#rhumatology

[princelydelinquents]

Bringing dp to my next doctor appointment (very soon) probably very painful I h8 being afab 7.7

[ancientevangelions]

As someone else with an autoimmune disease I know how scary and stressful it is I hope you stay safe

Thank you 💙 My husband and I have been adjusting and he is helping me rest and not overdo it.

I'm waitlisted for rhumatology and the vague waiting makes me anxious.

I'm being investigated for Lupus and Rheumatoid Arthritis, but Lupus is the better fit by far as I have almost every symptom.

[andsoshetypes]

Rhumatologist genuinely told me that whilst I meet the criteria for fibromialgia he won't give me the diagnosis unless I ask for it.

That. Isn't. How. This. Works?!

[butch-bakugo]

Me: dosent limp infront of my gfs family for 3 out of the maybe 10 days they see me out of the year for a time longer than maybe 5 minutes*

My gfs family: i knew you were a fake cripple. I knew you weren't actually disabled. I knew you were a lieing little tranny. How dare you. Liar. Corrupting our perfect conservative white daughter.

[emthedragonprince]

.

[stone-below-the-water]

so fucking tired all the time. i can't even enjoy things cause im so focused on physical pain and discomfort & the management of it all. the. fucking. time. costochondritis came back somewhat so i get to just sit here which in turn makes my pain management Worse. i need to move and move and do my exercises and MOVE but i'm just so depressed and fatigued i just cant its so insurmountable. pt is moving me down to 1 session per week which is fucking stupid because my issues are ongoing- but i guess they only have a script for neck & upper back. not that i can even argue cause im not doing my exercises hardly at all. hopefully my appointment with rhumatology tomorrow helps me in the right direction. so fucking upset my costo is back, i wish i knew why.

[ktmyblog]

Here's what I learnt from 30 days of Yoga with Adriene

Here’s what I learnt from 30 days of Yoga with Adriene

I’m going to let you into a secret; every year I tell myself I’m going to do the 30 days of yoga with Adriene and subsequently quit about 4 days in. However this year I wanted it to be different. I was going to complete 30 days of BREATH and show up to the mat everyday to practice with Adriene and Benji. When I see rhumatology, they always tell me to practice yoga to help with my joints. I know…

[zebra-warrior]

Why do I raise awareness for EDS? Sure I do it for myself but I also do it for others. Having this condition I've seen the devistation it causes. I've had friends with it who I have watched waste away and lose their battles. No EDS itself can't result in a persons life coming to an end but connective tissue makes up at least part of every organ, bone, muscle, joint, nerve, tendon ligament, fat cells, blood and even nails and hair so the entire body is fair came for this disease so though no, EDS cat take your life, I along with most consider EDS to be life endangering because it can cause anything to go wrong with any part of your body which in tern can result in the loss of life so ultimately it is can rob you of many years. I do this for my friends who have passed away. I do this for one friend I particular. Emet Tauber who told me to never quit spreading the word.

No one should ever have to go 28 years without a diagnosis, being told they are Hypochondriac, have Illness Anxiety Disorder, have a Somataform Disorder, Somatic Symptom Disorder, Psychosomatic Disorder have Conversion Disorder, a Functional Neurological Disorder or what ever new name continues to be created to replace it. They all mean the same thing. "it's all in your head, you're afraid your going to get sick so now your mind is creating these fake symptoms of illness. It's a term that is overused and someting a doctor uses when they don't know what's wrong with the person and are too egocentric to admit it and once a person does have a diagnosis that is very complex and has no treatment or cure, you are labeled with these conditions so that a doctor can send you out the door because they don't want to deal with it. Quite honestly im waiting for the day a doctor can be prosecuted for using these labels as an excuse not to treat someone after they have a diagnosis or for labeling them with these diagnoses even though evidence shows someting is obviously wrong even if it's not known what is causing these abnormal test results. Because they want you to become someone else's problem. Because they use as a way to put a blanket over top of the fact that they are letting you lay there untreated or even worse, in the cases for things such as whan I lost the ability to walk were they would pick me up and say I could walk and then drop me on the floor, using these terms to cover up physical mistreatment. I would also like to see Psychosomatic Disorders to legally only be diagnosed by a psychologist or psychiatrist as they are usually the first to tell us we were misdiagnosis and done for the Psychosomatic criteria at all. I had one personally tell me that the doctor who refereed me by reading his notes obviously has Narsocistic Personality Disorder so doctors who don't specialize in psychology should in no way be able to diagnose this. A referral is fine but of they can't diagnose it they don't leave the patient with a botched record to follow them around for more doctors to piggy back off of.

