#akimasu
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doa ga akimasu… doa ga shimarimasu. Densha ga ugokimasu..
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Hiya! I'm in A Lot of pain atm and I just wanted to kinda talk? Idk you can post this without a response, I'm having a hard time connecting with spoonies that have the same problem as me. Im undiagnosed and my gp does not want to refer me to anything cause he thinks it's all because of my depression :") I have scoliosis, am hypermobile and have chronic joint pain but no, don't try to help me stupid gp, just say it's because of stress and I'm so mad. Have a nice day tho, love your blog❤
Hi! Thank you for letting us post this without a response. I am just dead today after finally having company yesterday. So I’m putting this up for followers. But I have things to say. So forgive me if they don’t make sense, you can write back in and I’ll try to explain.
1. You need a new doctor. And I realize that is not always an option for everyone. Sometimes you are stuck with what you have. But if you find yourself in that situation, you absolutely have a right to ask for a second opinion. Use that term and then ask them to refer you to a specialist. At the very least they should be referring you to a mental health specialist.
2. I don’t care if it is because of your depression (it’s not, you know your body best and I’ll believe you any day over some jackass doctor who can’t be bothered to send you to a mental health specialist if he ACTUALLY THINKS THAT’S THE PROBLEM.)
If you are STILL EXPERIENCING PAIN THEN HE NEEDS TO BE TREATING THAT REGARDLESS OF THE CAUSE. It doesn’t matter if it’s depression or a broken leg. It is his job to treat pain. So if he isn’t treating it, then he doesn’t believe he exists and in following this course of action, you can make him admit it. Then demand that he let you see someone else.
(I mean JFK, even if he thinks you are making it up THAT’S STILL AN ISSUE THAT SHOULD BE ADDRESSED.)
And the way to address this is to say, ok well how do we treat depression related pain? Because then at the very least you can force him to try to treat you and when it doesn’t work, he’ll have to either pass you off to someone else or admit he’s an asshat. (not going to happen, I know but a girl can wish.)
Finally I cannot stress this enough if a doctor sends you out the door without a treatment plan or a referral, they are not treating you and you are well within your rights to demand that they address your concerns or find another doctor who will (if you can.)
Followers? Any other advice?
Admin J
PS I am sorry that you are going through this. You do not deserve it, you deserve to be listened to and believed. I’m sending you lots of love and you’ll be in my thoughts
#admin j#chronic illness#eds#hypermobility#helpful followers#jackass doctors#i am so fucking disgusted#with the medical community right now#so pls know any and all anger here#is directed at them#not you#you deserve hugs and cuddles and compassion#akimasu#signal boost
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I'm seriously so glad that I can say I'm part of the autism community on this site. I feel so much better about myself when I scroll through the autism related tags and realise I'm not alone with a lot of struggles!
Also, shamelessly self promoting I think, but I have a side blog for more 'mental health and autism related posts'.
If you like,please check it out!😊
Http://thesecloudsinmymind.tumblr.com
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Eheh okay^^" Wow, it looks so real though!
It's! The wig's quality is super good *^*
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ohoh, try Mirai or Kido *w*
here you go~
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Sommige gewoontes zijn moeilijk af te leren... Maargoed, over 10 jaar zal niemand meer Koninginnedag zeggen x3
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23 *w*
28:If you had to look at one city skyline for the rest of your life, which would it be?
Tokyo lol
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Hiya! I'm very thankful for you still answering my ramble^^ I do have depression so I have psych appointments weekly, and my psychologist also is a bit worried about me. Also, I'm autistic so I'm just very scared that i'd shut down at the GP's so I'm taking my mom. Also, I'm moving, so I'get a new GP nonetheless but I still just want to hear my GP say that he believes I'm really in pain? Idk, like, that he believes me? (Probs sending another one sorry >,
Also, Thanks @chronicillnessproblems for your input! I’m suspecting (H)eds or something similair. Also I’ve done a LOT of research on POTS and I read a lot of thing I find myself in. I’m gonna make a list with things I can’t do anymore and gonna take that when I go see him. Like, I’m almost 21 and I have to sit while showering, can’t ride a normal bike(only electric or else I’ll almost pass out) I sometimes have to stay home from work cause of the pain and ugh. Anyway, Thank you so much!
