#DS.general asks

[disabled-systems]

> and if you believe a single alter can be disabled when the rest of the system is not.

Dynamic blindness has been documented in DID multiples for decades. Way less severe but I'm friends with a system who has one redblind alter. I see no reason that certain disabilities.

Can't find the dynamically blind case at this instant but here's another dynamically colorblind system from I think the New York Times

> “a problem that ended with the successful treatment of her… condition”

it is not a physical disability at that point! it would be considered a delusion or a hallucination since color blindness is not something that can just “go away”

also, from what i understand, ADA does not generally consider color blindness a disability (this can change with severity). /info

> “multiple personality condition”

proof that this us a very outdated article as that term is no longer applicable!

a single alter in a system cannot be disordered or disabled individually. alters can present with different severity, however, the whole body and brain is still disordered!

hope this helped :) /g

-aimee (any)

[disabled-systems]

Can we ask why y'all anti-endos exclude other traumagenic systems because they don't agree with y'all being haters? Like endogenic systems are not hurting you nor are they co-opting a disorder. Like your take is IGNORANT. So let's exclude all the pro-endo traumagenic systems who have physical disabilities because they aren't hateful like you are. That's really nice of you. Just goes to show anti-endos are not about being cool for traumagenic systems, just the ones that hate on endogenic systems like they do. Gross.

once again you people are going out of your way to interact with us when all we have asked is that you dont interact. we arent making hate campaigns, we arent making long posts about it on this account, hell, we dont even talk about endos that often on our SYSCOURSE account, and yet here you are still.

im not explaining myself to someone who wont listen and wasting my energy on someone who i dont want to fucking interact with. all you want to do is argue and break boundaries and be a pain in my ass. go fuck yourself.

-aurora (he/him)

[disabled-systems]

Welcome to Disabled Systems!

This is an ask blog meant for physically disabled systems to have a safe space to collect and talk! This blog is also meant to start and uplift a conversation about the exclusion of physically disabled systems!

This blogs intentions is not to exclude mentally disabled people, but to have a space exclusive and safe for physically disabled people. Please be respectful of that.

How to submit asks;

This is a formatted blog, but you don't have to stick with the format! The main format is "Disabled system culture is...", but you can also share stories that pertain to being a disabled system, ask questions, look for info, and whatever else!

INBOX OPEN!

Mods;

Nuke's Wasteland/Antihero! (Tag; ⚠️) Pronouns; it/its (Main blog; @pixelated-blood-cells) About; Hi! We are NW, an adult system in college. This blog is run by us but specifically Aimee (all prns), which is me! I'm the person in this blogs PFP, but that might change later. We are a cane and ambulatory wheelchair user :)

This blog is not currently looking for mods.

DNI;

DNI if... normal dni + proship, (pro)endo, radqueer, transid, antimogai, anti mspec (including anti mspec gay/lesbian), zoophiles, syscourse blogs. people trying to start fights will be blocked!

Further DNI if... you think "crippled" or "cripplepunk" can be reclaimed by phys-abled ment-disabled people, and if you believe a single alter can be disabled when the rest of the system is not.

Claimed Anons;

🍃🌾, 🕷️💤, 🐛🌈, 🌈🦨, 🐍🔮, 🌅 sys, 🧋🐍

Divider Credits Hearts

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[disabled-systems]

pro endo disabled systems are still disabled. pro endo disabled systems still deserve to be included in spaces for physically disabled folks. your “inclusivity” on this blog is shoddy at best and you are just cultivating another echo chamber.

ps… you can be traumagenic and still pro endo.

i never claimed they werent disabled. if this was a blog for JUST phys disabled people your argument would be valid, but its not. its for disabled SYSTEMS.

i am not even saying endo systems arent systems. i have no place to say that. all i asked was for them to not interact. if you are so gung-ho about your viewpoints then go and make your own blog and manage it and moderate it yourself.

at the end of the day this is MY blog and you WILL NOT tell me how to run it. please leave.

and yes. i know. but i dont agree with that viewpoint and this is MY blog for people I CHOOSE to uplift so i choose who gets to be here.

-aimee (any)

[disabled-systems]

Do y'all know about the sunflower lanyard scheme??

oh god?? we know what sunflower lanyards are but not any scheme? whats up?

-aimee (any) and MACCR (he/they, also temp abbreviation until he gets a name. dude has existed for months now and still doesnt have a name)

[disabled-systems]

We’re not even pro endo but even we can see that having “(pro) endos dni” on a disability culture blog is in poor taste. If it was just endos dni, that’s one thing. It’s fair to not want endos to interact with a blog like this if you don’t want them to (even though they themselves can be and often are physically disabled).

But pro endo systems often have dissociative disorders themselves. They can have histories of complex trauma. They can have alters who feel one way while the rest of the system feels differently. And they can be physically disabled. It’s weird to have a culture blog for systems that cuts off such a huge swath of systems who could be in need of such a space.

