#Living with a Chronic Illness

[akindplace]

Thinking about how I should give myself permission to just suck at things and still do them without the pressure of needing to be great at every single thing I do. I’m human and I’m faulty and I’m sleepy and doing the things I want to do and sucking at them is better than never trying to do anything new. Life is about learning through experiences but even if I don’t get better at something what matters is I’m still trying. I’m still worthy even if I can’t do everything right all the time. Even if I’m tired and need to manage my very high expectations and those of others so I can do things at a pace that I can keep up with ❤️‍🩹

[fall-into-wonderland]

Hell Week

Hell Week started with a round of tests about my memory and things like that. It was a bunch tests like remembering lists of words, numbers, doing math in your head, I know I did good on that test. My memory isn’t bad or messed up which is all that needed to check. The rest of the week was much harder. The pain was so unbearable. It lasted most of the day for the rest of the week. I had a…

[teacupbug]

My controversial opinion is that I think chronically ill people should be able to fight one doctor a year

[lotus-tower]

i have no words

source

[chadepitanga]

there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.

[araekniarchive]

@mnvart // Kaveh Akbar, 'Calling A Wolf A Wolf' // @PinkRangerLB on Twitter // @kosmogrl // @devinsturk, '15 Proverbs for the Fellow Chronically Ill' // Jasmine Deporta // Anaïs Nin, House of Incest // the gentle wisdom uquiz by @inkskinned // Rora Blue, 'Sweet Dreams' // Hala Alyan, Dear Layal

[perdamian]

hey guys… we all know that it’s okay for mithrun to have a caretaker for the rest of his life, right? that even after he heals and potentially regains his desires he will probably still need support?? that the goal of healing is not to become a “normal person”, but to build skills to navigate the world in a way that accommodates your disability??? that relying on the people around you is not a failure, but proof of your desire to live????

[cayliecoltrane]

quick lil ETHOwO redraw

[fernthefanciful]

Please please please I am BEGGING y'all

When you visit someone who is chronically ill or disabled and their house is not as clean or tidy as you'd like: just don't say anything

We *know* okay.

Trust me, we know

We'd love to see it differently too. But the truth is we *can't*. And you know this, you do!

So please. Just shut up. Don't pile on more guilt and feelings of inadequacy. We have enough of our own

[akindplace]

Trying to get over this capitalist notion that maximizing and optimizing everything is what makes things successful, including my own health progress.

You don’t need to have maximum progress so that can be considered successful on your part. Any progress still is progress, which is great, and it deserves to be celebrated even when it looks like a “small step” because when we’re struggling everything takes way more effort to do, so a “small step” still is progress and still is something you succeed in. Take the small wins. They matter too, just as much as the bigger ones.

It’s better to go slow than to burn out by trying to improve your health. You don’t have to prove anything to anyone, healing takes time, so you don’t need to focus on getting better, or recovering or healing at an incredibly fast pace which is impossible to keep up with on a long-term basis. You’ll only become more tired. You’ll only risk getting sicker.

The small things you’ve accomplished are still accomplishments. Take it slow, take those small wins, and be compassionate towards yourself and with how much you’re struggling. Everyone has different limits and respecting yours doesn’t make you lazy because it doesn’t erase any of your efforts, it just makes you someone who knows how to rest before they get sick.

[fall-into-wonderland]

Anxious as the Rabbit

It took 10 days for me to be able to schedule the rest of my tests. Ten long anxiously awaiting days to receive the call of when my next trip would be to Atlanta. The day before I got the call I found out some more information regarding my upcoming tests. I have five more tests and two of which scare the hell out of me. I’m going to have them all scheduled in one week. It’s going to be hell…

[idontreallyknowanymoretobehonest]

Ah yes, It’s a “splurge” to spend money on keeping your house livable.

just like how it’s a splurge to buy groceries

[800-dick-pics]

Help a chronically ill person eat!