I don't want the future generations to go through this, to live their lives with Complex Post Traumatic Stress Disorder and would almost rather stay home during a life threatening event than have to go to the hospital knowing they will likely leave sicker than they went in. Afraid to go to sleep at night because their heart has stopped so many times before that they are afraid it will stop again and there will be no alarms to wake someone up or they struggle with aniphalexis and are afraid they will quit breathing it diabetes and afraid of a diabetic coma secondary to their Gastroparesis secondary to their EDS. For a patient to have to dedicate their lives to research because if they don't try to save themselves who's going to. Because they have to know what not to do in order to refuse treatments from doctors that can make them worse. It should be a doctors responsibility to save a patient but most of us don't have this leasire. We figure out how to save ourselves and go to the hospital when we need to not for a knowlegable doctor but because we can't write perscriptions for ourselves, do imaging on on ourselves, pick up a lactated ringer or oxygen tank at the local drug store. We go for life saving supplies hoping a hospital doctor will listen to what we need, read the medical journal pages we printed off for them to explain why we need what we need and provide us those materials. I don't want a botched medical history to follow patients around for the rest of their lives for lazy doctors to pick and choose these misdiagnoses, even after a diagnosis, to put a nice psychosomatic baidage on top of it so they have an excuse to not treat you. To flat line at a hospital yet sent home two hours later.

I don't expect a cure to be found because this is genetic but I do hope the future of EDS patients have access to an approved treatment and more knowlegable doctors and that even those aren't specialists are taught more about it then three sentences. Most schools don't address it at all in their curriculam. It would be nice if of all the time they spend in school and with how complicated the conditon is at least one week of education is dedicated to EDS. That's still only a fraction of knowledge on the topic but at least it's enough to know some of the symptoms or comorbidities common or possibly the more basic diagnosis criteria. Maybe a new profession. Will even be created such as a Connective Tissue Specialist since that's are so many connective tissue diseases yet no specialist dedicated to them. As of now we are supposed to be thrown into the category of Rhumatology but I've never met a Rhumie that knows much about it. I would also like to sew the "look for a Zebra not a horse" terminology totally thrown out of med school. Teaching medical students that rare diseases are nearly impossible to come across and to only look for a common ailment when diagnosing a patient is dangerous and leads to unethical outcomes. Zebras do exist. I raise awareness so future kids can get a diagnosis earlier, better treatment for the conditions early on, consistant treatment with no excuses for mistreatment of a patient and ultimately these individuals are able to live much healthier lives. Every person who sees my posts or has spoken with me, read my emails or has me as a patient. I hope to spark their interest and if noting else they take away one new piece of information about my condition that they can share or use when they meet the next person who has this conditon. It's all about knowledge. We can't have progress without knowledge.

(Video is me in shock at Mount Carmel East Hospital with micro tears along my spinal cord and inflamation. I was left on the floor in a room for people on things they had to come down odd of for 7 hours. I begged for a blood and urine test before it got this bag even offering to let them watch me on the toilet and they said no leaving me there hours only to find out I had nothing in my system and they had made a major mistake. By then the beds were full and I had to wait even longer. Before they knew they kept yelling at me for lying on the floor. The others in the weighting room went into an uproar about what they had done to me.)

[supermedstudent]

1 down, 2 to go 💪

I just finished the cardiology exam. I think it would be easy if i studied more. Like in all of it, i was like " i know this!!! but not in details!" :/

I half-assed my way through it. hope i get somehow minimal good grades. Now time for the next exam: orthepedics and rhumatology.

[supermedstudent]

Here in Tunisia, it's something in the middle. When we become interns, we are supposed to know everything (practical wise i mean) but in the medical school there is no clear guidelines to follow during rotations? Like it totally depends on the seniors and residents you have in the ward that you are in. We have a list of goals for every rotation but we don't usually do them all. For example, my last rotation was in rhumatology. This was a very very informative internship and everyone was very nice and helpful. We did almost all the goals except for one: a knee liquid-joint aspiration. That's f**ing scary for me. I watched it many times and still i couldn't have the courage to do it, and the residents too. So now i haven't learnt how to do it.

This was about a good internship. Let's not talk about other skills that i have not had the chance to even see them. And there is this big problem here in tunisia: we don't have the material for this, this is only done in X hospital in all tunisia, etc

So yeah i'm jealous of other medical students who have better conditions. But i aspire to be the best i can be and maybe i'll have the chance one day to have internships in foreigner hospitals

Hello, I'm a 4th year med student from a southern European country (6 years program). As of now, I really feel inadequate compared to my colleagues from other countries. I'll explain: here on tumblr I read lots of posts written by students who do lots of practical things: delivering babies, giving shots, helping interns and residents around, and they even have shifts to cover with their tutor. They don't simply study medicine, they learn how to /practice/ medicine. (1/3)

Here in my country instead, we only study. We never do anything practical. Professors don’t do their job well and most of the time we’re left on our own. I know how to do blood drawings, but only because last year I was lucky to meet a kind nurse who proposed to teach me, she said “I find it unacceptable that the university never teaches you stuff like that, so as long as I work here I’ll teach what I can to as many students I meet”. (Shout out to you, Mrs. C., you’re the best!)

