdanlos #ehlersdanlosgrrrls #pelvicpain #endo #pfd #pelvicfloordysfunction #chronicpain #chronicillness #chronicpain #mysterydiagnosis #undiagnosed #invisibleillness ##fightlikeagirl #mylittledude #lightofmylife #brixtonzackery (at Fullerton, California) https://www.instagram.com/p/BzoGqfBjvno/?igshid=1ee4burlhpu1l

[allycrush]

Got to meet the guys today and tel them that we named our little one after Zack 🎗🙏🏼 Now time for the show! 💚 #Rebelution #fuckcancer #ZAR #ZackReed #BrixtonZackery #letsdothis (at Bud and Bloom Club)

[allycrush]

He thought that the use of the pink was a bit derivative 👨🏼‍🎨🎨 Finally got baby boy back asleep since he had a big day earlier, but we had so much fun at the fair 🎡🎢🎠 #ocfair #orangecounty #costamesa #fair #art #painting #derivative #howimetyourmother #himym #obsessed #boymom #momlife #spooniemom #mommasboy #littleguy #newborn #4months #mylove #happiness #blessed #brixtonzackery (at OC Fair)

[allycrush]

Happy birthday to our little guy ❤️ This past year of your smiles and attitude have made our hearts so full 🥰 #happybirthday #birthdayboy #2yearsold #buildabear #gopats #mybaby #noway #brixtonzackery (at Fullerton, California) https://www.instagram.com/p/BvDEkdOjYvi/?utm_source=ig_tumblr_share&igshid=1fnf7oa4wxsqw

[allycrush]

From P!ATD concerts to San Fran vacations, you have always been there for me for my most important moments. Thank you for being such an incredible Nina to brix. We love you so much ❤️ Happy birthday 🎂🎈 #birthdaygirl #happybirthday #nobodylikesyouwhenyoure23 #patd #panicatthedisco #prayforthewickedtour #sanfrancisco #goldengatebridge #nina #brixtonzackery #sistah #reynozasisters https://www.instagram.com/p/BuXgMZwjw-A/?utm_source=ig_tumblr_share&igshid=e4u6rfbhmj2i

[allycrush]

We out here 🏈❤️💙 #gopats #patriots #touchdown #edelman #brady #goat #letsdothis #superbowl #myboys #brixtonzackery (at Fullerton, California) https://www.instagram.com/p/BtcYt7RDpuQ/?utm_source=ig_tumblr_share&igshid=3or9rxnvu7os

[allycrush]

This time last year was terrifying; Brix was in quarantine at CHOC’s oncology ward, with RSV and Influenza A induced seizures, unable to properly breathe and overall struggling. We felt to scared and so helpless for our little guy. Now, life is all smiling, ice cream, dancing, and doughnuts 🍩 We were told from the beginning to expect developmental delays, but he’s ahead in his age group. This kid is incredibly resilient and I could not be more thankful and proud ❤️🐻 #CHOC #chocchildrens #thankyou #mybaby #sweettooth #icecream #spoonie #RSV #influenzaA #resilience #blessed #thankful #brixtonzackery #toughasbrix (at CHOC Children's) https://www.instagram.com/p/BtElNUGAt03/?utm_source=ig_tumblr_share&igshid=uirhsgfw7iuo

[allycrush]

Exploring Salt Lake City with my little guy 💙🍼🌤👗 #roadtrip #vacation #saltlakecity #slc #utah #templesquare #sunny #motherhood #boymom #mommasboy #cuddles #littleguy #bug #thankful #blessed #happiness #brixtonzackery (at Temple Square)

[allycrush]

Daddy and his StormPooper 😉 Happy Father's Day to the man who never left the hospital the entire week I was there, who was my advocate with the hospital staff, who helped me walk, and visited Brixton everyday, even when he couldn't be touched, just to bring new pictures of him to me in my hospital room ❤️ We've come a long way from visiting our little guy in the NICU, and Brett has been by my side every step of the way. Brixton absolutely idolizes him and it makes sense, since Brett is an incredible father; we are so blessed 🙏🏼🍼👣 #happyfathersday #fathersday #daddy #stormpooper #starwars #tattoos #tattooedparents #manbun #soulmate #rideordie #partnerincrime #myloves #nicu #newborn #3months #13weeks #littleguy #bug #thankful #blessed #brixtonzackery (at Fullerton, California)