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#Stage 4 endometriosis
greghousepogging · 26 days
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tw// endometriosis ranty venty stream of consciousy poety thingy
Time for the monthly pain to begin. thanks body for screeching and tearing down everything I work to maintain because I refuse a baby. I've been refusing consciously for twelve years but that doesn't matter. my liberation held down by a potential I do not want to reach. My sanity breaking one week a month before it starts. Do I dare live through the pain again, or is it my mind telling me enough is enough?
And thanks for also growing a cyst so large its tilting my uterus and leaving scarring behind it. I'm now at risk for frozen pelvis and the cyst rupturing. i wouldn't have to pay in excess of $2,000 in six months if it just burst on me and i collapsed to the floor bleeding and unconscious. the price of refusal.
Yep, definitely something I want to experience, it doesn't make me wanna follow Ophelia. Call of the void, call of the water, call of Fertility screaming at me to follow her into eternity as an (m)Other. I cannot follow.
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dixvlogslive · 6 months
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Stage 4 Endometriosis: Does it Affect Life Expectancy?
Stage 4 endometriosis is the most severe type of endometriosis, a persistent disorder in which tissue comparable to the uterine lining grows outside of the uterus. Stage 4 endometriosis can have a significant impact on everyday living and reproductive health. Read more
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becca-alexa · 1 year
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✨personal so read if you want to✨
the people in my immediate circle all think i'm crazy for saying i'd want to be in a relationship for 2-3 years before talking about marriage and i think they're all insane for it but then i remember the average time from strangers to married for them is around 6 months
#becca.txt#legit do not think any of their relationships went on for longer than a year before marriage#my bestie went from absolute strangers to married in 4 months#they're adorable together but FOUR MONTHS???wild#they met around christmas and their wedding was in april - they just had their 1st anniversary and their baby's due next month#that's what happens when you're latina and religious i guess#not me thinking that 30s+ is a good age to marry and have kids and everybody thinking i'm insane 👀#don't even get me started on HAVING kids -- nobody wants to hear that i can't conceive naturally they all say to stay hopeful!...#there's still a chance!you can do it!like y'all i got stage 4 endometriosis that's taken over both my ovaries i ain't having no kids 😂#honestly i've said this before and i'll say it again - if i'm to have a marriage like some of them i'd rather stay single#i think only my bestie has a TRULY happy and functional marriage#i love her for it and her husband's an angel on earth -- everyone else's marriage is a literal dumpster fire#like my dudes if you're doing relationship counseling WHILE DATING then do premarital AND post marital couseling...#why get married???? like i am the biggest supporter of utilizing mental health services but something's not right there#and don't even get me started on how YOUNG they marry or how religious folk play round robin with each other til someone sticks#god forbid you tell anyone you don't want to get married in general or GASP!you marry a non-believer#everybody always talks shit about “missional dating” and how you can't do it!!but like... everybody does it#literally everybody#it's not a big deal#just because we're the same denomination doesn't automatically make you a decent person#and the opposite is true - just because we don't believe the same things doesn't make you a hellbound pagan#it's just frustrating y'know???idk if anybody will relate to this but i am so ready to just... do my faith on my own terms#so sick of people i've known all my life looking at me like i'm sick or something bc i'm 26 and still single#by this point if anybody in that circle tries to set me up with a guy it's an automatic aversion#not one man they've ever introduced to me is worth the light of day - and i'm not being rude#like buddy you're 30+ still living at home no job no career no education no ambitions....but he's christian tho!!#yeah sure but he's still trash#i want a partner not a baby imma have to support#just me rambling about things nobody want to hear but i gotta put this out somewhere or else i'll implode
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wosoamazing · 2 months
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Eventual Answers
Part 3 | Beneath the Surface
Warnings: Endometriosis, Hospitals, Surgery, Mentions of Infertility, talks of emotions surrounding life long conditions (specifically Endo)
Notes: I hope this is okay, I tried to make it accurate, and include some of the emotions one might feel. Let me know if I did anything wrong and I’ll try to fix it up. This is the last official part of this series however if anyone has any one shot or blurb requests for this universe let me know. (Also I hope it's not boring, let me know what you think)
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You clutched onto your Mum’s hand for dear life as you sat in the private waiting room, you had positioned yourself between Leah and your Mum, your knees bounced anxiously as you tried to convince yourself you were fine and that everything was going to be okay, however it wasn’t working, and a tear rolled down your cheek as you sniffled slightly.
