#Psychogenic Nonepileptic Seizures

[finnslay]

"She's just not listening" ~my advisory teacher today while I was having a seizure and "wouldn't" move into the chair. (I couldn't fucking control my body whatsoever and would've loved to have sat down in the chair because my legs really REALLY were uncomfortable in the position they were in.)

[chronicallyqueercoining2]

Functional Seizures Flag / Psychogenic Nonepileptic Seizures Flag

[Pt: Functional Seizures Flag / Psychogenic Nonepileptic Seizures Flag end pt]

A flag to represent those who have Psychogenic Nonepileptic Seizure *also known as functional seizures.*

The purple and teal colors represent PNES (Psychogenic Nonepileptic Seizure). Since they symbolize resilience, I used orchids as a symbol in the center. The background is the disabled pride flag but altered to be purple, teal, and a darker gray.

[Pt: The purple and teal colors represent PNES (Psychogenic Nonepileptic Seizure). Since they symbolize resilience, I used orchids as a symbol in the center. The background is the disabled pride flag but altered to be purple, teal, and a darker gray. End pt]

Plain symbol under cut

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[catastrophe-coins]

PNES & Seizure Flag coining

we noticed that there was no PNES flag (which we expected), and no seizure flag (which surprised us) so we made both.

the flag on the left is the seizure flag.

purple is often associated with epilepsy, but we added a black stripe at the bottom and a white stripe at the top to symbolise non-epileptic seizures.

The ribbon in the middle is a very grey shade of purple, to represent how confusing and muddled it can be to try and figure out what kind of seizures you have, and what is causing them.

the flag on the right is the PNES (psychogenic non-epileptic seizures) flag.

we picked a more pink-ish purple to symbolise the neurological side of the disorder, and blue to represent the psychological side of the disorder.

the grey strip in the middle represents the invalidation and dismissal people with PNES experience, and also represents the fact that neither psychiatry nor neurology want to accept that people with PNES are within their field.

i have no spoons for image descriptions, i may add alt text at some point, but if someone would add an ID that would be very much appreciated.

tagging - @mad-pride @liom-archive

[3liza]

a lot of people INCLUDING DOCTORS are completely unaware of this but it's not that uncommon for people to get so stressed out they will have a seizure, without being epileptic.

these people can experience any of the symptoms of seizure but will get a negative result on the standard epilepsy tests. this is the epilepsy foundation website and is not a bullshit website, this is actual epilepsy experts and advocates saying "you can have seizures from being too sad, too traumatized, or too stressed". unfortunately a lot of doctors will hear a patient report this, test them for epilepsy, and when the tests are negative, stop the diagnostic process there because they just don't know what else it could be or how to help their patient. bad doctors will make a mental note than the patient is hysterical* and/or malingering. terrible doctors will start diagnosing them with personality disorders that will prevent the patient from receiving adequate care later on (histrionic personality disorder, borderline, bipolar, etc). well, it can just be stress and trauma.

but it's pretty simple, sometimes even non-epileptic brains can overload and boil over and trigger cataplexy, muscle spasms, absence episodes, hallucinations, and all the rest of the seizure behaviors. one of the papers I read on Psychogenic Non-epileptic Seizure (lmao PNES) mentioned that diagnosis alone was sufficient to significantly reduce or completely cure a lot of cases, presumably because if you know what's happening to you in a psychogenic illness and why, a huge burden of fear and stress is lifted from the disease process. unfortunately the combination of all these factors (tests negative for epilepsy, caused by psychological stress, resolves when diagnosed) produces an impression of the patient "faking it". this is true of most psychogenic illness because our culture doesn't consider the processes of the brain to be "real", but again, I have to emphasize, this is the official epilepsy foundation website and they have no reason to blow smoke up anyone's ass about this

* they're technically correct, hysteria as a classical diagnosis before it got turned into "she's making it up" documented a lot of these same symptoms, including the "hysterical arch" posture of a patient experiencing a full body spasm seen sometimes in stress seizures

[autisticalastor]

Love your writing thingies lately, I have some more if you don;'t mind! Do you have anything for writing a seizure in my character?

hey! sorry this ask took so long to get to! its been a super busy couple weeks, & i also wanted to make sure i had all my facts straight here. that said, i am not a medical professional, so please dont use this post as any kind of diagnostic material!

