#...outside of the disability we mean
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Hi,
I'm not sure how to approach this without sounding like an ignorant asshole, but I'll give it a go.
I'm from a country where the Trans movement isn’t very visible, and most of what I know about it comes from the internet. I’ve never truly understood gender dysphoria. I’ve tried to listen and put myself in others' shoes, but I struggled to be genuinely empathetic. Instead, I just tried to be supportive because it was expected of me, without really getting it.
It might sound silly, but reading Underline the Black made me stop and think… Wait, is this what I think it is? Reading Efnisien’s internal monologues and introspection made me feel something—maybe not from the same circumstances, but in a way that something inside my brain clicked, and I finally saw where the pain was coming from.
I guess what I really want to say is thank you. Thank you for helping me begin to understand and for broadening my perspective. It might sound small, but it’s something I deeply appreciate. I’ve been trying for a long time.
I do feel a bit foolish realizing that it took an ABO fanfic for me to get it… but at the same time, I was also reading about your real-life experiences. Or at least, that’s how it seemed to me. Forgive me if I’m wrong.
You have an incredible talent for expression.
Anon, until you know otherwise, everyone has to start somewhere. This applies to unlearning our biases and prejudices, which we all have for something, or many things, until we unlearn them. The fact that you've even tried to be supportive of something you don't really understand is still important, and still matters. It's a step into understanding, even if you don't have it yet.
I don't think it's foolish that it took you a story to realise what you've realised! This is actually exactly why representation of diversity (in gender, sexuality, culture, race, etc.) is so important in fiction. Because it's in fiction we can be free to explore concepts that are different to our own, or that challenge us, or make us see the world differently. This is why it's so important to know it's possible to identify with a trans character, or a POC character, or a character from a different culture to ours etc. Because that's when we humanise what we previously saw as like, different, Other, hard to understand. We go 'oh that's...really relatable actually, I think I'd feel the same way if that was my experience of life' or 'I don't know if I'd feel the same way but I really understand where that person is coming from.'
Gender dysphoria is complex, and different for different people. Being able to write it metaphorically through Efnisien's journey has been really interesting for me personally, because I've been able to depict both the inner conflict of knowing that your being is not...automatically going to be accepted as normal no matter what, unless you stifle or suffocate yourself, alongside the true euphoria and joy that can come with living as your best life, or your very self.
I have once seen a good analogy which is simply: Imagine from tomorrow onwards, everyone uses the pronouns you don't associate with yourself. You are bullied and mocked unless you wear clothing that is opposite to how you want to appear to others. You are put down and treated as psychologically abnormal for finding joy in true expression, even when that expression doesn't actually hurt anyone else at all. And now tell yourself that even your loved ones, when you desperately try to explain how wrong it all feels to be treated as so different to your true self, they explain that it's just mental illness, or that you're just confused, or that you don't understand yourself, and condescend to you, and treat you like they somehow have always known you better than you know yourself. And that's when you realise you might have to choose between your true self, and your family and loved ones who don't understand, or worse, hate you.
And then imagine that's the rest of your life, but it could change in an instant, if all of society just accepted that you are who you say you are! That all of your depression, and oppression, and suffocation could literally just vanish, if everyone was like 'oh sure actually, you want those pronouns? Cool! You want to wear this clothing? I like it!!'
And that journey is very tough in the real world, even in more accepting places (the US is clear evidence of this). In Underline the Black, I get to put Efnisien in a very specific space, and show the journey in a kind of specific way that isolates it and speaks through metaphor.
My experiences are different to Efnisien's, though I am trans, I never actually started out wanting to write a 1:1 trans narrative. Like, in this universe, "conventionally" trans people exist too. Efnisien's experience is a new thing, and a separate thing, but still - as we can see - a very good metaphor as well. I like telling parts of my story, but only small parts. I am more interested in...telling healing stories where I can watch a character heal and go 'oh I would like more of that for myself, as well.'
(Also, it's better to just say omegaverse, or AOB, etc. because a/b/o without the dashes is a slur in Australia, and while I know most people don't live here! We try to avoid slurs from other countries when we can. And we can only know to do that once someone tells us!)
But yeah, no, you don't sound like an ignorant asshole at all. You sound like someone who has learned something, and has gained more understanding, and was open to doing that, and honestly anon if more people came to something they didn't understand from your perspective, acceptance and love would be a lot easier to teach people.