“Bubs, you’re okay,” your Mum told you as she wiped away your tears, you shook your head in response to her, before she lifted you onto her lap, “what’s going on in that head of yours hey?”
“W-what if it’s all just in my head, and there isn’t anything wrong at all,” you admitted to her
“Bubs, that’s not going to happen, it’s okay to be nervous it’s a big thing, surgery is never easy,”
“C-can you tell me what's going to happen again?”
“Do you want me or Leah to tell you,” your Mum said as she reached a hand out for Leah to hold, who was also clearly nervous, however she seemed to be doing a good job of hiding it from everyone else.
“L-leah,”
“Okay,” Leah said before she took a deep breath, hoping her voice wouldn’t give away how nervous she was to you, Leah explained every single miniscule step to you, including telling you that they were going to use a mask to put you asleep before they did anything so you wouldn’t have to deal with any needles. Just as Leah finished explaining, one of the nurses called out your name and you went back along with both Leah and your Mum, and everything happened exactly as Leah said it would.
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“Leah, Maddie,” the doctor greeted them as he came out and sat opposite them, “So, surgery went well, she is in recovery now and after we speak you can go see her, we did find endometriosis, stage 3, we removed serval adhesions and there are none left, we also removed most of the tissue along with two cysts on her right ovary, there is some tissue remaining that we couldn’t remove but hopefully most of her pain is now gone.”
____
“Hey bubs, how do you feel?” your Mum said as she noticed your eyelids flutter open, she gently brushed some of the hair out of your face, before placing a kiss on your forehead.
“Mmm, sore, bit sick, head hurts, tired. Where’s Leah?” you mumbled as your eyes slipped shut again, before you fought to lift your eyelids up.
“She’s just in the bathroom bubs, you can go back to sleep, it’s okay. We’ve got to stay here a bit longer before we can go home,”
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“Did it go well?” you asked hesitantly as you tried to get yourself comfortable on the bed, the pain medication slowly wearing off at the same time you found yourself becoming more alert was not the best combination for being able to find comfort. Leah smiled and nodded at you, before she softly lifted up your jumper, revealing your abdomen, where you had 4 separate dressings.
“So it’s real?” you asked.
“Very real, they found you had stage 3, they removed all of the adhesions and most of the tissue and they removed two cysts from your right ovary, the tissue they left behind is mainly in and around your pelvis and there is some on your right ovary, so you’ll most likely still have the pelvis pain at times during your cycle and the back and leg pain during your period but it shouldn’t be as bad, you might also still get some pain will ovulation as well” Leah informed you.
“Thank you,” you said before tears of relief started to fall from your cheeks.
“We couldn’t be prouder of you bubs, and hopefully now this makes life slightly easier,” your Mum told you as she hugged you very carefully, before Leah returned with a big box in her hands, you hadn’t even noticed she left, let alone had enough time to retrieve a box of this size.
“We got this for you,” she said nervously as she placed it on the bed next to you. You opened it up and it was filled with various things you loved. There were some tim tams, shapes and a tin of milo, a new lip balm, and some hair products. There were also a few new card and board games, as well as a new pair of nike trackies and a matching hoodie. Which when you pulled out you looked up to Leah who was smiling back, it was one of the sets you told Leah you liked 2 months ago, and you were surprised she remember, you also had some new white nike socks, they have your initials embroidered on the bottom of them, probably so Leah couldn’t ‘accidently mistake them as hers’ again. Leah and your Mum sat with you until you fell asleep.
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The next day Katie and Caitlin came around, at 11 the doorbell rang and as your Mum passed the living room to answer the door, she found you and Leah passed out on the couch, the night having caught up to you both, you were both talking to each other 10 minutes ago. 
“I’m so sorry, they’ve both just fallen asleep, and I don’t really want to wake them because they need it. She was up most the night crying and Leah was trying to calm her down,” your Mum said as she opened the door, both of the women were understanding and didn’t mind.
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Leah had woken up during the night, however she didn’t really know why, she didn’t often wake up during the night without a reason so she was confused, until she heard a choked sob from your room. She doesn’t think she had ever moved so quickly at 11:00pm before. She opened the door to find you sobbing in your bed, your face was red and your eyes were bloodshot.
