If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.
Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.
And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.
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Drinking up the last days of summer
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Shout out to people who can’t follow sleep hygiene rules because of their disability.
Shout out to people who need to rest in bed without sleeping because being in a wheelchair/ chair for too long causes problems like pain, fatigue or pressure risk.
And people who can’t sleep in a dark room because their medical devices and equipment have essential lights.
And also to people who need a PA/ carer to frequently come in during the night and disturb you.
Just in case you need to hear it – you aren’t doing anything wrong 💜
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When your dog ominously opens your door and stares at you at 3 am except it’s a giant 8th generation high density reinforced beframe
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Big day-off energy. Went for a swim. Walking back from the pool, my wet hair drying in the warm sun, I saw the italian deli was open. Rows of sfogliatella made me think of naples, last summer. Lying on the grass in the park with my pastry I thought: this is the ultimate activity, just doing nothing. But I knew I was wrong, when I found myself dancing, losing myself in a sea of bodies at the Nubiyan Twist show. That is the ultimate joy.
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