Oh right! Also, please feel free to post anything I send without response, I get how draining that can be^^ Byee!
Ok so I read these asks earlier this morning and I do want to say a couple of things, because I’m a little bit nervous about what you said.
First of all, I SUPPORT YOU AND WHATEVER YOU DECIDE TO DO. I really do. So what I have to say can be dismissed or ignored altogether and it will not hurt my feelings or make me any less supportive of you.
I DO NOT think you should return to this GP if you can help it. There is no doubt in my mind that you will be unable to convince them that you are experiencing pain. And I understand where this is coming from, I really do. We WANT to be affirmed by our medical care providers. It is super hard to battle our own demons and doubts in our heads as it is. But to have that nagging doubt that our doctor doesn’t believe us either just makes things 100% worse.
But they have made up their minds. And I don’t know your gender, but if you are a woman, this is something that is going to be happening to you repeatedly. Unfortunately there is a lot of evidence of medical bias against women that doctors refuse pain treatment to them using depression as an excuse. And this has a long history. I won’t go into detail but you can study up on the roots of “hysterical” diagnosis from last century and see where I am going with this.
Also medical practitioners can be assholes. And not only do they get to be assholes, but they get to document your visits anyway they choose and that information is now basically fact. Everyone used to joke about “permanent records” because that’s not exactly a thing. Except in this case it is.
This doctor can choose to label you as drug seeking, or “hysterical” or any number of things that will bias any future practitioners against you. Now being from the US I have zero idea how a fully functioning healthcare system is so I don’t know if your psychiatrist’s notes are also included in your medical records because here they are not. Which means this jackass’ notes will follow you for eternity while your Psychiatrists notes can get lost in the shuffle.
However, if you do choose to return to this GP, I would earnestly encourage you not to get your hopes up about them validating your pain. Since I’ve been sick I’ve had 3 medical practitioners that believed me out of 11. And this was after I had seen multiple specialists.
I ABSOLUTELY encourage you to take your mom. I am 43 but did not start getting the respect and treatment I needed from my doctors until I started taking my mom into the exam rooms with me. (She didn’t actually believe how dismissive they all were, which was the reason I took her in the first place, but suffice it to say the minute she saw what was going on, she lost her temper.)
I also would encourage you to get a letter from your Psychiatrist explaining that his PROFESSIONAL OPINION ON YOUR DEPRESSION is that it is not causing your physical pain. Your doctor will A. Be forced to argue with another medical professional. And B. be forced to add this letter to your medical file. Where it WILL become permanently attached to your current issues.
And this could be a phenomenal help later on as you do find new doctors.
Again, it’s your body and it is your life. There is no way I could ever have enough knowledge to tell you what you should be doing. I can only give you some things to consider from my experience, after going through this for almost 10 years now.
Please do not seek validation from someone who has already denied it to you. It will only hurt worse in the long run and cause more doubts. I have spent many afternoons crying over crappy doctor’s visits and I’d hate to see the same for you.
Ok since you said I didn’t have to comment, I’m just going to go ahead and not edit this… I hope it all makes sense. Keep us posted, if you feel like it. You’ll be in my thoughts.
Admin J
PS Followers if you have anything to add, please feel free.