“Bubs,” Leah said as she crouched down beside your bed, “bubs,” you looked at her, “what do you need? Does it hurt? Do you feel sick?” Leah’s words came out calm but her head was anything but, her thoughts raced around at a million miles per hour as she tried to figure out what could’ve gone wrong.
“I don’t want this,” you cried out and Leah knew you weren’t physically hurting but mentally. She slipped in beside you and you immediately shifted your position on the bed, lying on your back you placed your head in her lap, burying your face in her stomach, you would’ve preferred a hug however you couldn’t have one so this would have to do.
“Bubs, I need you to take some deep breaths for me,” Leah told you as she started to card her fingers through your hair, which you did, allowing you to calm down slightly, you were no longer sobbing however tears still poured out your eye.
It was a weird feeling, being relieved and angry at the same time. You were glad that it wasn’t all in your head and that it was real but it being real meant a plethora of things. You might never get to have kids of your own, you’ll have to have more surgeries to remove the tissue in the future, you could lose your reproductive organs, you would have to live with a disease that affected your life so much, yet there was so little awareness, so little knowledge, so little research. Your crying continued for most of the night and Leah did nothing but be there for you, silently supporting you.
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The following week passed by in a bit of a blur, a mix of emotions, pain, and recovery.
Two days after surgery you posted a photo your Mum had taken of you and Leah when you were having a nap together, you were curled into her side, her arms tightly wrapped around your shoulders, and the clear evidence of recovery surrounded you. The caption had no words, it was just a yellow ribbon emoji, something that people with the same experience would know the meaning of and so too would your close friends and family. You wanted to post about it one day, bring awareness to it and help others however currently you weren’t ready for that, you weren’t ready to tell the whole world, telling the world would make it more real, make the possible infertility struggles real, make the fact you may never be able to be intimate with a partner without pain real, it would somehow make everything just that much more real, something you weren’t quite ready to face yet.
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yrfemmehusband · 1 year
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Female reproductive health terms you should know!
(terfs not welcome)
Dysmenorrhea: Period pain that isn't normal, i.e. any pain more than Mild cramping.
Dyspareunia: painful intercourse
Oligomenorrhea: lighter, shorter menstrual flow.
Menorrhagia: heavier, longer menstrual flow.
Ovarian cysts: a mass on or in one's ovary, can be resolved on its own, or can remain and cause complications such as a rupture.
Polycystic ovary syndrome: a chronic condition causing cysts to reoccur on the ovaries and enlarging them. Symptoms include:
Irregular periods
hormonal imbalance
facial hair
weight gain
painful periods/ ovulation
infertility
People with PCOS are at higher risk for endometrial cancer, type II diabetes heart problems and high blood pressure.
Endometriosis: A chronic condition in which a tissue similar to, but different than, the endometrial lining grows outside of the uterus instead of inside. During menstruation this tissue sheds and has nowhere to go, thus irritating surrounding organs.
Symptoms include:
Irregular periods
Dysmenorrhea
Widespread pain
Painful ovulation
Vomiting, fainting, chills, sweating, fever and brain fog during menstruation
Infertility
Severe bloating
This also puts people at a higher risk for endometrial and ovarian cancer. There are four stages to Endo as it is a progressive disease, with 3/4 being more severe. The average time it takes to be diagnosed is 7 years.
Adenomyosis: A chronic disease similar and comorbid to endometriosis in which a tissue similar to the endometrial lining grows inside of the uterine wall. Symptoms are nearly identical to endometriosis but more difficult to detect.
Many people are diagnosed post menopause, by fault of the medical system, but it can and does develop much before then.
Ovarian cancer: cancer of the ovary(ies).
Endometrial cancer: cancer of the endometrium, the inner lining of the uterus.
Endometrial cyst, or chocolate cyst: cystic lesions from endometriosis.
Tilted uterus: the uterus is positioned pointing towards the back or severely to the front of the pelvis instead of a slight tilt towards at the cervix. Can cause painful sex and periods.
Pelvic floor dysfunction: inability to control your pelvic muscles. Comorbid with many things and is highly comorbid with endometriosis. Can cause pain and incontinence.
Vulvodynia: chronic and unexplained pain at the opening of the vagina.
Interstitial cystitis: a chronic condition where cysts form on the inside of the bladder and urinary tract and cause symptoms similar to that of a UTI.