Hey im struggling to eat any soilds due to being in a pretty bad chronic illness flare. I cant keep anything soild down so I need liquid nutritional shakes to help replace the calories im not getting from soild food. The only brand my stomach agrees with costs $30 for 6 shakes so Im really not in a place to buy 2-4 boxes at the moment.

If anyone could help me get a few boxes of shakes that would be amazing! $90 would get me 3 boxes!

CA: $sleepyhen

VN: wildwotko

Dm 4 Paypl

[shotofstress]

Coming back after being almost a week without electricity, phone, and internet connection. Huge storms with lightning and rain, and winds. We have never have winds like that here and the roof of so many houses were ripped off, stuff flying, etc. All this bc global warming, and the deforestation and mining in our lands. At this rate, in 5 years we will have tornadoes, a thing we have never ever have here. Nor our lands, infrastructures, states, and culture are prepared for this. Areas of the country are devastated, ppl have died, many are without electricity nor Internet connection so they are isolated. The houses are flooding with water, and the ones that not, are leaking from the ceiling. Too many neighbours and compatriots don't have roofs and the streets are full of fallen trees and pieces of roof material, no electricity, no signal, food rotting, but suffering at the same time for the cold of this terrible winter, and trying to do something, patching even when its gonna go to hell when the storm comes again this next days. More than 33,200 people affected and 41,500 isolated due to 5 days of rain and windstorms. In just a couple of days there were 170,000 homes left without power due to wind and rainstorms and even more as time went by.

If u want to help me to fix the roof, walls, to buy food and being warm this winter please check my Ko-fi. If u can't donate, please reblog bc thats the only way to make this being seen by ppl thus receiving help. I'm really not being able to keep living like this, i can no longer cope, so please share.

Here are in my PayPal or MACH . I took the kofi link bc they were charging me a fee.

Please, educate about global warming and the effects on Global South, specially for working class, chronically ill, autistic, disable, and long covid survivor ppl like myself.

Edit: I added links and pics

Edit: the weather is getting better, but I still need to fix were I live/sleep bc the walls are broken and one of the walls is not a wall, but like 1cm wide stuff and all was bad build so even the door is twisted and dont work correctly, there is black mold, the paint is falling, the lamp has fallen, everything is broken and ugly, etc. I still need to buy food and everything so please, please, share or donate if you could. I don't want to survive like this and here, no one mask even when they were the ones giving me covid bc of it and they have making me also catch flue the other day bc they cogh over everything and don't care if they kill me, they are abusive and really violent people and are working to put me and everyone in danger. I dont even want to be in my country bc we will have a dictatorship soon, but I have nowhere else to go nor money to migrate (i need like $10.537 dollars or € 9.760,95 euros to pay all the documents, the bank money I have to show to prove I am a human being deserver of rights, the tickets, rent money and stuff to migrate).

I currently have $100 dollars donated (coz i spent 40 in food and meds this past month)

I know i will die here, but at least help me to survive in a less dehumanising way.

Edit: tumblr has blocked me from recive or send messages from the chat and comment of posts, so if you are trying to reach throughout there I can't see it, sorry, I'm cut from any communication (cant even see past messages from chat or asks), except send asks. I'm waiting that tumblr do something, but still hasn't even answered the help file I sent to them.

[billydursens]

LENNY & ME 4 TODAY – MY DESIRE FOR HOPE

LENNY & ME 4 TODAY – MY DESIRE FOR HOPE

By William (‘Lenny & Me’ refers to myself and my constant companion – chronic illness and disabilities with the lungs in severe asthma/COPD as well as anxiety. ‘Lenny’ is a name I gave my chronic illness because giving it a name I find it easier to deal with.)             I will begin the new year by repeating here what I posted on my personal Facebook page on Sunday.             “It is time…

[starfishinthedistance]

Friendly reminder that if you support reproductive rights and bodily autonomy but say that disabled people shouldn't have children because they'll pass down their genes which is "cruel" or "abusive", you do not support reproductive rights and bodily autonomy. Reproductive rights do not only concern abortion for cis white abled women.