that said, lets get into it!

before u get started, u need to decide what kind of seizures ur character has. i will be breaking this post down into sections to address each type of seizure & what it looks/feels like! we will start with the types of epileptic seizures!

focal onset seizures

focal onset seizures start on one side of the brain & can cause changes to awareness, behavior, & sensation. they can cause abnormal movements on one side of the body. its possible for them to spread & if they do, it may cause loss of consciousness as well.

there are two types of focal onset seizures: aware & impaired awareness.

for aware seizures, ur character can sometimes talk or remember what happened afterward. they may experience a sense of deja vu, have a "funny feeling" (like nausea or butterflies) in their stomach, or move abnormally.

for impaired awareness seizures, ur character may feel confused or dazed. they also may not be able to respond to questions or directions for a few minutes.

generalized onset seizures

generalized onset seizures start in both sides of the brain simultaneously. they usually cause a loss of consciousness & awareness, & can also cause abnormal movements on both sides of the body.

there are 2 types of generalized onset seizures: generalized motor seizures & nonmotor or absence seizures.

for generalized motor seizures, ur character will lose awareness & have uncontrolled muscle movements. these usually last for a few minutes & may cause confusion & tiredness afterwards. they may cause someone to cry out, lose consciousness, fall over, or have muscle jerks/spasms.

for nonmotor (absence) seizures, ur character would have short, sudden lapses of consciousness that may even go unnoticed. these may make ur character stare into space, blink rapidly, or make chewing movements or hand movements.

but not all seizures are epileptic seizures! depending on why ur character has seizures, we should take a look at nonepileptic seizures as well!

psychogenic nonepileptic seizures (pnes)

these are also known as functional seizures. they resemble epileptic seizures, but instead of beginning in the brain, theyre a reaction to physical stressors.

they can be caused by physical triggers (like pain/injury), environmental stressors, or a traumatic event.

they can have many of the same side effects as the different types of epileptic seizures, including: loss of consciousness, convulsions, irregular movements, unresponsiveness, loss of awareness, rapid side-to-side head movements, & full-body shaking that can last for more than 10 minutes.

they may also cause ur character to experience increased symptoms from mental illnesses they experience, such as anxiety, depression, ptsd, & panic attacks.

these seizures can be treated with cognitive behavioral therapy, so its likely ur character would be receiving mental health help if theyre diagnosed with pnes!

obviously this isnt everything about seizures ever, but it should be a good starting point at the very least! i hope this helps, & do feel free to write in again if u have any other questions! :)

《sera/al》

[howlsofbloodhounds]

TW: medical/revenge whump. Abuse of authority/power. Torture. Reprogramming/reconditioning under the guise of “therapy” and “helping.” Abuse, gaslighting, manipulating, mentioned starvation and murder. Dehumanization, drugging, withholding medication.

Whumper(s) want revenge/justice, and at least one believes they’re “helping” and justified.

So I was thinking more about killer and revenge/medical whump. And a dark turn on how he asked Color to “teach him how to be a good person.”

And I was thinking about his Good Ending, and how staying in the Omega Timeline (with Color) requires him getting some actual therapeutic services and support.

Some medical intervention, possibly even needing to get his levels of DT checked or monitored.

Support for any blindness, chronic pain & fatigue, possibly even any dissociative/psychogenic nonepileptic seizures (PNES), he could struggle with. Deconditioning and deprogramming. CBT.

Medication. Any communication and food therapists.

And like this leaves him in a very vulnerable position, and puts strangers he doesn’t know or trust—who do know and have every reason to hate him—in a position of power over him.

So I’d imagine he’d be put in a highly guarded cell. They say it’s for his own protection but no one’s ever really protected him before. He thinks they’re trying to protect the staff and other patients from him.

A part of him is pleased to know that. Another is ashamed.

It changes with a certain member of the staff, however. They have a lot of power and authority in this facility, and they are someone Killer has hurt very, very badly before.

Yet he doesn’t recognize them, or if he does, it’s only as something vague like “an Undyne” or “a Toriel.” He doesn’t remember what exactly he did or said to them, how he wronged them—which only makes this person’s anger worse.

Maybe Killer doesn’t even notice anything up at first until he notices a change in his body’s reaction to medication, certain looks and comments they send his way.