It's so important to read stories about characters who aren't quite like us, or aren't like us at all, because that's when we realise just how much we actually do share so many similarities, and why our differences matter too.
Anyway thank you for sharing your message with me! I really appreciated it.
#asks and answers#underline the black#underline the rainbow#efnisien ap wledig#i do really think this stuff is like...#you can't know until you know - in a way#that doesn't mean you have to live the experience#but fiction gives us this unique ability to live in the mind of a character#this is why Bardic storytelling was so important (among other reasons)#these narratives allow us to exist outside of ourselves and within ourselves#it is for me a way to tell healing stories while i'm in a life of healing#and sometimes it's a way to be like#this is what it is to be trans#this is what it is to be disabled#this is what it is to be oppressed#and sometimes these things are more relatable than we realised they were#administrator gwyn wants this in the queue
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i swear my stepdad is so illogical AND stubborn it hurts
#okay so strap in coz this is a wild ride#tl;dr we have been without heat and warm water for years and i mean literal years#because he refuses to pay off some debt he built up with the company#because he feels unfairly treated (let's not get into this. it absolutely makes no sense) by the company#so instead of doing the logical step of growing some balls and admitting he made a mistake and paying off his shit#he's been looking for a new supplier all over but the deal IS#that he's been doing this with a couple of places before and people are hesitant to even make him any offers#and you'd think that learning about THAT at least now he'd be like. idk willing to just pay off his debt and be done with it#but you'd be WRONG#now he's looking to just have our entire heating system replaced for the teeny tiny price of 25000 bucks#mind you his debt isn't even a THIRD of that#and obviously he can't afford those 25000 bucks#so what's his next step now you might wonder?#well good thing you asked. his next step is going off on ME for not paying towards the new heating he wants#and now that that's not working for him guess what he did next?#that's right. he bought shit expensive 'space heaters' that are pretty much just small little boxes that you plug into an outlet#and he swears up and down that they're going to heat up our house (it's negative degrees outside)#(it's obviously not working)#and genuinely. all i can think of is how much money he shoved into trying to macgyver this house into a house with warm water and heating#and how he blew off ten thousands of bucks he got paid when he retired within the span of two weeks#when this debt could have been paid off ten times over by now#so now you might be thinking. okay tiago. why don't you move out#good question you see. my mom is disabled and reliant on someone who cares for her#something that he can't won't and shouldn't do because the last time he sorta kinda tried she almost died and we had to call an ambulance#she wouldn't eat a thing if i weren't there to cook. the house would fall into disrepair if i wouldn't do maintenance all around#i've set up (functioning) heat in some areas she occupies and i've gotten a boiler going so she at least has warm water#i'm paying off their bills to make sure he doesn't skip on paying any others. i'm buying groceries for them because again they wouldn't get#any for themselves#and finally. i've offered to pay off his debt so that we can finally live like normal fucking people do#and guess what. guess WHAT. he just got mad at me for not adding money to that 25000 bucks pool for that new fancy heating he wants
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"i'm literally never beating the allegations" and then the allegations are that i like skrunkly looking guys
#i'm re-reading my messages in the shit show while watching arcane rn i was so dramatic and for what?#honestly on point for arcane tho#actual quotes from my messages:#'VIKTOR BB BOY OPEN AN EYE AND MY LIFE IS YOURS'#'VIKTOR BB BOY DROP ANOTHER LITERALLY ANYTHING I'M ALREADY YOURS'#'oh damn wait they really made the disabled man an allegory for jesus. oh and he's hot'#'but i mean he was hot to begin with but he's HOT hot'#'heimerdinger dear what the fuck are you on'#'LEAVE HER ALOOOOONNEEEEEE'#'the lesbians are NOT winning this kne boys (gn)'#'every time i try and say that i don't have a type a sopping wet pathetic man pops up and proves me wrong'#'literally cannot beat the allegations this man came on screen and i FOLDED'#<- this one was accompanied with photos of viktor lmao#'and what if i cried? hmm??? what then riot?? will you give me more episodes then??'#anyways can't wait to have more unhinged thoughts about arcane#this show was the first thing i talked to my therapist about outside of an ED just so we know how fucked i get about it#also i forgot jayce's mom was alive????? she's here?????#arcane
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Don't tell my mom but this new puppy loves me the most