It might be worth considering for you to take the (pro) out of your dni if you actually care about physically disabled systems. Please understand that syscourse is a really touchy and complicated topic for lots of systems, and not everyone will be able to fit neatly into that black and white view of “anti endos good, pro endos bad.”

i genuinely understand where youre coming from here and i really appreciate where your heart is, but i dont agree with you.

the problem with even a pro endo traumagenic system interacting and sending asks is that those system experience could be heavily formed by misinfo and other things like that. while their experience still could be valid, theres nuances that i worry about. the actual symptoms may be real, but the way that they connect them together or talk about them could be entirely wrong or even upsetting to us personally. another issue is, i could be unknowingly promoting misinfo with non-anon asks for people who could go to their blog because i platformed it.

a good analogy is: would you want a pro-transID but fully, validly transgender person interacting with you? a transgender person who agrees witht transracism, transageism, trans-ect, but isnt themself. their ideology is still JUST AS HARMFUL. would you want that community coming into contact with a space you made so that YOU could share your OWN safe space? no. you probably would not.

our goal isnt and never has been exclusion. if you want to be pro endo, or hell, even endo and follow and like our posts, we dont stalk our follower and like tags. go for it. we dont care. where i draw the line is that we have been being sent MULTIPLE asks a DAY when this blog is only near a week old about how we are a terrible person for not allowing pro-endos in OUR OWN SPACE.

no hate to you anon, but please consider our position from someone who just genuinely wanted a space to be safe from every-day ableism.

-aurora (he/him)

[disabled-systems]

Can I ask how you know you're a system or if you have advice for people who are questioning if they are? I think I might be one. I'm honestly really confused. (If you're not comfy answering asks like these, feel free to delete.)

there isnt a very solid answer on this one because everyone’s experience is different, and thats okay.

the best advice i can give you is this:

1. dont jump too much into things, but iself dx is valid

2. being wrong is okay

3. not everyone’s alters are very separated. dont force separation!

our journey was a very rough one and we still dont know everything about ourself. we discovered, repressed for two years, rediscovered and then discovered we were polyfrag. it was hard, it was a lot of change, and it was scary, but we are okay and we are making it, so dont be scared. youll be okay.

this isnt all my advice but its the biggest things imo :]

-aurora (he/him)

[disabled-systems]

well, we have pain in both knees, as well as our back, but it is uneven (worse on left side, generally.) i've heard canes are more for balance problems and our issue is more pain+weakness. i'm assuming some kind of rollator or walker would be the best for us? i'm unsure though!

canes can also be used for weakness and pain if its only on one side, but you are correct, theyre mostly for balance!

a rollater would be a good option if you find yourself needing to sit frequently and IMO is a good alternative to a walker which, to me, are moreso for balance and stability + can be a bit cumbersome compared to a rollater which you can (surprise! roll)

i would also look into forearm crutches if i were you! they take up both arms (so does a rollator, but you can get those with storage) however they can completely or mostly take the pressure off of one leg. like their name, they function like normal crutches.

to me if you have back pain AND leg pain a rollator may be your best option, but obviously im not you and im not an expert, so look out for other options and get more opinions! best of luck :)

-aimee (any prns)

[disabled-systems]

Why can’t pro endo disabled systems interact? You’re not cultivating a safe space for disabled systems if you’re purposefully excluding a big percentage of them.

Sincerely, a physically disabled DID system who is trying to choose kindness in their lives.

Annnd here we go 😐

yes. i want a safe space for physically disabled **systems** to go. I, of course, am not going to call all endos fakers or roleplayers because thats not my place and i dont believe in fakeclaiming. however, i do not want people who commodify and demonize and co-op my disorder to be in a space meant for systems. i already face enough ableism in real life as an obviously disabled person, i will not be subject to it online ^^

if you want to call yourself an endogenic system or support those who do, thats none of my business, but i was very clear i dont want yall around here, so please respect that.

- Aimee (any) and Aurora (he/him)

[disabled-systems]

Hope you guys will be okay! Stay safe and look after yourselves! @cpunkwitch

thank you!! idk where you are or if its gonna hit you but if it is stay safe!! <3

-aimee (any)

[disabled-systems]

Traumagenic disabled system here, I just hate seeing syscourse in the physicallydisabled tag. Its got nothing to do with it, please stop poisoning unrelated spaces with your syscourse stance

let me be clear: THIS ISNT A SYSCOURSE BLOG. people are MAKING it a syscourse blog.

furthermore: we use all the same tags on our posts. i am only making posts about it as asks come in about it. i have a right to be in a physically disabled tag when i am being harassed as a physically disabled person. i have a right to post on tumblrs tags. it is a public website. just block me if you dont want to see me responding to people being off. i also tag most posts with syscourse and all the posts that arent “culture is” are tagged with ds.general asks so you could block that tag. the internet is a free space. did you forget the block button exists?