I know you can’t do anything about it, but I just wanted to tell someone about my feelings, I feel so frustrated and useless, because I don’t think that my uni will prepare me for being a doctor… 

Hello!  I’m glad that you felt able to tell me your feelings. I can’t change your uni, but I’m happy to listen to you if you want to talk about it. I’m sorry you’re not getting the training you wish for. In some ways, I know exactly how that feels like. And it sucks. Mrs C sounds like a star! I’m glad that there are people out there teaching useful skills. If it helps, you can usually find online tutorials for practical skills like that. It’s not quite the same as practising, but it helps? Sometimes students practice on each other, and whilst I’m not going to officially recommend poking each other with needles, I’m not going to tell consenting adults what to do, either. ;) I’ve noticed this a lot about European schools, particularly through talking to grads from various places in Europe. A lot of places seem to really value detailed knowledge of, say, anatomy and pathology. Good, solid subjects. But teaching appears to be quite traditional, with a lot less emphasis on communication skills.Here in the UK, it’s the opposite. It’s not that we don’t learn anatomy or pathology; but we learn less of it; we cover it again in more detail relevant to our chosen speciality in postgraduate exams. So in med school we focus more on examination, communication skills, practical skills, things like that. So a lot of UK med school grads might well know less tan you do about lots of things, and have different skills. what I’m trying to say is that your training, and you, are not less than anyone else. The reason lots of countries put less emphasis on such skills is because in a lot of countries, it’s nearly always nurses doing those tasks (and yup, I’ve confirmed it with my nurse colleagues who trained in Europe; they have some iiiiiinteresting stories about what doctors in their home countries will and won’t do!), so there’s often not as much of a need for docs to learn. Whereas say a UK FY1 HAS to know how to take bloods, put in cannulas, take ABGs etc because many nurses don’t know how to do those things, and it’s usually part of our responsibility, not theirs. I don’t know what new doctors in your country are expected to know, but I wonder if you could befriend any of the more junior doctors where you are training? I’m sure if you had a chat with them about the skills they needed, perhaps they’d give you an idea of what you need, or maybe a lesson or two. The more people I meet from around the world, the more I realise that we really can’t compare our training; not only is learning to be a docotr very different aronund the world, but our everyday lives as doctors, what we’re xpected to do and the level of independence or support varies considerably. We work in different systems. We’re normally trained to optimally work in the system of the country that we’re training in; for example UK med students are trained to be at the level expected of a UK FY1 doctor; transplant us to another country and we’d have a lot to learn! For example, trainees in the UK from other countries are significantly more likely to fail exams which involve a communication aspect; they are often very technically skilled and very knowledgeable, but perhaps haven’t yet developed the level of communication skill we expect in the UK.  Those people still know a lot, and are competent, capable docs, they just need to adapt to the system. They just need time and some support. If I’m reaaaaally honest, I personally get the impression that the training US docs get more intense than ours. Or at least, they get to do lots of the kind of stuff we do as an FY1/intern in their final year of med school. And I feel their residency looks more structured, with a lot more actual training; sometimes I’m a little bit in awe. Maybe that’s why it’s shorter. But I can’t change the system I work in, or the training I have access to; I can only do the best with what I’ve got. We have a saying here, “Comparison is the thief of joy”.It means that if we compare with others, it erodes our happiness. Because there’s always something that others have better than us. And it’s true; sometimes it really hurts when we think about how things are for us versus for other people.It sounds like you’re working really hard to be the best that you can be. And I know it hurts to see lots of people talking about their studies, and realising that they get to do things differerently. Maybe they get more training, or more support. Perhaps they get to to more exciting things. Your feelings are valid, and there’s nothing wrong about wishing that you were getting better or different training. I’m sure you’ll pick up the skills you need, though it might be later than you hope for. Perhaps you might need to work together with friends, or junior docs or nurses as best as you can, to learn as much as you can. Medicine is a world of impostor syndrome; most people I know seem convinced that they don’t measure up against everybody. Some days, I feel it too. So it’s perhaps an almost universal feeling; to feel that we’re not quite good enough, and that others are better. And it’s something we all have to work around, live with, and fight. Sometimes we need to learn more or do better, but none of us are awful. And everyone deserves their place in medicine. But I hope you can eventually also look at how far you’re coming, how much you’re learning and realise that you’re awesome too in your own way. You’ll get there, one step at a time. I wish you all the best, let me know how you get on :)

[andsoshetypes]

So have to go back to see a rhumatologist due muscle weakness of my left side that was noticed after my second a&e trip in a month. So after the last experience I requested a new rhumatologist. Two days ago I get a call from someone in the department who worked for my old one, she tried to talk me out of going to see a new rhumatologist, suggesting physiotherapy (which I've been doing for months) or seeing a psychologist (which I'm waiting on) for my fibromialgia. Except I never got diagnosed with fibro. And I need to see a rhumatologist for other symptoms.

