#Chronic Migraine

[layla99999999]

yes but it goes like this: "um no i'm not that ill i'm just lazy and i need to push through"

*pushes through*

"am i dying right now why do i feel like this"

"oh maybe i actually am sick"

"no, this cannot be true, everyone was always saying that i'm just lazy - i am imagining these symptoms right now, i need to collect myself and stop being silly"

*dissociates*

*does another thing*

"yeah now i'm already dead"

*waits until it gets a 1% better*

"yeah i'm not that sick, i was able to dissociate and do the thing so that means i'm healthy and i just want attention, i'm completely healthy i should do this and this and this now"

*failes to do anything cause i did too much and i can't move from pain*

"i'm just lazy i should kill myself"

[chronicallyuniconic]

yeah...

[sarcasticallyexplicit11]

Chronic migraine haver Darry going to work despite the blurry vision

Chronic migraine haver Darry trudging up and down the ladder slowly because his head is pounding something awful

Chronic migraine haver Darry who’s boss calls Soda the moment he notices Darry not working as hard

Chronic migraine haver Darry almost crying from relief when his boss sends him home

Chronic migraine haver Darry who gets basically carried into the house, all his strength zapped

Chronic migraine haver Darry who has to sit on the dark, bathroom floor in case he needs to throw up

Chronic migraine haver Darry who lets out a big sigh when Ponyboy put a cold wash cloth on his eyes

Chronic migraine haver Darry with a heating pad on his back, muscles so tense he can barely move

Chronic migraine haver Darry falling asleep with his head in Soda’s lap while he was massaging his head and neck

Just chronic migraine haver Darry

[chronicallyillcloud]

Being 90% bedridden feels like torture if I love being productive. I'm reading more books lately to stop being online all the time, but I'm barely able to focus and after a few hours I'm unable to focus at all. I'm basically dissociating for a large portion of my day. I could watch TV and such, but I'm just 'consuming' and I feel empty when I do this for a long time.

I need to reframe my thinking on 'productivity', 'usefulness', 'wasting time', but it's really hard. I see people enjoying their life, the world keeps spinning and I'm just alone in the same bedroom. It's lonely, isolating and everything I do feels useless.

I feel like entertainment is never meant to be watched for 24/7, it's meant to be a treat after a day of productivity.

[layla99999999]

me with the chronic pain, desperately wanting to do so many things but being physically unable to, going blind from the headache, genuinely scared i'm dying right now because of how bad the pain is:

"i'm so LAZY, i just make this all up because i want attention, i only need to motivate myself, why am i so lazy i should kill myself, i'm completely healthy i'm just too stupid to motivate myself, these symptoms are just my hallucinations, i have delusions because i want attention, i should kill myself if i can't even work while being completely healthy"

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[raging-guanche]

friendly reminder you dont need a diagnosis to be in disability spaces, as an example im in constant pain and fatigue, have migraines every week and my joints hurts to a point I can't write, but since familiar gaslighting/medical trauma and the fact that im an indigenous, brown skin fat man a diagnosis is fucking hard (but im in my way! :)) , but i still deserve a safe space to talk about my experiences and to feel valuable and supported.

never feel like youre interrupting someone's space or that you shouldn't be here cause you dont have a diagnosis, disabilities existed before diagnosis

[s-ccaam-era-crepe]

i think everyone who's ever had migraines should be financially compensated forever btw

[johnlennonirl]

Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

[thebibliosphere]

Have you ever vomited so hard you not only wrecked your throat but dislocated your collarbone?

How about a migraine so bad it triggers your mast cells into a pre-anaphylactic reaction and you start breaking out in hives all over your body?

Yeah. Me neither until 4 o’clock this morning.

New level of hell unlocked.

And the migraine is still ongoing. I’m just no longer blind and dry-heaving.

I hate this.

[red-panda-fangirl]

Legit one of the hardest lessons I had to learn. Being exhausted it okay.

[chronicallyuniconic]

It's odd getting diagnosed. I've waited YEARS for the 'right' one to be given. I lost count how many times i cried & begged for help, medical care, further testing. The isolation of illness, quiet suffering. Then, one day its as if im going to get answers, finally. Within all the fuckery they go "you have ___" the relief of that wasn't really any weight off, I felt nothing. "Yeah that makes sense" i remember the neuro staring at me waiting for some sort of reaction but I didn't have any.

And then it came. It went from a diagnosis to "if you get worse, get in touch" but what i heard was "we don't care until you are worse, we will do little intervention to stop you from getting worse, but please, dont stop living your life"

They really did say 'go about life as normal' completely ignorant of my normal, despite the long list of symptoms I've described, written notes that are in my file. But *hooray,* I'm back waiting again!

So now? I wait, trying to go about life as normal, wondering how I will even notice getting worse, cos no-one ever believed me before, why would they now?

forever the pessimist, especially when it comes to healthcare

[drifting-bones]

they should invent walking that doesn't make you feel like you're going to keel over and die

[gabbagepatch]

Listen guys, you don't need to look nice to go outside. Your health is more important than appearances.

I just went on a walk in my pajamas, greasy hair in a shitty bun, acne, and a pair of new balance sneakers. Cars passed by and I said hi to everyone who passed. Did I feel self-conscious? Of course, but it was worth it.

Now I feel a lot better, because I didn't A. Overextend by forcing myself to shower/get dressed/put on concealer beforehand or B. Avoid doing anything because I felt like a mess.

Go outside and be however you are. It's not your job to look good to random strangers, you deserve to go outside.

[chronically-ill-and-feral]

this is the picture I show any doctor when I have to go.

Anymore, when I get asked about my pain, I just hand the doctor my phone. I've been at a constant 8 on the chronic illness side of the picture for a year and a half now. I hate it but I thought this could be useful. I straight up got the off of Google so I am unsure who to credit for the original but I have been a great help to me so I wanted to share.