#what is hemophilia
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The egg is rotten now.
The paint and gold leaf have chipped
And flaked away
From a hundred hours of being held.
The shell
Remains
Uncracked.
I keep the egg wrapped in a sheet
Tucked in a discreet shoebox
Up, on a high shelf
In a crowded closet.
The mystery
Still
Haunts me.
I tell myself again and agian
"There was nothing to save,
There was nothing to lose.
Only yellow yolk floats inside."
Only
Yellow
Yolk.
But I can still remeber
how It sometimes shook and jumped,
Warming at my touch.
Brushing my fingertips over the shell now
The egg is just as still
And cold
As marble.
Last year i wrote a poem for @quezify 's eggtober event, and ive decided that it warrants a sequel now. This is a very personal piece, as was the previous poem. Using abstract imagry and symbols to process my emotions feels much less confrontational, and allows me some distance to analyze how my experiences have shaped me. i hope this poem resonates with someone. happy eggtober! 💛🍳
#special shoutout to queezy for always being such a huge artistic inspiration#the fish lures and hemophilia series really resonated with me#anyways im not gonna get into what this poem represents for me#if it hits it hits#if not#it dont matter because it was gratifying to create#tag time#egg#eggtober#eggtober 2023#poem#poetry#art#writers on tumblr#poemblr#whatever I'm fishing#world egg day
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YOUR NARINDER IS SO CUTE I LOVE THE HOMOPHOBIA IN HIS EYES 🤍
BDHSBHAVAHDVHRHAHAHSBDUABSH THANK YOU!!!!!
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I put doll!Valcamon in a cool modern hoodie and now I'm trying to figure out what a modern AU would be like for the Magpie King and him.
option 1: same story, modern setting. Valcamon works in a computer safety firm that he technically started but which he no longer owns. He hasn't been fired only because there are critical stuff only he knows how to do, and everyone he tried to explain just can't grasp it. The Magpie King is his internet boyfriend, who also happens to work for the same company except in a different sector. They haven't met at work and Valcamon is hesitant to meet people irl because they sometimes react weirdly to his face. The Magpie King gets impersonated in a plot to force Valcamon out of the company, and resents Val when Val fails to realise the other person is a fake.
option 2: continuation of their story, but in a modern setting. tbh this is maybe the least interesting option, but also the most chill. Two messed up gods in love, trying to figure out how to make a reservation on airbnb
option 3: different story, modern setting. It would take the most work, but it'd make the most sense (Medka and Actalus have a modern AU and it has almost nothing to do with their canon version).
#jau rants#lol partner demanded that Vacalmon keep his scarred face no matter what and like... yeah that's a big part of who he is now#in this house we believe in characters keeping their disabilities#so Medka has hemophilia is every version and Valcamon is disfigured in every version#is disfigured an acceptable way to say that? my man is mostly blind in one eye and is missing his nose and has heavy scars#idk what the pc term for that would be#nomad au
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It's so hard for Shou to acquire father figures becuz the only person he wants to talk to is his dad. He'd rather gnaw and bite at his father to notice him rather than admit to himself that he's so insignificant to Toichiro specifically ( which he isn't, toichiro is just terrible at this )
#genuinely he is the problem he loves his father sm he doesn't want anyone else#and he doesn't want to accept that there is a possibility of not being cared for by his own father#yeah Toichiro's been terrible yeah he's done a lot of bad things & hurt so many ppl especially shou & natsumi but to shou that's his dad :(#who's trying to be better & change and is doing so bad at trying to be better and change and it only makes shou want to cling to him more#hope is incurable hemophilia you bleed & bleed & bleed ( <- literally all the suzukis trying to love each other )#ショウ ; what a cruel adolescence. / study.
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personally I don't like this ish (pointing to my emotions) and if I could remove one very specific one I am struggling with at the moment, that would be SOOOOOO very convenient and helpful, Lord
#you know that thing where it's like hope is hemophilia you bleed and you bleed and you bleed#yeah well i'd like to stop bleeding already there's literally nothing there's literally NOTHING i'm working with!!!!#alright im tired so i WILL talk and then will delete this tomorrow but. i love this boy so much and it is personally Killing me#it is also deeply embarrassing the extent that i care about him and how silly my behaviour has been as a result#i literally cooked for half the dorm because i wanted to make food for him. like girl whyyyyy#do i need to go down to breakfast at 7:30am every single day? no. do i go because i know he's always there before his class? yeah#do i worry about him and wonder about him and ask him about his day pretty much every day? also yes#it has been SUCH a mess of sticky notes and asking about what he needs prayer for and buying the same brand of cookies because i know#they're his favourite and simply losing my MINDDDD which is so silly because i KNOW he ***** ******* ****#he literally TOLD me about this. the door is already CLOSED. WHY must the delusional voice in my head harp on in this way!!!!#alsooooo i hear his voice in the hall and my heart literally starts to hurt it is SO bad#there's way more than this but that's all i'm willing to admit because even when tired i at least have some sense of wanting to preserve#my dignity. anyway#the waiting room chapter
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You can kill me if you do it romantically
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doing this really cool thing in darkest dungeon lately called forgetting to check any of my character's stats before embarking
#my bounty hunter kept failing his bleed check from wyrd reconstruction and missing all his blows and struggling everywhere and i was like#whats with the rng today??????????? (nervous bleeder) (hemophilia)#quirinahscreams#i think weald in general just has Not Been going great for me my flagellant hit deaths door like 8 times last run#everyone was really low health and i didnt have any antivenom so he kept taking damage and hit deaths door three times in one corridor#which got everyone back up to full health nicely HAHAHAHA#i also got a heart shaped dungeon generation..........#BUT I FINALLY CLEARED THE STUPID ANCESTORS PEN QUEST RAGHHHHHH (everyone went afflicted)#this game is evil thou bc i see the afflicted stats on paper and its like oh not Too Horrible! i guess#and then my shieldbreaker had a heart attack because she kept refusing jesters stress heals. etto.......#my heroes tend to go selfish a lot.....i wish they went more courageous when virtous bc stress heal actouts sound so nice...#but then again my abusive shieldbreaker somehow got us thru miller (increased dmg) so watever -_-