But he doesn’t deny any of this person’s accusations—he fully heartedly believes he’s completely capable of whatever atrocities they said he did. He doesn’t trust himself that much. He doesn’t need much proof.

And I don’t know. Maybe this person was initially just planning to confront it, or kill it, or just torture it.

But maybe they see genuine remorse and guilt in Stage 1, and decide that they will help decondition it.

They see now that it was a tool, a machine, and machine’s can be fixed. Even one taught to do bad things can be good, they just need to show it how. And it wants to be good, it wants this. So they’ll be a better teacher than the one’s who had it before.

And like, maybe Killer’s Stage 1 self fully buys into it eventually. He doesn’t tell anyone what’s happening because he believes he deserves it, and it’s only fair. And that he’ll come away fixed and better again.

If he’s ever allowed into Stage 2 for very long to attempt to escape the pain—which is something the teacher discourages, because good things don’t run away from their crimes and selfishly numb out their guilt—he still doesn’t tell anyone anything. Believing it doesn’t matter.

He’s once again clinging to Color’s visits for any sense of hope, and doesn’t really believe it’s possible for him to live without pain or be free anymore.

So he just tries to enjoy what little he has left, even as They snap at him to stop pretending he is something that can care about anyone or anything. They say he is manipulating Color, trying to trick his “friend” into helping him escape and run back to Nightmare to be evil again. They say that good people are honest.

Eventually Killer just stops seeing Color or responding to any letters. He can’t be around him without wanting to hide in Stage 2, but he cannot do that anymore. It’s bad.

Anytime he acts on previous conditioned behaviors or beliefs, he’s punished for it—such as taking away basic necessities, solitary confinement, restraining him either with a straight jacket or with chains.

If the new teacher is an AU of a Chara, there’s a possibility Stage 4 would just be relieved that They haven’t left it and fall back on its old habits.

Only to get increasingly confused and hurt when They keep treating it harshly —no praise and pleasure when it shows its devotion and loyalty, no reward for fulfilling tasks.

Only pain and pain and pain. It can’t figure out why They aren’t happy with it and why everything it does seems to upset Them. Why They suddenly seem to not want it to exist anymore.

Rather than being convinced to be ‘good,’ Stage 4 will just become more and more convinced that its being bad and attempt to keep doing what always used to make Them happy when They were angry. Like offering dead animals it somehow found, kneeling, somehow handing Them a fork it wasn’t aware it wasn’t supposed to have so They could discipline it.

Offering Them its SOUL.

So between all the Stages; 1 would probably be crying and constantly begging for forgiveness, a lot of panic attacks and moments of falling mute due to overwhelming fear and stress and guilt (selective mutism.) He’ll be punished for for behaving childish and being disruptive.

Stage 3 is completely nonverbal, and likely always snapping and snarling and tugging against the chains or jacket. Trying to attack and run.

Like quietly curling up in a corner whenever finally left alone, uncontrollable twitching and harsh stimming behavior; such as smacking his skull against the wall repeatedly. Unlikely to whimper regardless of how much he wants to. Curl up in such a way to protect his stomach and SOUL, and unlikely to sleep.

He’s punished for not speaking, for behaving like an animal, punished if he doesn’t use his words. For hoarding food and eating with his hands too fast. For biting and scratching, and for twitching/hurting himself “for attention.” For being ungrateful and not sleeping.

The more Stage 4’s desperation for Their approval increases the more and more Killer becomes unstable. It’s punished for punishing itself after every failure, every expression of emotion.

It’s punished for becoming so desperate for things to make sense that it starts basically becoming even more Determined to prove its loyalty the only way it knows how—by trying to kill, kill, kill.

Stage 4’s entire world will be flipped on its head simply because it will not think to do the things that this Chara deems “good.” Because it was taught differently, that killing is good, that’s its purpose, it must. It does not know the concept of mercy or kindness and would never think to offer any to “lines of codes.”

It will try to adapt, because it wants to please Them, but They refer to it as if it is a person. They get mad at it when it does not react to death or pain. They call it words when it brings Them offerings.

If They constantly give it punishment after punishment it and it doesn’t understand why, and no rewards or being rewarded for doing the ‘bad’ things it’ll only feel like a test.