FURTHERMORE: this is a cripple punk blog. you know whats punk? standing up to people who are going out of their way to break your boundaries.

i really dont want this blog to be people nonstop getting on our ass. again, if you want to make a blog for pro-endo disabled systems, be our guest, but respect our boundaries and for the love of god PLEASE piss off. kindly.

-takeoff (he/far/away)

[disabled-systems]

Hello again! I was wondering if you have any good resources on mobility aids? Me and our pain holder have been thinking about if that is something that could help us, but we don't know where to start looking for what type of mobility aid could help.

-Miki

hi again miki!!

it depends on the aid- what are you looking for? i dont have resources per se but i can recommend some things! also im sure if other people have resources theyll share :)

-aimee (any prn)

[disabled-systems]

not a thingy but I saw folks were breaking y'all's dni and gods m8 I'm sorry folks r being shitty

You've got a good, kind project, ya deserve better than these fuckers.

I am sending internet hearts 💛 remember to take breaks n shit mate, your mental health is far more important than these clowns.

Don't gotta respond or post this just !!!! Me cheering you on haha

thank you!! it means a lot <3

im not particularly upset by it per se, its just frustrating cause we didnt like. do anything :,) like rory (aurora) said if it was over on @/nuke-your-mind wed get it but this just. isnt a syscourse account.

thankfully none of the people in our box have been too bad! if theres an actual issue i wont hesitate to call people out on it

-aimee (any)

[disabled-systems]

in order for a physical disability to totally vary between alters there must be an issue in the brain: an alter not having access to some area (in this case in the visual cortex) for whatever reason.

so the line between physically and mentally disabled is blurry here.

Also here's a more recent case of dynamic blindness in DID from 2015: https://www.washingtonpost.com/news/morning-mix/wp/2015/11/24/the-blind-woman-who-switched-personalities-and-could-suddenly-see/

Screenshot because I'm an anticapitalist anarchist:

The part of the article at the bottom proves the point that I made in my original post.

“���blindness wasn’t caused by brain damage, her original diagnosis. [The blindness) was instead… brain directive, a psychological problem”

A psychological problem, hence not physical, hence not a physical disability.

There is no blurriness about what is physical and mental. Mental disorders can have physical symptoms, however that doesn’t necessarily make one physically disabled. In this case, her blindness was likely some form of psychosis.

If you’re going to send me sources, at least read them first. While you are on the topic of reading, please direct yourself to our DNI and read that closer.

-Ran (they/dae)

[disabled-systems]

We haven't got many to tell but we wanna share it. We got our professional DID diagnosis - 🧋🐍

THIS IS SO AMAZING I AM SO HAPPY FOR YALL!! CONGRATS <3333

-aimee and aurora!! (any and he/him)

[disabled-systems]

(Regarding non-epileptic seizures)

According to the United States' National Library of Medicine's academic article entitled 'Dissociative Seizures: a Challenge for Neurologists and Psychotherapists', a Dissociative Seizure is defined: "Dissociative seizures resemble epileptic seizures but have no electrophysiological correlate. Their manifestations may include alterations of consciousness such as trance or stupor, amnesia, and/or hypermotor seizures with more or less rhythmic movements of the head and trunk, muscle stiffness, and tremor-like movements. In the current diagnostic manuals (DSM-IV, ICD-10), they are considered a manifestation of a dissociative or conversion disorder (e1). Dissociative seizures are not under the patient’s voluntary control and are thought to represent the patient’s involuntary response to emotional stress." Associated cited articles include 'Reuber M. Psychogenic nonepileptic seizures: Answers and questions', 'Gates J R. Diagnosis and treatment of nonepileptic seizures' and 'LaFrance WC, Jr, Devinsky O. Treatment of nonepileptic seizures'. Further, the United Kingdom organization Epilepsy Action mentions that, "...it’s thought they are a physical reaction to distressing triggers such as sensations, thoughts, emotions and difficult situations. Some experts say dissociative seizures are the brain’s way of ‘shutting down’ to protect itself from overwhelming distress. What happens during a dissociative seizure varies from person to person. Some dissociative seizures look very similar to epileptic seizures, whilst others look more like fainting. Someone having a dissociative seizure may fall to the floor and have shaking or jerking movements, bite their tongue and lose control of their bladder. Other people may go blank and stare, and not be able to respond to people around them.

Sources:

stresshttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3647137/

https://www.epilepsy.org.uk/info/seizures/dissociative-seizures-non-epileptic-attack-disorder-nead

So, in those with dissociative identity disorders, non-epileptic seizures may occur in between switches. For instance, if I switch with Doc and in between the switch our head droops or our eyes blink rapidly or feel like we’re going to fall over; that is a non-epileptic seizure switch.

I hope this helps! Sorry if it comes off as rude, we’re in a class where we research stuff constantly and we responded in between work

- 🌅 anon

thank you so much for this info!! i had no idea, this is great to know :)

-aimee (any)