#spinal disorders

[haydenhaystackarts]

To anyone with herniated discs, sciatica/radicolopathy, degenerative discs, and specifically cauda equina syndrome…

What were the initial symptoms that you experience that indicated progression of your injury?

I’ve been a lot less ambulatory and sitting on my rear has left my coccyx feeling ultra compressed, which I don’t recall if I’ve experienced this weird pain+sensation before. Which is hilarious because I’m sitting more because of this disorder.

Chicken or the egg, I’m worried that I’m getting worse.

[feelingthemode]

disability pride month userboxes part 3/5

posted these on insta throughout the month :3

[genderqueerdykes]

i just had the worst fucking cluster headache of my life, i could not function OR rest for about 3 hours, i was just sitting in various spots of my apartment like this >_< while trying to find the darkest spot i could, alternating between trying to sleep and trying to just sit there.

trying to sleep made it worse, somehow? i eventually was able to in the end but for several hours trying to sleep made the pain throb and stab. i took some seroquel and that was able to help me sleep but i could not open my eyes for the life of me, nor could i keep them shut for too long. my right eye / back of my head just hurt like hell for no reason for 3 hours and at several points i just kinda whined and cried a little because there was not really much i could do drinking water didnt help. i ate food, that didnt help

that sucks ass. if you deal with these too, im sorry. people trivialize headaches all the time, but this one resisted an extra gabapentin, which helps with migraines and headaches, and i was still unable to do anything but deal with what was happening. there are a lot of different types and manifestations of headaches. if someone tells you they're experiencing a bad headache, please let them do what they need in order to get through whatever they're experiencing

[triglycercule]

why is horror almost ALWAYS sweating bro this man must be a straight up water faucet with how much sweat he has in every horrortale panel. however it is for this reason that i think he has hyperhidrosis. hello my name is triglycercule and in this essay i will explain

[famouskoaladetective]

I distinctly remember a nurse telling me whenever I got my spinal cord injury after my first big seizure,

"it's just a CSF leak, it'll be better before you're married."

Now I'm 29, I've been divorced for 5 years, and my spinal cord injury still fucks with my life on a regular basis, and even though my seizures have gone from multiple a day to just one or two episodes per year they're still a fucking problem, and I kind of want to go back to that nurse and just tell her,

"it wasn't better before I got married the first time and isn't better after the divorce. Do you think if I get married again it'll cure me?"

Medical fucking gaslighting...

[flashbackonyourbehalf]

I have consumed more calories today than I have in the last few days combined

I’m not sure whether to be proud of or disgusted with myself

Apparently being in pain raises your basal metabolic rate, so I should eat, but this is the lowest weight I’ve been since April and I don’t want to ruin my progress

I’m honestly not hungry most of the time, and when I am, I’m in so much pain that often times, starving is preferable to standing

And a sick part of me wants to keep it that way

I don’t want to eat, I want to feel like a ghost

I wish someone would tell me that it’s okay to eat, even if it’s junk food, while I’m bedridden. In fact, I want them to shake me by the shoulders (gently) and tell me that I need to

[wheelie-sick]

would be so cool if there was another recorded case of L1 transverse processes being fused

all my doctors are just like "huh that's odd, never seen that before, not sure what to do about that 🤷"

there are many recorded cases of L4-L5 being fused but alas I am a unicorn. it's my L1 transverse processes instead

[neuroticboyfriend]

i see the neurologist today, would anyone be able to give me advice on how to get my concerns addressed properly? for context, i'm going for:

spinal nerve (mayhaps cord?) compression, causing pain, spasms, and weakness. i need medication for the pain & spasms, and nerve tests done on my limbs (mainly legs).

..myoclonic jerks and attacks? triggered by loud noise and fatigue, but sometimes the trigger is unclear. i have it on video, thankfully.

i'm nervous they won't give me medication and won't test properly, causing me to be misdiagnosed with FND, if I don't have it. like.. what tests should they be doing before they even think about diagnosing me with FND?

(im ok with this being reblogged for reach btw)

[rosenfey]

that being said turns out being hunched over while hyperfixating on writing in my notebook is bad for my chronic back pain and I'm off to bed

[blueheartedwolf]

I wish I could find a doctor that wants to find out what’s actually wrong with me instead of recommending prescriptions to address the symptoms. I’m so tired of being recommended ibuprofen for debilitating pain. Tired of relaying my medical history to a new doctor and getting the same furrowed brow and shrugging shoulders I get every time. Tired of having so-called medical professionals ask why I need a cane if I’m able to walk down their clinic hallway without it. When will someone fucking help me?

[hungerpunch]

LOL AT WILLIAMS' CHIEF TECH OFFICER AT THE TIME (PAT SYMONDS) PRAISING VALTTERI FOR TAKING ON A NEW TRAINER TO "IMPROVE HIS PROFESSIONALISM AND HIS ALREADY EXCELLENT STAMINA" AKA FUNCTION WITH A SEVERE EATING DISORDER :) FUCK OFF EVERYONE WHO ENCOURAGES THEIR ATHLETES TO DEVELOP UNHEALTHY RELATIONSHIPS WITH EATING AND FOOD. EVERYONE WHO KNOWS WHAT'S HAPPENING AND LOOKING THE OTHER WAY, OR WORSE, URGING IT ON, DIE IN A FIRE.

[mars-ipan]

spinal fluid explosion girl is in the komaeda playlist now bc i said so. and i can do what i want

[thesebright-lights]

Different from what I usually post, but this needs attention.

Lili Johansen (who was a model for Resident Evil Village), is suffering from a Cerebral Spinal Fluid Leak and Adheasive Arachnoiditis due to a Lumbar puncture performed by irresponsible doctors. I highly encourage reading about these conditions- it is truly worse than anything I had ever even heard of.

She has an opportunity to get a potentially life-saving surgery, but needs to raise 46k USD (~42k EUR) in order to get it. Please please PLEASE donate if you can, and spread her story around as much as possible. You can find her @/ninjacatgirl on Insatgram and @/ninjacatgir1 on Twitter. Donate to her GoFundMe here.

[nightsinvhs]