#s elneil

[thelifeofkaiblog]

•*•*• 25th October 2018 •*•*•

What the f*ck are they doing to me?! Why do they keep messing up? Why do I keep having so much trouble with it? :(

More detailed recap: I had an appointment with Ms Yasmin (UCLH gynaecology) earlier this month. A week before, I called around to make sure it was for the hysteroscopy (a procedure to test my body’s reaction to anaesthesia and to take samples to help my hysterectomy case). They told me they were from her secretary team and the first appointment wouldn’t be a pre-surgery assessment (like I was told my referral would be), but Ms Yasmin’s team would be the team to do it. I was disappointed, but I still had to go.

Two days before the appointment, I got a call from someone else in her secretary team to say Ms Yasmin looked at my case and told them that her team doesn’t do what I’ve been referred for. I was devastated that it had taken them months to check this out. They said that all they could do was write a letter to Ms Elneil (the one who’s been referring me to people) telling her to refer me to someone else. It’s ridiculous because I’m left in the dark with no way to speed anything up for their mistakes.

I then got a call the next day (the day before my appointment) to reschedule the appointment. WHAT?! I told them I’d only just been called to cancel my referral to her team completely. They had no documentation of that call, but didn’t reschedule.

I’ve just been sent a letter RESCHEDULING WITH HER TEAM for January. WHAT IS HAPPENING?! I’ve called the booking team, but they don’t know. I’ve repeatedly called Ms Yasmin’s secretary team and it just keeps ringing until it hangs up - no chance to leave a voicemail either. So I called Ms Elneil’s secretary team and left a frustrated voicemail, asking someone in the know to call me to explain what the hell is going on.

Am I really that unlucky? I know I’m not the only one having any of these life issues (inc. job, body issues, relationship stuff, etc.) on their own, but all of them together? I just want ONE aspect of my life to be going positively consistently :/ I’m exhausted with everything being a battle :(

Just been told my pre-hysteroscopy appointment isn’t actually a pre-op appointment :(

•*•*• 26th September 2018 •*•*•

Knock me while I’m down. Just let the hits keep coming :( I’m frustrated that people are constantly trying to find other temporary methods, when we’ve tried a good few with no success and it’s a whole lot of medication that won’t even give me the result I need.

I’ve been pushing for this on and off for about 4 years and this has just proven that there hasn’t really been any progress. I’ve seen more specialists, but haven’t actually got any closer to having either of the surgeries I need to build a life for myself. I’m tired of it :(

I’m old enough to have numerous babies, join the army, drink myself to death, smoke, get permanent tattoos all over me, but not get rid of a uterus that has caused me nothing but almost daily trouble for 10 years.

[wildbeautifuldamned]

Vintage Pelham Marionette Puppet SM Girl (moving mouth) wbox - England 1960’s ebay elneill

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[thelifeofkaiblog]

Hysterectomy update....

•*•*• 14th June 2018 •*•*•

WARNING: semi-graphic

Saw Ms Elneil (mentioned in last post). We talked for a while and she said they'd need me to have a BMI of 33 - 35, which is 4 - 5 lower than I am now. I've been desperately trying to lower it, but I've been on my period for 54(!) days in the last 3 months, so I've been gaining or staying the same, each time my period starts. It's really distressing because of the weight requirement for chest reduction too :(

Anyway, I explained this to her and told her what my dietitian has been saying - e.g that she believes my body wouldn't be able to lose more than ½ stone in 6 months, with the health issues I've got. I also said I've done a 12-week weight management group, never missed a session and that I've been doing the same things for months now, with no improvement. My mum, my GP (doctor) and my dietitian have witnessed how hard I've been working at it, otherwise people wouldn't believe that I'm doing enough.

I also told Ms Elneil that I understand the risks of being heavier when having surgery, like increased blood loss, blood clots and even death, but I told her that I honestly feel like I'm just slowly dying now and will continue to without these surgeries because I have very little quality of life, comparable to the average person. She understood and came up with this plan to try to have me approved at the BMI I am now:

(They'd also be taking a sample to test for what may be causing the excessive heavy bleeding.)

[thelifeofkaiblog]

20,000 STEPS! 🏆🏃🏻‍♀️

•*•*• 14th June 2018 •*•*•

(A couple of days ago....)

How? I went to London for an appointment with Ms Elneil (uro-neurology department, UCLH), which required a lot of walking to and from stations (it wouldn't have if I'd chosen to take more than one train). I'd reached about 7,500 steps by the time I'd had my appointment just after 11am :)

I'd reached about 16,500 by the time I got back to my nan's houses, had finished installing new phones upstairs and downstairs and planted her sunflowers in the ground (intense digging and carrying heavy soil back and forth).

When I got home, I was determined to achieve the remaining 3,500 by pacing in my house while watching a film. I was hoping that because the Fitbit I have vibrates when you reach 10,000, it would do the same for 20,000.... nope. Seriously disappointed that, after all that hard work, it didn't have a mini celebration on the Fitbit. They should change that! :)

[thelifeofkaiblog]

Ms S Elneil

•*•*• 8th June 2017 •*•*•

Great lady. Totally professional and very understanding. She will be writing three letters for me: one to my doctor, one to her endocrinologist colleague and one to her breast surgeon colleagues! She mostly focuses on abdomino-pelvic chronic pain, but I decided to mention my chest reduction needs to see if she knew what step to take next and she suggested she write to the people she knows to hopefully give me a consultation with them. She was even kind enough to dictate her letters in front of me, so I could have peace of mind that she was getting my situation across accurately. I'm very pleased with how helpful she's been overall, especially in backing my request for a hysterectomy in the near future! She said that it was her professional opinion that, if the Charing Cross psychologists agree, I'm more than competent enough to decide that a hysterectomy is in my best interests.