chronicillnessmemes

[chronicillnessmemes]

"Your intuition will tell you the truth-" Actually my brain is telling me that everything that can go wrong will go wrong all day every day, so I'm working on not intuitively trusting that thing. But you do you!

[chronicillnessmemes]

I’m not sure who needs to hear this but it’s normal and okay to be DISABLED by your DISABILITY.

Sometimes it is going to stop you from doing things, and that’s okay. Sometimes it’s going to get in your way or make you struggle or cause problems in your life. But that’s okay, that’s why it’s called a disability.

You don’t need to fight yourself or “not let it hold you back” because a lot of times it will, but that’s the point.

[chronicillnessmemes]

I swear to god you can't win with ableds. First it's "You have to take care of yourself and recognize your limitations, otherwise you're being Disabled in the wrong way!" But then when I actually do adhere to my limitations because I don't want to be paralyzed by 30, they're all "No, you can't let your disability define you! What I mean was I want you to work to magically become able bodied again haha" Like die. Like get hit by a laser beam attack and die.

[chronicillnessmemes]

no longer calling it migraines. they are a curse passed through my bloodline for thousands of years for which i use potions (medication) to keep the evil at bay, but they don’t completely vanquish it (chronic illness). they’re evil. absolutely evil and vile

[chronicillnessmemes]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[chronicillnessmemes]

I've noticed a lot of people in the covid tags fretting about their roommates or loved ones catching covid and not knowing what to do to stay safe. I present the isolation protocol page!

Most of these materials work best when read and prepared ahead of an infection, as preparedness is the no. 1 thing that keeps others safe from covid, but these resources may also help you figure out what you can do right now to mitigate further household spread.

[chronicillnessmemes]

I don’t think people understand how it is to have been behind on EVERY milestone. Learning how to walk? Late. Learning to read? Late. Learning to use the bathroom independently? Late. Every single milestone was late.

And when you have this, people ask questions. People bully you. Why can’t you shower by yourself at 9,10,15,20? Why can’t you brush your teeth independently and frequently? Why can’t you tie your shoes? Why can’t you do math? Why can’t you do this, or that.

And then there’s the people on social media. “Well I was forced to.” “Well I didn’t have a choice” and that’s understandable and completely valid, but there are people that no matter how much you force them, or neglect them so they “figure it out” they won’t “figure it out”. They’ll die. They’ll starve. They’ll not bathe and be dirty.

Higher support needs people don’t just “figure it out” our brains are wired differently. Our brains don’t get that we HAVE to do these things just to survive. So we don’t. And that sucks.

It’s disheartening to constantly hear people say “well i was forced to” because so was I!! I was forced to do things too! I was neglected too! And guess what? I still didn’t do those things. I STILL wasn’t able to meet those milestones.

The big one that I see is “well I’m forced to talk.” And I get that, but me, a person that’s nonverbal, can’t be forced to talk. No matter if I’m neglected, no matter if my device is taken away or I have no way of communication. I still wouldn’t be able to talk. I CANNOT force myself to talk. Get that through your heads. This is my reality, and although yours sucked there are still some people who cannot do things, and saying that they could if they were “forced” is invalidating of them.

[chronicillnessmemes]

[chronicillnessmemes]

If you have a medical condition that makes you at high risk for Covid (which is a long fucking list) or you live with or care for someone who does, under the ADA you can require that every person you will come in contact with in a medical facility be masked and that they properly filter the air.

[chronicillnessmemes]

you know as disabled people it's actually pretty scary that you can't trust your doctors. like people who have medical trauma or distrust or dislike doctors and nurses aren't doing it for fun. we need these guys to help with our lives. we need healthcare to stay alive or to stop from getting worse, or to function at all. but often when you're dismissed and not communicated with you're left floundering and often have to make decisions yourself without that specialist knowledge. sometimes doctors know less than you about your disability anyway. sometimes they're wrong and give you advice that's detrimental to what you need or want, and you kinda have to just trust that the next guy is also not wrong. i think we're pretty lucky if we can find other people with our condition who are well researched in it. but i still think that uncertainty is something that disabled people shouldn't have to navigate

[chronicillnessmemes]

Doctors get all "Oh, where'd you hear about that? Dr. Google?" then you ask them about something you read in a peer reviewed journal they turn their monitor away from you to use Doctor Google.

[chronicillnessmemes]

i feel like i’m cursed forever but other than that i’m doing alright

[chronicillnessmemes]

shoutout to people who don't have a "before" the trauma.

shoutout to people who don't have any sweet or nostalgic childhood memories. to people who don't remember enough of their childhood to know what the before was like. to people who lost their innocence before they ever learned the word for it. to people whose pasts were too painful to keep around in any form. to people who only knew trauma, and don't have an idea of what life would be like without it. to people who can't long for "the better days" because there weren't any.

you deserve a good future. i hope it's there for you soon.

[chronicillnessmemes]

bad circulation gang rise up!!!

[chronicillnessmemes]

what year do you think collectively tumblr users will gain the knowledge "some disabled people still work" and "this doesn't make them less disabled it makes them exploited"? kind of tired of having to explain reality every time I make a post complaining about entitled customers.

[chronicillnessmemes]

when the “10 tips on how to make showering easy for disabled people” list doesn’t include a shower chair or a shower/changing table or grab bars etc, i know they don’t care about us physically disabled people.

good for u that turning off the lights and lighting a scented candle instead and listening to music or put on a show and using a bath bomb etc etc helps u but like none of those tips are that beneficial for physically disabled ppl specifically.

it’s good that those tips are there but for once we’d love to be included.

[chronicillnessmemes]

yeah, sorry i exhibited symptoms of the disorder i told you i have. it will happen again because i have that disorder and will continue having it. hope this helps!! 🫶🫶🫶