#Panspandas

[bloodonvalentine]

i feel like something i never talk about on this blog are my experiences living with PANDAS. it's probably because it's not like, incredibly relevant to this blog, but i want to start talking about it.

it's such a poorly understood and rarely spoken about disorder and it has completely changed my life. i was like. somewhat normal until age 10 when i caught it. (yes this is a disorder you can catch, it's formed due to contraction of strep a)

this disorder has made my life a living hell.

im not going to go into detail, but if you look up PANDAS, you'll understand why. the only reason we even considered it as a possibility when i was getting diagnosed was because of the development of motor and vocal tics, which i had never experienced before 2017.

it's hell to live with, and i always say i got the short end of the genetic stick, but this is just a whole other level of bad luck.

anyway, thanks for reading my rambling. if you're interested in hearing more about it, lmk and i might make a blog for my personal experiences or something idk

bonus cat

[anonymoushuman2]

meet the love of my life and my best mate that insisted that I post these. The ones with the purple hair were taken at pride which was tons of fun. This bitch is the best thing to happen to me and I am hopeless to do anything other than what he asks. @eggsrus love you fuckhead.

[its-ticsticstics]

Tic Disorders also include FND, PANDAS/PANS/BGE, tardive dyskinesia, and other brain disorders.

Anxiety/ADHD/PTSD/Austism etc tics are not real so please do not vote for those cases.

[nancylawrynowicz]

Is PANS/PANDAS/BGE Genetic?

A child cannot directly inherit PANS/PANDAS from a parent. However, they may inherit an autoimmune deficiency/disorder from either parent or from a variance in genes, which can then progress into PANS/PANDAS by an environmental trigger.

[pandaspansawareness]

If you developed OCD, a Restrictive Eating Disorder, or Tics at the same time as an infection or straight after, or suddenly along with other symptoms such as psychosis, or urinary incontinence / needing to pee more than usual, or Separation Anxiety, or Behavioural and Developmental Regression, or Dilated Pupils, please consider PANS/PANDAS/BGE.

[ottstories]

PANS is a clinical condition defined by the abrupt onset of OCD and/or severe eating restrictions and at least two concurrent neuropsychiatric Symptoms: 1-Anxiety/Separation Anxiety. 2-Emotional Lability, Depression. 3-Irritability, Aggression, Rage. 4-Behavioral/Developmental Regression. 5-Deterioration in School Performance. 6-Sensory/Motor Abnormalities, Tics. 7-Somatic Symptoms, Sleep Disturbances, Enuresis, Urinary Frequency. Any child that develops a cluster of these symptoms should have a full workup for PANS/PANDAS. At least 1 in 200 children have PANS/PANDAS. PANS does not require a known trigger. Triggers can be strep or other pathogens like mycoplasma, Coxsackie, Lyme, etc. as well as non-infectious agents. Symptom severity and presentation varies from child to child. PANS/PANDAS symptoms may relapse and remit. Children can recover completely this treatable pediatric autoimmune disorder if treated properly and early; if not, symptoms can exacerbate and become chronic. Learn more about PANS/PANDAS today. www.NEPANS.org Know the Signs. Know the Treatments. If a child has sudden, acute onset of OCD and/or Food Restrictions and multiple neuropsychiatric symptoms, consider PANS/PANDAS. #PANS #PANDAS #PANSPANDAS #PANDASPANS #PANSAwareness #OCD #Anxiety #ADHD #ODD #Regression #Dyspraxia #Anorexia #FoodRestrictions #AutoimmuneEncephalitis #IntegrativeMedicine #IVIG #Lyme #Strep #PediatricAutoimmuneNeuropsychiatricDisorders #AutoimmuneDisease #CaringForTheCaregiver https://www.instagram.com/p/BotsTNihUAO/?utm_source=ig_tumblr_share&igshid=19siy5yllxrgm

[nancylawrynowicz]

Sugar is a trap

You know what's crazy? Man-made sugars were never intended for human consumption. When we eat it, our body to reacts as if it were a foreign substance. As our body "defends us," it can trigger behavioural, physiological, or immune reactions.

[pandaspansawareness]

A Poem To Those Who Don’t Accept My Tics

People say it’s a disorder

Like something in me’s out of order,

They want to banish it out of me,

But why can’t they just try to see? 

They see it like the spawn of satan, 

Is the one making me twitch, 

But what we really need to straighten,

Is the fact that it’s not just a glitch. 

This ‘glitch’ you speak of helps me,

Why can’t I just tic free?

Why can’t we just accept this unique form of diversity? 

They want me to be ‘fixed’,

As if loving me and having tics can’t be mixed,

They want me to be ‘normal’,

As if I constantly have to be formal,

But can you imagine,

How boring that would be?

You may not know the strength it took,

To accept myself as I am, 

But you look at me like I'm some sort of crook, 

Who just couldn’t give a damn. 

I refuse to make you comfortable,

In your ableism,

I’m ungovernable.

You must love me as I am, 

If you truly love me like you say. 

Do you love me as I am,

Or just as you want me to be? 

I want to be free, 

Not from my ���disorder’, 

But free to be me,

You were out of order.

Why won’t you just accept me as I am?

Why do I have to change for you? 

Why can I not just be loved with my condition? 

I refuse to be ‘cured’

Just to be seen as ‘acceptable’. 

You likely don’t know what I've endured,

The judgement is what’s unacceptable. 

The problem wasn’t me. 

By Romy. W

[pandaspansawareness]

Everyone working in the mental health sector should know about PANS/PANDAS/BGE.

PANS is a clinical diagnosis and is caused by so much more than just Strep

1 in 200 people are thought to be affected

It is often misdiagnosed as Tourette Syndrome, OCD, Schizophrenia, Bipolar Disorder, ED’s, Autism, ADHD, ODD, etc. 

[pandaspansawareness]

Even so called 'mild' cases of PANS/BGE can be extremely distressing.

[pandaspansawareness]

Tics VS Tourettic OCD