#her name is lacey she's a bichon and we brought her home sunday#she's supposed to be support for my mom's disability but she is obsessed w me#im not even trying to make her love me especially. she just does 😖💖💖#if i had to guess she feels protected by me bc she sees me mediate between her and dickens who she is afraid of#dickens is being a very gentle boy w her#which he NEVER is bc he's a big dumb oaf#but yeah the thing is no matter how gentle he is. he's still 42 lbs and she's less than 5 currently#she's never seem a dog larger than another bichon so naturally she's intimidated by his size#he wants to play w her so bad#tales from diana#actually just now kaily and i took them both outside on leashes and i kept her on another side of the yard#and she was watching him (unobserved by him) from a distance and started walking towards him#and gesturing like she wanted to play! so kaily brought him over and they jumped up and down a little#oh it was so wonderful! that was their first time really playing. dickens tried to initiate play once or twice but it scared her#ive tried to get her used to being in the same room as dickens and just nearer and nearer so she's comfy#and she can see that he doesn't mean any harm toward her.#he's a big dumb oaf but he's friendly and he likes you baby girl#again ive never seen dickens so patient and gentle w anything in his life. it's heartwarming#and he finally has another friend which is great. he's obsessed w other dogs
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Hi, thank you for that post about us in the South. As a queer and disabled southerner it means a lot to see another person put it into words but also to get that reminder that we have a community here.
hey, its no problem <3 i promise you we're out there and we aren't going anywhere. it's a scary time for sure, but our communities have been through scary times in the past and we will make it just as previous generations have.
if no one else has your back, i promise you that i do. right now, we need that more than ever.
#seeing all the southerners who have already responded to that post means so much to me too#i want to try and get more into my community when i finally get out of the despair cycle#it will end and we will come out of this holding each other up as we always have#even as terrifying as the idea of outwardly showing myself to be queer is right now#i think its important for those of us who have outside support and places and people to fall back on to continue to stand proud#maybe not right away or maybe not directly around inauguration day but#i will continue to wear my pins and my shirts and i will continue to be loud and proud#to let others know that they aren't alone#sorry im just getting emotional about all of this ;;;;#sincerely your local queer and probably disabled southerner#who has lived in georgia their entire life#askers#anon#shh ac
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#will delete this very soon but ough. had to get it off my chest for a second#when i say 'i am housebound because i am disabled and if i try to leave my house (and often while I'm in it) i feel like I'm dying'#it means that no‚ i cannot go to a hotel an hour away. or one a half hour away. i can't go to a restaurant. no i can't walk around the zoo.#i get that you are trying!! i get you want to do something fun with me#!!#but i cannot! leave the house in this state!!!! or i will curl into a ball and vomit and die badly!!!!!!!!!#and changing what we would do outside!!! does not negate the fact!! that you still want to drag my disabled ass outside!!!!!!!#i will gladly have a picnic in the yard with you‚ or do movie night in‚ or any number of things i can do without getting in a car!!!#but i cannot go out shopping at a mall or go to the cinema or anything!!! i just can't!!!!! i have told you i can't!!!!!!#just. oughghhhhhhhhhhhh help meeeeeeeee they just won't listen sometimes.........#vent
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you know when you get those adverts for like protein shake meal replacement bullshit products and people say shit like ‘im just so busy with work i never have the time for breakfast or lunch or dinner or snacks, so this horrible brown powder milkshake is a huge life TIMEsaver!��� and ‘its so convenient! i just swallow a glass of tasteless powder to meet my basic vitamin needs and then i have all the time my employer wants from me!’ and then you have to keep watching the unskippable ad only for the person not to become immediately radicalised by what they were just forced to say. I genuinely cannot fathom how people write these scripts, say them out loud, film these videos, edit them and publish them and nobody involved in that process is going insane. are you even listening? are you reading those words? cant you see the exploitation of workers is forcing you to stop performing even the most necessary of tasks like eating real food? and cant you see we have been so convinced that is normal that there are entire businesses and ad campaigns based on it?
food, actual real good normal food, is a human right, but also part of your culture, your family, your community. Its a source of joy, health, fun, love and creativity. please dont let these fucked up companies convince you its just time that could be better spent slaving away for the rich monsters that hold your contract.