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NEW TAV JUST DROPPED her name's ashra don't let her 16 con and 6'2 towering-over-everyone-but-karlach fool you she's a hemophiliac with brittle bone bitch disorder. Currently in love triangle w shadowheart and lae. Gale is trying to smash even tho she keeps bullying him for being a wizardcel who can't effortlessly use magic like her (chad draconic bloodline sorcerer)
#andrew baldurs gate era#what else do i know about her. her charisma is insanely high but it's like the wyll kind of charisma of saying weird shit in such a genial#and matter of fact tone it comes across as persuasive#she's like 19. very low wis high int. she's a very nice person at heart and knows how to make people like her but she is also just extremely#fucking odd and kinda mean#she wants to fuck lae'zel real bad but she's gonna fall in love w shadowheart. thinks astarion is hilarious and he thinks the same except#with the addition of she talks too fucking much. she was fully gonna stake him after the vamp reveal except her love of science and the bit#combined and she went ok. one (1) chomp. promptly forgot about the hemophilia and she almost fucking died#her dad was a blacksmith in the city and she was his apprentice but she really wanted to be a historian/researcher :)
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I really would love to write a fic about Albert Ingalls, but alas! I have literally no plot ideas😔
However, I am open to suggestions💁🏻♀️
#Albert Ingalls#little house on the prairie#LHOTP#I mean what do you even write about when the character is a doctor?!🤷🏻♀️#I could write about him discovering that he has hemophilia instead of leukemia 🤔#agh! I’m wracking my brains over here if anyone cares🤷🏻♀️
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ah yes nate's hemophilia, a fact that will be remembered for like two episodes in s2 then once again as a background detail in s4
#alli says shit#i do find it funny that we thought they forgot. only for the hemophilia gala to happen#it sounds bad to just say the hemophilia gala but i forgot exactly what it's called lol
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#hi I’m doing a Thing#I’m genuinely curious what everyone’s opinion on this is#tell me your thoughts about elves and ailments#I personally think elves suffer mental illnesses but I’m not sure whether or not they would also be genetic or not.#mental illnesses are many times genetic disorders for us so I wonder if they would be for them too.#though if they are then that would mean elves can possibly have more genetic conditions! perhaps not diseases such as hemophilia#but things like albinisim? Down syndrome? perhaps things like those are possible.#silmarillion#tolkien#elves
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Me, at a camp: uhhh, I have hemophilia
My counselor: this is a hemophilia camp, we know
#it’s my only fun fact I have prepped#what do you people want from me#this happened two years in a row#I said it and remembered only after I said it that I was at hemophilia camp#professor talks
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Ahmed Saad or @/90-ghost's brother in law is currently doing his best to organise the evacuation of his family from Gaza. This family suffers from a combination of ailments that all require medical attention. This is the description on their GFM page:
Hello, I hope you all are doing well!
My name is Mohamed Monir Ahmad Mahmoud, I’m a hemophilia patient from Gaza. I decided to start this campaign with all the hope that you could support me in evacuating Gaza to do surgery for me and my daughter and start a fresh life with my 5 kids out of the ongoing genocide in Gaza [...] I was supposed to go out at the end of 2023 to have surgery on my knees but since 7 October, I had no chance due to the procedures on Rafah crossing, the gate of Gazans to the world. Now, my knees and elbows are bleeding with no access to any type of care and if things stand as they are in Gaza, I won’t be able to walk or make any effort because of the bleeding (currently I am barely able to set up a small fire in front of the tent to prepare food for my kids).
What I ask is 60,000, for travel costs because each one would need to pay 5,000-8,000$ to be allowed to leave Gaza through Rafah crossing and we need around 3000$ more in Egypt for our stay and to obtain visas. We will be heading to Brazil where my brother Diaa lives and there is a huge chance to do the surgeries and access health care as the health care for Hemophilia patients in Brazil is one of the most advanced in the world.
please give generously!!
#theyre only at a fraction through their progress#after ahmed's success story getting his money#i hope tumblr can muster up enough generosity to help these folks out too#palestine#free palestine#free rafah#free gaza#rafah#mutual aid#donations
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anyone knows of fiction story where a character has hemophilia? I’m trying to like. See what’s out there to avoid bad clichés in writing Medka, but so far I’m... not really finding much...
#jau rants#I am mostly struggling with his perception of himself and his health#which I guess I'll have to like... try to get in touch with people who actually have hemophilia at some point#although the experience of a modern day person who can know exactly what's up with them#and Medka who only knows bad bleedings have killed most of his family#would be pretty different#so much rewritings are needed and I just feel more and more that this story sucks and I should just drop it
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World Hemophilia Day – 17 April 2023
World Hemophilia Day is celebrated on 17th April every year, seeking to improve awareness of hemophilia and other inherited bleeding disorders. The day is celebrated in honor of Frank Schnabel, founder of the World Federation of Haemophilia (WFH).
#What is The WFH?#World Hemophilia Day Theme#What is Hemophilia?#Types of Hemophilia#Hemophilia Symptoms#Hemophilia Treatment
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not sure what u did but they’re happy now
they are staring at you
#iasip#again i ask what did u do#nobody answered me last time#does anyone read tags#i just got a hammerhead shark plushy#and i’m watching a hemophilia documentary rn#that’s it bye
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