#admin j#jackass doctors#helpful followers#chronic illness#shout out to#chronicillnessproblems#my partner in crime#and actual founder of this blog#you're doing great sweetie#akimasu#eta#i lied#i did kind of edit#i apologize for any confusion#but just know that I start to confuse homophones#and spell things phonetically#when I am fatiged#hence the 'use' instead of you#which made me feel east coast#yous guys#idk#i'm rambling now
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Fire n Ice Akimasu one off is available in my shop. SWARMMCO.COM . #akimasu #monsterfootcreations #swarmmoneoff #swarmmcustom #swarmm #sofubitoys #vinyltoys #sofubi #originalcharacter #originalconcept #clearvinyl #swarmmcodotcom #swarmmco #swarmmwebsite #kaiju #monster #monstertoys #transparent https://www.instagram.com/p/CNUy-GGHgPs/?igshid=1syxakwdkdo9y
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Hello Abi-chan ;y; I've always loved Kelsey's Tumblr/Youtube, but I'd never looked at yours. BUT your so cute *3* Um, my question, do you won an Alpacca plushie too?c: Are they from a brand? Because I would love to have one ;o; ~
guhfduigdighdfgu Sankyuu~~~ *blushes* That mean's a lot to me!! And I bought Melody-tan at "HYPER JAPAN" Event in London~~! They are "Arpacasso" or "alpacasso" the brand~~! If I remember correctly she was £30
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Now available in my shop SWARMMCO.COM Fire n Ice Akimasu one off. #akimasu #monsterfootcreations #swarmmoneoff #swarmmcustom #swarmm #sofubitoys #vinyltoys #sofubi #originalcharacter #originalconcept #clearvinyl #swarmmcodotcom #swarmmco #swarmmwebsite #kaiju #monster #monstertoys #transparent https://www.instagram.com/p/CMhfUCVHrSr/?igshid=1f92217ebcwn8
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Fire N Ice Akimasu now available! $100 ship. If not sold by Sunday it will go up in my shop. This is a one off painted on transparent blue vinyl.. SWARMMCO.COM #akimasu #monsterfootcreations #swarmmoneoff #swarmmcustom #swarmm #sofubitoys #vinyltoys #sofubi #originalcharacter #originalconcept #clearvinyl #swarmmco #swarmmcodotcom https://www.instagram.com/p/CMSK0c8H6sM/?igshid=7bipa23vwvgl
#akimasu#monsterfootcreations#swarmmoneoff#swarmmcustom#swarmm#sofubitoys#vinyltoys#sofubi#originalcharacter#originalconcept#clearvinyl#swarmmco#swarmmcodotcom
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Going to give this cool dude a makeover today. Figure by my bud @monsterfootcreations #akimasu #monsterfootcreations #swarmm #transparent #seethrough #clearbluevinyl #bluevinyl #sofubi #sofubitoys #vinyltoys #swarmmarmy https://www.instagram.com/p/CMDc5l3nSVz/?igshid=1kivlr2foiru
#akimasu#monsterfootcreations#swarmm#transparent#seethrough#clearbluevinyl#bluevinyl#sofubi#sofubitoys#vinyltoys#swarmmarmy
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@akimasu replied to your post “Hiya! I'm in A Lot of pain atm and I just wanted to kinda talk? Idk...”
Aw thanks for the answer, I appreciate it very much! I'm very tired(and still in a lot of pain) but I'll try to read the response tomorrow! ��
You’re welcome! And take your time. We’re all just...dealing around here. Plus if you give it a day, you might see some real responses. CRAP I FORGOT TO TAG IT. Well tag it correctly.
Admin J
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Hiya again! I can't tell you how much I wanted to cry from relief , Thank you so much! People like you make the world a bit better. I'm considering waiting to see a gp until after I move, but I don't know for sure how long that will be. Could be a month, could be longer. I understand your point of view on wanting my gp to believe me, and I already thought of this just after I send the ask. It would cost too much energy, and I'm glad you said this! I also am going to talk to my therapist
about making a letter, cause I have the feeling she believes me, and I think I'll be able to word it all better in front of her than my gp. I'd never have thought about that myself, so thank you so much!(Also in the comments!) I just did not expect such a nice answer idk why but you made me feel a bit better^^ Even though you are in pain yourself, and still give this good of an advice!
I’m glad I made you feel better! Honestly I think it makes you feel better because you’re not alone. I would encourage you to find a support group (possibly on FB, this is not an ideal platform for that.) Because it doesn’t matter how supportive your friends and family are, they can never really understand what you are going through.
And talking to other chronically ill people who’ve had the same experiences you have is just such a relief. I was so lost for the first few years of my illness because I had everyone telling me everything about how to be sick, from I just need to have a positive attitude to I just need to push through the fatigue and build up my stamina. Which is literally the worst advice anyone could ever give me as someone who has ME/CFS.
And when I found other Spoonies to talk to, it was just such a relief. No one else believed how dismissive my doctors were being. No one else believe just how hard it was to live my life and that I was trying as hard as I could.
Anyway, I think it’s always a relief to find out that you are not alone, that you are believed and that someone else knows how you feel. Everyone needs to be validated. The problem is as Spoonies we seek validation from people who couldn’t possibly understand.
I am so glad that we could help you! Please feel free to keep us/me posted how things are going!
Admin J
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