#this is all so dystopian on so many levels#i also want to make clear bc if this ever sees the light of day outside my internet circle#that i am not talking about meal replacements for people who actually need them#if you have a chronic illness/disability or just some other physical condition that means you need to recieve your nutrition through#meal replacements of any kind - this post is not about that situation#this is about capitalism convincing the general public (forgive the phrasing) that people should forgo proper food in order to create more#time for corporations to exploit out of workers#i think (as some recovering (sort of) from an ed) our society has warped the way we view food and nutrition so disgustingly#and not just in the body image ‘health’ obsessed way#but also in this way and im sure many others too#so many foods or meals are marketed as prepare/cooked in x minutes and no prep and super convenient and has daily dose x x and x vitamins#LIKE. WHAT ABOUT TASTE. WHAT ABOUT THE JOY OF COOKING A BIG MEAL WITH YOUR FRIENDS. WHAT ABOUT FAMILY DINNERS.#WHAT ABOUT THE PRIDE YOU FEEL FINALLY GETTING A RECIPE RIGHT#WHAT ABOUT MAKING UR FOOD LOOK CUTE FOR FUN. WHAT ABOUT TEACHING KIDS HOW TO COOK. WHAT ABOUT SHARING FOOD WITH UR NEIGHBOURS.#WHAT ABOUT FAMILY RECIPES AND SECRET INGREDIENTS AND FEELING FULL AND HAPPY.#CAN ANYONE HEAR ME.
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#wow ok so the new nurse practitioner im connected with is uh. The Worst Person#extremely discriminatory#doesnt give a fuck about her patients well being or health#wont do her job properly even when its fucking over said patients#is lazy as shit and tries to get out of doing any work whatsoever even just checking a fax#and has now screwed my healthcare over bc she's going on vacation for 2 weeks and DIDNT INFORM ME even tho i have tests scheduled#and am supposed to start meds that r extremely time sensitive#but now i just. Cannot access them bc she wont prescribe them before she leaves#so uh. ok. we're fuckin Done w this#gonna talk to my support worker tomorrow and explain and ask for a referral outside the program#which suuuucks bc that means said NP would have to do it and im sure she'll put up a fight but uh#ya no sweetie we r done w this#u hate disabled ppl and think my life and health is a joke#u have spent 3 weeks sabotaging any attempts i have made at getting adequate care and access to resources#genuinely and actually Fuck Off And Die#this is. truly infuriating i rly dont have words#like hooo boy if i had to quote some of the shit she's said and done y'all would be shocked#which is rly saying something considering the abysmal state of healthcare in most countries rn#aiyaiyai#Fuck This#i am. so so so done
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#spent most of today's shift sitting because i was with one of the 1.1s but i'm still exhausted imagine#the patient is on the smaller side#so we don't necessarily need the sliding sheet to move her#she's technically a few years younger than me but because of her intellectual disability her perception of the world is more childlike#but sis can put up a fight 😭😭#she kept swinging at me because i wouldn't let her chew her fingers or bite her tambourine#or pull out her feeding tube#and i was like girl i'm doing this to protect u#she can be such a sweetheart usually but was very fighty today#she pulled my locs as well :/#and the other HCA was laughing while she did it alll like omg she's so cute#and i was like girl she's literally yanking my hair rn this isn't cute of funny to me like help pull her hand off my hair or something#they got her a new spine brace tho and she's been using her chair more#which is good because it means she'll be able to go outside soon#not necessarily for long periods but still good#she'll love it
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That said we have no morals or standards if we get paid enough for something so if you drop us something like $3 on Ko-fi then we are available to hash out details and we will have a go at just about Literally Anything.
#we speak#unless it is by someone we have previously interacted with and thus may consider a friend or something like a valued reviewer/neighbor#in which case we will at least try to have things like standards#because we do not particularly want to have time and money spent on a subpar product#which also means that our Range Of What We Will Do narrows just to things we're confident we can do but. not much to be done abt that#you can hire us for things that are wildly outside of our general stuff and we may not be good at it but we will try#we're currently on a few hundred bucks a month and a lot of that goes into things like food so we do appreciate the extra money#we dislike the “im trans and disabled give me money” things because it really feels like using it as cheap leverage for diversity points#and we don't really feel like being the kind of person that you donate to in order to feel better about yourself#if you're giving us money then it better be for your own damn self-indulgence in whatever you're ordering from us#we should be the sort of frivolous payment that is rightfully considered a questionable financial decision#people are already paying us for being disabled and unemployed. please do not put yourself on the level of the government.#be better. only give us money for the sake of extremely frivolous personal purchases that will temporarily brighten your day.