Pre-eclampsia: a condition occurring in pregnancy where the blood supply between the fetus and the pregnant person is affected and can cause irregular blood pressure, swelling, and in more severe cases headache, nausea and vomiting, a burning sensation behind the sternum, shortness of breath and potentially death if untreated.
Endometritis: an infection or irritation of the uterine lining. Is not the same as endometriosis and is treatable but can cause pain, bleeding, swelling, general discomfort and fever, and more.
Pelvic inflammatory disease: an infection of the reproductive organs
Ectopic pregnancy: a pregnancy that is attached to the outside of the uterus. Can be fatal if left untreated.
There are many more I could probably add but if you see something missing, please add it!
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TW; pregnancy mention, sex mention, doctors
To the ask that mentioned endometriosis, please see another doctor that is an endometriosis specialist, that doctor is lying to you and doesn't know a single thing about it or anatomy. It is every 1 in 10 women and statistically takes them an average of 7 years for a diagnosis. Some women can be stage 1 with immense pain whilst some are stage 4 with zero pain. Also pregnancy doesn't cure it as there is no cure for endo and you don't ever need to have a pregnancy to have endo. If a doctor says you "can't have it because you never been pregnant" or says you can "cure it with a pregnancy" RUN! Pregnancy doesn't cure it!!
It can occur young or in your older years. Painful sex, painful periods, cramping and bloating (like when you eat or during periods) that make you look like you're pregnant, painful bowel movements, are just a few symptoms of it. A diagnostic laparoscopy is what's used to diagnose it as it is hard to see endometriosis lesions on scans, however some people can be asymptomatic and have it for years and not know until they trying for a baby. Look up endometriosis support groups on FB or Nancy's Nook for more info. As for the burning sensations I'd also look into Interstitsl Cystitis, and adenomyosis for other symptoms! That DOES have a cure but it is a hysterectomy for that. Other treatments for endo besides a lap is some birth controls but every person and their body is different. Lupron and Otilissa put you in a chemically induced menopause and causes more problems than help I'd stay far away from that. You deserve to be treated well and be taken seriously by a medical professional, I'm so sorry you're going through this
Yeah I seriously can't believe that this "doctor" claimed you can't have endo if you haven't been pregnant when endo is a common cause of infertility. Like it's usually the other way around ignorant doctor asshat!!!
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rawsmackdownnxtdivas · 4 months
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Brandi Rhodes diagnosed with Stage 4 endometriosis
Prayers to Brandi for a speedy recovery
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amywritesthings · 2 months
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just a little personal update for some transparency re: my medical situation! this is about repro chronic diseases, so pls be cautious if you click the read more if you're affected by such topics!
hiiiii, so many new people here! if you aren't already aware, i have stage iv endometriosis (4 years in remission!) but my insurance last month deemed my meds 'unnecessary'. after fighting since dec 2023 to get them permitted as medically vital, it felt through and no appeal stuck.
yesterday marked the first day of my new meds that my doctor managed to get my insurance to agree with. i don't really know how they're going to affect me (especially because i have such a delicate chronic disease situation, so i'm being heavily monitored rn for mental stability + disease re-growth etc)
i say this because my chronic disease does affect me mentally, esp with my neurodiv/anxiety disorders, so i could change attitude on a dime and not deliver with fic updates or new content.
all i ask is that people be gentle with me over the next several months. i am very grateful for anyone to be excited about my work, much less look forward to it -- it's everything you could ask for as a writer -- but i also need to be gentle with myself during this massive transition. i've been on my old meds ever since my endo diagnosis, so i'm very anxious on how these new meds could possibly effect my mental health. best case scenario? they work the same and no issues arise. worst? i'm testing several diff medications to offset my disease.
i give all of the love to anyone following me who may also be affected by similar chronic diseases (or the same!) and hope that being more public about my struggles / the american healthcare system could make someone else feel less alone.
but yes thank you for reading / thank you in advanced for being kind about my capacity for writing in the next 3-6 months.
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strawbeerossi · 5 months
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CW: hospitals, surgery, AFAB health complications
I had a laparoscopy earlier this morning for what I thought was the removal of stage one endometriosis.