It won’t understand why not killing is being rewarded—it should not be, it has been bad. It has been ungrateful and disobedient.

It won’t accept food as rewards because that is not what it’s supposed to do. It accepts food only at certain times every week.

It won’t make choices, express autonomy, or display any moral judgment—it will not accept positive reinforcement for disobedient behavior such as trying to be led to believe it is a person or capable of making any choice. It will resist any attempts to be humanized.

If the new teacher is an AU of Chara, it will rapidly oscillate between instinctive, reverent obedience and resistance—falling more and more into confusion and cognitive dissonance. A rising sense of betrayal because They never did this before and Where is the real Them? and have They abandoned it?

Stage 4 will likely suffer a lot of breakdowns and shutdowns trying to be taught how to be a “good person,” because it fundamentally does not view itself as a person.

But if the new teacher is not an AU of a Chara or doesn’t have “Their heart,” (the locket), Stage 4 is likely to be extremely dismissive of them. “This one is not a person. Do not pretend as if it is.” or “They have no use for your kind of goodness.”

Likely to either straight up ignore or dismiss any attempts to change it, dismissing the words as a part of this particular code’s script. Mock any attempts to convince it to participate.

Will likely not accept any form of punishment from anyone who isn’t Them or allowed by Them, fighting back against punishment and not accepting reward. More likely to plan a way to kill this particular code to reaffirm its devotion to Them.

Meanwhile Stage 2 would be apathetic, playing along when it benefits him; pretending he’s “learning.”

He’d passively take any punishment or reward without any genuine care, regardless of how he pretends or any sarcastic comments. This is very likely the Stage planning the escape/revenge, if he cares at all.

(The way to get him to comply is likely to get him to doubt his memory and experiences.

Convince him that everything that happened with Nightmare and after Nightmare never really happened, was all just a dream or—if the new teacher is an AU of Chara—that there’s been another Reset.

And instead he’s still in his timeline, and either Chara is teaching him something new or he got help from the rest of the Underground after killing them. Reinforces the message that he “wants this.”)

If the new teacher is an au of Chara, Stage 4 would be too far caught up in Their presence and just wouldn’t want to leave—would never think of it. If the teacher isn’t an AU of Chara, it’d just be thinking of ways to slaughter them and escape to return to Them.

Stage 1 would believe he deserves it, and the teacher is only teaching him how to be better. Whereas Stage 3 lives in the moment, resisting any attempts to be changed for any reason whatsoever and fighting back with every punishment.

Killer will likely have to be heavily sedated just to be able to properly “work with” him without hurting himself or anyone else—likely often either dehumanized or infantilized heavily. He will attempt to regain some margin of control, even if it’s as simple as biting the hands that literally feed him or spitting in their faces.

[spookyboywhump]

Hello sorry it’s me again with Zander having seizures on my mind (I love both medwhump and Zander if you can’t tell).

Was he on medication for them?

Did he ever have one during a fight?

When was the most inopportune time he had one?

Ugh I will read and enjoy any piece you write in general tbh but also would LOVEEE a Zander seizure piece >:)) ESPECIALLY if he gets some compassion + caretaking afterwards (perhaps from Cain 😯😯😯) and also Cain feels guilty >:) etc etc etc

No need to apologize anon I am always happy to see a return :D!!!

So, the thing about Zander's seizures is that while the very first one was triggered by excessive shock collar use, the seizures he continues to have are Psychogenic Nonepileptic Seizures- linking to This Ask where such a thing was recommended to me! However that. Likely won't be discovered until long after he's been rescued, everyone who was there when it first happened kind of came to the conclusion they were caused by the shock collar and he simply won't understand for a very long time why they didn't stop even after Cain stopped using said collar (he's convinced they'll stop completely once he's home and he finds out the hard way that. Won't be the case.)

This got long oops the rest below the cut-

It's very likely he eventually tries medication for it once he's free, but from the information I have they apparently don't necessarily respond to medication- only further adding to his frustration and confusion around them. While I've never considered it before, it is absolutely possible he's had one during a fight, in which case that would definitely be the most inopportune time for it to happen, though, while he rarely gets much sympathy from Cain, Cain wouldn't be able to get that mad at him about it (He honestly blames himself for this issue and even if he doesn't necessarily show it, there's absolutely some guilt there). It's smth I would definitely be interested in exploring in actual writing sometime :3c

As for pieces regarding his seizures, I can link to a couple here!