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listen i joke about it every so often but truly i think if i DON'T have one of the EDSes, then i have something brand new they're gonna have to name after me because like. The Signs.
#i'm not doing genetic testing about it#there's plenty of family history annectdotally on both sides#and frankly i have all the signs and symptoms of especially hEDS enough to like go#yeah no at the very minimum it's that one#if the doc says we should do that then we do that but so far no doc has said that's the plan and i'm good with the vaguely offical dx abt i#but like also fucking god#i was abused as shit for being disabled and it was Their Fucking Fault i was born like this like what the hell#they weren't even understanding about shit they struggled with IN THEIR ADULTHOOD like#this post brought to you by#found another list of symptoms i aced like a test and i'm mad about it#(''found'' pfft: got sent by a friend who also was checking off the list like it was groceries)#like what do you MEAN those things weren't things other kids were just more morally strong than me about?#i'm NOT just lazy?#in fact my chronic condition of ''needs to lay on the ground 5 minutes into play time'' wasn't a thing to be berated???#are you telling me i'm DISABLED and have been THE WHOLE TIME?????#he says like he didn't know#i mean i did know but i also realized this morning i've been about 10 years younger mentally than i am right now physically#for at LEAST 2 days including like missing most of the decade and not totally understanding how i got where i am?#but also i am vaguely aware i no longer live near my parents#it's... it's been an interesting day#i did sleep after all last night#but my body said nope you're up now at 930 or so as normal#because it's sunny outside#and i can't sleep if the sun is out apparently#which is stupid but fine whatever
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Been thinking about it again recently and like. We kinda do wanna try using crutches for our pain + fatigue but also. social anxiety n crap (literalky nobody will care if some rwndom teenager wqlks pwst them usng crutches WHY do we feel so afraid of that 💔) and the fear of our parents thinking we "arent disabled enough" to need them is so intense idk man
#the crazy thing is theres literally a pair of crutches IN THE HOUSE. from when our mother fractured her hip#so its not even a money issue its a “what if we go outside w them and people are weird or mean about it ☹️” and a#“what if our parents dont think we're disabled enough to need mobility aids” issue#i mean. the other week our mom needed a photo of us since she was applying for a disaled parking badge. but shes also disabled herself so#idk if we can use that as any kind of proof to disprove our fear#sorry this is so random but. whatever gotta get my thoughta out somewhere ig#🧪 (it/xe/he)#💀⚜️ (it/they)#like we do genuinely think they could be of some help and worth a try at least once but. sigh. idk its complicated#our parents are very “oh if you think itll help you we dont mind” about most things but why is it this that we fear theyll get weird about#hhhhh whatever. whatever
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Can confirm as a disabled person, not being able to leave my house in the first few years of my disability was GREATLY detrimental to my mental AND physical health and literally made my life worse. It is not ableist to say that. It literally is. No way of any fashion would make that claim untrue.
If your legs suddenly don't work, that doesn't mean you lack the need for vitamin d and the fucking sun. It just means that you need a little help getting out there to access it. You don't suddenly become superhuman just because you're disabled. In fact, I'd argue that disabled people need more outside time than non disabled people bc we, on average, don't really have access to it on a "normal" basis for various reasons.
Some of y'all really need to think with your brains instead of assuming that everybody who doesn't explicitly state your unique state of living wants the literal worst for you. You're literally projecting. Stop.
life actually gets better when you leave the house consistently btw like im serious
#actually disabled#and yes. i DO have physical disabilities#and they DO hinder me from going outside sometimes#but guess what!!#I'm still vitamin d deficient!!#i still need to touch grass and breathe non stale air!!!#and YOU DO TOO.#i know it can be hard. i KNOW that.#but that doesn't mean our foundational needs suddenly don't exist#it means that we need more help to get them met#even if that means just asking your friends/family to take you to the corner store if only for a candy bar#i promise you're worth it
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vent cw and self harm mention in the tags
i hate this goddmn hellpit of a world and i particularly hate men. like jesus fucking christ they ALL REALLY think they are just. better than me.