Color me surprised whenever I woke up and found out that I had stage 4 endometriosis that my gyno scraped out of me (not normal for a woman my age), I had a cyst the size of a small watermelon (literally. I have pictures), and that cyst was the result of me losing one of my ovaries.
What a fucking day, dude.
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greghousepogging · 1 month
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just changed my name from toomanyfandomshelpmehelp to Greghousepogging because I thought it'd be funnier. might as well introduce myself while I'm at it!
I'm 28 from Australia
I've got autism, I was dx'd at five because I displayed more classical symptoms for an afab kid. It didn't give me an advantage though as I'm still traumatised by life.
I've also got ADHD-I and complex PTSD (cPTSD), major depression, generalised anxiety - the fun stuff
I think I'm Agender but for convenience she-nouns work too. I've never really felt any sense of gender - I am just Me. Definitely don't feel like a woman lmao.
I love a lot of fandoms, rn House, Sherlock, Dead Poets Society and Star Trek being my current focuses.
I'm also chronically ill - Stage 4 Endometriosis and Hashimotos Disease, both were mis/undiagnosed for far too long.
I work in fin crime to help find and prove fraud in a company - I hate working for a capitalist system, but I figure the best way to know and beat the enemy is to work within
Been chronically online since I was 12 lol including a yaoi reader and former writer
Considering restating poetry and other creative writing thanks to dsp c:
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lysandrabellargus · 1 year
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I have seen some misinformation on endometriosis getting a lot of notes on this site, so here are some endometriosis facts with sources
Endometriosis isn't endometrial tissue migrating outside of the uterus, it is similar to the tissue lining the inside of the uterus (1)
The cause of endometriosis is still unknown, there are many theories still being explored (2)
Suppressing menstruation with hormones is not always an effective way to slow down the development of endometriosis lesions, current hormonal treatment options are mostly meant for pain relief/symptom management, sometimes they are not enough, and they are not well tolerated by all patients (3) (4)
Negative ultrasound or MRI results do not rule out endometriosis : Some doctors do not have enough expertise to read the results, and some types and locations of endometriosis are less likely to be visible and require a laparoscopy for accurate diagnosis (5)
Estrogen is not universally bad for endometriosis, combined oral contraceptives are not forbidden. They might be less effective than progestins but they are still a viable treatment option (6) (7)
There is no known cure for endometriosis. A hysterectomy cannot cure endometriosis, however it can provide pain relief (8) (9). Excision surgery does not cure endometriosis either (10)
Anyone can have endometriosis regardless of their age (11) (12)(13), sex (14), or gender (15) (16) (17) (18)
Endometriosis can be asymptomatic, and the stage or type on endometriosis does not always equate the severity of symptoms (19)
Endometriosis can be found outside of the pelvic area/gynecological organs (20)
Anyway, please do your own research, always double check what your doctors tell you, and don't believe strangers on the internet just because they mean well. Take care <3
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tinylittlelee · 2 months
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so this is not something I talk about on here and I apologize for the more serious post. In 2021 I was diagnosed with stage 4 endometriosis after suffering most of my life with awful periods and an incredible amount of pain that no one seemed to take seriously. After years of suffering I made an appointment with a new obgyn. He did an ultrasound and could tell right away something was wrong. He scheduled me for diagnostic surgery the same day. I am scheduled for my third surgery on August 7. This will be most serious surgery to date, the endometriosis has spread to multiple organs and they are having to bring in a urologist. I am losing my right ovary because it is 4x times the size it should be and is as big as my uterus. Anyone with a uterus I urge you to take your reproductive health seriously. If you think something isnt right PLEASE search for answers sooner than later. 💖 any prayers and good thoughts and vibes would be so appreciated, I am very nervous. Thank you for taking the time to read this post. 💖
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newhologram · 1 day
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New's unexpected new diagnosis
A whole month after surgery, I finally got my results. Lots to talk about here.