This is the very first one I wrote!

And This One was not written by me, but @just-a-whumping-racoon-with-wifi!!! And I absolutely LOVE it, I cannot recommend it (and all of her writing while we're here) enough!

[imanopossum]

my henry headcanons 🗣️ don’t be surprised if i update and edit this post as i come up with more so feel free to check back in every so often!!

-autism 🔥🔥🔥this one’s fairly obvious and widely agreed upon though even my MOM said he was autistic 😭😭😭

-his favorite art medium is charcoals

-if he was in band he would play oboe, and piano in front ensemble during marching season. i’m a band kid and i say so. oboes are all gifted kids but you can’t march oboe on the field and let’s be honest henry would not survive summer band practices unless he was in front ensemble who dont have to march

-epilepsy, specifically a subtype called psychogenic nonepileptic seizures or PNES. this subtype is seizures that are caused by psychological distress or ptsd. fairly self explanatory

-asthma, this one just feels right i have no evidence but i feel it in my balls

-he loves ovaltine. evidence: captain midnight sponsored ovaltine in commercials, think ralphie and his annie cipher in a christmas story, also bc he had captain midnight ciphers

-he would always win at hide and seek with alice, he is thin and lanky and would have no issue hiding in some tight little spot where alice wouldn’t find him

-former gifted kid (relatable), shadow brenner in the vr game and louis himself said henry is “too smart for his own good”. his strongest subjects are biology math and literature

-he subconsciously habitually rubs at the scar on his hand. (ahaha i do that. i’m totally not projecting guys)

-picky eater, virginia does not gaf and continues to cook stuff she knows he doesn’t like

-he’s actually an animal lover bc he clearly loved the puppy he got for his seventh birthday and he was petting claudia’s cat before the mind flayer made him kill it and was so sad when he accidentally killed the rat that he actually hugged brenner like what bro was that desperate for comfort he hugged his abuser (stockholm syndrome.)

-besides captain midnight his favorite superhero would obviously be spider-man

-he’s a pisces (emotionally intuitive, sensitive, artistic, intelligent) tbh a fall or winter birthday feels more right for him and february seems pretty fitting CHAT I NEED THEM TO TELL US WHAT HIS BIRTHDAY IS I MUST KNOW I DONT EVEN CARE IF IM WRONG I JUST NEED TO KNOW

-he’d listen to hozier, melanie martinez (anyone ever notice crybaby and henry align almost exactly. abusive home-> trapped in a facility-> dying?/transformed into something nonhuman), ethel cain, pink floyd, poor mans poison

-he would get a coverup spider tattoo over the 001

[suninalantern]

It’s FND awareness month so I’ve decided imma talk about my experiences.

So if you don’t know what FND is, it’s basically the brain sending messages incorrectly throughout the body. In my case, I have various conditions alongside it. Particularly Epilepsy and Tourette’s Syndrome

I started having seizures very abruptly towards the end of 2021, which led to me having my entire life change. I had to drop out of school and I had no clue what to expect for my future.

I’ve had confirmed EEGs and my Tourette’s started before anything else. However, it wasn’t long before I developed other neurological issues. This included tremors and dystonia, along with other gait issues that would result in me needing mobility aids. I also learned that not all of my seizures were epileptic in origin. I had PNES, or Psychogenic Nonepileptic Seizures.

It’s been frustrating and rough on my already messy mental health, but I’m still making it day by day. I am trying to finish my high school diploma and do what it takes.

At one point I was practically housebound, and I’ve fortunately had an improved quality of life. However, that doesn’t remove how rough everything is.

That’s enough for me yapping though. If you have a friend with FND or any chronic illness for that matter, just remember to have patience.

[serfuzzypushover]

It's the "Mituna Anon" again, but you can call me / us "Post" or "Script" (I'm a system). Using anon because it won't let me ask from the blog I want, it's forcing me to use my base blog, UnU, anyways- :3

Have another me projecting onto Mituna head canon dump about like- Seizures and disability stuff:

Mituna with PNES (Psychogenic Nonepileptic Seizures).

Mituna who is actually clear and coherent sometimes.