I am so fucking angry that this asshat of a Dr would get a person to try to talk me out of seeing another specialist! Like, his behaviour at the appointment was appalling, this is out right screwing with my health care!

[jinfit33]

Saying good bye was bitter sweet ❤️ . No words will ever be enough to thank the hard working ladies of the Rhumatology unit in UHW. . From the most amazing pin pusher Justine who I challenged on many occasions with my shit veins but would always do her best to get that drug into me body. . Annmarie who walked me through the methotrexate state and would always give me the best advice with a smile and sarcastic word at the end which would always turn my frown upside down. . To the sisters Glenda and Kay from the first time my mum wheeled me onto your ward with the fear in our hearts you helped us so much and gave us so much faith that I could get better. For soothing me when I was coughing up blood and wiping away the blood from my nose. You made everything alright. . To the nursing staff that where there on different occasions for always asking with a smile if I needed anything and the small talk it meant the world and more to me. . I will forever be grateful and thankful that you had the knowledge of my illness and knew all the right things to say at the right time and always made me smile and belly chuckle. . The NHS needs more of you, they need to learn from nurses like you and up and coming Doctors need to learn your bedside manners too as well as a few consultants I have met. . I will see you lady’s later but it will be for different reasons 😘 and not for treatment (I hope) . My journey hasn’t ended it’s just beginning I will continue with spreading awareness about Granulomatosis with polyangiitis WG, and spread the positives of what exercise a diet thats wise and a bit of diddly dumb can do for you 😉��� . #instagood #nevergiveup #vasculitis #wegenersgranulomatosis #uhw #rhumotology #nutrition #beginning #journey #fitness #fitspo #photooftheday #wcw #runner #motivation #femalefitness #health #healthychoices #exercise #workout #determination #strong #strength #quotes #live #love #life #lifestyle (at University Hospital of Wales)

[bethanysb]

Rhumatology appointment, xrays and blood tests in 40 minutes. Not bad scunthorpe general, not bad (at Scunthorpe General Hospital)

[supermedstudent]

Sorry i didn't see your suggestion earlier, i just finished the exam. Thank you a lot 💙

It's not like i'll never return to ECG properly, i still have the real cardiology exam and i have time to revise everything properly (inshallah).

Honestly, it's not fair to pass this exam now bc it's been 10 weeks since the cardio rotation, and i have had 2 other rotations after. my mind is all rhumatology and orthepedics now, and i only had one day to revise?!! So yeah i panicked yesterday.

About the ECG exam per se, i half-assed my way through it. It's not like i'm null in ECGs, i still remember very well and today's exam proved it to me (thanks to the cardio rotation, and i also encountered ecgs after that). But the problem that i didn't do a thorough interpretation as they wanted to. I'm sure i forget to write many details, but i got the diagnostics right! So yey! It's not that bad.

Help

What can i do to save myself? Tomorrow i have an ECG “mini” exam and i did nothing all day. It’s 18:17 now and idk why am i like this! Anyway i want to do smth now. How?

It’s been 10 weeks since i’ve last read or done anything cardiology related.

[supermedstudent]

I'm tired but i did nothing? I'm bored, i'm suffocating. I don't want to do anything but i need to study. I just wasted yesterday and today and yet i'm tired. I did nothing and Tuesday i'm supposed to have the orthopedics & rhumatology exam! I didn't read a word in rhumatology!!! So tomorrow i need to cram it all up! But i'm still in one book of the 2 books of orthopedics.

God, i want to stop. Stooooop all this. I've in this high-stress mood since four weeks now and this is the fifth. I know it's the last so i shouldn't ruin all this up, but honestly? I'm fed-up. 5 weeks and every day u burn your neurons from stress and studying yet you sleep every night unsatisfied, feeling like not doing enough. And all the moments of procrastination just kill me more, torture me more. They are like saying to me " if you fail like the 2 years before, it's totally your fault. You are doing this to urself. You lazy irresponsible bitch"

AAAAAAAAAGGGGGHHHHHHH