#anklyosing spondylitis

[hyggehooligan]

Mixing up a special cocktails of ativan, ibuprofen, thc, and Jack Daniels to bring myself some holiday cheer today!!!

I've got my toolbox ready to deal with whatever the inlaws bring to the party today. Also Idgie (dog; queen) is coming so hopefully she will be the perfect angel/distraction/comfort item.

[jewelmania21]

One of my many chronic conditions involves eye issues, I literally just did a “Field of Vision” test,, the eye that’s currently blurry and difficult is soooo stressful because I could feel the panic building in me. I think I flunked lmao

I felt similarly when I was tested for ADHD and everything with that, where I was so sad and stressed because I KNEW I was getting the right answers for me… But I also know that I didn’t perform as if my eye was actively working…

Geezums… the machine LITERALLY makes a noise right when the little light will flash in your peripheral vision and I fucking could SEE ANYTHING.

[lunarsilkscreen]

I have an aggressive form of arthritis

Called "Anklyosing Spondylitis" that causes my immune system to attack my spine and large joints. I am often exhausted due to this. Like, incapable of staying awake exhausted. And that morning exercise you're supposed to do forces me down for a nap, even with coffee and pre-workout. Which I should not take.

Thanks to the anti-vaxxers; I can't talk about the anthrax vaccine in a negative light--A shot you're required to take as many as 8 times when deployed.

Now there is a correlation between the anthrax shot and a certain genetic marker: HLA-B27. This is the military's argument on the subject; that those with HLA-B27 are just "pre-disposed" to this form of arthritis.

However; there's many people who have taken the anthrax shot and have Anklyosing Spondylitis and not HLA-B27.

And so I'm at this age where Medical Practicioners and the Elderly look at me like: "You're too young to have arthritis, and even if you do; I've had it for years!"

Not like this you haven't; Despite my peak physical condition, and having done extensive manual labor for years; onlyfans and pornhub doesn't count *grandma*. That's closer to pilates than physical labor.

And this is how I'm seen *by my OWN family* who see "Trans" first and not "Oh, s/he did extensive physical labor for years AND has an extreme malady".

Nope. Fuck You. You haven't put in the work like I have. You haven't earned your pain like *I* have.

And you know who doesn't talk about it, despite still helping out when people ask?

And never have I ever asked a favor in return.

You don't see the pain I'm in, because I'm good at grinning and bearing it. You told me to suck it up, and I did.

I expected the same from you.

[snowe-zolynn-rogers]

Hi! Could you do a text post for Deceit with ankylosing spondylitis?

Absolutely, sweetie!

[adhunleylove]

It's completely selfish of me. It's hard sometimes, having a partner with an autoimmune disease. I don't mind taking care if him. But I miss getting snuggles when I'm sick. I have to isolate myself because we can't risk him getting sick. I know it's selfish, I just miss him.

[yronnia]

wubba lubba dub dub!!!!

[otterish]

Dear spoonies with muscle pain! Have you tried stuff with lidocaine in it like aspercreme and find that it works a bit but want something stronger and easier to apply? Go on Amazon or to a sex shop and look for desensitized spray! Aspercreme has about 10% lidocaine in it while the spray tends to have 20%. I recommend applying both with gloves unless you need your hands to be a bit numb. It really helps for bad days and when you're waiting for your pain meds to kick in. Be sure to always read the instructions! The spray that I use says that 3 to 5 is a good start, but you shouldn't exceed 10 sprays, and about how long it should take to kick in.

[noodles-and-as]

Waiting to get approved for a new medication fucking sucks.

[malted-shark]

This is a reputable charity that tries to help find a cure for a disease, that I have, called Anklyosing Spondylitis. A mouthful, eh? I can say from personal experience that this disease SUCKS. It's annoying, it's incredibly painful(sometimes to the point of being unable to move) and it'd be absolutely amazing if this charity was donated to and awareness spread. This website has actually also directly helped me. Not monetarily, but just to learn about how it works, why it affects different parts of my body and why.

[angeldustpeep-666]

Fuck chronic pain and illnesses.

[sassmill]

Hm hm hm

[joleneghoul]

Happy disability pride month!

I'm a chronically ill/disabled gnc/nb gay trans man! I have chronic fatigue and spend most of my time in bed. I have AS (anklyosing spondylitis) which basically means my bones are trying to form into 1 big bone (its more complex than that tho!) I also have nerve damage and immune problems. Bc of this and my inability to work I don't have much money to my name.

If anyone would be kind enough to buy me anything off my comfort wishlist that would be nice, it has stuff that would help me be more comfortable/have more accessibility in my own home AND stuff for the two dogs I am responsible for taking care of (one of which is also disabled).

Also check out my commissions.

Please spread this and thank you! Heres a sonic I drew for your troubles.

[why-am-i-still-on-this-site]

I don’t usually do stuff like this but I have fallen on desperate times. If you can do anything to help it would be very appreciated even just a reblog can go a long way. 

[the-color-of-sound-is-space]

hey there! i saw your ask to warriormale, i'm also 22 with anklyosing spondylitis. shit sucks lmao. you're rad as heck, and i hope you have a good week and that your body is nice to you for even just a lil while sometime soon! (๑•̀ㅂ•́)و✧

Thank you so much, friend! It does indeed, I'm currently fighting to get a rheumatologist, and there are many hoops to jump through, but god damn am I jumping.

And I hope your joints and limbs do not feel as sore and stiff this week, and may you have no severe back pain, Friend. ☆

[noodles-and-as]

I’m so tired of fighting my own body...

[sheris532]

I hate this shit, the man suffers from a condition known as anklyosing spondylitis Apologies if I spelled it wrong, but basically his spine is fusing together & it’s quite painful. I have a friend who has it & it’s no joke! Would you make fun of Stevie wonder for being blind, actually you probably would tbh. But I think he’s beautiful inside and out. So piss off haters!

Stop Making Fun Of Mick Mars :(

If you asshats don’t stop calling Mick ugly or saying he looks like death or a monster or a zombie I will personally scream in your face as loud as I can.

He’s suffered from a disease that has fused his spine together since he was 17. It’s brought him down 3 inches, made him stiff, made it impossible for him to turn his neck. He’s been in constant pain for decades.

And yet he still goes up and performs and gives it his all. He’s humble and sweet and talented and yes he’s gotten a lot frailer and skinnier and smaller than he was but the man’s been through hell. And he’s a strong-ass bitch for putting up with it to please the fans. It’s rude and fucking disrespectful to go and say shit like that.

He’s already insecure about how he looks. I’m sure seeing ignorant people say rude shit doesn’t help him. He’s not fucking ugly, he’s one of the most uniquely beautiful people I’ve ever seen and he has an amazingly kind heart and he plays guitar like no one else in the business. I think he’s handsome.

Tommy and Nikki don’t look exactly the same, but you guys don’t make fun of them. Give the same respect to Mick. He’s a fucking legend. Make fun of Vince all you want, but treat Mick just like you would Tommy and Nikki, because they have a lot of respect for him, too.

Basically, stop making fun of Mick Mars for shit that he can’t help. He’s doing his best and he’s working through it and he’s subjecting himself to constant pain just for the fans. Because he loves them and he loves being a musician. So, show some fucking respect. Nothing nice to say? Don’t say anything at all.

Mick Mars, you’re a beautiful, talented, handsome motherfucker. We love you.