Based on my symptoms and medical history, the surgeon said he went in fully expecting severe endometriosis with adhesions. He identified the cyst on my left ovary and removed it (kicking myself because I forgot to ask what kind of cyst it was). My uterine tubes were also easily removed, so sterilization was successful. I asked about my chart reading “unilateral oophorectomy” but he assured me that was a typo, they did not in fact have to remove one of my ovaries. Phew. (Also re: being sent home without pain meds, he was like WHAT. He pulled up the records and there it was, he had it noted that I was to be sent home with meds. So someone at the hospital messed up. He asked me, “but you eventually got meds, right?” Yeah, but it was oxycodone and that barely touches my pain. I told him when I go to the ER for flare ups multiple times a year, they have to give me hydromorphone every 2-4 hours because it’s that bad. So he’s sending me to a new pain doctor and pelvic PT, but we’ll see if my insurance even lets me.) But other than that, he didn’t actually see any obvious endometriosis implants. Not even adhesions that would indicate it either. Nothing was stuck together like he expected. But he did stress, and I knew this from research already, that just because he didn’t see anything obvious doesn’t mean I don’t have endo. This is pretty common for patients on the first surgery. Sometimes not much is seen because it’s really the specialists who know how to identify other less-obvious lesions or hidden pockets of endo. My surgeon is very knowledgeable and I really like him, but he’s not actually an endo specialist (I can’t access them with my insurance, and even if I did have better insurance the co-pay would still be many thousands of dollars). Here’s where he was genuinely surprised: When he checked the backside of my uterus, he said it’s just completely scarred up. Rough and damaged from inflammation. Which could still be superficial endometriosis but is a giant red flag for adenomyosis (though it’s possible to have both). Quick explanation for those who need it: endometriosis is when tissue similar (but not the same as) the lining of the uterus grows outside of the uterus. It can grow on the surface, the ovaries, the bladder, kidneys, bowel, liver, nerves, lungs, or even the brain. These lesions bleed within the body and cause a lot of damage and often infertility. People have lost organs and their lives from this disease being so mismanaged by doctors. It spreads like cancer so it’s diagnosed in stages the same way. Adenomyosis has a lot of the same symptoms but the process is different. The lining instead grows into the muscle of the uterus, causing damage and often infertility. Both of these diseases can be painful, debilitating, and disabling no matter what stage. Though the endometriosis is still uncertain, my surgeon has diagnosed me with adenomyosis. Just to be extra certain, he’s sending me for a pelvic MRI with contrast during my period so he can have a better look. I actually had an MRI 2 years ago that had me questioning if I had adeno because I thought my uterus looked weird and stained, just dark and splotchy and roughly textured but no one noted it (radiologists are not trained well in identifying these diseases). I was mostly focused on the ovarian cyst so I kind of forgot about it.
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But yeah, this explains a lot, because the back of the uterus is up against the rectum, which is where my colitis is the worst. The inflammation is close enough to affect the organs around it. This explains why my colitis seems so unmanageable, yet every time I have a colonoscopy they tell me it’s mild and act like I’m just being dramatic. This explains why everything’s just been getting worse and worse seemingly every year. The anemia, intense fatigue, weakness, nausea, and pain that hardly any meds (that will be given to me) can touch. Frustratingly, he didn’t have the pictures to show me despite multiple people telling me he would have them. I called and emailed the hospital all day today and thankfully they’re mailing everything my way. Where to from here? The only cure for adenomyosis is hysterectomy. I was considering getting a partial one (saving my ovaries so I don’t go into menopause) in a year or two anyway if my condition doesn't improve. There's still a potential risk of ovarian dysfunction/failure after 5 years but I'm getting older anyway and I need to move on. I can go on HRT if needed. Surgeon is in full agreement that this is the best way forward to improve my quality of life. Though this won’t cure any endo that might still be hiding, it will be a dramatically different experience without this diseased organ constantly ruining my life (and no more periods! I can’t even imagine that freedom). I’m overwhelmed at having to start this process again to get a whole nother surgery that’s much more intense than what I just had, but I had also prepared myself knowing that this was only the very first surgery. It wasn’t meant to “fix” me but to finally get eyes on my insides. Hopefully it doesn’t take a whole year again between the consult and the actual surgery. Glad there’s no damage from adhesions we’d have to deal with either, so that simplifies things a lot. I’m so thankful to finally have actual answers and a clear path moving forward for future recovery. I’ll never be “normal”, I have so many other chronic illnesses that I’ll have to keep working hard at managing, but we can at least do something about this one. I’ll update more when I get the surgery pictures and the new MRI. Surgeon has officially cleared me to take baths again, so I’m going to go luxuriate for a while. Thank you to everyone for the support, the donations, and the kind messages.