Mituna with Dyspraxia / Fine Motor Control issues.

Mituna who was traumatized by what he saw and always had slight issues and overworked himself to a state that triggered all these other issues like a regression.

Mituna who acts childish for the same reasons someone with dimentia might be. He gets scared but he can't put his thoughts together anymore so he just lashes out or wanders off.

Mituna who needs a caretaker because he definitely will hurt himself on accident if he doesn't have one.

Mituna who doesn't really realize how bad of a state he's in until it's too late and he's already doing something unsafe or has gotten hurt.

Mituna who uses a wheelchair, cane, and crutches to varying degrees as needed.

Mituna who wears like skater pads and a helmet for his own safety because man trips over, bumps into, and falls on all the things because he's usually in a dissociative or derealization blur / haze and nothing around him really feels real or like a threat.

Mituna who basically feels like he's high 95% of the time because that's how seizures can feel sometimes, everything is far away and it's all kinda blurring together and he's dizzy and it's fucking confusing and upsetting but also he's too blurry to actually care that hard so he's just kind of existing. (I have had a seizure that felt like being high, I swear this is a real thing.)

Mituna who gets frustrated that he needs someone to watch him because it's really close to Beforan Culling if someone starts being a little too protective. (Even if you actually need it, it can suck to be in need of caretaking and help when you used to be more capable, or usually are more capable. It can feel like being treated like a kid and it's why *I* pick my caretakers and I hate random people in public trying to help me, they treat me like a kicked puppy and I am in fact, very conscious in my head it's just very hard to communicate or function.)

(Also here's the blog I actually post stuff like this on I guess: https://www.tumblr.com/ps-scene-setting)

ouughh yesss yes these are all great!!

[whohasfourthumbsand]

>>HIIII HI GRAY HI!!!!!! WELCOME BACK!!!!!!

>>Welcome back :3 Things are kinda fucked around here and too much has happened to, like, me in particular for me to keep up with everything else honestly but I can give you a rundown on what's been going on with me!!!

>>Apparently the researchers over here think they found something, they ran this whole modified Balwinder-Bolaño test on me a few weeks back and uhh apparently they found stuff and that doesn't really make sense since everyone's told me that those tests should only return results for NHPs and I'm not an NHP :3 apparently the results looked more like the results for a gestalt than a single thing so. uh.

>>But idk!!! The researchers haven't told me anything the only reason I know all this is because I hacked their records and I don't know too much about NHP shit so I could be misreading it.

>>You ok over there though? It's been a while I've been worried :(

-Vissily :3

+ They what? On you? "Balwinder-Bolaño"? On you? You're certain? + Cool, alright, cool. Do you have the resulting data on you? (Whether or not you're supposed to has no bearing, I know you). Any chance you might be able to wire them to me?

+ My expertise on NHPs is- lacking. Extremely. But I've got a knack for learning about that sort of thing, and GRAE has a huge database to draw from so long as I have a jumping-off point. I might be able to bring you back some answers!

+ As for myself, that's- subjective. A little. According to Gatsby, I collapsed in the middle of the night, halfway between my bunk and the mess hall. I don't remember it, but sickbay said I suffered a "psychogenic nonepileptic seizure". After some time off, TLC, and hot chips, I'm feeling much better! For the time being, however, I'm getting around 148's garage in a wheelchair; The extra hands make this really easy, honestly, if not a little unweildy. + I've been resisting the urge to pop a wheelie on this thing since Turing gave it to me.

+ I know I'll be okay. + After all, I've got a DDR rematch to train for.

[finnslay]

I went "Floppy Noodle Mode" (atonic seizure) in theater yesterday

A said I was like a wet spaghetti noodle

C goes "oh my gosh, they're Finnuccine"

Theater kids are ruthless 😭

[theamphibianmen]

I see a lot of posts about how shitty it is to film disabled people in public and to make jokes when someone is having a medical emergency, and while in general I absolutely agree, there is a degree of nuance.

I have seizures, (most likely psychogenic/nonepileptic, I'm still going to be working with a neurologist to confirm my brain is intact though) and sometimes my friend @corypaws films them so that I can show my doctor. They have expressed guilt about doing this, but here's the thing: not only did I consent to this, it was my idea.