#even when. or actually particularly when they don't understand why im doing something#i want to rip my hair out and set things on fire and .#i feel really really fuckinh stressed im under enormous pressure and i have very little support on a personal level.#its this inescapable fucking thing.#this volunteer work im doing. im disabled and im working for free and everyone is telling me how i fucked up by trying to make sure#that we werent doing illegal shit.#as a registered entity.#like. fuck all of these people genuinely.#its making me doubt myself somewhat but also like#i spoke up about these concerns and none of them had a serious answer for me that would actually be reliable long term.#and its a long term project.#and then they bailed on it on top of that#i hate these people. i really really hate them.#deeply hypocritical confused unserious attitudes. deeply unhelpful and completely unaware of it. they make me sick.#i mean they are making me sick in real life i am suffering because of the lack of support and the bullshit they keep repeating to me#and how they portrayed this volunteer work when they were leaving their positions#so now others are less likely to take the positions because they talked shit about it#and i don't want to aggravate myself by getting into arguments with them but god i hope that one day they fucking understand.#how thoughtless and careless they'd been.#im having such a bad time and im fighting so hard. i don't know how im going to get through this.#my personal life is falling apart i don't have the energy to clean my home or take care of myself#ive noticed self harming inclinations popping up lately.#like this is really not good.#but if i don't pull through then they'll all blame me forever and i cant handle having to move away.#this is my home.#i already have a hard time going outside i don't want to be known as the person who fucked up the [community project that was forced on us]#fuck. fuck. fuck. fuck. fuck. i need this to be over with. please i need this to be over sooner than i expect. i need this to end favorably#not just for my sake but because its a genuinely important project. i believe in it and its important to me personally too#i cant explain that without saying more than im comfortable with but yeah#god like i finally want to live and now im having to go through this? why? am i bad? or the world is bad.
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to each their own but godddd as a physically disabled person i really hate when a character is depicted with a certain level of disability in canon, but then fans interpret that character's inability to do things as ableist for some fucking reason and make a million aus about how much happier that character would be if they just worked hard and "overcame" their disability. and in those aus the disability is ALWAYS downplayed and sometimes basically erased entirely.
can i have like, one single fucking disabled character that just can't do things and that's totally okay and normal and no one makes aus about them suddenly being able to go beyond their ability level just so they can live a "normal" life???? please???????
#this is mostly about cinderpelt and briarlight#disabled people are allowed to mourn you know#disabled people have worth outside of the 'normal' life that abled people get to have#sometimes disabled people cant fucking do things#and thats like the entire fucking point#im so tired of this shit#maybe yall just arent physically disabled so you dont Get it#but for a lot of people that grief and mourning over our disability is something we have to struggle with our entire lives#being disabled means there are things you can't do#literally in the damn name
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NO! No, joe biden is not some friendly grandpa that gets a fond farewell and a pat of the back, like 'aw you tried', NO!!!
BIDEN IS A WAR CRIMINAL!!! JUST BC WE HAVE A TERRIBLY AWFUL ORANGE WAR CRIMINAL COMING INTO OFFICE DOES NOT MEAN OUR CURRENT AND OUTGOING PERSON WAS NOT AWFUL!
I DONT CARE IF HE WALKED INTO THE FOREST WITH SPRITES AND A BREEZE - BIDEN IS A WAR CRIMINAL THAT SENT BOMBS AND WEAPONS AND FUNDED A GENOCIDE, just like the presidents before him, AND HE SHOULD NOT BE VIEWED FONDLY
#biden#trump#just bc the next 4 years seem more frightening for more of us now#does not mean there hasnt been large suffering under the past 4 years#it just means it didnt affect you or you werent aware of it#and since theres a chance dumpy orange might try to abolish presidential term limits#we CANNOT view our trajectory as just Hey lets get throught eh next 4 years#bc theres NO guarantee that after 4 yearas it will get better#specifically bc amurica is an imperialist evil country that profits of the death of POC and disabled and immigrants#and WILL still actively continue on its plight to surpress us on the inside and kill and overthrow govnts on the outside
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