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artbytesslyn · 2 years
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recovering from my second endometriosis excision surgery. stage 4 made 2020-2022 the worst years of my life but i have hope for 2023. i know i’m pretty private and most people don’t know i’m going thru this but thank you friends and patrons who gave me well wishes 💙
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yrfemmehusband · 6 months
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It's endometriosis awareness month! Here's some general knowledge on my condition, as misinformation is constantly spread about it.
Endometriosis is a disease affecting 1 in 10 people with uteruses. A tissue similar to the endometrial lining, of period blood, grows and sheds on the outside of the uterus. As the menstrual cycle comes, the blood has nowhere to go. This causes intense pain and irritation to surrounding organs. It is one of the most painful diseases recorded.
Endometriosis was first discovered in 1860, though it was recognized in the Hippocratic Corpus around 4,000 years ago. Treatments have varied through the years, starting out with bloodletting, leeches, hanging upside down, exorcisms, genital mutilation, and chemical douches. During the Middle ages, the perception of chronic pelvic pain shifted from a recognized condition to something caused by hysteria, promiscuity, or it was made up. In the hayday of Hippocratic practice, Endometriosis was more common than it is today, likely due to the inaccessibility of diagnosis compared to 4,000 years ago. Somehow.
Today, treatments include birth control, surgery, hysterectomy, and pain relief. There is no cure.
It takes an average of 7-12 years for someone to receive a diagnosis.
Anyone can get endometriosis, including cis men
A hysterectomy is not a cure, as endometriosis will continue to grow and spread to other organs
The pain one experiences due to endometriosis does not correlate with staging. Staging reveals how extensive endometriosis lesions are, not pain. Someone with stage 1 could experience excruciating pain, while someone with stage 4 and frozen pelvis can experience no pain.
Endometriosis lesions are not endometrial lining. The tissue is similar, but not the same. Thus, no one actually knows what endometriosis actually is.
It is only diagnosable through laparoscopic surgery. It can be detected via imaging such as ultrasound or MRI, but more often than not, it isn't seen. You can have completely clear tests up until your surgery and still have even the higher stages of Endo (like me!) (this one was for all you undiagnosed people, you're not crazy!)
Endometriosis is comorbid with many things, including pelvic floor dysfunction, adenomyosis, vulvodynia, uterine cancer and fibroids, ovarian cancer, many autoimmune and inflammatory conditions (rheumatoid arthritis, MS, IBD), and cardiovascular disease.
I've provided links in each point and I deeply encourage you to read my sources, whether you have endo or not. Not enough people understand endometriosis so a lot of us who deal with it don't get grace or compassion, be it in our work lives, relationships, friendships, or family. People with endo, happy endometriosis awareness month.
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toyhousedramas · 5 months
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delete this please I have depression, anxiety, panic, post traumatic stress disorder, psychosis, high blood pressure, low blood pressure, hpv, hiv, dengue, zika, chikungunya, black plague, polio, infantile paralysis, osteoporosis, swine flu, yellow fever, meningitis, meningitis b, gonorrhea, herpes, pharyngitis , Chagas disease, bronchitis, leptospirosis, cancer, measles, chickenpox, smallpox, mumps, gastritis, tetanus, hepatitis, conjunctivitis, stroke, whooping cough, labyrinthitis, scabies, leukemia, rabies, cirrhosis, scoliosis, microcephaly, anencephaly, ebola, ingrown toenail, autism, asperger's syndrome, arrhythmia, pneumonia, diabetes(type 1 and 2), heart failure, petho envy, dwarfism, gigantism, down syndrome, asthma, liver cancer, esophageal cancer, brain cancer, stomach cancer, skin cancer , leprosy, homosexuality, herniated disc, thrombosis, elephantiasis, passion fruit heel, phimosis, prostate cancer, testicular cancer, parkinson's disease, headache, malformation of the ovaries, lymphoma, lead poisoning, severe allergies, endometriosis, stomach ulcers, irritable bowel syndrome, appendicitis, chronic migraines, graves disease, blindness, deafness, stage 4 kidney disease, organ failure, 90% stage 3 burn, urinary tract infection, cervical cancer, uterine tuberculosis, uterine fibroids, uterine prolapse, anal prolapse, hemorrhoids, dermatillomania, coronavirus, contact dermatitis, eczema, athletes foot, fungal infection, bacterial infection, and veganism
Have you tried yoga.
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