I had a seizure yesterday, and another friend, @thosegoodbois , made a joke about Caesar salad during it. They also felt guilty about this, but it was still incredibly helpful for me. On certain rare occasions, I'm fully conscious and aware for seizures. This was one of those times, so I heard everything. The people around me staying calm helped me stay calm too.

If a disabled person outright asks you to film them, you should really consider doing it. If a disabled person asks you to stay calm during a medical situation, you should at least try. Videos can be a very helpful diagnostic tool, and help make sure we are believed by doctors*. Freaking out when we have a medical problem might cause us to freak out too.

So basically I agree that in general filming disabled people and making jokes during medical emergencies is bad, but it's fine if you have consent.

Remember: disabled people are not a hive mind. At the end of the day, it should come down to what the individual wants.

*you probably shouldn't post it online though

[spookietrex]

New Chronically ill bookmark that will be going up on my shop soon.

Picture ID: a lavender colored vertical bookmark. On the left of the image read the words, "Chronically ill and not thrilled" in black with a shadow of white behind the text. There are stars all around the words and the image to the right: a hand-drawn roller-coaster with 3 cars, one decorated in zebra colors (EDS), purple and teal (psychogenic nonepileptic seizures, PTSD, Sexual assault survivor, food allergies, fibromyalgia, ED), green and blue/turquoise (depression, climate change/global warming, autism, CFS, arthritis, DV, and dysautonomia). Bottom of picture reads Apothic Studio 2024. End picture ID.

[disabled-systems]

(Regarding non-epileptic seizures)

According to the United States' National Library of Medicine's academic article entitled 'Dissociative Seizures: a Challenge for Neurologists and Psychotherapists', a Dissociative Seizure is defined: "Dissociative seizures resemble epileptic seizures but have no electrophysiological correlate. Their manifestations may include alterations of consciousness such as trance or stupor, amnesia, and/or hypermotor seizures with more or less rhythmic movements of the head and trunk, muscle stiffness, and tremor-like movements. In the current diagnostic manuals (DSM-IV, ICD-10), they are considered a manifestation of a dissociative or conversion disorder (e1). Dissociative seizures are not under the patient’s voluntary control and are thought to represent the patient’s involuntary response to emotional stress." Associated cited articles include 'Reuber M. Psychogenic nonepileptic seizures: Answers and questions', 'Gates J R. Diagnosis and treatment of nonepileptic seizures' and 'LaFrance WC, Jr, Devinsky O. Treatment of nonepileptic seizures'. Further, the United Kingdom organization Epilepsy Action mentions that, "...it’s thought they are a physical reaction to distressing triggers such as sensations, thoughts, emotions and difficult situations. Some experts say dissociative seizures are the brain’s way of ‘shutting down’ to protect itself from overwhelming distress. What happens during a dissociative seizure varies from person to person. Some dissociative seizures look very similar to epileptic seizures, whilst others look more like fainting. Someone having a dissociative seizure may fall to the floor and have shaking or jerking movements, bite their tongue and lose control of their bladder. Other people may go blank and stare, and not be able to respond to people around them.

Sources:

stresshttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3647137/

https://www.epilepsy.org.uk/info/seizures/dissociative-seizures-non-epileptic-attack-disorder-nead

So, in those with dissociative identity disorders, non-epileptic seizures may occur in between switches. For instance, if I switch with Doc and in between the switch our head droops or our eyes blink rapidly or feel like we’re going to fall over; that is a non-epileptic seizure switch.

I hope this helps! Sorry if it comes off as rude, we’re in a class where we research stuff constantly and we responded in between work

- 🌅 anon

thank you so much for this info!! i had no idea, this is great to know :)

-aimee (any)

[thedisabilitybookarchive]

Update: 31.03.2024

Fixes:

Updated entry for "'The No-Girlfriend Rule'- Randall, Christen"

Update blog entry for "'The No-Girlfriend Rule'- Randall, Christen"

Added:

Category for "PNES | Psychogenic Nonepileptic Seizures"

Tag for "PNES | Psychogenic Nonepileptic Seizures"

"Horse Riding" to "Themes & Tropes" page

Aesthetic:

Other:

Added the City of Spires series by Claudie Arseneault to the "Under Review" list. This is just while I verify some information regarding the rep in this series.